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Journal of Pediatric Oncology

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Music Therapy Services in Pediatric Oncology: A National Clinical Practice Review


Belinda Tucquet and Maggie Leung
Journal of Pediatric Oncology Nursing 2014 31: 327 originally published online 15 July 2014
DOI: 10.1177/1043454214533424

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research-article2014
JPOXXX10.1177/1043454214533424Journal of Pediatric Oncology NursingTucquet and Leung

Article
Journal of Pediatric Oncology Nursing

Music Therapy Services in Pediatric


2014, Vol. 31(6) 327338
2014 by Association of Pediatric
Hematology/Oncology Nurses
Oncology: A National Clinical Practice Reprints and permissions:
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Review DOI: 10.1177/1043454214533424


jpo.sagepub.com

Belinda Tucquet, BComm, MMusThrpy, RMT1 and


Maggie Leung, BMus, GDipMusThy, RMT, NMT1

Abstract
This article presents the results of a national clinical practice review conducted in Australia of music therapy services
in pediatric oncology hospitals. Literature specifically related to music therapy and symptom management in pediatric
oncology is reviewed. The results from a national benchmarking survey distributed to all music therapists working
with children with cancer in Australian pediatric hospitals are discussed. Patient and family feedback provided from a
quality improvement activity conducted at a major pediatric tertiary hospital is summarized, and considerations for
future growth as a profession and further research is proposed.

Keywords
pediatric, music therapy, oncology, cancer, children

Music therapy is a growing profession in Australia, with Music Therapy in the Pediatric Oncology
431 music therapists currently registered with the Hospital Environment
Australian Music Therapy Association Inc (AMTA). In
the acute pediatric setting, there are 25 therapists provid- Music therapy services are commonly included as part of
ing music therapy services across a broad range of clini- the multidisciplinary team model approach adopted by
cal areas. Pediatric oncology music therapy services are pediatric oncology health settings. In Australia, this is
provided by 12 therapists across 8 pediatric hospitals, evidenced by each of the pediatric hospitals providing
each with a dedicated oncology unit. oncology care having a registered music therapist as part
The platform for networking and sharing of informa- of the allied health team. A nonpharmacological approach
tion among pediatric music therapists in Australia takes to symptom management is often addressed in music
place through the AMTA Pediatric Health Reference therapy, and several studies have focused on pain, anxi-
Group (PHRG). Members of the PHRG consist of ety, depression, distress, and emotional support, includ-
Australian registered music therapists working as clini- ing music therapys ability to enhance motivation
cians or researchers with infants, children, and young (Barrera, Rykov, & Doyle, 2002; Barry, OCallaghan, &
people in hospital. The objectives of the group, as per its Wheeler, 2010; Kennelly, 2001; Nguyen, Nilsson,
terms of reference, are to provide professional network- Hellstrom, & Bengtson, 2010; OCallaghan, Baron,
ing regarding common and emerging issues and innova- Barry, & Dun, 2011; Robb & Ebberts, 2003a; Robb et al.,
tive practice, such as service development, resource 2008; Walworth, Rumana, Nguyun, & Jarred, 2008;
sharing, professional development, clinical education, Willis & Barry, 2010).
project development and research.
The purpose of this review was to provide an opportu-
nity for clinical service development in Australian pediat- 1
Royal Childrens Hospital and Health Services District, Brisbane,
ric oncology music therapy. Current practice was
Queensland, Australia
determined by the distribution of a national benchmark-
ing survey, the results of which were disseminated Corresponding Author:
Belinda Tucquet, BComm, MMusThrpy, RMT, Royal Childrens
through the PHRG. Patient and family feedback regard-
Hospital and Health Services District, Music Therapy Department,
ing music therapy services received was evaluated via a Level 3, Coles Building, Herston Rd, Herston, Queensland 4029,
quality improvement activity conducted at 1 of the 8 Australia.
Australian pediatric hospital sites. Email: Belinda.Tucquet@health.qld.gov.au

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328 Journal of Pediatric Oncology Nursing 31(6)

