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Questions and

An s wers about IDEA:


wers
1.800.695.0285
(Voice/TTY)
P u rrposes
poses
nichcy@aed.org and KKee y DDee ffinitions
initions
www.nichcy.org

More than 6.8 million children with disabilities The Q&A series presents components of IDEA
in our public schools receive special education and separately to lighten the reading load. However, it’s
related services as part of their publicly funded critical to understand that the law itself is one
education.1 But what is special education? What are integrated whole of interweaving requirements. No
related services? Who’s considered a child with a one part exists without the influence and
disability? This Q&A is designed to answer these reinforcement of the other parts. Taken together,
questions—looking in detail at the mandates and IDEA’s provisions offer comprehensive guidelines
requirements of our nation’s special education law, that States and school systems use to determine how
the Individuals with Disabilities Education Act special education and related services are made
(IDEA), as amended in 2004. available to eligible children with
disabilities. You’ll find the
Read on, if you’d like to find out the
Q&As on IDEA series on
purposes of IDEA, as established by
NICHCY’s website, at:
Congress in Public Law 108-446, as well
www.nichcy.org/
as how four of IDEA’s key terms are
EducateChildren/Pages/
defined in the final Part B regulations
QAseries.aspx
published in 2006. Those terms are:
We’ve used the word
• free appropriate public education
“you” to speak
(FAPE);
directly to parents
• child with a disability; and families in this
Q&A, but the details
• special education; and will also be useful to
Table o
off Co
Conntents
tent professionals who
• related services.
A—IDEA’s Purposes 2 work with children and
youth with disabilities and
B—Key Definitions 3 their families.

April 2
April 009
2009

National Dissemination Center for Children with Disabilities


NICHCY: www.nichcy.org 1
1825 Connecticut Avenue N.W., Suite 1: Purposes, Definitions, Evaluation, Eligibility
700 • Washington, DC 20009

A—IDEA
A—IDEA’’s PPur
ur poses
urposes (D) a lack of adequate resources within the
public school system forced families to
find services outside the public school
system.2
We’d like to start our Q&A series on IDEA by
taking a brief look at IDEA’s purposes, for they These words reveal why IDEA was originally
underpin and guide its many detailed requirements. passed in 1975 as Public Law 94-142. Then, it was
Those purposes have their roots in the past, when called the Education for All Handicapped Children
children with disabilities were often excluded from Act and gave grants to States for the education of
schools. This history can be clearly seen in the children with disabilities. Since then, it has been
Findings that Congress states at the very beginning amended many times, while always maintaining its
of the law, as most recently amended in 2004. original purpose—to ensure that children with
Public Law 108-446 states: disabilities have access to a free appropriate public
education.
FINDINGS.—Congress finds the following:
In August 2006, the U.S.
(1) Disability is a natural part
Department of Education released
of the human experience and
final regulations for the amended
in no way diminishes the right
IDEA passed by Congress in
of individuals to participate in
2004. The regulations officially
or contribute to society.
state that the major purposes of
Improving educational
IDEA are:
results for children with
disabilities is an essential • to ensure that all children with
element of our national policy of disabilities have available to them a
ensuring equality of opportunity, full “free appropriate public education”
participation, independent living, and that emphasizes special education and related
economic self-sufficiency for individuals services designed to meet their unique needs and
with disabilities. prepare them for further education,
employment, and independent living;
(2) Before the date of enactment of the
Education for All Handicapped Children • to ensure that the rights of children with
Act of 1975 (Public Law 94–142), the disabilities and their parents are protected;
educational needs of millions of children
• to help States, localities, educational service
with disabilities were not being fully met
agencies, and Federal agencies provide for the
because—
education of all children with disabilities; and
(A) the children did not receive
• to assess and ensure the effectiveness of efforts
appropriate educational services;
to educate children with disabilities.3
(B) the children were excluded entirely
Within these purposes, you can see several key
from the public school system and from
terms—children with disabilities, free appropriate
being educated with their peers;
public education, special education, related
(C) undiagnosed disabilities prevented services—all of which are defined within the
the children from having a successful regulations. This Q&A will share those definitions
educational experience; or with you. They’re important to know, because they

