Sunteți pe pagina 1din 11

Pandemic Preparedness

and Response Bulletin


Issue 5, February 2017

1
Highlighting strategic priorities and policy-related initiatives on Pandemic Preparedness
and Response, the Share and Move ASSET Bulletin intends to be essential to a wide-ran-
ged target: competent institutional actors and public health authorities, decision-makers,
even on social networks.

INDEX

Editorial p4

Bridge column in this issue: Pandemic


Preparedness and Response p5

Pandemic Preparedness and Response p7

Emergency Preparedness and Response p9

Public Health Initiatives p 12

Social networks p 14

On the web p 16

From the ASSET world p 17

In a SnapShot! p 18

2 3
Editorial Bridge column in this issue: Pan- of viruses and which circumstances are most like-
demic & Emergency Prepared- ly to cause a pandemic, several emerging patho-
Tradition and innovation in the fifth ASSET Pandemic Pre- ness and Response gens had not previously been seen in humans at
paredness and Response Bulletin allsevere acute respiratory syndrome, for ex-
As stated in the last sentence of the Editorial, we ample.
What about the crisis participatory governance
propose here a bridge column including either
pandemic or emergency preparedness and re- More can be done to predict the next pandem-
sponse. The two contributions are recently ap- ic threat, but when new outbreaks do occur,
Combining multidisciplinary expertise, the European cooperative program ASSET aims to address effectively
peared: the first is a perspective by The Lancet there remains a need for a better international
both scientific and societal challenges raised by public health emergencies of international concern, like pan-
demics. To foster public engagement and a sustained two-way dialogue between science and civil society, in on pandemics and the second comment comes response. Promisingly, WHO has launched the
2001 the European Commission defined the appropriate framework sustained by six Science in Society (SiS) from The Econo- R&D Blueprint, which aims for rapid activation
pillars: engagement, gender equity, science education, open access, ethics and governance. mist dealing with of research and development activities during ep-
the anticipation of idemics. To be maximally effective, this strategy
epidemics. will need to work within low resource settings,
The editorial line of the ASSET Pandemic Preparedness and Response Bulletin, Share and move, has been set which will require substantial investment and
accordingly, focusing each issue on one of the six ASSET-specific topics: governance of pandemics and epidem-
ics; unsolved scientific questions; intentionally caused outbreaks; crisis participatory governance; ethical, legal,
The Editorial in the an understanding of the culture of the setting in
and societal implications; gender pattern - vulnerability and intentionally caused outbreaks. Volume 388, Issue which it will be implemented. [] the first line
10063, 17 Decem- of defence against emerging viruses is effective
ber 20166 January surveillance. But the international community
2017, of The Lancet must be prepared to take rapid and effective ac-
After the second Share and move focused on governance of pandemics and epidemics, the third Bulletin con-
centrated on unsolved scientific questions and the fourth issue associated to intentionally caused outbreaks, the is entitled Predict- tion if surveillance is to have valuethe question
present number deals with crisis participatory governance. ing pandemics. It takes off by the conclusion of remains, have the recent lessons of the Ebola and
aninvestigation into WHOs response to the 2009 Zika viruses been learned?
H1N1 pandemic that is: the world is ill prepared
Participatory governance consists of state-sanctioned institutional processes that allow citizens to exercise voice to respond to a severe influenza pandemic or to A yellow fever epidemic: a new global health
and vote, which then results in the implementation of public policies that produce some sort of changes in any similarly global, sustained and threatening emergency? This is the main concern expressed
citizens lives. In the ASSET frame, this concept has been exploited throughout different steps: firstly, models public-health emergency. Then, the Ebola and in the viewpoint published on JAMA in June
and experiences of participatory governance in crisis management were collected and analysed at various lev- the Zika virus epidemics highlighted such this 2016. It ends with the conclusion that the UNs
els, from local and national to international; then, a great work of Citizen consultation has been carried out in unpreparedness showing that, unfortunately, les- high-level panel on the global health crises called
eight different countries. The conclusions and discussion of results will be presented in the forthcoming Policy sons still need to be learned. The article explains Ebola a preventable tragedy, and if the ongoing
Report and associated Policy Seminar that will be held at the European Parliament in April 2016. Thus, the fifth that most new epidemic infections are zoonotic, panepidemics of Zika-caused neurological syn-
Share and move issue highlights participatory governance pattern in the field of preparedness and response, as but not all are transmissible between humans and dromes or yellow fever eventually lead to cata-
well as how relevant information is shared on the web and by the most used social media.
reports results coming out from astudypublished strophic consequences, then where the WHO
inEmerging Infectious Diseaseson Dec 7. does not successfully reform, the next major pan-
Furthermore, beside the participatory governance that in the ASSET Strategic Plan is associated to science ed-
ucation, other concepts are here included such as Internet of things, big data and digital epidemiology. These demic will cause thousands of otherwise prevent-
Mark Woolhouse and colleagues used virus ge- able deaths. This may be the last opportunity to
terms, in fact, are strictly linked to the mechanism of data availability according a free sharing by people on the
web. Then, a logical connection that follows is about public participation in light of a perspective leading to the nome sequencing and mathematical modelling ensure that the WHO is empowered to build an
continuously learning health system, as Harlan Krumholz theorised in his contribution on JAMA 2016. to identify 37 viruses that have already shown effective emergency preparedness and response
some ability to spread between people but have capacity with the necessary political leadership.
not yet been the cause of an epidemic. Of greatest Another failure to perform may necessitate con-
In this way, we hope readers would appreciate the thematic links among different strategic lines which have concern, the researchers suggest, are Middle East sideration of alternate UN institutional response
been adopted in the ASSET project overall, as well as in its plan and in the issues of the Pandemic Preparedness respiratory syndrome coronavirus (MERS-CoV), mechanisms.
and Response Bulletin, Share and move which have been either published or planned. The fifth edition intro- Bundibugyo Ebola and Sudan Ebola viruses, and
duces even a more interesting aspect: beside exploiting a specific matter, as it has been done since the second several mosquito-borne viruses. Woolhouse and Putting shots in the locker, How to anticipate
issue, the present Bulletin acts as a bridge between the unsolved scientific questions and open access to scien- epidemics is an article appeared in the Science
colleagues shortlist of viruses to watch has also
tific outcome which were covered in the third publishing and ethical reflection that is programmed to be dealt and technology section of The Economist print
in the next Share and move.
included chikungunya, Zika, and Ebola in recent
years, showing the potential of this approach. edition in September 2016. It does start with
Lastly, as a bridge on the bridge, we start with a special column, that has been not run before: a section in- Although identification of viruses with human an admonishment and then a question: FORE-
cluding either pandemic or emergency (even called panepidemic) preparedness and response. transmissibility adds to knowledge of which types WARNED, the proverb has it, is forearmed. But