Children with cancer respond and react to treatment found statistically significant differences in levels of anx-
and the hospital environment in varying degrees, with iety (P = .03), perception of hospitalization (P = .03),
some experiencing pain and anxiety. Nguyen et al. (2010) relaxation (P = .001), and stress (P = .001; Walworth et al.,
found that music therapy can help reduce these symp- 2008).
toms, measured via self-report and physiological status Music therapy has also been found to assist with chil-
before, during, and after a lumbar puncture procedure. drens decreased ability to cope during procedures and
Children in the music group spoke of being able to focus associated distress. Barry et al. (2010) explored the
on the music, a decrease in anxiety about what would effect of creating a personalized music therapy CD
happen next, and an association of feeling calm and (MTCD) for children undergoing radiation procedure
relaxed as a result of the music. Pain scores reported by (N = 11); the authors found that this aided the use of
children were significantly lower during the procedure effective coping strategies, with a significant difference
(P < .001) for the music group (mean = 2.35, standard in total distress (P = .024). These findings are further
deviation [SD] = 1.9) compared with the control group supported by a multiresearch project conducted by 3
(mean = 5.65, SD = 2.5), and after the procedure (P < major pediatric oncology hospital sites in Australia. A
.003) for the music group (mean = 1.2, SD = 1.36), com- range of music therapy interventions were reported to
pared with the control group (mean = 3, SD = 2). Anxiety help children through aversive cancer experiences; par-
levels after music listening but before the lumbar punc- ents recommendations included the provision of a more
ture were also significantly lower (P < .001) for children supportive musical and sound environment (OCallaghan
in the music group (mean = 8.6, SD = 2.78) than for chil- et al., 2011).
dren in the control group (mean = 13.25, SD = 3.73). Children with cancer who are required to spend a sig-
These reductions in anxiety were also significant after the nificant amount of time in hospital are often separated
procedure for children in the music group (mean = 8.1, from their familiar environment and sometimes isolated
SD = 2.22) compared with the control group (mean = from their peers, which may adversely affect their level
13.0, SD = 4.17). Heart rate and respiratory rate were sig- of motivation. Participation in music therapy has been
nificantly lower during the procedure (P = .012, P = .009) found to have a significant effect on positive facial
in the music group (mean = 102.7, SD = 9.24, and mean affect and active engagement (P < .001) and initiation
= 25.1, SD = 3.60) compared with the control group (P < 005; Robb et al., 2008). These behavioral outcomes
(mean = 117.7, SD = 19.49, and mean = 28.5, SD = 3.86). are noted as being consistent with Skinner and
Respiratory rates were also significantly lower after the Wellborns motivational theory of coping, and suggest
procedure (P = .003) for children in the music group that active music engagement as an intervention can be
(mean = 24.45, SD = 3.49) compared with the control used to assist hospitalized children to positively engage
group (mean = 28.1, SD = 3.72). There was no significant with their environment, an important first step in learn-
difference in blood pressure (Nguyen et al., 2010). ing and using effective coping strategies (Robb et al.,
Music therapy has also been found to be effective in 2008). The interactive use of music therapy on hospital-
supporting children experiencing anxiety during radia- ized children with cancer has been found to have signifi-
tion treatment. Patients undergoing radiation therapy at a cant improvements in not only patients feelings and
major oncology hospital site (N = 24) were found to have level of engagement, F(1, 59) = 8.11, P < .01, but also
a 92% success rate without general anesthesia when live reduction in parents anxiety, F(1, 57) = 8.02, P < .01
music therapy sessions were conducted during the proce- (Barrera et al., 2002).
dure through closed-circuit television (Willis & Barry, Several music therapists have shared their experience
2010). of working with pediatric oncology patients and the
Pediatric patients undergoing active cancer treatment capacity of music therapy to provide emotional support.
may also experience depression and anxiety, of which The recurring themes of these publications highlight that
levels of both have been found to be reduced by music music therapy has a positive effect in reducing feelings of
therapy (Robb & Ebberts, 2003a; Walworth et al., 2008). isolation, enhancing quality of life, and increasing
Robb and Ebberts (2003a) discovered that depression patients participation in treatment (Abad, 2003; Daveson,
levels in children undergoing bone marrow transplanta- 2001; Daveson & Kennelly, 1999; Kennelly, 2001;
tion vary according to phase of treatment, with lower Ledger, 2001).
anxiety levels in the music group compared with patients In a series of case studies, Abad (2003) illustrates the
receiving standard care. Furthermore, analysis of patients efficacy of music therapy with adolescents on a pediatric
songs showed themes of hope, positive coping, apprecia- hospital ward. Music therapy interventions included song
tion, mental status, and control. Walworth et al. (2008) parody and performance, music relaxation and imagery,
examined the effects of live interactive music sessions for and instrument learning. Song parody and performance
patients undergoing brain surgery (N = 27), and they can provide adolescents with freedom and flexibility to

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Tucquet and Leung 329

Table 1. Benchmarking Outcome: Referral Source.

Frequency of referral (1 = most common, 5 = least common)

Referral source 1 2 3 4 5
Medical staff 0% 13% 0% 25% 63%
Nursing staff 25% 25% 25% 25% 0%
Allied health 38% 38% 25% 0% 0%
Families/parents 0% 25% 25% 38% 13%
Self-referral 38% 0% 25% 13% 25%

