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Approach
A brief overview of the previous four Stepping Forwards
exploring aspects of the Care Programme Approach
The Care Programme Approach is the process by which all
Suffolk Mental Health Partnership NHS Trust services are delivered
FOREWORD
Welcome. Its been a real privilege to work on this booklet and to look back over the
previous Stepping Forward events held in both East and West Suffolk. Stepping Forward
has become an invaluable opportunity for Suffolk Mental Health Partnership to give
information about the Care Programme Approach (CPA) and get feedback on how service
users and family carers experience it.
The workshops have only been going a short while but they have already had a
considerable impact on how CPA is being provided in Suffolk. For example: In the very
near future CPA will have its own website that will improve the information available to
service users/ family carers and the general public. Without Stepping Forward and the
contributions of all those that have attended, this would not have been possible.
Thanks to everyone who attends Stepping Forward to help make a difference in the way
CPA is delivered in Suffolk. We hope everyone gets as much enjoyment out of looking
back over what has been achieved in the previous four Stepping Forward events as we
did putting this booklet together.
CONTENTS
Page no
2 Stepping Forward programme
4 Stepping Forward One
6 Stepping Forward Two
7 What happened at Stepping Forward Two
9 Stepping Forward Three
10 Stepping Forward Charter
11 Stepping Forward Four
12 Comments from Stepping Forward Four
13 Recovery (a poem by C. Swann)
14 Work in progress
15 Developing your ideas
16 Conclusion
17 Developmental issues
18 Useful addresses
18 Future activity
Page 1
STEPPING FORWARD WITH THE
CARE PROGRAMME APPROACH (CPA)
SHARING A VISION
As a result of the Service User Survey Management Report (2005)
the SMHP Trust hosted two workshops looking at CPA and the
recovery process. The first for Service users and family carers was on
the 8th Sept 2006 at Kesgrave Community Centre. This led directly on
to the funding of a CPA & clinical risk manager/ practice educator Post.
Jeannie Wright was appointed into this post • The tagged crisis contact card was
in November of 2006 (just two days before designed.
the consultation for the Refocused CPA
document was announced by the • Care Programme Approach Association
Department of Health). (CPAA) membership for 12 staff was
provided by the Trust.
During this consultation period the
education & workforce development • Facility for eight voice recognition
department initiated a CPA education Care Plan production kits were
development group involving practitioners, made available
service users and family carers in the
planning, delivery and evaluation of • A clinical risk & recovery practice
CPA training. educator, (Derek Jones) was also
appointed in May 2008.
From this the following activities
occurred during 2007/2008: • Larry Nicholas was appointed to the
centre for service excellence for public
• A CPA Health & Social Check was & patient involvement (PPI).
introduced.
• Approval for a CPA web site was given.
• Service users and family carers
commenced teaching on CPA courses • Workshops for service users, family carers
in the classroom and staff were commenced under the
Stepping Forward banner.
• The life stories project commenced to
provide educational DVDs for training. • Writing the Positive Risk Management
Policy and Refocused CPA Policy
• CPA practice development groups met commenced.
in East and West Suffolk.
Page 2
Refocusing CPA has presented an family carer needs at both a service and
opportunity for substantial changes in individual level. The purpose of tracing
the way we work with service users and that journey is to identify the status that
family carers. The language of Refocusing CPA and Stepping Forward should have
CPA acknowledges the importance of the within SMHP NHS Trust.
relationship between service users, family
carers and practitioners in providing
person centred services. This booklet Jeannie Wright.
traces the process we have followed in CPA and clinical risk manager/
SMHP Trust to respond to service user and practice educator
Jeannie Wright.
Page 3
STEPPING FORWARD ONE
KESGRAVE CONFERENCE CENTRE 1
27th MARCH 08
At the first event our message was:
Elaine Hanzak shares her personal Aly Gynn, a service user who has been doing
journey of her spiral into and out of a lot of work for the National Autistic
puerperal psychosis following the birth Society lately. They have just had a high
of her son. She described the stages of profile campaign to put through policy
her journey including the publication to Government about the needs for
of her book, subsequent speaking adults with autism.
engagements and her desire to make
a difference for future sufferers. Len Peace is a family carer who uses his
experience of contact with the mental
health services to speak at many service
user and family carer educational events
in Suffolk.
Page 4
THE WORKSHOPS COMMENTS
AND ACTION PLANS
Page 5
STEPPING FORWARD TWO
KESGRAVE COMMUNITY CENTRE 2
17th JULY 08
Our speakers for the day: Workshops
Robert Bolas, deputy chief executive Facilitated group work was held to:
& director of nursing,
Suffolk Mental Health 1. Critique the CPA Service User Leaflet
Partnership NHS Trust 2. A CPA Web site - what should it
gave an update on our address for you?
