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N FOR NOSE
State of the Education Report for India 2019
Children with Disabilities
Published by
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ISBN: 978-81-89218-67-6
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The photographs used in the report have been specially
Photos
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free of copyrights. They illustrate one or more facets of
CWD rights, and cover the following sites across India. Cover photo
©UNESCO/Eric Falt (The Lepra India Trust, New Delhi)
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Informed consent was obtained from all individuals whose
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ateway School, ETC Centre for Disability and photographs appear in this publication.
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N
State of the
Education Report
for India 2019
FOR Children with
NOSE Disabilities
Message
Vice President of India
I
am glad to note that UNESCO has chosen to of Empowerment of Persons with Disabilities
focus on education of children with disabilities (Divyangjan), Ministry of Social Justice and
as the theme of “State of the Education Report Empowerment. Targets have also been set under
2019.” The publication of this report is timely Sustainable Development Goals 2030 (SDGs)
because the Government of India is formulating including goal 4 and country is steadily moving
a new education policy. This report will, hopefully, towards inclusive, equitable quality education.
provide useful inputs to the new policy and enrich
We need to further understand the gaps in
the outcomes in the years to come.
programmes and barriers to inclusive education.
India has made steady progress in enhancing UNESCO’s State of the Education Report 2019
access to all levels of education over the past is expected to deepen our understanding in this
few decades. regard and help the education system better
respond to the learning need of children
Expansion of educational systems in the
with disabilities. This will enable us to make
country improved the literacy rate from 14%
significant progress towards our collective
at independence to 73% as per census 2011.
objective of leaving no one behind and
The Right to Education Act 2009 has largely
provide to all children and youth equitable
enhanced access to education. However, there
opportunities for quality learning.
is still a sizeable population of children who are
out of school. I compliment UNESCO on this publication as well
as the authors, the editorial board and the entire
Equity, equality and inclusion are key principles
team for bringing out such a useful study.
of our Constitution and the government has
adopted ‘Sabka Saath Sabka Vikas’ as an
overarching goal, envisioning an inclusive new
India. A number of programmes have been taken
up by the government including Samagra Shiksha
Abhiyan and Beti Bachao Beti Padhao. The
education of children with disabilities is receiving
a special thrust under The Right of Persons with
Disabilities Act 2016 giving effect to the United
Nations Convention on the Right of Persons with M. Venkaiah Naidu
Disabilities, the Accessible India Campaign and Vice President,
programmes conducted through the Department Government of India
1
Message
Secretary
Ministry of Social Justice & Empowerment,
Department of Empowerment of Persons with Disabilities,
Government of India
T
he United Nations Convention on the the current provisions, and the activities
Rights of Persons with Disabilities, to implemented by the different central ministries/
which India is Signatory, has enabled departments and the state governments.
India to have a comprehensive
I hope that all the major stakeholders will
legislation – the Rights of Persons with
take corrective measures to make inclusive
Disabilities Act, 2016. This has given impetus to
education real.
programmes to be developed across the country,
which will enable persons with disabilities
to lead productive, safe and dignified lives.
These programmes aim to focus on educational,
economic and social development and
rehabilitation.
2
Message
Director
National Council of Educational
Research and Training (NCERT),
Government of India
T
hroughout India, as also across environment in terms of trained and motivated
the globe, the inclusive education teachers, good leadership, infrastructural
movement, especially from the facilities and safety are the key dimensions to
perspective of children labelled ensure quality in education. This report highlights
as disabled, has become more the current status of education for children with
pronounced. This current emphasis on inclusive disabilities in the country, and it would be a
education emerges especially after the National significant and useful step in this direction.
Curriculum Framework (2005) and UNCRPD
I hope the recommendations made in the
(2006), and is further strengthened by the RPWD
report would be implemented in the right
Act (2016). Recent developments, like the draft
spirit to improve the educational scenario
National Education Policy, 2019 also places
and consequently the lives of our children
emphasis on inclusive education practices.
with disabilities.
However, critical analysis and evidence suggest
that while the earlier frameworks and policies on
inclusive education created awareness among
various stakeholders, they have not yet resulted
in effective inclusive practices. While engaging
with the question 'why,' it is equally important to
understand the barriers faced by persons with
disability in accessing good quality education. Hrushikesh Senapaty
Understanding the diverse needs of learners, Director,
especially those who are physically and mentally NCERT
challenged, and creating an enabling school New Delhi, India
3
State of the Education Report for India 2019: Children with Disabilities
Special thanks to artist Leon Löwentraut, Geuer & Geuer Art GmbH, and the YOU Foundation.
The campaign #Art4GlobalGoals was initiated by the young German artist Leon Löwentraut and
Geuer & Geuer Art Gallery, with the support of UNESCO and the YOU Foundation. It aims to increase
public awareness on the Sustainable Development Goals through the sale of hand-painted prints
specially produced by Leon Löwentraut. Part of the proceeds of the #Art4GlobalGoals campaign
supported this Report.
The painting above focuses on Sustainable Development Goal 4, which aims to ensure inclusive and
equitable quality education and promote lifelong learning opportunities for all.
Foreword
“ A
s part of Agenda 2030, disabilities. It aims to provide comprehensive
Sustainable Development information on the current state of education
The education Goal 4 aims to “ensure inclusive for children with disabilities. It also highlights
and equitable quality education achievements and success stories throughout
of children with
and promote lifelong learning India, and accounts of challenges that need to
disabilities is still opportunities for all”. be overcome.
insufficiently
This objective implies that a school can only be The report was peer-reviewed scrupulously by an
addressed inclusive when all its students are able to access editorial board of high-level Indian experts, and
by schooling its resources and participate in its activities I am most grateful to its members for their
“
systems around
the world.
without exception. Children with disabilities
should not be left behind.
advice, guidance and passion for the topic.
5
Acknowledgements
T
he 2019 State of the Education included Mr Venkata Subba Rao Ilapavuluri
Report for India was a collaborative (Secretary to the Vice President of India),
effort and involved many individuals, Dr Anita Julka (Professor, DEGSN, NCERT)
under the overall guidance and Mr Arman Ali (Executive Director, NCPEDP),
management provided by Mr Eric Mr Anantha Kumar Duraiappah (Director, MGIEP),
Falt, Director and Representative of UNESCO Dr Nandini Chatterjee (MGIEP), and of course
New Delhi, and Mr Mame Omar Diop, head of the Dr Sara Varughese (National Director and
Education team. Managing Trustee CBM). The editorial board
met four times to provide support and feedback
For nine months, Ms Huma Masood patiently
to the research team.
provided invaluable technical support and
coordination for the report on behalf of UNESCO This work would not have been achieved
New Delhi and interacted closely with the without the support of Ms Nusrat Jahan, Chief
research team from the Tata Institute of Social Administrative Officer at UNESCO New Delhi
Sciences (TISS) in Mumbai, with Ms Archana and her scrupulous management of grants, as
Mehendale, Ms Bhagyalaxmi Velugu, Ms Mythili well as Mr Girish Joshi (Education team), and
Ramchand, and Ms Sonia Sawhney as the main Ms Rekha Beri and Ms Nitya Agarwal (Public
authors. The TISS team was also supported Information Unit).
by Ms Arati Bapat, Mr Sayan Bhattacharya,
UNESCO New Delhi is particularly grateful to
Mr Devandhiran Duraipandi, Mr Munaf Patel,
Ms Ayesha Sarkar and Mr Anandaroop Ghosh,
and Ms Gomathi Jatin. They worked at TISS
of Firefly Communications, for their creative and
under the overall guidance and support of
meticulous copy-editing, designing and printing
Dr Padma M. Sarangapani and Dr Ajay Singh.
of the report. Many thanks are also due to the
The report also benefited from thematic studies young team at Snow Leopard Pictures (Mr Tanmay
commissioned in 2017/18 by UNESCO New Delhi, Rawat and Ms Mitul Lall), who took on with gusto
and which included the contributions of Dr Anita the challenge of collecting fresh and positive
Julka (Professor, DEGSN, NCERT), Dr Anupriya visuals and video recordings around India, which
Chadha, Ms Radhika Alkazi (ASTHA - AARTH), illustrate the report and will enrich the social
Dr Anuradha De, Dr Meera Samson (CORD), media campaign accompanying its launch.
Ms Syamala Gidugu (Action for Ability
The publication was made possible through the
Development and Inclusion [AADI]), Dr. Sujata
generous financial contributions from CBM India
Bhan (SNDT Women’s University), Ms Ruma
Trust (technical inputs and grants management
Banerjee (Seva-in-Action), Dr Veera Gupta
provided by Ms Soji Fairlene under the guidance
(NIEPA), Dr Jayanti Narayan (Former Deputy
of Dr Sara Varughese), as well as the YOU
Director, National Institute of Mental Health)
Foundation ‘Education for Children in need’ of
and Ms Avani Kapur.
Germany, led by UNESCO Special Ambassador
The editorial board was guided by Mr Eric Falt, Dr Ute-Henriette Ohoven and supported by
Director and UNESCO Representative, and Ms Claudia Jerger.
6
Acknowledgements
Authors and
Editorial Board
members
Top row (from left): Mythili
Ramchand, Bhagyalaxmi Velugu,
Archana Mehendale, TATA Institute
of Social Sciences
Second row (from left): Dr Venkata
Subba Rao Ilapavuluri, Secretary
to the Vice President of India; Dr
Sara Varughese, Country Director &
Managing Trustee, CBM Foundation
Third row (from left): Dr Anantha
Duraiappah, Director, UNESCO MGIEP;
Rajive Raturi, Law and Policy Division,
NCPEDP
Bottom row (from left): Arman Ali,
Executive Director, National Centre
for Promotion of Employment
for Disabled People (NCPEDP);
Professor Anita Julka, Former Head,
Department of Education of Groups
with Special Needs, NCERT; Eric Falt,
Director and UNESCO Representative,
New Delhi
7
Abbreviations and Acronyms
ADAPT Able Disabled All People Together ICT Information and Communication
ADIP Assistance to Disabled Persons for Technology
Purchase/Fitting of Aids and Appliances IEDSS Inclusive Education of the Disabled
ALIMCO Artificial Limbs Manufacturing at the Secondary Stage
Corporation of India IEP Individualized Education Plan
ASHA Accredited Social Health Activists IERC Inclusive Education Resource Centre
AWC Anganwadi Centres ISLRTC Indian Sign Language Research and
AWP&B Annual Work Plan and Budgets Training Centre
ICDS Integrated Child Development Scheme NIEPMD National Institute for the Empowerment
of Persons with Multiple Disabilities
ICF International Classification of Functioning,
Disability and Health NIEPA National Institute of Educational Planning
and Administration
ICF-CY International Classification of Functioning,
Disability and Health – Children and NIMH National Institute of Mental Health
Youth version NIOS National Institute of Open Schooling
8
NIPI Norway India Partnership Initiative SCERT State Council for Educational Research
NIVH National Institute for the Visually and Training
Handicapped SCPCR State Commission for the Protection of
NPE National Policy of Education Child Rights
NRHM National Rural Health Mission SCPWD Skill Council for Persons with Disabilities
NSDC National Skill Development Corporation SIPDA Scheme for Implementation of Rights of
Persons with Disabilities Act, 2016
NSQF National Skill Qualification Framework
SMC School Management Committee
NSS National Sample Survey
SPO Space project office
NSSO National Sample Survey Office
SRPC School-readiness programme centres
NTA National Trust for Welfare of Persons
SSA Sarva Shiksha Abhiyan
with Autism, Cerebral Palsy, Mental
Retardation, and Multiple Disabilities Act TLM Teaching-learning material
NUEPA National University of Educational U-DISE Unified District Information System
Planning and Administration (now NIEPA) of Education
OoSC Out-of-school children UDL Universal Design for Learning
PHC Primary Health Centre UNCRC United Nations Convention on Rights
of the Child
PHFW Public Health & Family Welfare
UNCRPD United Nations Convention on the Rights
PSTE Pre-service teacher education
of Persons with Disabilities
PWD Persons with disabilities
UNOPS United Nations Office for Project Services
RBSK Rashtriya Bal Swasthya Karyakram
UT Union Territories
RAD Rapid Assessment of Disability VE Vocational Education
RCI Rehabilitation Council of India VRC Vocational Rehabilitation Centres
RMSA Rashtriya Madhyamik Shiksha Abhiyan WCD Women and Child Development
RPWD Rights of Persons with Disabilities WHO World Health Organization
RTE Right to Education
SDG Sustainable Development Goals
9
E
State of the Education Report for India 2019: Children with Disabilities
FOR
EYES
10
Table of contents
Executive summary 12
Chapter 1
About the report 16
Context • Scope • Methodology • Structure
Chapter 2 Introduction 20
• Overview of international commitments
• Overview of national legal frameworks and policies
Annexures 128
Annexure 1: Select provisions from international treaties,
declarations and political commitments
Annexure 2A: Schemes under DEPWD, MSJE
Annexure 2B: Schemes under National Trust, DEPWD, MSJE
Annexure 3: Schemes under DSEL, MHRD
Annexure 4: Scheme for early childhood care and education (ECCE)
Annexure 5: Scheme for early identification and intervention
Annexure 6: Schemes for skill development and employment
Annexure 7: Schemes, others
Annexure 8: Status of DDRC across states
Annexure 9: State-specific policy frameworks
Annexure 10: State-wise details of camps conducted, funds utilized and
number of beneficiaries covered over 2016/17 and 2017/18
Annexure 11: List of Figures and Tables
References 142
11
Executive summary
Inclusive education systems wherein each individual has equal opportunity for
educational progress is a top global priority. India has adopted a rights-based
approach to inclusion of children with disabilities by ratifying the UN Convention
on Rights of the Child (UNCRC) and the UN Convention on Rights of Persons
with Disabilities (UNCRPD). Education systems that are designed to be inclusive,
equitable and empowering can help build inclusive societies. This dynamic and
organic connection between education and society lies at the heart of creating
change and achieving social justice.
