Documente Academic
Documente Profesional
Documente Cultură
12 April 2009
Introduction
Over the last several decades, policy surrounding intellectual disability has reflected a fundamental shift
(Glaser & Deane 1999), resulting in a transformation of
the developmental services landscape from institutionalization to community-based recreation, employment,
and living options (Henry et al. 1996a; Bigby 2006). This
movement rests on the beliefs that smaller settings allow
for more individualized attention to client needs, that all
individuals have a right to access their community, and
that inclusion results in greater visibility and therefore
acceptance of individuals with intellectual disability.
Inclusion, in turn, is thought to enhance the quality of
life of persons with intellectual disability (Cummins &
Lau 2003). It has been argued that an important determinant of the success of community living efforts is the
attitude of the public towards individuals with intellectual disability and their presence and involvement in
the community (Antonak & Livneh 1995; Burge et al.
2007). Social distance is a construct thought to reflect
such attitudes and is defined as a willingness to recognize, live near, or be associated with (Harth 1971,
p. 143) a certain group or individual. The goals of the
present study were to describe the level of social distance which members of the public prefer to keep
between themselves and individuals with intellectual
disability and to examine characteristics which may predict a desire for greater or lesser distance. Moreover,
given the long evolution of the measurement of social
distance, the current study endeavoured to examine its
utility in reflecting contemporary public attitudes.
While deinstitutionalization has resulted in the geographical shift of individuals with intellectual disability
into the general community, researchers and practitioners alike have expressed concern that physical integration does not, in fact, guarantee true social inclusion
(Cummins & Lau 2003; Fichten et al. 2005). The success
of the inclusion movement rests on effective interaction
between individuals with and without disabilities as
equals in all settings (Fichten et al. 2005). Furthermore,
the stigma and discrimination commonly experienced
10.1111/j.1468-3148.2009.00514.x
2009 The Authors. Journal compilation 2009 Blackwell Publishing Ltd, 23, 132142
contact with individuals with intellectual disability, frequency of this contact, and knowledge of intellectual
disability) and attitudes towards them. Yazbeck et al.
(2004) found that prior knowledge of a person with
intellectual disability predicted attitudes reflecting less
social distance. This finding is consistent with research
by Townsend et al. (1993), who found that children in
well-integrated schools (who therefore have greater contact with individuals with intellectual disability) express
less social distance than do children in less integrated
schools. Knowledge of intellectual disability has also
been found to correlate with less social distance (Reis
1988; Hampton & Xiao 2008). Others have found nonsignificant (Jaffe 1967) or only marginally significant
(Krajewski & Flaherty 2000) results. However, the finding that, in general, contact with individuals with intellectual disability tends to improve attitudes towards
them, is the foundation for many attitude change efforts
and serves as one of the underlying assumptions of the
inclusion philosophy (Cummins & Lau 2003).
Inconsistent findings with regard to associations
between both demographic characteristics as well as
contact with individuals with intellectual disability and
attitudes towards them have caused researchers to question the utility of self-report measures in studying attitudes. This method of data collection is vulnerable to
threats to validity such as social desirability (Akrami
et al. 2006) and has been criticized for its inability to
consistently predict behaviour (Harth 1981). Nevertheless, self-administered surveys are still widely used to
measure attitudes.
Given the 2004 decision to close the three remaining
institutions in Ontario, Canada, by 2009 (Ministry of
Community and Social Services 2006), it was deemed
critical to determine the attitude of the public towards
the inclusion of individuals with intellectual disability
in the community. This process was viewed as necessary to reduce barriers to the effective implementation
of the governments policy and to decrease stigmatizing attitudes that are harmful to individuals with
intellectual disability. The objectives of the current
study were therefore (1) to describe the social distance
reflected in attitudes of the public in Ontario, Canada,
towards individuals with intellectual disability and (2)
to ascertain demographic characteristics of the public
which may predict attitudes that, in showing greater
social distance, are inconsistent with the goal of social
inclusion. In addition, based on the results of our
study, we offer cautionary advice on the use of the
social distance scale and offer suggestions for its
future use.
Method
Participants
We collected a stratified, random sample of adults (aged
18 and older) residing in a six county area of Ontario,
Canada. At the time of the survey, the population in this
area was estimated to be approximately half a million,
of which 410 219 were adults (Statistics Canada 2007).
Following stratification of the region into 27 geographical areas, a random telephone contact list was created
using InfoCanadas electronic databank of white pages
residential phone numbers (i.e. Select Phone Canada).
To ensure representation from each area, sampling
across strata was based on the following quota rule: one
in 440 households or a minimum of 25 households per
geographic area. In total, 2949 potential participants
were contacted. The final sample included 680 participants. The proportion of participants from each county
very closely approximated the proportion of citizens living within each county. The actual completion rate was
23%.
The protocol for this study was reviewed and
approved by the Queens University Research Ethics
Board. Once randomly selected from the electronic telephone listing, only telephone numbers were provided to
callers, thereby ensuring that participants identities
were not known and could not be associated with their
opinions. Potential participants were told that their data
would be pooled with others before analysis and were
asked directly if they would participate. Answering
yes to this question was understood to indicate consent
to participation. If a participant chose to discontinue the
survey at any time before completion, their data were
discarded.