Foundation Trust 3. Identify what positive risk taking
application and status should mean in the CPA?
and the expected
outcomes of
Calling for Life Stories for CPA
Refocusing CPA.
For some people, the journey of recovery
will mean the involvement of the mental
Peter Moore from the expert patient
health services. This may be in response
programme community interest company.
to a crisis or for others it may be longer
Peter talked about the expert patient
term engagement and support. People’s
programme as “The spark that caused
values, beliefs and expectations can have
a revolution in my life”. The EPP CIC has
an impact on the way relationships
been working hard to develop new
between the individual, family carers
courses designed to meet people’s
and service provider develop. There
different needs, including those in
may be events that could arise throughout
marginalised groups. Some of the other
the period of contact with the mental
courses available include family carer’s
health team that influence the relationship.
courses, a persistent pain programme,
For some there is the experience of
staying positive (workshops for teenagers
disengagement and moving on, which
living with long term health conditions),
can also present some difficulties.
new beginnings (mental health) as well
We want to know about your experiences,
as several disease specific courses.
and if necessary find ways to improve the
way the CPA process works.
Dr Sati Sembhi Consultant psychiatrist
SMHPT, coastal recovery team spoke
about the psychiatrists' role in recovery.
Dr Sembhi has also worked in New Zealand
where care management is also based on
the recovery philosophy. She has specific
interests in cultural psychiatry, family
interventions and perinatal psychiatry.
Page 6
WHAT HAPPENED AT
‘STEPPING FORWARD TWO’
2
ON 17th JULY 08
Jeannie Wright had contact with some
The Stepping Forward Event at the service users and family carers who
Kesgrave Community Centre was the will assist her in the training department
third since June 2006 to explore how by their contribution to a ‘life story project’.
service users, family carers and staff This will enable people to tell their life
experience the Care Programme Approach experience and how CPA has impacted on
(CPA) and ‘recovery’ process. that - either good or bad and can be used
in teaching sessions with the Trust’s staff.
Bob Bolas (SMHP director of nursing) and The stories will be captured on DVD and
the lead for implementing new guidance can be arranged in any way that the
on CPA. Bob opened the day’s activity person felt comfortable with, in person
with a talk about the present status of or anonymous. Derek Jones would like
the Foundation Trust application, the to hear from people who may wish to
Care Programme Approach and the concept be involved in the development of the
of recovery. Bob was keen to attend as CPA website.
he said that for Recovery to become a
reality then days like ‘Stepping Forward’ Our first speaker Peter Moore told us
create the opportunity to develop the about the expert patient programme.
‘partnership’ approach with service All trainers have themselves used the
users and family carers that is going programme, and Peter told us how it had
to move things along. transformed his own life after being
unwell for many years. It was good to
Larry Nicholas PPI manager described hear about the programme content as well
how the issues raised at the first Stepping as to be inspired by his personal journey
Forward Day held in March had been of recovery.
addressed. He gave a progress report on
issues such as improving communication
and finding ways to offer good quality
information to service users and family
carers. The CPA website is now more than
an idea, and the information technology
department have assisted in getting to a
point where web pages can now be
developed. The next ‘Stepping Forward
Three’ has been agreed to be held in
Bury St Edmunds in answer to the request
of some service users and family carers
Page 7
Dr Sati Sembhi attended (in response to Who we are:
‘where are the psychiatrists’ from the
previous Stepping Forward day). Bob Bolas
Dr Sembhi gave a very clear account SMHP deputy chief executive,
of her own professional experience of director of nursing
working with recovery, and explained
the importance of choice, individual Derek Jones
responsibility and partnership between clinical risk & recovery practice educator
the service user, family carer and
professional. By listening to the expertise Peter Moore
of the individual service user and expert patient programme community
combining this with more general interest company
knowledge of mental health research,
it’s possible to provide services where Larry Nicholas
everyone feels they have the best public & patient involvement manager
information, and the right to make
informed choices about their care. Dr Sati Sembhi
consultant psychiatrist
The attendees then divided into
three workshops to discuss: Jeannie Wright
CPA & risk manager & practice educator
• The development of the CPA website
• Positive risk taking and what it means
to us
• How we can develop a local leaflet to
inform people about what CPA is.
