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Learning Disabilities Partnership Board (“The Board”)

Terms of Reference (“ToR”)

The Terms of Reference describe what the board will do, how it
will do it and who will be part of it.

Aim of the Board

The aim is to help people who have learning disabilities and/or


autism to take part in the decisions that will affect them and
their Carers in Cambridgeshire.

The Partnership Board is a requirement of Valuing People 2001


and Valuing People Now 2010.

Who will tell the County Council what the Board does?

Representatives (one with a learning disability and one with


autism) of the Board will attend meetings of the Adult Social
Care Forum (ASCF). Then the representatives will report back
to the Board about any plans that will affect people with a
learning disability and/or autism and their Carers.

The representatives will be appointed by the Learning Disability


Partnership Board.

What the Board has to do.

1. Make sure that people with a learning


disability and/or autism always get the
chance to say what they think about the
Council’s plans.

2. Find out about how government plans


affect people locally. Report back to the
government about how well the Council is
doing.
3. Speak up for people with a learning
disability and/or autism and their Carers.

4. Have a clear way for people with a

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learning disability and/or autism and their
Carers to give and to receive important
information from the Council.

5. Be a link between service providers and


help them to work together.

6. Tell the Council what people with a


learning disability and/or autism and their
Carers think about the services they get
7. Be ready to say what goes right as well
as what goes wrong with services.
8. Help to make services better by telling the
Adult Social Care Forum when something
goes wrong
9. Tell the Council and service providers
when they do things well so others can
do the same.
10. Collect people’s stories so that social
care and health get better.
11. Help to stop wasting time and money
when different organisations do the same
things.
12. Share common problems with the other
Partnership Boards and other people who

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work with service users. Think of ways to
solve problems.
13. Act as a truthful friend that will make sure
the Council and other service providers
treat people with learning disabilities
and/or autism and their Carers equally
14. Ask for more information about what
people talk about or are worried about in
the meetings.
15. Make a report about everything the Board
has done during the year.

Health Sub-group

A sub group of the Board will meet 4 times every year to


help people have better healthcare. This group will report
back to the Board.

These are examples of some of the things the sub group


will talk about:

 The Self-Assessment and action plan

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 Access to Primary Care including annual health
checks
 Health Action Plans
 Transforming Care Programme and Building the
Right Support (BRS)
 Look at how nurses and GPs give each other
information
 Specialist health services
 Local Hospitals
 Helping people stay healthy and well
 Mental health

Board members and these people will attend:

 Learning disabilities nurses

 Healthwatch

 People who plan and commission the services

 Someone from Mental Health

 Someone from Safeguarding

 Someone from Public Health as corresponding


member.

Locality Groups

Cambridgeshire is such a large County; local groups have


been set up by the Learning Disability Partnership (LDP).
They are called Locality Networks. The localities are:

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 Cambridge City, South & East Cambridgeshire
 Huntingdonshire & Fenland

These networks meet 4 times every year. They must meet


up with people with Learning Disabilities and/or autism
and their Carers in the local area to talk about what is
important to them, to pass on information and tell other
people locally what they need.

These groups will also tell the Board how the Council
plan called Transforming Lives is working in their area.

Task and Finish Groups

 The Task and Finish groups will work on problems that


need extra time. Then they will report back to the Board.
 There will not be more than 8 Task and Finish Groups
every year.
 The Board will decide who will take part in these groups
and choose someone to be the leader.
 CAIL, or successor organisation, will help to organise
these meetings.

Board Members

(See the membership list for more details)


There will be 2 sorts of members on the Board.
1. Full members come to the meetings and speak up.
They can vote.
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2. Corresponding members are people who get all the Board
information but who don’t have to come. They can send in
information by phone or email. They cannot vote.

Sometimes people will come as guests. They cannot vote.

The Board will do its best to have half of its members from the
following groups:

1. Advocates for people with Learning Disabilities. They will


speak to and for others with Learning Disabilities in
 City and South
 East and Hunts
 Fenland.

There will be named people who will speak up for the following
groups:

 Young people
 High Support Needs

There will be a named person who will speak up for


people with autism

2. Family Carers of people with a learning disability.

3. A representative from the Carers Partnership Board

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4. Individuals with a learning disability and/or autism

The other half of full membership will be from:


 Learning Disability Partnership (LDP)
o The Head of LDP
o Service Managers
 Commissioner, Cambridgeshire County Council
 Children’s Services
 Healthwatch Cambridgeshire and Peterborough
 Cambridgeshire Clinical Commissioning Group (CCG)
 the Council’s provider services team
 an independent service provider.
 Cambridgeshire Police
 A County Councillor will also be invited to attend.
The following organisations will be corresponding
members:

 Public Health
 Mental Health, Cambridge & Peterborough
Foundation Trust

The Board should try to have members from different


communities in Cambridgeshire.

Representatives will stay on the board for up to 5 years.


The Board can decide to let a member stay on longer.

Co-Chairs
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 The board will have 2 co-chairs. They will make sure the
meetings keep to the Agenda and keep to time. They will
make sure all board members have their say.
 One co-chair will be a representative of people with
learning disabilities and/or autism.
 The representatives of people with learning disabilities
and/or autism will co-chair on a rota basis.
 The other co-chair will be a member of the LDP senior
management team.

People who want to join the Board

 If someone wants to join the Board first they will meet the
co-chair and/or someone from CAIL, or successor
organisation, to talk about the work.
 Any Board member can introduce someone and put them
in touch with CAIL, or successor organisation.
 A new person will have the chance to come to a meeting
and see what it’s like.
 The Board will vote to decide if they can join.

Pre-meetings

 This means a small meeting that takes place before the


main meeting.

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 One is for Family Carers to discuss what topics they would
like to talk about at the Board.
 One is for individuals with a learning disability and/or
autism
 One is for members of the Speak Out Council.
 Members will have support to get ready for and take part
in the meeting.

Accessibility
The Board has produced a set of guidelines (See
appendix A) to make sure the meetings are accessible.
 Everyone who joins the Board will get a copy.
 All guests will also be given a copy before the meeting.
 Terms of Reference, agendas and minutes will be in easy
read
 Presentations will be asked for in easy read
 Communication cards will be used at each meeting
 People who require other types of support will tell CAIL, or
successor organisation, so that they can arrange it

Communications
 The Minutes and any important information will be put on
the CAIL, or successor organisation, website.

How often will the meetings take place?

 Meetings will be held every three months.


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 Special meetings can be asked for by any member and
have to have the agreement of members and Co-Chairs.

 Any Board member can suggest an item for the Agenda.


They have to do this 4 weeks before each meeting.

 Agendas will be sent out to members at least 2 weeks


before each meeting. They will also be on the CAIL, or
successor organisation, website.

If there is a problem
If someone has a personal problem or would like to
complain they will have support to do this. This will take
place outside of the main meeting. The meetings are not
the place for personal issues.

How long will these rules last?


 The Board will look at these rules again after 3 years.
 If there are any changes they will be put in the new Terms
of Reference.

These Terms of Reference were adopted by the Board on:


21st March 2018.

The Board will look at them again in: March 2021.

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