12
Executive Summary
13
State of the Education Report for India 2019: Children with Disabilities
Way forward
A set of ten recommendations emerging from interventions. This will be crucial in meeting
the analysis has been proposed at the end of the children's learning needs, and enable review
the report. and action in cases where budgets are found to
be lacking.
Recommendation 1:
Amend the RTE Act to better align with the Recommendation 4:
RPWD Act by including specific concerns of Strengthen data systems to make them
education of children with disabilities. robust, reliable and useful for planning,
The 2009 Right to Education Act is India's primary implementation and monitoring.
legislation on education. Amending it to include Data forms the backbone of effective planning,
address specific CWD concerns will help align it implementation and monitoring. Uniformity in
with the 2016 Rights of Persons with Disabilities definitions, and availability of sex-disaggregated
Act. data on disability using international measures
such as the new Washington Group Questions or
Recommendation 2:
contextually appropriate UNICEF tools, will vastly
Establish a coordinating mechanism under
improve accuracy and validity of data.
the Ministry of Human Resource Development
(MHRD) for effective convergence of all education Recommendation 5:
programmes of children with disabilities. Enrich school ecosystems and involve all
A ministry-level mechanism to coordinate all stakeholders in support of children with
education programmes for CWDs across levels, disabilities.
activities, departments, ministries, and schemes Providing school ecosystems with adequate
will help leverage existing resources, remove support structures and services, and rallying
inconsistencies and achieve synergy in the various all stakeholders in support of CWDs will help
measures aimed at education of CWDs. create a common sense of purpose around
inclusive education through shared, contextual
Recommendation 3:
understanding.
Ensure specific and adequate financial
allocation in education budgets to meet the Recommendation 6:
learning needs of children with disabilities. Massively expand the use of information
Like gender budgeting, disability budgeting could technology for the education of children with
be used to track resource allocation for various disabilities.
14
Executive summary
15
SFOR
SMILE
CHAPTER
1
About the report
KEY DEFINITIONS
Children: Persons
below 18 years of age
(based on Article 1 of Context
E
UNCRC)
18
About the report
Methodology
The report is based on secondary data, published • Databases and statistical reports
literature, and work commissioned by UNESCO • Official reports by central and state
New Delhi between 2016 and 2018. Given governments
multiplicity of sources and data inconsistencies,
• Civil society reports, including shadow reports
findings from the secondary sources were
submitted to treaty bodies
validated and mapped with original data sources,
wherever possible. An open call was issued for case studies that was
shared among select civil society organizations
Extensive desk reviews and thematic analyses
(CSOs). The submissions were cross-validated,
were conducted using the following sources.
reviewed and edited before selection for
• Laws, policies, programmes, schemes, and publication. A draft version of the report was
guidelines related to disability and education peer-reviewed in Mumbai and New Delhi in
• International normative frameworks related to consultation with experts and the editorial board.
right to education of CWDs
The report was written in a short time using
• National and international academic literature, available material on the subject, and this could
as available be a possible limitation.
• Supreme court and high court judgments on
the subject
Structure
This report consists of seven substantive Chapter 7 discusses systemic issues such as early
chapters. Chapter 2 provides an overview of childhood interventions, implementation of
international treaties and commitments and legislation, human resource development, data
India's own legal and policy frameworks. It systems, governance and financing. Chapter 8
highlights key milestones and focuses on provides specific recommendations and action
their implications with regards to the right to points to help enhance legislation, create strong
education for CWDs in the country. Chapter learning environments, strengthen human
3 discusses the definitions of disability and resources, consolidate pedagogy, teaching-
inclusion in light of the various approaches learning materials and assessments, strengthen
adopted in India to educate CWDs. Chapter 4 partnerships with stakeholders, firm up data
describes national and state level schemes and systems, strengthen governance, and finance
programmes, and raises issues of coherence, education.
linkages and coordination between initiatives
helmed by multiple departments. Chapter 5 The report can be used as a reference document
presents a situational analysis and provides a on the subject. Readers may refer to the
statistical profile of education of children with footnotes, references list and supplementary
disabilities. Chapter 6 highlights barriers related material provided in the annexures for further
to attitudes, accessibility, curricula, pedagogy information, and to identify areas that need
and teaching material, and assessments. additional work.
19
F
FOR
FOOTBALL
CHAPTER
2
Introduction
T
o secure equal opportunity for International treaties
educational progress for every
The 1989 UN Convention on Rights of the Child
individual is a global priority.
(UNCRC) and the 2006 UNCRPD treaty are two
Rights of children with disabilities
international human rights treaties that have
to inclusion, non-discrimination
a direct bearing on the right to education of
and equal opportunity for education, have
CWDs. Although the UNCRC does not specifically
been articulated in both local and international
mention children with disabilities, the various
normative frameworks. Such a rights-based
provisions when read together supply grounds
approach is targeted towards guaranteeing and
for governments to provide free and compulsory
promoting full enjoyment of life experiences
education to all children below 18 years.1
for CWDs, enabling them to exercise their
and create education systems that are non-
independence to the greatest extent possible,
discriminatory, equitable, accessible to all. The
and creating inclusive educational and societal
landmark UNCRPD treaty enunciates the human
structures. The international context for
rights of persons with disabilities, and includes
education of CWDs has been set largely by two
substantive provisions related to education. It is
types of instruments –international treaties, and
also responsible for bringing inclusive education
declarations and political commitments (see
from a larger social justice perspective to centre
Annexure 1 for the detailed provisions under
stage in international discourses.
these instruments).
India has ratified both treaties as indicated
in Figure 1.2 However, India has not signed
the Optional Protocol to the UN Convention
on Rights of the Child, 2011 and the Optional
Protocol to the UN Convention on Rights of
Persons with Disabilities, 2006, both of which
lay down communication procedures. Hence,
monitoring of implementation of treaty
India has signed all the international declarations and has provisions happens only through submission
of periodic reports to the treaty bodies by
affirmed the common standards laid down with regards
the state. 3
to human rights, particularly those related to children with
disabilities. A review of official and shadow reports submitted
to treaty bodies shows implementation status as
follows.
1 The Committee on Rights of the Child has issued the any International Convention not inconsistent with the
following general comments that help interpret provisions fundamental rights and in harmony with its spirit must
on education of children with disabilities–General be read into these provisions to enlarge the meaning
Comment 1 on Aims of Education (2001), General Comment and content thereof, to promote the object of the
9 on Rights of Children with Disabilities (2006). constitutional guarantee.”
2 The treaty provisions serve a standard-setting function 3 Since India has not ratified the Optional Protocol, violations
and guide governments in incorporating the prescribed of treaty provisions cannot be directly taken up with the
standards into their national jurisdiction. India follows a treaty bodies by the victim or by anyone on the victim’s
dualist system of international law, and the harmonization behalf. However, in addition to state reports, shadow
of treaty provisions makes them enforceable in the reports which document the implementation of the
Supreme Court and High Courts of India. The Hon’ble international treaties can be filed by non-governmental
Supreme Court in Vishakha v. State of Rajasthan, organisations.
reported as (1997) 6 SCC 241 [para 7], observed that “...
22
Introduction
Figure 1
International treaties related to the right to education of CWDs
UNCRC UN Convention on the Rights of the Child, 1989 - ratified by India on 11 December 1992
rticle 2: non-discrimination on grounds of disability
•A
rticle 23: right to enjoy a full and decent life in conditions which ensure dignity,
•A
and promote self-reliance
rticle 28: right of the child to education
•A
Status of implementation
1. Harmonization of domestic law as reasonable accommodation and access to
India has made partial progress in harmonizing assistive technologies, thus further widening the
its national laws with the requirements of gap with UNCRPD. The National Trust for Welfare
UNCRPD (Figure 2). The provisions of the RPWD of Persons with Autism, Cerebral Palsy, Mental
Act and the amended 2017 Mental Health Care Retardation and Multiple Disabilities Act (NTA),
Act (MHCA) are broadly in sync with UNCRPD 1999, and the Rehabilitation Council of India
in the context of education of CWDs. However, (RCI) Act, 1992, are some other legislations that
both the RTE Act and its amendment in 2012 fall remain to be harmonized with UNCRPD, 5despite
short, as they do not include provisions relating recommendations made by National Human
to the core guiding principles of UNCRC (that Rights Commission.6 The Indian Constitution
are reiterated under UNCRPD).4 As discussed itself does not expressly prohibit discrimination
later in this section, the RTE Act makes no against persons with disability, nor cites it as
mention of specific educational needs and ground for affirmative action under Article 15,
entitlements of children with disabilities, such 15 (2).7
Figure 2
Degree of harmonization with UNCRPD8
High The Rights of Persons with Disabilities Act (RPWD Act), 2016; The Mental Health Care Act
(MHCA), 2017
Medium The Right of Children to Free and Compulsory Education Act, (RTE Act) 2009;
The Right of Children to Free and Compulsory Education (Amendment) Act, 2012
Low The National Trust for Welfare of Persons with Autism, Cerebral Palsy, Mental Retardation,
and Multiple Disabilities Act (NTA), 1999; the Rehabilitation Council of India (RCI) Act, 1992;
The Constitution of India (Article 14, 15, 15[2])
4 The core guiding principles of UNCRC are as follows. Article 6 The process of amending the NTA is under way, but the
1 (Definition of the child), Article 2 (Non-discrimination), proposed amendments are not substantive. For details,
Article 3 (Best interests of the child), Article 6 (Right to life, see recommendations by Special Rapporteur, Disability,
survival and development), and Article 12 (Respect for the National Human Rights Commission (2018).
views of the child). See UN Committee on the Rights of the 7 For more details, see National DIsability Network &
Child, General Comment No. 5 (2003). These are reiterated
in Article 7 of UNCRPD. National Committee on the Rights of Persons with
Disabilities (2019) and Saha, R. (n.d.).
5T
here exist gaps with regards to capacity, family law, 8 Needless to say, the legislations have incorporated
beggary legislation etc. which lie outside the scope of this
report. For more details, see NDN & NCRPD (2019) and numerous measures that cater to India's unique
Saha, R. (n.d.). needs. This matrix merely provides a comparison with
internationally accepted standards on inclusion.
23
State of the Education Report for India 2019: Children with Disabilities
9 The National Policy for Persons with Disabilities was See Government of India, Ministry of Women and Child
adopted on 10 February 2006. Para 7 notes India’s Development (2016).
participation in the process of negotiations on the then 12 The Ministry of Human Resource Development addresses
titled UN Convention on Protection and Promotion of the
Rights and Dignity of Persons with Disabilities. See Ministry children with disabilities as ‘children with special needs.'
of Social Justice and Empowerment (2006). The Third & Fourth Combined State Report on UNCRC
uses the terms ‘differently-abled’ (preface point 5),
10 However, para 7 refers to education of disadvantaged ‘children with disabilities’ (Page 60), and ‘children with
groups, girls and of gifted children. special needs’ (Page 18). Some of the institutions and
11 T special schools that receive state funds use a range of
he National Plan of Action for Children, 2016, was derogatory terms that are obsolete and disrespectful.
developed by the Ministry of Women and Child See, Government of India, Ministry of Women and Child
Development through inter-ministerial coordination Development (2011).
and offers a comprehensive five-year plan for children.
24
Introduction
Figure 3
Key international declarations and political commitments
The Salamanca
Statement and Inclusive and 2030 Agenda
Framework for Action for Sustainable
equitable quality Development, 2016
on Special Needs
education
Education, 1994
Education 2030:
Sustainable
Incheon Declaration
Development Goals,
and Framework for
2015
Action 2015
The following obeservations stem from a • The UN’s Sustainable Development Goals (SDGs),
review of the targets set by international especially Goal 4, set inclusion, elimination of
political commitments and the state of their disparities, and universal pre-primary, primary
implementation. and secondary education by 2030 as targets.
• The Salamanca Statement (UNESCO, 1994) This helped to set specific goals, targets and
radically shifted the paradigm and discourse indicators, resulting in the adoption of a results-
on the subject for inclusion and what it should based framework to monitor progress.
look like, by calling for it as a norm. Its guiding • Lack of disaggregated data continues to pose
principle – that all mainstream schools should challenges, although disaggregated data in
accommodate all children regardless of their itself is one of the goals under the Incheon
physical, intellectual, social, emotional, linguistic Strategy to 'Make the Right Real' for Persons
and other conditions – influenced the way with Disabilities in Asia and the Pacific, 2012.
how education of children with disabilities • Periodic reporting requires the government to
is imagined and approached in India (see track progress under Agenda 2030 and SDGs,
Chapter 3). This principle was affirmed in the make concerted efforts to monitor legislative
RTE Act through a policy of “zero-rejection” in compliance, and strengthen institutional
mainstream schools. support on disability-related matters.