Page 8
STEPPING FORWARD THREE
QUAKER HOUSE, BURY ST EDMUNDS 3
30th OCTOBER 08
Our speakers for the day: Workshops
(samples of feedback)
Robin Murray-Neill works for the Care
Services Improvement Partnership (CSIP) 1. Self Directed Support
as part of the National Institute for - with Robin Murray-Neill
Mental Health in England (NIMHE)
national social inclusion programme • People wanted a transparent system of
and personalisation team. This involves equal access made available giving
working with organisations and greater choice and control in the
individuals to educate and inform support that service users receive.
them about the process of delivering • Care coordinators must give helpful
individual budgets for service users. information to service users and family
Individual budgets are part of the carers. “It’s as if when we ask about
‘refocusing the CPA guidance’ as one direct payments they don’t know
choice that trusts should be offering anything about it.”
to service users.
2. CPA and Recovery
- with Tom Clements & Richard Hodgson
Tom Clements is a member of
Suffolk User Forum (SUF) and helped • “Recovery is from where I am to where
to write the drafts of the CPA leaflet. I am going”
The latest version of the leaflet was • “Addressing my aspirations”
available in the information pack for • “Working towards small achievable goals”
the day. Tom talked about recovery from • “Working in collaboration”
his own personal experience. He was • “Recognising my fear of failure”
presented with an achievement trophy • “Turning round the ‘can’t do’ feelings”
by his colleagues as this was his first • “Developing assertiveness - that’s a
presentation of his life story. real asset”
Richard Hodgson spoke about his role in 3. How can we make a People's
the CPA process as care coordinator. Charter a real and living thing?
Richard is a senior occupational therapist
at Newmarket hospital and also undertakes It was thought that the Stepping Forward
the role of care coordinator. Richard talked meetings should have a Charter.
about how he and Tom work together in
the recovery process The suggestions were:
Charter for citizens including family carers
and SMHP staff who attend the Stepping
Forward meetings in Suffolk.
Page 9
STEPPING FORWARD CHARTER
Page 10
STEPPING FORWARD FOUR
KESGRAVE CONFERENCE CENTRE 4
19th FEBRUARY 09
Our speakers for the day: Workshops
Larry Nicholas - trust public & patient 1. How can you influence good
involvement manager talked about the CPA practice?
public & patient involvement strategy
for the Suffolk Mental Health Partnership • Participants suggested an assessment
Trust. Larry facilitated group work on for all statutory and voluntary
improving involvement in your mental organisations by each other and
health service. Discussion as to whether also service users views of them.
the Stepping Forward group has a clear
brief in PPI. • Good practice is tailoring support
to each person as an individual.
Larry Nicholas
• Listen to family carers and recognise
and act appropriately on their concerns.
Chris Crisell - CPA support administrator • Have more focussed meetings with
was able to show the latest version of just one subject and a wider range
the CPA website to the audience that of feedback mechanisms needed.
had been developed with Donna Frankis
(who needs the assistance of her guide • Must continue with current projects,
dog Nikki) and Colin Williamson. the need for training and carry on
the good work.
Garrie Parker - Suffolk Family Carers gave
an enthusiastic and challenging
presentation, sharing his views of
how a service user/ family carer council
might work.
Page 11
COMMENTS MADE AT
STEPPING FORWARD FOUR 4
• Concern for people who are unable • CPA website looks excellent, could be
to attend and feel isolated. How can the answer to my questions.
we attract a wider range of people
to such events? • The website looks very interesting and
easy to use. People need to access
• Can we get someone from each privately and add their comments.
community mental health team
(CMHT) to come to these days and • The conference is not age inclusive.
learn with us and feedback to
their teams. • Not sure where stepping forward
is leading.
• Do staff have enough training about
listening and hearing and the time to • Not Learning Disabilities (LD) focused,
build trust - these things are valued more adult mental health (AMH)
by service users. Can they be valued orientated.
by the Trust?
• Need more Information about
• It seems to be about the quality of the CPA process.
the relationship - medication is not
the only answer. • Not child and adolescent mental
health service (CAMHS) focused,
• Recovery meetings would give people more (AMH) orientated.
a forum to share their experiences,
what helped, who helped, what didn’t. • I don’t enjoy conferences.
A focus on recovery for survivors
of psychiatry. • Too many abbreviations are used.
Page 12
Recovery to me is:
Walking in a room full of strangers,
And not being afraid.
Being happy to catch a train alone.
Doing that college course you have always
wanted to do.
