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SPECIAL SECTION:
STATE OF THE
AIDS RESPONSE
THE BENCHMARK
SURVEY
TREATMENT 2.0 }
A Day
with
Friends THE LAST WORD
with
Annie Lennox
Getting to Zero.
Zero babies infected with HIV by 2015.
Mr Michel Sidibé
Executive Director of UNAIDS
21 May 2009
NEW DATA SHOW FEWER
WOMEN ARE DYING EACH
YEAR DURING PREGNANCY
AND CHILDBIRTH.
UNAIDS SUPPORTS THE
CALL BY UN SECRETARY-
GENERAL BAN KI-MOON
FOR A MATERNAL AND
CHILD HEALTH MOVEMENT
TO SUPPORT MILLENNIUM
DEVELOPMENT GOALS
4 AND 5.
OUTLOOK
FEATURES
82 | LET’S PLAY SAFE
Artists Jiten Thukral and Sumir Tagra.
96 | INVISIBLE MAN
Artist Daniel Goldstein’s new sculpture.
140 | @AIDS
Unlocking the potential of social media.
2 | OUTLOOK | www.unaids.org
Contents
ISSUE NO. 2 | JULY, 2010
FYI
23 | The pitch
144 | Vienna doer’s guide
www.unaids.org | OUTLOOK | 3
THE PITCH STATE OF THE INVISIBLE MAN
AIDS RESPONSE
OUTLOOK
OUTLOOK REPORT
IAL SECTION:
THE BENCHMARK
TE OF THE
S RESPONSE
BENCHMARK
VEY
ON
@UNAIDS OUTLOOK report
Stay up to date on UNAIDS’ Download the latest issue
activities through some of the of UNAIDS’ newest report.
most popular social media Prepared for the 2010 Vienna
channels: check out Facebook International AIDS Confer-
WEB
to AIDSspace.org to connect response.
with the global AIDS
community.
The benchmark
unaids.org Get all the details of the new
State of the opinion survey, the
AIDS response methodology and how you
Download a copy of the and your organization can
OUTLOOK special section with use this information in your
the latest thinking on HIV advocacy efforts.
prevention and treatment.
Difficult economic times call
for smarter, better and more
creative solutions to how the
world can collectively do more
with less.
4 | OUTLOOK | www.unaids.org
A DAY WITH FRIENDS— ART FOR AIDS
InBox
THE ‘MAKING OF’ VIDEO
GET SMART
Write to us at:
Invisible man A day with friends— Get smart outlook@unaids.org
See how renowned artist the ‘making of’ video Let the data take you on a
Daniel Goldstein turned Take a behind-the-scenes look visual journey of discovery.
more than 800 syringes into a at the A Day with Friends OUTLOOK asks how we can bet-
symphony of innovative design photo story. Experience the ter understand the AIDS
inspired by reflection, absence photo shoot in a special epidemic and response
and hope. ‘making of ’ video in Rio de through patterns, stories
Janeiro, Brazil. and connections. See the Copyright © 2010
Joint United Nations Programme on
full set of Get Smart charts
HIV/AIDS (UNAIDS).
The pitch and sources. All rights reserved.
Take a closer look at three Art for AIDS
creative ideas for an interna- OUTLOOK partnered with ISBN: 978-92-9173-859-5
tional campaign to end HIV- MAKE ART/STOP AIDS for
related restrictions on entry, much of the art in this report. The designations employed and the
stay and residence. From a MAKE ART/STOP AIDS is presentation of the material in this
roll of red tape to a world an international network of publication do not imply the expres-
sion of any opinion whatsoever on the
that looks much smaller, three scholars, artists and activ-
part of UNAIDS concerning the legal
agencies hope to inspire you to ists committed to ending the status of any country, territory, city or
make a difference today. global AIDS epidemic. Artists area or of its authorities, or concern-
are able to shape transforma- ing the delimitation of its frontiers or
tive insights and possibilities boundaries. UNAIDS does not warrant
that the information published in this
that literally redirect how
publication is complete and correct
people think and act. and shall not be liable for any dam-
ages incurred as a result of its use.
www.unaids.org | OUTLOOK | 5
The Paris Declaration, Paris AIDS Summit - 1 December 1994
What we are thinking
www.unaids.org | OUTLOOK | 7
Did you know?
Facts from the 2010 progress reports submitted by countries
as part of UNGASS reporting
8 | OUTLOOK | www.unaids.org
Get smart.
NEW WAYS OF LOOKING AT DATA
HIV is everywhere, but the intensity of the spread of the virus varies. South
Africa’s high HIV prevalence, combined with its population size, makes it
the country with the most people living with HIV. India, on the other hand,
has a much lower HIV prevalence, less than 1%, but with a billion-strong
population has the second highest number of HIV-positive people. Swaziland
has a population of 1.2 million, but one in four adults are infected with HIV.
www.unaids.org | OUTLOOK | 9
Size of the AIDS epidemic
33.4 MILLION
PEOPLE LIVING
WITH HIV
2.7 MILLION
2 MILLION NEW INFECTIONS
DEATHS PER YEAR
PER YEAR 430 000
children
Source: UNAIDS 2009 Epidemic Update, 2008 Report on the global AIDS epidemic, UNGASS 2010 country progress reports
10 | OUTLOOK | www.unaids.org
ASIA EASTERN EUROPE LATIN AMERICA
4.7 MILLION India 2.4 million 1.5 MILLION 2 MILLION
Russian Federation
940 000 Brazil
730 000
74 000
OCEANIA
MIDDLE EAST AND CARIBBEAN
NORTH AFRICA 240 000 190 000 on
380 000 treatment
China
700 000
NORTH AMERICA, WESTERN AND CENTRAL EUROPE
2.3 MILLION
Uganda
940 000
103 080
children
Zimbabwe* Zambia*
1.3 million 1.3 million 1500 new infections each day
(15.3%) (15.2%)
1 million on treatment
www.unaids.org | OUTLOOK | 11
Men
Women
Children
males 15+
females 15+
Sex workers
at risk
Young people
= 1 to 9 million
12 | OUTLOOK | www.unaids.org
Men who have sex with men
Global populations
Population
Source: UNGASS 2010 country progress reports, UNAIDS epidemic update 2009, Cacras 2006, Vandepitte 2006, Aceijas 2006, Mathers 2008
Making sex work safe
Per cent who received an HIV test in the last year and who know their results
Per cent who used a condom with their most recent client
ROMANIA
www.unaids.org | OUTLOOK | 13
The last 100 HIV infections
Each square below represents the last 100 HIV infections that were contracted in the following
countries. Each colour represents a different mode of transmission.
LESOTHO GHANA
KENYA ZAMBIA
14 | OUTLOOK | www.unaids.org
BENIN BURKINA FASO
PERU SWAZILAND
UGANDA SENEGAL
Sources can be found at unaids.org.
Men who have sex with men Injecting drug users Prison population
(only measured in Kenya)
Female partners of men who Partners of injecting drug users
have sex with men Other
Medical injections
Blood transfusions
www.unaids.org | OUTLOOK | 15
Virtual elimination of mother-to-child
transmission of HIV is possible
In ideal conditions, the provision of antiretroviral prophylaxis and replacement feeding can
reduce transmission from an estimated 30–35% with no intervention to 1–2%.
30–35%
1–2%
New child infections among 19 countries with the largest If no prevention of mother-to-child transmission was available
number of pregnant women living with HIV, 2005–2015 If we continued prevention of mother-to-child coverage at 2009 levels
If we implemented four prongs*
500
400
300
New child infections (in thousands)
200
100
0
2005 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015
* Implementing the four prongs would include reducing HIV incidence by 50%, reducing unmet needs for family planning by 100%, increasing antiretroviral prophylaxis
(triple) to 95% coverage and ensuring that prophylaxis is continued throughout breastfeeding. Source: Country HIV estimates and projection files, UNAIDS
Colombia
Netherlands
Nigeria
Russian
Source: 2009 WHO/UNAIDS HIV estimates
Federation
South Africa
Botswana
Ukraine
Viet Nam
16 | OUTLOOK | www.unaids.org
More than half the sky
33.4 million people HIV prevalence among women is higher than men in sub-Saharan Africa
living with HIV globally
= 1% of women
15–19 years
= 1% of women
20–24 years
= 1% of men
15–19 years
= 1% of men
20–24 years
2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015 2016 2017 2018 2019 2020
www.unaids.org | OUTLOOK | 17
Country policies and actions
Condom promotion
Strategic plan
Sex workers
Brazil
Russian Federation
India
China
South Africa
Thailand
Cambodia
Papua New Guinea
Viet Nam
Indonesia
Haiti
Bahamas
Guyana
Dominican Republic
Ukraine
Estonia
Belarus
Uzbekistan
Swaziland
Botswana
Kenya
Mozambique
Panama
Suriname
Mexico
Colombia
Egypt
Morocco
Algeria
Switzerland
Spain
Central African Republic
Gabon
Nigeria
Cameroon
18 | OUTLOOK | www.unaids.org
Strategic plan Human rights HIV prevention Treatment
Civil society
Antiretroviral therapy
Injecting drug users
Condom promotion
Strategic plan
Sex work
Brazil
Russian Federation
India
China
South Africa
Thailand
Cambodia
Papua New Guinea
Viet Nam
Indonesia
Haiti
Bahamas
Guyana
Dominican Republic
Ukraine
Estonia
Belarus
Uzbekistan
Swaziland
Botswana
Kenya
Mozambique
Panama
Suriname
Mexico
Colombia
Egypt
Morocco
Algeria
Switzerland
Spain
Central African Republic
Gabon
Nigeria
Cameroon
The countries selected for each region are those with the highest prevalence and/or number of people living with HIV (UNAIDS 2008). The information is from the
National Composite Policy Index (NCPI) of the 2010 UNGASS country reports. Part A is completed by government officials and part B by representatives from civil
society organizations, bilateral agencies and UN organizations. The final report is submitted by the government. Country specific information is already available
online: the full data set will be published in November, please visit www.unaids.org for more information.
www.unaids.org | OUTLOOK | 19
From the Note to readers: the comments are the reactions of the Executive
Secretary upon receiving this memo from the Ministry of the Interior.
desk of
And yes, the speech is based on real-life experiences.
22 | OUTLOOK | www.unaids.org
The pitch
One issue. Three agencies. Lots of great ideas.
OUTLOOK asked three branding and communication agencies to give us their best thinking on
a new global campaign to end HIV-related restrictions on entry, stay and residence—often
summarized as ‘travel restrictions’.
Each agency has presented their ‘pitch’—a creative proposal that shows how an idea can be promoted.
THE BRIEF
Create a visual campaign aimed at travellers in an airport, for an in-flight magazine
or for a web site.
Agency 1.
LEO BURNETT INDIA
Mumbai | leoburnett.com
About
Together with its partners, Leo Burnett India strives
to put meaningful human purpose at the centre of
its client’s brands, to transform the way people think,
feel and ultimately behave. Leo Burnett is part of the
Publicis Group, with 96 offices worldwide in
84 countries.
www.unaids.org | OUTLOOK | 23
Agency 2.
MOVING BRANDS
London | movingbrands.com
About
Moving Brands is an independent, award-winning
branding company with creative studios in London,
Zurich, Tokyo and San Francisco. Through its unique
approach to brand strategy, brand identity and brand
experience it creates powerful new ways for brands
to connect with people, and people to connect with
brands. Our aim is to redefine branding by setting
new standards of creativity for a moving world.
24 | OUTLOOK | www.unaids.org
Agency 3.
YOUNG & RUBICAM BRANDS
Geneva | yrbc.com
prejudicial and hurt rather than help. The Help us open the borders at www.unaids.org
About
ignorance
Young & Rubicam Brands Geneva is an integrated
marketing agency that focuses on delivering to is more
clients ‘ideas before advertising, ideas beyond
advertising’. The office houses under one roof Group
companies Y&R (advertising), Cohn & Wolfe (public
contagious
relations), Wunderman (relationship marketing),
Landor (branding and design) and Y&R Business
than HIV.
51 countries impose travel restrictions on people living with HIV for no reason.
Communications (B2B communications), as well as Help us open the borders at www.unaids.org
www.unaids.org | OUTLOOK | 25
FYI INNOVATIONS IN THE AIDS RESPONSE
Ideas lab
UNITED STATES
SOMALIA
BANANAS AGAINST HIV?
Bananas may hold the key to new op-
tions to protect against HIV, accord-
FRANCE
ing to researchers at the University of HIV EDUCATION GOES TO SCHOOL
Michigan in the USA. In laboratory According to the UN Educational,
tests, scientists found that a lectin Scientific and Cultural Organization
(sugar-binding protein) found in WEB SITE FOR THE FRANCOPHONE (UNESCO), policies to reduce the
bananas could be as potent as two HIV-POSITIVE COMMUNITY vulnerability of children and young
existing HIV treatment drugs. The web site of the French association people to HIV cannot be implement-
Michael D. Swanson, the lead author
of the study said, “The problem with
against HIV, AIDES, aims to connect UNITED KINGDOM ed without the full cooperation of the
education sector. A new programme
French-speaking people living with WWW.THEPLEASUREPROJECT.ORG
some HIV drugs is that the virus HIV worldwide, from sub-Saharan The Pleasure Project is an is targeting about 800 primary
can mutate and become resistant, Africa to Quebec. Based on popular educational initiative that promotes and junior high school students in
but that’s much harder to do in the social networking sites such as safer sex that feels good. The Pleasure north-western Somalia’s self-declared
presence of lectins.” The world’s most Facebook and MySpace, Seronet.info Project takes a positive and what it republic of Somaliland with HIV
popular fruit might one day help offers users interactive tools to stay calls “sexy” approach to safer sex. messages for the first time.
scientists in developing a lectin-based connected and exchange information. The group provides innovative
microbicide. One of only a few French-language training, consultancy, research and
social networking sites for people liv- publications to sexual health trainers
ing with HIV, Seronet.info provides
forums, blogs, chat and a range of tip
sheets geared specifically towards the
community’s needs (seronet.info).
and counsellors.
ROMANIA
EARLY INTERVENTION IS EFFECTIVE
Romania is one of the few countries
UGANDA
MOBILE PHONES—A LIFELINE FOR
in central and eastern Europe that
does not have a concentrated HIV
epidemic among injecting drug users,
even though it is believed to have a
NEWBORN BABIES large injecting drug user population.
Ten health centres in rural Uganda The capital city of Bucharest has an
are using SMS to send the HIV estimated 16 000 people who inject
results of babies born to HIV-positive drugs (0.9% of the city population),
mothers back to their doctors within 95% of whom have been injecting
three to five days. Before this pilot for more than two years. However,
project began it could take up to HIV prevalence is lower, 1.0% in
ten weeks to get the test results. For 2009, than in other cities with similar
a newborn, that can be a lifetime, profiles.
delaying the baby being put on Researchers believe consistent
antiretroviral therapy and potentially HIV prevention outreach pro-
putting him or her at risk. If the pilot grammes have been effective, in
project is a success, the system that 85% of drug users report using
will be rolled out through- sterile equipment the last time they
out Uganda and could injected. Contributing to this was the
significantly help to expansion in accessing clean needles
lower the country’s high and syringes in pharmacies (38% of
FA S T FA C T infant mortality rate. injecting drug users reported access
WORLDWIDE, to them from pharmacies in 2009,
BANANAS ARE compared with 10% in 2005).
THE FOURTH
LARGEST
FRUIT CROP.