25
State of the Education Report for India 2019: Children with Disabilities
25 % populations under Section 12(1)(c) of the RTE themselves wherever student participation is
Act. In order to guarantee free and compulsory provided for15 .Except Kerala, none of the state
private school elementary education in neighbourhood schools rules refer to special schools for children with
under the RTE Act, the definition of CWDs was disabilities in their RTE rules.
seats reserved
expanded to include children with autism,
under Section cerebral palsy, mental retardation and multiple
Table 1 uses Ministry of Human Resource
12(1)(c) of the RTE Development (MHRD) data to list out the specific
disabilities as per the National Trust for Welfare
provisions for CWDs as per individual state RTE
Act are open to of Persons with Autism, Cerebral Palsy, Mental
rules16 .
CWDs. Retardation and Multiple Disabilities Act, 1999.
According to the Right In addition, children with severe disabilities were The Act mandates the inclusion of children from
of Children to Free and permitted to opt for home-based education. diverse backgrounds and abilities, but does
Compulsory Education not deliberate on inclusive practices that could
(Amendment) Act 2012 Monitoring of RTE ensure the retention of children with disabilities
The National Commission for the Protection in mainstream schools.
13 In the ten years since the legislation has come into effect,
children with disabilities have the right to express their
there have been two amendments to the RTE Act and two
views freely on all matters affecting them, their views
amendments to the Central Rules. A series of notifications
being given due weight in accordance with their age and
and advisories have been issued, and amendments to the
maturity, on an equal basis with other children, and to be
act proposed by state legislatures.
provided with disability and age-appropriate assistance to
14 Children with disabilities, as defined under the Persons realize that right.'
with Disabilities (Equal Opportunities, Protection of Rights 16 This table primarily comments on the provisions made
and Full Participation) Act, 1995, and the National Trusts
under the state rules under the RTE act. In addition, states
Act, 1999, were brought under the purview of the RTE Act,
could have their own specific norms regarding these
via the 2012 amendment.
parameters.
15 Participation rights of children with disabilities has not
been provided for although Article 7(3) of the UNCRPD
expressly states that the 'States Parties shall ensure that
26
Introduction
table 1
Specific provisions for children with disabilities in state RTE rules
1 Andhra Pradesh
2 Arunachal Pradesh
3 Assam
4 Bihar
5 Chhattisgarh
6 Delhi
7 Goa
8 Gujarat
9 Haryana
10 Himachal Pradesh
11 Jharkhand
12 Karnataka
13 Kerala
14 Madhya Pradesh
15 Maharashtra
16 Manipur
17 Meghalaya
18 Mizoram
19 Nagaland
20 Odisha
21 Puducherry
22 Punjab
23 Rajasthan
24 Sikkim
25 Tamil Nadu
26 Tripura
27 Uttar Pradesh
28 Uttarakhand
29 West Bengal
30 Central Rules
27
State of the Education Report for India 2019: Children with Disabilities
BOX 1
28
Introduction
The key provisions related to right to education detailed in Section 17 of the act are listed below
(Box 2).
BOX 2
Key provisions related to education under Section 17 of the RPWD Act, 2016
Under section 17 of the act, the appropriate (f) to promote the use of appropriate
government and the local authorities shall augmentative and alternative modes
take the following measures:— including means and formats of
(a) to conduct survey of school going communication, Braille and sign language
children in every five years for identifying to supplement the use of one’s own speech
children with disabilities, ascertaining their to fulfill the daily communication needs
special needs and the extent to which these of persons with speech, communication
are being met: or language disabilities and enables (sic)
Provided that the first survey shall be them to participate and contribute to their
conducted within a period of two years from community and society;
the date of commencement of this act;
(g) to provide books, other learning materials
(b) to establish an adequate number of and appropriate assistive devices to students
teacher training institutions; with benchmark disabilities free of cost up to
the age of eighteen years;
(c) to train and employ teachers, including
teachers with disability who are qualified in (h) to provide scholarships in appropriate
sign language and Braille and also teachers cases to students with benchmark disability;
who are trained in teaching children with
(i) to make suitable modifications in the
intellectual disability;
curriculum and examination system to
(d) to train professionals and staff to support meet the needs of students with disabilities
inclusive education at all levels of school such as extra time for completion of the
education; examination paper, facility of scribe or
amanuensis, exemption from second and
(e) to establish an adequate number of third language courses;
resource centres to support educational
institutions at all levels of school education; (j) to promote research to improve learning
29
The RPWD Act
recognises the right of
children with benchmark
disabilities to a
neighbourhood school
or a special school.
BOX 3
two key areas WITH GAPS
•A
bsence of a legal framework specifying
17 Training of teachers Key provisions related to education norms and standards19 aimed at meeting the
on inclusive education under Section 31 of the RPWD Act, 2016 specific needs of CWDs that is applicable across
comes under the Sarva neighbourhood school, special school and
Shiksha Abhiyan and
Samagra Shiksha home-based education formats.
• Notwithstanding anything contained
Abhiyan programmes •A
bsence of a coordinated authority that can
in the Rights of Children to Free and
and is not a legal
requirement specified Compulsory Education Act, 2009, every enforce the norms and standards across the
under RTE Act. child with benchmark disability between multiple educational settings where children
18 A s in the case of the age of six to eighteen years shall with disabilities can legally be studying. At
Uttarakhand or Delhi. have the right to free education in a present, the enforcement mechanism under
See Chapter 7, section on neighbourhood school, or in a special the RTE Act does not extend to special schools,
Implementation of the
school, of his choice. while the enforcement mechanism under the
RTE Act and the RPWD
Act, for more details. RPWD Act is powerless against schools that do
19 The norms and standards
• The appropriate government and local not adhere to its provisions, as the mandate
authorities shall ensure that every child to derecognize schools for noncompliance of
provided under Schedule
1 of the RTE Act are with benchmark disability has access norms and standards lies with the education
highly limited and refer to free education in an appropriate authorities.
only to provision of a
environment till he/she attains the age of
ramp. No other norm or These ambiguities and gaps severely impinge
standard relating to the eighteen years
specific needs of CWDs is on the implementation and interpretation of
mentioned. the two legislations.
30
Introduction
re
ed
•E
nsuring access for CWDs to support services
ng ed
ol
th uc
en ati
ch
in on
fs
Shiksha
ea
at
ch
liz
e r
io
31
State of the Education Report for India 2019: Children with Disabilities
32
Summary
There has been partial progress in harmonization of domestic laws to the normative
provisions of international treaties, declarations and political commitments. In the
context of education of CWDs, the RPWD Act and the amended Mental Health Care Act
(MHCA) of 2017 are broadly harmonized with UNCRPD.
A lack of comprehensive and coherent policy is likely to create ambiguities during implementation.
The three main policy documents that currently lay the framework for education of children with disabilities –
the National Charter for Children, National Policy for Persons with Disabilities and National Policy for Children
– are not fully aligned with UNCRC and UNCRPD. The National Policy on Education is currently being revised.
The National Plan of Action for Children 2016 provides specific goals, strategies and indicators to be achieved
with regards to education of CWDs by the year 2021.
The RTE Act and the RPWD Act provide the legal framework at the national level. As per the Right of Children to
Free and Compulsory Education (Amendment) Act, 2012, children with disabilities are covered under ‘children
belonging to disadvantaged group,’ thereby entitling them to the 25% seats in private schools reserved under
Section 12(1)(c) of the RTE Act, in addition to having the right to pursue free and compulsory elementary
education in a neighbourhood school. Children with severe disabilities are permitted to take home-based
education. The state rules framed under the RTE Act have limited provisions for education of CWDs. The RPWD
Act is based on the human rights model. It provides for an inclusive environment for students with disabilities
through equitable access to academics, and opportunities to participate in sports and other recreational
activities within the school setting. It also recognizes the children’s right to study in special schools.
These two statutes have helped create a comprehensive legal framework. However, there remain some
ambiguities in terms of where children with disabilities should study and who should teach them, gaps in
terms of appropriate norms and standards applicable to all educational institutions and services provided to
children with disabilities, and an absence of a coordinated authority that can enforce the norms and standards.
Operationalization of the legal provisions is primarily through Samagra Shiksha Abhiyan. It sees inclusion as
an underlying principle for providing a continuum of education. While it emphasizes increasing enrolment
of children with disabilities in regular schools, removal of barriers, training of teachers and use of technology,
it also provides for home-based education. It expressly envisions a role for special schools as resource
centres for general teachers who are required to teach children with disabilities. The scheme is yet to be
operationalized in the states.
33
RFOR
RACE
CHAPTER
3
Vision to promote right
to inclusive education
table 2
Evolution of models of disability
Models Definition
Medical The medical model views disability as an attribute of the individual, directly
caused by disease, trauma or other health conditions. In this model, disability
calls for medical or other treatment or intervention to 'correct' the problem
(WHO, 2002).
Social The social model views disability as a socially created problem, and not an
attribute of an individual (WHO, 2002). It makes a distinction between impairment
and disability. Impairment is understood as a state of the body whereas disability
is a disadvantage arising from social arrangements (Goering, 2015).
Human Rights According to UNCRPD, 'disability is an evolving concept and . . . results from the
interaction between persons with impairments and attitudinal and environmental
barriers that hinder their full and effective participation in society on an equal
basis with others.'
'The human rights model positions disability as an important dimension of
human culture, and it affirms that all human beings are born with certain
inalienable rights' (National Council of Educational Research and Training [NCERT],
2006, p. 4).
36
Vision to promote right to inclusive education
The only inclusive education system and operationalize the increasing participation in learning, cultures and
above vision, communities, and reducing exclusion within
articulated
• Provide suitable equipment and teaching and from education. It involves changes and
definition modifications in content, approaches, structures
materials
of inclusive and strategies, with a common vision which
• Adopt teaching methods and curricula that
education in embrace the needs of all children and promote
covers all children of the appropriate age range,
India is found and a conviction that it is the responsibility of the
the acceptance of diversity
regular system to educate all children.
in RPWD Act, • Train all teachers to teach in inclusive classroom
2016, which is and encourage them to support each other In the definitions above, the core principles of
inclusive education are non-discrimination and
harmonized with • Provide wide ranging support that meets the
non-exclusion on the basis of disability, supported
the UNCRPD. diverse needs of all children to the greatest
by a process of change and reform in the
extent possible
education system to enable it to adapt to diversity.
According to the UNCRPD (General Comment 4),
The only articulated definition of inclusive
inclusive education involves the following.
education in India is found in RPWD Act (p. 3),
• A process of systemic reform involving changes which is harmonized with the UNCRPD.
and modifications in content, teaching methods,
approaches, structures and strategies in A system of education wherein students with
education. and without disability learn together and the
• Removal of barriers with a vision to provide system of teaching and learning is suitably
all students with equitable and participatory adapted to meet the learning needs of different
learning experiences and environments that types of students with disabilities.
best correspond to their requirements and
preferences.
• Inclusion does not constitute simple placement Gender concerns
of students with disabilities within mainstream
While the UNCRPD emphasizes a gender
classes without accompanying structural
perspective, any vision of an inclusive and non-
changes to, for example, organization, curriculum
discriminatory education system for CWDs has
and teaching and learning strategies.
to explicitly state the need for focusing on the
The UNESCO Guidelines Document on Inclusion education of girls with disabilities. A girl child
(2006, p. 13) defines inclusive education as follows. with disability is especially vulnerable and there
A process of addressing and responding to is a high probability of her exclusion from the
the diversity of needs of all learners through education system altogether.
BOX 4
G
irls with disabilities are more and independence as a measure of inclusive
vulnerable and parents choose the education.
easiest option to ensure their safety
Mobile apps, artificial intelligence and
– they do not enrol them in school. The
neural networked special applications can
concern for safety is genuine. Therefore,
facilitate educational aids for home-based
adequate provisions for safety should be built
intervention. This is necessary for girls who
into the education system.
are unable to access schools due to distance
Travel by public transport to schools is not an or inability to travel independently. The
option, specifically for girls with intellectual draft policy should promote research and
disability. The RTE Act, 2009, has made development of such applications.
a provision for transport facility but not
implemented it yet. The new draft National
Education Policy should recommend a
provision for transport to and from school.
Source: Extracted from the Annual Report 2016-
The transport facility should be equipped 17 of Parivaar – National Confederation of Parents’
with necessary surveillance equipment. Organizations (NCPO) Recommendations to Ministry
of Human Resources Development on Draft National
The draft policy should also include special life Education Policy (pp. 15-16), and Response on Draft
skills training to inculcate a sense of dignity Policy for Women Empowerment (pp. 18-19).
Figure 5
Options for educating children with disabilities
All children, including children Children with multiple In addition to the right to
with disabilities as defined in disabilities and severe study in a neighbourhood
the RTE (Amendment Act), 2012. disability also have the right schoo, children with
• Child with disability defined to opt for home-based benchmark disabilities
under the PWD Act, 1995 education as per the RTE also have a right to free
• Child, being a person with (Amendment) Act, 2012. educaton in a special
disability defined under the school of their choice (i) as
National Trust Act, 1999 per the RPWD Act, 2016.