express personal words and feelings they may have previ- Appendix A). During the period of March to October
ously been uncomfortable in discussing, and increased 2010, it was distributed via email to all music therapy
social interaction through sharing their creation with oth- departments (N = 8) that provide pediatric oncology ser-
ers (Abad, 2003). Music relaxation and imagery may help vices in Australia, with a 100% response rate.
cancer patients perceive less pain, discomfort and nausea, Survey respondents were identified and contacted
and reduce perceived anxiety (Abad, 2003). Instrument via the AMTA PHRG. A deadline was provided to
learning can provide a motivating and age-appropriate return the survey via email, with minimal follow-up
way to engage adolescents and, through mastery, may email reminders required. One sites music therapy
assist with increased control over the hospital environ- position was vacant at the time of initial data collection.
ment (Abad, 2003). This survey was completed once the position was filled,
Similarly, Daveson (2001) suggests music therapy can and the respondent was contacted via telephone and
facilitate opportunities for self-expression, connection email to explain the purpose of the survey and obtain
with the outside world, and help children to learn, rein- consent to participate.
force, extend, and use new coping strategies. Respondents were informed of the purpose of the sur-
vey via cover letter and that the results would be made
public via conference presentation and redistribution to
National Benchmarking the group. All information was de-identified prior to
In Australia, there are currently 25 music therapists work- being shared publicly.
ing in the pediatric hospital setting. Eleven music thera-
pists work in pediatric oncology (44%) across 8 hospital
Referral Source
sites, with 3 of these sites having full-time positions.
Practicing music therapists must be registered with the Using a scale of 1 to 5 (1 = most common, 5 = least com-
AMTA and are bound by its code of ethics. mon), each site was asked to rank referrals based on their
Australian music therapy clinical services provided in source (medical staff, nursing staff, allied health staff,
the pediatric oncology setting were evaluated via the dis- families/parents, and self-referral). Varied responses were
tribution of a national benchmarking survey. The purpose received, with no indication of a particular referral source
of this benchmarking survey was to provide a platform to consistently reported across sites as being most or least
share knowledge regarding varied models of care and common, except for medical staff heavily weighted
compare clinical practice with current evidence and con- toward least common (see Table 1).
sumer feedback, specifically, to establish the correlation As Table 1 indicates, allied health professionals and
between clinical service delivery and symptom manage- self-referral were highlighted as being the most common
ment, as determined by the literature reviewed. The referral source (38%), followed by nursing staff (25%).
benchmarking survey was necessary in order to confirm Least most common sources of referral were indicated as
current practice with the literature and avoid assumptions medical staff (63%), self-referral (25%), and families/
being made by the authors with regard to national clinical parents (13%).
service delivery.
The benchmarking survey was descriptive in design,
given the population was a specific cohort and informa-
Music Therapy Program Goals
tion sought related to specific aspects of music therapy The benchmarking survey asked music therapists to indi-
clinical service delivery. Questions were associated with cate program goals, as well as those most commonly
seeking data related to referral source, therapeutic goals, used. A clear correspondence between current evidence
program structure, assessment tools, and evaluation (see and symptom management in pediatric oncology was

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330 Journal of Pediatric Oncology Nursing 31(6)

of an assessment tool developed specifically by their site,


whereas one site reported using a modified version of a
published assessment tool.

Evaluation
There were differences reported in the evaluation pro-
cess; however, all sites reported using either formal or
informal evaluation. In accordance with the evidence-
based model of practice, these included patient and fam-
ily feedback surveys, staff surveys, a multisite research
project, quality activities, formal reporting to funding
bodies, and statistical data collection.
Figure 1. Benchmarking outcome: Music therapy program
goals.
Research
reflected in program goals integrated into clinical music At the time of data collection, 4 music therapists across 3
therapy practice. As Figure 1 indicates, emotional support sites were participating in a multisite research project.
and parent/child bonding is incorporated into all music Using a qualitative clinical data mining design, the 4
therapy programs, followed by rehabilitation (88%), anx- researchers adopted a music-therapist-researcher role
iety and pain management (71%), and procedural support to collectively examine their beliefs about music, includ-
(63%). There were some similarities and differences ing music therapys relevance for pediatric cancer patients
between sites regarding most common program goals; (OCallaghan et al., 2011). Data collection involved 4
however, these were still in accordance with current evi- phases: (a) a transcript of therapists audio recorded ini-
dence. Anxiety management, adjustment to illness, devel- tial discussion; (b) therapists additional reflections, writ-
opmental stimulation, emotional support, sensory ten when privately reading and validating the transcript;
stimulation, and socialization were indicated. Some sites (c) a transcript of the therapists second discussion; and
chose not to indicate ranking of program goals. (d) therapists additional reflections of second discussion
(OCallaghan et al., 2011).

Program Structure
Quality Activity
Data were also collected with regards to the structure of
the music therapy program. Music therapists were asked A quality activity was conducted at the Royal Childrens
to indicate whether services are provided to inpatients Hospital (RCH) Brisbane to collect data from patients
and/or outpatients, via group and/or individual sessions, and families within Queensland Childrens Cancer Centre
and whether or not music therapy sessions are sometimes (QCCC) in relation to music therapy services received.
combined with other allied health services. Quality activities are defined by RCH Brisbane as activi-
Seventy-five percent of respondents reported provid- ties that measure performance, identify opportunities for
ing music therapy as an inpatient and outpatient service, improvement in the delivery of care and service, and
with 25% providing inpatient services only. Eighty-seven include action and follow-up. Participation in quality
percent provide group and individual sessions, and 13% activities is considered general practice and is a job
individual sessions only. Regarding combined sessions description requirement for all allied health
with other allied health professionals, 63% report provid- professionals.
ing joint sessions with some variance of professions,
including physiotherapy, speech pathology, occupational History of Music Therapy Services
therapy, and psychology.
The RCH Brisbane was established in 1878 and is now
the largest specialist childrens hospital in Queensland,
Assessment Australia. It is a 168-bed, public specialist teaching
Music therapists were asked to indicate whether any for- hospital providing services across most health special-
mal written assessment tools are used in the development ties for children and young people aged 0 to 14 years
of music therapy programs. This question was very brief living in Queensland, northern New South Wales, the
and did not allow space to describe the frequency of use, nearby Pacific Islands, New Zealand, and Japan (RCH,
or other forms of assessment. Several sites report the use 2011).

