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Documente Cultură
19 June 2006
Background Effectively supporting individuals with intellectual disabilities who display challenging behaviours
continues to be a priority for service providers. Personfocused training (PFT) is a model of service delivery
which provides staff with skills in functional assessment
and intervention development. Existing longitudinal
data from a study of 138 cases suggest that implementation of staff-developed behaviour support plans through
PFT is effective in reducing challenging behaviour in
approximately 77% of cases [McClean et al. Journal of
Intellectual Disability Research (2005) vol. 49, pp. 340353].
However, no control group was used in this study.
Method The current study involves the use of a control
group of individuals with challenging behaviours
matched against those selected for PFT over a 6-month
period. Groups were matched on type of challenging
behaviour, duration of challenging behaviour, gender
and level of disability. Information on the frequency,
management difficulty and severity of challenging beha-
Introduction
The detrimental effects of challenging behaviour among
people with intellectual disabilities are well known.
Behaviours such as physical aggression, self-injury or
property destruction can threaten an individuals residential placement (Bruininks et al. 1988), interfere with
opportunities for social interaction (Anderson et al. 1992)
and community participation (Larson 1991). Indeed
challenging behaviours are most commonly defined in
terms of their capacity to impede access to or enjoyment
of community facilities (Emerson & Emerson 1987).
Unfortunately, there are relatively few studies which
2007 BILD Publications
et al. (2005) identified that only 15% had a written behaviourally orientated treatment programme and, of these,
many were simplistic. Furthermore, in a Canadian sample of 625 adults and children with intellectual disabilities and challenging behaviours, Feldman et al. (2004)
found that 97% of individuals were receiving some form
of intervention but that the majority of these were informal (55%) (i.e. simplistic, poorly recorded and typically
not evaluated). Such data would suggest that many
individuals with intellectual disabilities are not in
receipt of therapeutic interventions for challenging
behaviours drawn from an established evidence-base.
Pharmacological and behavioural interventions represent the dominant intervention approaches currently
available in the area of challenging behaviour (Grey &
Hastings 2005). Research to date has consistently
reported that many individuals with challenging behaviour are in receipt of psychotropic medication. One
rationale for such treatment is based upon the premise
that challenging behaviours may represent an atypical
manifestation of a psychiatric disorder. However, there
is a wide variation in the frequency of psychotropic
medication usage to reduce the occurrence of challenging behaviours with rates as high as 61% reported in
some groups (Harper & Wadsworth 1993). Additionally,
the high prevalence rate of psychotropic medication is a
cause for concern given the lack of empirical data on
their effectiveness (McGillivray & McCabe 2004; Singh
et al. 2005).
Interventions drawn from applied behaviour analysis
can be effective in supporting individuals with intellectual disabilities who display challenging behaviours
(British Psychological Society, 2005). Reviews suggest
that behavioural interventions based upon the results of
functional assessments are effective in reducing the
occurrence of challenging behaviour (Carr et al. 1999;
Grey & Hastings 2005; McClean et al. 2005). Hence it is
no longer the task of practitioners in the field to demonstrate the efficacy of applied behaviour analysis, rather
the task now is one of effective dissemination (Emerson
2001).
However, this is not a task that has attracted as
much focus as it warrants. One reason for this may be
that many services have opted for the specialist team
model to deliver behavioural supports. In this model, a
small number of specialists with expert knowledge of
applied behaviour analysis conduct and deliver interventions (McClean & Halliday 1999). The primary difficulty confronting such teams is one of logistics
(Emerson & Forrest 1996). The number of specialists
required to meet the needs of people with challenging
2007 BILD Publications, Journal of Applied Research in Intellectual Disabilities, 20, 615
settings were not a frequent characteristic of assessment processes employed. Multiple- versus single-component interventions were commonly reported but
typically involved a maximum of two or three interventions. Only two-thirds of studies reported the use
of antecedent procedures and only half reported teaching functionally equivalent skills as an intervention.
The conclusion reached by the authors is that the PBS
standards of using a comprehensive approach with a
focus on prevention through altering environmental
conditions and teaching functionally equivalent skills
are not extensive in current assessment-based research.
However, these findings may not be representative of
typical service settings as the majority of assessments
were conducted by researchers and belie an emphasis
on a minimal number of interventions to allow
research standard evaluation. Furthermore, this study
did not include any consideration of the role of training for primary care staff which Carr et al. (2002) identify as central to PBS. Attempts to define PBS typically
include its reliance on functional assessment, goal of
quality of life improvement and the use of multi-element interventions. An element of PBS is the involvement of staff in a manner that elevates them to a
central role rather than that of an information provider,
but how to successfully achieve this is rarely identified
in the literature. This may explain its absence as a
selection criterion in this most recent evaluation of PBS
practices.