Measures
As part of a longer telephone interview about attitudes
towards individuals with intellectual disability (Burge
et al. 2007; Ouellette-Kuntz & Burge 2007), participants
completed the Social Distance Subscale of the MASMR
(Harth 1971). This scale requires participants to indicate,
on a four-point Likert-like scale, their level of agreement
(i.e. strongly agree, agree, disagree, or strongly disagree)
with eight statements. Each statement presents a situation indicating a certain level of intimacy, and, through
their responses, participants specify the level of social
distance they would prefer to keep from such a situation. The scale contains positive and negative items to
limit the influence of affirmative response bias. Negative
2009 The Authors. Journal compilation 2009 Blackwell Publishing Ltd, 23, 132142
Mean1
SD
3.61
0.52
3.54
0.56
3.54
0.58
3.26
0.73
3.58
0.61
3.55
0.56
3.19
0.75
3.54
0.60
and Education at the University of Massachusetts at Boston (Special Olympics 2004). Participants also reported
their gender, age, highest level of education achieved,
and income level. In addition, as a measure of contact
with individuals with intellectual disability, they were
asked whether they had a close family member with
an intellectual disability, worked with someone with an
intellectual disability, knew anyone personally with an
intellectual disability other than a close family member,
or had seen people with an intellectual disability where
they lived or worked.
To clarify participants understanding of the term
intellectual disability, they were told at the beginning
of the telephone interview: This survey is about people
with an intellectual disability and the views of community members like yourself towards these people. Now,
people with an intellectual disability have significantly
impaired intelligence as well as limitations in their ability to adapt to everyday situations. Other terms which
are sometimes used to describe this group include people with mental retardation or people with a developmental disability.
Analysis
The internal validity of the Social Distance Subscale was
first calculated. Descriptive statistics were then used to
provide a profile of the participants demographic characteristics and their social distance attitudes. anova
were conducted to study the relationship between categorical variables (i.e. gender, age, level of education,
level of income, level of contact with individuals with
intellectual disability, mild versus moderate severe perceived disability) and participants mean scores on the
Social Distance Subscale items. All analyses were conducted using spss, version 14.0. A significance level of
P < 0.05 was used in all analyses a priori.
Results
Cronbachs alpha was 0.85, indicating acceptable internal validity. Participants who did not respond to all of
the eight items on the Social Distance Subscale were
excluded from the analysis, leaving a sample size of 625
individuals. Of those included in the analysis, 66% were
female. Participants ranged in age from 18 to 93 years
and had an average age of 50.08 years (SD = 15.92).
Their reported level of education was as follows: 37.4%
low (high school or less), 38.6% medium (community
college or trade school) and 23.5% high (university
degree). Their reported level of income was as follows:
2009 The Authors. Journal compilation 2009 Blackwell Publishing Ltd, 23, 132142
8.3% <$20 000, 40.6% from $20 000 to <$60 000, 25.4%
from $60 000 to <$100 000, and 9.8% $100 000 or more.
Sample characteristics very closely approximated those
of the underlying population [refer to Ouellette-Kuntz &
Burge (2007)]. Of the participants, 19.4% stated that they
had a close family member with intellectual disability.
In addition, 73.6% of participants reported that they did
not have a close family member with intellectual disability but that they had other forms of contact with individuals with intellectual disability (i.e. worked with,
knew personally, or saw individuals with intellectual
disability where they lived or worked). The remainder
of participants (7%) reported no contact with individuals
with intellectual disability. Finally, 57.4% of participants
perceived the level of disability affecting most individuals with intellectual disability to be mild. The remainder
reported moderate to severe perceived disability.
Discussion
Findings
The results of our study suggest that several participant
characteristics remain relevant in todays society in
predicting social distance attitudes. Several demographic
2009 The Authors. Journal compilation 2009 Blackwell Publishing Ltd, 23, 132142
Table 2 Proportion of positive and negative responses to social distance items (n = 625)
Disagree
n (%)
Strongly
disagree
n (%)
228 (36.5)
5 (0.8)
2 (0.3)
356 (57.0)
254 (40.6)
12 (1.9)
3 (0.5)
359 (57.4)
248 (39.7)
13 (2.1)
5 (0.8)
13 (2.1)
67 (10.7)
290 (46.4)
255 (40.8)
10 (1.6)
12 (1.9)
207 (33.1)
396 (63.4)
357 (57.1)
256 (41.0)
8 (1.3)
4 (0.6)
227 (36.3)
307 (49.1)
74 (11.8)
17 (2.7)
4 (0.6)
21 (3.4)
233 (37.3)
367 (58.7)
Strongly
agree
n (%)
Agree
n (%)
390 (62.4)
R indicates that items were phrased in reverse and reverse-scored to reflect the same scaling method as other items.
significantly less likely to express a wish for social distance between themselves and individuals with intellectual disability. This finding is consistent with research
in the field of mental illness, where participants tend to
prefer greater social distance from individuals with
mental illnesses which they perceive to be severe (i.e.
schizophrenia) compared with mild (i.e. depression)
(Angermeyer et al. 2004; Gaebel et al. 2002).