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Tucquet and Leung 331

Table 2. Brief Description of Some QCCC Music Therapy Programs.

Music therapy program Brief description


Developmental stimulation Aims to support childrens developmental milestones
Rehabilitation Focuses on maximizing patients motivation, physical and emotional potential, to achieve
functional goals
Emotional support Allows patients, especially adolescents, the space to voice their feelings through songwriting or
simply making music together
Pain and anxiety Provides nonpharmacological strategies (in conjunction with pharmacological treatment) to
maximize therapeutic outcomes as well as patient and family empowerment and independence
Palliative care Plays a significant role in enhancing patients quality of life. By facilitating the process for patients
and families in music creation, a sense of community and comfort can be induced as well as an
opportunity to share experiences, feelings and build positive memories

Note. QCCC = Queensland Childrens Cancer Centre.

The Queensland Childrens Cancer Centre (QCCC) is nongovernment organizations, Redkite and the Royal
a state-wide pediatric cancer center with the tertiary ser- Childrens Hospital Foundation. The mission of the music
vice situated at the RCH Brisbane. The Queensland therapy department at RCH Brisbane is to build a stable
Pediatric Haematology and Oncology Network and the & supportive music therapy service, focusing on deliver-
QCCC work as an integrated entity to plan and provide ing family-centered and evidence based clinical services
quality care for patients through a well-coordinated team while expanding music therapy research horizons within
of multidisciplinary professionals across the state. The acute pediatric health care (Music Therapy Department,
RCH site of the QCCC provides both inpatient and outpa- Mission Statement of RCH, 2011).
tient cancer care including a Blood and Marrow Transplant Music therapy is available by referral for all oncology
Unit and access to radiation oncology services. inpatients who require intervention to assist with pain and
There are 2 dedicated oncology wards within RCH anxiety management, family/parentchild bonding
Brisbane consisting of 24 beds in total, with capacity for opportunities, emotional expression, engagement in
oncology patients to be housed in other wards when meaningful and positive experiences while in hospital
these are full or infection control dictates. Five beds are and as part of a developmental or rehabilitation program
isolated for bone marrow transplant, and 2 beds are spe- in conjunction with other therapists. Needs for referral
cifically designed to be suitable for palliative care are identified by medical, nursing, and allied health staff,
patients. On an average day, approximately 20 children with 8% of referrals received by allied health, followed
and young people would be inpatients on the oncology by 15% medical and nursing staff.
wards with approximately another 10 accommodated in On referral, the music therapist liaises with the mul-
other wards. The QCCC also provides outpatient ser- tidisciplinary team and conducts an assessment with the
vices in a dedicated Oncology Day Care Unit, which on patient and family to identify their needs and goals in
an average day would see approximately 60+ children relation to their medical experience and illness. A brief
and adolescents. description of some of the music therapy programs pro-
In 2010, the QCCC saw 134 new diagnoses of cancer vided at QCCC is outlined in Table 2. Every patient and
(does not include hematological diagnoses or relapses). family are unique, therefore each music therapy pro-
In 2009, there were 159 new diagnoses, 176 in 2008, and gram is tailored to meet their specific needs. When nec-
141 in 2007. The QCCC is staffed by a multidisciplinary essary, an active multidisciplinary team approach to
team including pediatric oncologists, radiation oncolo- treatment is implemented, and music therapy combines
gists, nurses, liaison nurses, a nurse practitioner, and vari- with other allied health in order to maximize therapeutic
ous allied health professionals providing both outcomes.
developmental and psychosocial input. Allied health ser-
vices include social work, child psychology, occupational
Patient/Family Feedback Survey
therapy, music therapy, speech pathology, pharmacy, and
dietetics. A 15-question survey was developed and distributed to
Music therapy was introduced to the oncology unit at all patients who received music therapy during their
RCH Brisbane in 1998 via a pilot program. Music ther- inpatient hospitalization from 2008 to 2010. The purpose
apy services at QCCC are currently provided by 1 full- of this survey was to obtain information from patients
time and 1 part-time registered music therapists. and families regarding their perception and experience
Respectively, these positions are funded by external of music therapy services and explore whether this was

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332 Journal of Pediatric Oncology Nursing 31(6)

