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ISSUES IN FAMILY CARE

Family assessment tools: A review of the


literature from 1978-1997
Barbara Neabel, RN, MScN, Frances Fothergill-Bourbonnais, RN, PhD, and Jean Dunning, RN, PhD,
Ottawa, Ontario, Canada

Traditionally, nursing practice in critical care settings has been focused on recognizing and addressing
the needs of the patient with an acute and serious health problem and individual family members. Lit-
tle progress has been made in understanding how families manage this hospitalization experience; how-
ever, family health has been reported to be a significant factor in the patient’s recovery. The purpose of
this article is to review the literature from 1978 to 1997 that has examined family assessment tools in
a variety of clinical settings. The ultimate goal of the review is to determine their usefulness for critical
care environments and their congruence with family systems nursing, which is aimed at the cognitive,
behavioral, and affective domains of family functioning. The following characteristics are used to review
each of the selected instruments: theoretical framework; purpose; description; the unit of analysis; ease
of administration and scoring; reading level; psychometric evaluation; and utility to guide clinical prac-
tice and research. Although the instruments have a variety of strengths, none of them are congruent
with the philosophy of family systems nursing. Therefore instruments need to be developed that would
guide assessment and interventions for nurses in critical care settings. (Heart Lung® 2000;29:196-209.)

T raditionally, nursing practice in critical care


settings has been focused on recognizing and
addressing the needs of the acutely ill patient
and individual family members. However, little
bers of critically ill patients need to expand their
practice to care for the patient and the family as a
unit. This focus may help nurses better understand
the family’s life situation and promote family
progress has been made in understanding how health.3
families manage this hospitalization experience.1 Recently, nursing scholars have legitimized fam-
Admission to an intensive care unit (ICU) frequent- ily nursing as a unique body of nursing knowledge.
ly is a result of an unexpected onset of illness or The nursing literature stresses the importance of
injury and uncertain outcomes. Often the family has understanding and intervening with a patient’s
little experience with critical illnesses, but they are family to create an environment supportive to the
required to make rapid decisions regarding the health of the ill individual.4,5 Although there is
care of their family member. It is difficult to be growing recognition in the nursing literature con-
adequately prepared for such an experience. The cerning family-centered care, it remains an ideal
cumulative impact of the critical illness results in practice.5,6 Certain factors limit the extent to which
disruptions in home routines in the family2 and a family focus in critical care can be provided. For
may have detrimental effects on the family unit. example, budget cuts have resulted in fewer nurs-
Health care professionals working with family mem- es and therefore less time is available for attention
to other than immediate physical care needs of the
patients. In addition, nursing education, until the
From the School of Nursing, University of Ottawa.
last decade, has had a limited focus on family nurs-
Reprint requests: Barbara Neabel, RN, MScN, 225 Davisville Ave,
Apt. 2515, Toronto, Ontario, M4S 1G9 Canada.
ing.7 Consequently, the lack of educational prepa-
Copyright © 2000 by Mosby, Inc.
ration may be a barrier to family nursing.8-10 In
0147-9563/2000/$12.00 + 0 2/1/106938 spite of these hindering factors, the purpose of
doi:10.1067/mhl.2000.106938 family nursing as part of routine care in critical care

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Neabel, Fothergill-Bourbonnais, and Dunning Family assessment tools