26 | OUTLOOK | www.unaids.org
AUSTRALIA
NEW RAPID HIV TEST
A new application to improve the
reading of HIV rapid test results will
MALAYSIA
ISLAM AND HARM REDUCTION
MOZAMBIQUE
NEW TECHNOLOGIES IMPROVING
be developed in Australia. Victoria’s Following an in-depth study of the THE HIV RESPONSE BY KAYAK
Burnet Institute and Australian bio- epidemiology of injecting drug use Timely delivery of HIV test results
and the HIV epidemic in Islamic
medical applications company Axxin
Ltd have joined forces to develop
a device that allows for the precise
UNITED STATES countries, researchers at the
University of Malaysia have identi-
for infants who may have been
exposed to the virus is critical
to their health and survival. The
CLINICAL TRIAL OF FIRST FOUR-IN-ONE HIV DRUG
reading of rapid tests to determine fied basic guidelines provided in the National Institute of Health (INS) in
A phase III clinical trial by Gilead
if a patient needs antiretroviral Koran and the Sunna (Prophetic Mozambique is using mobile phone
Sciences is under way to evaluate a
therapy. Burnet Institute spokes- traditions) that support needle text messages to transmit HIV test
four-in-one HIV drug (tenofovir +
woman Tracy Routledge told the exchange programmes and opioid results in real time directly from
emtricitabine, plus a new compound,
Sydney Star Observer that it was an substitution therapy. laboratories to 260 health facilities
elvitegravir, that blocks an enzyme
important Australian innovation and Although drugs are ‘haram’ across the country offering paediatric
called integrase, which the virus
would take the “human error” out of and therefore prohibited in Islam, HIV treatment and care. In another
needs to insert itself into a person’s
diagnosing if and when people living illicit drug use is widespread in project, INS is field-testing a device
genes, and a booster medicine). In
with HIV should start medication. many Islamic countries through- that provides patients with same-day
one study, the safety, efficacy and tol-
out the world, which has helped CD4 test results, thereby reducing the
erability of the four-in-one pill will be
lead to apparent concentrated HIV number of visits to the health centre
compared with the company’s current
epidemics among injecting drug and improving treatment outcomes.
three-in-one pill for HIV (tenofovir
users. According to the study, when In one northern region, the CD4 test
+ emtricitabine + efavirenz) over
viewed through the Islamic principles device is transported by kayak to
a 96-week period in the USA and
of preservation and protection of remote communities with no road
Puerto Rico.
the faith, life, intellect, progeny and access.
The second study will compare
wealth, harm reduction programmes
the four-in-one pill with another HIV
are permissible and provide a practi-
treatment (ritonavir-boosted atazana-
cal solution to a problem that could
vir and tenofovir + emtricitabine)
result in far greater damage to society
over a 96-week period in more than
at large if left unaddressed.
200 sites in North America, South
America, Europe and Asia–Pacific.
Initial results showed that the four-
INDIA
in-one pill reduced the virus to unde-
tectable levels in 90% of patients after
24 weeks and had fewer side effects
FLIP FLOPS WITH A MESSAGE than its three-in-one pill.
In India, flip flops come with a mes-
sage on how to use a condom. Pieces
from the clothing line designed by
artists Thukral and Tagra include
HIV prevention messages. Jiten
Thukral and Sumir Tagra work
collaboratively in a wide variety of
media, including painting, sculp-
ture, installation, video, graphic
and product design, web sites,
music and fashion.
www.unaids.org | OUTLOOK | 27
FYI
{ OUTLOOK
Recommends
}
Books and a playlist not to be overlooked
Books
HIV/AIDS: a very short Classics
AIDS anthology introduction
By Alan Whiteside, 2008 And the band played on:
Partner to the poor Alan Whiteside’s introduction to HIV is an politics, people, and the
By Paul Farmer, 2010 excellent resource for anyone wanting to gain AIDS epidemic
For nearly 30 years, anthropologist and a better understanding of the evolution of the By Randy Shilts, 1987
physician Paul Farmer has travelled to some HIV epidemic or to brush up on key develop- One of a few reporters who delved into the
of the most impoverished places to bring the ments in the global AIDS response. Packed subject at the beginning of the epidemic,
best possible medical care to the poorest of with an epidemiological overview of the Randy Shilts went beyond the headlines to
the poor. In 1987, he and several colleagues virus as well as statistics that help to map the investigate the social and scientific aspects
founded Partners in Health to provide a progression of HIV, this pocket-sized book is of the disease. Openly gay, he refused to
preferential health-care option for the poor. a great resource to have on hand. accept HIV as, what was then labelled,
Partner to the poor a ‘gay disease’, and through his work he
collects his writings 28 stories of AIDS in Africa demonstrated the effects of the inequities
from 1988 to 2009, By Stephanie Nolen, 2008 and stigma against
providing a broad Renowned Canadian journalist Stephanie people living with HIV.
overview of his work. Nolen captured 28 stories of people liv- Twenty-three years on,
A portion of the pro- ing with and affected by HIV in 14 African his work serves as a
ceeds from the sale countries. The stories put a human face to the reference of quality in-
of the book will be epidemic and demonstrate the magnitude of vestigative journalism.
donated to Partners in HIV through individual lives. It articulates
Health. the despair, loss, grief—and, at times, love,
hope and life—of the people the author met
throughout her travels.
28 | OUTLOOK | www.unaids.org
28 stories of AIDS in Africa
By Stephanie Nolen, 2008
Art
www.unaids.org | OUTLOOK | 29
FYI
Mann Ke Manjeeré
Shubha Mudgal,
from Mann Ke Manjeeré (2001)
Empowering women to overcome violence
and repression is the theme of this Hindi
song by renowned singer Shubha Mudgal.
The music video, featuring the popular In-
dian actress Mita Vashisht, has been viewed
by 26 million households in India and has One
been credited with bringing the reality of U2, from Achtung Baby
domestic violence to the forefront—not (1991)
just in India but throughout Asia. Loosely
translated, ‘mann ke manjeeré’ means ‘the
music of my mind’. The song’s title is also
the name of a campaign on violence against
women led by the Indian nongovernmental
organization Breakthrough.
Together Again
Janet Jackson, from The Velvet Rope (1997)
Together Again is Janet Jackson’s heartfelt yet Streets of Philadelphia (Something Inside) So Strong
upbeat tribute to friends she lost to AIDS. Bruce Springsteen, from Philadelphia: Music Labi Siffre, from So Strong (1988)
The second single off her hit album The from the Motion Picture (1994) British singer and songwriter Labi Siffre’s
Velvet Rope, Together Again was released Bruce Springsteen wrote Streets of Phila- inspiration for this song came from a TV
just after World AIDS Day in 1997. The song delphia after being asked personally by the documentary portraying the violence of
became her eighth number one hit on the film’s director, Jonathan Demme. Philadel- apartheid in South Africa. It has since be-
US Billboard Hot 100 Singles chart, selling phia was one of the first mainstream Hol- come more than an anti-apartheid anthem,
nearly six million copies worldwide. lywood films to tackle HIV, homosexuality one that resonates for anyone who has
and homophobia. The success of Streets experienced racism, repression, or stigma
I’ll Stand by You of Philadelphia drew attention to the film, and discrimination. Many organizations
The Pretenders, from Last of the reaching an audience that might not other- have used the song in campaigns focused on
Independents (1994) wise have seen it. women and children.
Penned by Chrissie Hynde with her song-
writing team, the song was performed by Everybody Wants Feeling Good
Shakira on George Clooney’s and MTV’s Remo Fernandes, Anthony Newley and Leslie Bricusse, for the
Hope for Haiti telethon. The telethon raised from Politicians Don’t Know How musical The Roar of the Greasepaint, the
millions of dollars to help rebuild the to Rock ‘n’ Roll (1992) Smell of the Crowd (1964)
country—the most affected by HIV in the The lyrics of Everybody Wants caused quite This classic has been covered by everyone
Caribbean—and its AIDS response after the a stir when it was aired throughout India in from Muse to Michael Bublé, but perhaps
devastating earthquake in January 2010. 1992. With its chorus of “Everybody wants the best-known version is from the
to oomph! Without the fear of AIDS,” the unforgettable Nina Simone. Why this song?
song was one of the first in the country to The refrain says it all: “It’s a new dawn, it’s a
new day, it’s a new life, for me, and I’m
talk openly about sex and HIV.
feeling good.” •
One
U2, from Achtung Baby (1991)
This track is considered by many critics to
be one of U2’s greatest songs. The song’s
title shares the same name as the charitable
organization of lead singer Bono. The
ONE Campaign supports the Millen-
nium Development Goals, with a special
emphasis on ending extreme poverty and
strengthening the AIDS response.
Together Again
Janet Jackson,
from The Velvet Rope (1997)
Al-Vida
Salman Ahmad, special
release (2005)
30 | OUTLOOK | www.unaids.org
SPECIAL SECTION
STATE OF
THE AIDS
OUTLOOK looks at HIV prevention and
treatment as it explores the state of the
AIDS response in 2010.
34 THE BENCHMARK
A sweeping new opinion survey marks a new decade
46 TREATMENT 2.0
Thinking out of the box
62 BUILDING BRICS
Five countries, US$ 9 trillion combined economy,
one third of the HIV burden
www.unaids.org | OUTLOOK | 31
SPECIAL SECTION
32 | OUTLOOK | www.unaids.org
SPECIAL SECTION
www.unaids.org | OUTLOOK | 33
SPECIAL SECTION
THE
BENCHMARK
UNAIDS and the polling company Zogby International surveyed the
world on what people think about the AIDS epidemic and response.
In this first of its kind global poll, AIDS continues to rank high on the
list of the most important issues facing the world.
A sweeping new UNAIDS and Zogby Inter- Asia. Access to treatment was most often
national poll shows that nearly 30 years into cited by people in Latin America (11%) and
the AIDS epidemic, region by region coun- the Caribbean (12%).
tries continue to rank AIDS high on the list of
the most important issues facing the world. Funding is a major obstacle
Almost all people surveyed in sub-Saha- About 62% of people in Sweden think the
ran Africa, the Caribbean, South and South- availability of funding/resources or the
East Asia, Latin America and East Asia say availability of affordable health care (at
AIDS is important. 58%) is keeping the world from effectively
Eight out of ten people in the United responding to AIDS. Some 60% of people
States of America say it is important, and in the United Kingdom also felt that lack of
nearly nine out of ten in the Russian Federa- funding was the main obstacle.
Overall in the tion say AIDS is important. In India about Is health a necessity or a luxury? Over-
survey, AIDS two thirds report that the AIDS epidemic is whelmingly the general public says govern-
leads public more important than other issues the world ments have a role in ensuring treatment for
perception as the currently faces. In sub-Saharan Africa six in people living with HIV.
top health-care ten (57%) people say that the AIDS epidemic
issue in the world, is just as important as other issues faced by Best way to describe
followed by safe the world. the AIDS issue
drinking water. Overall in the survey, AIDS leads public ‘Hopeful’ say 30% in South and South-East
perception as the top health-care issue in the Asia and 25% in western Europe and the Ca-
world, followed by safe drinking water. ribbean. ‘Manageable’ say one in three (34%)
in Latin America and Egypt, about 29% in
Greatest achievement in the East Asia and 15% in Australia.
AIDS response ‘Tragic’ is the term chosen by three in ten
Public awareness about AIDS was consid- people in sub-Saharan Africa (30%), eastern
ered the greatest achievement in the AIDS Europe and central Asia (29%) and a third of
response by about one in three people (34%) people surveyed in Australia (33%).
overall. This was followed by implementa- ‘Getting worse’ was chosen by people in
tion of other HIV prevention programmes sub-Saharan Africa (31%), eastern Europe
(17.8%) and the development of new antiret- and central Asia (28%) and East Asia (25%).
roviral drugs (17.1%).
About 7.8% of respondents cited access to Is the world responding
treatment as the greatest achievement and effectively to AIDS?
7.2% say it was the prevention of mother-to- A resounding ‘yes’ was heard from the
child transmission of HIV. Caribbean (75%) and from South and
About 3.9% of people surveyed felt that South-East Asia (53%). About one in three
abstinence education programmes worked. in Latin America and just fewer than four in
Just over 5% thought the world had been ten people in sub-Saharan Africa believed
successful in distributing condoms or clean that the world was responding effectively to
needles as part of prevention efforts. the issue.
Development of new antiretroviral treat- ‘No’ was heard loudest in eastern Europe
ment was seen as the greatest achievement (61%), the USA (54%) and sub-Saharan
in the USA, in eastern Europe and in central Africa (50%).
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92.1%
YES!
6.1%
NO
33.6% 43.6%
YES NO
22.8%
NOT SURE
Manageable
22.6% 2.2%
Successful
Unsuccessful
4.4%
Tragic 19.3%
25%
Hopeful
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SPECIAL SECTION
41.2% 41.9%
YES NO
16.9%
NOT SURE
Is your country effectively responding to AIDS? (Per cent who responded ‘yes’ by country)
70%
SENEGAL
64.8% 65.1%
JAMAICA
UGANDA 61.7%
DOMINICAN
REPUBLIC
60% 59.9%
UNITED STATES
OF
54.8% AMERICA
57.6%
NETHERLANDS
CHINA
50.7% 51.5%
AUSTRALIA UNITED
50.4% KINGDOM
BRAZIL
46.5%
SWEDEN
40.3%
40% INDIA
37.4%
29.4% FRANCE
EGYPT
20%
25.6%
BELARUS
20.8%
MEXICO
17.2% 16.7%
JAPAN
16.3% KAZAKHSTAN
SOUTH AFRICA
11%
8.7% LATVIA
RUSSIAN
FEDERATION
0.8%
UKRAINE
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However, when it came to funding priori- all people in sub-Saharan Africa, North
ties, people chose investments for young America, South and South-East Asia, Latin
people and the general population over drug America, Oceania and the Caribbean were
users, sex workers and men who have sex confident about protecting themselves from
with men. HIV. About 20% of the people surveyed in
In eastern Europe and central Asia half of eastern Europe and central Asia as well as in
the people think that programmes should East Asia were unsure about their ability to
focus on people who inject drugs. In South protect themselves.
and South-East Asia seven in ten, and in
East Asia six in ten, say the majority of fund- Working and sharing a meal with
ing should focus on sex work. In the Carib- someone living with HIV
bean, views are divided equally between sex Overall about 61% of the people asked would
work and and injecting drug use. agree to work with someone living with HIV,
Almost everyone
while 20% would not. Acceptance of people
surveyed in Is AIDS a problem in your country living with HIV was highest in sub-Saharan
sub-Saharan Africa and community? Africa and the Caribbean, where eight in ten
said ‘yes’ AIDS Almost everyone surveyed in sub-Saharan reported positive attitudes.
was a problem for Africa said ‘yes’ AIDS was a problem for In sub-Saharan Africa and Latin America
their country. In the their country. In the Caribbean eight in ten nine out of ten had no reservations about
Caribbean eight in ten agreed, while in Latin America, seven in ten sharing a meal with a person living with
agreed, while in Latin said ‘yes’. The ratio of respondents in South HIV. In Egypt, 49% said ‘no’ and 30% said
America, seven in and South-East Asia, as well as in eastern ‘yes’ they would knowingly eat with someone
ten said ‘yes’. Europe, was six in ten who said AIDS was an living with HIV.
issue in their country.
When asked if it was a problem in their Treatment, not jail
community, the numbers dropped signifi- A majority of people (65.1%) responding
cantly. In the USA about one third (33%) felt said that people who inject drugs should
that it was a problem in their community, receive treatment rather than be sent to jail.
while 70% thought it was a problem in their In Latin America nearly nine in ten (86%)
country. Similar trends were seen in most favour this option. Similarly, two thirds
other regions of the world. (67%) in eastern Europe and central Asia
as well as in South and South-East Asia and
Do you worry about AIDS? more than half in East Asia prefer treatment
Three quarters of people surveyed in Latin over incarceration.
