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    Don't You Know It's Rude to Stare
    Don't You Know It's Rude to Stare
    Don't You Know It's Rude to Stare
    Ebook45 pages41 minutes

    Don't You Know It's Rude to Stare

    By Laura M. Billson

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    About this ebook

    One family's struggle for the past twenty-six years with Neurofibromatosis, and how we have coped with it. Especially how we have dealt with and come to terms with it. Especially how we have dealt with and come to terms with other people's attitudes towards the syndrome and facial disfigurement. In the belief that our own personal experiences may encourage others in similar situations.

    The author began to write this book with her husband and children ten years ago after a road traffic accident. She trusts that by sharing her own hopes and fears it will help others to understand and hopefully come to terms with their own situations.

    LanguageEnglish
    PublisherTrafford Publishing
    Release dateOct 13, 2003
    ISBN9781412217224
    Don't You Know It's Rude to Stare
    Author

    Laura M. Billson

    Laura Billson was born in Nottingham in 1953 and have studied, worked and lived in Nottingham her entire life. The author has always enjoyed telling and writing stories for her own two children. She hopes to publish some of these stories at a later date. She is an avid reader and enjoys sketching and painting. She is a born again Christian and worships at The Oasis Christian Centre in her home city.

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      Book preview

      Don't You Know It's Rude to Stare - Laura M. Billson

      Don’t You Know Its Rude To Stare!

      One Family’s Struggle With Neurofibromatosis.

      By

      Laura M. Billson

      © Copyright 2003 Laura Billson. All rights reserved.

      No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise, without the written prior permission of the author.

      Note for Librarians: a cataloguing record for this book that includes Dewey Classification and US Library of Congress numbers is available from the National Library of Canada. The complete cataloguing record can be obtained from the National Library’s online database at: www.nlc-bnc.ca/amicus/index-e.html

      ISBN: 1-4120-1255-4 (sc)

      ISBN: 978-1-4122-1722-4 (ebk)

      Image277.JPG

      This book was published on-demand in cooperation with Trafford Publishing.

      On-demand publishing is a unique process and service of making a book available for retail sale to the public taking advantage of on-demand manufacturing and Internet marketing. On-demand publishing includes promotions, retail sales, manufacturing, order fulfilment, accounting and collecting royalties on behalf of the author.

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      CONTENTS

      DEEP FAITH

      THE HISTORY

      BAPTISM AND BEYOND

      NEUROFIBROMATOSIS

      WHAT IS NEUROFIBROMATOSIS

      BEYOND DIAGNOSIS

      SOME PEOPLES ATTITUDES.

      One Family’s Struggle with Neurofibromatosis. This book is dedicated to:

      My son Peter whose Christian faith and courage is tremendous, My beloved husband Stuart, My daughter, Fiona, Peter, Lisa & Stacey who have been there for us, Our G.P. Dr. Ablaze Kailua.

      All of Peter’s medical consultants.

      The lads.

      David White who designed the book cover as his gift to us. And for all who have prayed for us along the way. And last but not least my late grandmother who was known as Gran to all who knew her and was an inspiration to us all.

      DEEP FAITH

      Even though I was given the gift of a special child and because of that gift my life was changed around completely, I can give thanks for the untold joy that has been mine in the gift of Peter.

      Peter has a marvellous personality. His love of life shines through in all that he has done in the past and still does today. He makes friends easily and he has them by the score; especially the lads who bend over backwards to take him to the world super bikes at Donington Park and Brands Hatch. They say to me don’t worry mom we will take care of him! Telling me that they know my unspoken thoughts and acknowledge my need by letting me know that it’s sorted and they are on the case, and are protective of him.

      Peter and many people like him who are challenged, has dug in there and has refused to give up. It has been harder and taken longer to learn or do things but he has got there in the end. Peter has a gift of putting people at ease in his company, and easily explains to young and old alike why he looks as he does.

      In spite of or because of all the negative and positive experiences that life has thrown at him he has come out of his early experiences

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