Although these findings demonstrate the continued
relevance of associations between participant characteristics and attitudes towards intellectual disability, other
aspects of our study raise concerns regarding the
measurement of social distance. The results of the study
indicated that, overall, participants seemed to hold
remarkably positive attitudes towards individuals with
intellectual disability, as demonstrated by low social distance expressed on items of the Social Distance Subscale
of the MASMR. These findings were consistent with
recent studies of social distance towards individuals
with intellectual disability. Krajewski & Flaherty (2000)
found that most participants responded with strongly
agree or agree to the social distance items of the MASMR
(or strongly disagree or disagree to reverse-coded items).
Indeed, they found a mean score above 2.5 for all items,
with the exception of I would be willing to go to a
competent barber or hairdresser with an intellectual disability (mean = 2.42, SD = 0.83) (Krajewski & Flaherty
2009 The Authors. Journal compilation 2009 Blackwell Publishing Ltd, 23, 132142
Gender (n = 624)
Males (n = 210)
Females (n = 414)
Age, years (n = 609)
<25 (n = 37)
2544 (n = 202)
4564 (n = 246)
65 (n = 124)
Level of education
(n = 622)
Low (n = 234)
Medium (n = 241)
High (n = 147)
Level of income, $
(n = 526)
<20 000 (n = 52)
20 000 to <60 000
(n = 254)
60 000 to <100 000
(n = 159)
100 000 (n = 61)
Contact with individuals
with ID (n = 624)
Close family member
with ID (n = 121)
Other contact with
individuals with ID1
(n = 460)
No contact (n = 43)
Level of perceived
disability (n = 589)
Mild (n = 359)
Moderate severe
(n = 230)
Mean (SD)
d.f.
F-value
P-value
3.43 (0.43)
3.50 (0.43)
1.622
2.72
0.10
3.49
3.54
3.49
3.32
(0.07)
(0.03)
(0.03)
(0.04)
3.605
7.10
0.00*
3.39 (0.43)
3.47 (0.43)
3.63 (0.37)
2.619
14.33
0.00*
3.47 (0.50)
3.47 (0.45)
3.522
2.25
0.08
2.621
3.60
0.03*
1.587
19.13
0.00*
3.45 (0.42)
3.61 (0.34)
3.56
0.44
3.46
0.43
3.38
0.42
3.53
3.37
0.41
0.46
2009 The Authors. Journal compilation 2009 Blackwell Publishing Ltd, 23, 132142
Conclusions
As policy and services within the field of intellectual
disability move towards a paradigm of inclusion, it is
critical to determine the consistency of the publics attitudes with these efforts. More than ever, in an age of
deinstitutionalization and community inclusion, the concept of social distance is highly relevant in describing
2009 The Authors. Journal compilation 2009 Blackwell Publishing Ltd, 23, 132142
the publics attitudes towards individuals with intellectual disability and in informing inclusion efforts. The
present study showed that several demographic and
experiential characteristics of respondents remain pertinent in predicting attitudes of social distance. However,
while the concept of social distance remains applicable
in todays society, its measurement seems to lack a sensitivity which is necessary in the current context of
political correctness. Over the years, the social distance
scale has evolved away from the ordinal and cumulative
framework first designed by Bogardus (1959), and the
questions themselves remain relatively unchanged since
their conceptualization in the 1970s (Harth 1971). It
would be informative for future research to determine
whether a return to Bogardus original theory of social
distance measurement allows for a more sensitive and
realistic understanding of attitudes towards individuals
with intellectual disability, and, if so, how this measurement can be achieved in todays multiethnic and multilingual society. In addition, future research should
reexamine the items of the social distance scale to determine what types of questions are most informative in
discriminating among attitudes of social distance. Thus,
we suggest that readers interpret the positive nature of
our results with caution and we recommend a thorough
reexamination and refinement of the measurement of
social distance.
Acknowledgments
The authors wish to thank the survey respondents as well
as Gary N. Siperstein and Jennifer Bardon Norins from
the Center for Social Development and Education (University of Massachusetts at Boston), project coordinator
Beth Peterkin, research assistant Meghan Hamel, and the
students from the Queens University Office of Advancement Telefundraising Centre who worked as pollsters.
Correspondence
Any correspondence should be directed to Hele`ne
Ouellette-Kuntz, Queens University Department of
Community Health and Epidemiology, Southeastern
Ontario Community-University Research Alliance in
Intellectual Disabilities, 191 Portsmouth Avenue, Kingston, ON, Canada, K7M 8A6 (e-mail: oullette@queensu.ca).
Source of Funding
Funding for the South Eastern Ontario CommunityUniversity Research Alliance in Intellectual Disabilities
Conflict of Interest
No conflict of interest has been declared.
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