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Instructions for Continuing Nursing Education Contact Hours appear on page 221.

The Medical-Surgical Nurse’s Guide to


Understanding Palliative Care
and Hospice
Elizabeth Croson
Jessica Keim-Malpass
Susan Bohnenkamp
Virginia LeBaron

emographic and health

D trends suggest medical-sur-


gical acute care nurses will
care for increasingly larger numbers
Understanding palliative care and hospice is critical for the medical-
surgical nurse to advocate for and support patients and families. An
understanding of primary palliative care and hospice care is rele-
of aging and chronically ill persons vant for the medical-surgical nurse.
(Wallace, 2016). Because most
Americans die in hospitals, nurses
play a key role in symptom man-
agement, integration of supportive ical-surgical nurse support patients Palliative Care
care services, advance care plan- and their caregivers by using the The World Health Organization
ning, and quality end-of-life (EOL) Eight Domains of the National (WHO) (2016) defined palliative
outcomes (Stanford School of Consensus Project for Quality care as, “an approach that improves
Medicine, 2016). However, medical- Palliative Care (NCPQPC) (2018). the quality of life for patients and
surgical nurses face many chal- their families facing the problems
lenges in providing comprehensive associated with life-threatening ill-
care for patients with life-limiting Understanding Palliative
Care and Hospice ness, through the prevention and
illness, including the fast pace of relief of suffering by means of early
busy units, uncertainty of progno- The terms palliative care and hos- identification and impeccable
sis, curative focus of treating illness, pice often are used interchangeably, assessment and treatment of pain
interprofessional conflict regarding creating confusion. Importantly, and other problems, physical, psy-
the plan of care, and the reluctance palliative and hospice care share the chosocial and spiritual” (para 1).
of patients, healthcare providers, same aim to provide optimal symp- The WHO definition does not
and families to discuss EOL issues tom management and comfort to include the terms death, dying, or
(Gagnon & Duggleby, 2014). the patient and family by reducing end of life; instead, emphasis is on
To provide safe and compassion- distress in physical, emotional, optimizing quality of life and allevi-
ate EOL care, medical-surgical nurs- social, and spiritual suffering ating distress. Palliative care is not
es must understand available (Kamal, Currow, Ritchie, Bull, & prognosis-dependent. Rather, it can
options and how to assist a patient Abernethy, 2013). See Table 1 for a and should be integrated alongside
in decision making. Two of the comparison of palliative care and curative or life-prolonging therapies
most common options to help hospice.
patients and caregivers cope with
Elizabeth Croson, PhD, RN, is Course Instructor, Western Governor’s University, Salt Lake
the challenges of serious illness are
City, UT.
palliative and hospice care. Many

Jessica Keim-Malpass, PhD, RN, is Assistant Professor, University of Virginia School of


misperceptions regarding palliative
Nursing, University of Virginia School of Medicine, Department of Pediatrics, Charlottesville, VA.
care and hospice persist, making it

Susan Bohnenkamp, MA, RN, ACNS-BC, CCM, is Clinical Nurse Specialist, University
difficult for medical-surgical nurses

Medical Center, Tucson, AZ.


to advocate effectively for patients.
The purpose of this article is to pro-
vide an overview of hospice and Virginia LeBaron, PhD, APRN, FAANP, is Assistant Professor, University of Virginia School of
palliative care, and help the med- Nursing, Charlottesville, VA.

July-August 2018 • Vol. 27/No. 4 215


TABLE 1.
Comparison of Palliative Care and Hospice

Palliative Care Hospice


Similarities • Focus on optimal symptom management in all domains (physical, emotional, social, spiritual)
• Care provided by interprofessional team
• View patient, family caregivers as unit of care
• No requirement regarding code status (patients do not have to be do not resuscitate/allow natural death)
• Discussions to clarify patient preferences, goals of care paramount
• Work with patients with any serious, life-limiting illness (e.g., cancer, HIV/AIDS, dementia, heart failure,
chronic obstructive pulmonary disease)