settings is to enhance the promotion of family The purpose of this article is to review the liter-
strengths and coping skills, which may help to ature that has examined family assessment tools in
maintain the family’s health. Family health has a variety of clinical settings. The ultimate goal of
been reported to be a significant factor in the the review is to determine the usefulness of avail-
patient’s recovery.6 able assessment tools for use in critical care set-
Increased consumer awareness and current limi- tings and whether these tools are congruent with
tations of the health care system have created a cli- family systems nursing, which is aimed at the cog-
mate for change. Now is the time for family nursing nitive, behavioral, and affective domains of family
to be embraced in tertiary settings.6 Shorter hospi- functioning as noted in the Calgary Family Inter-
tal stays, advances in technologically dependent vention Model.13 By being cognizant of family
supportive health care, and a decrease in profes- assessments tools, critical care nurses will be able
sionally provided home health care services have to select the most appropriate one to implement in
created a situation where many families must their practice.
assume care-taking activities.11 Health care profes-
sionals recognize that families must assume more BACKGROUND
responsibility for care once their family member is Over the past 20 years, the focus of research on
discharged from the hospital. However, many fami- family assessments in critical care settings has pri-
lies are not prepared to assume the role of caregiv- marily been on identifying the educational and
er because of (1) the complexity of care that is psychosocial needs of spouses or parents,
required, (2) the added stress of taking on another although other family members have been includ-
role, particularly for women who are already jug- ed. For example, the Critical Care Family Needs
gling many responsibilities, and (3) diminished Inventory (CCFNI) has been used almost exclusive-
extended families.6 Early interventions strengthen ly to assess the informational and psychosocial
the family and minimize real and potential family needs of families. However, few studies have
problems that can develop as a result of the critical focused on identifying how families manage during
illness.4,12 For example, interventions that are critical illnesses. More studies are needed to
planned and systematic may help to save nursing enhance nursing knowledge of this population. Lit-
time and improve family outcomes.12 tle research exists that has been directed toward
For nurses to have a pivotal role in helping fam- understanding the needs of the family as a unit or
ilies adjust to the hospitalization experience and to the development of nursing interventions to
subsequent discharge, they first need to under- assist families in the management of an acute or
stand the family unit, what the critical illness means critical illness.14-21 The emphasis of those nursing
to the family members, how they have been affect- strategies that do exist has been on the provision
ed by the illness, and the support they require. of information to meet the cognitive needs of indi-
Therefore it is important for nurses to conduct com- vidual family members. Addressing the informa-
prehensive family assessments to gain a better tional needs reflects only part of the process of a
understanding of the family’s construction of the ill- family’s adjustment to critical illness. Interventions
ness event. must also consider the behavioral and affective
Four intrinsic elements in family nursing assess- needs of families. Interventions that target the 3
ments include (1) having a human caring presence, domains of family functioning (cognitive, affective,
(2) acknowledging multiple perceptions, (3) and behavioral) may assist the family in finding
respecting diversity, and (4) valuing each person in new solutions to their problems.13 A paucity of
the context of the family.3 These elements are con- instruments exists to direct nurses toward assess-
sistent with family systems nursing in that all mem- ment of and interventions for more than the cogni-
bers of the family are involved in the assessment tive needs of families. However, a number of instru-
process. It would be beneficial for critical care nurs- ments are available to assist nurses with complet-
es to have an assessment tool that would not only ing family assessments. It should be noted that few
allow them to perform family assessments but also of these instruments have been used in research
provide appropriate nursing interventions to help studies, and few have been used with families of
the patient’s family. Such a tool would target fami- patients who are critically ill.
lies to help them deal with the critical illness of Ideally, assessment instruments should develop
their family member and subsequently improve from a theoretical framework, which can help orga-
the patient’s outcome. nize the nurse’s thoughts, observations, and inter-

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Family assessment tools Neabel, Fothergill-Bourbonnais, and Dunning

pretation of the data gathered and provide a ratio- Family Assessment Device (FAD)37; Family Envi-
nale for interventions.12,22 To date, little attention ronment Scale (FES)38; Family Crisis Oriented Per-
has been paid to the congruence between the the- sonal Evaluation Scales (F-COPES)39; Family Needs
oretical philosophy of family nursing, the definition Assessment Tool (FNAT)40; Family Functioning
of the family unit, and subsequent inferences and Index (FFI)41; and Critical Care Family Needs Inven-
conclusions about family function when selecting tory (CCFNI).42
an assessment tool.1,22 Consequently, potential
problems may develop, such as family needs being CRITIQUE OF NINE FAMILY
overlooked and interventions being initiated that ASSESSMENT TOOLS
are not meaningful or beneficial to the family. The Theoretical basis
next section focuses on the process of reviewing
the family assessment tools for their potential use- The selected instruments originate from a vari-
fulness in critical care environments. ety of theories, such as family social science theo-
ries, general systems theory and structural-func-
METHODS tional theories in particular. General systems theo-
The nursing literature related to family assess- ry is appropriate for studying the family because it
ments from 1978 to 1997 was reviewed through a is concerned with viewing the family as a whole
computerized search of the Cumulative Index to rather than each member separately. The underly-
Nursing and Allied Health Literature (CINAHL), ing premise is that individuals are best understood
Medline, and PsycINFO. The key words used for in the context of their family.12 In addition, systems
the search strategy included acute care, critical theory allows for viewing families as part of a larger
care, tertiary care, family needs, family assessment, suprasystem, such as their community or family
family interventions, and research instruments. subsystem (eg, parent-child relationship).5,12,13,43,44
Additional sources were obtained from the refer- General systems theory is the underlying frame-
ence lists of pertinent articles. Seventeen assess- work of the Circumplex Model of Marital and Fami-
ment instruments used in a variety of clinical set- ly Systems.45,46 This model offers a dynamic view of
tings were found in the literature. Eight of these families adapting to the developmental changes
instruments were not appropriate because (1) four that occur during the life cycle.44 The model is also
were modified versions of the CCFNI (Family the foundation for FACES III.47
Needs Questionnaire,23 Family Inventory of The theoretical foundation for the FFFS is an
Needs,24 Daley’s questionnaire,25 and Norris and ecologic framework35 supported by general sys-
Grove’s questionnaire26) and therefore used simi- tems theory5 and developmental theories.48,49
lar questions; and (2) four were used to measure Although this framework views the family from a
the needs of parents of young children who had systems perspective, the focus is directed toward
disabilities in a home or community-based setting the examination of the interdependence of family
(Family Needs Survey,27 Support Functions Scale,28 members with one another and their environ-
Family Needs Scale,29 and Parents Need Survey30). ment.50 Individual and family development occurs
The remaining 9 instruments were subsequently as a result of these interactions.49 This framework
examined because (1) they offered a global per- acknowledges that the family system is dynamic
spective on family assessment; (2) they could be and in a state of constant change and adaptation.
easily implemented in critical care settings; and (3) Structural-functional theory is the underlying
they have established reliability and validity for framework for both the Family APGAR51 and FAD.37
use in research and clinical practice. The structural-functional theory views the family as
Each of the selected instruments was reviewed a social system but focuses more on family func-
on the basis of the following characteristics: theo- tions. Examples of family functions include meet-
retical framework, purpose, description, the unit of ing the family members’ psychological needs, pro-
analysis, ease of administration and scoring, read- viding physical necessities such as food and cloth-
ing level, psychometric evaluation, and utility to ing, and socializing children.5 This theory also
guide clinical practice and research.31-33 The fol- emphasizes the relationships between the family
lowing tools were selected and are summarized in and its individual members and the family struc-
the Table: Family Adaptability and Cohesion Eval- ture and its ability to perform family functions.43
uation Scales III (FACES III)34; Feetham Family The McMaster Model of Family Functioning37
Functioning Survey (FFFS)35; Family APGAR36; stems from the structural-functional theory and is

