Learning Disability Partnership Board

Wednesday 14 December 2016, 11am 3pm

Ely Community Centre
Ely CB7 4SB
Minutes

1.0 People at the

meeting
Neil Adams Speak Out Leader,
Young People
Sally Cleghorn Administration Officer,
Cambridgeshire Alliance
Tracy Gurney Head of LD Partnership,
LDPB Co-Chair
Russell Henke Speak Out Leader, High
Support Needs Committee,
Co-Chair
Bill Jones Speak Out Leader,
City & South
Elspeth Jones Speak Up Spectrum
Leader
Siobhan MacBean Service Development
Manager, Childrens
Disability Services
Michelle Mansfield Speak Out Leader,
Fenland
Claire Mathieu Young Peoples project
worker, VoiceAbility

Fen House, Fen Road, Cambridge, CB4 1UN

Tel: 0300 111 2301 Email:admin@cambridgeshirealliance.org.uk
Registered Charity No. 1132290 Company limited by guarantee No 06861653
Lee McManus Service Development
Manager LDP, CCC
Keith Mead Service Development
Manager, LDP South
Leisha OBrien Development Officer,
Cambridgeshire Alliance
Joseph Simon Carer Representative

Lorna Weston Providers Rep.

MD Thera East Anglia
1. Welcome, introductions and apologies
People who said they could not come: Anita
Hewson, Claire Bailey, Nigel Fenner, Sean
Nightingale, Debbie Drew.
Russell was co-chair with Tracy.
Tracy asked the meeting if they agreed to talk about
the feedback from the September meeting first. This is
because the feedback will help to make todays
meeting run better.
Leisha talked about the feedback.
Items on the Agenda were fine
A lot of people said we didnt stick to the Agenda
Most thought people spoke clearly
Everyone felt included and listened to
A lot said the timing of the meeting wasnt good
A lot of people said questions were not asked by
going through the chair
There was a lot of chatter and so people had
trouble hearing
After talking about the best way to ask questions,
either by going through the Chair or direct to the
speaker, the Board voted on this -
Do we ask questions of the presenter or through the

Page 2 of 13
Chair?

Agreed by 11 votes to 1 to ask direct questions

2.0 Speak Out Leaders Reports

2.1 Claire said the Speak Out Council did a survey on
Stay Safe. They had 69 replies.
Sean Nightingale has been officially appointed as
Speak Out Leader for Hunts and East Cambs.
Heidi Allen MP has been inspired to become a
disability campaigner.
Sean has done 2 drop-ins. He has met Charlotte Kirin
about Safe Places in Ely and Littleport.
He wants to set up a petition about the crossing
outside Saxongate.
2.2 Fenland
2 drop-ins at Eddies.
Police came about Staying Safe
There are now some Staying Safe places in
Whittlesey. Michelle will get a list of them.
She plans to do a drop-in at Club 82.
She raised concerns about health sub-group
attendance. Her job is affected because of this.
2.3 Elspeth attended the Adult Social Care Forum.
She provided feedback on the autism plan.
She has looked at access at local bowling facilities.
2.3 Young People
Neil is still doing drop-ins, consultations on Staying
Safe, seeing School Councils and working with
Healthwatch on emotional wellbeing.
2.5 High Support Needs Committee
Russell attended a meeting about wheelchair services
to help them do a better job.
He visited March to build better links with high support

Page 3 of 13
needs people.
The social night at Horningsea was good and raised
some money.
Russell led the session on Action Points with groups
at the Speak Out Council.
2.6 City and South
Bill has done 6 drop-ins all about Staying Safe.
He is now meeting professionals on employment and
health.
He has signed a letter to the Cambridgeshire
Commissioning Group (CCG) because there is no
representative on the Cambridgeshire Learning
Disability Partnership Board.
He attended the Peterborough LD Board. This was
different from Cambridgeshires.
Q&A
1. Lee asked Michelle about the Health Strategy
meetings. Some have been cancelled at short
notice.
Michelle said that this has happened twice. There are
a lot of health issues that she wants to work on.
Lee agreed. He said that Mark Hall will come to
meetings in future so hopefully things will start to
improve.
Tracy added that she will meet Mark Hall next week
so she will tell him.
Michelle thanked Bill for going in her place. Claire and
Bill went and there were only 5 people there.

2. Lee asked Bill about the Peterborough LD Board.

Bill said it was just in the morning which was good.
There was no representation from high support needs

Page 4 of 13
people and autism but the board told him this was not
in their terms of reference. He has the minutes if
anyone is interested.
Leisha asked Bill if he was able to feed back. He told
them he would tell this LD Partnership Board.