Differences • No prognosis requirement • Patient prognosis of 6 months or less


• No specific eligibility criteria • Primarily home-based care; time-limited inpatient options
• Primarily hospital-based care available in certain situations
• Provided with curative or • Eligibility criteria based on disease process
life-prolonging therapies • Medicare benefit
• Generally most appropriate for patients who have decided to
stop life-prolonging therapies
• Provides structured bereavement support for family

and can be provided to patients and While certain aspects of eligibility 3. Psychological and psychiatric
families at any point along the ill- criteria may differ among individ- aspects
ness trajectory, not just in a ual hospices, enrollment in all 4. Social aspects
patient’s final weeks or days. The Medicare-certified hospices requires 5. Spiritual and existential aspects
flexibility of palliative care can be a physician to certify the patient is 6. Cultural aspects
especially beneficial to patients suf- terminally ill and has a prognosis of 7. Care at the EOL
fering from conditions such as heart 6 months or less if the disease runs 8. Ethical and legal aspects
failure (HF) and chronic obstructive its normal course. Specific criteria Medical-surgical nurses can assess
pulmonary disease, for which prog- also exist for most major illnesses patients’ needs through the lens of
nosis is difficult to determine and (e.g., cancer, HF, HIV/AIDs, demen- each domain and match those needs
unpredictable exacerbations are tia) and hospices can be consulted with available resources. Under-
common (Holmes & Scullion, 2015; for informational patient visits to standing the domains of palliative
Kheirbek et al., 2013). Importantly, help determine eligibility. Many care provides nurses with a useful,
a growing body of compelling evi- hospices also require patients to concrete framework to care for
dence demonstrates early palliative forego life-prolonging therapies, for patients coping with life-limiting ill-
care improves health and survival which the burden outweighs the ness.
outcomes (Adelson et al., 2017). benefit and can contribute to symp-
tom distress (e.g., total parental
Hospice nutrition for patients with metasta- Structure and Process of
Hospice is defined as, “a service tic cancer, blood transfusions for Care
delivery system that provides pallia- patients with end-stage HF). How- Medical-surgical units housing
tive care for patients who have a ever, individual therapies often are patients with serious illness should
limited life expectancy and require considered on a case-by-case basis. have a structure in place for offering
comprehensive biomedical, psy- and providing palliative care servic-
chosocial, and spiritual support as es. Structure formality varies
they enter the terminal stage of an NCPQPC Domains of depending on location and avail-
illness or condition” (Center to Palliative Care able resources; however, as illness
Advance Palliative Care [CAPC], In 2001, the National Consensus progresses, communication among
n.d., p. iii). CAPC suggested one Project established eight essential patient, family, provider, and team
way to conceptualize hospice is as domains of palliative care to provide should increase (Agency for
an intensification of palliative care benchmarks and guidance for clini- Healthcare Research and Quality
specifically designed for a patient’s cians and institutions regarding [AHRQ)], 2013). When and how to
final months. In the United States, delivery of quality palliative care introduce conversations regarding
Congress established hospice as a (American Association of Colleges of palliative care should be delineated
Medicare benefit in 1986 and set Nursing, 2016; NCPQPC, 2013): clearly, and taught to nurses and
the benchmark eligibility criteria 1. Structure and process other team members.
for patient enrollment in hospice. 2. Physical aspects

216 July-August 2018 • Vol. 27/No. 4


The Medical-Surgical Nurse’s Guide to Understanding Palliative Care and Hospice

TABLE 2.
Internet Palliative Care Resources for the Medical-Surgical Nurse

Name of Organization Website Relevance for Medical-Surgical Nurses


Palliative Care Network of www.mypcnow.org/fast-facts One-page evidence-based summaries of how to
Wisconsin manage difficult symptoms and palliative care
issues; relevant, helpful for nurses and
physicians
Center to Advance Palliative www.capc.org Tools and resources to plan, implement,
Care evaluate palliative care services within an
institution
American Academy of www.aahpm.org Professional organization for healthcare
Hospice and Palliative providers (particularly physicians) specializing in
Medicine (AAHPM) hospice and palliative medicine
Hospice and Palliative Nurses www.hpna.org Professional organization for nurses specializing
Association (HPNA) in hospice and palliative care; contains
information regarding specialty credentialing
National Palliative Care www.npcrc.org Grants/funding available for research to improve
Research Center (NPCRC) care for seriously ill patients, their families
End-of-Life Nursing Education elnec.academy.reliaslearning.com/ National initiative to provide high-quality
Consortium (ELNEC) palliative care training to nurses; various
trainings available around the country focused
on specific patient populations and care settings
Five Wishes www.agingwithdignity.org/ Clear, simple advance care document
recognized by the majority of states, does not
require a lawyer to execute; available online for
nominal fee
National Coalition for Hospice www.nationalcoalitionhpc.org/ Clinical practice guidelines for quality palliative
and Palliative Care care with focus on eight domains