America and the Caribbean and more than
half in sub-Saharan Africa and South and Travel restrictions
South-East Asia are personally worried About half of all the people surveyed say
about AIDS. there should not be travel restrictions for
Conversely, nine out of ten people in people living with HIV. Fewer than half
North America and nearly seven out of ten of the respondents in western and central
in western and central Europe do not per- Europe, sub-Saharan Africa, South and
sonally worry about AIDS. South-East Asia and the USA said that there
should be travel restrictions.
Risk of HIV infection
Aside from the Caribbean region, where six Information about the survey
out of ten people felt they were personally at Zogby International was commissioned by
risk of acquiring HIV infection, more than UNAIDS to conduct an online survey of
three quarters of the people surveyed in adults with Internet access in 25 countries.
other regions felt they were not at risk. A total of 11 820 respondents participated in
In sub-Saharan Africa 25% of people the study. A sample of Zogby International
surveyed felt that they were at risk of HIV. and its partner’s online panel members
A similar perception was held in Latin was invited to participate. The study was
America and Egypt, as well as in eastern conducted between 30 March 2010 and 21
Europe and central Asia. People in Australia
and the USA were the least worried about
May 2010. •
being at risk of acquiring HIV.
The full report can be found online at
Can you protect yourself from HIV? unaids.org.
Individual confidence levels exceeded
75% in all the regions of the world. Nearly
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Which of the following obstacles are keeping the world from an effective AIDS response?
50.4% 51.4%
48.2% 47.9%
45.7%
36.2%
The AIDS response provides an opportunity to educate the public on other issues. Which from the
following list, if any, do you think have been dealt with more effectively due to the AIDS response?
12.8% 26.6%
Maternal mortality Homophobia
Drug use
37.7%
22.8%
Lower medicine prices
5.2%
Sex education
None 60.6%
3.3%
Sex work
40.3%
17.8% Other
Gender equality
28.3%
Sexual violence
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What has been the greatest achievement in the AIDS response so far? I believe people who inject drugs
should receive treatment.
34.1%
HIV AWARENESS 17.8%
HIV PREVENTION
65.1%
YES
17.1%
TREATMENT DEVELOPMENT
5.4%
DISTRIBUTION OF CONDOMS
FOR PREVENTION
4.9%
NOT SURE
3.9%
ABSTINENCE PROGRAMMES
1.3%
24.1%
YES
DISTRIBUTION OF
CLEAN NEEDLES
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How optimistic or pessimistic are you that with the proper use of resources the spread of HIV can be stopped by 2015?
92% 89%
JAMAICA
DOMINICAN
REPUBLIC
80%
79.5%
74.8% INDIA
THAILAND
66.6%
MEXICO
59.1% 60.2%
INDONESIA BRAZIL
56.5%
UGANDA
50%
49.4%
47%
EGYPT 48.7%
SENAGAL
CHINA 45.2%
43.1% KAZAKHSTAN
SPAIN
39.7%
37.6% SWEDEN
36.6% BELARUS
NETHERLANDS
33.9%
33.5% 33.1% LATVIA
SOUTH
RUSSIAN
33% AFRICA
FEDERATION
AUSTRALIA
30%
28.8%
UNITED
28%
KINGDOM
UNITED 27.2%
STATES FRANCE
21.1%
UKRAINE
14.2%
JAPAN
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DOMINICAN
AUSTRALIA
INDONESIA
REPUBLIC
BELARUS
JAMAICA
FRANCE
BRAZIL
EGYPT
JAPAN
CHINA
INDIA
Is the AIDS
epidemic
important?
Is your country
doing a good job
against AIDS?
Should people
who inject drugs
get treatment
instead of going
to jail?
Should donors/
taxpayers subsidize
treatment for people
living with HIV?
44 | OUTLOOK | www.unaids.org
KAZAKHSTAN
LATVIA
MEXICO
NETHERLANDS
RUSSIAN
FEDERATION
SOUTH
AFRICA
SPECIAL
SPAIN
SWEDEN
SECTION
THAILAND
UGANDA
UKRAINE
UNITED
KINGDOM
UNITED
STATES
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I S T H I S T H E F U T U R E O F T R E AT M E N T ?
I M A G I N E T R E AT M E N T 2 . 0
A radically simplified treatment platform that’s good for HIV prevention too!
Imagine an easy to use pill—low in toxicity and doesn’t lead to drug resistance.
Then imagine a drastically reduced need for costly labs—monitoring can be done at home.
Now imagine no stock-outs—a low-cost supply chain and the community ensures that pills
are there when you need them.
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One third
reduction
of new HIV
infections
globally
The latest studies show that a Everyone wants to do things smarter, faster and better.
reduction in new HIV infections of up
to a third could be achieved globally But the reality is that treatment today is complicated. From starting HIV treatment
if there is a radical overhaul of the to maintenance, the treatment process works, but each step is cumbersome and
way the world provides antiretroviral expensive. Up to 80% of the cost of treatment isn’t for the medication but for the
therapy and if global leaders meet systems to get it to a person and to keep him or her on it. Globally, only one third of
their commitments of ensuring that people who need treatment are on it. HIV testing is underutilized—most people still
all people in need of treatment are
find out that they are HIV-positive when they develop clinical symptoms of AIDS.
on it.
Antiretroviral therapy is not homogenous in cost, effectiveness or tolerability. And
It’s called treatment as prevention resistance can build up, making it necessary to maintain costly labs to monitor each
and it is one of the five pillars of person on treatment.
the new Treatment 2.0 platform. In
an effort to maximize the value of To get smarter, faster and to save more lives, the world will need to shift re-
antiretroviral therapy, a radically sources and thinking
simplified approach is needed. This
includes the development of better Today, an estimated 5 million people living with HIV in low- and middle-income
combination treatment regimens, countries are receiving treatment, up from about 400 000 in 2003—a more than 12-
cheaper and simplified diagnostic fold increase in six years.
tools, and a low-cost community-led Despite progress, the global coverage of antiretroviral therapy remains low. For
approach to delivery. every two people newly on treatment, five more become newly infected. A majority of
people living with HIV are unaware of their HIV status. And although easily prevent-
able, rates of mother-to-child transmission of HIV in many countries remain high.
In many settings, HIV prevention and treatment are provided through a sophisti-
cated delivery system requiring specialist doctors who tend to focus on HIV only. This
system is often overstretched, due to an increasing number of patients, a shortage of
trained medical personnel and financial constraints. Many in need of treatment live in
rural settings, far from specialized care.
With competing global priorities and an economic crisis, a longer-term sustainable
solution is needed to ensure that world leaders can keep their commitments to achieve
the goal of universal access to HIV prevention, treatment, care and support.
The most recent World Health Organization (WHO) guidelines for antiretroviral
therapy call for earlier initiation of treatment and the use of simpler, better drug regi-
mens—recommendations that will further decrease morbidity and mortality as well as
vertical and horizontal transmission. However, there is still a long way to go.
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Rodrigo Pascal heart problems many years down the road— any symptoms, I was what they called stage 1,
Partnerships Officer, UNAIDS but not at the age of 50. I am actually taking I still started taking them.
more drugs now for my heart condition than In 2006, I experienced my first side-effect
I was diagnosed with HIV in 1996 while for HIV. of one of the drugs, zidovudine. The fat on
living in Santiago, Chile. At the time, there My current antiretroviral regimen is pretty my body started redistributing itself and I got
was only limited access in the country to low- simple. I take three pills a day: one in the really thin on my backside, my legs and even
quality antiretroviral regimens. morning and two in the evening. I’ve had a my face. This meant I had to change one of
Doctors connected me with a support few minor side-effects, but, on the whole, I the components of my treatment.
group for people living with HIV that met feel good and the treatment is working. I take my three pills two times a day, every
weekly at a hospital on the outskirts of San- 12 hours. Apart from the fat distribution, I
tiago. I remember at my first session feeling have also experienced a pain in my legs. I try
amazed by the helplessness of others in the Mrs Lineo Mafatle to make sure that I massage them to make
group—they were in a terrible condition, (name has been changed) sure I don’t feel it so much—I need to accept
wasting away, skinny, eyes wide with fear, Mother of two, Lesotho it as part of the treatment. I think at this
waiting to die. point it is better for me to try to live through
As a middle-class Chilean citizen, I could I first found out I was HIV-positive back in whatever minor side-effects, so I don’t have to
access treatment immediately. Most of the 2001. I didn’t know that my husband had start on a second-line drug, which might have
people in my support group were unable to tested positive for HIV, but I started noticing even worse side-effects than I am experienc-
afford the medications and had been placed changes in his behaviour—he started staying ing now.
on a hospital waiting list. I was angry and out late, started drinking a lot. One day he The most difficult thing about being on
enraged at these blatant inequalities in access told me he needed to tell me something that treatment is adherence. Once you are on
to health. would hurt me a lot, something that might treatment and have been on treatment for
When I first started antiretroviral therapy even kill me. Then he said: “I’m HIV-positive.” some time, you get used to it, and you don’t
in 1997, I took 12 to 14 pills a day. Through- First, I was very upset. I screamed and even remember if you have taken them or
out the years, I have moved from one regimen shouted at him. After a while, I started pre- not, asking yourself “did I take them today?”
to another. In all of my years of treatment, I paring my mind that I have to accept my test Now I have a pill-minder where I put the pills
have never developed resistance to any one result if I get tested, so that I could live longer. for every day so I can check if I have taken
drug, but I’ve had some very strong side- We started talking about it and agreed that we them or not.
effects. would be there for each other, and we were I think adherence is very challenging. But
When taking Sustiva, for example, which is ready to support each other, no matter what treatment has also given me hope. When I
a commonly-used antiretroviral drug, I had my test result was. first found out I was HIV-positive I thought
vivid dreams, nightmares and other psycho- My husband came with me when I went for I was going to die, and that was very difficult.
logical issues. At one time, my head became a test, and I tested positive. This was in 2001 So for us to have antiretroviral drugs here in
noticeably swollen and disfigured—an allergic and back them I didn’t even think about treat- Lesotho, until we find a cure, treatment gives
reaction to the medication. I had to stop the ment. It was so expensive, I didn’t even try to hope.
drug, go back to the hospital and try a new find out how much it cost, as knew I would If I was allowed to dream of the future of
regimen. not be able to afford it. treatment, for something like HIV where you
Another antiretroviral drug, a protease In 2003, when the first antiretroviral have to take treatment for life, I think the
inhibitor, left me with lipodystrophy, which therapy centre opened in Lesotho we went main thing I would want would be for the
is a loss of fat in some parts of the body and together to the clinic and my husband was number of doses to be reduced.
an accumulation of fat in other areas. I could initiated on treatment. But my CD4 count was
barely look at myself in the mirror; it was very 250—that was the first time I had my CD4
bad for my self-esteem. count checked—so I did not have to start my
In 2006, after almost ten years of antiret- treatment yet.
roviral therapy, all of my coronaries were At the centre they told me I had to go for
completely blocked. I had to have four bypass check-ups every three months, which I did.
surgeries to survive. Given my underlying It was not until 2005, when my CD4 count
heart condition, I probably would have had dropped below 200, that I started taking anti-
retroviral drugs. Even though I did not have
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Pillar 3 Simplified treatment and diagnostic “Some people had to travel 100 kilo-
approaches would allow for the decentral- metres to be assessed if they were
Stop cost being ization of services from specialized health eligible for antiretroviral therapy,”
an obstacle systems to primary and community health- says Professor Anthony Harries, an
care providers, where antiretroviral therapy adviser to the Malawian govern-
Despite drastic reductions in drug pric- administration and monitoring moves from ment’s HIV programme from 2003 to
ing over the past ten years, the costs of doctors to nurses and community health- 2008. “Though this was a free ser-
antiretroviral therapy programmes continue care workers. vice, it meant time away from work.
to rise. These simplified approaches will also Those who did manage to access
The reported proportion of people on ensure that investments in HIV treatment antiretroviral therapy had great dif-
second-line regimens remains low. In 2008, directly benefit the delivery of other health ficulty continuing treatment because
a vast majority of adults (98%) and children programmes, as they happen through the of the cost of transport.”
(97%) surveyed in 43 high-burden countries same health-care sites and with the same
were receiving first-line antiretroviral therapy health-care workers. Infrastructure invest- Malawi’s new antiretroviral therapy
regimens. ments and training benefit more efficiently scale-up plan (2006–2010) included
In low- and middle-income countries, the delivery of broader health services. a number of strategies to bring HIV
the average annual cost of the most widely treatment closer to the primary
used first-line drug treatments was US$ point of care, where the majority of
143 per person in 2008, a price reduction the population lives. Under the new
of 48% since 2004. There was an even Decentralizing HIV treatment guidelines, medical assistants and
greater price reduction in paediatric formu- in Malawi nurses were empowered to initiate
lations, from US$ 436 per person per year antiretroviral therapy—from 2006 and
in 2004 to US$ 105 in 2008. This all helped According to government sources, 2008, respectively.
to contribute to a wider availability of treat- nearly 200 000 people living with HIV
ment. Second-line regimens continue to be in Malawi were accessing antiretrovi- In partnership with the Ministry of
more expensive. ral therapy in 2009, up from about 10 Health and district-level medical
Drugs can be even more affordable— 000 in 2004. Between 2003 and 2009, facilities, many community-based
however, potential gains are highest in the the number of sites in Malawi provid- health centres were accredited as
area of reducing the non-drug-related costs ing antiretroviral therapy increased antiretroviral therapy delivery clinics.
of providing treatment. Currently these from nine to 377. A decentralized About 88 000 people started antiret-
costs significantly outweigh the cost of the approach to HIV treatment and care roviral therapy in 2009 alone. Of the
drugs themselves. was critical to this national success in 377 sites in Malawi in which antiret-
Cost savings can be found in every step antiretroviral therapy scale-up. roviral therapy is now offered, more
of the process. A better, singe-dose pill with than 50% are simple health centres.
decreased toxicity and that was resistant- Under Malawi’s first national antiret-
proof would have fewer needs for treatment roviral therapy guidelines of 2003, only “Through this decentralized ap-
monitoring. This would lead to a reduced doctors and clinical officers—based proach, we were able to reach out
number of interactions with health-care primarily at larger health facilities in into the communities, where people
providers—less health-care time spent on urban settings—were empowered to otherwise could not access treat-
monitoring people enrolled on antiretroviral start patients on antiretroviral therapy. ment,” says Dr Frank Chimbwandira,
therapy programmes frees up resources to Medical assistants and nurses could Director of the HIV/AIDS Department
be devoted to other pressing health issues. monitor and follow up on a patient’s in Malawi’s Ministry of Health. “We
A decreased frequency of interaction progress, but were not able to pre- were also able to improve treatment
with health-care providers also lowers out- scribe treatment. follow-up, as more people could
of-pocket costs, such as transport fees, for come back and forth from the health
the care seeker. With about 85% of the population in centres to access their medication.”
Malawi living in rural areas, treatment
access became an important issue.