NICHCY: 1.800.695.0285 2 Questions and Answers about IDEA


drive how States design their own special education 1. Wha
hatt is a frfree
ee appropr ia
iatte public eeduca
appropria duca tion?
ducation?
policies and procedures, including their governing
In IDEA, a free appropriate public education
legislation.
(FAPE) means special education and related services
★ that:
B—K
B—Keey DDef
ef initions
efinitions
• are provided to children and youth with
disabilities at public expense, under public
As we’ve said, IDEA requires that a free
supervision and direction, and without charge;
appropriate public education—which includes
special education and related services—be made • meet the standards of the State educational
available to each eligible child with a disability. agency (SEA), including the requirements of
This is a sweeping mandate that contains four key IDEA;
terms frequently used in IDEA:
• include preschool, elementary school, or
• a free appropriate public education, or FAPE; secondary school education in the State
involved; and
• child with a disability;
• are provided in keeping with an individualized
• special education; and
education program (IEP) that meets the
• related services. requirements of IDEA.4

Understanding what each of these terms means Those are practically IDEA’s exact words. Note
is a crucial part of implementing IDEA. For parents, that they make direct reference to what FAPE itself
these terms will be central in determining their stands for, word by word:
child’s eligibility for special education and related
• Free—”without charge” to parents or children;
services and what those services may include.
Accordingly, the • Appropriate—”in keeping with an individualized
remainder of the Q&A education program”
will focus on how
IDEA defines these
four terms.
§ SSpe
pe cial SSymbols
pecial ymbols in This IIssue
ssue §
As you read the explanations about IDEA, you
will find footnotes referencing specific sections of
the Federal regulations, such as §300.1. You can
1 U.S. Department of Education. (2009). 28th use these references to locate the precise sections
annual report to Congress on the implementation of in the Federal regulations that address the issue
the Individuals with Disabilities Education Act, being discussed. For example, in the discussion of
2006 [Vol. 2]. Washington, DC: Author.
IDEA’s purposes, you are given the reference 34
(Available online at http://www.ed.gov/about/
reports/annual/osep/2006/parts-b-c/index.html) CFR §300.1. (The § symbol means “section.”)
This reference tells you that, to read the exact
2
Public Law 108-446, Section 601(c)(1) and (2). words the regulations use to define IDEA’s
3 34 CFR §300.1—Purposes. purposes, you would look under Section 300.1 of
4
the Code of Federal Regulations (CFR) for Title 34
34 CFR §300.17—Free appropriate public
(sometimes referred to as 34 CFR).
education.

NICHCY: www.nichcy.org 3 1: Purposes, Definitions, Evaluation, Eligibility


• Public—”at public expense, 2. HHoow does IDEA def ine “child
define
under public supervision and with a disabilit
disabilityy ”?
direction”
“Child with a disability” is
• Education—”preschool, definitely one of the most
elementary.. .or secondary important terms in IDEA, because
school...” it shapes whether or not a specific
child is eligible for special
We’d like to elaborate for a moment
education and related services
on “appropriate,” because it is a highly
(which we’ll define in a moment).
influential term in IDEA. You’ll see it a lot,
Every time IDEA uses the term “child
used in different contexts but generally mean-
with a disability,” it means the same
ing the same thing. It means whatever’s suitable,
thing—the definition we’re about to provide. That
fitting, or right for a specific child, given that child’s
definition is long, so we’ll break it down, factor by
specific needs, specific strengths, established goals,
factor.
and the supports and services that will be provided
to help the child reach those goals.
Fac
actt or A: EEvvaluation
aluation
Thus, an “appropriate” education differs for
each child with a disability because it is based on IDEA’s definition of a “child with a disability”
his or her individual needs. IDEA specifies in some begins like this:
detail how school systems and parents are to plan (a) General. (1) Child with a disability means
the education that each child receives so that it is a child evaluated in accordance with
appropriate—meaning, responsive to the child’s §§300.304 through 300.311...7
needs.5 The plan that parents and school staff
develop is documented in writing through the Thus, in order for your child to be considered a
individualized education program (IEP), which the “child with a disability” in IDEA, he or she must
school is then responsible for carrying out.6 first receive a full and individual evaluation as
described within IDEA. (To learn more about what
the evaluation process involves, you may wish to
read NICHCY’s Your Child’s Evaluation, available
online at: www.nichcy.org/InformationResources/
Documents/NICHCY%20PUBS/bp1.pdf)
5 Drawn from page 1-51 of Küpper, L. (2007,
July). The top 10 basics of special education
(Module 1). Building the legacy: IDEA 2004 Fac
actt or B: The DDisabilities
isabilities
training curriculum. Washington, DC: National
Dissemination Center for Children with IDEA’s definition goes on to say that, through
Disabilities. Available online at: www.nichcy.org/ the evaluation we just mentioned, the child is found
Laws/IDEA/Documents/Training_Curriculum/ to have one or more of the following disabilities:
1B-Slides13-end.pdf
• mental retardation;
6 IDEA’s requirements for an IEP are discussed in
detail in another Q&A in this series , available • a hearing impairment, including deafness;
online at: www.nichcy.org/Laws/IDEA/
Documents/idea3.aspx) • a speech or language impairment;
7
34 CFR §300.8(a)(1)—Child with a disability: • a visual impairment, including blindness;
General.