Interprofessional Palliative should find an accessible training In this type of model, basic pallia-
Care and Team Training program that is relevant to the tive care training must be mandato-
Palliative care teams are interpro- needs of their units (see Table 2). ry for all acute care providers (Quill
fessional, ideally including physi- Physicians and nurses may be & Abernathy, 2013).
cians, nurses, social workers, and trained as palliative care specialists,
When to Initiate
chaplains at a minimum. Larger or be general practice providers who Conversations about
teams may include trained volun- implement a basic palliative care Palliative Care
teers, psychologists, and therapists. approach (primary palliative care) in
Important questions should be
Medical-surgical nurses and other their patient care. Economic and
addressed when identifying a pat-
providers benefit from palliative resource constraints mean hiring
ient who may benefit from pallia-
care training focused on symptom palliative care specialists is not tive care. For example, is the patient
assessment and management, care always feasible. One cost-effective experiencing disease progression,
of the actively dying patient, discus- alternative can be development of a especially with functional decline?
sion of advance directives and how partnership between palliative care Is the patient experiencing pain or
to lead family meetings, and effec- specialists outside the hospital and other symptoms not responding to
tive use of resources in the hospital generalists inside the hospital (Quill optimal medical treatment? Is there
and community (Sheldon, Dahlin, & Abernathy, 2013). As part of a a need for advance care planning
Maingi, & Sanchez, 2017). Team coordinated model of care, general- and clarification of goals of care
building and communication train- ists can deliver primary palliative (NCPQPC, 2013)? If a patient meets
ing should be ongoing so team care by beginning conversations any of the three criteria, the nurse
members can collaborate and coor- related to goals of care and address- should communicate with the pri-
dinate advanced care planning ing basic symptom management mary provider about the potential
meetings with patients and families needs. For particularly difficult or for enhancing palliative care sup-
(Wittenberg, Ferrell, Goldsmith, refractory symptoms, a palliative port. Another method to identify
Ragan, & Paice, 2016). Nurse leaders care specialist referral can be made. patients for palliative care is to use

