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Dearest Jamie,

From the day you were born, I knew you were a special little boy.

With your gorgeous dark hair and brown eyes, you were the perfect combination of me and your daddy, Simon, now 47.

But, from the moment you came into this world at Worcester Royal Hospital on 29 April 2014, you were in so much pain.

You see, my darling, the tops of your tiny feet looked as if they’d been badly burnt.

The skin had come off as you were born, leaving them red raw.

When you were wheeled into the maternity ward in an incubator, your feet had been wrapped in cling film, and my heart broke for you.

Doctors told us that you had something called recessive epidermolysis bullosa (EB). It was a rare skin disorder that meant your skin was so delicate, that even

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