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Care Programme

Approach
A brief overview of the previous four Stepping Forwards
exploring aspects of the Care Programme Approach
The Care Programme Approach is the process by which all
Suffolk Mental Health Partnership NHS Trust services are delivered

FOREWORD
Welcome. Its been a real privilege to work on this booklet and to look back over the
previous Stepping Forward events held in both East and West Suffolk. Stepping Forward
has become an invaluable opportunity for Suffolk Mental Health Partnership to give
information about the Care Programme Approach (CPA) and get feedback on how service
users and family carers experience it.

The workshops have only been going a short while but they have already had a
considerable impact on how CPA is being provided in Suffolk. For example: In the very
near future CPA will have its own website that will improve the information available to
service users/ family carers and the general public. Without Stepping Forward and the
contributions of all those that have attended, this would not have been possible.

Thanks to everyone who attends Stepping Forward to help make a difference in the way
CPA is delivered in Suffolk. We hope everyone gets as much enjoyment out of looking
back over what has been achieved in the previous four Stepping Forward events as we
did putting this booklet together.

Chris Crisell, admin support

CONTENTS
Page no
2 Stepping Forward programme
4 Stepping Forward One
6 Stepping Forward Two
7 What happened at Stepping Forward Two
9 Stepping Forward Three
10 Stepping Forward Charter
11 Stepping Forward Four
12 Comments from Stepping Forward Four
13 Recovery (a poem by C. Swann)
14 Work in progress
15 Developing your ideas
16 Conclusion
17 Developmental issues
18 Useful addresses
18 Future activity

Page 1
STEPPING FORWARD WITH THE
CARE PROGRAMME APPROACH (CPA)
SHARING A VISION
As a result of the Service User Survey Management Report (2005)
the SMHP Trust hosted two workshops looking at CPA and the
recovery process. The first for Service users and family carers was on
the 8th Sept 2006 at Kesgrave Community Centre. This led directly on
to the funding of a CPA & clinical risk manager/ practice educator Post.

Jeannie Wright was appointed into this post • The tagged crisis contact card was
in November of 2006 (just two days before designed.
the consultation for the Refocused CPA
document was announced by the • Care Programme Approach Association
Department of Health). (CPAA) membership for 12 staff was
provided by the Trust.
During this consultation period the
education & workforce development • Facility for eight voice recognition
department initiated a CPA education Care Plan production kits were
development group involving practitioners, made available
service users and family carers in the
planning, delivery and evaluation of • A clinical risk & recovery practice
CPA training. educator, (Derek Jones) was also
appointed in May 2008.
From this the following activities
occurred during 2007/2008: • Larry Nicholas was appointed to the
centre for service excellence for public
• A CPA Health & Social Check was & patient involvement (PPI).
introduced.
• Approval for a CPA web site was given.
• Service users and family carers
commenced teaching on CPA courses • Workshops for service users, family carers
in the classroom and staff were commenced under the
Stepping Forward banner.
• The life stories project commenced to
provide educational DVDs for training. • Writing the Positive Risk Management
Policy and Refocused CPA Policy
• CPA practice development groups met commenced.
in East and West Suffolk.

• The draft for a service user care plan


pack and care coordinator resource
pack was developed.

Page 2
Refocusing CPA has presented an family carer needs at both a service and
opportunity for substantial changes in individual level. The purpose of tracing
the way we work with service users and that journey is to identify the status that
family carers. The language of Refocusing CPA and Stepping Forward should have
CPA acknowledges the importance of the within SMHP NHS Trust.
relationship between service users, family
carers and practitioners in providing
person centred services. This booklet Jeannie Wright.
traces the process we have followed in CPA and clinical risk manager/
SMHP Trust to respond to service user and practice educator

Jeannie Wright.

Page 3
STEPPING FORWARD ONE
KESGRAVE CONFERENCE CENTRE 1
27th MARCH 08
At the first event our message was:

The Care Programme Approach (CPA)


and care plans are the process we use to
make sure you receive properly planned
and coordinated care. The event is
intended to raise the profile of the CPA
process. It is hoped that many users
and family carers will attend to share
the day and become involved in future
developments within the Trust.