4 5
what happens when there is no warning? several possible vaccines for each disease, putting Pandemic Preparedness and goals, such as measles eradication from Europe.
these through animal trials, and then carrying Rumours form rapidly during the outbreak of a
The outstanding case is the outbreak of Ebo- out small safety trials on human beings. Those Response
crisis. Despite efforts by the authorities to deliver
la haemorrhagic fever that began in Guinea in candidates deemed safe will be stored for a future
How do participatory governance correct information, a social reality has arguably
December 2013 and, spreading rapidly to Libe- outbreak. This approach maximises the saving of
experiences characterize in crisis already been formed, which rational information
ria and Sierra Leone, raged on for over a year, time while minimising cost. If a disease for which
is unable to alter. However, whereas rumours are
ending with around 29,000 people infected and there are candidate vaccines does become threat- management? an answer to a call for information from citizens,
more than 11,000 of them dead. Even if the world ening, larger and more expensive human-efficacy
From the ASSET Strategic Plan: Participatory Crisis Participatory Governance practices might
trials can be organised quickly in response. If not, answer this call with better information and alter
Governance and Science Education In epidem-
no money is wasted doing so. the spread of rumours.
ics and pandemics rumours and parallel informal
The main idea is about organising efficacy trials Broadly speaking, reasons identified in the AS-
quickly though so that CEPI may even invest in SET literature review to explain that distrust sit-
its own surge capacity for the manufacturing of uation are: overall lack of public (citizens and
vaccines, rather than forcing drug companies to stakeholders) involvement in pandemic pre-
divert resources from existing vaccine production paredness and response-planning and in risk
(with potential consequences for public health). communication; top-down communication
That is full of thorny issues, not least legal risks systems by experts and specialists and absence
responded to that crisis, it missed the thing that because of an amount of mistakes and thus law of two-way communication systems; not taking
would most quickly have stopped the epidemic: suits. into account the impact of social media and cel-
a vaccine. Such a vaccine was created eventually, lular phones on the spread of rumours and paral-
but by the time it was ready, the outbreak was all In CEPI it is argued that paying to prepare for lel information systems; applying best-practice
but over. Had it been available from the begin- future epidemics is like buying a form of global information systems are challenging effective risk instead of incorporating local conditions in pan-
ning, things could have been different. health insurance but, differently, it is not a pre- communication by health workers and authori- demic planning and response; lack of flexibility
mium to be paid for ever. The list of targets will ties, as it happened in the latest Ebola epidemic in pandemic planning and response; underes-
Next time, though, they might be, for on August grow as time goes by but it is not infinite. Should timation of citizens need and capacity to see and
in West Africa and 2015 H1N1 outbreak in In-
31st a new organisation came into being: CEPI, the world wish to address the top 20 threats over choose for themselves.
dia. Research studies have shown that rumours
the Coalition for Epidemic Preparedness Inno- the course of the next decade the total cost would
perpetually surface in situations that entail pow- The strategy that is outlined works for develop-
vations, was founded in London with the purpose be estimated $1 billion-2 billion. The next stage is
er asymmetries. Such situations often arise when ing capacity and increasing health-care workers
to forearm the world against future outbreaks of to start raising that money and the organisation is
knowledge is contested or is left to a small group influenza pandemic awareness and conducting
disease, without foreknowledge of what those striving to succeed, that is making the threat from
of highly technical experts to unravel. Individu- information campaigns in the population, espe-
outbreaks will be. Part of the inspiration for CE-
epidemic viruses diminish year by year thereafter. als or groups left outside such confined knowl- cially among high-risk groups.
PIs creation was how close the project to deliver
edge-hubs often produce their own version of the The ASSET study of the Crisis Participatory
an Ebola vaccine in time came to success.
reality, in effect creating rumours. Governance Nowadays one of the major chal-
CEPIs plan is to build up a bank of candidate vac- In the case of the recent Ebola epidemic, many lenges confronting policy-makers and health
cines for as many as possible of the viral diseases rumours have flourished. Among the most pop- practitioners in confronting with epidemic and
that lurk menacingly on the edges of human soci- ular is that Western health workers spread the pandemics threats calls for more inclusion of citi-
ety, but in which there is insufficient commercial disease, based on American imperialistic visions.
zens and civil society in risk communication and
This problem has manifested itself as locals hid-
interest for pharmaceutical firms to do the de- ing sick or dead people. Such rumours constitute organized response, in such a way that rumour
velopment work. These include Lassa fever, Mar- parallel information systems which are linked to will not be the main information channel.
burg fever, MERS, SARS, Nipah and Rift Valley the application of top-down communication sys- Pioneering such citizen engagement is then iden-
fever, but not dengue or influenza. Those two are tems and absence of genuine two-way dialogue. tified as Crisis Participatory Governance. It starts
already well served by drug-company research- The loss of confidence in international and na- with effective risk communication that is entirely
ersas is Zika virus, for which a vaccine may be tional health authorities has had a strong impact contingent on successfully identifying the cultur-
ready for testing in the field next year. on vaccination too, affecting not only flu, but also al dimensions and priorities of targeted groups.
other infectious diseases. Since 2009 rumours and
false myths about risks of vaccines have changed In doing so, it is critical that the identification is a
The aim is not to guess exactly which illness will
attitudes of many families, contributing to re- result of an upstream and downstream, two-way
become epidemic next, as this is a difficult thing
duced immunization rate in some areas, leaving communication process.
to do, but CEPI will work through the list in a sys-
tematic way. Scientifically, this means identifying clusters of children unprotected, i.e. against po- Literature shows research in participatory gover-
lio, and preventing the achievement of important nance at local, national and international levels
6 7
for crisis in general, and also relating to epidem- one thing, the first two groups to be involved in promoting the health and preparedness of the proach used to design an epidemiological inves-
