Sick and tired. Living with Chronic Fatigue Syndrome
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About this ebook
Living with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis is about a radical change of life. The total change one must immediately get used to, that comes when you did not expect or look for a change.
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Sick and tired. Living with Chronic Fatigue Syndrome - Roberta Pelletta
Sick and Tired
Living with Chronic Fatigue Syndrome
By Roberta Pelletta
Copyright 2012 Roberta Pelletta
Translated from the Italian by Ken Colgan
Cover Photo by Stella’s mom via Photo Pin
Smashwords Edition
License Notes: This ebook is licensed for your personal enjoyment only. This ebook may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each recipient. If you’re reading this book and did not purchase it, or it was not purchased for your use only, then please return to Smashwords.com and purchase your own copy. Thank you for respecting the hard work of this author.
Thanks to Sue Hilton for the title.
Contents
Preface
FACTS
The impossibility of being normal
Doctors
Little practical problems
Instant coffee
The job I used to do
Relationships, between desire and impossibility
The house in the country
FEELINGS
Fear
Loneliness
Time perception
Conclusion I
Conclusion II
Appendix: Practical information: Ten discoveries about the biology of CFS, by Anthony Komaroff
About the Author
Preface
Iʼve written this little book to tell people about CFS, Chronic Fatigue Syndrome.
200,000 to 300,000 people suffer from CFS in Italy.
The total for the whole world is 17 million.
I also set myself the goal of helping people avoid the mistakes we all make at the outset, and to help patients assert their rights when they are afflicted with a disease which is very little known, as well as invisible to all but the sufferer.
Iʼm grateful to those who, through their blogs and experiences, have helped me to understand things, and to accept them, and Iʼd like to make my own modest contribution so that others suffer only as much as they have to.
I had the good fortune to have had an accurate diagnosis after six months, whereas others have struggled for years and years before being diagnosed.
If the syndrome were better known, and better studied, we would have fewer people looking for an answer without finding one.
I donʼt deal with the issue of the diseaseʼs pathology from a medical standpoint. However Ten Discoveries About The Biology of CFS, with a summary of scientific advances, overseen by Professor Anthony Komaroff, can be found at the end of the book.
Part 1: Facts
Sooner or later in life everyone discovers that perfect happiness is unrealisable, but there are few who pause to consider the antithesis: that perfect unhappiness is equally unattainable. The obstacles preventing the realisation of both these extreme states are of the same nature: they