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Pillar 4
an important and effective bridge into
Improve uptake of HIV HIV testing and a link to treatment and
testing and linkage to care prevention services. Peer-based services
are often more trusted than government-
The uptake of HIV testing and counsel- led services, especially by populations
ling and linkage to care will need to be at higher risk, which can be fearful of
improved drastically if the promise of treat- government-run health-care approaches.
ment and treatment-centred HIV preven- The results of programmes from
tion approaches are to be realized. countries as diverse as Bolivia, Botswana,
Globally only about 40% of people China, India, the Russian Federation,
living with HIV know their HIV status—the Rwanda and Uganda all show the posi-
large majority of whom find out they have tive impact that individual engagement
HIV by developing clinical AIDS, with their with community-based services has on
immune system already seriously weak- increased HIV testing rates and increased
ened. use of HIV prevention and treatment
Stigma and discrimination remain as services, as well as improved treatment
the foremost impediment to HIV testing adherence and prevention practices and a
utilization. For many people even seeking reduction in stigma.
out HIV testing can lead to serious, even We need to learn from and scale up
life-threatening, exposure to violence, legal successful models of partnership between
action and loss of family, employment, and health service providers and community-
property. And where care, treatment and based service providers to assist in stigma
support services are unavailable, there is reduction and increased utilization of
little incentive to take an HIV test. services in particular by populations at
However, progress is being made. higher risk. Many examples exist in coun-
South Africa is scheduled to reach 15 tries, including programmes that receive
million people in two years. In the United support from the United States President’s
Republic of Tanzania, three million people Emergency Plan for AIDS Relief and the
received HIV tests in six months; in Global Fund to Fight AIDS, Tuberculosis
Malawi 200 000 people took HIV tests in and Malaria (Global Fund).
one week.
Community-based organizations,
often led by people living with HIV, provide
Progress is possible: percentage receiving an HIV test and test results in the 12 months preceding
the survey in countries with repeat population surveys, 2003–2008
Women Men
35%
30%
25%
20%
15%
10%
5%
0%
Ghana Ghana South Africa South Africa United United United Uganda Uganda
2003 2006 2005 2008 Republic Republic Republic 2004-2005 2006
of Tanzania of Tanzania of Tanzania
2003-2004 2005 2007-2008
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25
20
15
10
0
Ruili Yingjiang Kaiyun Dali Lingchang Mile Gejiu Baoshan Tengchong Average
Source: AIDS Care China, 2009. Data for ten Yunnan sites in 2008.
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MAKING SENSE
OF THE MONEY
OUTLOOK makes
the case for the
necessities of life.
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about 13%, and of this it spends about this level of HIV investment in the long
US$ 3.8 million, or 0.3%, on HIV. term is not regarded as sustainable by
UNAIDS estimates that governments the World Bank. In fact, some econo-
should allocate between 0.5% and 3% of mists suggest that the net present values
government revenue on HIV, depending of its HIV investment far exceed what is
on the HIV prevalence of the country. sustainable in the long term.
If the Democratic Republic of the Is it fair to expect countries to spend
Congo were to increase its national con- more?
UNAIDS ESTIMATES THAT tribution to 0.6%, appropriate to its HIV In some cases the answer is yes. Large
prevalence levels, it would merely spend emerging economies, such as those of
GOVERNMENTS SHOULD another US$ 2.9 million. The country China, India and South Africa, still have
ALLOCATE BETWEEN 0.5% would still fall short by US$ 323 million. the ability to invest more. And in doing
AND 3% OF GOVERNMENT To meet its constitutional obligations, so could free up resources for countries
REVENUE ON HIV, the country has to either tax its people that have greater needs and few avenues
more or rely on international assistance. to raise resources domestically. Take the
DEPENDING ON THE HIV At the end of 2008, international as- case of South Africa—the total resource
PREVALENCE sistance provided about US$ 91 million, needs for 2010 are about US$ 3.2 billion,
OF THE COUNTRY. or 96%, of the total spending on HIV in about 1.2% of it economy and 3.7% of its
the country. If this were to be reduced, government revenue. In sheer size, the
the country would have to make very US$ 1 billion investment by the country
difficult choices, including stopping its is the largest ever, but is still only one
current treatment programme. third of the total need, and less than the
In 2008, domestic HIV spending in rate of spending in other countries with
Africa was six times higher than in other similar or lower prevalence levels. The
parts of the world. Botswana leads the good news is that its economy had been
world in domestic spending on HIV as a growing at a rate of about 5% until the
proportion of its government revenue— recent global financial crisis. If growth
over 4%. It is able to do so because the returns to these levels, it will have the
government’s share of the economy ability to expand its investments.
is about 35% and its relatively strong China and India currently receive
economy is less vulnerable to shocks. over US$ 245 million each year as of-
And the results are real. There is ficial development assistance for HIV.
more than 80% coverage for people in Together, they account for 8% of the
need of treatment and 94% of pregnant funds dispensed by the Global Fund to
women have access to services to prevent Fight AIDS, Tuberculosis and Malaria
HIV transmission to their babies. But (Global Fund). India has increased its
now the question is whether Botswana health budget in recent years, riding on
will be able to sustain the current invest- consistent economic growth. However, it
ment levels over time. still accesses international assistance for
Countries such as Mozambique and a significant part of its AIDS response.
Uganda spend about 1% of their govern- Middle-income countries will need
ment revenue on HIV, although their to shore up their domestic investments.
share of the economy is only about 13%. Countries such as Brazil, China, India,
Both countries have a high rate of HIV Mexico, the Russian Federation, Ukraine
prevalence and a large number of people and Viet Nam can fully finance their
living with HIV. And their economies are AIDS responses from domestic sources.
fragile. Malawi is in a similar situation, Low-income countries too must increase
spending about 2.5% of its government their investments to levels proportion-
revenue on HIV. ate to their revenue. Half of the global
Swaziland spent around 1.7% of its resource needs for low- and middle-
revenue on its AIDS response in 2007— income countries are in 68 countries that
this is expected to rise to about 3% in have a national need of less than 0.5%
the medium term. The fiscal impact of
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Can governments meet the resource needs of the AIDS response from government revenue?
6%
Size of the economy
Government revenue
United Republic of Tanzania Gap in resource need after
US $ 562
governments increase domestic
investments to optimal levels
(in millions of US$)
5%
Botswana
Domestic spending on AIDS as a per cent of government revenue
US$ 108
4%
US$ 87
Malawi
US$ 920
US$ 264
US$ 422
US$ 393
2%
Kenya
US$ 501
US$ 343
1%
Uganda
D.R.
US$ 320
Zimbabwe
Congo
Lesotho
Nigeria
0%
0% 5% 10% 15% 20% 25%
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US$ 1000
Mexico
Uganda
Russian Federation
Cost per voluntary testing and counselling completed (unit cost)
India
South Africa
US$ 100
US$ 10
US$ 1
1 10 100 1000 10 000 100 000
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The 25 countries represented in this figure require 75% of the total resources needed for the AIDS response.
Around 85% of people living with HIV reside in these countries. Together these countries generate 70% of the
global gross national income in low- and middle-income countries.
11%
Zimbabwe
10%
9%
Malawi
8%
2010 resource need as a percentage of gross national income
7%
6%
Mozambique
5%
D.R. United Republic
Congo of Tanzania Zambia
4%
Uganda
3%
Botswana
Ethiopia Kenya
2%
Côte d’Ivoire
1%
50% of the global resource
need for low-and middle-income Nigeria
countries is in the 68 countries South
where the national need is less Africa
than 0.5% of gross national
income. These countries have
26% of people living with HIV
0.5% and receive 17% of international
assistance for AIDS. Pakistan
India
Viet Nam Ukraine
Thailand Argentina Russian
Federation Mexico
Cameroon
China Brazil
Indonesia
0%
US$ 100 US$ 1000 US$ 10 000
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were only 3.5% of the total prevention and what is needed over the longer
spending. A similar pattern has for long term. The foundations for a compre- A skewed system
been observed in Ghana. In many coun- hensive AIDS response must be strong South Africa spends about 8% of its gross
tries with low and concentrated epidem- enough to meet the needs not just in the domestic product on health, which is
ics, it is much easier to find resources to next 12 months but over the next 10, 20 slightly less than Sweden’s 8.9%.
reach the general population or young and 30 years. But the spending occurs in an unequal,
people than for sex workers or adoles- In the past 12 months several coun- two-tier system. Most of it is channelled
into the private sector, which is where
cents at higher risk. Bangladesh has tries have reported critical stock-outs of
the bulk of resources are concentrated.
now found a healthy balance. The split HIV medicines due to a lack of resources The country was spending about 3.5% of
between resources allocated to young and managerial inefficiencies. Clinics are its gross domestic product on its public
people and populations at higher risk is turning back people who need to start health system in the mid-2000s—a smaller
proportion than in considerably poorer
nearly the same—around 40%. treatment because they have to focus
countries, such as Honduras (4%), Leso-
Young people are not homogenous. on keeping existing programmes afloat. tho (5.5%) or Colombia (6.7%).
In Asia it is estimated that 95% of infec- Most countries depend on external Almost 60% of the health spend each year
tions among young people occur among sources to meet their treatment bill. The pays for the health care of about 7 million
adolescents at higher risk. But less than Global Fund alone financed half of the people, typically wealthier South Africans
10% of the resources spent on young 4 million people on treatment in 2008, who belong to private medical schemes
and who use the well-resourced, for-profit
people are directed towards this subset while the US Government is another private health system.
of the population. major source of investments in treat-
Consequently, more than 23 million South
In sub-Saharan Africa few pro- ment programmes. If the Global Fund is Africans rely entirely on an overburdened
grammes reach men and women in long- not fully funded and the donor commu- and understaffed health system, while
term relationships—they are perceived nity does not fulfil its pledges or shifts its about 10 million people use the public
to be at low risk, even though a majority aid policies, the lifeline of millions could sector, but occasionally pay out of their
own pockets to use the private sector.
of infections occur in this group. be in jeopardy.
Is this acceptable? Can resources be The demand for access to HIV Some in South Africa are looking to
a proposed national health insurance
directed more efficiently? prevention, treatment, care and support scheme as a quick way to improve health
Another complex and much debated has increased manifold in recent years. outcomes. The Health Minister believes
step is to review the efficiencies of the In the coming years, this is expected to that this has to go hand in hand with an
different programme approaches. Are further increase. This has to be overhaul of the public health system itself.
A more equitable funding arrangement
HIV programmes evidence informed converted into an opportunity to could help to speed up improvements.
and the accountability for results clear? increase resources for global health.
Health-care delivery costs can be Strong economic growth requires a
brought down through integration of healthy and ‘fit to work’ population.
tuberculosis and HIV services, bringing To achieve this, health must become a
all mother and child care services under
one roof, task shifting. Outreach to
necessity, not a luxury. •
young people can become smarter and
cheaper if we use social networking and
SMS rather than the labour-intensive
methods currently being used.
Making resource
availability predictable
The most important lesson that the
AIDS response has learnt in the current
economic crisis is the issue of predict-
ability. Countries cannot respond effec-
tively to the epidemic on a fiscal-year ba-
sis. Efforts to finance AIDS programmes
need to consider what is needed now
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Building BRICS*
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{ {
As power shifts from the G8 to the G20,
five countries stand out as being able
to change the course of the
global AIDS epidemic.
OUTLOOK explores how Brazil, India,
the Russian Federation, China and
South Africa could
finally break the trajectory.
*Jim O’Neill of Goldman Sachs is largely credited for coining the term ‘BRICs countries’ in a 2001 paper
entitled The World Needs Better Economic BRICs, about the economically-related
nations of Brazil, the Russian Federation, India and China.
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BRICS
SPECIAL SECTION
BRAZIL
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Q&A
Dr Mariângela Batista Galvão Simão
Director of the National AIDS Programme
What are some recent key achievements Looking ahead, what is the one thing that
in Brazil’s AIDS response? could make a real difference in preventing
Brazil’s National AIDS Strategic Plan fo- new HIV infections in Brazil?
With its record on treatment and its human cuses on populations at higher risk of HIV There is no simple answer to this question, as
rights approach, Brazil continues to broaden infection. The plan outlines clear goals and preventing new infections requires a broad
its leadership around the world. indicators on how to measure progress. The range of integrated and combined prevention
With only 50% of HIV-positive pregnant AIDS response is decentralized and engages and treatment strategies, under the umbrella
women accessing services to prevent mother- all levels of the government—federal, state of the promotion of human rights. We are
to-child HIV transmission, Brazil has an and municipal—and civil society organiza- still missing data on HIV incidence in Brazil,
opportunity to increase the coverage of HIV tions, which are seen as equal partners in the which is key to ensuring that we deliver a
testing and counselling in antenatal care response, in the decision-making process. Fi- more targeted response.
clinics. The number of maternity centres that nally, we have achieved success in increasing
effectively deliver prevention of mother-to- the uptake of HIV testing and counselling in
child HIV transmission services could also different settings. DID YOU KNOW?
be increased, and particular attention should
be given to remote areas, such as the Amazon What are the greatest barriers to universal In 2009, Brazil launched the National Plan
region in the northern and north-eastern access in Brazil? to Promote the Citizenship and Human
part of the country. Although Brazil has had a policy of universal Rights of Lesbians, Gays, Bisexuals,
Given that one third of all new HIV cases access to treatment since 1996, there are Transvestites and Transsexuals and the
were diagnosed in the late stages of infection still some groups that cannot access health National Human Rights Plan to combat
between 2003 and 2008, scaling up HIV services—transgender people, sex workers HIV-related stigma and discrimination.
testing and counselling services to prevent and drug users. Stigma and discrimination Despite being known as a country in
late diagnosis can be a priority. remain key barriers for these populations. which sexual diversity is celebrated rather
And Brazil should step up efforts to However, it is important to note that every than stigmatized, Brazil still has hate
achieve the goal of universal access to HIV person living with HIV in Brazil has the crimes against the lesbian, gay, bisexual
prevention, given that just under 7% of total right to treatment and care free of charge and transgender populations. In 2009
AIDS spending goes on prevention. through the national health system. There is there were 180 documented cases of
no waiting list to receive treatment. such crimes, according to a study by the
organization Grupo Gay da Bahia.
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
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BRICS
SPECIAL SECTION
RUSSIAN FEDERATION
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Q&A
Professor Vadim Pokrovsky
Head of the Federal AIDS Centre, Russian Federation
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
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BRICS
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INDIA
Overview of HIV epidemic Over the past few years, India has strength-
ened its AIDS response by expanding
Although India is considered a low-preva- prevention, treatment and care programmes
lence country, with a 0.3% prevalence, it has for populations at higher risk, increasing
the world’s third largest HIV burden, behind services for HIV-positive pregnant mothers
South Africa and Nigeria. Sixty per cent of and scaling up HIV testing and counselling
the 2.2 million people living with HIV in services.
the country are concentrated in six high- India is committed to scaling up HIV
prevalence states. prevention efforts, with 67% of the country’s
India’s epidemic is largely driven by sexual national AIDS budget earmarked for preven-
transmission (sex work and unprotected sex tion. Over 245 million condoms have already
between men). Given that condom use is not been distributed. Prevention programmes
optimal or consistent, men who buy sex are have been most successful in reaching sex
the primary source of India’s HIV epidemic. workers—prevention services now reach
However, injecting drug use is the main more than 80% of sex workers in four heav-
mode of HIV transmission in the north- ily affected states—and greater efforts are
eastern part of the country. now needed for drug users, men who have
The growth in HIV infections among sex with men and transgender people.
women over the years is especially striking— grammes. And in the most heavily affected In July 2009, the High Court in Delhi
Indian women accounted for close to 40% of Indian states of Andhra Pradesh, Karnataka, made a landmark announcement by over-
people living with HIV in 2007. Maharashtra and Tamil Nadu, HIV preva- turning the country’s 150-year-old statute
Stigma and discrimination towards people lence among women aged 15 to 24 attending outlawing same-sex sexual behaviour. The
living with HIV and populations at higher antenatal clinics declined by 54% between High Court also determined that the sodomy
risk, both at the community level and within 2000 and 2007. law blocked access to HIV services by men
the health sector itself, continue to pose a Progress is also being made on the treat- who have sex with men—such oppressive
significant barrier to accessing services. ment front. Access to antiretroviral therapy laws drive people underground, making it
Despite these trends, signs of progress rose from 32% in 2008 to 45% in 2009. The much harder to reach them with HIV pre-
have been seen on the prevention front. percentage of HIV-positive pregnant moth- vention, treatment and care services.