ics and pandemics. The study focused on exam- an outbreak are actually the victims themselves population, and when designing communication tigation in the face of lack of trust and outrage
ining aspects of governance at the local, national and the medical personnel who treat them. campaigns during a public health emergency. by the exposed population. An innovative ap-
and international levels for crisis in general, and How victims are connected to each other in social A step beyond Good governance is the backbone proach was followed, grounded in the insights of
relates it to infectious disease crisis such as epi- networks. Who they contact and who well they for equitable and sustained development in our Post-normal Science. A formal infrastructure was
demics and pandemics. Crisis participatory gov- are contagious. And whether they seek medical global community. Effective participation by all built to allow population engagement: the epide-
ernance is discussed in different contexts such as treatment,all affect how a disease has the oppor- people has come to be viewed as a necessary miological questions, the data gathering and the
the South Sudan Secession Crisis, the recent Ebo- tunity to spread.Then, whether medical personal requirement for promoting good governance. methodology were openly discussed with all in-
la epidemic, the 2009 H1N1 pandemic, and 2015 recognize the nature of the disease, what treat- Participatory governance means including citi- terested parties. So were the potential scenarios
H1N1 outbreak in India. ments they provide, whether they take precau- zens in decision making that has implications for resulting for the study and their implications in
The Crisis Participatory Governance concept has tions like wearing gloves or masks.And whether their wellbeing, and transparency in the decision terms of public health actions. All phases were
been dissected into four overlapping phases of they report the disease to public health authori- making and implementation processes. This is documented in the official journal of the Italian
Resilience and Sustainability, Pre-Crisis, Crisis, ties.All these things matter as well. particularly important during the time of crisis, Epidemiological Association (i.e. Epidemiolo-
and Post-Crisis. For each phase, both different as people become the centre of both providing gy and Prevention). Seven public events took
crisis participatory governance challenges and as- aid and receiving it. place in the first year of the study. Public engage-
sociated tools and models and experiences in the ment grew and a local Citizen Committee were
context of recent epidemics and pandemics have in charge. The conflicts were not resolved but
been addressed as well.
Emergency Preparedness and they were at least more clearly stated. After initial
Findings reveal the importance of flexibility in
Response scepticism, the epidemiological investigation re-
adapting participatory governance activities to Examples of participatory gover- ceived a broad consensus.
different epidemics and to the targeted communi- nance experiences in crisis man- Epidemiology is not neutral and many dynamics
ty. For example during the 2009 H1N1 pandem- underwent engagements efforts in the Manfredo-
agement
ic, standardized public communications, while nia project. The choice of adopting a participato-
factual and useful in some contexts, failed to In the present column four case studies are re- ry approach is both innovative and challenging.
adequately create understanding of lethality and In addition, individuals and the grassroots organ- ported in matter of participatory governance All participants accepted to be part of an extend-
spread in some areas. A lack of trust in authorities isations they create have had fundamental im- associated to relevant public health emergencies ed peer community where outcomes, methods,
led to rumours, hindering vaccination programs pacts on our long-term strategies forcombating and their related management. procedures, inputs, data, and results have been
and other health care initiatives. infectious diseases. As example in the field, it is collectively discussed. The process run can be de-
Manfredonia, Italy; 1976 An Italian study En- fined permanently under construction, result-
A good tool to use is definitively the model that noteworthy that in the 1980s and 1990s,the or-
vironmental epidemi- ing in a continuous learning.
can guide Crisis Participatory Governance with- ganisation Act Up reshaped the US governments
ology and population
in the four phases of epidemics and pandemics. approach to HIV funding,research, drug approv-
engagement: the Man-
al, and treatment through political protest. And
However, it is shown how the crucial factor to be fredonia environment Haiti, Nepal; 2010 After the earthquake that
put in action is the adaptation of plans to local these changes have resonated permanently struck down Nepal in
and health project re-
conditions through continuous feedback, engag- through the system as a whole. October 2010, cholera
ports an outstanding
ing the public on a day-to-day basis. Specifically on pandemic occurrence, Savoia et al. case of epidemiological appeared in Haiti for the
About people engagement This may seem like reported a study on BMC Public Health in 2012 that first time in recorded hi-
research associated to
explained how the strength of a societys response to story. Within the article
a world of huge organisations andinstitutions in public engagement. On
a public health emergency depends partly on meeting Nepalese origin of cho-
the needs of all segments of the population, especially the 26th of September 1976 an accident in a pet-
rochemical plant in Manfredonia (Province of lera epidemic in Haiti, it
those who are most vulnerable and subject to greatest
Foggia, Apulia Region, Southern Italy) resulted is reported that the cau-
adversity. Then, recognizing the public communica-
tion on H1N1 as a challenge, knowledge gaps in the in a release of several tons of arsenic compounds. sative agent was quickly
general population were studied, also in association A population of about 57,000 inhabitants was ex- identified by the Haitian National Public Health
with relevant social determinants. Level of education posed. The accident followed by two months that Laboratory and the United States Centers for Di-
and home ownership, reliable indicators of socioeco- of Seveso and both contributed to the Europe- sease Control and Prevention as Vibrio cholerae
nomic position (SEP), were definitively associated an Directive on major accident hazards. Several serogroup O1, serotype Ogawa, biotype El Tor.
with knowledge of H1N1. Policymakers and pub- other accidents occurred since that date and the Since then, >500 000 government-acknowledged
lic health practitioners should take these specif- plant was closed in 1994. cholera cases and >7000 deaths have occurred,
which individual people have no part to play.But ic factors into consideration when implement- the largest cholera epidemic in the world, with
in fact, individuals play many important roles.For ing educational and preventive interventions The quoted paper describes the scientific ap- the real death toll probably much higher.