• A child with severe disability
defined under the NTA Act, 1999
• All children with benchmark
disabilities as defined by the
RPWD Act, 2016
The principles of rights-based education – access, inclusive education for all children. Samagra
equity and quality education – as envisaged in Shiksha too takes multiple approaches to the
Samagra Shiksha Abhiyan are detailed out in education of children with disabilities.
chapter 2. The vision of the scheme is to provide
38
Dummy caption
Summary
The vision for inclusive education for children with disabilities derives from a rights-based approach to
education. The principles of inclusive education defined by international declarations have been interpreted
and operationalized through national legislation which determine the approaches taken to realize the
children's right to inclusive education.
The vision of an inclusive and non-discriminatory education system for children with disabilities has to
explicitly state the need for focusing on education of girls with disabilities, as a girl child with disability is
especially vulnerable and there is a high probability of her being entirely excluded from the education system.
39
HFOR
HOUSE
CHAPTER
4
Schemes and
programmes:
coherence and synergies
T
here are various schemes21 under DEPWD, MSJE
multiple ministries and line
Most of the above mentioned schemes (see
departments, targeted at children
Annexure 2A) come under the Department
with disabilities, and supporting
of Empowerment of Persons With Disabilities
access to education and retention
(Divyangjan), MSJE, and are implemented
in schools.
through its statutory bodies, national institutes
SCHEMES
Figure 6
and central public sector enterprises (CPSEs). See
MSJE organization structure Figure 6. These schemes cover early intervention
and education, therapies, special schools,
home-based rehabilitation, provision of aids and
Ministry of Social Justice and Empowerment appliances, and vocational education. Under
Department of Empowerment of Persons with Disabilities (Divyangjan) DEPWD, the National Trust (see Annexure 2B)
runs its own schemes specifically aimed at those
1
disabilities under its purview.
21 See Annexures 2, 3, 4,
5, 6, 7 for more on the
schemes referred to in
Chapter 4
42
Schemes and programmes: coherence and synergies
Figure 7
Ministerial and departmental linkages to schemes and services aimed at CWDs
Vocational
Education Health
Education
TE
MHFW
MoSDE MoF MSJE MWCD
MoLE (NHM)
RCI NCTE (NSDC) (NSDC)
(VRC)
(SCPWD) (NSQF)
MSJE MHRD (NSQF)
(DEPWD) (DSEL)
MSJE MHRD
MWCD MYAS
For an explanation of the nature and strength of the linkages (indicated by solid and broken lines in the figure), see below.
Education
• Both MSJE and MHRD are responsible for handles general teacher education.
education of children with disabilities. • Convergence between MSJE and MHRD, while
• Special schools come under the purview of needed, is not evident through inter-ministry
MSJE. These are registered under and regulated coordination (depicted by the broken line in
by state social welfare departments or state Fig 7).
commissioners for disabilities. • MWCD finds convergence both with MHRD and
• Inclusive education for CWDs is the MSJE through ICDS, as it supports both pre-
responsibility of MHRD. school education and referrals for assessment
• Both ministries are responsible for teacher of at-risk children.
education (TE). Teacher education for special • The Ministry of Youth Affairs and Sports (MYAS)
needs is regulated by the RCI, an MSJE- finds convergence with MSJE and MHRD
regulated statutory body. Its MHRD counterpart, through its sports schemes for CWDs in special
National Council for Teacher Education (NCTE), and inclusive schools.
State of the Education Report for India 2019: Children with Disabilities
Samagra Shiksha Vocational Education (VE) pertinent, and can in turn lead to collaborations
with other ministries, giving rise to a unified
Abhiyan stresses • MSJE finds convergence with both Ministry of
Labour and Employment (MoLE) and Ministry VE scheme. But it is still unclear which of the
the importance two ministries will implement the aforesaid
of Skill Development and Entrepreneurship
of working in (MoSDE). However, the nature of convergence scheme, or if the current system of independent
convergence between MSJE’s skill development scheme and schemes will continue.
with various line MoLE’s Vocational Rehabilitation Centres (VRCs)
Health
departments and is not clear.
• Early identification and intervention is necessary
ministries. •T
here is a clear association between the Ministry
to improve educational opportunities for
of Finance (MoF) and MoSDE, as the National Skill
children with disabilities (discussed in Chapter
Development Corporation (NSDC) was set up as 7). The National Trust under MSJE operates
a public-private partnership enterprise by the a scheme for early intervention and school-
MoF. The National Skill Qualification Framework readiness for children in the 0-10 year age
(NSQF) was also notified by the MoF (MoF, 2013). range.
• NSQF has been established for the express • The MWCD operates the ICDS scheme for pre-
purpose of aiding Samagra Shiksha Abhiyan school children to identify children at risk and
link vocational education in schools with refer them for further diagnosis.
general education, business and industry.
• The National Health Mission (NHM) under the
• A new, cross-cutting Skill Council for Persons Ministry of Health and Family Welfare (MHFW
with Disabilities (SCPWD) has been set up runs a health scheme for children in all age
in collaboration with the Confederation of ranges. The scheme includes early health
Indian Industry under the aegis of MoSDE screening and intervention for birth defects,
and MSJE, to offer industry-relevant skill deficiencies, developmental delays/disabilities
development programmes. RCI has been and other childhood diseases.
tasked to create the course curriculum for this
• The objective of all the above schemes from the
programme in collaboration with SCPWD and
three ministries – as far as CWDs are concerned
the national institutes. It is not evident if there – is early identification and intervention.
is harmonization in the VE curriculum across However, the nature of collaboration among
the spectrum of schemes, or if there is a plan these schemes is not clear at present, as
to ensure it through RCI-SCPWD collaboration depicted by the broken lines in Figure 7.
and the vocationalization of education through
Samagra Shiksha Abhiyan. In sum, there remains room for greater
convergence between different schemes and
• A s depicted in Figure 7, a collaboration between
ministries.
MSJE and MHRD in the area of vocational
education for children with disabilities is
44
Schemes and programmes: coherence and synergies
Convergence for inclusive children in the age range of 0–18 years. There are
overlaps in the educational and developmental
education objectives of these schemes as well. It is
Samagra Shiksha Abhiyan stresses the importance imperative that they converge to improve their
of convergence between various line departments efficacy but it's unclear how the same will be
and ministries and suggests ensuring it at the time achieved by Samagra Shiksha Abhiyan.
of preparation and approval of the Annual Work
Plan and Budgets (AWP&B) via representation With both inclusive education and teacher
from relevant ministries and states. The ministries education under the purview of Samagra Shiksha
and schemes MHRD plans to converge with are Abhiyan, collaboration between NCTE and RCI is
MWCD’s ICDS, MYAS’s Khelo India, and MSJE’s more necessary than ever. An MOU for cooperation
Assistance to Disabled Persons for Purchase/ between the two statutory bodies was signed in
Fitting of Aids and Appliances (ADIP), and Scheme 2015 with the following aims (RCI, 2015).
for Implementation of Rights of Persons with •R
evision of minimum standards for offering
Disabilities Act (SIPDA) 2016 (Samagra Shiksha disability-specific specialization in teacher
Draft Framework for Implementation, 2018). The education.
draft proposes to locate ICDS centres within • Ensuring inclusion in general teacher education.
primary schools and develop the pre-primary level
• Training special educators to support inclusive
curriculum in collaboration with MWCD.
practices.
There is duplication of schemes and efforts •S
erving children who may need special schools.
towards implementing similar interventions
•C
ontinuing rehabilitation education and
and achieving similar objectives. Both MSJE and
professional development programmes for
MHRD (under Samagra Shiksha Abhiyan) have
special and general education teachers.
home-based education programmes for children
with disabilities. Samagra Shiksha Abhyan covers •U
ndertaking research for promotion of inclusive
children in the age range of 4–18 years, ICDS education following the Universal Design for
covers children in the age range of 0–6 years, Learning (UDL) frameworks.
MSJE's Disha covers children with disabilities There is no information on the steps taken
in the age range of 0–10 years and NHM covers towards realizing the above goals.
Collaboration with • Integrate the ICDS programme with Samagra Shiksha Abhiyan
MWCD • Locate anganwadis in the primary school complex and allow their use of school
infrastructure
• Develop pre-primary curriculum in collaboration with SCERTs
Note • Develop mechanism for expansion of pre-primary curriculum
* Convergence with Right to Education • Right to Education as a synthesis of the RTE and the RPWD Acts
MSJE and related line
departments is necessary • Special training of Out of School Children (OoSC) and a school-level mapping
for effective collaboration exercise to be undertaken as a collaboration between state governments, local
between special and bodies, SMCs and local communities**
mainstream education
bodies at the pre-primary,
Teacher Education*** • Map facilities established for training of teachers and teacher educators with
elementary and secondary Pandit Madan Mohan Malaviya National Mission on Teachers and Teaching
levels for development of (PMMMNMTT) and Central Universities
curriculum and teacher • SCERTs to prepare and conduct in-service training in collaboration with state
education. This has
project offices (SPOs), DIETs, BRCs, CTEs, institutes of advanced studies in
not received specific
consideration under
education (IASEs) and other related agencies
Samagra Shiksha Abhiyan. Schemes • Convergence with MSJE on ADIP and SIPDA.
** T
he state departments onvergence with Mahatma Gandhi National Rural Employment Gurantee
•C
of social welfare and
Act (MGNREGA), Ministry of Rural Development (MoRD), for building school
state commissioners
for disability need
infrastructure in rural areas
to be included in Research • MHRD to collaborate on research and development into education of CWDs with
the convergence, MHFW, MWCD, MSJE, MSYA and private organizations.
for community level
mapping and special Education bodies • Make assessment system more efficient between SCERTs, Examination Boards,
training of OoSC. and institutes, and DIETS, CTEs and IASEs, and create efficient means of collaboration between
*** C
onvergence with RCI special schools teachers and personnel from these institutes
is missing, which is • Use special schools as resource centres for development of teaching-learning
necessary to ensure material (TLM) and to provide support services to children with disabilities and
comprehensive teacher
general teachers
training that can
address educational Vocationalization of • Align with the NSQF, MoF
requirements of children school education • Aim for convergence with current central and state government schemes
with disabilities.
45
State of the Education Report for India 2019: Children with Disabilities
BOX 5
T
amil Nadu's Vision 2023 statement aims Corporation of Chennai and non-government
to establish a robust human resources organizations (NGOs). The centre provides
pipeline by providing universal access, assessment and counselling, physiotherapy,
equity and quality at primary, upper primary, speech and language therapy, occupation
secondary and higher secondary education therapy, academic and vocational training,
levels. In 2012, the government decided and ICT-enabled inclusive library services.
to establish a State Resource Centre for
CWDs, irrespective of socio- economic
Inclusive Education in Chennai to augment
status, or their parents’ knowledge and
opportunities for personalized learning,
literacy levels, get equal opportunities for
and ensure equal access to education
early assessment and intervention. They take
and vocational training for children with
part in physical and intellectual capability
disabilities.
enhancement programmes that help them
The centre is the first of its kind in India achieve academic as well as vocational
and was built on a convergence model education goals. The centre helps create
with various central and state departments awareness among children, parents and
coming together to ensure a zero rejection special educators by providing hands-on
policy in education. These include the access and training on latest technology aids,
National Institute for the Empowerment methodologies and appliances available
of Persons with Multiple Disabilities for education, therapeutic rehabilitation
(NIEPMD), National Institute for the Visually and daily living needs. It supports block
Handicapped (NIVH), Artificial Limbs and district level centres in the state in their
Manufacturing Corporation of India (ALIMCO), inclusive education measures.
Directorate of Public Libraries, Directorate
of Medical Services, State Commissionerate
Office for Welfare of Differently Abled, Source: Sarva Shiksha Abhiyan, Tamil Nadu (n.d.)
CWDs, irrespective of
socio-economic status, or
their parents’ knowledge
and literacy levels, get
equal opportunities for
early assessment and
intervention.
46
JFOR
JUMP
BOX 6
I
n 2018, the Standing Committee on Social The scheme was revised on 22 November
Justice and Empowerment noted with 2017 and honorarium for staff and other
concern that out of 310 districts identified expenditure enhanced, effective 2018–2019.
since 1999 for phase-wise setting up District The committee also found that the DDRC
Disability Rehabilitation Centres (DDRCs), only scheme was not conceptualized and
261 DDRCs received funds at least once. IN formulated in right earnestness and was
other words, 49 DDRCs never got funds and throughout implemented in an ad hoc
remained non-functional. and casual manner. The committee felt
that amount of honorarium was only one
The committee found that DDRCs had
aspect of the problem and the department
faced a financial crunch from the very onset,
needed to make a concerted effort to make
impairing their functioning. Initially, it was
DDRCs financially viable and sustainable. The
expected that after 3 years of the launch,
committee, recommended that the scheme
the respective state governments would
be revisited to make it financially viable and
take over the functioning of DDRCs and
self-reliant.
provide requisite support. But after state
governments expressed their inability to take
Source: 55th Report of the Standing Committee on
over the scheme, DDRCs were brought under
Social Justice and Empowerment. Recommendation
Deendayal District Rehabilitation Scheme Para 2.8. Page 5. Lok Sabha Secretariat, 2018a.
