Documente Academic
Documente Profesional
Documente Cultură
FALL
2014
PORTLAND AND SW WASHINGTONS ONLY MAGAZINE FOR AUTISM SPECTRUM DISORDER
FREE
BUILDING SOCIAL SKILLS THROUGH NATURE
SOCIAL SECURITY DISABILITY INCOME (SSDI)
DIGITAL EDUCATION
INCLUSIVE CHILD CARE
QIGONG SENSORY TRAINING INSTITUTE
6500 SW Macadam Ave., Suite 300 | Portland, OR 97239-3565
Ph: 503.245.0894 | Fax: 503.245.1562 | www.naylaw.com
Helping families with special needs kids provide
security and quality of life since 1984
Special Needs Planning
To order a free copy of our
Legal/Financial Planning
Guide, call (503) 245-0894 or
visit our website at naylaw.com
Every parent of a special needs child asks themselves
What will happen to my child when were gone?
We can help you nd the answers
Special Needs Trusts
Guardianships and Conservatorships
Sorting Out SSI & Medicaid
Asset Protection Plans
Wills
Living Trusts
Financial Powers of Attorney
Planning for your family tree
Member:
www.spectrumsmagazine.com
3
FEATURED SECTI ONS
Lifespan
Social Security Disability Income (SSDI)
Navigating the hurdles of applying for
SSDI with an autism diagnosis.
Building social skills through nature
Getting outdoors presents the perfect
opportunity for practicing social skills.
Using boffer to build relationships
Autism advocate Jonathan Chase leads
simulated handheld combat using padded
mock weapons.
Bullying 101
Forging strong skills and strategies to
combat bullying.
Digital education
Tapping into digital options for learning.
Inclusive child care
Finding the right t for a special needs
child.
8
Recreation
12
Education
Health & Wellness
Therapy
Dressing to accommodate sensory sensitivities
Breaking down Sensory Processing Disorder (SPD)
and ways to nd accommodating clothing.
My Turn
One story of life with autism.
Animal-assisted therapy
The many benets of using animals as a therapeutic
option.
Qigong
Finding relief of autism symptoms through touch.
17
24
28
contents
Inclusive child care
FALL 2014
6500 SW Macadam Ave., Suite 300 | Portland, OR 97239-3565
Ph: 503.245.0894 | Fax: 503.245.1562 | www.naylaw.com
Helping families with special needs kids provide
security and quality of life since 1984
Special Needs Planning
To order a free copy of our
Legal/Financial Planning
Guide, call (503) 245-0894 or
visit our website at naylaw.com
Every parent of a special needs child asks themselves
What will happen to my child when were gone?
We can help you nd the answers
Special Needs Trusts
Guardianships and Conservatorships
Sorting Out SSI & Medicaid
Asset Protection Plans
Wills
Living Trusts
Financial Powers of Attorney
Planning for your family tree
Member:
14
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www.spectrumsmagazine.com
4
FALL 2014 | VOLUME 2, ISSUE 3
SPECTRUMS MAGAZINE LLC
Courtney Freitag, Founder and Publisher
Mailing address:
1722 NW Raleigh Street, Suite 422
Portland, Oregon 97210
Phone: (971) 998-5967 Fax: (971) 327-6702
www.SpectrumsMagazine.com
courtney@spectrumsmagazine.com
Connect with us online!
/SpectrumsMagazine
Editorial Advisory Board:
Genevieve Athens, Michael Brooke,
Amy Donaldson, Karen Krejcha and Jody Wright
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Road trips. Weekend staycations. Swimming pools. Family
movie nights. Summer is winding down and the new
school year is in full swing. I dubbed our 2014 summer
White Knuckle Summer, intent of loosening the grip on
the rigid routine and embracing unexpected adventures.
Following his lead, my son demonstrated some nice strides
in practicing some exiblity and trying new things.
Last minute playdates? Check. Pack a picnic and head to the
river? Check. Stay in pajamas all day and watch movies?
Check. Our family relished in the exible schedule and
witnessed some marked growing and bondingby all of us.