One large services-based study of PBS is available
which clearly identifies a method of placing staff at the
very centre of the delivery of PBS. McClean et al. (2005)
have developed a method of delivering PBS through a
model called person-focused training (PFT). The model
involves training staff who work with service users displaying challenging behaviour to conduct a functional
assessment, to design and to implement a multi-element
behaviour support plan for this person. Assessment
includes a comprehensive psychosocial assessment,
incident analysis, functional assessment and hypothesis
testing. Intervention involves environmental accommodation, skills teaching, direct interventions and reactive
strategies. Implementation involves periodic service
review (LaVigna et al. 1994) and quarterly progress
reports. Such an approach meets the key standards of
PBS (e.g. multi-element interventions are developed
from functional assessments by the primary care staff
who are the also the primary intervention agents).
An analysis of longitudinal data from 138 staff-developed behaviour support plans indicated that significant
improvements were observed in 77% of cases (defined
as a reduction to below 30% of baseline rates of behaviour) and that at an average follow-up of 22 months
such improvements were maintained. Unfortunately,
there was no control group and hence it remains unclear
whether reductions in challenging behaviour would
have occurred over the same time period. However,
recent studies have identified that challenging behaviours remain chronic in the absence of appropriate
intervention and therefore it is unlikely that such
improvements would have occurred naturally (Stancliffe
et al. 1999; Watson et al. 2001; Thompson & Reid 2002).
The current study has as its primary goal to determine
whether training staff in the assessment of challenging
behaviour and the development of behaviour support
plans will result in reductions in challenging behaviour
for clients with whom they directly work (PFT). In addition to pre- and post-measures, a control group of clients
with broadly similar topographies and duration of challenging behaviour was also identified. The same measures were completed for this group at the same time
points as those for the training group. No staff training
took place for this group and no formal behavioural
assessments were conducted or behaviour support plans
derived from such assessments implemented during this
time. The selection of outcomes for service users as the
focus of interest departs from the majority of work in the
area of staff training in challenging behaviour. The
majority of research to date has evaluated staff training
with respect to staff outcomes such as attribution change
which may mediate staff behaviour with relatively little
work addressing staff behaviour or skills directly (Jahr
1998; Ager & OMay 2001). As such, the selection of service user outcomes lends considerable ecological validity
to the current study and informs us directly as to whether this model of service delivery has beneficial client
outcomes.
Method
Design
A non-randomized matched control group design was
used in this study. Participants were matched on topography of challenging behaviour, duration of challenging
behaviour and gender to reduce pre-treatment differences between groups.
Service users
The target group consisted of service users for
whom staff would complete the training course in
2007 BILD Publications, Journal of Applied Research in Intellectual Disabilities, 20, 615
Outcome measures
Challenging behaviour
The frequency, management difficulty and severity of
each behaviour listed in the Checklist for Challenging
Behaviour (CCB) were measured to identify the primary challenging behaviour for each respective individual in both groups. Frequency is scored from 1
(never) to 6 (hourly or more often); management difficulty from 1 (no problem) to 5 (extreme problem); and
severity from 1 (no injury) to 5 (very serious injury).
Reliability of the instrument is reported to be adequate
(Joyce et al. 2001). Scores on frequency, management
difficulty and severity were summed across individual
behaviours. Behaviours were then ranked from the
highest score to the lowest score. The highest ranked
behaviour was identified for each individual and only
this behaviour was used for subsequent comparisons
before and after the 6-month period of training (see
Table 2). For a sub-sample of 26 individuals with challenging behaviour, two staff members completed the
CCB for the primary challenging behaviour independently for the same individual within a 1-week period.
The Spearman rank-order coefficient was used to
determine inter-rater reliability. Scores were summed
for each of the scales and the Spearman statistic was
used to correlate the total scores for frequency, management difficulty and severity. For frequency, the
correlation co-efficient was 0.86 (two-tailed, P < 0.001,
n 26). For management difficulty the correlation
co-efficient was 0.92 (two-tailed, P < 0.01, n 26)
and for severity the correlation co-efficient was 0.80
1
One service was based in a rural setting (n 19) and the other
was based in the suburb of a major metropolitan area (n 11).
Variable
Target
(n 30)
Control
(n 30)
39
370
19
11
6
13
11
0
file1
86
12345
(n 16)
149
24312
4.2
113
4.0
110
21
5
1
3
0
Case notes were examined for information regarding approximate onset of challenging behaviour.
2
Unit equivalencies based upon British National Formulary
(2002).
(two-tailed, P < 0.01, n 26). Table 2 presents the primary challenging behaviour as identified in both
groups as per the CBC for the control group and
referral problem for the target group. For the target
group, observation-based measurement was also
undertaken for the highest ranked behaviour on the
CCB as part of the training process.
Psychotropic medication
Determining the amount of medication received by
each client was done using the British National Formulary (BNF) [British Medical Association (BMA) 2002].