8 9
Questions of origin have been widely debated Data from this study highlight the association Resilience: a key-word for participatory
with some attributing the onset of the epidemic between a higher perception of risk and time- governance
to climatic factors and others to human transmis- ly receipt of information with compliance with
sion. None of the evidence on origin supports cli- recommended behaviours, underlying the im-
matic factors. Instead, recent epidemiological and portance of releasing information to the public Resilience is one of the foundational elements es-
molecular-genetic evidence point to the United as quickly as possible during a crisis. This study sential to a comprehensive approach to homeland
Nations peacekeeping troops from Nepal as the also outlines the importance of coordinating risk security that is important to include in policy di-
source of cholera to Haiti, following their troop communication activities beyond the area of the rectives on national preparedness, given the com-
rotation in early October 2010. Such findings incident to assure public understanding of what plex nature of the matter and sharing with diverse
have important policy implications for shaping measures are recommended, which are not and stakeholders. The core of building national resil-
future international relief efforts. where. Additionally, the use of local television ience is about enabling and mobilizing commu-
news during a crisis revealed to be important nities. A conceptual framework for describing the
for timely dissemination of information and in- relationships between resilience, preparedness,
Charleston, West and risk reduction is shown in Figure 1. Starting
Virginia; 2014 In formation exposure across segments of the pop-
ulation differed according to populations back- from the interconnections presented in the figure,
the paper Public re- three types of recommendations can be identified.
sponse to the 2014 ground characteristics.
chemical spill in West
Virginia: knowledge, Flint, Michigan; 2016
opinions and be- In response to the water
haviours Savoia et al. contamination crisis in shape a shared understanding of the shared responsibility: it is necessary to work
explored relationship Flint, CDC recommend- with key stakeholder groups to develop and share models for resilienceillustra-
between social de- ed that all children aged tions of resilience in operational settingswithin the context of each group. The
purpose is to motivate stakeholders to learn from each other (as action of mutual
terminants and some less than six year got their
learning) and to do what they can to enhance resilience without waiting for external
factors characterizing lead levels checked by intervention;
residents knowledge April 1, 2016. Early detec- applying
across com-
about the contamination that occurred on Janu- tion in children is usually munity resil- organize a coherent and synergistic campaign to strengthen and sustain national re-
ary 9th 2014, when a faulty storage tank leaked critical, but getting these many children tested in ience activi- silience: policies, programs, and investments should be aligned in order to motivate
10,000 gal of an industrial coal processing liquid such a short time represented a huge challenge. ties overall and operationalize resilience as well as to stimulate similar actions at national level;
into the Elk River in West Virginia (WV), pollut- To help get people tested quickly, the Genesee arrange for effective execution;
ing the drinking water of the nine counties collec- County Health Department has set up several
tively known as the Kanawha Valley. structure the knowledge and talent base for resilience: a research program should