As school doors reopen, many families search for ways
to supplement their childs education. Traditional brick
and mortar K-12 schooling isnt for everyone. Flip to page
18 to read about some options for digital education, from
full-time online schooling to supplementing certain areas
of need. There are literally hundreds of options to nd
individualized ways to tailor your childs educationfrom
the comfort of home.
Individualized? Check. Lots of options? Check.
And as children head back into the classroom and navigate
social hierarchies, opportunities for bullying begin to creep
up. We review some strategies to empower children to
become self-advocates and also create an open dialogue
with educators and other families. Occupational therapist
Joanna Blanchard reviews tips for setting personal
boundaries and preventing children from becoming a
target for bullying.
Empowering? Check. Collaborative approach? Check.
So, while we return to the routine, I hope that our white
knuckle experiment this summer will begin to have some
ripple effects. It was a nice trial to see not just what my son
is capable of, but our entire family as a unit.
Balance? Check. Progress? Double-check.
ON OUR COVER
Spectrums Magazine LLC makes no warranty, guarantee,
endorsement or promotion of any service, provider or
therapy option listed in this publication or its website (www.
spectrumsmagazine.com). This is a free community magazine
created as a courtesy to the public. Spectrums Magazine LLC
cannot be held liable for any action or decision based upon
information found in this publication or the magazines website. It
is the responsible of individuals to discuss any therapy or treatment
option with the care team. Every effort is made to ensure accuracy
and verify information, however readers using this information do
so at their own risk. No part of this publication maybe reproduced
or transmitted without prior written consent from the publisher.
2014 All rights reserved.
Courtney Freitag
Founder and publisher
@SpectrumsMag
Animal-assisted therapy,
has long been used in
the autism community to
establish independence
and create connection.
Equine therapy, such as
our featured cover photo,
uses horses to aid those
on the spectrum.
Read more about
animal-assisted
therapy on page 28.
SpectrumsMag
www.spectrumsmagazine.com
5
1700NW167
th
Place,Suite220
Beaverton,OR97006
(503)985-9527
www.thecenterforhealthandperformance.com
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Occupational
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Play/SocialSkills
Training
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PrivateOTGyms
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TherapySpace
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Practitionersworkas
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9 a.m.-6 p.m.
www.spectrumsmagazine.com
6
lifespan
IDEAS AND TOPICS FOR ALL AGES AND STAGES
Social Security Disability Income (SSDI) ................................................8
IN THIS SECTION
www.spectrumsmagazine.com
7
At Providence Specialty Pediatric Dental Clinic, children and young adults
receive excellent dental care in a safe, fun environment. Our dentists and
staff welcome patients ages birth to 26 with behavioral, developmental
and medical needs, and their siblings too. Were changing the world of
special-needs pediatric dentistry, one smile at a time!
For more information, call 503-215-1056 or visit
www.ProvidenceOregon.org/pediatricdental.
Providence Child Center 830 NE 47th Ave. Portland, OR 97213
Providence Child Center offers families of children with special needs comprehensive services through Swindells
Resource Center, Providence Neurodevelopmental Center for Children and the Center for Medically Fragile Children.
Dental care for families
of children with special needs
Make a trip to the dentist more smile-worthy.
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www.spectrumsmagazine.com
8
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Social Security Disability Income (SSDI):
Understanding coverage for those with autism
When you (or someone you love) have autism,
attending school or working in a neurotypical world
can be overwhelming. Attention decits, sensory and
muscle motion problems, and social/communication
misunderstandings can prevent one from being able to
independently adapt and perform work or school tasks in
typical environments. The Social Security Administration
(SSA) considers autism a complete disability in children
and adults when certain criteria are met.
But how will you know if you should even apply?
If you have a young adult who is about to turn 18, you
may be scared that he or she might not qualify for
disability help even though your young adult does not
have the skills to obtain or hold a job. And if you yourself
have autism, you might wonder whether it is autism
preventing you from succeeding in a job or whether you
just need to nd that perfect t instead.
Here is what SSA looks for when evaluating children,
young adults and adults on the spectrum. Lets use Abe, a
male with a spectrum disorder, as our example.
