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First Steps
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10
10
11
Breathing control
11
12
What is depression?
13
13
14
15
17
20
Setting goals
22
23
23
23
25
27
Social supports
29
Useful contacts
30
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Introduction
Living with a lung condition can be difficult and stressful. As well as having difficult physical
symptoms that you must learn to cope with such as breathlessness and coughing, you may
also experience more tiredness and may find that you are less active than before your
diagnosis.
Lung conditions can also affect you in ways that you may not have thought about previously.
For example, it may affect your ability to get a good nights sleep, you might find that you are
not eating as well as you once used to, and this may lead to feelings of agitation,
hopelessness and worry. You might also feel concerned about the future and how your
condition will progress.
Feeling like this over a long period of time can lead to some people feeling stressed,
depressed and/or anxious. The aim of this booklet is to provide you with an introduction of
what stress, depression and anxiety are, and how you can use some self-help techniques to
manage and improve your emotional health. One in four people in the UK experience a
mental health problem at any one time, so remember that you are not alone, and there is a
lot of help and support if you require it.
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Everyone experiences stress at certain times in their lives and few of us manage to keep it
under control all the time. It can come from both inside or outside of ourselves.
Inside These can include feelings and attitudes such as wanting to succeed, to be
liked or to make other people happy. These pressures can make you feel worried or
angry and sap your energy. Moderate levels of stress can improve our ability to
perform our daily tasks but high levels make it difficult to think properly and can makes
us feel physically unwell.
Outside Stressful events can happen at any time. They include moving house,
getting married, being made redundant, starting a new job, unexpected health issues,
divorce, death of a loved one, difficulties in relationships etc.
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You can empty a little out of your jug on a daily basis by using self-help techniques to:
Look at your stressors to see if there is anything you can do to reduce the level of stress
they produce or if you could manage them in a different way
Identify if the stressful situation is really your responsibility. If not, could it be delegated
to someone else or could your energy be better used elsewhere?
Have time to relax. This may be by completing a relaxation routine, playing a sport or
socialising, etc
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Cognitive symptoms
Memory problems
Indecisiveness
Inability to concentrate
Trouble thinking clearly
Poor judgment
Seeing only the negative
Anxious or racing thoughts
Constant worrying
Loss of objectivity
Fearful anticipation
Physical symptoms
Headaches/backaches
Muscle tension/stiffness
Diarrhoea/constipation
Nausea/dizziness
Insomnia
Chest pain/rapid heartbeat
Weight gain/weight loss
Skin breakouts (hives, eczema)
Loss of sex drive
Frequent colds
Hot flushes
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Emotional symptoms
Moodiness
Agitation
Restlessness
Short temper
Irritability or impatience
Feeling tense and on edge
Feeling overwhelmed
Sense of loneliness and isolation
Depression or general unhappiness
Low self esteem
Behavioural symptoms
Eating more or eating less
Sleeping too much or too little
Isolating yourself from others
Procrastination, neglecting responsibilities
Using alcohol, cigarettes or drugs to relax
Nervous habits (e.g. nail biting, pacing)
Teeth grinding or jaw clenching
Overdoing activities (e.g. exercising,
shopping)
Overreacting to unexpected problems
Picking fights with others
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Take control
Quite often you cannot control or change an event or situation, but you can always
control your actions/reaction to it. Channel your energies into the element of the
situation that you can control and do not ruminate on the elements that are beyond
your control
Set boundaries
Be realistic about what you can achieve and communicate
this with those involved. Unrealistic expectations will reduce
what you are able to do and increase your stress. Keep
boundaries around leisure and pleasure as these are often
the areas we neglect the most
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Communicate effectively
Talk to family, friends or colleagues. Sharing your thoughts
and fears will increase their awareness and they may have
helpful suggestions. It can also reduce the likelihood of
situations being misinterpreted and help you with feeling
valued and listened to. Learn to be more assertive and
how to say no
Environment
De-clutter your environment by filing, using note books, diaries,
etc. This can help you to feel calmer and may save time in the
long run. This may be at home or at work
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Physical reactions
Moods
Behaviours
Overestimation of
danger
Sweaty palms
Nervous
Underestimation of
ability to cope
Muscle tension
Irritable
Anxious
Trying to do things
perfectly
Worried and
catastrophic thoughts
Panicky
Pains in chest
It is important for you to recognise your symptoms and any early warning signs you have
when you might be feeling anxious, so that you are able to reduce your symptoms.