congruent with the literature and benchmarking survey. Music therapy treatment was highlighted as the
This consumer feedback was intended to guide future most common theme in families perception of music
direction and areas for growth in clinical service therapy services (39%, N = 13). Parents expressed that
delivery. music therapy played a significant role in supporting
Ethics approval was not required as the survey was their child during procedures, distracting them from
considered low risk. The survey was distributed via post pain and anxiety. Music therapy was described as a
for those patients not in hospital and in person by a music tool in providing rehabilitation for children while
therapist other than the patients therapist for those who regaining their premorbid skills. Parents reported
were inpatients. music therapy also provided an opportunity for family
NonEnglish speaking parents were excluded, given bonding in the midst of an unpredictable and challeng-
an interpreter was not available. Parents who attended ing journey.
less than 2 music therapy sessions were also excluded, Parents opinions of music therapy as a service and
because of limited exposure to the service. Families of their gratitude toward the program and therapists was
patients who had passed away and those patients who had highlighted as the next most common theme (37%, N =
progressed to a palliative care stage of treatment were not 12). Parents commented on the importance of an accom-
invited to participate to respect space and privacy. modating and flexible service, which individually
addressed their childs needs at different stages of treat-
ment. Flexibility was described as not only the thera-
Design
pists approach and personality but also the logistic
Using a 5-point Likert-type scale, ranging from planning of the structure and duration of the program,
strongly agree to strongly disagree, the survey included intervention, and use of resources in supporting a range
a range of questions related to the role of music ther- of developmental, emotional, and physical needs of
apy and therapist (interaction, communication, inclu- their child.
sivity, approachability), structure of the music therapy Finally, parents perceived music therapy as a vital part
program (individual and/or group sessions, environ- of their childs mental health well-being and overall
ment), and perceived benefits to the patient (increased recovery (23%, N = 8). Music therapy was described as a
coping ability, improvement in developmental skills, consistent, professional, and positive service that directly
opportunities to express and explore feelings, enjoy- benefits patients and families.
ment, helping child during hospitalization). Space was
provided for any additional comments, thoughts or
ideas (see Appendix B).
Discussion
The qualitative and quantitative research in pediatric
oncology music therapy is growing as the field expands,
Results and the demand for nonpharmacological approaches to
There were 53 surveys distributed, and 72% returned (N = symptom management continues to increase. Evidence
38). Patients age ranged from 0 to 16 years (mean = 5 from the literature, combined with the outcomes of
years). Patients aged 12 years and older were provided national benchmarking, provides a baseline of current
with the opportunity to complete the survey indepen- practice and a pathway to the development of future prac-
dently, and 50% did so instead of their parents. tice. Results from the quality activity suggest that pediat-
Of the participating families and patients, 84% (N = 32) ric patients and their families need experiences that offer
indicated that music therapy was a valuable tool within the a sense of normalcy and control in an often chaotic
pediatric hospital. With regard to music therapy clinical environment.
outcomes, parents highlighted family bonding as the most The baseline of current practice in pediatric oncology
important component, followed by assisting with their provided by the results of the benchmarking survey
childs coping abilities and providing an avenue for self- indicate that music therapy services in Australia are
expression. Structurally, 45% (N = 17) of families identi- aligned with the literature, with regard to goals
fied a preference for additional group music therapy addressed. In the patient/family feedback survey, par-
programs. ents highlighted family bonding as the most important
Within the survey, 89% (N = 34) of parents provided component in relation to clinical outcomes, followed by
unsolicited additional written comments about their expe- assisting with their childs coping abilities, and provid-
rience of music therapy. A content analysis approach was ing an avenue for self-expression. This is compatible
used to quantify and analyze the data into 3 categories: with current practice, given the benchmarking survey
treatment, service, and perception of music therapy. highlights emotional support, parent/child bonding, and

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Tucquet and Leung 333

self-expression being 100% incorporated into clinical provision (44%). This suggests a strong foundation for
service delivery. growth, particularly with the intent of sharing clinical
The patient/family feedback survey also revealed par- expertise. Perhaps this process has already begun, with 3
ents reports that music therapy plays an important role in sites participating in multisite research analyzing the rel-
supporting their child during procedures, distracting them evance of music therapy in pediatric oncology
from pain and anxiety. This is reflected in the benchmark- (OCallaghan et al., 2011). Hopefully this project will
ing survey with pain and anxiety management (71%), and inspire further collaborative research within pediatric
procedural support (63%), being incorporated as program oncology and lead to increased communication as a pro-
goals. It is interesting to note that these components, fession to expand services within Australia.
highlighted by the participating consumers, are not inte- In consideration of our consumers, the quality activity
grated 100% into music therapy programs. This poses the revealed that patients and their families place greatest
question of differences in models of care among the dif- emphasis on music therapys ability to provide emotional
ferent sites, and how this may shape the role of music support to children with cancer. Parents referred to music
therapy given certain facilities may delegate a different therapy as playing an active role in helping their child to
allied health professional to be solely responsible for adjust to hospitalization and illness, develop positive cop-
addressing these needs. ing strategies during long-term hospitalization, connect
In relation to the structure of music therapy, a prefer- with the outside world and the normal part of themselves,
ence for more group music therapy programs was voiced and positively affect mental health and overall
by parents in the patient/family feedback survey. The well-being.
benchmarking survey indicates that most facilities do run A major limitation of this review is that the patient/
group programs (87%), with a small proportion providing family feedback survey was only distributed at one hospi-
individual programs only (13%), highlighting a prefer- tal site. Further sampling is required to gather more infor-
ence for more groups even though it is a service already mation from patients and their families and better inform
being provided. On further examination, most facilities clinical practice. It has already been mentioned that per-
providing group programs conduct them once weekly, haps differences in models of care affect the structure of
and some provide specific days throughout the year music therapy services. Further research that shares and
focused on different needs (eg, siblings). This informa- compares models of care, discusses the results of the
tion poses the question of whether there is capacity to benchmarking survey in more detail, and brainstorms a
consider more group programs, and whether or not extra questionnaire suitable for distribution to all patients and
funding would be required to meet this need. It also families within Australia would better inform practice
strengthens the value parents perceive of groups helping and provide further information for future direction.
to normalize the hospital environment for their children It would seem beneficial to clinical service delivery to
by providing social interaction with peers. These normal determine what elements of music therapy help to maxi-
activities are often lost opportunities outside of the hospi- mize childrens coping abilities. The national bench-
tal environment because of infection control risks while marking survey indicates that multiple sites evaluate
receiving treatment. It would be beneficial to further music therapy services via patient and family feedback
explore the reasoning behind this preference for more surveys. Future collaborative research could be focused
groups. on sharing this consumer feedback with each other, with
This national clinical practice review illustrates that in the aim of broadening our knowledge of our patient and
Australia music therapists work in pediatric oncology family needs and tailoring services accordingly. A sys-
practice similarly in some areas and differently in others. tematic method of collecting this data could be estab-
Although we are working with the same population, we lished through sharing our knowledge and clinical
are working at different facilities; it would be beneficial expertise.
to further explore how this affects the delivery of music To roll out this project nationally would be a big
therapy services. Are pediatric oncology models of care achievement for our profession in creating a solid foun-
similar among these facilities or varied, and how does dation of shared knowledge. If successful, the next phase
this influence the structure of music therapy? It seems could be to liaise with our overseas counterparts and
there is great scope to learn from each other and extend design and implement an international clinical practice
clinical service provision through our shared knowledge review of music therapy services in pediatric oncology.
base. This would establish a gold standard in regards to inform-
In Australia, pediatric oncology music therapy ser- ing clinical practice and improving outcomes for families
vices make up a large percentage of total pediatric service and patients.