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Table
Summary of 9 family assessment tools

FACES III FFFS Family APGAR

Authors Olson et al (1985) (as Roberts & Feetham Smilkstein (1978)


cited in Olson, 1986) (1982)
Theoretical Circumplex Model of Ecological framework Common themes in
framework Marital & Family Sys- (general systems social science literature.
tems (general systems theory) The framework is
theory) reported to be struc-
tural-functional.51
Purpose To provide an assessment To provide information To be used as a utili-
on how individuals on parent’s perception tarian screening tool
perceive their family of family relationships to provide information
and the description of and functioning. on the satisfaction of
their ideal family. family functioning.
Description A self-report question- 21-item self-report 5-item self-report ques-
naire with 20 items questionnaire measur- tionnaire measuring 5
that measures 2 dimen- ing 3 areas of family areas of family func-
sions of family func- functioning on the basis tioning: adaptation,
tioning: cohesion and of relationships between partnership, growth,
adaptability.34 It pro- the family and social affection, and resolve.
vides a linear measure.66 unit, subsystems, and
Linear measures are individual members.
reported to have a
straight–line cause-and-
effect, or A leads to B.5
Unit of Whole family Whole family Whole family
analysis
Ease of The tool is taken twice Takes 10 min to com- Very quick to complete.
adminis- to measure their per- plete. The Porter format Five questions with 3
tration and ception and their ideal is used to allow for 3 possible responses
scoring description. The discrep- direct measures and 1 (2, 1, 0). The total
ancy between the 2 indirect measure. Each score range is from 0
measures provides a item is rated on a to 10. The larger the
measure on family 7-point scale.35 Scoring score the greater
satisfaction. The larger format is slightly com- amount of satisfaction
the discrepancy the less plicated.47 with family functioning.
satisfied the person is Similar tool with 5 res-
with his or her family. ponses for each item is
It takes 10 min to com- used for research.60
plete the tool and each
item response is on a
5-point Likert scale.47
Reading level For people 9 y and May be difficult for Can be used for people
older47 those who do not have over 10 y old.60
a high school educa-
tion.47

Continued.