July-August 2018 • Vol. 27/No. 4 217


trigger criteria. With this approach, lishment of realistic goals, and build toms, effectively treat distressing
the electronic medical record trust through consistent communi- symptoms, and reassess interven-
prompts providers to consult pallia- cation. A time should be established tion effectiveness so adjustments
tive care if the patient has met cer- when all team and family members can be made. Underlying causes
tain baseline criteria (Adelson et al., can attend so the meeting is not should be investigated and treated,
2017; Glare & Chow, 2015). Such rushed. Healthcare team members with careful consideration given to
criteria may include age over 80, should have a pre-meeting huddle the burdens and benefit of inter-
pre-existing functional dependence, to clarify or address any differences vention based on the patient’s wish-
and advanced malignancy. Having in opinion that may exist among es, goals, and prognosis.
such criteria in place may expedite them. This step is critical to avoid Conducting a thorough pain
the referral to palliative care and unnecessary confusion when talk- assessment will help determine the
improve patient outcomes (Hua, Li, ing with the family. Designating potential cause of the pain and
Blinderman, & Wunsch, 2014). one team leader to guide and direct management strategy (Sigakis &
Additionally, CAPC (n.d.) pro- the meeting and set acceptable Bittner, 2015). The goal should be
vides two checklists to use on ground rules, such as allowing every safe, timely, effective pain reduction
admission and daily while a patient person to talk in turn, is helpful. with minimal treatment side effects
is hospitalized to screen for pallia- The meeting should include time (NCPQPC, 2013). Although medica-
tive care and address unmet pallia- for a thorough discussion, ques- tion is the most common approach
tive care needs. These checklists are tions, silence, and tears; it should be for moderate to severe pain, non-
among the many tools available held in a quiet, private room where pharmacologic choices can be effec-
online in the handbook Policies and everyone can be seated. The conver- tive alone or in combination with
Tools for Hospital Palliative Care sation can begin with assessment of medication (e.g., position changes,
Programs. This handbook offers a patient and family understanding heat or cold compresses, music
starting point for medical-surgical of the current medical situation, therapy, relaxation techniques, dis-
units with no formally developed with an open-ended question such traction) (Sigakis & Bittner, 2015).
policy and procedure for caring for as, “Can you tell me what you Opioid treatment may be met with
patients receiving palliative care understand about your current resistance due to fears about side
and hospice. After identifying medical situation?” This clarifying effects, fatigue, addiction, difficulty
patients who will benefit from pal- question is essential to ensure breathing, and hastened death.
liative care, the nurse should evalu- everyone has the same understand- Acknowledging these fears and
ate the level of trust he or she has ing before attempting further dis- addressing them with each patient
developed with the patient and cussions and decisions. Use of clear, and family should be a priority so
family. The nurse can prepare for direct, non-jargon language is effective pain management is possi-
conversations with the patient and ble (NCPQPC, 2013). Providers also
important to avoid confusion or
family first by discussing the should screen patients and families
misunderstanding. Nurses play a
patient’s condition and prognosis
key role in family meetings by for appropriateness of opioid thera-
with the primary provider so they
advocating for patients and families py to avoid unintended harms (e.g.,
deliver consistent messages to
and coordinating communication with Opioid Risk Screening Tool)
patients and families (Clabots,
among team members (AHRQ, 2013). (Webster & Webster, 2005). The
2012).
Helpful communication phrases are nurse should monitor opioid thera-
How to Initiate listed in Table 3. py appropriately, and educate
Conversations Regarding patients and family members
Palliative Care regarding safe storage and disposal
Physical Aspects of Care of controlled substances. If primary
Communication is arguably the
most critical element of palliative Pain, dyspnea, fatigue, and con- care providers are uncertain about
care. An essential task of the nurse is stipation are among the most opioid dosing or management, con-
to assist with organizing and lead- reported symptoms at EOL, with sulting a pharmacist or palliative
ing family meetings. Family meet- nearly half of patients reporting care specialist may be warranted.
ings are structured discussions that pain in their last 3 days of life Dyspnea, a sensation of shortness
commonly involve patients (if (NCPQPC, 2013; National Institutes of breath (SOB), often is managed
able), family members/caregivers, of Health [NIH], 2014). Vigilant with opioids in a palliative care con-
and interprofessional healthcare assessment of other physical symp- text. Supplemental oxygen may be
team members to discuss goals of toms should be done regularly to added if helpful but should not
care, clarify prognosis and treat- prevent distress (Wheeler, 2016). As increase patient distress; for exam-
ment options, and make plans for physical symptoms are inherently ple, a face mask can restrict touch
future care. Ideally, family meetings subjective, an important aspect of with loved ones or contribute to feel-
should elicit patient and family pre- palliative care is to listen actively to ings of claustrophobia without alle-
vious experiences with serious ill- the patient, allow him or her to pri- viating SOB (Wheeler, 2016). Fatigue
ness, decrease stress through estab- oritize the most bothersome symp- is a state of physical and mental

218 July-August 2018 • Vol. 27/No. 4


The Medical-Surgical Nurse’s Guide to Understanding Palliative Care and Hospice

TABLE 3.
Helpful Palliative Care Communication Phrases for the Medical-Surgical Nurse

Concept and Examples Rationale


Open-Ended Questions • Helps guide effective conversations regarding prognosis,
“Can you tell me what you understand about your current treatment options
medical situation?” • Assesses patient’s level of understanding
“What is your understanding of where things stand with your • Allows clarification of misunderstandings before
illness now?” proceeding
• Explores patient’s goals, values, preferences
“What feels most important to you now?”

Prompting • Allows patient to tell his or her story


“Go on. Please tell me more.” • Demonstrates active listening, engagement
“What happened next?”

Screening • Ensures patients have shared the most important, relevant


“Before we talk about that, is there anything else you wish to information
tell me regarding what we have been talking about?” • Allows provider to obtain thorough patient history

Respecting • Validates patient as an individual


“You have shared a lot of information with me. I feel I have a • Acknowledges patient has been heard
better understanding of you.”
Exploring Treatment Options • Offers solutions without dictating a plan
“These are some of the options to help you be comfortable.” • Explores patient goals, values, preferences
“What do you think?” • Expresses empathy; “I wish” statements can be
particularly helpful as they are sincere and realistic.
“What if things do not go as we hope they will?”
“I wish this treatment had been effective in controlling your
cancer.”
Source: Adapted with permission from Dr. Nessa Coyle. Table adapted from her oral presentation about palliative care nursing
delivered at the University of Arizona, Tucson, 2007.