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334 Journal of Pediatric Oncology Nursing 31(6)

Appendix A For example: ++ Rehabilitationmeans the most


common goal that you address in your music therapy
National Benchmarking Survey program
Questionnaire. The Royal Childrens Hospital (Brisbane)
Music Therapy Department is conducting a national sur- __ Emotional support
vey to benchmark Music Therapy Paediatric Oncology __ Developmental (Communication, Cognition, Physical)
services in Australia. __ Rehabilitation
This information will be included in an abstract sub- __ Parent/Child Bonding
mission to be presented at 2 conferences in 2010: __ Anxiety Management
Australia & New Zealand Children Haematology & __ Relaxation
Oncology Group (ANZCHOG) Australian Music __ Socialization
Therapy Association (AMTA) National Conference. __ Pain Management
The presentation aims to provide an overview of the __ Adjustment to hospital/illness
Australian Paediatric Music Therapy services within the __ Sensory stimulation
Haematology and Oncology area, with further focus on __ Self-expression
the Music Therapy service delivery at the Royal __ Procedural support (MRI, Port access)
Childrens Hospital (Brisbane). __ Play
We would like to invite your Music Therapy __ Distraction
Department/Program to participate in this survey. This __ Other (please be specific _________________)
will be a great opportunity to demonstrate the Paediatric
Music Therapy services across Australia in a national 4.Which of the following Music Therapy interven-
forum to other medical, nursing and health tions are used? (You may tick more than one)
professionals. Songwriting Improvisation
Your sites contribution will be acknowledged and you Song-singing Lyric discussion
will receive a copy of the PowerPoint presentation post Instrumental learning Instrumental playing
conference. We respect your decision if you do not wish Music listening Music and movement
to participate; however we will not be able to include Guided Imagery and Music
your service in our presentation. Music Software (Super Duper Music Looper, etc)

Thank you for your participation. 5.Which Music Therapy Modalities are offered?
Please email to: Maggie_Leung@health.qld.gov.au Individual Music Therapy Program
Maggie Leung (Clinical Senior Music Therapist) Group Music Therapy Program
Belinda Tucquet (Music Therapist, Redkite) Joint Therapy Programs (circle):

Please answer the following questions regarding PTOTSLPPsychologistsOther


only your oncology and hematology caseload within For:
music therapy.
For any questions that do not relate to your site Inpatient service ONLY
Please indicate not applicable. Outpatient service ONLY
For any questions that you do not wish to answer In- and Outpatient service
Please indicate not disclosed.
6.If group Music Therapy programs are offered,
1.How many music therapists are currently working please briefly describe your program (i.e., MT &
in oncology at your site? OT Outpatient Playskills weekly programpar-
2.How many hours per week is your department pro- ents and siblings are invited)
viding MT service within oncology?
3.Which of the following therapy goals are currently 7.What is the referral process to your Music Therapy
addressed within your music therapy program? dept/program? (You may tick more than one)
(Please to indicate your program goals for the Verbal referral at Team Meeting/Ward Round
MOST commonly focused goal, please add ++ and for Verbal referral at nurse station
the 2nd MOST common goal, please add +) Email

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Tucquet and Leung 335

Referral form (standardized referral form used Childs age: _______________________________


throughout the hospital) Length of Rx at RCH to date: ___________________
All of the above ___________________
Other: _____________________
Please circle the most relevant response.
8.Who makes the most referrals to Music Therapy?
(Please rank from 1-5, 1 = most common, 5 = least) 1.I was satisfied with the explanation provided by the
MT regarding their role.
Nursing staff
Medical staff 1 2 3 4 5
Allied Health Professionals
Strongly Disagree Neither Agree Strongly
Families/Parents disagree agree nor agree
Self-referral disagree