Our Speakers for the day:

Elaine Hanzak shares her personal Aly Gynn, a service user who has been doing
journey of her spiral into and out of a lot of work for the National Autistic
puerperal psychosis following the birth Society lately. They have just had a high
of her son. She described the stages of profile campaign to put through policy
her journey including the publication to Government about the needs for
of her book, subsequent speaking adults with autism.
engagements and her desire to make
a difference for future sufferers. Len Peace is a family carer who uses his
experience of contact with the mental
health services to speak at many service
user and family carer educational events
in Suffolk.

Tanya Kennard-Campbell is a registered


mental health nurse and has personal
experience of recovery. She has extensive
experience in delivering “recovery and
well-being” workshops to communities
and organisations.

Page 4
THE WORKSHOPS COMMENTS
AND ACTION PLANS

Four groups provided six typed A4 pages of comments about their


service experience and proposed some actions.

Samples of feedback Actions

1. Communication about recovery is 1. Follow up on today and often - make


essential, we want more Psychiatrists things happen. Improved circulation
here to talk to. Many care coordinators of event to service users family carers,
did not know about this meeting. staff and the public.
The rhetoric of recovery does not
compare with reality. 2. Create “Buddy” support. Create a
website Information/ patient resource
2. Set up more ways for clients to provide centre - or Library. Develop a resource
feedback on experience of services. on other services. Help service users
Expectations of CPA too high, with a and family carers to be fully involved
lack of communication about our illness. in delivering training – help service users
to tell their story. Service users and
3. ‘Proper’ employment opportunities family carers should be fully involved
are needed for those in recovery; real in the interview process.
work and wages help to improve
self-worth. Must be simpler to gain 3. Training courses needed that assist
benefits when a blip happens. Need with self management, body language,
more information on all support presentation skills.
networks that are available.
4. Improve communication between all
4. Need to see improvements in CPA and sectors of SMHP and other agencies.
clinical practice, access to help is difficult Wellness recovery plans to back up CPA.
if its not the general practitioners (GP) Always provide written information
that is a block confidentiality is used as about CPA to service users and family
a barrier - families feel blocked out. carers and it should be in the waiting
rooms and the GP surgeries. We
understand that clinicians ‘move on’
but we would expect continuity of
how the service is delivered even if
done by different clinicians.

Page 5
STEPPING FORWARD TWO
KESGRAVE COMMUNITY CENTRE 2
17th JULY 08
Our speakers for the day: Workshops

Robert Bolas, deputy chief executive Facilitated group work was held to:
& director of nursing,
Suffolk Mental Health 1. Critique the CPA Service User Leaflet
Partnership NHS Trust 2. A CPA Web site - what should it
gave an update on our address for you?
Foundation Trust 3. Identify what positive risk taking
application and status should mean in the CPA?
and the expected
outcomes of
Calling for Life Stories for CPA
Refocusing CPA.
For some people, the journey of recovery
will mean the involvement of the mental
Peter Moore from the expert patient
health services. This may be in response
programme community interest company.
to a crisis or for others it may be longer
Peter talked about the expert patient
term engagement and support. People’s
programme as “The spark that caused
values, beliefs and expectations can have
a revolution in my life”. The EPP CIC has
an impact on the way relationships
been working hard to develop new
between the individual, family carers
courses designed to meet people’s
and service provider develop. There
different needs, including those in
may be events that could arise throughout
marginalised groups. Some of the other
the period of contact with the mental
courses available include family carer’s
health team that influence the relationship.
courses, a persistent pain programme,
For some there is the experience of
staying positive (workshops for teenagers
disengagement and moving on, which
living with long term health conditions),
can also present some difficulties.
new beginnings (mental health) as well
We want to know about your experiences,
as several disease specific courses.
and if necessary find ways to improve the
way the CPA process works.
Dr Sati Sembhi Consultant psychiatrist
SMHPT, coastal recovery team spoke
about the psychiatrists' role in recovery.
Dr Sembhi has also worked in New Zealand
where care management is also based on
the recovery philosophy. She has specific
interests in cultural psychiatry, family
interventions and perinatal psychiatry.