(DDRS) for funding. See Annexure 8 for the districts with DDRC centres.
Samagra Shiksha Abhiyan has direct relevance to inclusive education as envisioned in Samagra
to implementation of the right to inclusive Shiksha Abhiyan, significant coordination and
education and creating multi sectoral linkages joint action is required at the state level. A joint
that can provide comprehensive services to action plan to converge the various inclusive
children with disabilities to aid their participation education schemes of the Government of
in neighbourhood schools. To realize the right Haryana is shared on the next page (see Box 7).
47
State of the Education Report for India 2019: Children with Disabilities
BOX 7
T
he Government of Haryana prepared The government identified 119 IED model
a joint action plan where inclusive schools at the block level that employ
education schemes for children special teachers. Each of these serves as
studying in Grades 1 to 12 are jointly a common resource centre for inclusive
implemented in order to best utilize education hubs statewide, and houses all the
available resources. The joint action plan for block’s educational and resource facilities.
convergence between Inclusive Education of The school principals act as block resource
the Disabled at the Secondary Stage (IEDSS) coordinators for conducting IED activities
and Inclusive Education (IED) in SSA focuses at the institutional level. They have received
on the following. orientation on the IED scheme and various
• Conducting all activities for CWDs in Grades programmes have been designed exclusively
1 to 12 jointly to avoid overlaps and ensure to train them in the area of inclusive
optimal utilization of existing resources. education.
• Improving educational and resource There is a single window delivery system
support delivery systems. which helps improve implementation
• Improving utilization of funds for common of the IED scheme in comparison to
goals. previous practice where schemes were
• Issuing common guidelines to all education implemented in silos. The joint action plan
officials, officers and teachers. also brings convergence with the School
Health Programme, the Integrated Child
• Developing a common system of
Development Scheme, the District Blindness
monitoring and evaluating gournd-level
Control Society, and the National Rural
activities.
Health Mission.
• Having a single window delivery system for
children with disabilities studying in Grades Source: Department of School Education,
1 to 12. Government of Haryana (n.d.)
TABLE 3
Vocational training intake in VRCs since
inception until 2006
48
Summary
Education of children with disabilities is under the purview of both MSJE and MHRD. Special schools are
supported by MSJE and inclusive education is implemented through MHRD programmes.
Various ministries and line departments operate schemes for children with disabilities. Convergence is not
evident in the planning and implementation of these schemes.
There is much duplication, with multiple ministries and line departments offering schemes with similar goals
for children in overlapping age groups.
Samagra Shiksha Abhiyan envisages convergence between ministries, line departments and schemes, both
at central and state level, to achieve inclusive education. However, the convergences actually enabled by
Samagra Shiksha Abhiyan will be apparent only when the programme is operationalized.
Intersectoral and multi sectoral collaboration at state and national level are required to enable effective
implementation of inclusive education.
49
F
FOR
FLOWER
CHAPTER
5
Situational analysis
of education for children
with disabilities
T
he previous chapter discussed Population of CWDs
convergence and divergence
• According to the 2011 census, there are
between the larger vision of inclusive
26,810,557 persons with disability in India
education and the conceptualization
constituting 2.21 per cent of the country’s
of programmes and schemes. This
population. This is much lower than the global
chapter studies their implementation through
figure of 15 per cent of the world's population
an analysis of available data on education of
estimated to be living with disabilities (World
CWDs. The two main data sources are the 2011
Health Organization [WHO], 2011).
Census of India (Office of Registrar General &
Census Commissioner, Ministry of Home Affairs, • The total number of children with disabilities
Government of India, 2011) and the annual (in the 0–19 year age group) 25 is 7,864,636,
U-DISE.24 making up 1.7 per cent of the total child
population (see Figure 8). About one per cent
of children aged between 0 and 4 (numbering
1,291,637), about 1.5 per cent of children aged
between 5 and 9 (numbering 1,418,969) and
over two per cent of children between 10 and 19
(numbering 4,617,073) live with disabilities.
Figure 8
All India percentage of CWDs by age group
2.23
2.07
DISABILITY 1.90
Audit
1.81
1.63 1.70
1.54 1.58
1.44
1.18 1.14
Boys 1.11
Girls
Total
0 to 4 5 to 9 10 to 19 Total
Figure 9
All India percentage of CWDs (0-14 years) by location
52
Dummy caption
In absolute
numbers, more boys
are reported to have
disabilities than girls,
across age groups
and regions.
Figure 10
Number of CWDs by age group and location
18,53,846
14,11,480
7,85,588
7,56,877
5,94,870
6,33,381
4,85,619
4,22,268
Boys
2,96,243
2,04,887
2,40,714
1,78,863
Girls
• In absolute numbers, more boys are reported 10-19 year age group appear to form the largest
to have disabilities than girls in all three age cohort, and urban girls from the 0-4 year age
categories in both rural and urban areas (see group the smallest cohort among children with
Figure 10). Rural boys from the disabilities.
Figure 11
CWDs (0-14 years) by disability type
Multiple-
disabilities
9% In-seeing • Among CWDs aged below 14 years, the highest
19%
number fall under the 'any other' category 26
Any- (see Figure 11). This includes conditions such as
other autism that do not appear in the list of specific
24% disabilities covered in the census. Disability 'in
In-
hearing hearing' is the second largest category among
21% children, followed by disabilities 'in seeing' and
'in movement' respectively.
7%
In- In-
movement speech
11% 9%
26 Office of Registrar General & Census Commissioner,
Source: Census 2011, Learning
Series C Table 21 disabilities Ministry of Home Affairs, Government of India (2011) p. 53.
53
State of the Education Report for India 2019: Children with Disabilities
• Reported numbers of CWDs vary widely from children with disabilities in the 5-19 age group,
state to state. Table 4 shows that populous while less populous states like Sikkim, Mizoram,
states like Uttar Pradesh, Maharashtra, Bihar Arunachal Pradesh and Goa show fewer.
and West Bengal show higher numbers of
table 4
Statewise population of CWDs (5-19 years)
47 %
Daman & Diu 431 279 152
53 %
Himachal Pradesh 26,737 15,262 11,475
54
Educational status of children
with disabilities
Early Childhood Education
• According to the 2011 census, there are 368,697
five year olds27 with disabilities in India. Out of
them, 99,259 (27 per cent) attend educational
institutions, while 263,966 (72 per cent) have
never attended any. More than one per cent
have dropped out (see Table 5).
• Data* shows that a total of 40,801 children with
disabilities below the age of 5 attend special
schools. Out of them, 19,341 are girls (47 per
cent) and 21,460 are boys (53 per cent).
* Source: 2011 Census of India, Series C, Table 10
table 5
Educational status of 5 year olds
All Children* 70.97 72.26 69.55 11.82 11.70 11.96 17.21 16.04 18.49
27 A s per the RTE Act, Grade 1 commences at the age of schools for children with disability, adult literacy centres
6. Hence, 5 years has been taken as the age by which a or any other institution. Children receiving home-based
child should have received early childhood education. education are enrolled in mainstream schools. Separate
This is likely to also include underage Grade 1 enrolments. data on the exact number of children receiving home-
28 The 2011 Census of India defines educational institution based education is not available in census, NSS or
school-based U-DISE reports.
as schools, colleges, vocational training centres, special
55
State of the Education Report for India 2019: Children with Disabilities
• A large number of children with disabilities do disabilities. While there has been a drop in
not go to regular schools but are enrolled at the enrolment of students with locomotor and
National Institute of Open Schooling (NIOS).29 visual impairments, there has been a rise in
A review of enrolment figures at NIOS shows those with multiple disabilities.
a decline for most categories of disabilities •T
he percentage of children attending schools
between 2009 and 2015 (see Table 7). The is the lowest among those with multiple
biggest group of CWDs enrolling with NIOS disabilities, mental illnesses and mental
over the years have been those with learning retardation (see Figure 12).
table 7
Enrolment in NIOS from 2009-2015 by disability type
Figure 12
Percentage of children between 5 and 19 by education status and disability type
0 10 20 30 40 50 60 70 80 90 100
• A comparison of numbers enrolled across levels the enrolment numbers had increased slightly
of schooling shows the total enrolment of CWDs during 2015/16, but dropped below the 2014/15
falls with each successive level of schooling figure during 2016/17. Enrolment numbers for
(see Figure 13). A comparison over three years CWDs are relatively stable at the secondary level
(2014/15 to 2016/17) shows a decline in the and have improved over the years at the higher
enrolment of children with disabilities at the secondary level.
primary level. In the case of upper primary level,
56
W WALK
FOR
Figure 13
Total enrolment of children with disabilities across levels of schooling
15,67,633
15,19,716
13,52,162
7,50,230
7,65,815
7,45,153
2014-15
2015-16
2,18,455
2,18,261
2,19,571
2016-17
60,869
62,649
61,046
57
State of the Education Report for India 2019: Children with Disabilities
• Variation in school attendance between disabilities dropping out of school than the
states is evident, with Goa and Kerala having national average. Over a third of the children
higher percentage of children with disabilities with disabilities in the Northeastern states of
attending schools (see Table 8). Union Territories Arunachal Pradesh, Assam, Meghalaya and
Daman & Diu and Lakshadweep have more Nagaland have never attended an educational
girls attending schools than boys. Odisha institution.
and West Bengal have more children with
table 8
Percentage of children with disabilities (5-19 years) by education status and states
• A study of gender gaps across states reveals enrolment for girls than boys at the secondary
that Gujarat, Karnataka, Kerala and Maharashtra level while Himachal Pradesh, Punjab and
have gender gaps at both secondary and Telangana had better gender ratio at the higher
higher secondary levels (see Table 9). However, secondary level.
Jharkhand, Punjab and West Bengal had higher
table 9
Enrolment at secondary and higher secondary levels by gender
Nagaland 78 84 30 27
59
Out of School and Working Children the 6-13 age group are estimated to be out of
• Studies on out of school children (SRI and school as compared to male children (2.77
EdCIL, 2014) indicate that 0.60 million children per cent) (SRI & EdCIL, 2014).
with disabilities aged between 6 and 13 years • The 2011 Census of India shows that 100,799
are not attending school30 . This constitutes children with disabilities below the age of 14
over 28 per cent of CWDs, much higher than are engaged as main workers and 98,226 are
the national estimate (2.97 per cent) of out engaged as marginal workers for 3 to 6 months
of school children. Among children with in a year. Although employment of children is
multiple disabilities, almost 44.13 per cent are prohibited by law, the data reveals that a small
out of school. As are over one-third of children proportion of children are nonetheless engaged
with mental and speech disabilities. A higher in work 31 (see Table 10).
proportion of female children (3.23 per cent) in
table 10
30 Although the authors Total number of children with disabilities (0-14 years) by work status
use census data for
estimation, the difference Main worker Total 1,00,779
in numbers could be
due to differences Boys 61,870
in methodology and
questions asked during Girls 38,909
the survey. The SRI
Marginal worker Total 29,034
and EdCIL report also
indicates the need Less than 3 months Boys 15,517
to conduct a focused
survey on children Girls 13,517
with disabilities due
to challenges in data Marginal worker Total 98,226
gathering.
3-6 months Boys 53,125
31 The census data does not
tell us about the literacy Girls 45,101
rate or education status of
Non-worker Total 53,44,297
children who are working
as main or marginal Boys 29,42,702
workers. It does not
reveal if non-workers are Girls 24,01,595
attending any educational
institution. Source: Census 2011, Series C, Table 23
60
Summary
There are an estimated 7.8 million children with disabilities aged 19 years or younger (1.3 million aged 4 years
and younger, 1.9 million aged between 5 and 9 years, and 4.6 million aged between 10 and 19 years), amounting
to around 2% of the total child population. There are interstate differences in the estimated numbers of
children with disabilities. A majority have disability in hearing followed by disability in seeing.
Among 5 year olds with disabilities, three-fourths do not go to any educational institution. Nor do one-fourth
of children with disabilities aged between 5 and 19 years. The number of children enrolled in school drops
significantly with each successive level of schooling. There are fewer girls with disabilities in schools than boys.
A large number of children with disabilities are enrolled at the National Institute of Open Schooling (NIOS). A
review of NIOS figures shows a large increase in the enrolment of children with learning disabilities. While there
has been a drop in enrolment of students with locomotor and visual impairments, enrolment of children living
with multiple disabilities has seen a rise.
Estimates of out-of-school children indicate that 0.6 million CWDs aged between 6 and 13 years are not
attending school. This constitutes over 28 per cent of children with disabilities, much higher than the national
estimates (2.97 per cent) of out-of-school children. 44.13 per cent of children with multiple disabilities are out
of school. As are over one-third of the population of children with mental disabilities and speech disabilities. A
higher proportion of female children (3.23 per cent) aged between 6 and 13 are estimated to be out of school as
compared to male children (2.77 per cent).
61
B
FOR
BALL
CHAPTER
6
Barriers to inclusive
education for children
with disabilities
Attitudinal barriers
A
barrier-free school environment prior experience with inclusive education were
is a key requirement for inclusive found to have more positive attitudes towards
education. However, certain the latter (Balboni & Pedrabissi, 2000). Parental
attitudinal barriers to education attitudes towards inclusion were also found to
of children with disabilities exist be favourable when they felt included in the
both within and outside the school. schools’ decision making process.
