Family Project

Melanie McFarlane,
Younggyeong, Lindsay,
Marissa

The Jalil Family

Raphael and
Moni
Samee, Abish

Family Details

Lives in Southfield, MI

Software Engineer at Cisco Inc.

Muslim/ Islamic CultureWorships at the Shia in Dearborn, MI

2nd Generation American

 Often causes paralysis of the

Spina Bifida
Spina Bifida literally
means split spine. Spina
Bifida happens when a
baby is in the womb and
the spinal column does not
close all of the way.

lower limbs, and sometimes

mental handicap.
Every day, about eight babies
born in the United States have
Spinal Bifida or a similar birth
defect spine.

Spina Bifida
Callie

Spina Bifida Myelomeningocele beginning on the L2 vertebrae

Callie was rushed into surgery to complete back closure that day.

She also had to have catheters placed frequently to ensure that

her bladder could empty completely and avoid bladder or kidney
damage.

She then had surgery to place the shunt to drain fluid off her
brain on Day 8 in the NICU.

A home health nurse was assigned to visit the family for the
first little while to help them transition home.

Eco Map

Material
Tubes
Tubes and pillows
help support the
baby in various
settings.
Buy different sizes of
tubes based on
babys growth at any
pharmacy store.

Material
Braces
Children with spinal bifida often
have many different kinds of
braces for different activities.
Braces help to support and
strengthen leg muscles. This helps
with motor development.

Informational
A website that describes Spinal Bifida to parents of
children with this disability.
The site has testimonials of other families who are going
through the same surgeries and struggles.
It gives information about what to expect through
different stages of the childs life.
http://www.cdc.gov/ncbddd/spinabifida/

Informational

http://www.spinabifidaassociation.org/
This is another website that gives information to families
about spinal bifida.
This website gives information about local clinics and
camps that children can go to, to meet other children with
their same disability. This will be a good resource for the
family for many years.
It also helps the parents stay connected to other families
who have a child with spinal bifida.

Informal
Grandparents

The Grandparents on the

Fathers side are Saad
andAsalah Jalil. They live a
few houses down from their
son. family. They come by at
least three times a week to

The Grandparents on the Mothers

side are Rasmafa and Fahmi
Haleem. They live fifteen minutes
away in Dearbornand visit their
daughter once a week for a family
gathering. The family gathering
also includes Saad and Asalah.

Informal
Islamic House of Wisdom
The Jalil familyworships weekly on Friday's at the Islamic House of
Wisdomin Dearborn each week and have support from the people they
meet there.
They call their worship on Friday "The Day of Assembly (congregational
prayers)"
Theirreligion gives them renewal and emotional support. They have met
friends in theirMuslim community which the heart of it is where they
worship.
The Islamic House of Wisdom also provides functions to bring people
together and keep them active within the community.

Formal
Children's Hospital of Michigan Support
Orthotics and physical therapist
Orthotics
Deals with all the surgeries that Callie has.
Physical Therapist
Assess with the recover of Callies surgeries and works with the family to
get Callie to move properly and develop.

Children's Hospital of Michigan is also a special needs hospital

that has a focus on Spinal Biffa.
22 minute drive

Formal
Physical and Occupational Therapy - Macomb Township
(Building and Provider)
Beaumont therapists perform a complete biomechanical, musculoskeletal
examination to determine any movement impairments causing the patient's injury
or performance deficits. Manual hands-on techniques are integrated with the
customized, functionally progressive exercises programs for the core and
extremities. The ultimate goal of therapy is to return each patient to their optimal
functional level.
Special services
Which includes Aquatic/Pool Therapy
Personal Therapy
Specialized Physical Therapy Techniques
Specialized Occupational Therapy Techniques

Formal
Water Therapy
Aquatic therapy has been shown to provide relief of symptoms from a variety of
arthritides, traumatic injuries, and other musculoskeletal conditions.
Aquatic therapy may necessary for a loss or restriction of joint motion, strength,
mobility, or function which has resulted from a specific disease or injury. The
medical record should show objective loss of joint motion, strength, or mobility
(e.g., degrees of motion, strength grades, levels of assistance).
They will be doing this by having an training for the child to do at home to help
her gain movement better in her body.
This should be done 3-4 time a week which includes the hour of training each
week (at their structure).

Sources
http://english.islammessage.com/ArticleDetails.aspx?articleId=654
http://www.onislam.net/english/ask-about-islam/faith-and-worship/aspects-of-worship/168747-why-is-friday-your

aquotsabbathaquot-day.html
http://www.fountainmagazine.com/Issue/detail/People-with-Disabilities-from-an-Islamic-Perspective
http://floatbabies.com/float-baby/
http://www.aetna.com/cpb/medical/data/100_199/0174.html
http://www.childrensdmc.org/
http://www.spinabifidaassociation.org/site/c.evKRI7OXIoJ8H/b.8029583/k.C4E9/Clinics.htm#mi
http://www.spinabifida.net/spina-bifida-michigan/
http://islamichouseofwisdom.com/directions-to-ihw/
https://www.google.com/maps/dir/Islamic+Center+of+America,+19500+Ford+Road,+D
http://en.wikipedia.org/wiki/Islamic_Center_of_America
https://www.google.com/search?q=shunt+to+drain+brain+fluid+spina+bifida&espv
http://www.spinabifidaassociation.org/
https://www.google.com/search?q=Spina+Bifida+L2+Vertebrae&espv