Page 6
WHAT HAPPENED AT
‘STEPPING FORWARD TWO’
2
ON 17th JULY 08
Jeannie Wright had contact with some
The Stepping Forward Event at the service users and family carers who
Kesgrave Community Centre was the will assist her in the training department
third since June 2006 to explore how by their contribution to a ‘life story project’.
service users, family carers and staff This will enable people to tell their life
experience the Care Programme Approach experience and how CPA has impacted on
(CPA) and ‘recovery’ process. that - either good or bad and can be used
in teaching sessions with the Trust’s staff.
Bob Bolas (SMHP director of nursing) and The stories will be captured on DVD and
the lead for implementing new guidance can be arranged in any way that the
on CPA. Bob opened the day’s activity person felt comfortable with, in person
with a talk about the present status of or anonymous. Derek Jones would like
the Foundation Trust application, the to hear from people who may wish to
Care Programme Approach and the concept be involved in the development of the
of recovery. Bob was keen to attend as CPA website.
he said that for Recovery to become a
reality then days like ‘Stepping Forward’ Our first speaker Peter Moore told us
create the opportunity to develop the about the expert patient programme.
‘partnership’ approach with service All trainers have themselves used the
users and family carers that is going programme, and Peter told us how it had
to move things along. transformed his own life after being
unwell for many years. It was good to
Larry Nicholas PPI manager described hear about the programme content as well
how the issues raised at the first Stepping as to be inspired by his personal journey
Forward Day held in March had been of recovery.
addressed. He gave a progress report on
issues such as improving communication
and finding ways to offer good quality
information to service users and family
carers. The CPA website is now more than
an idea, and the information technology
department have assisted in getting to a
point where web pages can now be
developed. The next ‘Stepping Forward
Three’ has been agreed to be held in
Bury St Edmunds in answer to the request
of some service users and family carers

Page 7
Dr Sati Sembhi attended (in response to Who we are:
‘where are the psychiatrists’ from the
previous Stepping Forward day). Bob Bolas
Dr Sembhi gave a very clear account SMHP deputy chief executive,
of her own professional experience of director of nursing
working with recovery, and explained
the importance of choice, individual Derek Jones
responsibility and partnership between clinical risk & recovery practice educator
the service user, family carer and
professional. By listening to the expertise Peter Moore
of the individual service user and expert patient programme community
combining this with more general interest company
knowledge of mental health research,
it’s possible to provide services where Larry Nicholas
everyone feels they have the best public & patient involvement manager
information, and the right to make
informed choices about their care. Dr Sati Sembhi
consultant psychiatrist
The attendees then divided into
three workshops to discuss: Jeannie Wright
CPA & risk manager & practice educator
• The development of the CPA website
• Positive risk taking and what it means
to us
• How we can develop a local leaflet to
inform people about what CPA is.

Jeannie, Larry and Derek want to thank


everyone, not only for attending, but for
the positive involvement and contributions
made in the workshops.

Jeannie Wright and Derek Jones,

Page 8
STEPPING FORWARD THREE
QUAKER HOUSE, BURY ST EDMUNDS 3
30th OCTOBER 08
Our speakers for the day: Workshops
(samples of feedback)
Robin Murray-Neill works for the Care
Services Improvement Partnership (CSIP) 1. Self Directed Support
as part of the National Institute for - with Robin Murray-Neill
Mental Health in England (NIMHE)
national social inclusion programme • People wanted a transparent system of
and personalisation team. This involves equal access made available giving
working with organisations and greater choice and control in the
individuals to educate and inform support that service users receive.
them about the process of delivering • Care coordinators must give helpful
individual budgets for service users. information to service users and family
Individual budgets are part of the carers. “It’s as if when we ask about
‘refocusing the CPA guidance’ as one direct payments they don’t know
choice that trusts should be offering anything about it.”
to service users.
2. CPA and Recovery
- with Tom Clements & Richard Hodgson
Tom Clements is a member of
Suffolk User Forum (SUF) and helped • “Recovery is from where I am to where
to write the drafts of the CPA leaflet. I am going”
The latest version of the leaflet was • “Addressing my aspirations”
available in the information pack for • “Working towards small achievable goals”
the day. Tom talked about recovery from • “Working in collaboration”
his own personal experience. He was • “Recognising my fear of failure”
presented with an achievement trophy • “Turning round the ‘can’t do’ feelings”
by his colleagues as this was his first • “Developing assertiveness - that’s a
presentation of his life story. real asset”

Richard Hodgson spoke about his role in 3. How can we make a People's
the CPA process as care coordinator. Charter a real and living thing?
Richard is a senior occupational therapist
at Newmarket hospital and also undertakes It was thought that the Stepping Forward
the role of care coordinator. Richard talked meetings should have a Charter.
about how he and Tom work together in
the recovery process The suggestions were:
Charter for citizens including family carers
and SMHP staff who attend the Stepping
Forward meetings in Suffolk.

