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43. Many schools refuse to admit children with autism unless they
are accompanied by an AVS. Yet, according to a Ministry of
Education circular, the presence of an AVS may not be regarded
as a prerequisite for admission to school.
44. The status of AVSs, like all educational assistants, is uncertain.
Training on autism for AVSs and persons on school welfare posts
(EVSs) is either very limited or non-existent. On average only
three hours are devoted to autism during training courses for
AVSs. EVSs, for their part, do not have any compulsory training.
Furthermore, the teachers concerned are usually not trained in
dealing with children with autism. However, dealing with children
and adolescents suffering from autism requires even more
adjustment and training. Every teacher should therefore be given
training on autism as all teachers are liable to have a child with
autism in their class. Yet, this eventuality is not taken into account
at all.
45. The state has taken measures to remove the architectural
obstacles posed by school buildings and the technical obstacles
posed by school transport to make it easier for children and young
people with reduced mobility to attend school. However, no
measure has been taken to remove the human obstacles posed by
the negative attitudes to be found at all levels of the school
hierarchy (heads, teachers, support services, nursing staff, etc.).
Yet, it is for the state to take steps to remove these human
obstacles.
46. Lastly, because of the lack of suitable places and facilities and
its refusal to create and finance such classes in France, the French
state has helped to finance the schooling of children and
adolescents with autism in specialised classes run by trained
professionals in Belgium.
c) The inadequacy of other types of provision
47. By placing a large number of children with autism in IMEs or
day-hospital units (about 30% of those not attending mainstream
schools), France fails to fulfil its commitment under Article 151 of
the Charter to provide "education ... in the framework of general
schemes wherever possible". The expression "wherever possible"
entails forward-looking and flexible application, combined with the
resources necessary to ensure support within schools on a case-bycase basis.
48. These other types of provision are also hampered by the fact
that the IMEs lack financial resources and there is a shortage of the
specialised staff needed to provide a genuine education or other
staff to supervise children attending mainstream classes part time
or to increase the hours of schooling whenever possible on a caseby-case basis. As a result, the Act of 2005 provides for possible
alternating attendance of an IME and a mainstream school, or
specialised classes within an IME.
2. The Government
49. The Government points out that AEH recognises that French
positive law complies with the Charter, that France has made
efforts which have shown political goodwill with a view to tackling
the problem of autism and that two and a half years after its
launch, the second Autism Plan has achieved positive results in
terms of raising awareness, promoting new methods and creating
additional care places.
50. It considers that AEHs complaints are unfounded because
there have been significant improvements in the education and
vocational training of children and adults with autism. It has made
measurable progress over a reasonable timeframe despite a
difficult budgetary context, making considerable financial and
practical efforts to provide and promote education and vocational
training for people suffering from autism and other PDDs. These
efforts have had an impact, as various independent authorities
have acknowledged that significant progress has been made.
51. The Government is pursuing a proactive policy to provide
facilities and support for people with autism. This policy has
resulted in successive autism plans for the periods 2005-2007
and 2008-2010 and a consultation process is already under way
with the relevant associations to prepare a third plan, whose
launch has already been announced. It will be prepared at
interministerial level under the auspices of the Secretary General of
the Interdepartmental Disability Committee, with the regular
involvement of all the stakeholders represented on the National
Autism Committee (CNA). The focuses of this third plan will be
early detection, research on autism and the development of
support facilities designed to promote integration at school and at
work, together with support for family carers. It will contain targets
spread over the period from 2013 to 2015 and will be followed up
regularly by the National Autism Committee. Particular attention
will be paid to the governance of this plan, both at national level
and with regard to its implementation at regional level.
52. An exceptional effort has been made by France to deal with
autism comprehensively. The 2008-2010 Autism Plan, which was
drawn up in consultation with professionals and associations and
constructed around thirty key measures, has been a major step
forward in public policy for persons with autism and their
entourage. It has yielded tangible results, particularly thanks to the
considerable involvement of regional health agencies on the
ground. For instance, it has helped to improve knowledge about
autism through a knowledge corpus, published in March 2010 and
designed to be disseminated widely and provide material for the
training of professionals. An interinstitutional, multidisciplinary
national training course was devised by the School for Higher
Public Health Studies (EHESP) to disseminate this knowledge
corpus and training began in September 2011.
53. The Autism Plan has also made it possible to improve support
for patients and their families by providing additional funds for
diagnostic teams (5.6 million between 2009 and 2011). There has
also been an increase in the funds available to autism resource
the legal framework for operations by social and medicosocial services and establishments in schools with pupils
covered by a CDAPH notification of a joint mainstream
school/medico-social sector project;
the legal framework for consultation between teachers and
medico-social professionals on appropriate educational
approaches and methods;
the legal framework for the involvement of medico-social
professionals in the vocational training of state teaching
staff and in the teaching of civics, law and social studies.
- The interministerial decree of 2 April 2009 regulates the activities
of state teachers with children and adolescents being cared for by
medico-social services by organising the teaching units provided
for by the Education Code to provide schooling for young people
with disabilities who cannot attend a mainstream school.
69. This co-operation, which has no impact on the distribution of
the roles of each sector, helps pupils to follow their own paths,
suited to their own needs and adjusted accordingly throughout
their schooling. In this way, pupils personal schooling plans and
the individual care plans established by the medico-social
establishment are co-ordinated and a premium is placed on the
joint management of medico-social care and mainstream
schooling.