Panic attacks
Some people may experience panic attacks. A panic attack is a sudden overwhelming
feeling of anxiety, and you may feel like you cannot breathe, and you may experience chest
pains, feel faint, or like you are going to pass out. Some people have said that a panic attack
feels like they may be having a heart attack. It is important to remember that if you feel
unwell at any stage, to ask for help from anyone who is around you. Try to control your
breathing for yourself. A panic attack can last for up to 30 minutes, but it can be reduced if
you are able to focus on controlling your breathing.
Breathing control
An important exercise that you can use to help reduce feelings of anxiety is through proper
breathing. It is important to always take the advice of your GP or other health specialist
before you decide to take up this activity because of your lung condition.
The following breathing exercise has been taken from the British Lung Foundations
information page on breathing control for those with a lung condition. The exercise below
does not apply if you have Chronic Obstructive Pulmonary Disease. If you have this
condition and would like more information on conducting breathing exercises, please visit the
British Lung Foundation website (www.blf.org.uk) and request their COPD: Living with
chronic obstructive pulmonary disease leaflet.
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What is depression?
The terms depression and low mood are often used interchangeably. However, depression
is a diagnosable mental illness; whereas low mood describes an emotional state.
Depression is diagnosed by the following:
If you have experienced 1 of the following symptoms,
most of the time, for over 2 weeks
Low mood or sadness
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Feeling inadequate
Self criticism
Negative thoughts
Ruminating (keep going over the
same thoughts in your mind)
Thoughts of death
Angry
Numb
Guilt
Avoiding decisions
Poorer performance
Letting people walk over you
Agitation
Frequent crying
Irritation/aggression
Everybody is different and will react to depression and low mood in different ways.
It is proven that some people, particularly men, will not feel sad or tearful and their
main symptom may be physical or feeling angry or frustrated.
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Our thoughts, feelings (physical and emotional) and behaviours also feed in to each other.
The following model is a useful way of looking at the different aspects of your low mood.
Life event
Thoughts
Emotional
symptoms
Physical
symptoms
Behaviours
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Pauls example
Event
Too breathless to mow the lawn. Reluctant to
ask son for help
Thoughts
Emotional symptoms
Physical symptoms
Frustrated
Angry
Worried
Faster breathing
Tension
Lethargy
Behaviours
Because of the thoughts that Paul has and the way he is feeling, his physical symptoms
worsen and this results in him behaving out of character. Because of the way he has
behaved, this is likely to impact his mood even more, and therefore there is a real risk that he
might become stuck in a cycle of negativity. However, there are many ways in which he can
improve his emotional well-being, through challenging his unhelpful thoughts, finding ways to
reduce his physical symptoms, and through monitoring his behaviour.
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Challenging our thinking can be a difficult skill to learn, but for most people is an effective
way of improving our mood. The following techniques may be helpful.
What is the evidence that does not support the unhelpful thought?
This is the hard part, because it is often overlooked, but ask yourself these
questions: How would someone else view the situation? How would I have viewed
the situation in the past? What might I say to a friend who was in a similar situation?
What is the effect of thinking the way I do? Does it help me or make me feel
worse?
Now, is there an alternative, more helpful thought that could also be true to that
situation
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Situation:
Who / what / where /
when?
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Other possibilities or
what would I say to a
friend?
What was satisfying and what wasnt? How can you make your daily activities more
satisfying?
