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Health Policy xxx (2017) xxxxxx

Contents lists available at ScienceDirect

Health Policy
journal homepage: www.elsevier.com/locate/healthpol

E-health in Switzerland: The laborious adoption of the federal law on


electronic health records (EHR) and health information exchange
(HIE) networks
Carlo De Pietro , Igor Francetic
SUPSI DEASS Department of Business Economics, Health and Social Care, University of Applied Sciences and Arts of Southern Switzerland, Via Violino 11,
CH-6928 Manno, Switzerland

a r t i c l e i n f o a b s t r a c t

Article history: Within the framework of a broader e-health strategy launched a decade ago, in 2015 Switzerland passed
Received 6 December 2016 a new federal law on patients electronic health records (EHR). The reform requires hospitals to adopt
Received in revised form interoperable EHRs to facilitate data sharing and cooperation among healthcare providers, ultimately
28 September 2017
contributing to improvements in quality of care and efciency in the health system. Adoption is volun-
Accepted 3 November 2017
tary for ambulatories and private practices, that may however be pushed towards EHRs by patients. The
latter have complete discretion in the choice of the health information to share. Moreover, careful atten-
Keywords:
tion is given to data security issues. Despite good intentions, the high institutional and organisational
Electronic health data
e-health
fragmentation of the Swiss healthcare system, as well as the lack of full agreement with stakeholders on
Switzerland some critical points of the reform, slowed the process of adoption of the law. In particular, pilot projects
Policy development made clear that the participation of ambulatories is doomed to be low unless appropriate incentives are
Care coordination put in place. Moreover, most stakeholders point at the strategy proposed to nance technical implemen-
tation and management of EHRs as a major drawback. After two years of intense preparatory work, the
law entered into force in April 2017.
2017 The Author(s). Published by Elsevier Ireland Ltd. This is an open access article under the CC
BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).

1. Purpose of the policy can potentially bring great benets to the health system, mainly in
terms of greater efciency and better quality of care through better
In June 2015 the two chambers of the Swiss Federal Parliament information availability [2,3]. HIE networks are dened as the pro-
passed a law [1] that requires hospitals and nursing homes to adopt cess of sharing patient-level electronic health information between
interoperable patients electronic health records (EHRs) compati- different organizations [4]. HIE networks allow effective sharing
ble with national standards, i.e. with technical rules that facilitate and interoperability of EHR data among communities, providers
sharing of standardised data and the development of health infor- and actors, unleashing their full potential. Nevertheless, besides
mation exchange (HIE) networks. The federal law is in effect since a generalized gap between quality goals and achieved objectives
April 2017. Hospitals and nursing homes have respectively three [5], successful adoption of EHRs in industrialized countries was
and ve years to adopt such compatible EHR systems, whilst other hindered by different factors. These include concerns with secu-
healthcare providers will be encouraged to voluntarily adopt inter- rity, service continuity and privacy [6,7] coupled with the inherent
operable EHRs and contribute to their development. policy legislative complexity of such matters [2,8] as well as gener-
EHRs can be dened as repository of patient data stored in a alized lack of acceptance by providers, above all physicians [9,10].
digital format [2] containing past, current and possibly prospective The broad goal of the eHealth strategy for Switzerland, launched
data about patient, his/her health and clinical status. EHR systems by the Federal Government in 2007, is to help patients access and
share with selected providers their own health information. More
specically, the law aims at improving cooperation and integration
Open Access for this article is made possible by a collaboration between Health among healthcare providers, increasing transparency of health ser-
Policy and The European Observatory on Health Systems and Policies. vices as well as maintaining the Swiss health system up to date with
Corresponding author at: SUPSI DEASS, Via Violino 11, CH-6928 Manno, ICT developments.
Switzerland.
E-mail addresses: carlo.depietro@supsi.ch (C. De Pietro), igor.francetic@supsi.ch
(I. Francetic).

https://doi.org/10.1016/j.healthpol.2017.11.005
0168-8510/ 2017 The Author(s). Published by Elsevier Ireland Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-
nc-nd/4.0/).