Beliefs about disability and capabilities to learn In India however, parents of children without
influence the attitudes of various groups towards disability have been reported to hold negative
inclusion. Negative attitudes to disability are the attitudes towards inclusion (Julka & Bharti, 2014).
single most debilitating barrier to inclusion. Lack of Attitudes of parents of CWDs may be shaped by
awareness, shame, fear, misinformation, and socio- a combination of factors, ranging from religious
economic values about human life, respect and and social beliefs, prevalent perceptions in their
dignity, form negative attitudes (Save The Children, communities, concerns about the children’s
2002). These attitudes end up being more safety, mobility of the child, availability of
detrimental when poverty and disability intersect. transportation, and response from the school
Poverty in itself is a huge barrier to educational (Banerjee, 2018). Venkatakrishnashastry and
opportunity, but its effects are compounded Vranda (2012) found that parents were initially
when linked with disability (UN, 2018). unaware of their children having specific learning
disabilities. On becoming aware, 'they reported
feelings of anxiety, guilt, insecurity, emotional
instability, self-pity and hopelessness' (p. 47). They
Attitude of parents also found that these parents’ attitude towards
Positive parental attitudes are vital for the the academic ability of their children differed
success of inclusive initiatives (Elzein, 2009). based on gender. They had higher expectations
An international study (De Boer, Pijl, and from boys than from girls.
Minnaert, 2010) has shown that parents of
children without disability hold positive or
neutral attitudes towards the inclusion of CWDs
in mainstream education. The attitude of parents Attitude of teachers
of children with disability however, were found to International studies show that negative
be more neutral and cautious than positive. They attitudes towards inclusion are common among
had concerns about the following. teachers (Darrow, 2009; Agbenyega, 2007;
•Availability of services required by their child Saloviita, 2018). Teachers’ attitudes could also
in mainstream schools. vary based on the type of disability. Teachers
are relatively more open to accepting children
• Need-specific instruction and resources.
with physical or mild disabilities as opposed to
• Emotional development. those with intellectual, cognitive and profound
The same study linked parents’ attitudes to disabilities (Avramidis and Norwich, 2002).
variables such as education, socio-economic However, the studies also suggest the following
status (SES), type of disability, and previous factors may change teacher attitudes towards
experience with inclusive education. Parents inclusion.
with higher SES, higher education levels and • Sensitization and awareness training
• Knowledge of pedagogical approaches to
including various types of disabilities
Teachers are relatively more open to accepting children
• Availability of teaching tools, assistive
with physical or mild disabilities as opposed to those with
technology devices, professional and
intellectual, cognitive and profound disabilities. administrative support
• low teacher-pupil ratio
64
Barriers to inclusive education for children with disabilities
A combination of Studies in India about teachers’ attitude to on-ground efforts, community awareness
inclusive education mirror international findings drives and teacher preparation programmes
socio-cultural and
(Bansal, 2016; Sharma, Moore and Sonawane, can effectively counter negative attitudes
systemic factors 2009; Tiwari, Das and Sharma, 2015). Even when (Venkatakrishnashastry and Vranda, 2012; Sharma
underlie negative attitudes are neutral, implementation of inclusive and Nuttal, 2016). Exposure to inclusive education
attitudes of education remains a concern (Tiwari, Das, and during initial teacher education has a positive
parents and Sharma, 2015; Kalita, 2017). Across studies, the impact on teachers’ attitudes towards inclusion
following variables are consistently found to (Ahsan, Sharma and Deppeler, 2012; Varcoe and
teachers towards Boyle, 2014). Participation of pre-service teachers
inform teachers’ attitudes.
inclusion. in a nine-week university course on inclusive
• Lack of training on education of children with
disabilities education reduced their concerns about
inclusion and improved their efficacy in, and
• Lack of confidence in teaching children with
attitude towards, inclusive classrooms (Sharma
disabilities
and Nuttal, 2016).
• Under-resourced classrooms, specifically in
To sum up, the attitude of parents and teachers
terms of resources for children with disabilities
towards including children with disabilities in
• Lack of administrative support mainstream education is crucial to inclusive
• Large class sizes education. A combination of socio-cultural and
• Fear of affecting the academic performance systemic factors underlie negative attitudes of
of the whole class parents and teachers towards inclusion. However,
there is some evidencethat relevant measures
• Lack of prior contact with persons with disability
with the parents and schools can offset attitudinal
According to research and findings from barriers, as the case below shows.
N
eru, from Bhutkhedi village, Jhabua also developed a partial foot drop on her right
district, Madhya Pradesh, was only leg which meant she could no longer lift her
eight when she was diagnosed with foot at the ankle. We also gave her customized
an aggressive form of leprosy and started on protective footwear to strengthen her ankle
a multi-drug therapy. Despite her treatment, muscles. With our help, her family's support
CASE STUDY 1 Neru faced stigmatization at school and in and through her own determination, Neru was
How Neru her village. able to make a recovery. She could walk more
easily and use her hand again.
went back 'I went to school. When I approached the lady
serving food with a plate, she shouted at me She began to regain some of the confidence
to school and told me that "You don’t need to come to that she used to have. Her community no
school anymore." I felt so sad about it and I longer feared the disease, she was able to
cried a lot. I decided not to go to school again use the village water pump again. However,
and stopped my studies.' Neru was still frightened to go back to school,
worried about how she would be treated
The stigmatization extended to her family and
there. We visited the school and told the
other spheres of their lives. 'We were taking
teachers her story and they were happy to
water from the hand pump near school,' she
have her back, even after almost a three-year
says, 'People did not allow us to take water
gap. She even met the lady serving food who
and were telling us that we may spread
had turned her away. The woman took her
leprosy to other villager. We decided to go
hand, looked at it, and said how glad she
further away to get drinking water.'
was to see it healed. She said that she would
After such treatment, it was hard for Neru not look to see if any other child was showing
to internalize this feeling of shame. 'I also felt symptoms of leprosy and refer them to the
that I have very serious disease which may government hospital.
spread to my family members so I just kept
At first Neru’s diagnosis seemed like an end to
my distance from them and I was hiding my
her childhood, her education and her place
hand when people came to my home.'
in the community. Now she has returned to
Although she had completed the one-year school and wants to become a teacher herself.
course of multi-drug therapy, Neru had lost 'I want to become teacher in our village and I
out on her childhood. As part of our outreach will teach all the students very well.'
work, we could help Neru with reconstructive
surgery, and pre- and post-operative
physiotherapy, so that she would regain full
use of her arm and leg. By this point, she had Source: Lepra Society, Bhopal, Madhya Pradesh
65
State of the Education Report for India 2019: Children with Disabilities
Accessibility
BOX 8
What do
Physical accessibility
accessibility Physical accessibility refers to access within Delhi has a School Disaster Management
and reasonable the school building, which includes signages, Planning document which takes into account
accommodation accessible entrances, corridors, toilets, switches such needs. 35
mean?
and controls, ramps, elevators, accessible desks
“ etc. as well as the design of outdoor facilities like Access Audits of Schools
Accessibility is roads, footpaths, and transport that is needed Between 2011 and 2014, Samarthyam, an NGO,
related to groups,
to access the school. Government schools, with the support of Department for International
whereas reasonable
accommodation is especially upper primary and secondary schools, Development (DFID), Government of the United
related to individuals. become inaccessible to CWDs not only because Kingdom, conducted access audits in 500
This means that of distance32 but also due to lack of accessible schools in 16 Indian states. It was found that due
the duty to provide transportation in villages and remote areas. to lack of expertise and poor understanding of
accessibility is
an ex ante duty.
Accessibility inside the school building is also access standards among construction personnel
The obligation a challenge. Operationalization of physical and school administration, school infrastructure
to implement accessibility mostly takes the form of ramps. was often barrier-filled and unsafe for CWDs. This
accessibility hampered their access to, and use of, classrooms,
is therefore, Access to teaching and learning material, and
playgrounds, libraries, drinking water units,
unconditional, i.e. school experiences such as participation in
the entity obliged to toilets, mid-day meal areas, and other areas. 36
midday meals or cultural programmes are rarely
provide accessibility A review of state-wise audits of select girls’
may not excuse the
considered. Furthermore, the term “disabled-
schools (see Table 11) shows that schools had no
omission to do so friendly” is not clearly defined and in the
disabled-friendly toilets or emergency evacuation
by referring to the context of schools could include a barrier-free
burden of providing
facilities. Access audits of school buildings show
environment, school functioning and adequate
access for persons with that, in some schools, drinking water facilities
resource support to aid full participation of
disabilities. and classrooms too were not accessible. Lack
CWDs. Issues relating to physical accessibility and
The duty of reasonable of toilets accessible to girls with disabilities is a
barriers to education are more severe for girls
accommodation, major reason for them dropping out, given the
contrarily, exists only with disabilities as girls face double the prejudice
challenges it creates for maintaining menstrual
if implementation with the baggage of traditional gendered
hygiene (Women with Disabilities India Network,
constitutes no undue representations in addition to their disability
burden on the 2019). Children with disabilities are most
(Bakhshi, Babulal and Trani, 2017; Limaye, 2016).
entity. The duty to vulnerable to disaster risks, and international
provide reasonable Government efforts to ensure efforts towards disability-inclusive disaster risk
accommodation reduction have not percolated down to the
accessibility
is an ex nunc duty,
school level.
which means that it is • The Three-Year Action Agenda of the Niti Aayog
enforceable from the (2017) recognizes challenges such as absence of
moment an individual
ramps, disabled-friendly toilets, special teaching
with an impairment
needs it in a given materials and sensitized teachers. The targets
situation, for example, are, however, limited to schools having at least
workplace or school, one section of each class accessible under 32 U
nder RTE Rules in most states, the distance norm is
in order to enjoy her or Universal Design Guidelines33 , providing aids 3 kms for upper primary schools and generally 5 kms
his rights on an equal for secondary schools. Without accessible and safe
basis in a particular
to approximately 3.5 lakh beneficiaries every
transportation, even the 1 km norm for primary schools
„
context. year, and conducting cochlear implant and could appear daunting for CWDs.
corrective surgeries for 5,000 children on
33 A
s per the RPWD Act, '“universal design” means the
UNCRPD, General a yearly basis (p. 163).
design of products, environments, programmes and
comment No. 2 (2014), • One of the key interventions of the DEPWD, services to be usable by all people to the greatest
paras 25-26. extent possible, without the need for adaptation or
MSJE, is the Accessible India Campaign that
specialized design and shall apply to assistive devices
audits public buildings, including schools, to including advanced technologies for particular group of
assess accessibility of the physical environment, persons with disabilities.' A checklist for Making Schools
and obliges governments to retrofit existing Accessible to Children with Disabilities has also been
prepared. See UNICEF, Samarthyam and Accessible India
buildings to meet accessibility norms. Campaign (2016).
• The National Building Code also requires public 34 National Disaster Management Authority, Ministry of
buildings to have barrier-free features. Home Affairs, Government of India (2009).
• The National Policy on Disaster Management, 35 Government of Delhi (n.d.).
2009, 34 is silent on how school infrastructure 36 Cited in UNICEF, Samarthyam and Accessible India
should be designed for disaster management Campaign (2016). Making Schools Accessible to Children
to cater to the special needs of CWDs. However, with Disabilities.
66
TABLE 11
Access audit for select schools – gender perspective
Note: All audits conducted Deorali Girls Senior Secondary Accessible toilets, corridors, emergency
in 2016. Five Point Rating School evacuation
symbols and criteria used. Gangtok, Sikkim
Hazardous, Ramp, classroom and auditorium, signages,
inaccessible, switchboards controls and operating
unsatisfactory, mechanisms
creating access to be
given highest priority
Paljor Namgyal Girls Senior Accessible toilets, corridors, drinking water
Secondary School facility, emergency evacuation
Inaccessible and
unsatisfactory, Gangtok, Sikkim
creating access to be Ramp, signages, switchboards controls and
given high priority operating mechanisms, classrooms and
auditorium
Source: Retrieved from Adarsh Nivasi School Higher Accessible toilets, drinking water fountain,
each state. Access
Secondary School for girls door hardware, ramps, handrails, accessible
reports available at http://
disabilityaffairs.gov.in/ Gandhinagar, Gujarat controls and switches, emergency
content/access_report.php evacuation
on 7 March 2019
67
State of the Education Report for India 2019: Children with Disabilities
Accessible toilets
Majority of the schools in India do not have difference across types of schools. The situation
accessible toilets. According to the Secondary is slightly better in urban areas, especially in
Education State Report Cards - Provisional (2016- large, composite schools with Grades 1 to 12.
17) (National University of Educational Planning However, in urban areas, one-fifth of the schools
and Administration, n.d.), accessible toilets are with Grades 6-12 do not have accessible toilets.
provided in less than 20 per cent schools across This contributes to poor transition rates of
12 states. Table 12 shows that there is not much children to middle and high schools.