Recommendations
sites throughout the city where people could go
be built with the aim of perform the intellectual underpinnings for resilience train-
to get their blood lead levels checked. ing and education programs to be delivered throughout the country level.
findings from this study show that, during the
2014 West Virginia water crisis, information During spring 2016, while appointees from the periodic update of information should be linked explicitly to resilience outcomes;
about water contamination spread quickly, as Genesee County Health Department toured the
73% of survey respondents across the state and site at Carriage Town Ministries and blood testing to enhance develop public awareness: a comprehensive and coherent suite of communications
was constantly supported, a broad engagement of individual strategies should be implemented in support of a national campaign to increase
89% within the affected counties reported they and societal public awareness and to build societal resilience;
heard about the incident the same day it occurred. public health concern was observed going on the resilience
Prompt information was released mostly, people social networks through #FlintWaterCrisis. motivate and enable action: proven incentive and award programs should be adapt-
understood both what happened and how to behave ed to facilitate individual and community engagement for action.
in order to prevent exposure to the contaminant. Most resilient community initiatives should be developed to enable community resilience
people received the information from local television by leveraging existing assets and programs;
news (73%); social media users had 120% increase
targeting all national programs related to infrastructure or capacity building should be re-
odds of knowing about the recommended behaviours. infrastruc-
The majority of respondents living in affected coun- viewed and aligned to make resilience initiatives succeed as well as developing
ture and
ties (70%) followed the recommended behaviours and environment synchronized strategic plans for improvement of operational resilience should be
it was shown that people who had a favourable opin- planning supported;
ion of the source of information demonstrated better a community-based resilient critical infrastructure and assessment methodology
knowledge of recommended behaviours. and toolkit have to be activated.