Could you reduce the impact of activities that are necessary but are not good for your
mood by following these with an activity that does increase your mood?
If you were helping someone you cared about, what changes would you make?
Are you striking a balance between enjoyable activities, relaxation, and things for
yourself on one hand, and work, duties, things for other people on the other hand? If
not, what could you do to create a better balance?
Did negative thoughts get in the way of you doing this? If they did, write them down and try
questioning them.
Step 3: Create a new diary for next week that includes what youve learned from steps
1 and 2
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Activity diary
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday
Morning
Afternoon
Evening
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Setting goals
Another way to improve our behaviour is through goal setting. Goals give us a sense of
purpose and allow us to achieve tasks that may feel overwhelming or unachievable. The key
to effective goal setting is to be realistic. It is easy to make the mistake of trying to achieve a
goal that is vague and unrealistic. By setting realistic, clearly defined goals, you can measure
and take pride in the achievement of those goals. You can see forward progress in what
might previously have seemed a long pointless grind. Your self-confidence will increase as
you achieve your goals and as you recognize your ability and competence in your
achievements.
There are five components to consider when setting yourself a goal. These goals are known
as SMART goals. These are:
Component
Ask yourself ..
Specific
Measurable
Achievable
Relevant
Time bound
Once you have set your goal, you then need to break the main goal down into achievable
steps called sub goals. You are far more likely to be successful if you plan a series of small
stages which will help you to reach your ultimate goal. By working on and achieving small
targets, your confidence will increase far more than if you are trying to achieve goals which
are too difficult, and where you run the risk of failing.
Once your time frame has expired you should then add a further two components to your
goal, making it a SMARTER goal:
Component
Ask yourself ..
Evaluate
Re-do
What further stages should I set for myself or is this goal now
fully achieved? What is my next goal?
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Carbohydrates
Provide energy
Low in fat
Wholegrain carbohydrates also contain vitamins, minerals and fibre
Should be included at every meal
Have 1/3 of a plate if you are a healthy weight. Reduce this to of a plate if you are
trying to lose weight
Sources include bread, pasta, rice, potatoes, cereals and oats (try to choose
wholegrain options)
Fats
Oily fish
Avocados
Nuts
Pastry
Seeds
Protein
Non-oily fish
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Important source of calcium, which is needed for strong bones. This is especially
important in people who take steroids.
Aim to have 2-3 portions a day
Sources include yogurt, milk and cheese
If you are trying to lose weight, choose low fat versions (e.g. low fat yogurt, skimmed
milk and cottage cheese)
If you are trying to put on weight, choose full fat options
Some people who have lung disease find that too much dairy can make their phlegm
thicker, it might be best to get protein and calcium from other sources if this affects
you.
Non-dairy sources of calcium are sardines, leafy green vegetables and wholegrain
foods
Iron
Iron is needed to form the red blood cells that carry oxygen around the body, so it is
important to have enough in the diet. Sources include leafy green vegetables such as
spinach and broccoli.
Salt
Salt can contribute to water retention and increase blood pressure.
Use spices and herbs to improve the flavour of food rather than salt
Do not add salt to your food on your plate
of the salt we eat is already in the food we buy (cereals, soups, sauces, bread etc)
so be aware when buying ready meals
Avoid highly salted foods and choose low salt options if available
Read the food labels and avoid those with more than 300mg in a serving this may
be described as sodium rather than salt
Caffeinated drinks
Drinks such as tea, coffee and coke have caffeine in. This can interfere with sleep and
cause a person to become dehydrated. Try to avoid caffeine in the run up to bedtime. A
good tip is to drink a glass of water for every cup of tea you drink to avoid dehydration.
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Trapped gas/bloatedness
Some people can become more breathless if they have trapped wind or feel bloated.
Certain foods are more likely to cause bloating and you could try avoiding them if it is a
problem for you. These include fizzy drinks, beans, peas, cabbage, broccoli, garlic, nuts,
apples and melon.