HIV prevalence has steadily declined among ers accessing treatment is on the rise, even if
female sex workers due to targeted pro- very slightly—from 16% in 2008 to 17% by
the end of 2009.
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0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
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BRICS
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CHINA
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Q&A
Dr Wu Zhunyou
Director of the National Center for AIDS/STD Prevention and Control,
China CDC
What are some recent key achievements in What are the greatest barriers to universal
China’s AIDS response? access in China?
More than 260 000 drug users in China at 685 Stigma.
With its ability to scale up quickly, China
clinics are now accessing methadone mainte-
is poised to make a big breakthrough—
nance therapy and about 115 000 drug users Looking ahead, what is the one thing that
whether through a low-cost delivery and
are benefiting from a range of comprehensive could make a real difference in preventing
distribution system for treatment or new
services, including drug treatment, HIV new HIV infections in China?
diagnostics, the world could benefit from
testing and counselling, syphilis and hepati- Encourage people to be tested for HIV as
innovations in the AIDS response.
tis C testing and treatment, CD4 cell count early as possible.
China has taken bold steps in strengthen-
monitoring for HIV-infected individuals, and
ing its AIDS response, but several actions
antiretroviral therapy for AIDS patients.
are critically needed on both the prevention
Free antiretroviral therapy has been ex-
and treatment fronts to reverse the spread of DID YOU KNOW?
tended to over 80 000 patients in China, with
HIV. These include increasing antiretroviral
nearly 64 000 people retained on first-line
therapy for people living with HIV, expand- According to the China stigma index sur-
treatment and about 2000 on second-line
ing services to save mothers and ensure that vey, conducted among more than 2000
drug regimens.
babies are born HIV-free and scaling up HIV people living with HIV in 2009, 42% have
Men who have sex with men in 61 cities
programmes for populations at higher risk, faced severe HIV-related discrimination,
are now accessing HIV testing and counsel-
including injecting drug users, sex workers, 15% had been refused employment due
ling. Services for preventing mother-to-child
men who have sex with men and migrants. to their HIV status and 32% said that their
transmission of HIV have expanded to 453
Civil society groups can also be strength- HIV status had been revealed to others
counties, with more than 7.7 million pregnant
ened to play a more active role in the without their permission.
women now accessing HIV testing.
response, especially in the area of delivering
China’s sentinel surveillance programme
essential services to those most vulnerable to
has been further expanded to 1888 sites, cov-
HIV infection.
ering eight sentinel groups.
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
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BRICS
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SOUTH AFRICA
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0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
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SOUTH AFRICA’S
TRANSFORMED
AIDS RESPONSE
O
“It’s the first time ne of the most ambitious Cameron of South Africa’s Constitu-
and quickest scale-ups of tional Court.
one country has an AIDS response ever is The government has dramatically
scaled up so quickly, finally under way in South increased its funding for HIV. This year
to so many people,” Africa, a country where more than 5 it will invest more than US$ 1 billion in
million people are living with HIV. its AIDS response—a third more than
says UNAIDS In March 2010, the country’s cabinet ever before.
Executive Director approved a plan to test one third of “It’s the first time one country has
Mr Michel Sidibé. the population for HIV by the end of scaled up so quickly, to so many people,”
next year, to halve the rate of new HIV says UNAIDS Executive Director
infections and to provide antiretroviral Mr Michel Sidibé.
therapy to 80% of people who need President Jacob Zuma’s govern-
the treatment. ment has also launched a massive male
“We asked for leadership from our circumcision campaign. Studies in
government, and now we have it,” says Kenya, South Africa and Uganda show
one of the country’s most prominent that male circumcision can reduce men’s
figures living with HIV, Justice Edwin risk of HIV by up to 60%, and there are
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drugs, stalled the HIV response in South doctors manage drug provision. The dramatic expansion of South Africa’s
Africa. “If we had acted more than a de- The AIDS response got a further AIDS response has drawn great praise.
cade ago, we might not have been in this boost last December when President But it is an open secret that the country’s
situation where we are,” says Minister Zuma announced that tuberculosis and health system currently functions poorly
Motsoaledi. HIV would be treated under one roof. and is highly unequal.
A 2008 Harvard University study Patients with both conditions are to re- “We are over the hump of denialism,”
estimated that some 330 000 premature ceive antiretroviral therapy if their CD4 says Justice Cameron. “But ahead are
deaths could have been prevented if the counts are 350 or less. the glum problems of capacity,
country had acted sooner to bring anti- Previously, patients referred from resources, personnel and individual
retroviral drugs to people with AIDS- tuberculosis clinics often had to travel tofears—all the problems that were there
related illnesses and to HIV-positive distant health facilities authorized to dis-
from the outset.”
pregnant women. pense antiretroviral drugs. That system Growth in South Africa’s antiretro-
In 2005–2006, more than 290 000 was weak, costly and time-consuming, viral therapy programme was rapid in
people were dying annually of AIDS-re- and involved much duplication of testing 2008, but slowed significantly in 2009,
lated diseases. The rising trend in deaths and record-keeping. says Mr Mark Heywood of the AIDS
is slowly reversing, thanks to what has The benefits of integration are clear. Law Project in Johannesburg. Hitches in
become the world’s largest antiretroviral In 2007, only about 20% of patients on budgeting and financial management
drug programme. therapy in Cape Town’s Khayelitsha were among the problems, along with
township, for example, had been referred weak monitoring and evaluation of
Saving lives from tuberculosis clinics; by late 2009, treatment programmes.
When South Africa’s public antiretrovi- that figure had grown to almost 70%. National and provincial health
ral therapy programme began in 2004, A big challenge now is to cope ministries are under great pressure to
fewer than 30 000 South Africans were with the increasing numbers of patients keep up with the growing demand for
getting the drugs they needed—almost being diagnosed with drug-resistant antiretroviral therapy. In 2009, several
of them were in the private health tuberculosis. provinces overran their health budgets
system. Retired health workers are being and there were reports of stock-outs of
Within two years, some 230 000 enlisted to help staff with these new antiretroviral and other drugs in seven of
people had started antiretroviral therapy, initiatives. The Health Minister has sent the country’s nine provinces.
a number that more than doubled again appeals to thousands of non-practising “We are aware that the health system
by 2008. By then, the majority of those doctors, nurses and pharmacists. By is not working well, we can’t hide it,”
patients were being treated for free in early April about 4000 retired staff had admits the Health Minister. “Some call
the public health system. indicated that they wished to help out. it a collapse, others call it a crisis.” He
Getting antiretroviral therapy to all lists “human resource capacity, and sup-
who need it is a mammoth undertak- Keeping the momentum ply and logistical problems” among the
ing. The best estimate is that about Testing 15 million people in two years is priority challenges.
570 000 people were receiving antiretro- a daunting target, but observers believe Management skills, monitoring and
viral therapy in 2008. About 1.5 million it can be done. In the United Republic of evaluation systems, as well as commodity
people needed treatment in that year, but Tanzania, 3 million people received HIV supply and supply management systems,
the government says that it will provide tests in six months, while in Malawi 200 must be improved, says the head of the
antiretroviral therapy to 80% of those 000 people were tested in one week. revitalized National AIDS Council, Dr
who need it in 2012. For the first time, the country’s rich ar- Nono Simelela.
Until early 2010, antiretroviral drugs ray of civil society structures (from reli- Also in short supply, she says, are
were dispensed through only about 400 gious organizations to youth and sports “bottom-up approaches to planning”
accredited health centres. The plan is to clubs to social networks) are participat- and stronger “community involvement
bring ten times as many public health ing in the testing drive. and participation” in the AIDS response.
clinics and centres into the antiretrovi- The campaign is using cell phone The National AIDS Council is working
ral therapy programme. In April alone, messages to direct people to their near- to broaden community and civil soci-
more than 500 additional health facilities est HIV testing station. Some corpora- ety involvement, but it will take time to
began dispensing AIDS drugs. tions are using raffle tickets, food and overcome the animosity and suspicions
Decentralizing the treatment pro- other incentives to encourage workers to that, until quite recently, clouded rela-
gramme also holds great promise. A take HIV tests. tions with the government.
recent study in townships in Cape Town The testing campaign will cost South
and Johannesburg showed that hand- Africa an estimated US$ 200 million. But A long haul
ing more responsibility to nurses and if it succeeds in helping to increase treat- For an epidemic as large as South
other medical staff leads to treatment ment uptake and reduce new infections, Africa’s, a treatment programme that
outcomes that are as good as when only the long-term benefits would be huge. puts, and keeps, at least 80% of patients
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* This is the best available estimate of people on treatment in both the private and public sectors. The estimates for 2001–2004 reflect mostly people receiv-
ing antiretroviral drugs in the private health sector. The Dept. of Health periodically releases its own estimates, but these reflect people who at some point
started treatment; it does not mean they are on treatment. Those estimates only reflect treatment roll-out in the public sector. Source: Adam, M. & Johnson,
L. (2009) “Estimation of adult antiretroviral treatment coverage in South Africa”, South African Medical Journal, Vol. 99 No. 9, September. 2009 data comes
from South Africa UNGASS country progress report 2010.
700
600
500
400
300
Deaths (in thousands)*
200
100
0
2001 2002 2003 2004 2005 2006 2007 2008 2009
* Except for 2009, the total deaths reflect registered deaths. South Africa’s death registration system is believed to be more than 90%
complete. This means that actual total deaths are likely 10% more than indicated. The 2009 figures are projections, based on previous trends and death
certcates received up to mid-year. Source: Statistics SA (2009) Mid-year population estimates 2009, Statistical Release P0302, July, Statistics SA, Pretoria.
Available at http://www.statssa.gov.za/publications/P0302/P03022009.pdf.
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Ms Fikile Kunene
Receptionist
I don’t think much has Ms Larissa Nathoo
changed in the last year. Interior designer
There are still problems with I think the response to
ARV [antiretroviral drugs] AIDS in South Africa has
stock-outs, especially in the been stagnant. I think there
rural areas. But the current needs to be more aware-
government is trying; it seems ness of HIV, because a lot of
they’re doing something, cer- people are getting infected
tainly more than before. every day.
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[ let’s PLAY safe ]
www.unaids.org | OUTLOOK | 83
A DAY IN THE LIFE
Evgeny
Pisemsky
Thirty-two-year-old Evgeny Pisemsky is the founder and Executive Director of Phoenix Plus, a
nongovernmental organization that he and his partner, Georgy, started up in 2005. Phoenix Plus—based
in the city of Oryol, in the Russian Federation—provides care and support to people living with HIV in the
country’s central region. In 2008, Phoenix Plus was awarded a Red Ribbon Award in recognition of its
work in improving the delivery of HIV services and in offering a range of support channels.
Evgeny has been living with HIV for ten 9:00 WORK AT THE AIDS CENTRE 18:30 SPORTS
years, contracting it through injecting drugs. Three times a week I work as a peer counsellor I need an outlet after a day jammed back to
He learned of his HIV status shortly after the in the AIDS centre. This is the favourite part back with meeting people and tending to
death of his mother, and without her support of my work, as I deal with people—not paper- admin. I love sport and go to the gym on a
and guidance Evgeny was unable to cope with work and bureaucracy. I am there to help real regular basis. Outside of the gym, I enjoy
the news. His life spiralled downwards, even- people. Sometimes a lot of people come to the cycling—I have two bikes. Georgy and I like
tually resulting in him attempting to take his AIDS centre at the same time and they have to cycle together. I would like to cycle to
own life. Hitting rock bottom led him to seek to wait in line to see a physician or counsellor. work, but that would mean wearing my sports
help, which he found in meeting other people The waiting room often turns into an ad hoc clothes to the office—I don’t think that will
living with HIV. He joined a support group support group. This I like. I regularly stay at happen anytime soon.
and there met a gay man for the first time. the centre until lunch.
Evgeny soon acknowledged his own homo- 20:30 DINNER
sexuality and fell in love. Today, when looking 13:00 LUNCH I have a passion for cooking, although I don’t
back, he is proud of overcoming his own inner It often gets so busy that I just grab a pastry often get the chance because of my schedule.
stigma about HIV and homosexuality. and some milk. When I do have more time, I I don’t like store-bought, ready-made meals.
go to eat at the cafeteria in a nearby govern- Meal time can be a real dilemma—staying at
8:00 WAKE UP ment building. work or shopping for fresh ingredients and
I am a night owl—I like to go to bed late and cooking. When we pry ourselves away from
get up late. It is very difficult for me to wake 14:00 OFFICE work, we like to make sushi, fondue or fish or
up early in the morning. Georgy, my partner, I start with keeping tabs on all the aspects meat dishes.
is an early bird. He encourages me to get ready that ensure Phoenix Plus runs smoothly. This
for my day. means preparing and writing reports. Since I 21:30 WORK—ONE MORE TIME
head a nongovernmental organization, I have In the evening I like to check in on my e-mails
8:20 COFFEE TIME to maintain good relations with the commu- and create materials for a web site for HIV-
Breakfast is usually a cup of coffee or strong nity. For the past year and a half, we have been positive men who have sex with men. Going
Chinese tea. I do not eat much in the morn- funded by the regional department of one of to bed late gives me time to do this.
ing, but when I do I usually have an apple, the world’s largest companies, so a well-man-
yogurt with muesli or a small sandwich. I take aged house is important. I admit I do not like 23:00 WINDING DOWN
my treatment during breakfast. I have to take the piles of paperwork, but it is a rewarding Before bed, we like to watch movies. I like
it once a day. process. films that reflect society and the problems
within it. I recently watched Prayers for Bob-
8:40 COMMUTE 16:00 COUNSELLING TIME by. I cried like never before. I am an emotional
I get on a shuttle bus and go to the regional I reserve two hours daily for individual coun- person, but that film was something else.
AIDS centre. It takes me about 15 to 20 selling sessions, meetings with my staff and
minutes, depending on the traffic. I use the other consultations. We regularly use this
time to check my e-mails and mark the most time to have training, when the need or
important ones to answer later. opportunity arises.
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“My idol is Harvey Milk,
because he stood up for what
he believed in and fought for
equality. I want to create a
nongovernmental organization
focused on HIV-positive gay
men so I can contribute to the
human rights movement in the
Russian Federation.”
— Evgeny Pisemsky
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A DAY IN THE LIFE
f
d s a
86 | OUTLOOK | www.unaids.org
1. His idol is Harvey Milk, because he stood up for
you need the human rights movement in his country and en-
sure that on issues such as homosexuality, bisexual-
ity and transgender people, silence is overcome.
about
Evgeny
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HIV PREVALENCE AMONG
INJECTING DRUG USERS
Dhaka, Bangladesh
Chandigarh, India
Odessa, Ukraine
Jakarta, Indonesia
Bangkok, Thailand
Kathmandu, Nepal
Rangoon, Myanmar
Mandalay, Myanmar
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Peaks and valleys
SCALING MOUNTAINS TO PREVENT
HIV AMONG DRUG USERS
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INJECTING DRUG USE IN However, only six months later, they found
EASTERN EUROPE AND CENTRAL ASIA that close to half were infected.
among injecting drug users (%) each person used his or her own injecting
equipment, HIV transmission would not take
Number of needles and syringes place. And if users can afford drugs, can they
distributed per injecting drug user
not afford to buy clean needles and syringes?
per year
Better still, can they not be taken off drugs?