NICHCY: 1.800.695.0285 4 Questions and Answers about IDEA


• a serious emotional disturbance (hereafter Specific learning disability is an excellent example.
referred to as emotional disturbance); States differ in how they define this term; in one
State a child may be considered to have a specific
• an orthopedic impairment;
learning disability, while in another State the child
• autism; will not.10

• traumatic brain injury; Thus, while the term “child with a disability” is
defined within IDEA 2004, the term also has an
• other health impairment; operational definition at the State level. So what the
• a specific learning disability; term really means, and whether or not a group of
people decide that a child has a particular disability,
• deaf-blindness; or is a matter of how IDEA’s definition intersects with
State definitions and policies.
• multiple disabilities.8

Each of these disabilities is also individually Fac


actt or D: “B
“Byy RReason
eason Thereof
eof””
hereof
defined in the regulations for IDEA. These are
important to know, because they add substantive Another influential part of IDEA’s definition of a
detail to the meaning of “child with a disability.” If “child with a disability” is found in how the general
you would like to know the precise definition of any definition ends, which is:
of these disability categories, please refer to ...and who, by reason thereof, needs special
NICHCY’s publication Categories of Disability under education and related services.11
IDEA, available online at: http://www.nichcy.org/
Disabilities/Categories/Pages/Default.aspx It’s the “by reason thereof” that sometimes
causes confusion and even gets forgotten in IDEA’s
Fac
actt or C: SSta
ta
tatt e DDef
ef initions
efinitions definition of “child with a disability.” This short
phrase adds another level to what it means for a
It’s also important to understand that State child with a disability to be eligible for special
definitions of individual disabilities can play a education and related services under IDEA 2004. It’s
critical role in whether or not a child meets the not enough for a child to be evaluated in keeping
definition of a “child with a disability.” As long as with IDEA’s requirements and found to have one of
State definitions are consistent with IDEA’s, States the disabilities listed in IDEA. “By reason thereof” is
may establish additional criteria in the disability also a condition to be met—in other words, because
areas and frequently do, setting policies that explain of the disability, the child needs special education
each of the 13 disabilities in their own terms.9 and related services. Many disabilities don’t result in

8 34 CFR §300.8(a)(1)—Child with a disability: General.


9
Adapted from pages 1-26 through 1-28 of Küpper, L. (2007, July). The top 10 basics of
special education (Module 1). Building the legacy: IDEA 2004 training curriculum.
Washington, DC: National Dissemination Center for Children with Disabilities.
Available online at: www.nichcy.org/Laws/IDEA/Documents/Training_Curriculum/1A-
Slides1-12.pdf
10 Ibid.
11
34 CFR §300.8(a)(1)—Child with a disability: General.