TABLE 12
Percentage of schools with disabled-friendly toilets
> 20 % Type of school All Areas (%) Rural Areas (%) Urban Areas (%)
The state-wise status of percentage of schools Telangana, Tripura and Uttarakhand have
with disabled-friendly toilets for 2016-17 shows disabled-friendly toilets. On the other hand,
that inter-state disparity (see Figure 14). Less over 50 per cent schools in the states and union
than 10 percent of schools in Andhra Pradesh, territories of Chandigarh, Chhattisgarh, Dadra
Arunachal Pradesh, Goa, Jammu and Kashmir, Nagar Haveli, and Delhi have disabled-friendly
Jharkhand, Manipur, Meghalaya, Sikkim, toilets.
Figure 14
Percentage of schools with toilets for CWDs However, the reliability
at the secondary level – select states
of this data is
questionable. As noted
West Bengal 20.6 by the Comptroller and
Auditor General (CAG),
Uttar Pradesh 33.6 there is a discrepancy
between the data
Tamil Nadu 21.7 shown in U-DISE on
barrier-free access, and
Maharashtra 27 findings of the joint
physical verification
Chhattisgarh 31.4 undertaken during
audits by the CAG.
Bihar 16.5
These discrepancies
have been
documented in nearly
0 5 10 15 20 25 30 35 40
all the states in all the
districts (CAG report,
37 In Karnataka, 52 schools had discrepancies in data 2017, p. 52).37
regarding disabled-friendly toilets, 58 schools regarding
functional disabled-friendly toilets, 83 schools regarding
need for ramps, 68 schools regarding ramp availability, 88 Source: National University of Educational Planning and
schools regarding handrails availability. Source: Appendix Administration (NUEPA n.d.): “Secondary education in India”.
VI A, MHRD, Union Government (Civil), 2017. U-DISE. 2015-16, New Delhi. NUEPA.
68
Barriers to inclusive education for children with disabilities
T
his case is an account of a Block Goutam went to school regularly with the
Resource Teacher (BRT) working with wheelchair provided. He was provided
CASE STUDY 2 Grade 3 student Goutam Dey, age 8 escort allowance in 2007/08 under Sarva
years, enrolled in Barabati Primary School, Shiksha Abhiyan. The incentives helped
Making a Balasore, Odisha. improve his attendance in school. In 2008/09,
difference As a BRT, I had visited the Barabati Primary
Goutam was also provided hip-knee-
ankle-foot-orthosis (HKAFO) through Sarva
How a teacher School in September 2006 for a survey of
Shiksha Abhiyan, enabling him to leave
changed Gautam's life children with disabilities. I found Goutam was
the wheelchair and stand. I assisted him in
unable to walk properly. He was first taken
positioning correctly and practising the use
to an assessment camp for Orthopaedic
of HKAFO.
Impairments and Cerebral Palsy. He
underwent surgery in 2007, and later, a Now he can stand without any support and
medical assessment camp provided him with also walk a few steps with the help of HKAFO.
special shoes for smooth mobility. In 2007/08, In 2009/10, through Sarva Shiksha Abhiyan,
he was admitted to Grade 1. The school was I helped to get him a large rollator which
made barrier-free with ramps. As a BRT, I met he started using in school and around the
all the teachers and trained them on how neighbourhood. He was also provided a bus
to work with children with disabilities, and pass, train pass and identity card through
when and where Gautam needs their care. a single window camp organized by Sarva
I explained about the sitting arrangements Shiksha Abhiyan.
and how he should be taught. I regularly
visited the school and discussed his progress. Source: Based on Swain Anna Purna (n.d.).
Although there In a study of low and middle-income countries, the government and NGOs in camps etc. are
Tangcharoensathien et al (2018) found four key abandoned as they are not suitable, or are of low
has been wide-
gaps that contribute to limited access. quality. There is no system to assess the need of
scale production the individual and suitably customize the device
1 Low demand, in spite of high need, largely
and distribution due to widespread lack of awareness among (NDN and NCRPD, 2019, para 61).
of aids and potential beneficiaries, caregivers, and • An evaluation of the ADIP Scheme by the
appliances in healthcare providers. Planning Commission revealed a number of
India, various issues and challenges in its implementation.
2 Product designs are insufficiently informed Distribution of aids and appliances without
issues persist by users’ and caregivers’ preferences and adequate training on correct use and
with the environments, and limited transfer of maintenance has not helped children with
implementation, technologies to low-resource areas. disabilities. The scheme does not cover cost of
particularly at the 3B
arriers to supply including low production
maintenance of aids and appliances. Moreover,
repair and maintenance facilities for aids and
last mile. quality, financial constraints and scarcity of
appliances are often not located within reach.
trained personnel.
These factors lead to beneficiaries abandoning
4 A dearth of high quality evidence on the costly aids and appliances due to minor, fixable
effectiveness of different types of technologies. problems.. Many beneficiaries reported having to
discard (in case of hearing aids) or sell (in case of
Evidence in India also suggests that although tricycles) appliances received by them because
there has been wide-scale production and they were not working properly (Planning
distribution, various issues persist with the Commission, Government of India 2013).
implementation, particularly at the last mile.
• There is a striking gender disparity among
• Availability of aids, appliances and rehabilitative beneficiaries of ALIMCO/ADIP, although
services tends to be concentrated in urban disaggregated data by age is not available. Only
areas. There is limited awareness among about one-fourth of the beneficiaries of all the
parents about income-based programmes for aids and appliances are female (see Table 13).
free aids and appliances. Some parents also The ratio is slightly better in the Northeastern
find that the design of the aids and appliances states compared to the rest of the country.
provided do not help their child function Even in the case of ADIP camps conducted in
effectively (Limaye, 2016). schools through SSA, the percentage of female
• Much of the aids and appliances distributed by beneficiaries is around 36 (ALIMCO, 2015).
69
State of the Education Report for India 2019: Children with Disabilities
table 13
Gender disparity in ALIMCO/ADIP beneficiaries (2014/15)
• A ssistive aids in India are taxed at 5 per cent Information and Communication
under the new Goods and Services Tax (GST)
regime (it was tax-free previously) and some
Technology (ICT) and assistive
parts, and accessories such as wheelchair technologies
cushions, attract a GST of 28 per cent – the
What are assistive technologies?
prevalent rate for luxury items (NDN and
NCRPD, 2019, para 62). The priority Assistive Assistive technology refers to products and
Products List (APL) 38 developed by the WHO related services that enable and enhance
to improve access to high-quality affordable inclusion and participation of people with
assistive products globally as part of the Global disabilities. There is no one solution that fits
Cooperation on Assistive Technology (GATE), all and the need for assistive technology is
needs to be reviewed by India. determined by user requirements (de Witte et al,
2018). Assistive technology is a key component
It would be important for India to examine in advancing inclusion of CWDs and is critical for
these gaps in provisioning, optimal use and many to access and benefit from education. It
maintenance of aids and appliances, and identify increases independence, improves participation,
solutions that are local, workable and adaptable. communication and overall functioning.
70
Access to Following are some of the ways in which ICT thereby saving time. Eight hundred and forty-
and assistive technologies are used to support six special teachers, representing 501 special
affordable
education. schools and 122 SSA blocks throughout the
assistive country, have been trained in use of the tool.
• Digital Accessible Information System (DAISY):
technology is Bihar and Madhya Pradesh use DAISY to Their feedback is being used to further enhance
considered a create accessible e-books to meet the needs it. (Ministry of Electronics and Information
human right of students with disabilities. As of June 2015, Technology, 2018).
because it non-profit organizations and the state-owned • Roshni: Roshni is the national resource
textbook publishing boards have converted centre for Augmentative and Alternative
paves the way 180 textbooks to DAISY format. The resulting Communication (AAC), a term used to
for inclusion. positive impact has now prompted state describe a broad range of communicative
However, publishers to create digital versions of new behaviours and methods which support
equitable access textbooks in accessible formats alongside and enhance interactions for those who are
print versions, and to provide them online to unable to use speech as their primary mode of
to assistive
students with disabilities at the same time communication. Roshni is a repository of all AAC
technologies is that traditional print formats of textbooks resources available for children with disabilities,
a key issue. become available. In addition to the centralized parents, teachers and other professionals,
development of written material, many and undertakes research and development of
students receive DAISY players or mobile both low-tech and hi-tech resources, including
phones free of charge from state governments field-testing of devices and software. The
to help them access such content. The success resources range from objects to symbols. The
of this initiative is being extended to Punjab need for culturally relevant symbols led to the
and Uttar Pradesh (United Nations ESCAP, 2016). development of Indian Picture Symbols for
• Web-based bilingual tool for assessment of Communication (IPSC), a library of culturally
children: Punarjjani™ is a web-based bilingual and linguistically appropriate digitized picture
(Hindi and English) tool to assist special teachers icons, and Sanyog, a software to navigate this
assess children with mental retardation library of 1900 symbols to make communication
(MR). The tool digitizes the current three displays in collaboration with Indian Institute of
standard manual methods – FACP (Functional Technology Kharagpur. Sanyog is a multi-lingual
Assessment Checklist Programming), BASIC- and multi-modal augmentative communication
MR (Behavioural Assessment Scale for Indian system with an accessible web browser and
Children with Mental Retardation), and the is an indigenous solution for a broad range of
MDPS (Madras Development Programming users with varied cognitive abilities. Sanyog
System) – used for regular assessment of works not only as an AAC device, but also as a
children with MR in the age group of 6-18 years. teaching-learning resource. 39
The tool enables special teachers conduct their
assessment in an easy and structured way, 39 Basu, A. and Chakraborty, S., n.d.
71
State of the Education Report for India 2019: Children with Disabilities
I
n an Indian classroom, especially one multiple times if required. Students were also
with an exam-oriented curriculum, a able to access digital curriculum resources at
CASE STUDY 3
human reader is one of the most common home when a human reader was not readily
accommodations provided to bridge the gap available.
Software to for struggling learners. However, for a subject
The students were given consistent practice
the rescue like the English language, the Cambridge
for using computer readers through an online
board does not permit the use of a human
Computer readers at tool called Readworks. Readworks, a free
reader. The IGCSE curriculum requires the
The Gateway School software that builds reading comprehension
students to read and process large quantities
for students through reading passages and
of text, and students are specifically assessed
questions, has audio versions of all reading
on their reading skills. In this situation, the
content. Students can listen to all passages
computer reader allows the student to access
and questions. This was embedded as a
information independently by reading it out
daily classroom structure, where the first 15
loud. The dependency on a human reader
minutes of the language class was dedicated
is eliminated. Using computer readers is
to reading articles assigned on Readworks
not just an ‘accommodation’ the students
and then answering the subsequent
use during the exams; it is now a life-skill for
questions. The repeated practice with the use
students that will stay with them after they
of text-to-speech tools has allowed students
have left school.
to appear for their exams confidently.
At the Gateway School of Mumbai, use of
The steady use of a computer reader across
different text-to-speech software has been
settings, ranging from daily use in the
embedded into the daily classroom structure
classroom to an accommodation in exams,
of students who require the support. Select
has equipped the students to support
and Speak, one of the free text-to-speech
themselves in the future.
extensions available on Google Chrome
was built into students’ daily practice. It
allowed students to select the text they
wished to listen to, choose a speed they Source: Khadija Rangwala, The Gateway School
were comfortable with and reread the text of Mumbai
72
Barriers to inclusive education for children with disabilities
BOX 9
T
his is a two-year research-cum-
documentation project initiated in
January 2017, funded by PAC, NCERT.
The objectives of the study are to strengthen
educational materials and resources in
the education of hearing-impaired or deaf
children and to provide relevant linguistic
information to teachers, particularly language
teachers. Data was collected from sign
language native signers from the different
states of the Northeast region.
The documented sign languages operating
in the region has been compiled in a web-
based application known as ‘NESL Sign
Bank’. It is an online open-source educational
resource that contains information regarding
the types of sign languages used by the
deaf community in the region. The App was
awarded with the Jury Appreciation Award
(New Media/ICT category) at the 22nd All
Indian Children’s Educational Audio-Video
Festival & ICT Mela, 2018. Currently the app
incorporates data for 3000 words and has
the potential to increase the database
and integrate supporting materials in sign
language for school education.
73
State of the Education Report for India 2019: Children with Disabilities
BOX 10
I
n order to ascertain the educational needs inclusive science pedagogy, making practical
and difficulties of CWDs in learning science, work inclusive, safety concerns and risk
a research study was undertaken in 24 assessment, and inclusive evaluation.
government schools of Delhi-NCR. Six of
The study also found that locomotor
these schools had CWDs, four with visual
impaired students faced less difficulty
and two with locomotor impairments. It was
while performing practical classes either
observed that although the children with
individually or in groups. However, they
disabilities are keen to pursue science even
showed little interest in doing so because
when appropriate facilities are not available,
practicals entailed standing for long periods,
very few eventually opt for science stream at
and also problems related to accessibility
the higher secondary stage in both private
of laboratory apparatus. The teachers were
and government schools.
found to use ICT facilities like JAWS software
The special teachers available in the school that convert text into audio, smart board,
understand the requirement of children with tactile diagram, modified equipment, etc. for
disabilities and appropriately address the teaching science practicals. But they need
same. However they do not have adequate further support and training to address the
domain knowledge in science. On the other learning needs of children with disabilities.
hand, regular science teachers are not Also an inclusive infrastructure is required,
oriented to the issues and concerns of CWDs. including provisioning of teaching learning
For example, most of the visually impaired resources with necessary adaptations.
students are not given an opportunity to do
practical classes. To address this need, NCERT
has brought out guidelines for including
Children with Visual Impairments (CWVI) in
science laboratory activities. ‘Science beyond
sight: source book for inclusion’ comprises
eight chapters viz. understanding inclusion, Source: National Council of Educational Research
understanding children with disabilities, and Training (2018). Pp. 53-54.