Number of people receiving opioid This is where idealism ends and social and
substitution therapy per 100 injecting political realities take over.
drug users There are nearly 16 million injecting
drug users worldwide. Nearly three million
* No data available of them are living with HIV. And one third of
all new HIV infections outside sub-Saharan
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Africa occur among injecting drug users. Be- Two authorities, one problem:
tween China, the Russian Federation and the getting public health and law
USA, there are about six million people who enforcement on the same side
inject drugs. The use of drugs is criminal-
ized in all these countries and the majority of The relationship between health services and
drug control efforts are spent on policing and law enforcement agencies has sometimes
imprisonment. been difficult. At times they have worked at
This provides a fertile ground for sharing. cross-purposes. Breaking the vicious cycle of
Costs of drugs are often high, so individuals HIV and drug dependence demands that so-
are often involved in supporting their own ciety build supportive relationships between
drug use by selling small amounts to other people who use drugs, health authorities and
drug users. The risks of being caught with law enforcement agencies. As Portugal has
needles and syringes weigh heavily on the shown, civil tribunals that provide counsel-
minds of users, as many law enforcement ling and support can be a more effective
officials use their possession as a proxy for response to drug offences than courts hand-
“
drug use. Fear can lead drug users to inject ing out custodial sentences. Alternatives to
quickly and furtively. imprisonment and courts sensitive to the
Fear can lead Choton navigates the busy streets of
Dhaka, Bangladesh. An injecting drug user
needs of drug-dependent people are appear-
drug users to
ing across the world.
for many years, he does not carry his own The agreement at the annual meeting
inject quickly needles and syringes, because of fear of
getting caught. “I would rather use a dirty
of the Commission on Narcotic Drugs that
health solutions are better than criminal so-
and furtively. needle at an injecting site than carry my own lutions is difficult for some drug enforcement
”
and go to jail,” he says. officers—more comfortable with populist
Bureaucracy doesn’t help either. Phar- ‘zero tolerance’ campaigns—to accept. “This
macies often do not sell needles without a sends the wrong message” is the refrain that
prescription, or they ask too many questions. can be heard.
Where legal access is available, drug users But where they have worked together they
seldom trust health officials to maintain have been able to effectively balance the twin
confidentiality. Fear of discrimination and goals of drug control and HIV prevention.
intimidation from employers and the police Kyrgyzstan is a recent success story.
if they register as drug users is very real in There are approximately 26 000 drug users
many countries. in the country. Mr Nurlan Shonkorov is one
Mr Timur Islamov, Director of the Rus- who has benefited from the introduction of
sian nongovernmental organization Develop- harm reduction programmes there. “I have
ment of Education, Health and HIV/AIDS been on methadone for about three years
Prevention, is a former drug user and has and receiving antiretrovirals for more than
experienced this first-hand, “If you are regis- three years,” he says. “I receive free condoms
tered as a drug user you cannot have a driver’s and some treatment for free. The treatment
licence and there are restrictions on certain has been mainly arranged by the AIDS Cen-
types of work,” he says. “In addition, many tre’s dispensary department.”
organizations have security services that have The country’s harm reduction pro-
access to databases of drug clinics. That means gramme has backing from both law enforce-
that this personal data can be used to not hire ment and public health officials. Opioid
someone because of his/her past experience. substitution therapy has been endorsed by
One can be stopped at any time on the street both the national AIDS programme and
and be forced to undertake a medical drug the national counternarcotics programme.
test. If the test is positive, the person can be Methadone and buprenorphine have been
imprisoned for three to 15 days.” included in the national essential medicines
In Bangladesh, the authorities converted list. Civil society activists, drug treatment
their extensive database of drug users into an specialists and parliamentarians engage with
anonymous one in order to avoid misuse by people who oppose the strategy.
the police and other entities. The results are promising. Increasing
Dr Munir Ahmed, a former Team Leader numbers of drug users have found employ-
for Operations of the HIV programme of ment. Self-reported quality of life increased
CARE Bangladesh, led this process. “This by ten-fold after drug users went on metha-
helped restore confidence among drug users done substitution therapy. A survey showed
to access services from drop-in centres and that casual sexual encounters went down
meet with outreach workers without fear,” by over half. Only 14.5% of drug users had
he says. “This system is now followed by all injected drugs in the past three months and
nongovernmental organizations working on only 3.6% shared injecting equipment. Most
harm reduction programmes with drug users importantly, crime dropped to zero.
in Bangladesh.” “These programmes are effective both in
terms of prevention and treatment. They help
92 | OUTLOOK | www.unaids.org
drug users to come back from their previous
drug-using life,” says Ms Oksana Katkalova,
an expert working in Kyrgyzstan. “For harm
reduction programmes, an injecting drug
user should not only come and get syringes
and needles, but also needs to be offered
counselling.”
Working together requires building
trust and a clarity of purpose on all sides. In
southern Guangxi Province, China, the po-
lice supported the introduction of needle and
syringe exchange programmes, but continued
their crackdown on drug users, sending them
to detoxification centres and labour camps.
Outreach workers had difficulty distribut-
ing injecting equipment and the programme
floundered. Some people still fear being
forcibly tested for the use of drugs, as they
have been previously identified as drug users.
“When I talk to other people about the night-
mare period I went through five years ago, I
feel so full of regret and self reproach,” says
Mr Wang Wen, a former injecting drug user.
“Because of that terrible experience, distributed each year and HIV prevalence
which I can’t bear to think back on, my life has been kept at a low level. Several indepen-
will never return to the relaxed, peaceful dent reviews have recommended continuing
state I yearn for. Maybe in the future I will be the approach.
forced to put a sign on my head saying ‘I have “Harm reduction in Australia has been
used drugs before. Please test my urine!’’’ an extremely effective, safe and cost-effective
In Nepal, the home ministry and health way of controlling HIV among injecting drug
ministry have come together alongside users,” says Dr Alex Wodak, Director of the
civil society organizations to oversee opioid Alcohol and Drug Service at St Vincent’s
substitution programmes, setting up a model Hospital in Sydney, Australia. The country
for South Asia. HIV prevalence among drug is estimated to have saved over US$ 1 billion
injectors in Kathmandu has fallen to 21%, in treatment and care costs as a result of this
from a peak of 68% in 2005. Mr Anan Pun, approach.
President of Recovering Nepal, a network of UNAIDS Executive Director Mr Michel
people who use drugs and drug service orga- Sidibé, in a speech to the Commission on
nizations working with injecting drug users, Narcotic Drugs in April 2010 said, “But
feels that there has been a sea change in the despite the success of these models, all too
approach since the early 1990s. often today it is the police on the beat and the
“Law enforcement authorities at the drug user in the street who are forced into a
highest level are supportive of harm reduc- confrontation in the hand-to-hand combat of
tion, but drug users still face practical chal- the war on drugs—and communities are the
lenges from those who enforce law on the collateral damage. This endless and fruitless
street,” says Mr Pun. “They are not the harm fighting must stop. We have alternatives,
reduction agencies with a harm reduction focusing our efforts in confronting the very
agenda, but they can be agents for successful real health problems of drug dependence and
introduction of harm reduction programmes problematic drug use. Science, policy and
if a successful advocacy and education governance must come together in this posi-
programme is tailored to change their beliefs tive partnership.”
and behaviours. Drug users are still harassed,
as the drug laws still criminalize them, and Decriminalizing drug users
it has not been changed yet, even though the
policy has. Fear of punitive repression is pre- HIV prevalence among prisoners in Ukraine
venting drug users from adequately accessing is 15%, partly because of the large number
harm reduction and social services. It is an of drug users incarcerated. HIV prevalence
implementation challenge now.” among prisoners with a history of drug use
Australia has been a pioneer in adopting was nearly 31%, compared with just 5.9%
the harm reduction approach, adopting it among those who had never used drugs.
in 1985, well before it was known that HIV And inside the prisons opioid substitution
was spreading among injecting drug users programmes are not available. Possession of
at an alarming rate. Since then over 30 mil- small quantities of drugs for personal use is
lion sterile needles and syringes have been still subject to criminal prosecution. Such
www.unaids.org | OUTLOO
OUTLOOK | 93
laws make it difficult to scale up access to to opioid substitution therapy. On average,
services for drug users. only one in every one hundred injecting drug
This is one of the reasons why UNAIDS users in eastern Europe has access to opioid
has called for the decriminalization of drug substitution therapy. And the number in
users. A recent Indonesian Supreme Court central Asia is lower still.
ruling that drug users need treatment, not Ms Batma Abibovna Estebesova leads
prison, is welcome. In the UK, drug action Sotsium, one of the foremost nongovernmen-
teams refer drug users to health and social tal organizations working on harm reduction
services. According to its National Treatment in Kyrgyzstan. According to her, “There is a
Agency for Substance Misuse, “Having suc- lack of resources to reach all injecting drug
cessfully brought drug users into treatment, users and to provide them with psychosocial
the system focuses on getting them better support. Unfortunately, many donors do not
so they can leave, free of dependency. That allocate funds for such activities. Because of
process of recovery, in turn, can best be this, we cannot support injecting drug users,
sustained by interventions that support drug who could become our partners in working
“
users to assume a role as active citizens, take with other drug users.”
responsibility for their children, earn their The good news is that access to harm
China now own living, and keep a stable home.”
Bangladesh changed its narcotics law in
reduction programmes is clearly on the rise
in most parts of the world.
has more drug the 1990s, encouraging the police to send China now has more drug replacement
needle and
to change and repeal all laws or policies that gramme piloted in 2004 has grown to 680
explicitly discriminate against populations clinics covering 24 provinces, and 1000
syringe at higher risk. It has removed explicit legal
restrictions that impeded HIV prevention
needle exchange centres reach 40 000 drug
injectors every month. This is an astonishing
programmes programmes and services. turnaround that serves as a harm reduction
”
drug addiction be given equal access to health tion maintenance therapy at 102 health-care
and social services, and asserted that “no one facilities in 26 regions, compared with just 10
should be stigmatized or discriminated against centres serving less than 10% of the number
because of their dependence on drugs.” of drug users just a few years ago.
At the other end of the spectrum, the prob- Injecting drug users living with HIV are not
lem is that not enough is being done. As a faring any better in accessing antiretroviral
rough guide, a regular drug user requires therapy. Globally, only four out every one
at least 150 needles and syringes each year. hundred have access to treatment. In eastern
In Australia, an injecting drug user receives Europe and South Asia the ratio is 1:100
more than 200 needles and syringes a year. and in central Asia 2:100, compared with
Few countries are able to match this. Estonia 89:100 in western Europe. In countries such
comes close, providing around 151 per per- as Finland, Germany, the Netherlands and
son per year. But in the Russian Federation, Spain, almost all injecting drug users living
only around four needles and syringes per with HIV have access to treatment. How-
person per year are distributed. In Ukraine ever, in Brazil, Kenya, Pakistan, the Russian
the number is slightly better—32. Inject- Federation and Uzbekistan less than one per
ing drug users who receive fewer sterile hundred drug users have access to antiret-
needles and syringes are more likely to share roviral therapy. According to Ukraine’s 2010
equipment and put themselves and others at country progress report on AIDS, the rate
higher risk of contracting HIV. of treatment of active injecting drug users
Coverage for access to needle and syringe remains at only 7.5% of the total number
programmes or opioid substitution therapy of those receiving antiretroviral therapy,
is poor in most parts of the world. Recent because of insufficient availability of substitu-
strides in access to such programmes are tion maintenance therapy—needed, since it
simply not enough to push back the scale of has proven benefits in increasing adherence
new infections. According to a report in the to antiretroviral therapy.
Lancet by Bradley Mathers and colleagues, “Essentially, access to free medical treat-
globally only 8% of all drug users have ac- ment, rehabilitation and free legal assistance
cess to needle and syringe programmes. For is non-existent at the state level,” says
every 100 drug users, only eight have access Ms Tetyana Semikop, of the Ministry of
94 | OUTLOOK | www.unaids.org
Internal Affairs in Ukraine. “A repressive
approach to injecting drug users, applied by
narcology services, other medical institu-
tions and law enforcement agencies, does
not give an opportunity to provide efficient
implementation of prevention programmes,
including harm reduction programmes, re-
habilitation and treatment of drug users and
protection of their rights.”
www.unaids.org | OUTLOO
OUTLOOK | 95
INVISIBLE MAN | Daniel Goldstein | artist
96 | OUTLOOK | www.unaids.org
INVISIBLE MAN | Daniel Goldstein | artist
www.unaids.org | OUTLOOK | 97
INVISIBLE MAN | Daniel Goldstein | artist
98 | OUTLOOK | www.unaids.org
INVISIBLE MAN | Daniel Goldstein | artist
www.unaids.org | OUTLOOK | 99
INVISIBLE MAN | Daniel Goldstein | artist
For most soldiers, the army base at Kutum, anything,” said Sgt Mthethwa. “My
northern Darfur, where temperatures reach story is a very different story from other
45–50°C, is hardly a plum posting. But people living with HIV. When I went
for Sergeant Sipho Mthethwa, this dusty public with my status, nobody believed
corner of the world is a dream come true. me. They never saw me as a sick per-
“When I got there, son because I love to make jokes, they
The 39-year-old soldier is employed by thought since I was always laughing it
I felt so good. the South African National Defence Force couldn’t be true.”
It was so good to be (SANDF), part of the African peacekeep- Although his friends rallied around,
deployed. This ing mission in Darfur. While his main job Sgt Mthethwa found that after he tested
is keeping the peace, Sgt Mthethwa says positive, in 2001, his army career stalled.
is what I have been that he has spent almost a decade fighting His main job was to train SANDF sol-
fighting for,” stigma and discrimination. Sgt Mthethwa diers for deployment out of the country,
said Sgt Mthethwa. is HIV-positive. but he was never posted overseas, and
“When I first learnt I had HIV, I was was not promoted. In the past, SANDF
in shock. At first I couldn’t believe it. I stood behind its HIV policy—that
thought I hadn’t heard the doctor cor- people living with HIV were not suited
rectly,” said Sgt Mthethwa. “I thought I physically or mentally to the stress of
was going to die.” military life and could pose a risk to
After struggling to come to terms their fellow soldiers.
with this unexpected announcement, Sgt Sgt Mthethwa turned to the South
Mthethwa finally told a friend he was HIV- African Security Forces Union (SASFU),
positive. And then he got another surprise. which, with the AIDS Law Project,
“My friend said that it didn’t change a human rights organization, filed
Percentage of countries that have Percentage of countries that have Percentage of countries that have laws
HIV-specific restrictions on entry, stay laws that specifically criminalize HIV that criminalize same-sex activities
or residence transmission or exposure between consenting adults
Travel restrictions
The recent volcanic ash cloud over Europe gave stranded travellers a
taste of what it’s like—you want to go somewhere, but you can’t. For
many of the millions of people living with HIV around the world, travel
restrictions are a daily reminder that they do not have the freedom to
move internationally—or, even worse, that they may have to leave the
place they call home.