NICHCY: www.nichcy.org 5 1: Purposes, Definitions, Evaluation, Eligibility


the need for special education. If a child is found to can’t force any of its LEAs to do so. If the State does
only need a related service and not special not adopt the term, its LEAs may not independently
education, then he or she does not meet the decide they will use the term. It’s only an option for
definition of a “child with a disability.”12 LEAs if the State adopts the term—and then, the
LEA must use the State’s definition, including the
Fac
actt or E: UUse
se of “D
“Deevelopmen tal DDela
elopmental ela
elayys” age range specified by the State.16

IDEA allows States, at their As you can see, the definition of “child with
discretion, to adopt a definition of a disability” is intricate. Several factors
“child with a disability” that must be met before a child can be
includes children aged 3 through 9 considered to meet IDEA’s
(or any subset of that age range) definition—and you must also
who are experiencing “develop- consider the specifics of your
mental delays” and “who, by State’s policies and definitions.
reason thereof,” need special
education and related services.13 3. Wha
hatt is special eeduca
special duca tion?
ducation?
This provision allows States to find three Special education is defined as instruction that is
through nine-year-olds (or any subset of that age specially designed, at no cost to you as parents, to
range) with developmental delays to be eligible meet your child’s unique needs.17 Specially designed
children with a disability and to provide them with instruction means adapting the content, methodol-
special education and related services without ogy, or delivery of instruction:
having to classify them under a specific disability
category. This provision of law is intended to • to address the unique needs of your child that
address the often difficult process of determining result from his or her disability, and
the precise nature of a child’s disability in the early
years of his or her development. 14
12 34 CFR §300.8(a)(2)—Child with a disability:
According to IDEA, as measured by General.
appropriate diagnostic instruments and procedures,
Additional Note: If the related service the child
“developmental delays” must be in one or more of needs is defined by the State as special education
the following areas: (and not as a related service, as within IDEA),
then the child would be considered as a “child
• physical development; with a disability” after all.
• cognitive development; 13 34 CFR §300.8(b)—Child with a disability:
Children aged three through nine experiencing
• communication development; developmental delays.
• social or emotional development; or 14 Same as footnote 9. Adapted from page 1-28.
• adaptive development.15 15
34 CFR §300.8(b)—Child with a disability:
Children aged three through nine experiencing
States do not have to adopt use of the term developmental delays.
“developmental delay” in their definitions of “child 16
34 CFR §300.111(b)—Child find: Use of the
with a disability.” It’s an option for States. Even if
term developmental delay.
the State adopts the term (which includes defining
the age range of children to which it applies), it 17
34 CFR §300.39(a)—Special education: General.

NICHCY: 1.800.695.0285 6 Questions and Answers about IDEA


• to ensure your child’s access to the educated with children who do
general education curriculum so not have disabilities, to the
that he or she can meet the maximum extent appropriate.
educational standards that IDEA’s LRE requirements
apply to all children within apply to students in public
the jurisdiction of the school or private institutions or
system.18 other care facilities.25 Each
State must further ensure
Special education can
that special classes, separate
include instruction conducted
schooling, or other removal of
in the classroom, in the home, in hospitals and
children with disabilities from the regular educa-
institutions, and in other settings. It can include
tional environment occurs only if the nature or
instruction in physical education as well. Speech-
severity of the disability is such that education in
language pathology services or any other related
regular classes with the use of supplementary aids
service can be considered special education rather
and services cannot be achieved satisfactorily.26
than a related service under State standards if the
instruction is specially designed, at no cost to the
parents, to meet the unique needs of a child with a
5 Wha
hatt ar
aree rrela
ela
elatte d ser vic
servic es?
vices?
disability. Travel training and vocational education Related services are defined in IDEA’s
also can be considered special education if these regulations as transportation and such
standards are met.19 developmental, corrective, and other supportive
services as are required to assist a child with a
4. Wher
heree is spe cial eeduca
special duca tion instr
ducation uc
instruc tion pro
uction vide
provide d?
vided? disability to benefit from special education.27
Related services may include:
As listed above, special education instruction
can be provided in a number of settings, such as:
in the classroom, in the home, in hospitals and
institutions, and in other settings.20 School systems
18 34 CFR §300.39(b)(3)—Special education:
Individual special education terms defined:
must ensure that a continuum of alternative
Specially designed instruction.
placements is available to meet the needs of chil-
dren with disabilities.21 This continuum must 19 34 CFR §300.39—Special education.
include the placements just mentioned (instruction 20
Ibid.
in regular classes, special classes, special schools,
home instruction, and instruction in hospitals and
21 34 CFR §300.115—Continuum of alternative
placements.
institutions) and make provision for supplementary
services (such as resource room or itinerant 22 34 CFR §300.115(b)(2)—Continuum of
instruction) to be provided in conjunction with alternative placements.
regular class placement.22 Unless a child’s IEP 23
34 CFR §300.116(c)—Placements.
requires some other arrangement, the child must be
educated in the school he or she would attend if he
24 34 CFR §§300.114-300.120—Least Restrictive
Environment (LRE).
or she did not have a disability.23
25
34 CFR §300.114(a)(2)(i)—LRE requirements.
Special education instruction must be provided
to students with disabilities in what is known as the 26 34 CFR §300.114(a)(2)(ii)—LRE requirements.
least rrestr
estr
estrii cctiv
tiv
tivee environmen t , or L R EE.24 IDEA’s LRE
environmen 27
34 CFR §300.34—Related services.
provisions ensure that children with disabilities are