Page 9
STEPPING FORWARD CHARTER

Stepping Forward Charter The Stepping Forward Group will accept


ALL aspects of who I am, my age; abilities;
sexuality and gender; my race, culture
S ervice Users, Carers and Staff. and spirituality.

T raining and Information Sharing. Stepping Forward Events will be held


regularly and in locations agreed by the
E mpowerment Group. If required, Forums will be
P artnership Working arranged to address specific needs of
those of us undertaking specific roles.
S peaking Out
At Stepping Forward Events we will all
listen to each other, treat each other with
respect and make sure that we are heard.

We will all be willing to help each other


and be willing to allow clarification of
what is being talked about if any of us
do not understand.

A record will be made of the work we


do at the meetings. The records will be
used to give feedback to our organisations
to inform future service developments.

Page 10
STEPPING FORWARD FOUR
KESGRAVE CONFERENCE CENTRE 4
19th FEBRUARY 09
Our speakers for the day: Workshops

Larry Nicholas - trust public & patient 1. How can you influence good
involvement manager talked about the CPA practice?
public & patient involvement strategy
for the Suffolk Mental Health Partnership • Participants suggested an assessment
Trust. Larry facilitated group work on for all statutory and voluntary
improving involvement in your mental organisations by each other and
health service. Discussion as to whether also service users views of them.
the Stepping Forward group has a clear
brief in PPI. • Good practice is tailoring support
to each person as an individual.
Larry Nicholas
• Listen to family carers and recognise
and act appropriately on their concerns.

• Why don’t more staff come to these


meetings? They could learn from us.

2. How can we turn the ideas of


this group into an official
Nigel Moyes - A resident of the Richmond communication channel?
Fellowship discussed benefits and with
Robin Murray-Neill from social care team • Stepping Forward needs more teeth -
Department of Health gave the latest news need more managers and funds for
and answered questions about benefits. these meetings.

Chris Crisell - CPA support administrator • Have more focussed meetings with
was able to show the latest version of just one subject and a wider range
the CPA website to the audience that of feedback mechanisms needed.
had been developed with Donna Frankis
(who needs the assistance of her guide • Must continue with current projects,
dog Nikki) and Colin Williamson. the need for training and carry on
the good work.
Garrie Parker - Suffolk Family Carers gave
an enthusiastic and challenging
presentation, sharing his views of
how a service user/ family carer council
might work.

Page 11
COMMENTS MADE AT
STEPPING FORWARD FOUR 4
• Concern for people who are unable • CPA website looks excellent, could be
to attend and feel isolated. How can the answer to my questions.
we attract a wider range of people
to such events? • The website looks very interesting and
easy to use. People need to access
• Can we get someone from each privately and add their comments.
community mental health team
(CMHT) to come to these days and • The conference is not age inclusive.
learn with us and feedback to
their teams. • Not sure where stepping forward
is leading.
• Do staff have enough training about
listening and hearing and the time to • Not Learning Disabilities (LD) focused,
build trust - these things are valued more adult mental health (AMH)
by service users. Can they be valued orientated.
by the Trust?
• Need more Information about
• It seems to be about the quality of the CPA process.
the relationship - medication is not
the only answer. • Not child and adolescent mental
health service (CAMHS) focused,
• Recovery meetings would give people more (AMH) orientated.
a forum to share their experiences,
what helped, who helped, what didn’t. • I don’t enjoy conferences.
A focus on recovery for survivors
of psychiatry. • Too many abbreviations are used.

• Appreciation of environment of • Need for a CPA basics day.


people working together to
solve problems. • There should be more background
information available about the
• More locally based meetings needed. speakers on the day.

• Mental health services should provide • Everyone should introduce themselves


low level support in the community to around the table to get a better
prevent recurrence of illness - people perspective of the direction of the
need to feel safe. views they are coming from.

• Need a better method of telling the


Trust if CPA’s not functioning.