challenge that frequently occurs at care patients include delirium, agi- iety and depression. The idea of
the EOL (Kirshbaum, Olson, Pong- tation, anxiety, and depression depression as a normal part of the
thavornkamol & Graffigna, 2013). (NCPQPC, 2013). Delirium occurs terminal illness process contributes
Fatigue can be managed by address- in 30%-50% of all patients in pallia- to its under-treatment. Symptoms
ing potential underlying problems tive care, with agitation occurring include depressed mood, feelings of
such as sleep patterns, pain, nutri- 13%-46% of the time (Hey, Hosker, worthlessness, fatigue, sleep distur-
tion and exercise, and depression. Ward, Kite, & Speechley, 2015). bances, change in appetite, and loss
Fatigue may not need aggressive Nonpharmacological management of memory. These symptoms can
intervention. Pharmacological man- includes oxygen, fluid and elec- overlap with others that normally
agement of fatigue is controversial, trolyte management, frequent reori- occur with terminal illness and
and more research is needed to entation to environment, exercise, medication use, making diagnosis
determine what is most effective for pain management, and bladder and difficult. Nurses can simply ask,
patients at the EOL (Mucke et al., bowel management. Pharmacologic “Are you depressed?” as this ques-
2015). Constipation is common in treatment may include antipsy- tion has been found to be an
persons receiving opioids for pain chotics, sedatives, psychostimu- extremely effective way to identify
management in advanced disease. lants, and cholinesterase inhibitors; depression. Antidepressant therapy
Nursing assessment should involve each comes with risks, including takes time, usually several weeks, to
questioning patients on the frequen- further interference with a patient’s reach peak effect, so it may be nec-
cy and quality of bowel movements, cognition and paradoxically wors- essary to add a psychostimulant
with appropriate interventions as ening agitation or delirium (Hey et such as methylphenidate to im-
needed. al., 2015). Treatment choice should prove mood more quickly (Jordan
be individualized and adjusted to et al., 2015). Prompt referral to
meet patient and family needs. social work, psychology, psychiatry,
Psychosocial and Psychological distress commonly and/or a religious minister/spiritual
Psychiatric Aspects of Care occurs at the EOL and can be mag- support may be helpful. Reflective
Common psychosocial and psy- nified in the presence of pre-exist- listening and focusing the conversa-
chiatric symptoms for palliative ing mental illness, particularly anx- tion on the patient’s goals of care

