Bureau of Sages

June Retreat
Welcome!

Welcome & Agenda

Introduction & Icebreaker
Member Updates
Youre Speaking My Language
Break

Tell Me About Your Research Experience

What is a Research Question?
Lunch

Debrief
2

Icebreaker
Introduce yourself
A 1-word hope for the day

Long-Term Objectives of
the Bureau of Sages
To prepare a diverse group of Stakeholders with information,
knowledge, and training on Patient-Centered Outcomes
Research and Comparative Effectiveness Research in order
for them to:
Serve as an advisory bureau to CJE SeniorLifes internal
research department
Serve as an advisory bureau to local and national
researchers wishing to conducted Patient-Centered
Outcomes or Comparative Effectiveness Research
Serve as individual advisors to larger Patient-Powered
Research Networks, and
To serve as champions and role models for incorporating
the voice of diverse patient populations into Research.
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Member Updates: Assignment 1

Created images and words representing the
Bureau of Sages, guided by the following
questions:
What is the Bureau of Sages?
What is your role in the Bureau of Sages?
How will this happen?

Member Updates: Assignment 2

Critiqued the PCORI videos from the March
retreat, using the following criteria:

Overall message of each video

What worked and didnt work
Visual and audio messages
The types of people that were represented

Member Updates: Assignment 3

Reviewed health experiences from stories
shared during March retreat:
Voted on the five most important health
experiences
Added additional health experiences
In research, positive health experiences are
called Patient Reported Outcomes
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Member Update: Assignment 4

Reviewed 11 topics from the Institute of
Medicines list of 100 priority research topics
Began to review the wording of topics
These are complex ideas!
Will continue to discuss the importance of
each topic
These topics are examples of Comparative
Effectiveness Research
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Youre Speaking My Language

Researchers and clinicians each explain one
key research concept, without using jargon
Panel of Bureau members will flag the
speaker when they dont understand what
they are saying
SPEAK MY
LANGUAGE!
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Research: Clinical vs. Applied

Research: A formal process to discover new
knowledge.
Applied Research: A type of research that seeks to
solve practical problems; it is used to find
solutions to everyday problems, cure illness, and
develop innovative technologies
Clinical Research: A type of research that
determines the safety and effectiveness of
medications, devices, products, and treatments
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Comparative Effectiveness
Research
The direct comparison of two or more
approaches to health care; including
examination of their risks and benefits

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Patient Reported Outcome

Reports that come directly from a person
themselves about how they feel or function in
relation to their health, without interpretation
by healthcare professionals or anyone else.
Examples:
Perceptions of pain or health
Symptoms or signs related to health condition

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Health Intervention
A program designed to help participants
change unhealthy behaviors, or to improve
their health.
Examples include

Education
Policy
Environment
Health promotion
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Patient Powered Research

Network
A network operated by groups of people who
have a health condition or health-related
circumstance in common, who come together
to share health information and participate in
research.

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Break
5 min
Check your cell phones!

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Tell Me About Your Research

Experience
Interview another Bureau member to learn
more about research:

Have you done research on any of the health

experiences on the list we handed out (from
assignment 3)?
If not, what do you know about current
research on any of these issues?
Do any of the health experiences spark an
idea for research?

16

What is Research?
Engaging in research is part of human
nature
Can you give 1 or 2
examples of everyday tasks
that are like research?
How is scientific research
different from everyday
research?
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What is a Research Question?

In science, a research question is
Very specificstates what the researchers will
attempt to learn

Focused on building on previous knowledge

something we dont know enough about
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A research question is not.

A philosophical or ethical question (a big why
question)
A question that would be hard to answer with
evidence
A personal question that cannot be
generalized to a population (e.g., a question
for your doctor)

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What makes a good research

question?

Interesting

Topic matters
Need to learn more

Relevant

Helpful to someone
Useful information

Ethical
Feasible

Low risk of harming someone

Potential benefits for many
Can imagine how to get the
information needed to answer it
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What is a Comparative Effectiveness

Research Question?
A CER question focuses on:

Condition
Health
problem

Patient
Reported
Outcome
Positive
Health
Experience

Comparing
Interventions
Potential
Solutions

Population
Who will
be
studied

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Writing a Comparative Effectiveness

Research Question
Condition/Problem: What healthrelated problem?
Outcome: What type of positive health
experience?
Interventions: What two solutions could
we compare?
Population: What group of people will
we study?

Turn it into a question!

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Example 1
(from a real study)
Condition/Problem: Diabetes
Outcome: Patients understanding of diabetes &
monitoring symptoms/indicators
Interventions: Active-learning/empowerment
approach vs. diabetes self management education
Population: People age 50 and older with
diabetes

Turn it into a question!

23

Example 2
Condition/Problem: Pain Care
Outcome: Reduced pain levels
Meditation techniques vs.
Interventions: pain medications
Population:

Nursing home residents with

chronic pain

Turn it into a question!

24

Try Writing a Research Question

Condition/Problem:
Outcome:
Two Interventions:
Population:

Turn it into a question!

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Lunch & Conversation

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Next Steps
Debriefing from todayrooms will be
announced
Next Steps, informal meetings July- August:

Write research questions

Interview peers about positive health experiences
Discuss Mission & Vision of Bureau of Sages
Review literature & publications

Next RetreatFriday, September 9th

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