Page 12
Recovery to me is:
Walking in a room full of strangers,
And not being afraid.
Being happy to catch a train alone.
Doing that college course you have always
wanted to do.

Feeling good when someone says


hello, Carla,
How are you?

Being proud to say,


Ive lived through mental illness,
Look at me now!!!
Being respected for my knowledge,
And asked my opinion.
Being able to talk to others,
Because I,ve been there.

Having the experience to help others


Find their wings and fly.
To be able to be angry,
Without it being blamed on my illness.
Lighting up the room,
When I walk in, once more.
Sharing these feelings with others and being heard

Thank you

Carla Swann S.U.F


7th May 2006

Page 13
WORK IN PROGRESS

Life Stories: Training:

The Life Stories DVDs are being made The DVD will not be copied and will be
with the generous help and contribution treated within the Suffolk Mental
of service users and family carers, and Health Partnership Trust with the same
once made will be used in the Trust for degree of responsibility that applies to
teaching purposes only. The DVD is a other Service user or family carers data.
collection of true stories set in a Care The idea came about as a result of service
Programme Approach context to illustrate users and family carers feeling unprepared
the activities that makes up the CPA. for the pressure of a regular commitment
That is: the referral from family doctor to a training schedule they provide for
or any other agency; assessment; care staff about their experience of CPA.
planning; review and Care Co-ordination. To enable their contribution to be
This is done through the experiences of available at all times the DVDs are a
people who have had or still do experience good training resource. The next DVD to
mental distress and the people that support be made is the story of three service users,
and take care of them. We are interested following their recovery, who wish to illustrate
in the process of recovery from mental some of the problems encountered by
distress and the challenges that face people trying to regain employment
people when trying to pick up their after mental illness.
preferred lifestyle again.
Please contact Jeannie Wright for more
The way people contribute is led by information on the Stepping Forward
themselves and their involvement is always DVD. Tel: 01473 329347.
at a level that maintains their comfort in email: jeannie.wright@smhp.nhs.uk
the process. When someone decides to help,
an individual appointment is made with the
person at their convenience and it is agreed
how to capture their contribution in their
chosen setting. To ensure that people are
in control of the process and how it is used;
a contract is made so that service users and
family carers can specify what restrictions
they may want to put on their part of the
process e.g. they may wish to use another
name. People are also free to withdraw
consent later on if they change their mind.

Page 14
DEVELOPING YOUR IDEAS

Through the previous Stepping Forward gatherings you have been talking
about how we can improve our services. I hope that by reading the
introduction you will have seen what has been achieved so far.

At the first Stepping Forward it was decided by service users, family carers and
suggested that a CPA specific website professional (see logo’s below).
would be useful. It should provide you This gives CPA in Suffolk an instantly
with information and also enable you to recognisable identity and will show a
communicate with other interested people professional approach. The competition
about CPA. Although the website is not closed on 17/5/09.
yet complete the work is being done to
make everything you asked for a reality. Another project from Stepping Forward
The CPA website will be part of the SMHP Two is the development of the CPA leaflet
website that exists now. We have looked produced by service users for service users.
at all the comments from the previous The leaflet is a good example of how
Stepping Forwards to come up with a Stepping Forward is closing the perceived
format that is both welcoming and easy distance between service users and
to use. professionals. Because those involved with
Stepping Forward have been able to work
Through the work done during this process closely with each other we aim to produce
it was suggested that a logo should a leaflet that is not just informative but
accompany the website and give CPA in written in a style preferred by you.
Suffolk its own identity. The logo will be

Page 15
CONCLUSION

The Stepping Forward process has: The value of the Stepping Forward
process is:
• Helped to enhance effective
communication - e.g. what is CPA; • SMHP Trust routinely listening and
recovery; expert by experience; the recording the needs of service users
role of my Care Coordinator; and family carers.
individual budgets.
• Enabling people in vulnerable
• Helped to promote effective circumstances and poor health to
partnerships; SMHP Staff with – get their experiences and views heard.
e.g. SUF; Suffolk Family Carers; East
Suffolk Advocacy Network (ESAN); • SMHP Trust acknowledging the
Mind; Richmond Fellowship and contribution of its customers in
Suffolk Employment Care. adding value to its care delivery.