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Table (Cont’d)
FACES III FFFS Family APGAR
Reliability Homogeneity: internal Homogeneity: Cronbach’s Homogeneity: Interitem
consistency for the alpha reliability coeffi- correlation ranges from
tool, r = 0.68; for cohe- cient for the 4 scores r = 0.46-0.64. Split-half
sion, r = 0.77; for obtained from 103 reliability index is
adaptability, r = 0.62. mothers ranges from r = 0.93.64 The internal
0.66 to 0.84. The inter- consistency for the tool
Stability: The 4- to 5-wk nal consistency for the
test-retest for FACES III is r = 0.86.
tool is r = 0.81.
is r = 0.83 for cohesion Stability: 2-wk test-retest
and r = 0.80 for adapt- Stability: The 2-wk test- is r = 0.83 for 100
ability. retest is r = 0.85 for 22 students.60
mothers.35
Validity Content: The authors of Content: 5 sources were Construct: Correlation
the tool state there is used: literature, previ- of Family APGAR with
good evidence for con- ous research, clinical FFI is r = 0.80 with 33
tent validity; however, observations, experts, nonclinical respondents.
no information is pro- and parents who dis- In this same group, the
vided. cussed the instrument interspouse correlation
with the developers. is 0.67 for the Family
Construct: Correlation
between scales: cohe- Concurrent: The corre- APGAR and 0.65 for
sion and adaptability, lation coefficient the FFI. The correlation
r = 0.03; cohesion and between the FFFS and of Family APGAR with
social desirability, FFI for 103 mothers is family therapist in the
r = 0.39; and adaptabil- r = –0.54 (P < .001). clinic group is 0.64.64
ity and social desirability, Criterion: Family
Construct: Factor analysis
r = 0.00. The correlation APGAR score can dif-
supports the 3 areas of
between family mem- ferentiate between test
family functioning as
bers (n = 370) for cohe- and control groups,
relationships.35
sion is r = 0.41 and adopted and biological
adaptability is r = 0.25. children, and students
Criterion: There is good separated from parents
evidence that FACES III and those living with
can discriminate parents. The test group,
between groups; how- adopted children, and
ever, this is not expand- students separated from
ed upon by Olson.34 parents have signifi-
cantly lower Family
APGAR scores.60
Utility to It is helpful for assessing The FFFS measures 3 It serves as a screening
guide clini- change over time.34 It areas of family function- test36 and guides inter-
cal practice measures relevant fac- ing that are important in ventions because there
and tors for nursing.33 Cutoff health assessments. The is some normative
research scores are available that preliminary reliability data.64 The tool mea-
will increase its useful- and validity test supports sures relevant factors.33
ness.47 the FFFS’s potential as a The tool allows a quick
clinical assessment tool. assessment of family
However, additional test- function as a resource
ing is required for other for social support for
patient populations be- the patient.47
sides families of children
with myelodysplasia.

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Neabel, Fothergill-Bourbonnais, and Dunning Family assessment tools

FAD FES F-COPES


Authors Epstein et al (1983) Moos & Moos (1976) McCubbin et al (1987)
Theoretical McMaster Model of Family Systems Theory47 Double ABCX Model of
framework Family Functioning Family Adjustment
(structural-functional and Adaptation (family
theory) stress theory)
Purpose To screen family func- To measure perceived To identify problem-
tioning on 7 various family interactions56 solving and behavioral
dimensions. It is also by assessing the family strategies used by
used to distinguish social environments.38 families during a crisis.
between healthy and
unhealthy families.47
Description A 60-item self-report A self-report question- A 29-item self-report
questionnaire with 7 naire or with modifica- questionnaire with 5
subscales: problem tions it can be used by subscales: acquiring
solving, communica- an interviewer. It consists social support, refram-
tion, roles, affective of 90 true or false items ing, seeking spiritual
responsiveness, affective that measure 3 dimen- support, mobilizing
involvement, behavior sions: relationship, family to acquire and
control, and overall personal growth, and accept help, and passive
general functioning.67 system maintenance. appraisal.
There are 10 subscales.
Additional forms exist,
such as Real Form (Form
R to describe the current
environment); Ideal
Form (Form I to describe
the ideal family); and
Short Form (Form S to
be used in research be-
cause it has only 40
questions).63
Unit of Whole family Whole family Whole family
analysis
Ease of Takes 15-20 min to com- It is easy to administer The time to complete the
administra- plete. Family members and score, and there is questionnaire is not
tion and rate their agreement or no time limit.47 Scores reported. Each item is
scoring disagreement with each are totaled for each rated on a 5-point Lik-
item on the basis of subscale with higher ert-type scale ranging
how well it reflects scores representing a from 1-5.39 For each
their family. There are positive environment.58 subscale a summary
4 possible responses for A family profile is score can be obtained. A
each item, from strongly generated by averaging total score is obtained by
agree to strongly dis- the family members’ adding the items. Four of
agree.47 Scores for each scores and comparing the items require reverse
subscale are averaged the subscale averages scoring to weigh all items
and range from healthy with normative scores.58 in a positive direction.
(1.0) to unhealthy (4.0). The tool can be adminis-
tered to family members
12 y of age and older.57
Reading Approximately 6th Easily understandable56 It is appropriate for people
level grade47 12 y of age and older.

Continued.