3. Lorna asked for the dates of future drop-ins to try

to get more people to go.
Keith said he will give her the dates of the
Transforming Lives meetings
Michelle service users are getting mixed up with
different drop-ins.
Neil will email Siobhan with his drop-ins. Claire
thought he might need the permission from colleges to
have outsiders at drop-ins.
Tracy suggested a one-off meeting to sort this out.
Action: Keith will organise this.
Tracy thanked everyone for all their work and said it is
really important for her learning disability work.
4. Carers Feedback
Leisha confirmed there was no feedback from carers.

4.0 Health Sub Group Update

Claire said VoiceAbility was keen for Speak Out
Council to get involved and have an event in
Spring to present to a wider audience.
Review into the mortality of people with learning
disabilities. There will be training for people to
deal with it.
Hospital passports Michelle gave an example
of a person with learning disabilities in hospital
where no one seemed to know what these
passports are. Need to make sure its kept by the

Page 5 of 13
 bed and used by staff.
Siobhan added that shed had some feedback from
parents that the passport had been scanned and then
not seen afterwards.
Lee said the Board could speak to Mark Hall about
this so he could raise it with Kings Lynn hospital
Tracy said they do have named colleagues at Kings
Lynn.
Neil talked about being told you can go home from
hospital. This is wrong.
Elspeth said that when she was in Addenbrookes they
wouldnt let her leave if no one was with her.
Leisha discharge planning has been raised at the
Older Peoples Partnership Board. Healthwatch is
currently drafting Disability Charter to publish in
January. The Board agreed she could invite Sandie
Smith to a task and finish group.
Action: Leisha to invite Sandie Smith.
Lee gave a presentation on constipation. Its
difficult to talk about but really affects people with
learning disabilities, 25 to 50 people out of every
100.
Some Board members said it was an embarrassing
subject. Others said talking about it could help people
to get help.
Action: Elspeth will give Lee the name of a contact at
Cambridge Housing Society.
Michelle suggested adding the presentation to the
Speak Out Council on Health.
Action: the Board agreed that Lee could take this
forward.

Page 6 of 13
5.0 Safeguarding
Michelle gave the example of someone who
stopped his care and told his PIP assessor that
he didnt need it. She thought he was at risk.
Tracy said if someone can make their own decisions
then it has to be accepted. Of course you could ask if
they have the ability to make decisions.
Bill talked about someone who cant budget and
has to rely on friends.
Tracy said each team is putting together care plans
and thinking about the risks. She said she would feed
back tomorrow.
She explained that Deprivation of Liberty (DOL)
means that where someone is not safe to go out alone
then their carer can stop them.
Neil said Facebook causes a lot of trouble. Bill agreed.
Elspeth are we going off the subject?
Michelle people dont realise that once something is
on Facebook its there for ever.
Siobhan said that schools are more active now about
explaining the dangers.

6.0 Locality updates

6.1 Hunts and Fenland
The joint network meeting talked about keeping safe,
hate crime, benefit changes. The FACET hub is a
place where people can report things.
Action: Lee will send Sally/ Leisha the email from
Claire Bailey about what has been happening in Hunts

Page 7 of 13
and Fenland.
Claire gave out some awards to Sean for Safer
Places work, to Michelle for getting a parking bay at
Eddies and one to FACET.
The team will try to see if Hunts and Fenland can work
together like City and South do.
In 2017 there will be changes at Hinchingbrooke.
Claire asked Lee to wish everybody a Happy
Christmas for her.
6.2 City and South
The developments in Cambridge have affected roads
and bus routes. They have campaigned about these.
In East Cambs they are doing more work on
Transforming Lives. They have talked to Soham
Library about having a drop-in. All the drop ins are
better attended because providers and carers are
getting involved.
The team is moving to new premises in Toft on 9 Jan.
He will circulate the new address and phone number.
Keith said they would try not to have too much
disruption.
The three teams now have enough staff.
7.0 Lunch Break

8.0 New Advocacy Service

Advocacy for disadvantaged people who find it
difficult to speak up for themselves.
There are 20 advocates

Page 8 of 13
 The team helps people to look for the right
support
It works in partnership with Cambridgeshire Deaf
Association (CDA) and National Youth Advocacy
Service (NYAS)
There is a helpline and a team of volunteers led
by James Sheard. They find or give peer
support, tell others about advocacy, make sure
its run well.
The Advocacy team are all trained advocates.
They can help when someone is in hospital
under the Mental Health Act, at meetings about
changes to care, when there is no one else to
trust, making a will, support to move house.
Advocates cannot campaign, provide help with
filling in forms, long-term support.
They have offices at Cambridge, Fulbourn and
Peterborough
Contact number is 0300 222 5704

Q&A
Joseph asked if all people with a learning disability
could use the advocacy service e.g. with autism or not
receiving social care.
Rachel said it would depend on the issue.
Siobhan asked about the word disadvantaged that
Rachel used at the beginning.
Rachel said she thought that would be changed.
The service in Peterborough is on London Rd near the
football stadium.
Leisha asked what the peer support workers would
do?