Please cite this article in press as: De Pietro C, Francetic I. E-health in Switzerland: The laborious adoption of the
federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy (2017),
https://doi.org/10.1016/j.healthpol.2017.11.005
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2. Relevance
Box 1: The eHealth policy process in Switzerland
In other countries and setups, EHRs showed modest positive 2006 The Federal Council adds a new chapter titled Health and
effects on different measures of quality of care [1114] and con- the health service to the Strategy for an information society in
Switzerland.
rmed the potential positive impact on health information systems
2007 The Federal Office of Public Health publishes the eHealth
and patient data management procedures [1517]. On the other
strategy for Switzerland.
hand, the prospected efciency and cost-saving effects were so far 2008 The Confederation and Cantons establish a coordination
debated [18,19], rather pointing to increased workload in the short organism called eHealth Suisse.
run [20,21]. Despite the often limited evidence available and the 2013 The Federal Council approves the Health 2020 strategy,
call for more evaluations [5], EHR initiatives are spreading in most and to make greater use of e-health is recognised as objec-
industrialized countries, although there are many challenges on tive for the priority area Safeguard and increase the quality of
their way to a complete implementation [2,22,23]. healthcare provision.
The Swiss health system has good or excellent performances The Federal Council proposes to the Parliament a federal law
with regards to nearly all relevant OECD health status and quality of defining the development and adoption of interoperable EHR
systems by hospitals and other health providers.
care indicators [24,25]. On the other hand, the economic efciency
2015 The Parliament adopts the federal law, limiting the obliga-
of the health system is low, with Switzerland consistently ranking tion to hospitals and nursing homes. GPs and other healthcare
among the most expensive countries in the world [25]. An impor- providers will join EHR communities voluntarily [1].
tant barrier to efciency gains is represented by the high degree 2017 The Federal Council passes three implementation decrees
of fragmentation that characterizes the Swiss health system [26]. [3840] and the federal law [1], enters into force.
Fragmentation exists both at the institutional level, with 26 Can- 2018 Expected certification of first EHR communities and first
tons regulating the health system and a limited stance for national exchanges of health data within and between communities.
policies, and at the organisational levels, with many independent 2020 Deadline for adoption of interoperable EHRs by hospitals.
healthcare providers serving the same population and the strict 2022 Deadline for adoption of interoperable EHRs by nursing
homes.
separation between the health insurance companies and the health
services providers [26,27]. Institutional and provider fragmenta-
tion entails limited sharing of data and results in poor transparency
of the system [22,27], potentially representing a threat to health
care safety as well. In the own words of the Federal Government, The Confederation and Cantons decided to establish a coordina-
Today service providers are operating with too little coordination, tion body called eHealth Suisse, co-nanced by the Confederation
and too little use is being made of modern information technologies itself and the Swiss Conference of the Cantonal Health boards
(e-health). This leads to inefciency and duplication [28]. In the (GDK/CDS). The new body started to operate in 2008 with the main
current situation, the new federal law requiring compatible EHRs task of promoting interoperability of EHR solutions in all its dimen-
represents a potentially powerful tool to tackle the two challenges sions, this means at the technical, organisational, political and legal
mentioned above. level [30]. Thereafter, several local projects developed following
Compared to other countries, Switzerland can be seen as a the national strategy, most of them supported or originated by
late adopter of EHRs and HIE networks. According to 2015 data, Cantonal Governments.
Switzerland ranks among the last OECD countries (ahead of Turkey, In 2013 the Federal Government approved the Health 2020 strat-
close to Ireland and Japan) in terms of key health data availabil- egy [28], setting the Swiss health policy priorities over 4 areas and
ity, maturity and use [24]. A major determinant for this situation 36 objectives. To make a greater use of e-health was recognised
is certainly the institutional and organizational fragmentation that as one of the three objectives for the priority area Safeguard and
characterizes the Swiss health system. Moreover, many of the chal- increase the quality of healthcare provision (see Box 2). In the same
lenges in the development of EHRs in Switzerland were already year, the Government asked the Parliament to pass the new federal
highlighted in a 2013 OECD report [27]. The complex interaction law and allocated 30 million Swiss francs to support the develop-
of legal, organizational and technical conditions of the reform con- ment of e-health initiatives during three years after the entry into
tribute, in our opinion, to increasing the interest of the Swiss EHR force of the law, thus between 2017 and 2020.
policy process. Our contribution adds a number of updates and A few Cantons already promoted e-health initiatives before the
insights about the strategies implemented to overcome these chal- establishment of eHealth Suisse, achieving mild or poor results
lenges and move towards a successful introduction of EHRs and (with formal decisions to stop the initiatives or lack of diffu-
HIEs in Switzerland by 2020. sion/adoption by health providers). Failures can be attributed,
above all, to lack of incentives or legal obligations paired with
fragmentation of actors in the health system (public and private
3. Health policy processes hospitals, private practices, other providers, private insurers, can-
tonal authorities) [31].
The new federal law and its entry into force are the result of a After 2008, eHealth Suisse has been effective in coordinating and
long preliminary work, both technical and political, promoted by spreading ideas and experiences, as well as setting the ground for
the Federal Government. Box 1 lists the main milestones of this cantonal and local experiences. Important advances were made in
process. (i) dening a common glossary; (ii) clarifying the legal bases and
In 2006, the Federal Government revised the strategy for an requirements of the initiative (technical implications of patients
information society in Switzerland, originally written in 1998. A privacy, health data storage) [32]; (iii) setting IT standards for inter-
new chapter titled Health and the health service was incorpo- operability [33].
rated into the strategy. The primary focus of the Government in The role of insurers, a major owner of patient health information,
this chapter was electronic communication with and between the deserves special consideration. The Swiss eHealth strategy does not
authorities (e-government) and the use of information and com- include insurers among the actors involved in the development of
munication technologies (ICT) in the health system (eHealth) [29]. EHR and excludes explicitly insurance companies from the range of
Within this framework, the Federal Ofce of Public Health devel- actors allowed to access patients data. The choice reects the fear
oped a specic eHealth strategy for Switzerland, released in 2007. that insurers could take advantage of EHRs directly and indirectly,