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Family assessment tools Neabel, Fothergill-Bourbonnais, and Dunning

Table (Cont’d)
FAD FFS F-COPES
Reliability Homogeneity: Cronbach’s Homogeneity: Internal Homogeneity: Cron-
alpha for subscales ranges consistency for the 10 bach’s alpha for the
from 0.72 to 0.92. The subscales ranges from subscales ranges from
internal consistency for 0.64-0.79. The internal 0.63-0.83. Internal
the tool is not reported. consistency for the consistency for the
Correlation among the tool is not reported. The tool is r = 0.86.
subscales ranges from
r = 0.37-0.76. When the average subscale inter-
Stability: The 4-wk test-
general functioning correlations are 0.20.
retest for the subscales
subscale is held constant, Stability: The 8-wk test- ranges from 0.61-0.95,
the correlation among the retest ranges from and for the total tool
remaining 6 scales ranges
from r = 0.01-0.23. 0.68-0.86. it is 0.81.

Validity Construct: To determine Validity is seldom Construct: Factor


construct validity, the reported on the FES.63 analysis revealed 5
score obtained from the Researchers document- factors.
instrument was correlated ed that although empir-
with the scores obtained ical studies have been
from FACES II and Family done, little of this infor-
Unit Inventory. Correl-
tion between FAD and mation is provided.
Family Unit Inventory Most of this informa-
closely approximated pre- tion is documented in
dictions. However, corre- unpublished manu-
lations between FAD and scripts.
FACES II did not support
the hypothesis, indicating
the 2 instruments mea-
sure different constructs.65
Criterion: By use of regres
sion analysis, the FAD
predicted 28% variance
(r = 0.53) for husbands on
the Wallace Marital Satis-
faction Scale and 17%
variance (r = 0.41) for
wives.65 The FAD is able
to distinguish between
nonclinical and clinical
groups (66% nonclinical
and 64% clinical, P <
.001).37
Utility to The cutoff limits for healthy It is useful for measuring Normative data are avail-
guide clin- and unhealthy family change over time.33 It able for adolescents and
ical prac- functioning have accept- is useful to change the adults of both sexes. The
tice and able sensitivity, specificity, focus from the individ- information will help
research and positive predictive ual to the family.56 It is nurses to know which
value.65 This would be also useful for clarify- families may need addi-
helpful for providing
nursing interventions. ing the nature and tional assistance with
The 7 subscales provide extent of disagreement managing the crisis. In
a detailed picture of in families when addition, the normative
families, which makes it using the Ideal Form data may help nurses
useful. It measures areas and Real Form. compare family cop-
that nurses could ing and develop mod-
change.33 els of family coping in
clinical studies.57

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FAD FFS F-COPES


Authors Rawlins et al (1990) Pless & Satterwhite Molter & Leske (1983)
(1973) (as cited in Leske,
1986)
Theoretical King’s Theory of Goal Not reported by the Comprehensive litera-
framework Attainment authors except that the ture review in crisis and
choice of questions was human need theories
eclectic and came from
theoretical knowledge.
Purpose To provide information To assess the strength of To provide a practical
on the needs of families family relationships and useful instrument
with chronically ill and lifestyles and iden- to assess the degree of
children. tify families who require importance on a wide
additional assistance. variety of needs with
family members of
critically ill patients.
Description 54-item self-report ques- 15-item self-report A self-report question-
tionnaire consisting of questionnaire covering naire consisting of 45
9 subscales that cover 3 6 dimensions of family need statements and
general areas of needs: functioning: intrafami- an open-ended ques-
information, services, ly communications, tion. It measures 5
and obstacles to treat- cohesiveness, decision areas: support, comfort,
ment. making, marital satis- information, proximity,
faction, general level and assurance.
of happiness and close-
ness in the family unit.
Unit of Whole family Whole family Whole family
analysis
Ease of Not reported Easy to administer, scor- It is easy to administer
administra- ing is simple, a value and scoring is simple.
tion and of 0, 1, or 2 is assigned Each need statement
scoring depending on how is rated from 1-4, with
congruent the response 1 as “not important”
is to the family’s opti- and 4 as “very impor-
mal functioning, higher tant.” Length of time
scores represent more to complete the
desirable functioning. questionnaire is not
The scoring is slightly reported.
complicated.33
Reading Not reported It is appropriate; how Appears to be appro-
level ever, because the priate
response format
varies, it may be con-
fusing.47

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Table (Cont’d)
FNAT FFI CCFNI