July-August 2018 • Vol. 27/No. 4 219


also may improve mood at the EOL.
A combination of pharmacologic
and nonpharmacologic treatment, Quiet spaces are important to allow staff and
and proper referral can lead to patients a place to reflect, pray, and contemplate.
decreased rates of depression and
help maintain patient dignity at the
EOL (Marks & Heinrich, 2013).
tices are important to an individual into care. Together, the healthcare
or family is the first step in conduct- team and patient can develop
Social Aspects of Care ing an effective spiritual needs mutually acceptable care goals
Families and friends often want assessment. (Kagawa Singer et al., 2016).
to be involved in decision making Quiet spaces are important to
and play a pivotal role in patient allow staff and patients a place to
care at the EOL. Family members/ reflect, pray, and contemplate. Ethical and Legal Aspects
caregivers often alert nurses to spe- Nurses can cluster care to allow of Care
cific symptoms, particularly for patients and families to have quiet No ethical principle may be
non-verbal patients, noting the time in their rooms, or they can more important at the EOL than
patient may be restless or in pain. assist patients to relocate to quiet the right of the patient to self-deter-
Nurses should address those con- areas in the hospital (Abu-El-Noor, mination, also known as autonomy
cerns as quickly as if patients were 2016). Nurses who feel inexperi- (American Nurses Association, 2017).
complaining themselves (NCPQPC, enced or need support in providing Autonomy becomes more compli-
2013; NIH, 2014). Families who par- spiritual care can seek assistance cated as a patient’s condition deteri-
ticipate in decision making have from a hospital chaplain or relevant orates, and he or she may not be
improved confidence and coping. community spiritual leader. able to make decisions independ-
In addition, allowing families to ently. An advance directive outlines
have a voice at the EOL may a patient’s healthcare wishes, partic-
improve the bereavement process
Cultural Aspects of Care ularly decisions at the EOL. A living
(NCPQPC, 2013; NIH, 2014). Culture uniquely influences each will, durable power of attorney for
patient’s attitude, behavior, prefer- health care, and do-not-resuscitate
ences, and decisions. Healthcare order are examples of advance
Spiritual, Religious, and providers should practice cultural directives, each with unique proper-
Existential Aspects of Care humility to provide the most cul- ties to execute a patient’s wishes
Religion is a focused set of beliefs, turally sensitive care possible at the (American Cancer Society, 2015).
often with a formal organization of EOL (Aldridge et al., 2016). Some Encouraging all patients to create
people and values. Spirituality is less key questions can help providers an advance directive will help in
formally organized but equally assess cultural needs at the EOL: this gray area, but not all patients
important (Nelson-Baker et al., “What are the cultural rituals for come to the hospital with this in
2015). Spiritual care enhances “com- coping with dying, the deceased place. When advance directives
fort, acceptance, and inner peace” person’s body, the final arrange- have not been established and deci-
for patients at EOL (Broadhurst & ments for the body and honoring sions regarding wishes at the EOL
Harrington, 2016, p. 889). Nursing the death?” “What are the family’s are unclear, particularly those that
qualities that add to effective spiritu- beliefs about what happens after involve withdrawing treatment, an
al care include self-awareness, spiri- death?” “What does the family con- ethics consultation may be the best
tual sensitivity, and the willingness sider to be the roles of each family option (Taylor, 2015).
to provide silence and therapeutic member in handling the death?” Most hospitals are required to
touch (Tiew, Kwee, Creedy, & Chan, “Who should the doctor talk to have an ethics program, board, or
2013). Building trust, a common about test results or diagnosis?” consultation team available as a
theme in palliative care, improves “Are certain types of death less resource to healthcare providers
therapeutic relationships and allows acceptable (e.g., suicide) or are cer- and patients. Traditionally, these
nurses to provide more effective tain types of death especially hard programs uphold the rights of the
spiritual care. Nurses should assess to handle for that culture?” (Mixer, patients, facilitate shared decision
spiritual and existential needs regu- Lindley, Wallace, Fornehed, & making for patients and their
larly and document appropriately Wool, 2015). These questions get to providers, and serve to enhance an
(NCPQPC, 2013). Ignoring spiritual the heart of what culture means to ethical environment. The latter
needs leads to spiritual distress and the individual and family. Through may include assisting the facility to
fear, which can contribute to an assessing cultural needs, nurses can devise equitable, ethical policies,
emotionally painful death experi- express respect and interest in oth- particularly concerning advance
ence (Broadhurst & Harrington, ers’ cultures, and collaborate with directives; withholding of treat-
2016). Simply asking in a nonjudg- patients and families to incorporate ment, organ procurement; and in-
mental manner what beliefs or prac- meaningful cultural experiences formed consent (Pearlman, 2016).

220 July-August 2018 • Vol. 27/No. 4


The Medical-Surgical Nurse’s Guide to Understanding Palliative Care and Hospice

Instructions For Continuing Nursing Education Contact Hours


The Medical-Surgical Nurse’s Guide to Understanding Palliative Care and Hospice
Deadline for Submission: August 31, 2020 MSN J1810

The author(s), editor, editorial board, con-


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This article was reviewed and formatted for
ibilities in Providing Care and Support at the End of Life" at https://www.nursing
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Director.
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http://www.cancer.org/treatment/finding
andpayingfortreatment/understanding
Nurses can provide the patient with needs, medical-surgical nurses have
financialandlegalmatters/advancedirect
as much autonomy as possible at the opportunity to enhance quality
ives/advance-directives-types-of-
the EOL by remembering their roles patient outcomes.
advance-health-care-directives
American Nurses Association. (2017). Short
as patient advocates. When advo-
REFERENCES definitions of ethical principles and theo-
cating on behalf of a patient’s wish-
Abu-El-Noor, N. (2016). ICU nurses’ percep- ries: Familiar words, what do they mean?
es is not possible, they should not
hesitate to call the ethics team for tions and practice of spiritual care at the Silver Spring, MD: Author.
end of life: Implications for policy change. Broadhurst, K., & Harrington, A. (2016). A the-
The Online Journal of Issues in Nursing, matic literature review: The importance
help (Nelson et al., 2013).
21(1). doi:10.3912/OJIN.Vol21No01PPT05 of providing spiritual care for end-of-life
Adelson, K., Paris, J., Horton, J.R., Her- patients who have experienced tran-
nandez-Tellez, L., Ricks, D., Morrison, scendence phenomena. American
Conclusion
S., & Smith, C.B. (2017). Standardized Journal of Hospice and Palliative Care,
criteria for palliative care consultation on 33(9), 881-893.
Medical-surgical nurses with a
a solid tumor oncology service reduces Center to Advance Palliative Care (CAPC).
foundational understanding of pri-
downstream healthcare use. Journal of (n.d.). Policies and tools for hospital pal-
mary palliative care principles and a
genuine desire to advocate for Oncology Practice, 13(5), e431-e440. liative care programs. Retrieved from
doi:10.1200/JOP.2016.016808 https://media.capc.org/filer_public/88/06/
Agency for Healthcare Research and Quality 8806cedd-f78a-4d14-a90e-aca688147
patients and families can achieve
(AHRQ). (2013). Palliative care for adults: a18/nqfcrosswalk.pdf
optimal care for patients with life-
Guideline summary. Rockville, MD: Clabots, S. (2012). Strategies to help initiate
limiting disease. The NCPQPC (2013)
Author. and maintain the end-of-life discussion
Aldridge, M.D., Epstein, A.J., Brody, A.A., Lee, with patients and family members.
provides a framework for delivery of