Thank you
Page 13
WORK IN PROGRESS
The Life Stories DVDs are being made The DVD will not be copied and will be
with the generous help and contribution treated within the Suffolk Mental
of service users and family carers, and Health Partnership Trust with the same
once made will be used in the Trust for degree of responsibility that applies to
teaching purposes only. The DVD is a other Service user or family carers data.
collection of true stories set in a Care The idea came about as a result of service
Programme Approach context to illustrate users and family carers feeling unprepared
the activities that makes up the CPA. for the pressure of a regular commitment
That is: the referral from family doctor to a training schedule they provide for
or any other agency; assessment; care staff about their experience of CPA.
planning; review and Care Co-ordination. To enable their contribution to be
This is done through the experiences of available at all times the DVDs are a
people who have had or still do experience good training resource. The next DVD to
mental distress and the people that support be made is the story of three service users,
and take care of them. We are interested following their recovery, who wish to illustrate
in the process of recovery from mental some of the problems encountered by
distress and the challenges that face people trying to regain employment
people when trying to pick up their after mental illness.
preferred lifestyle again.
Please contact Jeannie Wright for more
The way people contribute is led by information on the Stepping Forward
themselves and their involvement is always DVD. Tel: 01473 329347.
at a level that maintains their comfort in email: jeannie.wright@smhp.nhs.uk
the process. When someone decides to help,
an individual appointment is made with the
person at their convenience and it is agreed
how to capture their contribution in their
chosen setting. To ensure that people are
in control of the process and how it is used;
a contract is made so that service users and
family carers can specify what restrictions
they may want to put on their part of the
process e.g. they may wish to use another
name. People are also free to withdraw
consent later on if they change their mind.
Page 14
DEVELOPING YOUR IDEAS
Through the previous Stepping Forward gatherings you have been talking
about how we can improve our services. I hope that by reading the
introduction you will have seen what has been achieved so far.
At the first Stepping Forward it was decided by service users, family carers and
suggested that a CPA specific website professional (see logo’s below).
would be useful. It should provide you This gives CPA in Suffolk an instantly
with information and also enable you to recognisable identity and will show a
communicate with other interested people professional approach. The competition
about CPA. Although the website is not closed on 17/5/09.
yet complete the work is being done to
make everything you asked for a reality. Another project from Stepping Forward
The CPA website will be part of the SMHP Two is the development of the CPA leaflet
website that exists now. We have looked produced by service users for service users.
at all the comments from the previous The leaflet is a good example of how
Stepping Forwards to come up with a Stepping Forward is closing the perceived
format that is both welcoming and easy distance between service users and
to use. professionals. Because those involved with
Stepping Forward have been able to work
Through the work done during this process closely with each other we aim to produce
it was suggested that a logo should a leaflet that is not just informative but
accompany the website and give CPA in written in a style preferred by you.
Suffolk its own identity. The logo will be
Page 15
CONCLUSION
The Stepping Forward process has: The value of the Stepping Forward
process is:
• Helped to enhance effective
communication - e.g. what is CPA; • SMHP Trust routinely listening and
recovery; expert by experience; the recording the needs of service users
role of my Care Coordinator; and family carers.
individual budgets.
• Enabling people in vulnerable
• Helped to promote effective circumstances and poor health to
partnerships; SMHP Staff with – get their experiences and views heard.
e.g. SUF; Suffolk Family Carers; East
Suffolk Advocacy Network (ESAN); • SMHP Trust acknowledging the
Mind; Richmond Fellowship and contribution of its customers in
Suffolk Employment Care. adding value to its care delivery.
Page 16
DEVELOPMENTAL ISSUES
• For SMHP Trust to cement the joint • Enable our local service groups and
work of the education and workforce staff to acquire the skills and resources
development department and patient needed to ensure that all people can be
and public involvement by jointly effectively involved in decisions about
funding the Stepping Forward the delivery of secondary mental
Programme for the future. health services.
• To provide an annual budget for the • Please contact Jeannie Wright for more
Care Programme Approach information on the Stepping Forward
developmental work e.g. facilitate DVD. Tel: 01473 329347.
the “buddy” system; text service; email: jeannie.wright@smhp.nhs.uk
personalisation programme.
Page 17
USEFUL ADDRESSES
FUTURE ACTIVITY
Stepping Forward Five Stepping Forward Seven
5 Kesgrave Conference Centre
21/05/09 7 Kesgrave Conference Centre
19/11/09
Page 18
USER AND CARER INVOLVEMENT WITHIN
THE CARE PROGRAMME APPROACH (CPA)
PROCESS IN SMHP TRUST
Involvement with
SMHPT Management
9 - Suffolk CPA Practice Development Group
10 - Standards Committee
NORTH
S.U.F.
WEST EAST