Reliability Homogeneity: The inter- Homogeneity: The Homogeneity: Internal


nal consistency is not internal consistency is consistency is reported
reported. Primary not reported. Correla- to be r = 0.92.
factor reliability ranges tions between the
Stability: 24-h test-retest
from r = 0.773-0.944, factors and the total
ranges from 64.71%
and secondary factors instrument for the
to 96.08% exact
range from r = 0.841- mothers is r = 0.21-
agreement for item by
0.884. Primary factor 0.95, and for the fathers
item.68
correlations range from it is r = 0.07-0.96.
0.05-0.6, and secondary
factors range from Stability: 5-y test-retest
–0.34 to 0.23. is reported to be 0.83
(P = .001).63
Stability: 2-wk test-retest
on 20 parents is r = 0.77.
Validity Content: 2 doctorally Construct: The correlat- Construct: Factor
prepared nurses and 20 ed results of FFI scores analysis reveals 5
parents screened the of parents of new factors: support,
items for representa- clients with social comfort, information,
tiveness and coverage workers are mothers, proximity, and assur-
of needs. Multiple r = 0.48 (P < .01) and ance. Factor correla-
regression in the pilot fathers, r = 0.35 tions range from
study indicated that (P < .013); correlation r = 0.07-0.39. Factor
almost all items were of mother’s scores with alpha coefficients
predictive of overall nonprofessionals is range from 0.61-0.88.
needs. r = 0.39 (P < .001); The item-total correla-
correlation of Family tions range from
Construct: Factor analysis 0.25-0.60. Only 2 items
APGAR with FFI is
suggests 9 primary
r = 0.80.63 The tool did not correlate higher
factors and 3 secondary than 0.20: to know
can differentiate
factors. the prognosis
between healthy and
clinic families. (r = 0.15) and to have
questions answered
Criterion: The authors honestly (r = 0.17).61
hypothesized that
families seeking assis-
tance would have
lower FFI scores. The
results were significant
with t = 7.7, df = 387
(P < .001).
Utility to It has potential as a use It has potential for The tool assists nurses
guide clini- ful clinical tool. It is screening families; to identify family
cal practice restricted to identifying however, the strength needs on the basis of
and needs of families with of this would be the perceptions of the
research chronically ill children in increased if the psy- individual completing
the 3 general areas pre- chometric properties the questionnaire.
viously described. How- were stronger.47 It is Researchers hope this
ever, the tool would not sensitive to short- will help nurses pro-
assist nurses in planning term changes.33 vide the interventions
care once the needs are to meet the family’s
identified. needs.

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the foundation for the FAD. This model describes expand on the theory used to develop the FFI. The
the structural and organizational properties of the CCFNI is based on a comprehensive literature
family and transaction patterns among family mem- review in crisis and human need theories.42 No
bers.37 additional information is provided on the theoreti-
Family systems theory is the basis of the FES.47 cal background of the CCFNI.
Family systems theory is considered a practice the- In general, each theory examines concepts that
ory and was developed for use with troubled fami- are applicable to critical care settings. For example,
lies. Family systems theory is pathology oriented5; general systems theory is concerned with the fami-
however, it describes both functional and dysfunc- ly as a unit, whereas both the ecologic framework
tional families and suggests interventions thus and structural-functional theory emphasize the
making it pertinent to family nursing. Family sys- interdependence or relationships between family
tems theory is psychologically based and is more members. Family systems theory describes func-
concerned with how to facilitate a change in fami- tional and dysfunctional families, whereas family
lies who are having problems.52 To varying degrees, stress theory examines the adaptive efforts fami-
this theory has been influenced by general systems lies make in response to stressors. Last, families
theory.5,44 are viewed as an open system interacting with their
Family stress theory was originally developed in environment in King’s theory.54
1949.53 According to family stress theory, the family General systems theory has also influenced the
experiences a “roller-coaster” adjustment process development of all the theories reviewed except
when it faces a crisis event.53 After experiencing the family stress theory. Although a systems perspec-
crisis, the family goes through a downward period tive is congruent with family systems nursing, the 3
of disorganization, an upward period of recovery, domains of family functioning are not evident in
and then a new level of organization.5,43 The ABCX the review of the theories. For example, the behav-
model of family stress identifies how the interpre- ioral domain is not apparent in the theories except
tation of stressors and available resources can for the Circumplex Model of Marital and Family
result in a crisis or noncrisis situation.53 Family Systems (general systems theory), family systems
stress theory is a middle-range theory and is the theory, and Double ABCX Model of Family Adjust-
basis of the Double ABCX Model of Family Adjust- ment and Adaptation (family stress theory). With-
ment and Adaptation.5,12,43 This model expands out these data, an incomplete picture is provided
family stress theory by adding postcrisis factors to of the family members’ reaction to the illness and
explain family adaptation.5,12 The Double ABCX their subsequent ability to manage over time. In
Model of Family Adjustment and Adaptation was addition, a rationale for interventions is only pro-
used to develop the F-COPES.39 The model offers a vided by some of the theories, namely the family
way to examine the family’s efforts of adapting to systems theory, Double ABCX Model of Family
multiple stressors on the basis of the members’ Adjustment and Adaptation, and King’s theory of
perception of an event and by use of a number of goal attainment. A theoretical framework that is
resources and family strengths.5 congruent with family systems nursing would guide
The only family instrument based on a nursing interventions on the basis of the assessment of the
theory is the FNAT. Its theoretical foundation is 3 domains of family functioning.
from King’s theory of goal attainment.40 On the Essential components of an assessment and
basis of King’s theory, the assumption is that all intervention framework of family systems nursing
humans are in a constant interaction with their include (1) listening to the family, (2) engaging in
environment. The family is viewed as an open sys- participatory dialogue between the nurse and fami-
tem composed of 3 interacting systems: personal, ly members, (3) recognizing patterns, and (4) envi-
interpersonal, and social.54 King reported that per- sioning action and positive change.3 These compo-
ception is a key concept to her theory when work- nents are not apparent in the theories reviewed. The
ing with families.55 Therefore obtaining the family’s current focus of family theories when implemented
understanding of events is central to determining in tool development and in clinical practice tends to
appropriate interventions. be nurse driven identification of family problems
Little information is available on the theoretical rather than reciprocal interactions with the family,
framework used to create the FFI and CCFNI. The which could identify the family’s strengths. There-
choice of questions asked on the FFI was reported fore a framework that includes the 4 elements would
to be eclectic and came from theoretical knowl- help critical care nurses to work with the strengths of
edge.41 However, the authors of the tool do not the family and promote family health.3