70. The Government considers the allegation of a lack of cooperation between the state education authorities and the medicosocial sector with regard to autism to be unfounded. The second
Autism Plan included two specific activities designed to meet the
need for training in co-operation:
- Measure No. 5, whose aim was to Set up training courses for
trainers. These training courses, which had an interdisciplinary
focus and were aimed therefore at various training networks in the
educational, medico-social and health sectors, were held
throughout the country in 2011/2012 with the aim of disseminating
the knowledge corpus throughout these networks.
- Measure No. 12, whose aim was to Back up the work of autism
resource centres so as to provide a more consistent service for
users. This measure resulted in a circular of 27 July 2010, which
provided that one of the main tasks of autism resource centres and
associated hospital teams was to promote interdisciplinary training.
d) The alleged lack of places and specialised staff in
specialised facilities
71. With regard to medico-social establishments, the 2008-2012
programme for the creation of life-long care places for people with
disabilities provides for the creation of over 50 000 places (39 000
places for adults, including 10 000 in ESATs, and 12 000 for
children). Bearing in mind the time required to implement these
measures, the places will be opened progressively over the period
year break between plans, meaning that the deadline for achieving
the newly assigned objectives is prolonged to 2017.
98. The Committee regards this prolongation as unreasonable and
exceeding the margin of appreciation allowed to States Parties.
99. Concerning the criterion of maximum use of available
resources, the Committee scrupulously heeds the margin of
appreciation that States Parties enjoy in allocating financial
resources. However, in the present case, it cannot consider that
maximum use is being made of resources for the schooling of
children with autism while France subsidises travel to Belgium by
children and adolescents with autism of French nationality, who are
then accommodated and educated in specialised institutions
functioning according to appropriate educational standards, rather
than financing the implementation of these standards within
specialised institutions active in French territory (see 46 above).
100. The Committee holds therefore that there is a violation of
Article 151 of the Charter with regard to the right of children and
adolescents with autism to be educated primarily in mainstream
schools.
Vocational training of young persons with autism in mainstream
establishments or special institutions
101. Vocational training in the strict sense means the provision of
initial instruction to individuals to help them to acquire the
knowledge and skills they need to enter the labour market and
hence to achieve personal fulfilment and integration into the
community.
102. AEH considers the access of young people and adults with
autism in France to vocational training to be trifling or nonexistent. It alleges that the difficulties of adults with autism
encounter when it comes to their occupational integration are
linked to gaps in their occupational skills deriving from a significant
lack of training.
103. The Government repeats the point that it has already made in
another context (84), that because of the diversity of autistic
spectrum disorders, not all persons with autism can follow
vocational training. It explicitly denies the possibility that the
number of adults with autism with access to specialised public
institutions for the social and occupational rehabilitation of persons
with disabilities (which has been evaluated at 7% of the persons in
question) could have increased and refers instead to the growth in
the number of students with disabilities enrolled in French
universities between 2005 and 2012 without making any specific
reference to the percentage of these persons suffering from autistic
spectrum disorders.
104. In the Committees opinion, the imprecision of this reference
by the Government gives credence to the complainant
organisations argument. The latter refers to the legislative
arrangements which facilitate access for young adults with autism
to the acquisition of vocational training certificates or other
Petros STANGOS
Rapporteur
President
Deputy Executive
Secretary
Birgitta NYSTRM
Rhan IIK
Petros STANGOS
Alexandru ATHANASIU
Elena MACHULSKAYA
Giuseppe PALMISANO
Karin LUKAS
Assisted by Henrik KRISTENSEN, Deputy Executive Secretary,
Having regard to the complaint dated 29 March 2012, registered on
the 3 April 2012 as number 81/2012, lodged by the European
Action of the Disabled (the AEH) and signed by its Vice-President,
Mrs Marie-Jos SCHMITT, requesting the Committee to find that
the situation in France does not comply with Articles 10 and 15 of
the Revised European Social Charter (the Charter), as well as
with Article E in conjunction with each of these provisions;
Having regard to the documents appended to the complaint;
Having regard to the observations of the French Government (the
Government) on admissibility of 6 July 2012;
Having regard to the Charter and, in particular, to Articles 10, 15
and E, which read as follows:
Article 10 The right to vocational training
Part I: Everyone has the right to appropriate facilities for
vocational training.
Part II: With a view to ensuring the effective exercise of the right
to vocational training, the Parties undertake:
1 to provide or promote, as necessary, the technical and vocational
training of all persons, including the handicapped, in consultation
with employers and workers organisations, and to grant facilities
for access to higher technical and university education, based
solely on individual aptitude;
2 to provide or promote a system of apprenticeship and other
systematic arrangements for training young boys and girls in their
various employments;
3 to provide or promote, as necessary:
a adequate and readily available training facilities for adult
workers;
Petros STANGOS
Luis JIMENA
Henrik KRISTENSEN
Rapporteur
QUESADA
President
Deputy Executive
Secretary
It is recalled that pursuant to Article 82 of the Protocol, this report will not be
made public until after the Committee of Ministers has adopted a resolution, or
no later than four months after it has been transmitted to the Committee of
Ministers, namely 5 February 2014.
2
In French only on :
http://www.ladocumentationfrancaise.fr/var/storage/rapportspublics/114000307/0000.pdf
14
http://www.ladocumentationfrancaise.fr/var/storage/rapportspublics//124000030/0000.pdf or
http://www.solidarite.gouv.fr/IMG/pdf/rapport_mission_autisme_Valerie_Letard1.pdf
15
http://www.has-sante.fr/portail/upload/docs/application/pdf/201203/recommandations_autisme_ted_enfant_adolescent_interventions.pdf
16
http://www.un.org/apps/news/story.asp?NewsID=37973