9.Do you employ any formal Music Therapy assess- Comment: _______________________________________________
ment tools? _________________________________________________________
If so: _____________________________________________
Developed by your site _____________________________________________
Existing published MT Assessment form _____________________________________________
(i.e., Individualized Music Therapy ___
Assessment Profile, 2007)?
2. The MT was approachable and caring.
10.How do you or your department evaluate the out-
comes of your Music Therapy Service? 1 2 3 4 5
11.Are you or your music therapy department cur-
Strongly Disagree Neither Agree Strongly agree
rently participating or conducting any research disagree agree nor
project? (If so, please briefly explainoptional) disagree

Comment: _______________________________________________
Appendix B _________________________________________________________
_____________________________________________
Patient/Family Feedback Survey
_____________________________________________
Service Evaluation Form _____________________________________________
Music Therapy (MT) ___
QLD Childrens Cancer centre (QCCC)
Thank you for completing this form to help us ensure that Please complete if relevant
we provide the best services to your child.
2.The MT interacted appropriately with my child/
Please note that completing this survey is entirely children.
your choice and will not affect your childs care in any
way. 1 2 3 4 5
Strongly Disagree Neither Agree Strongly
Please note that the abbreviation MT is used for disagree agree nor agree
either Music Therapy or Music Therapist. disagree

Personal Information Comment: _______________________________________________


Name of person completing form (optional): _________________________________________________________
___________________________ _____________________________________________
N.B. this will allow us to further discuss any ideas or _____________________________________________
issues that you may have. _____________________________________________
Childs diagnosis: __________________________ ___

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336 Journal of Pediatric Oncology Nursing 31(6)

3.The MT communicated appropriately with me and _____________________________________________


other family members. _____________________________________________
_____________________________________________
1 2 3 4 5 ___
Strongly Disagree Neither agree Agree Strongly
7.I believe that the MT was able to provide my child
disagree nor disagree agree
with opportunity to express/explore their feelings
Comment: _______________________________________________ through music.
_________________________________________________________
_____________________________________________ 1 2 3 4 5
_____________________________________________ Strongly Disagree Neither Agree Strongly
_____________________________________________ disagree agree nor agree
___ disagree

4.The MT appeared to welcome and be inclusive of Comment: _______________________________________________


_________________________________________________________
other family members.
_____________________________________________
1 2 3 4 5
_____________________________________________
_____________________________________________
Strongly Disagree Neither Agree Strongly agree ___
disagree agree nor
disagree 8. I believe that my child and family enjoy music
therapy.
Comment: _______________________________________________
_________________________________________________________
_____________________________________________ 1 2 3 4 5
_____________________________________________ Strongly Disagree Neither Agree Strongly
_____________________________________________ disagree agree nor agree
___ disagree

Comment: _______________________________________________
5.I believe that the MT was able to help improve my
_________________________________________________________
childs coping ability while in hospital.
_____________________________________________
_____________________________________________
1 2 3 4 5
_____________________________________________
Strongly Disagree Neither Agree Strongly ___
disagree agree nor agree
disagree Has your child attended:

Comment: _______________________________________________ Individual Music Therapy sessions


_________________________________________________________
Group Music Therapy sessions
_____________________________________________ Both
_____________________________________________
_____________________________________________ 9.I believe my child benefits from receiving individ-
___ ual MT sessions.

6.I believe that the MT was able to help improve my 1 2 3 4 5


childs developmental skills (i.e., play skills, com-
Strongly Disagree Neither Agree Strongly
munication skills).
disagree agree nor agree
disagree
1 2 3 4 5
Comment: _______________________________________________
Strongly Disagree Neither Agree Strongly _________________________________________________________
disagree agree nor agree _____________________________________________
disagree
_____________________________________________
Comment: _______________________________________________
_____________________________________________
_________________________________________________________ ___