Children on the spectrum.
Families eligible to receive Medicaid and/or food stamps
often t SSAs allowable income limit. Abes parents
would rst need to see if they qualify nancially. Then,
to decide if Abe is disabled under SSA regulations, SSA
needs evidence from a doctor (Ph.D., Psy.D., or M.D.) and
medical records with clinical ndings and test results.
SSA also looks at detailed statements from family/
friends, caretakers, therapists and teachers. The medical
evidence from the doctor, based on teacher or treating
therapy reports, parent reports and independent testing.
Statements from others must identify that Abe has
decits in reciprocal social interaction (e.g., doesnt know
how to play with others, still engages in parallel play
beyond typical age), decits in communication (e.g., at
least 1 to 2 standard deviations below the mean for
his age), decits in age-appropriate imaginative play or
concepts as well as restricted activities and interests.
Abes doctors must then provide an assessment opinion
showing how these decits cause serious limitations
in at least two of the following areas of functioning:
communication/cognitive functioning, social functioning,
personal functioning, and/or sustaining concentration,
persistence or pace.
Most parents think their child qualies for disability only
because she or he is diagnosed with autism or Aspergers
syndrome. This is not the case. Below is an example
showing how Abe likely will NOT qualify for disability:
Abes parents applied for Abes SSI because they lost their
home, assets and income due to Abes mothers medical
problems when Abe turned 11. As an 11-year-old, Abes
attention problems in class caused poor grades except
in his favorite class (math). Abe was diagnosed with
Aspergers syndrome when younger, but no longer met
DSM-5 criteria for autism. In spite of occasional irritability
caused by being around certain lighting or sounds, Abe
can talk to others to share ideas and complete schoolwork
with reminders to stay on task.
Abe has two friends from special education classes who
also share similar interests. Although Abe gets anxious
about changes, he doesnt blow up or hit others when
faced with a change in routine. Abe cant make small talk
and appears shy, but all his teachers say he is easygoing
and polite in class, even when inattentive. Finally, Abe
is fully toilet trained, doesnt wet the bed and can bathe,
feed and dress himself without help, although his parents
have to give him reminders.
In the above example, SSI would deny Abes disability
application because his spectrum disorder doesnt cause
serious problems in his functioning in school, having
friends, communicating, or self care. Based on these facts
alone, Abe would appear to have moderate problems at
best.
Young adults on the spectrum.
SSA determines an adult is disabled if she or he either is
severely impaired and meets SSAs denition of autism
impairment, OR if an adult with autism cant do the work
at his/her education level or training or work simple
enough to learn within 30 days or less.
When Abe turned 18, different medical and non-medical
rules determine if Abe qualies for SSI disability. His
parents income does not count; only his income and
resources (which can include free room and board if
he still lives with his family). Our Abe is intelligent, but
needs a lot of supports and reminders to stay on task for a
job, remain physically clean and to interact appropriately
with others.
(SSA does NOT consider whether Abe could successfully
interview to obtain a job, but SSA can look at evidence
showing Abes lack of social skills prevent him from
By Melissa Kenney, Esq.
www.spectrumsmagazine.com
9
working well with coworkers, supervisors and the
public).
SSA needs evidence to decide if Abes limitations prevent
him from being successful at competitive employment
as opposed to a sheltered work environment where
disabilities are accommodated by the employer, and
performance is not measured against neurotypical
people.
In general, Abe must prove he is too disabled to work
with (1) medical records and testing results; (2) school
IEPs and functional assessments; (3) his testimony
describing his limitations (which should parallel with
what he tells his doctors, therapists, or is demonstrated
in assessments); and (4) witness descriptions of his
problems and limitations in social interactions, self care,
persistence and pace on tasks or hobbies.
Because Abe is so young, Abe should be enrolled in
vocational rehabilitation, and, very importantly, should
obtain a vocational assessment. Abes vocational
assessment should contain a summary of his medical
history, testing results and opinions, summary of his IEP
goals that were achieved and not achieved, and what jobs,
if any, Abe can perform with his limitation.