NICHCY: www.nichcy.org 7 1: Purposes, Definitions, Evaluation, Eligibility


• speech-language pathology and audiology are needed to maintain your child’s health and
services; safety, including breathing, nutrition, or operation
of other bodily functions, while your child is at
• interpreting services;
school or being transported to and from school.30
• psychological services; The public agency is also responsible for routinely
checking children’s hearing aids and the external
• physical therapy and occupational therapy; component of a surgically implanted device to
• recreation, including therapeutic recreation; make sure they are functioning properly.31

• early identification and assessment of For more details about related services,
disabilities in children; including how each individual service listed above is
defined, please visit NICHCY’s Web pages devoted
• counseling services, including rehabilitation to related services, beginning at:www.nichcy.org/
counseling; EducateChildren/IEP/Pages/RelatedServices.aspx

• orientation and mobility services;


Concluding Wor ds
ords
• medical services for diagnostic or evaluation
purposes only; IDEA is a very important law, especially in the
lives of children with disabilities and their families.
• school health services and school nurse services; To learn more, we invite you to read our other Q&As
on IDEA and visit NICHCY’s website, where still
• social work services in schools; and
more information on educating children with
• parent counseling and training.28 disabilities can be found, downloaded, and freely
shared with others.
The list of related services in IDEA is not
intended to be exhaustive, which means that other
developmental, corrective, or support services can be 28
Ibid.
provided as “related services” if they are required to
29
help a child benefit from special education. 34 CFR §300.34(b)—Related services: Exception.
However, related services may not include a medical 30 34 CFR §300.34(b)(2)(ii)—Related services:
device (such as a cochlear implant) that is surgically Exception.
implanted, optimizing how the device functions,
31
maintaining the device, or replacing it.29 The public 34 CFR §300.113—Routine checking of hearing
aids and external components of surgically
agency does remain responsible for appropriately implanted medical devices.
monitoring and maintaining medical devices that

Q&A about IDEA: Purposes and Key Definitions, April 2009


This publication is copyright free. Readers are encouraged to copy and share it, but please credit
NICHCY, the National Dissemination Center for Children with Disabilities.

We’d like to thank our Project Officer, Judy L. Shanley, Ph.D., at the Office of Special
Education Programs (OSEP) of the U.S. Department of Education, for her support of this
publication and of NICHCY itself. A special thanks goes out to the Office of Policy and
Planning, at OSEP, for their involvement and the fine-tooth-comb review to ensure this document’s consistency with
the requirements of IDEA 2004. NICHCY is made possible through Cooperative Agreement Number H326N030003
between OSEP and the Academy for Educational Development. The contents of this document do not necessarily
reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products,
or organizations imply endorsement by the U.S. Government.
NICHCY: 1.800.695.0285 8 Questions and Answers about IDEA

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