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Tucquet and Leung 337

10. I believe my child benefits from participating in _____________________________________________


group music therapy sessions. _____________________________________________
_____________________________________________
1 2 3 4 5 _____________________________________________
______________________________
Strongly Disagree Neither Agree Strongly
Thank you for taking the time to complete this
disagree agree nor agree
disagree survey.
Please return to the MT Dept. using the replied paid
Comment: _______________________________________________ envelope OR drop it in the box at the MT/OT Dept.,
_________________________________________________________ Level 3 Coles Building, Royal Childrens Hospital (just
_____________________________________________ near entrance to the Banksia Day Unit).
_____________________________________________
_____________________________________________ Acknowledgments
___ The authors would like to acknowledge Queensland
Childrens Cancer Centre and thank the patients and families
11. If given the choice, would you prefer more: who participated in the consumer feedback survey. The
results received in the benchmarking survey from registered
Individual music therapy sessions music therapists working across various pediatric oncology
Group music therapy sessions sites within Australia is very much appreciated. The authors
would also like to acknowledge Redkite and the Royal
The MT service was provided in a suitable
12. Childrens Hospital Foundation for their generous funding of
environment. music therapy services within Queensland Childrens Cancer
Centre.
1 2 3 4 5
Declaration of Conflicting Interests
Strongly Disagree Neither Agree Strongly
disagree agree nor agree The author(s) declared no potential conflicts of interest with
disagree respect to the research, authorship, and/or publication of this
article.
Comment: _______________________________________________
_________________________________________________________ Funding
_____________________________________________
The author(s) received no financial support for the research,
_____________________________________________ authorship, and/or publication of this article.
_____________________________________________
___
References
13.Overall, MT was a valuable service in helping my Abad, V. (2003). A time of turmoil: Music therapy interven-
child. tions for adolescents in a paediatric oncology ward.
Australian Journal of Music Therapy, 14, 20-37. Retrieved
from http://search.informit.com.au/documentSummary;
1 2 3 4 5
dn=410062466283362;res=IELHEA
Strongly Disagree Neither Agree Strongly Barrera, M., Rykov, M., & Doyle, S. (2002). The effects of
disagree agree nor agree interactive music therapy on hospitalized children with
disagree cancer: A pilot study. Psycho-Oncology, 11, 379-388.
Barry, P., OCallaghan, C., & Wheeler, G. (2010). Music ther-
Comment: _______________________________________________ apy CD creation for initial pediatric radiation therapy: A
_________________________________________________________ mixed methods analysis. Journal of Music Therapy, XLVII,
_____________________________________________ 233-263.
_____________________________________________ Daveson, B. A. (2001). Music therapy and childhood cancer:
_____________________________________________ Goals, methods, patient choice and control during diag-
___ nosis, intensive treatment, transplant and palliative care.
Music Therapy Perspectives, 19, 114-120.
14. Please feel free to add any comments, thoughts or Daveson, B. A., & Kennelly, J. D. (1999). Music therapy in
palliative care for hospitalized children & adolescents.
ideas that you may have:
Journal of Palliative Care, 16(1), 35-38.
_____________________________________________ Kennelly, J. D. (2001). Music therapy in the bone marrow
_____________________________________________ transplant unit: Providing emotional support during adoles-
_____________________________________________ cence. Music Therapy Perspectives, 19, 104-108.

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338 Journal of Pediatric Oncology Nursing 31(6)

Ledger, A. (2001). Song parody for adolescents with cancer. Royal Childrens Hospital. (2011, September 15). About us.
Australian Journal of Music Therapy, 12, 21-28. Retrieved Retrieved from http://www.health.qld.gov.au/rch/about_
from http://search.informit.com.au/documentSummary; us/about.asp
dn=410211530053428;res=IELHEA Walworth, D., Rumana, C., Nguyun, J., & Jarred, J. (2008).
Nguyen, T., Nilsson, S., Hellstrom, A., & Bengtson, A. Effects of live music therapy sessions on quality of life
(2010). Music therapy to reduce pain and anxiety in chil- indicators, medications administered and hospital length
dren with cancer undergoing lumbar puncture: A random- of stay for patients undergoing elective surgeries for brain.
ized clinical trial. Journal of Pediatric Oncology Nursing, Journal of Music Therapy, XLV, 349-359.
27, 146-155. Willis, D., & Barry, P. (2010). Audiovisual interventions to
OCallaghan, C., Baron, A., Barry, P., & Dun, B. (2011). reduce the use of general anaesthesia with pediatric patients
Musics relevance for pediatric cancer patients: A con- during radiation therapy. Journal of Medical Imaging and
structivist and mosaic research approach. Supportive Care Radiation Oncology, 54, 249-255.
in Cancer, 19, 779-788.
Robb, S., Clair, A., Watanabe, M., Monahan, P. O., Azzouz, F., Author Biographies
Stouffer, J. W., . . .Hannan, A. (2008). Randomized con-
Belinda Tucquet, BComm, MMusThrpy, RMT, is a music
trolled trial of the active music engagement (AME) interven-
therapist at the Royal Childrens Hospital (Brisbane). She is
tion on children with cancer. Psycho-Oncology, 17, 699-708.
funded by Redkite and works full-time in pediatric oncology
Robb, S., & Ebberts, A. (2003a). Songwriting and digital video
and currently chairs the Australian Music Therapy Association
production interventions for pediatric patients undergoing
Inc Paediatric Health Reference Group.
bone marrow transplantation, Part I: An analysis of depres-
sion and anxiety levels according to phase of treatment. Maggie Leung, BMus, GDipMusThy, RMT, NMT, is the team
Journal of Pediatric Oncology Nursing, 20(1), 2-15. leader in the Music Therapy Department at the Royal Childrens
Robb, S., & Ebberts, A. (2003b). Songwriting and digital video Hospital (Brisbane). She has published in a number of journals
production interventions for pediatric patients undergo- in the use of music therapy to improve speech communication
ing bone marrow transplantation, Part II: An analysis of with children with an acquired brain injury. She is currently
patient-generated songs and patient perceptions regard- undertaking an evaluation of the music therapy clinical service
ing intervention efficacy. Journal of Pediatric Oncology delivery in oncology and pediatric intensive care unit in
Nursing, 20(1), 16-25. Australia.

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