• Encouraged participation in decision • In facilitating an opportunity for SMHP


making – e.g. designing. Trust to act on the views of service users
and the public in its decision making
• Information leaflet; content of the day; about the Care Programme Approach.
how we can be more helpful.

• Provided an opportunity to debate issues;


workshops for key care issues e.g.
recovery; service user and family carer
involvement; positive risk taking; direct
payments and individual budgets.

• Helped to ‘capture’ the creativity of


individuals and groups in finding new
solutions to problems e.g. communication
by website; text; buddy system; life
stories; training and poetry.

Jennie Wright and Derek Jones in the office.

Page 16
DEVELOPMENTAL ISSUES

• For SMHP Trust to cement the joint • Enable our local service groups and
work of the education and workforce staff to acquire the skills and resources
development department and patient needed to ensure that all people can be
and public involvement by jointly effectively involved in decisions about
funding the Stepping Forward the delivery of secondary mental
Programme for the future. health services.

• To provide an annual budget for the • Please contact Jeannie Wright for more
Care Programme Approach information on the Stepping Forward
developmental work e.g. facilitate DVD. Tel: 01473 329347.
the “buddy” system; text service; email: jeannie.wright@smhp.nhs.uk
personalisation programme.

• To provide resources to enable the CPA


website to “go live” and be maintained
for service users; carers; staff and the
public and also to allow the publication
of the CPA service users leaflet.

• To integrate the Stepping Forward


programme into the clinical
governance strategy for SMHP Trust.

• Enable the voice of hard to engage


groups to be heard in more creative
ways, these are; black and minority
ethnic communities; older people;
people with learning disabilities;
disabled people; children and young
people who receive services under
the Care Programme Approach.

Page 17
USEFUL ADDRESSES

Suffolk User Forum PALS Office Public & patient Involvement


Suffolk House, St Clements Hospital Larry Nicholas
St Clements Hospital, Freepost RRKY-AAKL-UEUS PPI Manager
Foxhall Road, Suffolk Support Services Foundation Trust
Ipswich, P.O. BOX 170 Project Office
IP3 8LS IP3 8PS St Clements Hospital
Freepost RRKY-AAKL-UEUS
ESAN East Suffolk Education Suffolk Support Services
Advocacy Network and Workforce PO BOX 170
St Clements Hospital, Development Department, IP3 8LS
Foxhall Road, 1st Floor, St. Clements
Ipswich, Hospital, SMHP Voluntary Services
IP3 8LS Foxhall Road, Mark Stewart
Ipswich, Voluntary Services Manager
Suffolk Family Carers IP3 8LS. Suffolk Mental Health
Units 6 & 8 Partnership NHS Trust
Hill View Business Park, Respite Foundation Trust
Old Ipswich Road, 3 Constable Court, Project Office
Claydon, The Street, Belstead, St Clements Hospital
IP6 0AJ Ipswich, Foxhall Road
IP8 3LY Ipswich
IP3 8LS

FUTURE ACTIVITY
Stepping Forward Five Stepping Forward Seven
5 Kesgrave Conference Centre
21/05/09 7 Kesgrave Conference Centre
19/11/09

Stepping Forward Six Stepping Forward Eight

6 Quaker Meeting Room,


Bury St Edmunds
8 Kesgrave Conference Centre
18/02/10
20/08/09

Page 18
USER AND CARER INVOLVEMENT WITHIN
THE CARE PROGRAMME APPROACH (CPA)
PROCESS IN SMHP TRUST

Our successes 2007/2008


The Care Programme Approach (CPA) and Care Planning is the process
we use to make sure you receive properly planned and coordinated care.

Involvement as Service User’s and Carers


1 - Service Users Engaging as partners in their own Care Plan
2 - Carers engaging as partners in the Carers Assessment and Care Plan.
3 - CPA Training Development Group
4 - Users & Carers lecturing in the CPA Classroom
5 - Contributing to the CPA stories project

Involvement with Clinicians


6 - Suffolk (West) CPA Practice Development Group
7 - Suffolk (East) CPA Practice Development Group
8 - Contributing in an Open Event like todays.

Involvement with
SMHPT Management
9 - Suffolk CPA Practice Development Group
10 - Standards Committee

11 - Future Involvement with the


Foundation
Trust

NORTH

S.U.F.
WEST EAST

© 2009. SMHPT. Ref: Comms/SMHPT/0154

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