If his vocational assessment says Abe can only work part-
time because of his limits, or requires sheltered work that
permits constant redirection and a reduced work pace
below normal, then Abes vocational assessment provides
strong evidence that Abe is unable to work full-time in
competitive employment. If Abe obtained disability, SSA
likely would review his case every several years to see
if Abe learned enough skills (whether educational or
adaptive skills) to be able to work in spite of his disabling
condition.
Older adults on the spectrum.
Imagine if Abes loving parents owned a small quiet
corner market where Abe would help out by running a
cash register, stocking shelves and answering phones.
The store rarely had more than three to ve customers
at a time. Abe wasnt really very good at the job because
he needed a lot of reminders, was slow and couldnt make
eye contact with customers, but since everyone knew
him, people were patient.
Abe tried living on his own, but was kicked out of his
apartment because he never cleaned the place and it
attracted vermin. Abe rarely bathed, too, and his brother
always brought him clean laundry because Abe never
remembered to do it himself. When Abe turned 40, his
parents closed the store and retired. Abe tried to nd
work: with his high school education, some vocational
training and experience at his parents store, no one hired
him. He decided to apply for disability.
Under SSA regulations, the same proof that Abe needed
at 18 still applies. In addition, Abe should also get witness
statements from third parties that are not his family,
such as former customers, neighbors, or family friends
who can describe Abes limitations they personally
observed. They should be able to describe limitations
in concentration, pace and persistence at tasks, social
interactions and self-care. If a medical professional or
therapist observed these same limitations, they should
be fully documented in Abes medical, therapy and/or
vocational records as well.
Finally, if Abe was over the age of 18 and diagnosed with
autism before age 22, he can get additional nancial
benets through his retired or deceased parents SSDI, as
long as he never married.
In our practice, the biggest hurdles for our clients with
autism are that they possess exceptional gifts and
intelligence, but also possess signicant limitations in
self-care, ability to work with others and ability to stay on
task. Many of our clients succeeded in college only due
to a sheltered parental home environment where others
made sure basic hygiene standards, class registration and
attendance take place.
Because of their parents well-intentioned supports,
our clients with autism get an education, but are unable
to transfer their education to an independent work
environment. Most SSI analysts and administrative
law judges see only high IQ scores, and conclude that a
high IQ shows an ability to work. As such, parents and
family need to be sure to provide SSA college attendance
records, journals, receipts and other records. These should
demonstrate that their adult children receive signicant
social, self-care and work supports from family and
community.
Melissa Kenney, Esq. is a member of KP Law, PC, a
social security and veterans disability law rm providing
representation throughout the Pacic Northwest. In addition
to pas work for people with disabilities and involvement in
disability rights groups, Melissa is also a proud parent to
her neurotypical step-daughter, her spectrum son and her
neurotypical daughter.
Social Security, continued from page 8
Vocational assessments
should indicate limitations,
a requirement for sheltered
work or a reduced pace as
strong evidence for SSDI.
recreation
INCLUSIVE WAYS TO HAVE FUN
Building social skills through nature ........................................12
Boffer: weaponry that teaches .................................................... 14
IN THIS SECTION
www.spectrumsmagazine.com
11
1425 N Killingsworth Street, Portland
www.sensorykidsot.com (503) 575-9402
Therapy for kids with individual
differences and sensory needs.
We have been on this road of autism therapy for eight years now,
and after visiting countless clinics both in Oregon and California,
it is my sincere and humble opinion that the love and care we
received at Sensory Kids is truly unparalleled.
Searmi, parent and client at Sensory Kids
Family-Centered, Child-Driven, Therapist-Led
Occupational Therapy Speech-Language Therapy
Counseling Dance-Movement Therapy
Ongoing Parent Support and Parent Counseling Groups
3943 Douglas Way, Lake Oswego
www.dischingerteam.com (503) 635-4439
As a team, we are committed to providing a
unique professional experience in a loving and
caring atmosphere. We tailor all of our
treatments to ft the individual patient, so
when you complete your treatment you have
a smile that is every bit as unique as you!
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