Please cite this article in press as: De Pietro C, Francetic I. E-health in Switzerland: The laborious adoption of the
federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy (2017),
https://doi.org/10.1016/j.healthpol.2017.11.005
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Suisse, continuously supports and evaluates similar pilot studies


Box 2: Objective 3.2: Make greater use of e-health across the country [31].
E-Health tools can improve the quality of healthcare provi- Healthcare providers have generally shown a positive attitude
sion and patient safety by giving all healthcare professionals towards the principles of e-health, understanding its role within
access to relevant information and patients records at all loca-
the larger ICT trend and grasping the potential in terms of better
tions and times. In this way e-health contributes to greater
coordination and higher quality of care. However, when asked to
efficiency by avoiding duplication of diagnostic procedures.
Great attention must be paid to protecting personal data when adopt EHRs, providers especially the private ones were reluctant
implementing e-health. E-Health can intensify the coordina- and explicitly stated the need for public nancial support for imple-
tion between all stakeholders in the treatment process. This mentation in case of mandatory adoption. Patients organizations,
benefits patients, particularly those with complex chronic dis- whilst favouring the initiative, expressed concerns with data own-
eases. These improvements in quality will also reduce costs ership and security [36]. Despite not being affected by the reform,
in the medium and longer term. E-Health is an important ele- health insurers also praised the initiative but warned about poten-
ment in moving forward healthcare reforms designed to have tial problems that may arise from the proposed nancing model for
an impact on quality and costs. the implementation and management of EHRs by providers [37].
The major measures relating to e-health are:
The parliamentary debate about the law reects the lack of con-
Introduce and actively promote e-medication, giving doc- sensus around EHRs. In fact, compared to the initial version sent to
tors, pharmacies and hospitals electronic access to informa- the Parliament, the law was amended prescribing the obligation to
tion about patients medication. Increase patient safety by adopt EHRs only for hospitals and nursing homes, excluding other
reducing errors. healthcare providers [1].
Introduce and actively promote the electronic patient dossier
in order to increase the quality of healthcare provision and
patient safety and to support treatment processes and col- 4. Content of the reform
laboration between service providers.
Provide digital support for treatment processes such as
The federal law and the related decrees set the rules for the use
hospital discharge processes or integrated management pro-
of information contained in the patients EHRs, as well the measures
cesses throughout a treatment plan using the electronic
for promoting their diffusion and adoption [1,3840]. The explicit
patient dossier to provide the necessary data.
goals of EHRs are to improve the quality of care, patients safety, ef-
ciency of the healthcare system and promote health literacy among
the population.
The EHR envisaged by the current law allows storage and
for cream skimming and premium discrimination (for example retrieval of relevant health data produced by healthcare providers
in voluntary supplementary insurance). or by the patient himself.
Medical doctors and other health professionals, while support- The setup of an interoperable EHR requires the written con-
ing EHR in principle, do not favour the current implementation sent by the patient, which can withdraw from the system at any
process. In particular, they criticized the burden of legal and tech- time. The patient can access his health records, while all health-
nical requirements, the lack of detailed procedures for day-to-day care providers require explicit authorisation by the patient, along
operations and the unclear nancial consequences linked to the dened safety and access levels. To access EHR records, a secure and
implementation of such new systems in private practices. Ulti- veried electronic ID is required for both patients and providers.
mately, they ask for higher involvement and a general delay in In case of emergencies, or when the patient cannot express his
the process [34]. Besides the ofcial position, the mild reception will, healthcare providers can access the EHR. The patient will
of EHRs by MDs is also explained by (i) values and views of the be informed later about the exceptional access. The patient will