10 11
Ten experiences of resilience ed paring down complex concepts and the- 4. 6th Annual Conference of the International Indonesia; APEC-TATF team; APEC-TATF Con-
around the world ories into simple rules that are continually Society for Integrated Disaster Risk Manage- sultant; representative of Scanex Russia;
introduced and reinforced to the companys ment, TIFAC-IDRiM 2015; New Delhi, Octo- APEC Climate Center (APCC), and from World
In dealing with crisis participatory governance leadership. After years of effort, employees ber 28-30, 2015 Technology Information, Bank Indonesia. The 5th EPWG Meeting fol-
resilience has been highlighted to be the crucial from the well head to the corporate board- Forecasting and Assessment Council (TIFAC) lowed the APEC Workshop on Applying Geo-
element. Thus, we propose here a global shot of room are aligned and aware of everyones is an autonomous organisation set up in 1988 spatial Hazard and Risk Information led by
ten practices on resilience all over the world: it roles when an incident occurs. In short, be- under the Department of Science & Technol- the United States on 30 June 1 July, in Med-
is about scientific papers, operational reports, cause each person can count on the others, ogy, Government of India to look ahead in an, Indonesia.
guidelines or helpful materials (they have been the company quickly adapts and overcomes technologies, assess the technology trajec-
7. Australian Strategy for Disaster Resilience:
tories, and support technology innovation by
building nations resilience to disasters and
network actions in select technology areas
implementation review The starting consid-
of national importance. TIFAC has worked on
eration is that each year, Australian com-
Technology Vision 2035, a nationwide exer-
munities face devastating losses caused by
cise that identifies a range of technologies
disasters. Bushfires, floods, storms, other
to address the prerogatives that an Indian
hazards and their associated consequences
must enjoy as citizens of a developed econ-
have significant impacts on communities,
omy by 2035. It also identifies 10 grand chal-
the economy, infrastructure and the environ-
5 lenges the country must confront to develop
ment. Then, over the past decade, govern-
1 technological muscles and move up in all so-
3 10 ments have collaborated on reforming and
cio-economical indices. The vision would be
4 further strengthening disaster management
presented as a document backed-up by 12
approaches.
technological roadmaps.
6 8. Wellington Region Emergency Management
5. ASPR Strategic Plan 2014 The Department
and its second edition. The basic concept is
of Health and Human Services (HHS) Office
7 as follows: resilient communities are well
2 of the Assistant Secretary for Preparedness
9 prepared and have high levels of social capi-
and Response (ASPR) is a leader in preparing
8 tal to address the challenges of an emergency
the nation and its communities to respond
event. The purpose of this Community Resil-
to and recover from public health and med-
ience Strategy is to define the philosophy and
ical disasters and emergencies. The 2006
numerated in the map since the more recent ini- significant issues, adding to its competitive- framework for community engagement; to
Pandemic and All-Hazards Preparedness Act
tiatives). ness. As a reader, you will understand that develop a strategic set of objectives to enhance
(PAHPA), reaffirmed by the 2013 Pandemic
1. Designing and implementing an interdepen- the results of implementing this new cul- resilience (build capacity, increase connected-
and All-Hazards Preparedness Reauthoriza-
dent resilience culture Once an emergency ture come down to a single metric: speed. ness and foster cooperation); and outline the
tion Act (PAHPRA), established the ASPR as
occurs, companies find themselves compet- Responses become faster, decisions faster, guiding principles and tools that enable to op-
the principal adviser to the HHS Secretary
ing for diminishing resources. Companies communication and the transfer of knowl- erationalise the abstract concept of resilience.
responsible for providing integrated policy
mired in confusion and debate often fails to edge faster. Emergencies are dynamic and coordination and strategic direction with re- 9. Australian community engagement frame-
obtain the resources necessary for a speedy ever-changing. Information quickly becomes spect to all matters related to public health, work The declared aim is to facilitate the
recovery and fail to meet the expectations stale and outdated. Installing this culture cre- medical preparedness, and deployment of development of approaches that foster com-
of their various interested parties. Unfortu- ates a more nimble company which reacts in the federal response for public health emer- munity involvement and participation in
nately, it is during these emergencies that a manner that allows for extra time, so all the gencies and incidents. achieving the goal of community safety. Ad-
the firm is judged. Unfavourable evaluations unplanned delays, pitfalls and breakdowns ditionally, their vision is for resilient Western
6. EPWG Strategic Plan 2013~2016 The 5th
of a company by customers, the government can occur with little to no meaningful impact. Australian communities that work together
APEC Emergency Preparedness Working
and/or the general public result in lost future 2. African Drought Conference 2016 Drought to build capacity and capability to prevent,
Group Meeting EPWG was held in Medan,
revenue through contracts that are either not Risk Management and Enhancing Resilience prepare for, respond to and recover from
Indonesia, on 2-3 July, 2013. Co-Chairs were
renewed or cancelled, as well as disqualifica- in Africa Country Club and Resort, Windhoek, emergencies.
Ph.D. Li, Wei-Sen (Chinese Taipei) and Dr.
tion from tenders and lost bids. This paper Namibia August, 15-19 2016 Nguyen Huu Phuc (Viet Nam). The two days 10. Collaborative emergency management: bet-
discusses how an oil field services company 3. 2016 National Hurricane Conference Orlan- meeting was attended by 15 of the 21 APEC ter community organising, better public pre-
implemented an interdependent resilience do March 21-24, 2016 & Inaugural Security member economies. Members welcomed paredness and response Community coordi-
culture. Development of this culture includ- Summit March 25, 2016 invited participants from: Ministry of Health nation requires communication and planning
of precautions to take when faced with a
12 13
severe threat of disaster. The unique case of quirements for healthcare providers participating Social networks es for using Twitter in
the four Florida hurricanes of 2004Char- in Medicare and Medicaid, increase patient safety health research that
ley, Frances, Ivan, and Jeanneis used here during emergencies, and establish a more coor- A relevant article anticipated on constitute a new tax-
to assess community responses to repeated dinated response to natural and human-caused Health and Social Media: Perfect onomy were content
threats of hurricanes. The paper examines disasters. The US Department of Health and Hu- Storm of Information analysis (56%; n=77),
how effectiveness in coordinating communi- man Services Office of the Assistant Secretary surveillance (26%;