E.J., Cherlin, E., & Bradley, E.H. (2016). MEDSURG Nursing, 21(4), 197-204.
high-quality, effective palliative care
The impact of reported hospice preferred Glare, P.A., & Chow, K. (2015). Validation of a
to alleviate patient suffering. Stra-
practices on hospital utilization at the end simple screening tool for identifying
tegies to improve distress and symp-
of life. Medical Care, 54(7), 657-663. unmet palliative care needs in patients
American Association of Colleges of Nursing. with cancer. Journal of Oncology Prac-
tom assessment can be integrated

(2016). CARES: Competencies and rec- tice, 11(1), e81-86.


into routine clinical assessments.
ommendations for educating undergrad- Gagnon, J., & Duggleby, W. (2014). The provi-
Additionally, incorporation of exist-
ing palliative care principles and uate nursing students: Preparing nurses sion of end of life care by medical-surgi-
to care for the seriously ill and their fam- cal nurses working in acute care: A liter-
ilies. Retrieved from http://www.aacn- ature review. Palliative and Supportive
infrastructure can be optimized

nursing.org/Portals/42/ELNEC/PDF/ Care, 12(5), 393-408.


within the workflow and scope of
New-Palliative-Care-Competencies.pdf Hey, J., Hosker, C., Ward, J., Kite, S., &
medical-surgical nurses’ practice.
Through early identification and American Cancer Society. (2015). Types of Speechley, H. (2015). Delirium in pallia-
assessment for unmet palliative care advanced directives. Retrieved from tive care: Detection, documentation, and