Page 9 of 13
Rachel they will do the lighter touch, raise
awareness and do group advocacy.

9.0 Good News

Neil has been consulting different schools and
colleges on My Future. 77 have given feedback.
Michelle said the Speak Out Council in general
has had a good year. Outside support has been
good.
10.0 Feedback from other meetings
10.1 Adult Social Care Forum (ASCF)
RADAR keys. Carol Williams looked into this.
Anyone can buy a key online. Michelle said
perhaps the Speak Out Council could write to the
Council in 2017.
Response of the Transport Group within the
Council about floating bus stops and the
language used. CAIL sent a strongly-worded
email. Carol agreed to speak to them and offer
some training about how to do consultations.
Speak Out Leaders advice to social workers
about how to make the process easier.
Agreed to put it on the next Agenda.
Age UK gave a presentation on the Handyperson
Service. They give a free assessment. Leisha
handed round some leaflets.
The issue of different charges for services has
come up a few times. The ASCF felt there was
not much to be done. There is an option to ask
for a service to be paid through the Council.

Page 10 of 13
Q&A
Leisha said perhaps ASCF is not the right place to talk
about this as it is a political problem.
Tracy the campaign needs to be with the provider.
She cant tell the provider what to charge.
Michelle- all the prices are going up.
Neil - its still wrong.
Lorna some providers are trying to increase their
income which they badly need.
Leisha do Direct Payment users get that
information?
Tracy - service users always get choice to have all
paid by the Council, all by the individual or else split
payments.
Leisha said the Speak Out Council had Call to Action
points at the end of the meeting. Would this be any
use at this Partnership Board?
Michelle explained that they need to have feedback so
they can improve.
Lee this Board has an Action Log. Something extra
might be confusing.
Action: Not recorded.
11 Break

12.0 Finance update

Tracy gave the update because Paul has moved.
1.8m overspent by year end. 1.4m is from the
County Council budget and 350,000 from CCG.
The budget was presented at the Adults
Committee last week and was well-received.
In summary the budget next year is 4.3m.
Q&A
Neil asked about the crossing outside Saxongate.
Tracy that comes out of the transport budget.

Page 11 of 13
Elspeth will the cuts ever stop?
Tracy its about doing things differently.
Michelle its good that so much has been saved.
Lorna given that savings are to be made how can
the Council be sure providers stay in business?
Tracy we are aware of budget pressures for
example workplace pensions, apprenticeships, new
living wage. There will be a Provider forum in January.
Elspeth asked if the Speak Out Council budget will be
cut.
Tracy- its included in the budget for next year.

13.0 Minutes, Action Log and Matters Arising

Minutes
Corrections
Bill was Co-Chair with Lee.
Item 2.2 Elspeth said there were more people from
Oakley House.
Item 2.3 Sean, not Neil, went to Dreamers Bar.
Item 2.5 Russell worked with a local video artist.
Item 6.2 Visit to the Grafton Centre. As no one could
remember about this it will be removed from minutes.
Item 9.0 was not about relationships but emotional
wellbeing and mental health.

Apart from these corrections the Board agreed the

Minutes.
Action Log
The Board agreed which actions were completed.
Action 40 Tracy said the letters about contributions to
care are about to be sent out.
Action 41 Lee is still looking for a solicitor who could
talk to the Board about wills.
Lorna talked about Safe and Secure about future
planning for families. She could find a speaker or do it
herself.

Page 12 of 13
Tracy asked if the board could have an event
especially for it with a wider range of people, for
example families and carers.
Action: Board agreed to hold an event in spring 2017.
Leisha said she had sent out a CCG report on
Disability and Transformation. Board members had
not heard of it which showed why they want a CCG
representative on the Board.
Tracy has met Marek and Mark.
Lee and Leisha are still working on finding new family
carers to join the Board.

14.0 Any other business

Michelle- the next Speak Out Council will be about
relationships.
Leisha asked for future agenda items.
a. Elspeth 2017 is the deadline for everyone
to be transferred to PIP.
b. Lee CCG savings plan.
c. Neil something on relationships following
the Speak Out Council theme.
d. Leisha agreed because Nigel Fenner also
wants to give some feedback.
e. Michelle health in general.
Next meeting: March 22 2017, 11am 3pm,
Orchard Park Community Centre, Cambridge, CB4
2EZ

Page 13 of 13