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Family assessment tools Neabel, Fothergill-Bourbonnais, and Dunning

Purpose Ease of administration and scoring


In general, each instrument provides a global Instruments that are easy to administer and
view of family assessments; however, 6 instruments score will most likely be preferred and used by
only obtain information from the individual’s per- clinicians and family members.31 Most of the instru-
spective. Some instruments focus on the interac- ments critiqued were noted to be easy to adminis-
tions of family members and family functioning, ter or were quick to complete. For example, the
whereas others focus on family needs. The FACES FACES III, FFFS, and FAD take approximately 10 to
III focuses on how individuals perceive their family 20 minutes to complete.35,47 The amount of time
and their description of the ideal family to provide needed to complete the FES, F-COPES, FFI, and
a measure of family satisfaction.34 Others assess CCFNI was not reported.
satisfaction with family functioning (FFFS35 and In general, no difficulties in scoring are noted
Family APGAR36); measure perceived family inter- with the instruments except for the FFFS and FFI.
actions56 by assessing the family’s social environ- The FFFS requires calculation of different scores
ments (FES38); identify the problem-solving and and subsequently may complicate the scoring
behavioral strategies used by families who are fac- process.47 The authors of the FFI indicate ease of
ing difficulties or a crisis (F-COPES39); or identify scoring,41 whereas users noted that it is slightly
families who may require additional assistance complicated.33
(FAD and FFI41,47).
The remaining 2 instruments, the FNAT40 and Reading level
CCFNI,42 focus on family needs. The FNAT provides The reading level for instruments should be
information on the needs of families of children written at the sixth-grade level for those family
who are chronically ill,40 whereas the CCFNI is used members who may have limited reading skills.31,33
to assess the needs of family members of critically Only 6 of the instruments meet this requirement.
ill adult patients.42 The FFFS may be difficult for people who do not
have a high school education.47 In addition, the
Description reading level for the FFI may be confusing for some
Each instrument is a self-report questionnaire. people because the response format varies.47 The
The FES can also be modified to be used as an reading level is not reported for the FNAT.
interview guide.38 The length of the instruments
can vary; the Family APGAR has 5 items,36 whereas Psychometric evaluation
the FES has 90 true or false items.38 It is essential that an assessment tool be reli-
able and valid. A tool is reliable if it consistently
Unit of analysis measures the attribute it is designed to mea-
As noted in the Table, the unit of analysis com- sure.59 A reliable scale has 3 characteristics:
prises all family members. However, restrictions homogeneity, stability, and equivalence. “Homo-
apply related to who completes the instruments for geneity” means that all items in a tool measure
some of the tools reviewed. For example, each fami- the same concept. “Stability” refers to the instru-
ly member is to complete the FACES III instrument ment’s ability to produce similar results with
twice to obtain their present perceptions on family repeated testing. Finally, “equivalence” refers to
functioning and their ideal perceptions.47 In addi- the agreement among observers using the same
tion, family members must be greater than 12 years instrument or an alternate form of the tool.59
of age to complete the FAD37 and F-COPES.57 When Homogeneity and stability measures are reported
using the FES, a family profile can be generated by for most of the instruments. The FFFS, Family
averaging the family members’ scores.58 Either one APGAR, F-COPES, and CCFNI are reported to have
or both parents are required to complete the FFFS,35 an internal consistency coefficient greater than
FNAT,40 or FFI,41 whereas individual family members 0.80,35,39,60,61 whereas the internal consistency is
can complete the Family APGAR36 and CCFNI.42 It is 0.68 for FACES III.34 Generally the coefficient value
essential to account for the implications of having should be at least 0.70 or higher for an instrument
individual respondents complete the questionnaire to be considered reliable.62 The internal consis-
because this may have some influence on the inter- tency is not reported for the other instruments.
pretation of the results.32 Consequently, caution The test-retest is not reported for the FAD; how-
should be taken with analyzing and generalizing the ever, the remaining instruments have coefficients
results to the family as a unit when only 1 or 2 family greater than 0.68, with 5 having coefficients
members have completed the instrument. greater than 0.80.34,35,39,60,63