July-August 2018 • Vol. 27/No. 4 221


management in three settings. Palliative coalitionhpc.org/wp-content/uploads/ pain management in the ICU. Critical
and Supportive Care, 13(6), 1541-1545. 2017/04/NCP-Overview-and-Scope- Care Medicine, 43(11), 2468-2478.
Holmes, S., & Scullion, J. (2015). A changing 8.23.17-1.pdf Stanford School of Medicine. (2016). Where
landscape: Diagnosis and management National Institutes of Health (NIH), National do Americans die? Retrieved from
of COPD. British Journal of Nursing, Institute on Aging. (2014). Addressing https://palliative.stanford.edu/home-
24(8), 432-440. other signs and symptoms. Bethesda, hospice-home-care-of-the-dying-patient/
Hua, M.S., Li, G., Blinderman, C.D., & MD: Author. where-do-americans-die/
Wunsch, H. (2014). Estimates of the Nelson-Baker, H., Ai, A.L., Hopp, F.P., Taylor, H. (2015). Legal and ethical issues in
need for palliative care consultation McCormick, T.R., Schlueter, J.O., & end of life care: Implications for primary
across United States intensive care units Camp, J.K. (2015). Spirituality and reli- health care. Primary Health Care, 25(5),
using a trigger-based model. American gion in end-of-life care ethics: The chal- 34-41.
Journal of Respiratory & Critical Care lenge of interfaith and cross-generational Tiew, L.H., Kwee, J.H., Creedy, D.K., & Chan,
Medicine, 189(4), 428-436. doi:10.1164/ matters. British Journal of Social Work, M.F. (2013). Hospice nurses’ perspectives
rccm.201307-1229OC 45(1), 104-119. of spirituality. Journal of Clinical Nursing,
Jordan, A.E., Malhotra, S., Maree, R.D., Nelson, J.E., Curtis, J.R., Mulkerin, C., 22(19-20), 2923-2933. doi:10.1111/
Schenker, Y., Arnold, R.M., & Reynolds, Campbell, M., Lustbader, D.R., jocn.12358
C.F. (2015). Depression in older adults: A Mosenthal, A.C., … Weissman, D.E. Wallace, C.L. (2016). Hospice eligibility and
palliative medicine perspective. Harvard (2013). Choosing and using screening election: Does policy prepare us to meet
Review of Psychiatry, 23(5), 343-353. criteria for palliative care consultation in the need? Journal of Aging & Social
Kagawa Singer, M., Dressler, W., George, S., the ICU: A report from the Improving Policy, 27(4), 364-380. doi: 10.1080/
Baquet, R., Bell, R. A., Burhansstipanov, Palliative Care in the ICU (IPAL-ICU) 08959420.2015.1054234
L., … Williams, D. (2016). Culture: The Advisory Board. Critical Care Medicine, Webster, L.R., & Webster, R. (2005).
missing link in health research. Social 41(10), 2318-27. doi: 10.1097/CCM. Predicting aberrant behaviors in opioid
Science & Medicine, 170, 237-246. 0b013e31828cf12c treated patients: Preliminary validation of
doi:10.1016/j.socscimed.2016.07.015 Pearlman, R.A. (2016). Ethics committees, the Opioid Risk Tool. Pain Medicine,
Kamal, A.H., Currow, D.C., Ritchie, C.S., Bull, programs, and consultation. Seattle, WA: 6(6), 432-442.
J., & Abernethy, A.P. (2013). Community- University of Washington. Retrieved from Wheeler, M.S. (2016). Primary palliative care
based palliative care: The natural evolu- https://depts.washington.edu/bioethx/ for every nurse practitioner. The Journal
tion for palliative care delivery in the U.S. topics/ethics.html for Nurse Practitioners, 12(10), 647-653.
Journal of Pain and Symptom Manage- Quill, T.E., & Abernathy, A.P. (2013). Wittenberg, E., Ferrell, B., Goldsmith, J.,
ment, 46(2), 254–264. doi: 10.1016/ Generalist plus specialist palliative care - Ragan, S.L., & Paice, J. (2016). Assess-
j.jpainsymman.2012.07.018 Creating a more sustainable model. The ment of a statewide palliative care team
Kheirbek, R.E., Alemi, F., Citron, B.A., Afaq, New England Journal of Medicine, 368, training course: COMFORT communica-
M.A., Wu, H., & Fletcher, R.D. (2013). 1173-1175. tion for palliative care teams. Journal of
Trajectory of illness for patients with con- Sheldon, L.K., Dahlin, C., Maingi, S., & Palliative Medicine, 19(7), 746-752.
gestive heart failure. Journal of Palliative Sanchez, J.A. (2017). A multiorganiza- doi:10.1089/jpm.2015.0552
Medicine, 16(5), 478-484. doi:10.1089/ tion approach to improving palliative care World Health Organization (WHO). (2016).
jpm.2012.0510 in Honduras. Oncology Nursing Forum, WHO definition of palliative care.
Kirshbaum, M.N., Olson, K., Pongthavorn- 44(1), 11-14. Retrieved from http://www.who.int/
kamol, K., & Graffigna, G. (2013). Sigakis, M.J.G., & Bittner, E.A. (2015). Ten cancer/palliative/definition/en/
Understanding the meaning of fatigue at myths and misconceptions regarding
the end of life: An ethnoscience
approach. European Journal of Oncol-
ogy Nursing, 17(2), 146-153.
Marks, S., & Heinrich, T. (2013). Assessing
and treating depression in palliative care
patients: Antidepressants, psychothera-
py can improve dying patients’ quality of
life. Current Psychiatry, 12(8), 35-40.
Mixer, S.J., Lindley, L.C., Wallace, H.S.,
Fornehed, M.L., & Wool, C. (2015). The
relationship between the nurse work
environment and delivering culturally-
sensitive perinatal hospice care. Inter-
national Journal of Palliative Nursing,
21(9), 423-429.
Mucke, M., Mochamat, Cuhls, H.,
Peuckmann-Post, V., Minton, O., Stone,
P., & Radbruch, L. (2015). Pharmaco-
logical treatments for fatigue associated
with palliative care. Cochrane Database
of Systematic Reviews, (5), CD006788.
National Consensus Project for Quality
Palliative Care (NCPQPC). (2013).
Clinical practice guidelines for quality
palliative care. Richmond, VA: Author.
National Consensus Project for Quality
Palliative Care (NCPQPC). (2018). Nat-
ional Consensus Project clinical practice
guidelines for quality palliative care (4th
ed.). Retrieved from https://www.national

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