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  • Diagnosed With Progeria, A Progressive Aging Disorder

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    A Distinctive Style
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    At the age of two, Sam Berns was diagnosed with Progeria, the progressive aging disorder so rare that fewer than 250 children in the world have it. At the age of two, Sam Berns was diagnosed with Progeria, the progressive aging disorder so rare that fewer than 250 children in the world have it. His parents, Drs. Leslie Gordon and Scott Berns, were told that there was no treatment or cure, and they should simply enjoy what limited time they had with their son. The average life expectancy for a child with Progeria was thirteen. Leslie and Scott were not willing to give up so easily and set out on a journey to save Sam and all the other children with the disease. LIFE ACCORDING TO SAM reveals the remarkable world of Sam Berns set against the backdrop of his parents’ relentless pursuit of a treatment and cure for Progeria, including launching the first-ever clinical drug trial, while also making the most of their time together as a family. Directed by Oscar®-nominated filmmakers Sean Fine and Andrea Nix Fine.

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    Diagnosed with Progeria, a progressive aging disorder

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    At the age of two, Sam Berns was diagnosed with Progeria, the progressive aging disorder so rare that fewer than 250 children in the world have it. At the age of two, Sam Berns was diagnosed with Progeria, the progressive aging disorder so rare that fewer than 250 children in the world have it. His parents, Drs. Leslie Gordon and Scott Berns, were told that there was no treatment or cure, and they should simply enjoy what limited time they had with their son. The average life expectancy for a child with Progeria was thirteen. Leslie and Scott were not willing to give up so easily and set out on a journey to save Sam and all the other children with the disease. LIFE ACCORDING TO SAM reveals the remarkable world of Sam Berns set against the backdrop of his parents’ relentless pursuit of a treatment and cure for Progeria, including launching the first-ever clinical drug trial, while also making the most of their time together as a family. Directed by Oscar®-nominated filmmakers Sean Fine and Andrea Nix Fine.

    Drepturi de autor:

    Attribution Non-Commercial (BY-NC)
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    36 vizualizări1 pagină

    Diagnosed With Progeria, A Progressive Aging Disorder

    Încărcat de

    A Distinctive Style
    At the age of two, Sam Berns was diagnosed with Progeria, the progressive aging disorder so rare that fewer than 250 children in the world have it. At the age of two, Sam Berns was diagnosed with Progeria, the progressive aging disorder so rare that fewer than 250 children in the world have it. His parents, Drs. Leslie Gordon and Scott Berns, were told that there was no treatment or cure, and they should simply enjoy what limited time they had with their son. The average life expectancy for a child with Progeria was thirteen. Leslie and Scott were not willing to give up so easily and set out on a journey to save Sam and all the other children with the disease. LIFE ACCORDING TO SAM reveals the remarkable world of Sam Berns set against the backdrop of his parents’ relentless pursuit of a treatment and cure for Progeria, including launching the first-ever clinical drug trial, while also making the most of their time together as a family. Directed by Oscar®-nominated filmmakers Sean Fine and Andrea Nix Fine.

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    din 1

    A 0|S1|XC1|V| S1\|| .

    C0H
    Ceenu Luvls ls known for her qulrky churucters
    ln flms llke "8eetlejulce," "1helmu und Loulse,"
    und "1he Accldentul 1ourlst." She won un Cscur
    for her ortruyul of Murlel Prltchett, but lt's her
    role us u mother thut lnslred her lutest und
    most lmortunt work. vhlle wutchlng
    chlldren's shows wlth her duughter, she sturted
    to notlce thut there were fur fewer femule
    churucters thun mule churucters ln klds
    rogrums.
    Muny of chlldren's entertulnment ls flled wlth
    negutlve gender bluses und stereotyed
    behuvlors. Chlldren leurn to uccet the
    stereotyes reresented. vhut they see uects
    thelr uttltudes towurd mule und femule vulues
    ln our soclety. Slnce chlldren tend to wutch the
    sume shows und movles reeutedly, lt results ln
    those negutlve gender stereotyes thut ure
    belng lmrlnted over und over.
    1he Ceenu Luvls lnstltute on Cender ln Medlu
    ls the only orgunlzutlon worklng ln the lndustry
    to show the need for gender bulunce. 1he
    objectlve ls to sturt roduclng u vurlety of
    femule churucters, turgetlng chlldren und
    under to move uwuy from gender stereotylng.
    "Cur lnstltute ls worklng to chunge these
    hurmful ercetlons by uslng educutlon,
    trulnlng, struteglc guldunce und udvocucy
    rogrums from wlthln the entertulnment
    lndustry, to ulter how glrls und women
    ure refected ln medlu. ln uddltlon we use
    educutlonul rogrums und reseurch to
    teuch urents, chlldren und educutors
    how to uctlvely und crltlcully vlew whut
    they're wutchlng,' Luvls stutes.
    Geena Davis
    Fights for Girls and
    Gender Equality
    ddd.Slkd.086

    Life According
    to Sam
    CCMlnC 1C P8C
    www.hbo.com
    At the uge of two, Sum 8erns
    wus dlugnosed wlth Progerlu,
    the rogresslve uglng
    dlsorder so rure thut fewer
    thun zc chlldren ln the world
    huve lt. Els urents, Lrs.
    Leslle Cordon und Scott
    8erns, were told thut there
    wus no treutment or cure,
    und they should slmly enjoy
    whut llmlted tlme they hud
    wlth thelr son. 1he uveruge
    llfe exectuncy for u chlld
    wlth Progerlu wus thlrteen.
    Leslle und Scott were not
    wllllng to glve u so euslly
    und set out on u journey to
    suve Sum und ull the other
    chlldren wlth the dlseuse.
    LllL ACCCRLlNC 1C SAM
    reveuls the remurkuble world
    of Sum 8erns set ugulnst the
    buckdro of hls urents'
    relentless ursult of u
    treutment und cure for
    Progerlu, lncludlng luunchlng
    the frstever cllnlcul drug
    trlul, whlle ulso muklng the
    most of thelr tlme together us
    u fumlly. Llrected by Cscur
    nomlnuted flmmukers Seun
    llne und Andreu Nlx llne.
    k fkKllY'S fl6h1 10 Sk 1hl8 S0d

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