for Preparedness and Response (ASPR) worked The use of Internet in the health domain is be- n=36), engagement
ty disaster response efforts affects future pub-
closely with CMS in the development of the rule coming a major worldwide trend. Millions of citi- (14%; n=19), recruit-
lic preparedness. The findings suggest that
that was published on 16th of September 2016 and zens are searching online health information and ment (7%; n=9), in-
pre-season planning, open communication
is effective from the 15th of November 2016. publish content about their health status. Patients tervention (7%; n=9),
between emergency managers and elected
officials, and the use of technology all had a This rule applies to 17 provider and supplier types and network analysis
significant impact on community responses. as a condition of participation for CMS. The pro- (4%; n=5). These stud-
The repeated threat scenario indicates that viders/suppliers are required to meet four core ies collectively anal-
emergency managers must work vigilantly to elements (with specific requirements adjusted ysed more than 5 billion tweets primarily by using
keep residents informed of the seriousness of based on the individual characteristics of each the Twitter application program interface. Most
a situation. The study describes how emer- provider and supplier): studies were published recently (33% in 2015). A
gency managers in Florida countered public 1. Emergency planDevelop an emergency new taxonomy was identified to describe Twitter
complacency during four hurricanes in six plan based on a risk assessment and using an use in health research with 6 categories. Given
weeks. The strategies identified as useful by all-hazards approach, which will provide that Twitter-based health research is a growing
public managers in the context of hurricanes an integrated system for emergency planning field funded by several organisations, public health
are engaging with other patients in online com- (23%; n=31) and infectious disease (20%; n=28)
are applicable to other natural and man-made that focuses on capacities and capabilities. munities using different types of social media. were the research fields most commonly repre-
disasters. 2. Policies and proceduresDevelop and im- The integration of technologies is making bound- sented in the included studies. Then, future work
Public Health Initiatives plement policies and procedures based on the aries blurrier between mobile health, social me- should develop standardized reporting guidelines
emergency plan and risk assessment that are dia, wearable, games, and big data. This paper for health researchers who use Twitter and poli-
A step forward on vaccination reviewed and updated at least annually. For provides an overview of the major research chal- cies that address privacy and ethical concerns in
policy in Italy hospitals, Critical Access Hospitals (CAHs), lenges with the area of health social media which social media research.
and Long-Term Care (LTC) facilities, the pol- are demonstrated to have a powerful influence on
On 19 January 2017, the Italian State-Regions icies and procedures must address the provi- The Facebook page of Public
health decisions. However, complex multidisci-
Conference approved also the new National Vac- sion of subsistence needs, such as food, water health emergency (PHE.gov) up-
plinary research is needed to understand how to
cination Prevention Plan 2017-2019 (PNPV), and medical supplies, for staff and residents, dates on Zika spreading
better address the use, and above all the analysis,
that is encompassed among the Essential Health- whether they evacuate or shelter in place. of information circulating on social networks in
care Levels. The newly offered vaccination supply Public HealthEmergency.govis a web portal held
3. Communication planDevelop and main- favour of public health. The prominent conclusion
represents a valid policy instrument in order to by the US Department of Health and Human
tain an emergency preparedness communi- is that: a bigger understanding of social media will
reduce iniquity in the country and to improve Services and its cross-governmental partners
cation plan that complies with federal, state give health professionals and authorities new tools
health status of the population. to serve as a single
and local laws. Patient care must be coordi- to help decision-making at global, national, local,
nated within the facility, across healthcare and corporate level. point of entry for ac-
The key aspect of this National Plan is a reference
providers, and with state and local public cess to public health
calendar that has been shared with Regions both
health departments and emergency manage- A systematic review by Lauren risk, and situational
from the technical and the political point of view
ment systems to protect patient health and awareness informa-
and aims at providing all citizens with vaccina- Sinnenberg in January 2017: tion. Declared disas-
tion benefits, guaranteeing equal access to high safety in the event of a disaster. Twitter as a Tool for Health Re- ters and emergencies
quality vaccines which are available over the time. 4. Training and testing programDevelop search are some of the con-
and maintain training and testing programs, tents populating the
CMS Emergency Preparedness including initial training in policies and pro- A literature search was run in PubMed, Embase, US Public Health
Rule: Resources at Your Fingertips cedures. Facility staff will have to demon- Web of Science, Google Scholar, and CINAHL Emergency website.
The US Centers for Medicare & Medicaid Ser- strate knowledge of emergency procedures through September 2015 searching for peer-re- Beside the pages
vices (CMS) issued the Emergency Preparedness and provide training at least annually. Facil- viewed original research studies that primarily dedicated to disas-
Requirements for Medicare and Medicaid Par- ities must conduct drills and exercises to test used Twitter for health research. Of 1110 unique ter response and to
ticipating Providers and Suppliers Final Rule to the emergency plan or participate in an actu- health-related articles mentioning Twitter, 137 agents, diseases, and
establish consistent emergency preparedness re- al incident that tests the plan. met eligibility criteria. The primary approach-
14 15
other threats, involving the public is a key feature delivered by the Public HealthEmergency.gov in In terms of general preparedness
of the portal, either by social media profiles or updating its Facebook page with posts, maps, in- Make a family emergency communication plan and include your pets.
by constant information and news updating. An fographics of Zika spreading. Identify an out of town emergency contact to coordinate information with family/friends.
outstanding example is about the fervid activity Check on neighbours.
Keep an emergency kit wherever you spend time: home, car, work etc.
Download the FEMA App and set up local alerts
On the web Listen to local officials by radio, TV, or social media and take action.
The 2017 National Seasonal Preparedness Messaging Calendarprovides US readers (who are citizens, Practice your preparedness plans with a drill or exercise.
lay publics or whoever) with key messagesto promotepreparednessall over the year. Take a first aid class so you can help until first responders arrive.