doctor-patient relationship, (ii) the lack of appropriate incentives also decide which data to share with other health actors (e.g. only
to share their patients health records and (iii) a large share of old MRI results and pharmaceutical records). Insurance companies and
GP practices that still rely on paper records. other actors not qualifying as healthcare providers are excluded
The difculties in spreading interoperable EHR in ambulatory from access. Moreover, the law excludes all secondary use of EHR
setting are well represented by a project recently promoted by data (e.g. scientic research), requiring specic request procedures
a southern Canton (Ticino). The pilot phase of the project lasted to EHR communities, federal and cantonal authorities [41].
18 months and was promoted for oncology patients. Despite the The new federal law introduced the necessary legal basis for
encouraging results from a technical point of view, the project electronic sharing of patient data. Due to the Swiss political feder-
struggled to recruit private oncologists, who did not perceive util- alism, each Canton has his own health, data protection and hospital
ity in joining the program [35]. Moreover, most doctors asked to laws. Cantons need therefore to amend their legislations in order
inhibit patients to access their health records on the grounds of to comply with the federal rules [41].
potential problems in the doctor-patient relationship. EHR systems are promoted and managed by so-called commu-
More positive results emerged from a relevant experience pro- nities, private legal bodies built around population groups (i.e. the
moted by a western Canton (Genve), aimed at developing EHR and whole population residing in a specic area or a Canton). Communi-
HIE for the population living in a limited cluster of municipalities, ties can be funded by groups of hospitals, GPs, pharmacies or other
instead of a single pathology area [31]. In this case, access to infor- existing networks of healthcare providers [41]. EHR communities
mation by patients gave leverage to the adoption of the EHR system, need to be certied by external bodies in order to guarantee com-
building on an information campaign targeting directly patients pliance with technical, legal, nancial and organizational standards
(invited to ask their doctors to be enrolled in the EHR system). In dened by the federal law and the related decrees, ensuring inter-
the case of Genve, the pilot project was later rolled out to the whole operability and functioning HIEs. IT data integration rules are set in
Canton. accordance with international standards, to allow future interna-
Other Cantons (for example Vaud, Zrich and St. Gallen) piloted tional integration of HIEs (e.g. with a European exchange) [40]. EHR
EHR data sharing communities among large public and university communities are responsible for data accessibility and record keep-
hospitals, with encouraging results in terms of participation of pri- ing related to data access [1], for data protection purposes. Access
vate practices (Table 1). The national coordination body, eHealth to data across communities will be granted by common operational

Please cite this article in press as: De Pietro C, Francetic I. E-health in Switzerland: The laborious adoption of the
federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy (2017),
https://doi.org/10.1016/j.healthpol.2017.11.005
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Table 1
Overview of EHR pilot projects in four Swiss Cantons.

Canton

Fribourg Genve St. Gallen Ticino


Geographic area Central-West West North-East South
Language(s) French and German French German Italian

Content of EHR and HIE Administrative and Administrative, imaging, Administrative, imaging, Administrative, medical,
pharmaceutical data medical and clinical data medical and clinical data and clinical data in
available to pharmacies oncology setting
and GPs
Role of patients Indirectly involved through Directly involved and Not involved, beyond Not involved, beyond
GPs encouraged to join, with informed consent, no informed consent, no
access to data access to data access to data
Lessons and implications The pilot was successful in Project later rolled out in The pivotal role of hospitals Low adherence among
enrolling patients and was the whole Canton was successful in attracting oncology private practices
well perceived and Direct involvement of GPs, in line with the actual due to concerns about data
supported by GPs patients proved to be a content of the law sharing with patients
successful lever on GPs to
join the community

Source: Authors own elaboration based on GDK/CDS (2017).

