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BACKGROUND
There has been a steep rise in the prevalence of
Autism Spectrum Disorder (ASD; 1:68; CDC 2014)
and a drop in age of reliable diagnosis into
toddlerhood. Despite increasing reliance on parent
mediated interventions for these very young children
with ASD, families often have little voice in shaping
intervention models. In addition, parent and family
outcomes are typically not explored, which is
particularly concerning given frequent findings of high
levels of stress in this group (Karst & Van Hecke,
2012). The earliest interventions set the stage for
lifelong patterns of interaction, health, and well-being,
and they must prepare a child and family for success
rather than adding burden at this vulnerable time
following early diagnosis.
METHODS
This project is conducted in partnership with a
Community Advisory Council (CAC) comprised of 9
families (8 mothers, 7 Caucasian, 3 Hispanic, 5 English
as a Second Language) with a child with ASD.
A set of semi-structured interview questions was
ANALYSIS
Two coders utilized ATLAS.ti software (Muhr, 1993) to
independently review transcripts of the interviews and
focus groups, to develop a set of codes. Following
consensus on codes, a second round of independent
coding was undertaken. Consensus codes were used to
identify emerging themes. This content was then
presented to the research team and the CAC for
determination of themes and saturation.
2 Focus Groups
With 16 parents (15 mothers; 100% Caucasian, 19%
Hispanic) who had participated in parent mediated
intervention with their young child with ASD using:
Early Start Denver Model (Rogers & Dawson, 2010)
Hanen More Than Words (Sussman, 1999)
OBJECTIVE
RESULTS
Results from this qualitative data analysis were categorized
into six themes illustrating the impact of the parent
mediated interventions on families lives, relationships, and
child outcomes:
CONCLUSIONS
long-term condition.
This project is/was supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under MCH R40MC27703-01-00 and Parent Mediated Interventions in Autism: The Search for
Meaningful Outcomes for $878,559. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.