When Mark Taylor,* a Canadian citizen Life stories like Mr Taylor’s were not
working for a company in New York’s uncommon. It started in 1987, when the
financial sector, fell in love with his USA added HIV infection to a list of
life in the Big Apple, he never gave it conditions making a person ‘medically
a second thought to apply for perma- inadmissible’, effectively banning people
nent residency in the United States of living with HIV from the country. It was
America. It was 1995 and he was thriv- a hardship imposed on many people.
ing both professionally and personally. “A huge range of frustrations and ri-
“My new employer said it would diculous restrictions weighed on people’s
sponsor my permanent residency, and abilities to visit the United States, to do
we began the process of obtaining all of business in the United States, to see fam-
the required approvals,” Mr Taylor said. ily, to see friends and to go to weddings
In early 2002, with his residency paper- or funerals,” said the Executive Direc-
work completed, Mr Taylor was advised tor of Immigration Equality, Ms Rachel
to have a medical exam in Canada to Tiven. Over the years her not-for-profit
speed up the process. organization received an average of 1500
“When I went to pick up the results, phone calls each year on its hotline, a
I was told that the HIV test had come quarter with questions about HIV travel
back positive. As you might expect, restrictions.
I was devastated. I had been HIV- “People called us to say,” she said “I
negative the last time I took the test in am at JFK Airport and they found my
Ilustrations: Kat Macleod for jackywinter.com
Canada. Not only did I have to worry meds when I went through customs and
about my health and well-being, but I they are telling me I have to get back on
was sure that I would be forced to leave the plane—is that true?”
New York, my job and all the friends Too often it was true, people would
I had there. I immediately sank into a have to get back on the airplane. For
deep depression, feeling hopeless and the United Nations General Assembly
helpless.” High-level Meeting on AIDS held in 2006
For the 22 years the USA had a in New York a special waiver had to be
travel ban on people living with HIV. sought for delegates living with HIV to
5
countries deny visas for even
short-term stays.
Egypt
Iraq
Qatar
Singapore
Turks and Caicos Islands
5
countries require declaration of HIV status for entry
or stay, resulting, for people living with HIV, in either a bar
22
countries deport individuals once their HIV-positive
to entry/stay or the need for discretionary approval status is discovered.
(including through granting waivers).
Armenia Qatar
Brunei Darussalam Bahrain Republic of Moldova
Oman Brunei Darussalam Russian Federation
Sudan Democratic People’s Saudi Arabia
United Arab Emirates Republic of Korea Singapore
Yemen Egypt Sudan
Iraq Syrian Arab Republic
Jordan Taiwan, China
Kuwait United Arab Emirates
Malaysia Uzbekistan
Mongolia Yemen
Oman
TRANSGENDER
travestís, hijra or intersex people, with
some terms preferred over others in dif-
ferent countries and continents. Taking
into account that a transgender person
She quickly moved on to talking about may be gay, straight or bisexual, it can be
how to communicate around issues complicated, for example, to talk about a
relating to lesbian, gay, bisexual and male-to-female transgender person who
transgender (LGBT) people. A new is attracted to women.
manual had been developed in Brazil “In Kenya, if a transsexual woman is
that disentangles the differences be- attracted to women, she is called a les-
tween sexuality, sexual orientation and bian, but she is not. It’s nothing against
gender identity. lesbians,” says Audrey Mbugua, who
As Jackie spoke, it became apparent defines herself as an ‘out’ and politically
that there is much to clarify. active transsexual woman. “It’s the same
The communications guide makes as if you referred to a doctor as a carpen-
it evident that the term ‘transgender’ ter—they wouldn’t like it. And it’s not
relates not to sexual orientation but to because being a carpenter is bad.” Like
gender identity. Still, it can be confus- this, Mbugua argues, the transcommu-
ing, and some may wonder what is the nity is “denied [its] dignity and pride.”
difference between transgender people, Audrey Mbugua works for the
transwomen, travestí (the Latin Ameri- civil society organization Transgender
can term used for people who cross Education & Advocacy (TEA) in Kenya.
Clothes
Brechoh Juisi by Licquor
Cervera
Forum
Neon
Lenny
Luiza Barcelos
Venues
Museu de Arte Moderna
Cafecito
Novo Desenho (museum shop)
INDIANARA’S STORY
AIDS and LGBT activist
since the 1990s, she’s proud of her
own contribution to
the way HIV prevention,
treatment and research
efforts have grown in Brazil.
VIOLENCE SEXUALITY
MISCONCEPTIONS
LEADERS MYTHS
Contagious Not good
Poor enforcement
FEAR Can be cured for society
Homosexual
of protective laws
Of difference Seduce mafia STIGMA Not part
Jail virtuous people of us
INTERNAL
Abuse in jail
CRIMINALISATION Natural to
devil
Feeling
Not visible
FAMILY
alone
outside
LAW Driving people
underground Creates hysteria
SILENCE Reinforce
stereotypes Sensationalism
Don’t ask,
Live and
don’t tell Violation of privacy
Army let live
Employment
MEDIA
Workplace
Police
DISCRIMINATION
Health workers NO RIGHTS
Housing
I
n February 2010, unknown to him, with men in Bangladesh.
a camera was installed in the house What is homophobia? UNAIDS de-
of Professor Ramachandra Srinivas scribes homophobia as intolerance and
Siras. It captured images of him hav- contempt for those who have identities
ing consensual sex with another adult and orientations other than hetero- “The right of
male. His colleagues used the images to sexual ones. It is an aversion, hatred, privacy is a
suspend him on charges of gross miscon- fear, prejudice or discrimination against
duct. He was thrown out of his campus homosexual men, bisexual people, trans-
fundamental right,
housing, in the city of Aligarh, India. gender people, transvestites, lesbians needs to be
For Professor Siras, a 64-year-old poet and transsexuals. Homophobia confers protected”
and academic in his final months of his a monopoly of normality on heterosexu-
teaching career, this shock was made ality, thus generating and encouraging
worse because his accusers were the contempt for those who diverge from the
people he worked with and the students reference model.
he taught. When asked about the suspen- Homophobia can take place in various
sion, the Vice Chancellor of the univer- settings, in families, at work, in public
sity said in an interview, “This university services, in politics, in education, in
is an institution of international repute social and sporting activities–in short, in
and its students go out with character. differing forms within society as a whole.
Homosexuality is not good for them
and so such acts could not be allowed INSTITUTIONAL HOMOPHOBIA
on campus.” Some 80 countries currently criminal-
With support from the Lawyers Col- ize same-sex behaviour. “In my opinion,
lective and Indian gay activists, Profes- I think that homophobia is driven by
sor Siras appealed against the decision the present laws that are against homo-
at the High Court of Allahabad. The sexuals” opines Mr Craig R. Rijkaard,
court threw out the suspension, noting a research officer at the Directorate of
“the right of privacy is a fundamental Gender Affairs in Antigua and Barbuda.
right, needs to be protected and that In many Caribbean countries the vestiges
unless the conduct of a person, even if of colonialism still manifest themselves
he is a teacher, is going to affect and has in the buggery laws introduced hundreds
substantial nexus with his employment, of years ago. “Jamaica needs to remove
it may not be treated as misconduct.” the buggery law from its book. Consent-
Professor Siras was discovered ing adults should be allowed respon-
dead just days after winning the High sible freedom of choice,” says Ms Carla
Court judgement. Civil rights activists Bingham-Ledgister, chair of the Civil
cried murder. Society Forum of Jamaica.
What drives institutions to these ac- Changing laws doesn’t necessarily
tions? “Fear of the unknown. Fear of change attitudes and actions. For ex-
difference. Fear of his own sexuality. Fear ample, in the Russian Federation, when
of God’s wrath,” says Mr Mark Clifford, the criminal code outlawing homosexu-
Social transformation cannot happen Mr Morris Studdart, from Jamaica. “Conversations between and within
in a vacuum. There are many ways for communities on homophobia are rare. Changing and repealing homo-
change to happen—a change in the law, phobic laws can start a dialogue for reconciliation. We need to normalize
an empathetic policeman or judge, a gay people. It starts with a country showing respect for gays and lesbians
visionary leader, a sensitive journalist or by removing the buggery laws and enforcing laws relating to privacy and
an activist with a passion. protection in the workplace—it would put front and centre in its citizen’s
Mr Mugisha is one such activist. He minds that homosexuals are no less deserving of consideration than any
has braved insults, beatings and the other human being.”
threat of being sent to jail. But he has be-
gun a conversation. “When I was grow- Mr Joey Mataele, from Tonga. “We need use our community mobiliza-
ing up, people said there were no homo- tion skills to work closely with our community, especially here in Tonga.
sexuals in Uganda. I thought I was most Our island kingdom is so rich in religion and culture, so if I have to tackle
probably alone. I did not understand the homophobia here in the kingdom I would have to work along with all the
feeling inside me. I did not think anyone nongovernmental organizations, the community, stakeholders and also our
understood me,” he said. government in a more peaceful way of doing things. I know I will face a lot
“But today, the conversations I am of criticism, but I have done this for the past 18 years and I can say I can
having with young people, gay and do just about anything now.”
straight, show me that there is a very
bright future. I am optimistic that a Mr Vyacheslav Revin, from the Russian Federation. “Homosexuals are
few years from now there won’t be still invisible to society. Only homosexuals can solve the problem of ho-
any criminalization of homosexuality mophobia by personal example, showing that they are real people and not
in Africa.”• cartoon images imposed by homophobes.”
N
ee Olotu’s laughter is infectious. investigates how we can meet the goal by
Her ‘just do it’ attitude ensures 2015.
that she survives the urban
pressures of Lagos, Nigeria, a city that Four Ps to stop HIV infections
is bursting at its limits. Meeting her, it among babies
would easy to assume that she actually
has Lagos dancing to her tune. The first P—primary prevention of HIV
She is about to give birth to her sec- among women of childbearing age—is
ond child. Her first was born HIV-free, common sense. If women are not in-
but ensuring that her second is born fected with HIV in the first place, their
HIV-negative has not been easy. Nee children are automatically protected
Olutu’s undetectable viral load led her from being born with HIV.
doctor to suggest a vaginal delivery. But
she is not sure how long her labour pain Preventing unwanted
might last and whether in the end doc- pregnancies among women
tors will still have to perform a caesar- living with HIV
ean section.
While access to antiretroviral pro- The second P—prevention of unintend-
phylaxis is free, she has to pay all other ed pregnancies among women living
costs associated with hospitalization with HIV—already averts around 170
out of her own pocket. She has already 000 new infections among children in
been admitted to the hospital twice. The sub-Saharan Africa every year, despite
food costs alone are about US$ 5 a day. the region having low contraceptive
When the child is born, she is consider- access, according to a study conducted
ing breastfeeding her child, as infant by H.W. Reynolds and colleagues. They
formula costs have soared. Nee Olutu also found that if all women in the
has difficult decisions everyday, but she region who did not wish to get pregnant
is playing an important role in the goal accessed contraceptive services as many
of virtually eliminating mother-to-child as an additional 160 000 HIV-positive
transmission of HIV by 2015—a call births could be averted every year. In
first made by UNAIDS Executive a separate study conducted by them,
Director Mr Michel Sidibé. they assert that more than 120 000 child
To make this goal a reality, pro- infections can be averted in South Africa
grammes to stop babies from becom- alone if women living with HIV and not
ing infected with HIV have to take a wanting to have children could access
comprehensive approach—the four Ps, contraception.
as it is called by experts. Most attention J. Stover and colleagues in their 2003
has been given to the third P—preven- paper Costs and benefits of adding family
tion of HIV transmission from a woman planning to services to prevent mother-to-
living with HIV to her infant. However, child transmission of HIV have demon-
new analyses and studies show that strated that adding family planning to
adding the three additional elements prevention of mother-to-child transmis-
significantly increases the effectiveness sion services in high HIV prevalence
of such programmes. OUTLOOK has there- countries could avert 71 000 child HIV
400
Deaths (in thousands)
300
200
100
0
1980 1985 1990 1995 2000 2005 2010
Source: Chris Murray et al. The Lancet, Vol 375, 8 May 2010
Haiti earthquake
and HIV figures
230 000 deaths
300 000 injured
127 000 people living with HIV
2% HIV prevalence among men
2.3% HIV prevalence among women
2.2% overall HIV prevalence
11 320 new infections per year
8700 children living with HIV
24 400 people on antiretroviral
therapy
109 000 children orphaned by AIDS
5600 will need prevention of mother-
to-child transmission services in 2010
43 200 will need antiretroviral
therapy in 2010
UN Photo/Sophia Paris
STILL
left nearly 2 million people homeless
in Haiti.
HURTING
F
ollowing the devastating earthquake Around the makeshift clinic two smaller Support systems for people living with
in Haiti, the Jean-Marie Vincent park tents provide psychosocial support, but, says HIV were also shattered by the earthquake.
became a refuge for families. Now the Cuban-trained doctor, who also serves as The network of people living with HIV lost
nearly 50 000 people live there and the once the camp manager, few people attend, due to 40 people when its offices collapsed.
peaceful park has become a vast temporary fear of stigma and discrimination. The government’s monitoring and evalu-
settlement, one of more than 1300 that have “What strikes me the most is the quantity ation abilities and coordination have been
sprung up in the country. of positive HIV tests, around 15 a day, par- affected by the loss of data. The institutional
Thousands of fragile dwellings—each two ticularly among young people around 17–18 memory stored on computers is gone—
by two metres and generally no more than years old, and the rate of pregnancies among destroyed when the offices of the Programme
four wooden pillars covered with plastic— girls. Also, the quantity of cases with syphilis National de Lutte contre le SIDA collapsed.
house entire families. UN armoured cars and vaginal infections,” says Dr Dubique. “Our biggest difficulty is to meet securely,
patrol the camp, while dozens of voluntary With an estimate of nearly 2 million peo- as our offices were destroyed,” comments
security personnel help to maintain a certain ple displaced, the logistics of HIV prevention Ms Jean. Even so, there is optimism and
order. Families struggle daily to meet the ba- campaigns, condom distribution or voluntary some hope.
sic needs of food, water, shelter and hygiene. counselling and testing have proved to be Asked about what had struck her most
Massive and cramped, this city within a city and will remain a challenge. after the quake, Dr Joelle Daes, Director of
can be dangerous. And for women doubly so, In these conditions, women and children the Plan National de Lutte contre le SIDA,
with the ever-present fear of sexual violence. are most vulnerable. Lack of income is seen as talks of solidarity, “The solidarity of people
“I met ‘Gentile’ in an empty tent that a major problem. As Ms Nadine Louis, the Di- and organizations, going to GHESKIO, for
had been left at the camp by one of the rector of Foundation Toya says, “Women and example, and seeing how they were caring
humanitarian groups, giving us at least a orphans need to survive and do not hesitate for 6000 people when the centre was
little privacy,” wrote Human Rights Watch’s to have unsafe sex if it will allow them to feed partially destroyed. Seeing how treatment
Ms Liesl Gerntholtz in the Daily Beast. “We themselves.” Ms Malia Jean, Coordinator of the was being delivered under tents. All of that
sat in the oppressive heat, and she quietly Association des Femmes Haïtiennes Infectées gave me hope.”
described how, a few nights earlier, she had et Affectées par le VIH/SIDA agrees, “Most Immediately after the earthquake
been grabbed by five men and taken into a women living with HIV do not have an income makeshift pharmacies and clinics sprung up
nearby house. There she was raped, forced to or a profession and therefore find it difficult to around the most devastated and HIV affected
perform oral sex, and brutally beaten. When look after themselves or their children.” areas to try to reach people in need. Some
she finally managed to escape, the men With these issues at the forefront, people 80% of people on treatment were quickly
chased her and beat her in the street, where working on the HIV response have preven- located and able to resume treatment.
a man finally rescued her and took her to his tion at the top of their list, while acknowl- As the rainy season approaches, life in
home. Later that morning, she returned to the edging that the way forward is challenging. makeshift camps and temporary settlements
streets, as she literally has nowhere else to go.” “Talking about sex is a taboo in Haiti,” said will become more difficult for families.