16 17
From the ASSET world In a SnapShot!

Within the work on Citizen consultation, a long propaedeutic work has been run in ASSET since the
fall 2015. The real action of public consultation was carried out on September 2016, 24th. More than
500 citizens living in eight countries were consulted on relevant issues related to global public health
emergencies. Results coming from this exercise will be also considered in delivering local initiatives in
12 cities, that are encompassed within the work on mobilization and mutual learning.

In terms of Policy watch, after a feedback on the ASSET public consultations that will be given at the
European Parliament in Brussels on 26th April 2017, participatory governance will be one of the hot
topics to be dealt at the third physical meeting of the ASSET High Level Policy Forum that will be held
in Brussels on April 2017, 28th. The issue on participatory governance is put down in the key question
Can citizens be included in epidemic preparedness and response? The answer is yes, furthermore they
demand to participate actively.

More than 400 citizens were consulted on epidemic preparedness and response in late September
across Europe. The citizens expressed a demand for more transparency and dialogue in both epidemic
response and planning, while at the same time they provided policy-makers with thought-provoking
insights with the other as; the Internet being the least trustworthy source of information yet the first
source citizens consult.

Some of the thought-provoking results from the pan-European citizen consultation included vacci-
The commentary entitled Epidemiology in the era of big data by Mooney SJ, Westreich DJ, El-
nation and information channels. While half of the citizens found man-
Sayed AM., published on Epidemiology 2015;26:390-4, identifies Graunt the work on big data public
datory vaccination as an appropriate tool for public health authorities
health-driven. On the contrary, according other recent sources John Snow is given this role. It is im-
during epidemic threats, more than eight-of-ten answered that it should
portant to recognize in fact attributions to scientists who elaborated associations, moving from cor-
be mandatory for health care workers. This discrepancy is very interest-
relations to hypothesis and causes identification.
ing, and we will in the upcoming policy-workshop go more into detail.
As mentioned in the lead paragraph, an insight that policy-makers can- Big data (this term showed up in 1997 but was globally recognised since 2010) are originally char-
not overlook is that the citizen deems the internet as the least trusted acterized with three Vs: volume, variety and velocity; to these features other two Vs are being added,
information channel, and yet it is the one they consult first. Research has such as veracity and value. However, the most characterizing element is to deal with data which are
showed that even if this insight, information read online has a subcon- spontaneously generated. That is the data deluge described on the Economist dossier in 2009, where
scious effect on decision-making. so huge information deeply modify the typical scientific observation, because not being actively gath-
ered but to be analysed by complex algorithms. In this perspective, the first Google trends objective is
Questions for the ASSET High Level Policy Forum: to organize global information and make it universally accessible and useful.
1. Where will a similar process be relevant in European public health
Talking about internet of things, big data refer to something that can be done at large scale, sug-
politics?
gesting new perspectives or creating new forms of value, changing markets, organisations, relations
2. What is the most relevant input from citizens to policy-makers? between and governments. As stated in The new digital age by Schmidt E and Cohen J, we have to be
3. What is the most interesting finding? aware of the biggest evidence available at the moment: cyberspace is the worlds largest ungoverned
space and the Internet is the worlds largest experiment in anarchy.
Method
Anyway, in a note entitled Big data meets public health, published on the column Insights of Science
The Danish Board of Technology (DBT) was asked to develop and test a participatory and inclusive by Muin J. Khoury and John PA Ioannidis, the two US authors advise big error can plague big data
method for engaging citizens. The method should convince the EU that citizen participation can be relating to the promising capacity to find associations among events, but not to understand whether
done within a field normally dominated by technical experts. In fact, epidemic response and plan- they are relevant or not. A step beyond is taken by the Institute for health metrics and evaluation that
ning has clear normative components, involving obvious conflicts and dilemmas, combined with a published the Global burden of diseases, injuries, and risk factors study 2015 on The Lancet. As stated
well-documented scientific knowledge base, and a need for political action in the crisis situation and in the editorial (GBD: from big data to meaningful change), this is the science of making data mean-
fulfilling all conditions for citizen participation. It was decided to develop a multi-site method, where ingful.
the citizens received the same information prior and during the consultations at the same time across
Europe. Their votes were reported in-real-time into a web tool, were all the results can be seen and In their book titled Risk Communication and Infectious Diseases in an Age of Digital Media, Anat
Gesser-Edelsburg and Yaffa Shir-Raz asks how, in a digital world where the publics voice is growing
analysed.
18 19
increasingly strong, can health experts best exert influence to contain the global spread of infectious Disclaimer
diseases? They confirm that digital media sites provide an important source of health information,
but also highlight how powerful these platforms are for the public to air personal experiences and The ASSET project was designed to accomplish a European Commission Call (DG Research and Innovation
concerns. The two authors then explores the different organisational strategies for effectively commu- - HEALTH), for developing a Mobilization and Mutual Learning Action Plan in response to epidemics and
pandemics with regard to Science in Society related issues.
nicating public health information in light of a common understanding, basing on an assessment of
the complex dynamics at play in managing risk and informing decision-making processes. The European grant agreement ensures scientific and editorial freedom to the ASSET consortium partners.
The views expressed in the ASSET Pandemic Preparedness and Response Bulletin Share and move are
As another example in an article entitled Social media for tracking disease outbreaks fad or way
those of the authors and may not necessarily comply with European policy.
of thefuture? that has been published in October 2016, the main conclusion by the author, C Raina
MacIntyre, is that timeliness becomes the most important factor for detecting epidemics. Statements in the Bulletin are the responsibility of their authors and not authors institutions.
In case of conflict of interests, it is declared.
At this stage, it is noteworthy that it is not just a shift in the scientific modus operandi paradigm (from Readers are advised to verify any information they choose to rely on.
deductive to inductive) but, quoting an interview released by Harlan Krumholz to the New England
Suggestions and/or questions are welcomed at valentina.possenti@iss.it
Journal of Medicine, the real greatness stays in the participation of people who generate such these
data and the mutual sharing of them to foster the best benefit to the whole community. According to
this idea, everyone should see, understand and use data. A better accessibility is also retrievable in
Acknowledgments
the US Health It Strategic Plan 2015-2020, but the issue opens a lot of ethical questions. They will be
mainly developed in the sixth ASSET Pandemic Preparedness and Response Bulletin, Share and move. Alberto Perra (Local Health Unit Rome 5, Italy) - Caterina Rizzo, Antonella Lattanzi, Eva C. Appelgren (Istituto
Superiore di Sanit, Italy) - ASSET consortium partners

Graphic layout
Every second on the net
Lorenzo Fantozzi (Istituto Superiore di Sanit, Italy)

Editorial Committee

Valentina Possenti, Barbara De Mei, Paola Scardetta (Board Coordination - Istituto Superiore di Sanit,
Italy); Manfred Green, Anat Gesser-Edelsburg (University of Haifa, Israel);

Mircea Ioan Popa, Adriana Pistol (Universitatea De Medicina Si Farmacie carol Davila Din Bucuresti, Ro-
mania); Anna Kurchatova (National Centre of Infectious and Parasitic Diseases, Bulgaria); Thomas Rob-
ertson (The International Emergency Management Society Aisbl/US); Agoritsa Baka (Institute of Preventive
Medicine Environmental and Occupational Health - PROLEPSIS, Greece); Eva Benelli, Donato Greco (Zadig
Srl, Italy).

20 21

S-ar putea să vă placă și