Running head: INTERNET ANNOTATED BIBLIOGRAPHY

Internet Annotated Bibliography

Melinda Dwyer
Ivy Tech Community College

INTERNET ANNOTATED BIBLIOGRAPHY

Name of Website: Center for Disease Control and Prevention

URL: http://www.cdc.gov
Overview: The Center for Disease Control and Prevention is an amazing website to find help
find information on so many different diseases. If you are looking for Sickle Cell Disease or
Down Syndrome you can find information at http://www.cdc.gov. You can find data and
statistics in this website and the economic impact a disease may have on a family. You can also
find articles written by scientist to help understand the disease and the research being done today.

Name of Website: The National Organization for Albinism and Hypopigmentation

URL: http://albinism.org
Overview: NOAH, The National Organization for Albinism and Hypopigmentation is a great
website to find information on albinism. There is a section just for parents of children with
albinism. This site explains what albinism is, how albinism affects a childs skin pigment,
vision, and how to help a child with albinism. There is also a section for teachers of students
with albinism. This section should help you understand how a child with albinism can
participate in general education programs with proper intervention.

Name of Website: American Lung Association

URL: http://www.lung.org
Overview: The American Lung Association is an amazing website to find information on Cystic
Fibrosis and other lung diseases. You can find out what Cystic Fibrosis is and how serious it is.
The website explains what the causes of cystic fibrosis. It also shares symptoms and how to get
tested if one might suspects they may have the disease. Most importantly it explains the

INTERNET ANNOTATED BIBLIOGRAPHY

treatment and how one can live with cystic fibrosis.

Name of Website: National Down Syndrome Society

URL: http://www.ndss.org
Overview: The National Down Syndrome Society is a leading organization that can be found at
http://www.ndss.org. The website is full of helpful information about what Down Syndrome is
and the three different types. It explains how common it is and what causes Down Syndrome
and how it is diagnosed. There is a link to a local support group here in Indianapolis and a
helpline 1-800-221-4602 to assist individuals, their families and professionals.

Name of Website: National Heart, Lung, and Blood Institute

URL: http://www.nhlbi.nih.gov
Overview: The National Heart, Lung, and Blood Institute have a multitude of resources within
this site. I was able to find information on Cystic Fibrosis and Sickle Cell Disease. This can
help with understanding these diseases and other heart, lung and blood diseases inherited.

Name of Website: National Institute of Neurological Disorders and Strokes

URL: http://www.ninds.nih.gov
Overview: If you are looking for information on Tay Sachs Disease one should start with the
National Institute of Neurological Disorders and Strokes at http://www.ninds.nih.gov. On this
website, you will find what Tay Sachs Disease is and if there is currently any treatment. You
will be able to also find out what research is being done. You can also find organizations
involved in helping individuals with Tay Sachs Disease and their parents.

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Name of Website: Cystic Fibrosis Foundation

URL: http://www.cff.org
Overview: Cystic Fibrosis Foundation is a nonprofit, donor-supported organization. The
Foundation is in the search for a cure for Cystic Fibrosis. In this website you can find out what
Cystic Fibrosis is and the symptoms associated with the disease. You can find out information
on treatments and how to live with Cystic Fibrosis.

Name of Website: National Library of Medicine and National Institutes of Health

URL: http://www.nlm.nih.gov
Overview: The National Library of Medicine is the largest biomedical library. You can find
information on almost every type of disease. It also supports and conducts research,
development and training. You can find information on Sickle Cell Disease, Albinism, Cystic
Fibrosis, Phenylketonuria to name a few.

Name of Website: Tay Sachs Disease

URL: http://www.taysachsdisease.com
Overview: If you are looking for information of Tay Sachs Disease I recommend
http://www.taysachsdisease.com. This website not only gives you valuable information on what
Tay Sachs Disease is, but it also has great illustrations. You will find out also if there is a
treatment for Tay Sachs Disease and how to prevent it by genetic testing.

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Name of Website: Sickle Cell Disease Association of America

URL: http://www.sicklecelldisease.org
Overview: The Sickle Cell Disease Association of America was created in 1994. They are there
to help individuals, families and communities affected by sickle cell disease. They are in search
for a cure for sickle cell disease. When visiting the website you will find out what Sickle Cell
Disease is, the medical problems, treatments and the research being done today.