The BNF identifies for each medication the amount
that constitutes one therapeutic unit. For example,
2007 BILD Publications, Journal of Applied Research in Intellectual Disabilities, 20, 615
Self-injurious behaviour
Exposing body inappropriately
Physical aggression
Verbal and physical aggression
Public masturbation
Lying on the ground
Breaking rules
Loud talking
3
2
14
7
1
1
1
1
Self-injurious behaviour
Exposing body inappropriately
Physical aggression
Verbal and physical aggression
Public masturbation
Stereotyped behaviour
Licking
Stealing
Excessive drinking
4
1
14
5
1
2
1
1
1
Block one
(3 days)
i.
Assignment
(4 weeks)
Procedure
Training content
The course comprises nine full days over a 6-month period (see Figure 1). The content of the training course
was adapted from the assessment and intervention protocol developed by the Institute of Applied Behaviour
Block two
(2 days)
Assignment
(4 weeks)
Block three
(1 day)
Functional
ix. Intervention
development
Introduction to
behavioural support
ii.
Environmental
vii. Functionally
accommodation
iii. Skills teaching
Background
equivalent
assessment
assessment
skills teaching
Baseline
viii. Functional
recording
assessment
Reactive strategies
vi. Behavioural
assessment
Assignment
(4 weeks)
Block four
(1 day)
Assignment
(3 months)
Intervention design
x. Periodic Service
Baseline recording
Review
Incident analysis
Block five
(2 days)
Implementation of plan
Case review
Control group
Either a nurse or a member of care staff who had been
working with the service user for longer than 6 months
completed the CCB. No formal comprehensive behavioural assessments were conducted for this group during the specified training period nor were behaviour
support plans derived from such assessments implemented.
Administration
The CCB was administered on two occasions for both
groups: prior to the commencement of the first workshop (conducting a behaviour assessment), and
6 months later at the end of the fourth workshop (quarterly progress review on the implementation of the
behaviour support plan). For the target group, individualized appropriate observation-based measures of behaviour took place as part of the functional assessment.
Depending on the nature of the target behaviour, these
included event recording, interval recording or fre-
Data analysis
Tests for normality were performed on all variables
used in subsequent analysis. Only severity of challenging behaviour was found to be non-normally distributed. A general ancova model using raw scores was
used (with transformed scores for severity) co-varying
scores at time 1 on the outcome variables. This approach
to data analysis was selected as the design did not
involve random allocation to groups at the outset of the
study. As such, there are likely to be minor differences
between the groups at baseline. ancova models take
account of such variance between groups at baseline
and allow a closer examination of the effects of the independent variable whilst accounting for initial differences
if present. Effect sizes were indexed using the partial
eta-squared co-efficient.
Results
No significant differences were observed between the
groups at the start of training (time 1) on frequency,
management difficulty and severity of challenging behaviour. In addition, no significant differences were
observed between the groups on age, gender, duration
of challenging behaviour and duration of psychiatric
medication. Controlling for frequency of challenging
behaviour at time 1, duration of challenging behaviour,
units of medication, gender, level of disability and diagnosis, a significant effect was observed between the two
groups on frequency of challenging behaviour at time 2
as measured by the CCB [F(1, 38) 13.7, P < 0.001;
g2 0.27] (see Figure 2). At time 2, the average mean
score for frequency for the control group was 3.6 and
the average mean score for the intervention group was
2.5. At time 2, the average mean score for management
difficulty for the control group was 3 and the average
mean score for the intervention group was 1.6. Controlling for management difficulty of challenging behaviour
at time 1, duration of challenging behaviour, units of
medication, gender, level of disability and diagnosis, a
significant effect was observed between the two groups
2007 BILD Publications, Journal of Applied Research in Intellectual Disabilities, 20, 615
Discussion
The primary finding of the current study is that PFT is
associated with significant reductions for service users
presenting with challenging behaviour and that such
reductions are maintained 6 months after the initial
implementation of behaviour support plans. For twothirds of the target group, the frequency of challenging
behaviour dropped to below 30% of baseline rates after
3 months of implementation of behaviour support plans.
For the remainder, the majority had a rate reduction to
between 70% and 30% of baseline. Taken collectively,
Number
(n 30)
030% of baseline
3070% of baseline
7080% of baseline
Increase in baseline rate
21
7
1
1
Frequency Time 1
Management Time 2
Frequency Time 2
Severity Time 1
Management Time 1
Severity Time 2
Mean Score
0
Target
Control
GROUP
Figure 2 Mean scores on CBC by group.
2007 BILD Publications, Journal of Applied Research in Intellectual Disabilities, 20, 615
25
Mean rate
20
15
10
0
Baseline
1st quarter
2nd quarter
2007 BILD Publications, Journal of Applied Research in Intellectual Disabilities, 20, 615
Acknowledgments
The authors would like to thank all staff who participated in the study and also Dr David Hevey of the
School of Psychology for expert statistical advice.
Correspondence
Any correspondence should be directed to Ian Grey,
School of Psychology, Trinity College, Dublin, Ireland
(e-mail: igrey@tcd.ie).
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