These are the daily realities. Unemploy- Dr Dubique. “And people are not educated Although many improvements have been
ment, absence of privacy, loss of family, lack in sexual and reproductive health. Therefore made, living conditions and the long-term
of economic independence, loss of belong- counselling and sexual education for parents prospects are still uncertain. In these poverty
ings, anger and frustration all make it easy and young people is a must, but practically conditions, food, water, shelter and jobs are
for violence to escalate. As officials and nonexistent.” the priority. “Why would someone spend
community workers try to reduce risk factors In the same way that families have lost all money buying a condom when they have
in the settlement, they also worry about vul- privacy in their tents, health services cannot nothing to eat?” asks Ms Louis.
nerability to HIV, especially women’s. Haiti always offer privacy to patients. “One of our In looking to the future, Dr Antoine
has the highest number of people living with challenges is how to manage confidentiality Augustin, President of the Fondation March,
HIV in the Caribbean. There were more than of voluntary testing and counselling in camps has a comment for the international com-
120 000 people living with HIV in Haiti before when services are provided in tents and every- munity. “We are thankful for the outpouring
the earthquake—53% of whom were women. one knows each other,” added Dr Dubique. generosity. But organizations should be
Under two tents from Zanmi Lasante He says many people refuse to get thoughtful about what portion is spent on
(‘Partners in Health’ in Haitian Creole), Dr tested. “They know we will refer them to emergency relief and what on long-term de-
Kobel Dubique and a team of ten doctors and the health system, creating stigma and dis- velopment. The more than 1.5 million people
a dozen nurses care for more than 500 people crimination. And many refuse to meet with in the camps hear the news about millions
each day in sweltering conditions. Tempera- counsellors to talk about results for fear of being donated, but do not perceive it in their
tures regularly soar to 35°C. being stigmatized.” everyday lives.”•
www.unaids.org | OUTLOOK | 133
AN INTERNATIONAL PHOTOGRAPHY
PROJECT THROUGH POSITIVE EYES
GIVES A VOICE TO PEOPLE LIVING
WITH HIV. IN MARCH 2010, 17 PEOPLE
LIVING WITH HIV FROM GAUTENG
PROVINCE, SOUTH AFRICA, GATHERED
IN JOHANNESBURG. AFTER TRAINING
WITH PROFESSIONALS, INCLUDING THE
PHOTOGRAPHER AND AIDS ACTIVIST
GIDEON MENDEL, THE 17 EMERGING
ARTISTS SET OUT ON THEIR OWN
PERSONAL PHOTOGRAPHIC JOURNEYS,
CAPTURING IMAGES OF THEIR DAILY
LIVES. THE RESULTS DEMONSTRATE THE
GROUP’S VISUAL CREATIVITY, INFORMED
BY THEIR UNIQUE LIFE STORIES. THE
INITIATIVE, WHICH RECEIVED FINANCIAL
SUPPORT FROM THE US PRESIDENT’S
EMERGENCY PLAN FOR AIDS RELIEF,
WILL BE HELD IN SIX COUNTRIES
AROUND THE WORLD OVER THE NEXT
FEW YEARS. AN EXHIBITION OF THE
PHOTOGRAPHS CAN BE SEEN AT
THE INTERNATIONAL AIDS CONFERENCE
IN VIENNA.
134 | OUTLOOK | www.unaids.org
T H E S E A R E M Y P H O T O G R A P H S . T H I S I S M Y S T O R Y. T H R O U G H P O S I T I V E E Y E S
“We are just two guys who are in love with each other.”
BONGI
I
first realized I was gay in 1998, church for people who are living mustn’t infect our girlfriends.” My
when I was doing my grade 10 with HIV. motto in life is: What other people
at school. It was really difficult for I disclosed my HIV-status to my say or think about me is none of
me to accept this about myself. I parents in 2004. And again, my my business. In the end it’s my life
tried to commit suicide. Then my mother and my stepfather were so and I have to make the most of it.
mother and my stepfather took me supportive. My mother is such a I met my partner last year, and
to a pastor at church. I had to go beautiful person—she’s a prophet. we have been together ever since.
through counselling sessions with She can tell you about your future. Our bed is very important to us. It’s
him and he helped me understand I love her a lot. If she weren’t here, where we share memories, where
and accept myself the way I am. I think I would have died after we advise each other, where we
Then, in 2003, I found out that I finding out my status. She’s the fight, and where we pray. It’s where
was HIV-positive. reason I’m living now. our home is. He’s HIV-negative,
It was really difficult for me to Even though my family is there and he supports me. He loves me,
Gideon Mendel
accept my HIV status. I told myself for me, support from the commu- and I love him. We live a normal life
that maybe God had punished me nity is really hard to get. People as heterosexual couples do—we
because I’m gay. But then, after will insult you, saying disgusting even hold each others’ hands
attending counselling sessions at words: “Look at this gay person when we walk in the street. We are
the clinic, I accepted my status. who has AIDS. You want to spread just two guys who are in love with
We even have a support group at it. We are going to change you and each other.
make you a straight guy. But you
“I try not to focus on it, but at times the fear will grip me anyway.”
ZANDILE
M
y story begins when I been on treatment for almost four or making videos. The power of
met my baby’s father. We years now. And I’m healthy. Though positive thinking, it’s putting your
were longtime friends, we I’m HIV-positive, I’m healthier than faith to use, believing in what you
dated for a short time, and before most other people who are HIV- want to receive as if it’s already
I knew it, I was pregnant. It wasn’t negative. I never even get sick. there.
planned. And then he left me for his I had a very tough childhood. For example, after I found out my
ex-girlfriend. When I found out that My parents never knew, but as a HIV status I said, “You know what?
I was pregnant, the doctor advised child I was molested by one of my Though I’m HIV-positive, I will never
me to do the tests that all pregnant father’s workers. So I’ve always had get sick. I won’t change. In fact,
women do. And everything was this fear that something bad would I will even be more beautiful. I will
negative, except for HIV. They told happen to me. So the dark place grow. I will take care of myself. I
me then that I was HIV-positive. I in my photos represents a child in will make sure I don’t repeat all the
was 23. me who’s very scared, who went wrongs I have done or have been
My son is HIV-negative. His name through a bad experience, at an done to me.” I closed that chapter
Gideon Mendel
is Loyiso, which means victory. He early stage of life. of my life, and I’ve moved on.
conquered HIV. I love him, because After I found out about my HIV
if it weren’t because I was pregnant, status, I always hoped for a chance
I wouldn’t have gotten tested. I’ve to share my story. I even saw myself
doing this interview, taking pictures,
Captains and members of With more than 200 million people play- aimed at raising awareness about HIV in
ing the game and billions more watching the lead up to and during the world’s biggest
teams qualified to compete matches live and on television, football is the football competition.
in the 2010 FIFA World Cup most popular sport in the world. The 2010 Football has long been followed with
FIFA World Cup, held in South Africa from great enthusiasm and excitement in Af-
in South Africa, and football 11 June to 11 July, was therefore the ideal rica, and pictures of leading footballers are
players, teams and fans event to get AIDS-related information to a displayed everywhere—in streets, in bars and
massive audience worldwide. in shops. Children play the sport wherever
worldwide, are joining together According to a survey conducted by they can, sometimes with balls made out of
to help prevent mothers from FIFA published in 2001, over 240 million whatever they can find, and people of all ages
dying and babies from people in more than 200 countries regularly gather around television screens to watch the
play football. Millions regularly go to stadi- big matches. Significantly, this was the first
becoming infected with HIV, ums to follow their favourite teams, while time that the World Cup had been hosted in
especially in Africa. billions more watch the game on television. Africa, the region of the world most affected
In many parts of the world football stirs by the AIDS epidemic. This was therefore a
up great passion and plays an important role tremendous opportunity to get the message
— UNAIDS Goodwill Ambassador in the life of individual fans, local com- about HIV across to the millions of fans in
Mr Michael Ballack, former Captain munities and even nations. It has helped to Africa and beyond.
of Germany stop wars, such as Côte d’Ivoire’s civil war in At the pinnacle of the world’s favourite
2005. But it has also contributed to increas- game are the national teams, some of the
ing tensions, such as when a match between members of which have become celebri-
Dinamo Zagreb and Red Star Belgrade ties known worldwide and who are role
descended into rioting in March 1990 at models followed by men and women of all
the beginning of the Yugoslav wars and in ages. These players personify the hopes and
the events leading up to the Football War dreams of millions, and their actions and
between Honduras and El Salvador in 1969. words resonate loudly among fans.
With such capacity to influence people’s
behaviour, a global event like the World Cup
provided an invaluable opportunity to dis-
seminate information about HIV to people
the world over. A number of organizations
took up the challenge by organizing projects
Africa Goal
20 Centres for 2010
Kick4Life
Grassroot Soccer
@AIDS
online every day. In 2009, Facebook
added 200 million new users, and if
the site was a country and its members
citizens, Facebook would be the world’s
third largest country—only behind
China and India. Add in other sites, such
as LinkedIn, Bebo, Orkut, Renren and a
How social media is shaping the way we multitude of regional platforms, and it is
clear that social media has attracted the
communicate and what it means for the interest of hundreds of million people
worldwide.
global AIDS movement. Given the apparent popularity of
social media, and the AIDS community’s
long history of engagement in people-
centred campaigns and grassroots
activism, many organizations are now
looking at ways to bring their advocacy
Hours after the 12 January 2010 Socialnomics: how social media trans- efforts online.
earthquake in Haiti, many of the forms the way we live and do business, Some organizations are already lead-
world’s leading news outlets were puts it this way, “We don’t have a choice ing the way. One example comes from
streaming live Twitter feeds. In 140 on whether we do social media, the the public–private partnership between
characters or less (the length of a question is how well we do it.” (RED) and the Global Fund to Fight
Twitter message), viewers were getting AIDS, Tuberculosis and Malaria (Global
instantaneous updates on the quake’s Fund). The (RED) campaign teams up
devastating toll as the media told the The social with partner companies to produce
stories that survivors were sharing on media landscape (RED) products. When a product is sold,
Twitter and other web sites. a percentage goes to the Global Fund,
Defining social media is not an easy which, in turn, disperses the funds to
This switch to social media for news task. There are different explanations, support HIV programmes. Leveraging a
demonstrates a shift in the recognition depending on who you ask. The entry network of celebrities as spokespeople,
of these platforms—from what has often for social media on Wikipedia states that (RED) has been able to reach some 550
been described by many commentators the term “…is used to describe the type 000 people on Facebook and a million
as a ‘passing trend’ to a serious provider of media that is based on conversation followers on Twitter, providing support-
of information—so much so that CNN and interaction between people online. ers of (RED) an opportunity to keep
had staff monitoring Twitter to keep on Where media means digital words, track of the campaign and to share their
top of the latest developments coming sounds and pictures which are typically individual experiences when buying a
out of Haiti. shared via the internet and the value can (RED) product.
Beyond receiving news, the world be cultural, societal or even financial.” Another illustration of social media’s
responded through social media in Social media can refer to a range ability to spur greater awareness about
an unprecedented way. The hashtag of web technologies, from blogs and HIV was demonstrated on World
“#Haiti” was tagged on Twitter—togeth- wikis to social networking sites (e.g. AIDS Day 2009, when Google, Twit-
er with SMS-based fundraising technol- Facebook) and media-sharing sites (i.e. ter and Facebook ‘turned red’. Twitter
ogy it helped the American Red Cross to YouTube). While it may be a challenge and Facebook encouraged its users to
raise US$ 32 million for Haiti within one to capture one cohesive definition, it is show solidarity for the AIDS movement
month of the quake. For the American difficult to dispute the argument that the by undertaking a series of red-themed
Red Cross, and many other aid organiza- world has gone social. modifications to their pages, and Google
tions, a new fundraising standard was This point was backed by the Head of placed a red ribbon on its home page
set, and the value of social media to not Strategy and Planning for Facebook’s Eu- and had links to encourage its visitors
only generate awareness but build sup- ropean, Middle East and Africa office at to ‘learn, act and support’ the featured
port was demonstrated. a social media conference in London in organizations working on HIV issues.
What can the global AIDS response March 2010. In his presentation, Social
learn from the Haiti example and the
role of social media in communicating?
Changes Everything, Mr Trevor Johnson
shared some statistics that demonstrate A grassroots
Arguably a lot, and according to some social media’s broad reach: Facebook initiative goes global
social media experts organizations today alone has 400 million active users, who
have to embrace social media. upload five billion pieces of content Before such larger, structured HIV
Mr Erik Qualman, author of the book every week and two million photos per awareness initiatives took hold, a group
UNAIDS +
000 plus members. They see their Face-
book page and presence on other social
media sites as a way to share important
information with their fans and follow-
ers, such as human rights abuses against
social media
people living with and affected by HIV.
Mr Denizot, an AIDS activist since 1992, 01 twitter.com/UNAIDS (@UNAIDS)
has moved from street-level action—
handing out leaflets and organizing 02 slideshare.com/UNAIDS
petitions—to the social media environ-
ment. “Back then, we did not have social 03 facebook.com/UNAIDS
media, so obviously it has changed the
way people raise awareness and the way 04 youtube.com/UNAIDS
people learn about facts,” he said. “But
when you see something that you feel 05 flickr.com/UNAIDS
you cannot keep your eyes closed to, you
feel that you have to do something.” 06 AIDSspace.org
Vienna, the host city of the 2010 Whether you are arriving a few days ear- w People watch while sipping
ly, staying on after the closing ceremony a Wiener Kaffee
International AIDS Conference,
or wanting to see a bit of Vienna in be- The coffee house is an institution in
has opened its welcoming arms tween satellite sessions, the OUTLOOK team Vienna, so if there is only time to do
even further to embrace the global has pulled together insights on some of one out-of-conference activity this is
the city’s top attractions and locales to it—enjoy a legendary Viennese coffee
AIDS community for the week-long
give a taste (literally and figuratively) of and watch the city’s ‘who’s who’. There
conference. The city of Vienna has Vienna—from sipping a Viennese coffee are countless spots throughout the old
several activities themed around to strolling through the Imperial Palace. town, but one of the best coffee houses to
experience the full Wiener Kaffee culture
HIV and focused on getting
q Take a ride on the Ring Tram is Demel (Kohlmarkt 14). Dating back to
participants to see as much of Vienna’s old town (Innere Stadt) is sur-
Vienna as possible. rounded by the Ring—a main boulevard
with a parallel public transit circuit. The
yellow Vienna Ring Tram, a classic-style
40-seat streetcar, know locally as a Bim,
due to the bell used to warn other road
users and pedestrians, provides the best
vantage point (other than walking) to
see the city’s landmarks, such as the State
Opera House, Imperial Palace, Parlia-
ment and City Hall. An onboard
audiovisual system gives tourist in-
formation along the way. As stops
are plenty, riders can ‘walk on, walk
off ’ and explore the old town by foot.
Where am I?
Getting from the conference
to the city
Mr Michel Sidibé
Executive Director of UNAIDS
21 May 2009
OUTLOOK
T (+41) 22 791 36 66
F (+41) 22 791 48 35
www.unaids.org
SPECIAL SECTION:
STATE OF THE
AIDS RESPONSE
THE BENCHMARK
SURVEY
TREATMENT 2.0 }
A Day
with
Friends THE LAST WORD
with
Annie Lennox