Stock up on food
Freezer/non- perishable items
Ready meals
Delivery companies
It can be difficult to get in all the calories and nutrients that your body needs if you are unwell.
Your body demands more energy to fight illness, but people often have no appetite if they
are unwell, or find that they are too breathless to eat. This can result in unintentional weight
loss, loss of muscle mass and reduced exercise tolerance.
Tips to make sure youre getting enough calories include:
Eat small amounts of food regularly. It might seem easier to face a small meal every
few hours than a large meal in one sitting
Eat soft food as chewing can be tiring. Things like soup, mashed potato, rice pudding
and custard can give calories, but are not much effort to eat
Keep easy to chew meals in the freezer or have tins of food in store. Then you will
have food on hand when you are too unwell to cook
Using sauces on food can make it easier to chew and swallow
Make sure you keep your fluid intake up
Dietary supplements like Calogen or Fortisip can be prescribed by your doctor if you
are underweight
If you are trying to increase your weight you should fortify your food. Ideas include:
If you are underweight and struggle to gain weight speak to your GP who can refer you to a
dietician if needed.
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Establish a regular routine. Go to bed only when you're tired and get up at the same
time each day. Avoid napping during the day
2.
Check your sleeping arrangements. Think about comfort, temperature, light and
noise levels
3.
Learn to de-stress before bed. Dismiss nagging thoughts by writing them down and
leaving the list away from your sleeping area
4.
Have a warm bath, practise a relaxation technique, or listen to a relaxation tape. (But
don't read or watch television in bed)
5.
Dont eat late. Avoid rich, spicy or sugar-rich foods, red meat and cheese. Choosing
wholemeal, low-fat, magnesium-rich foods (green salads, broccoli, nuts and seeds)
may encourage sleep, as may drinking hot milk and honey
6.
Get enough exercise. Fit people are proven to generally sleep better
7.
Don't stay in bed. If you can't sleep, get up after 15 minutes and go through your
relaxation routine again
8.
9.
Keep a sleep diary. This helps you identify potential causes for your sleeplessness
10. Try some reverse psychology: keep your eyes open and tell yourself to resist sleep
11. Interrupt unwanted thoughts: repeat a soothing word to yourself. Visualise a scene
or landscape that has pleasant memories for you
12. Talk to your GP. Using sleeping tablets on a long term basis may present problems,
but a brief course is sometimes appropriate especially if nothing else is working for
you
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Social supports
Social supports (friends, families etc) can be an important way of increasing our mood. When
a person feels low in their mood it is not uncommon for them to reduce their contact with their
friends/family which can lead to social isolation and the associated negative effects on wellbeing.
Increasing our social support is not simply a case of increasing our contact with more people
as not all social contacts are positive. For example, only meeting up with somebody who is
very low and has a number of difficulties of their own may have an adverse affect on your
mood. It is possible to feel lonely even when surrounded by others.
Increasing our positive social contact could be through a number of ways including:
Doing activities which provide us with the opportunity to meet and choose new friends
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Useful contacts
First Steps
0808 801 0325
Monday and Wednesday 10am to 4.30pm and Thursday 11am to 5.30pm. The helpline will
be open on a Tuesday following a Bank Holiday
first.steps@nhs.net
www.firststeps-surrey.nhs.uk
Depression Alliance
National self-help organisation for
depression and low mood
www.depressionalliance.org
0845 123 23 20
Anxiety UK
National self-help organisation for
anxiety
www.anxietyuk.org.uk
SANELine
www.sane.org.uk
MindInfoline
www.mind.org.uk
NHS Direct
www.nhsdirect.co.uk
0845 46 47
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Books
Surrey County Council Libraries have a very helpful list of self-help books. You can find the
list at www.surreycc.gov.uk if you search Reading Well. The books are available online
and in a selection of their libraries. Or additionally, the books are available to reserve via the
Library catalogue.
Many of these libraries also have a self-checkout option, which means you can take out a
book without anyone knowing the book that you choose.
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