Fig. 1. Example of EHR communities and data ows.


Source: authors own elaboration.

standards and communication protocols. However, the patients dened in 2007. At that time, objective A6 stated: By the end
authorization will be required for any enquiry outside the original of 2012, it will be possible to transfer medical data electronically
patients community (e.g. if the patient lives in Geneva and visits a between the players in the health system; the procedure will be
public emergency department while on vacation in Ticino). structured, seamless and will ensure that no data are lost. All hospi-
Finally, it is worth repeating that the law requires hospitals to tals providing acute, non-psychiatric care, all integrated healthcare
adopt interoperable EHR systems and join a community by 2020 networks and the majority of doctors in private practice will be
(by 2022 for nursing homes). On the other hand, joining EHR com- using the electronic version of treatment-relevant information
munities will be voluntary for other healthcare providers, including from the patients personal medical records while objective A7
GPs and outpatient services, as shown in Fig. 1. prescribed that: By the end of 2015 everyone in Switzerland will
The law allows federal nancial support to develop EHR com- be able to grant service providers of their choice electronic access
munities for the period 20172020. To that end, the Federal to treatment-relevant information (electronic patient record) any-
Government allocated a 30 million Swiss francs budget. Federal where and at any time [29].
funds can cover IT needs, accreditation, etc. and are disbursed in
the form of matching funds, requiring at least the same investment
from Cantons or other actors involved in the process [1]. Finally,
5. Conclusion
the law states that Federal Government is responsible for the pro-
motion of EHRs, the information to all relevant actors as well as the
The development of interoperable EHRs in Switzerland was
coordination among Cantons and key actors [1].
slowed by several factors so far.
The federal law approved in May 2015 boosted the develop-
First, whilst the health system is seeing a relevant surge of fed-
ment of e-health in Switzerland, yet its results will be incomplete
eral regulation, Cantons maintain a pivotal role in organising and
compared to the goals of the initial eHealth strategy for Switzerland
often providing healthcare services. The establishment of a national

Please cite this article in press as: De Pietro C, Francetic I. E-health in Switzerland: The laborious adoption of the
federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy (2017),
https://doi.org/10.1016/j.healthpol.2017.11.005
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coordination body (eHealth Suisse) was a successful attempt to the denition of specic technical, security and organizational rules
addresses this issue, integrating the two levels of government. for interoperability, leaving to Cantons or providers networks the
A second factor that hinders the development of HIE networks is responsibility to develop the EHRs and the communities. This
the fragmentation of healthcare provision, with a plurality of public approach, which takes into account pragmatically the pluralism of
and private actors and a key role played by GPs in private practices, the Swiss health system, the political difculties to extend the obli-
that are not forced to adopt EHRs. The different e-health initiatives gation to the outpatient settings, as well as the focus on patients
need thus to be negotiated among a high number of actors and rights, could inspire and give specic suggestions to other countries
bodies, with different goals and priorities. with decentralized health systems struggling with the introduction
Institutional and organisational fragmentation explains at least of EHR and HIE systems.
partially the approach adopted by the Federal Government, pro-
moting interoperable bottom-up initiatives organised around the
Conict of interest
so-called EHR communities, instead of pushing for a national stan-
dardised programme. On the ip side, local initiatives can lack
The authors have no relevant interests to declare.
the sufcient political, nancial, and technical resources to suc-
ceed. For this reasons, several initiatives are currently in place to
develop inter-cantonal communities, whilst some small Cantons Acknowledgements
simply plan to join communities established in larger neighbour-
ing Cantons [31]. Analogously to similar e-health initiatives in other The authors would like to thank Mr. Carlos Garcia (e-health
countries, the pilot projects run so far conrm the struggle in per- Ticino) for his insightful comments to an earlier version of the
suading healthcare providers to adopt EHRs until the system does paper.
not contain enough useful information and enrolled providers. Put
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Please cite this article in press as: De Pietro C, Francetic I. E-health in Switzerland: The laborious adoption of the
federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy (2017),
https://doi.org/10.1016/j.healthpol.2017.11.005
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Please cite this article in press as: De Pietro C, Francetic I. E-health in Switzerland: The laborious adoption of the
federal law on electronic health records (EHR) and health information exchange (HIE) networks. Health Policy (2017),
https://doi.org/10.1016/j.healthpol.2017.11.005

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