206 MAY/JUNE 2000 HEART & LUNG


Neabel, Fothergill-Bourbonnais, and Dunning Family assessment tools

An instrument is valid if it obtains the data that Some cutoff limits or normative data are available
it is supposed to obtain.59 There are 3 forms of for FACES III,43 Family APGAR,64 FAD,65 and F-
validity: content validity (whether the items in a COPES39; therefore, these 4 instruments can be
tool adequately represent the content intended to used as screening tests for families having prob-
measure a concept); criterion-related validity (the lems. However, it has been noted that the Family
degree to which the subject’s performance on the APGAR may not be appropriate to assess for com-
tool is correlated to the subject’s actual behavior); plex family functioning because it has only 5 ques-
and construct validity (the extent to which a test tions.47 The FFI can differentiate between healthy
measures the construct that is being examined).59 and unhealthy families and has the potential to be
Each instrument is reported to have good validity. a screening tool.41 The FACES III and FES can
Construct validity and criterion-related validity are assess for changes in family functioning over
readily available for the instruments except for the time.33 No information is available about the abili-
FES.63 Content validity is available only for the ty of the other instruments to assess for changes.
FFFS35 and FNAT.40
SUMMARY
Utility to guide clinical practice and Although few of the instruments reviewed have
research been used with families of critically ill patients,
A tool that is easy to administer and score rep- they do demonstrate a variety of strengths. The
resents the practicality or clinical usefulness of an theoretical frameworks from which these instru-
instrument.32 The ease of administering and scor- ments were developed are applicable to critical
ing for each instrument has already been dis- care settings. However, the cognitive and affective
cussed. Most of the instruments are easy to admin- domains of family functioning were mainly
ister and scoring difficulties are noted with the addressed by these theories, whereas the behav-
FFFS47 and FFI.33 Therefore the instruments can be ioral domain was less likely to be included. There-
easily implemented in clinical and research set- fore assessment data are lacking in areas such as
tings on the basis of the practicality of the tool. how the family uses existing support mechanisms;
A tool that can be used with diverse social and how family members clarify what they need and
cultural groups would be valuable to guide clinical expect from each other; or how to minimize disrup-
practice and research. FACES III is the only tool tions in their routines. In addition, each of the
reported to meet this requirement. It can be used instruments examines slightly different aspects of
with a variety of families at different developmen- the family that are applicable for critical care settings.
tal levels and therefore has broad applicability.33,47 For example, the FACES III provides a measure on
Restrictions have been noted regarding the clinical family satisfaction, and the FFFS and Family APGAR
and research applicability of the FFFS, FNAT, and assess satisfaction with family functioning. The FES
FFI. The FFFS was tested with middle-class families measures perceived family interactions and can
of children with myelodysplasia. Its use in other assess for changes in functioning with time. The F-
populations is limited until additional testing is COPES identifies the problem-solving and behav-
done.35 The FNAT is restricted to identifying needs ioral strategies used by families who are facing dif-
of families of hospitalized children who are chroni- ficulties or a crisis. The FAD and FFI can be used to
cally ill.40 The FFI is not useful for families without identify families who may require additional assis-
children.33 tance. Last, the FNAT and CCFNI focus on family
Normative data and responsiveness of an instru- needs. However, in keeping with the philosophy of
ment are 2 important features that need to be family systems nursing, which is concerned about
taken into consideration when selecting an instru- the family as a unit, few of the instruments
ment for clinical or research purposes. Normative reviewed provide an assessment of the whole fam-
data, or cutoff scores, are useful for screening fami- ily. The FES, F-COPES, and FNAT are the only
lies.47 The responsiveness of an instrument refers instruments that stem from a practice or middle-
to its ability to detect clinically important differ- range theory; therefore, there is limited guidance
ences over time.32 An awareness of normative data offered that would assist nurses in providing inter-
and assessing change would allow nurses to deter- ventions. Thus instruments that focus on the
mine if interventions are required and to structure assessment of the family unit, which includes the
the delivery of them in a timely manner. Further- affective, behavioral, and cognitive domains of
more, normative data may help nurses to compare family functioning, and provide clear direction for
results and develop models in clinical studies.57 nursing interventions are required.

HEART & LUNG VOL. 29, NO. 3 207


Family assessment tools Neabel, Fothergill-Bourbonnais, and Dunning

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