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    Polycystic Liver Disease: Information for Patients
    Polycystic Liver Disease: Information for Patients
    Polycystic Liver Disease: Information for Patients
    Ebook82 pages58 minutes

    Polycystic Liver Disease: Information for Patients

    By David Drum

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    About this ebook

    Polycystic liver disease is a rare disease involving multiple cysts on the liver. Less than 200,000 people in the United States have it, and most of them are women. Polycystic Liver Disease: Information for Patients contains basic medical information for people who wish to learn more about this rare disease.

    When the daughter of medical journalist David Drum was diagnosed with polycystic liver disease, he began looking for information about this relatively rare disease. He found precious little basic information for patients, and none available in book form. After doing a great deal of research to help his daughter manage her disease, Drum condensed the information he found into this short, informative book.

    The first book of its type, Polycystic Liver Disease: Information for Patients includes useful information on diet, herbs, and lifestyle. It examines the origins of the disease, risk factors, the important role of the liver in the body, the formation of cysts, and treatments for the most common symptoms including the symptom of pain.

    Of particular interest is a survey of the five major treatments used to treat symptomatic polycystic liver disease. Although the disease is not life-threatening, for one out of five patients, an invasive treatment or surgery may ultimately be necessary. Drum provides objective information on each of these treatments, and examines the benefits, drawbacks, and possible complications for each.

    Polycystic Liver Disease surveys the new drugs of potential benefit now undergoing clinical trials, and other new treatments such as hepatic artery embolization. The book includes a survey of medical tests which may be employed by your doctor, a list of useful web sites, a glossary, and a bibliography of sources.

    The author recently received a nice note from a lady across the Atlantic. The note is reprinted here with her generous permission:

    "Hi there,
    I just wanted to write and say thank you so much for the information you have provided in your book on polycystic liver and kidney disease. I have just finished reading it and I feel much more informed and knowledgeable about this condition.
    I was diagnosed with polycystic liver and kidney disease last year and underwent de-roofing surgery. I have had a difficult recovery, with limited improvement to pain and bloating, and I am getting nowhere with my specialist. I feel that I now have relevant questions to ask, and that I am armed with more knowledge about my condition, which will benefit future discussions. Your book covered everything and more and has really helped me understand the condition and why certain things affect me. I feel that I can continue discussions with my specialist with more understanding and I now have more appropriate questions for him. I am so grateful.

    With kind regards,
    Louise F. - Aberdeen, Scotland"

    LanguageEnglish
    PublisherDavid Drum
    Release dateNov 27, 2013
    ISBN9780991185702
    Polycystic Liver Disease: Information for Patients
    Author

    David Drum

    David Drum is an award-winning journalist and writer. He is the author or co-author of eight nonfiction books in the health area as well as the well-reviewed new historical novel Heathcliff: The Lost Years, and the comic novel, Introducing the Richest Family in America. His health books are known for their practical, well-researched content and have also been well reviewed.David has worked as a newspaper reporter, a sports editor, an advertising copywriter, a ranch foreman, an encyclopedia salesman, a short order cook, and an inner-city schoolteacher. He has been an independent writer since 1978.He is a member of the Authors Guild, the Independent Writers of Southern California, and the American Medical Writers Association.A native of Wichita, Kansas, he is a graduate of Brevard College, the University of California at Riverside and the University of Iowa’s Writer’s Workshop.He currently lives and works in Los Angeles, California.

    Read more from David Drum

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      Book preview

      Polycystic Liver Disease - David Drum

      POLYCYSTIC LIVER DISEASE

      Information for Patients

      By David Drum

      Burning Books Press+Wellness Edition

      *

      © David Drum 2014

      All rights reserved.

      *

      Smashwords Edition, License Notes -- This e-book is licensed for your personal enjoyment only. This e-book may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each person. If you’re reading this book and did not purchase it, or it was not purchased for your use only, then please return to Smashwords.com and purchase your own copy. Thank you for respecting the hard work of this author.

      This is a Burning Books Press Wellness Edition. All other rights reserved. No part of this book may be produced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording, or by any other information storage and retrieval system without written permission from the author, except for the inclusion in brief quotations in a review. For permissions write Burning Books Press, PO Box 41053, Los Angeles, CA 90041.

      First e-book edition. ISBN # 978-0-9911857-0-2

      Cover design by Karrie Ross, Be It Now.

      *

      TABLE OF CONTENTS

      Preface

      Chapter 1 -- About polycystic liver disease

      Some facts about this rare disease, and how it is diagnosed and develops

      Chapter 2 – What causes polycystic liver disease?

      The risk factors for polycystic liver disease include being female

      Chapter 3 -- About the liver

      The liver is the body's most important organ, with more than 500 important metabolic functions

      Chapter 4 – Symptoms and complications

      Symptoms such as pain and a feeling of satiety, and complications such as cyst infections can be managed by your physician

      Chapter 5 -- Diet and lifestyle

      A balanced diet including adequate protein is necessary, as is appropriate exercise to help maintain weight and overall fitness

      Chapter 6 -- Surgical treatments

      The five major treatments include cyst aspiration, sclerosing agents, cyst fenestration, liver resection and fenestration, and liver transplant surgery

      Chapter 7 -- Drugs

      Drugs that may prove beneficial for polycystic liver disease are now in clinical trials

      Appendix A --Liver enzyme and function tests

      Medical tests you may receive and what they mean

      Appendix B – Glossary of terms

      Appendix C --Internet links

      Appendix D -- Bibliography

      About the Author

      *

      PREFACE

      When my daughter was diagnosed with polycystic liver disease, I knew very little about it. To my knowledge, neither polycystic liver disease nor its frequent companion, polycystic kidney disease, had occurred in our family before. When my daughter began to experience the very common symptom of pain from an enlarged liver, she asked me to help her. As a medical journalist and the author of several health books, I began to learn about what was to me an unfamiliar and somewhat rare disease.

      It was not easy to find much basic information for the patient with polycystic liver disease. There was a little information on the internet. Medical journals contained the most reliable data, but this information was scattered over many different publications and written for an audience of sophisticated medical professionals.

      Eventually, my daughter was able to make an informed choice on a medical treatment for her pain. Happily, the surgery she chose turned out well. For the benefit of others in my daughter’s situation, I decided to condense the information I found into this short book.

      We live in an age when many people wish to be active partners in their medical treatment. However, being diagnosed with a chronic disease can be frightening and unsettling. Panic can set in when the patient faces medical treatment choices that they don’t fully understand. To make good decisions in our complex medical system, we need good information. And unfortunately, medical doctors do not always have the time to fully answer complex questions or to completely explain everything a particular patient might wish to know.

      Polycystic Liver Disease: Information for Patients contains background and treatment information for the person with polycystic liver disease. The book includes a simple explanation of the disease, the role of the liver in the body, symptoms and complications which may occur, and identified risk factors. A good deal of nutritional information is included. For fine-tuning the dietary information presented here, I am grateful for the assistance of registered dietitians Nickie Francisco-Ziller, RD, and Sara Di Cecco, MS, RD, of the Mayo Clinic, in Rochester, Minnesota, one of the institutions leading the way in finding new treatments for this puzzling disease.

      Polycystic Liver Disease contains helpful information on exercise, lifestyle issues, and medicinal herbs.

      Perhaps most importantly, I have included a survey of the more serious treatment options for polycystic liver disease. For one out of every five patients, invasive treatment may one day be needed to

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