74
There are frameworks such as Differentiation UDL provides a framework for designing curricula
(differentiated curriculum and instruction) and and teaching methodology by thinking of all
Universal Design for Learning (UDL), which are the potential needs of diverse students. The
recommended for diversified classrooms. principles that guide UDL are:
75
State of the Education Report for India 2019: Children with Disabilities
BOX 11
T
he Barkha series is a supplementary • Key visuals in each page rendered in high
graded reading series, developed by the resolution.
Department of elementary Education, • Choice of colour combination for text (1).
NCERT. It has been adapted into Barkha: A • Ease of navigation with arrows.
Reading Series for ‘All’ by the Department • Green and red dots to indicate the
of Education of Groups with Special Needs beginning and end of sentences.
(DEGSN) at NCERT. It is available in both print • Flash card to reinforce key words through
and digital version. real images.
The digital version has the following features: • A note for teachers and parents in Hindi
• A ‘How To Use’ page for viewers to facilitate and English at the end of each story to help
navigation through the digital version (Hindi them facilitate early reading process in the
and English). classroom and at home.
• An introductory audio note in regular and
sign language. Source: NCERT (n.d.).
Having no alternative to print resources in schools houses publications on a diverse range of subjects,
is a significant barrier to developing inclusive including some children’s books, in multiple
practices. An initiative to make textbooks, story languages and various accessible formats.
books and other print resources relevant to
Along with government bodies, CSOs too
schools available in alternative formats would have been involved in developing and testing
greatly help children with disabilities. The initiative pedagogies that enable diverse children to learn.
could be along the lines of Sugamya Pustakalaya, The next case study shows how modifying the
an online platform created by DEPWD in curriculum and transaction leads to improvement
collaboration with member organizations of in learning for children, and continuous
DAISY Forum of India, and powered by TCS professional guidance to teachers to modify
Access. The platform makes DAISY content curriculum, pedagogy and assessment ensures
available to people with print-disability. The library successful transition to new practices.
76
Barriers to inclusive education for children with disabilities
I
n India, English is a second language for was shortlisted as a pilot group to track the
a large number of children attending effectiveness of the new methodology. The
CASE STUDY 4
English medium schools. A private school batch included three groups of 12 students
Teaching in Maharashtra approached Maharashtra each who had attained comparatively higher,
Assessment
School based assessment National Curriculum Framework (NCERT, 2005,
p.21) to ‘provide space to the teacher for creative
The goal of assessment is mostly understood
teaching and a tool for diagnosis and producing
in terms of evaluation through examinations learners with greater skills.’ CCE was introduced
School based (Kidwai et al, 2013; Taneja 2014). However, school- in schools in 2009. But it was done so reductively
assessments based assessments have direct impact on with a fixed schedule of formative and summative
are required children’s participation in classroom processes assessments implemented into schools as
to understand and on their learning. School-based assessments one of many externally designed schemes or
are designed by teachers and regularly planned
learning needs interventions. The CCE framework and manuals
and administered by schools. The results from neither empowered teachers to teach creatively
of children with these assessments provide feedback on the nor provided them with the flexibility needed
disabilities. progress made by children and their learning to design assessment relevant to their school’s
Flexibility and needs, and help plan the teaching-learning context. It also did not provide an opportunity
autonomy process accordingly. In a study commissioned to understand students’ needs (Srinivasan, 2015;
by UNESCO India, assessment provisions in Yagnamurthy, 2017). CCE was discontinued in the
is necessary
schools was considered one of the variables for CBSE schools from the academic year 2017–2018,
for designing access to classroom processes. Data to check but some state government schools continue to
school based access to classroom processes was collected follow it (Davar, 2017).
assessments from 40 schools in the two states of Assam and
School-based assessments are necessary to
relevant to the Uttar Pradesh with a total of 253 children with
understand learning needs of CWDs and to
disabilities. It was found that none of the 40
schools’ contexts adapt curriculum and pedagogy to the needs of
schools had assessment provisions to identify
and diversity in learning needs (Gupta, 2018).
each child. Flexibility and autonomy is necessary
children. for designing school-based assessments relevant
A school-based continuous comprehensive to the schools’ contexts and the diversity in
evaluation (CCE) system was envisaged in the children.
77
State of the Education Report for India 2019: Children with Disabilities
School-based Individual education plan They advocate planning based on UDL guidelines
so teachers can build in flexibility from the
assessments 1 An Individual Education plan (IEP) is
beginning by means of taking into account the
are necessary developed to fulfil individual learning needs
varying abilities and needs of their students.
to understand of children.
The NCF (2005) also recommends child-centred
learning needs of The design of an effective IEP involves the pedagogy to help ensure that lessons are
CWDs and adapt following steps (Alkahtani & Kheirallah, 2016). comprehensible and engaging for all children
(Rao & Meo, 2016).
the curriculum • Collection of the relevant information about the
child.
and pedagogy
• IEP meetings that include the parents and the
to the needs of
each child.
child, if possible. Examinations and exemptions
• Design of the actual programme and its The DEPWD has issued guidelines for written
components. examinations applicable to children with
• implementation of the IEP. disabilities for their tenth and twelfth grade
• Evaluation of achievement of the IEP goals. board exams. See Box 12 for key extracts from
the guidelines. The DEPWD guidelines provide
This process is cyclical i.e. the final evaluation the framework for examination boards to create
informs the information-gathering for the next their own guidelines and rules on exemptions
IEP cycle. and accommodations. The different examination
The main challenge of IEP is paperwork, which boards in India are as follows.
takes up a considerable amount of teachers’ 1C
entral Board of Secondary Education (CBSE)
time. (Kartika et al, 2018; Blackwell & Rossetti, 2C
ouncil for the Indian School Certificate
2014). Followng are some ways to reduce the Examinations (CISCE)
time spent on paperwork are (Kartika et al, 2018).
3 National Institute of Open Schooling (NIOS).
• Limit the number of children with IEPs assigned
4 State level boards for education
to each teacher.
• Provide administrative assistance to the teacher. The first three are central boards to which
schools from any region in India can affiliate.
• Use online tools to create IEP forms and reduce
Each state has its own state board of
the time spent on writing the IEPs.
examination. Each board has its own guidelines
But not all educators recommend IEP in inclusive on exemptions provided to children in board
settings due to the practical difficulties it raises. exams.
BOX 12
E
xtracts from DEPWD Guidelines for • Persons with benchmark disability
conducting written examination for should be given, as far as possible, the
Persons with Benchmark Disabilities option of choosing the mode for taking
defined in terms of RPWD Act, 2016. the examinations i.e. in Braille or on the
computer or in large print or even by
The digital version has the following features.
recording the answer…
• There should be a uniform and
• The candidates should be allowed to use
comprehensive policy across the country
assistive devices like talking calculators (in
for persons with benchmark disabilities for
cases where calculators are allowed for
written examination taking into account
giving exams), tailor frame, Braille slate,
improvement in technology and new
abacus, geometry kit, Braille measuring tape
avenues opened to benchmark disabilities
and augmentative communication devices
providing a level playing field. Policy should
like communication chart and electronic
also have flexibility to accommodate the
devices.
specific needs on case to case basis.
• The disability certificate issued by the
competent medical authority at any place
should be accepted across the country. Source: Office Memorandum, DEPWD (2018b), MSJE
As per DEPWD, the policy on examination by the CBSE, NIOS and Haryana school education
exemption should be uniform across the country. department, shows that there are variations.
However, a comparison (Table 14) of exemptions
78
Barriers to inclusive education for children with disabilities
TABLE 14
Comparison between CBSE (CBSE, 2019), NIOS (NIOS, n.d.) and Haryana
School Education Department guidelines (SED-GOH, 2015) on exemptions
in examinations for CWDs
Exemptions (Disability-Wise)
Note: The Haryana school education department guidelines are for school-based examinations and the others are for the secondary and higher secondary
level ‘public’ examinations conducted by the respective boards.
Though each document lists disability-specific The RPWD Act addresses modification in
exemptions, there are discrepancies. curriculum and examination systems to meet the
needs of students with disabilities through the
Board-wise and state-wise variations in the
provision of extra time in examinations, scribes
exemptions as well as the lack of proper
and amanuensis, and exemption from second
awareness compound the difficulty in accessing
and third language courses. However, it does
the available accommodations in examinations.
not indicate flexibility to accommodate specific
The CBSE guideline document itself makes the
needs not covered in the exemption guidelines.
observation that neither schools nor students are
fully aware of the exemptions and the correct
way of seeking them.
79
Medical diagnosis of disability
While school based assessments diagnose 5 The certificate may be issued before
children’s learning needs and enhance their completion of the schooling of the disabled
participation in learning, children with academic student along with their School Leaving
difficulties may also require medical diagnosis to Certificate, or as and when required.
assess hidden disabilities.
The RPWD Act states that the duty of
Medical certification is necessary for children educational institutes is to detect specific
with disabilities to avail central and state learning disabilities in children at the earliest and
governments provisions under various schemes, take suitable pedagogical measures to overcome
including exemptions provided by the them. However, guidelines for assessment of
examination boards. Schools play an important the extent of specified disability in children and
role in screening and referring children for issuing of certificate for children with disabilities
assessment of disability, and arranging for is not provided. This has to be considered in the
certificate issuance. The DEPWD (n.d.) has issued rules being developed by the states.
the following guidelines to schools for the above.
80
Barriers to inclusive education for children with disabilities
a screening committee headed by the school The process followed in Case Study 5 does not
principal. The notification refers to a screening follow the process suggested for schools by the
test within the document, but in place of a RCI. The child was directly referred for formal
screening test it provides a process flow chart assessment based on academic performance.
starting from screening in school to referral for The assessment did not lead to a better
formal assessment to certification. The notification understanding of the child’s learning needs
prescribes screening without providing or modification of curriculum and instruction.
information that can help schools understand It seems to be situated in the medical model,
what the screening entails, or refer to sources wherein the issue is seen to be with the child,
from where schools can seek information on which is to be fixed medically.
conducting the screening. After screening, schools
are to refer children to certified psychologists.
R
idhima was in Grade 5 when her class discussion with or counselling of the parents.
teacher and school psychologist asked The assessment was completely one-sided
CASE STUDY 5 her mother to get her assessed for with doctors neither explaining the diagnosis
learning disability. She was failing in exams nor seeking consent from parents before
Ridhima's and the teachers complained that she either prescribing medical treatment. No school-
story day dreamed in the class or kept talking to based intervention for improvement in
her friends. In Grade 6, her assessment for learning was planned, neither the notes,
Issues with the medical
learning disability began at the municipal observations and results of the assessment
model of assessment
hospital designated for assessments in were shared with the parents or the school.
Mumbai. Only the disability certificate was handed
over for submission to the school.
After a series of assessments, she
was diagnosed as having ADHD. The After getting the certificate, the school told
psychologist’s advice was to put her on the parents not to worry as Ridhima will be
medication and referred her back to the promoted to the next class until grade 8.
doctor. The doctors reviewed her case and In grade 9, her disability certificate will be
prescribed medication for a month without useful, as it will allow her to choose subjects
consultation with the parents. On asking she finds easy and she will get exemptions in
what the medicine is, the response given was, board exams.
'it is allopathy medicine.'
Except for the initial interview with the
Source: Bhagyalaxmi Velugu, based on observations of
parents to learn about the child’s behaviour, Ridhima’s assessment schedules (entire process) at the
throughout the process there was no hospital and interview with the parents.
81
State of the Education Report for India 2019: Children with Disabilities
BOX 13
Assessment for learning disability: dyslexia assessment for languages of India (Dali)
I
n the last ten years, the number of children Kannada and Marathi, which have been
labeled as learning disabled (LD) or dyslexic compiled under the umbrella term ‘Dyslexia
in India has increased exponentially. Assessment for Languages of India’ or DALI.
Currently, about 10 per cent, or 30 million DALI is designed to capture the unique
children, are estimated to have a learning characteristics of the phonological structure
disability (Dyslexia Association of India, 2011). and writing systems of Indian languages and
The label of learning disability is itself new to English and is normed and standardized on
India. With the increase in competitiveness to children in Indian schools.
get into and do well in school, students who
The school being the child’s primary contact
experience academic difficulties are often
for learning, DALI contains screening tools
perceived as “hopeless or badly behaved” and
for school teachers, the Junior and Middle
labeled LD, despite the stigma associated
Screening Tools (JST and MST respectively),
with it ('Pain of Dyslexia,' 2008). Sometimes
and the Indian Language Assessment
10 % children from non-English speaking homes,
many of whom may also be poor or Dalit,
Battery (I-LAB) for psychologists and speech-
language pathologists. The JST (Grades 1-2,
children are may get labeled when they perform at a
ages 5-7 years) and the MST (Grades 3-5, ages
estimated to lower level than students who come to
8-10 years) consist of simple, easy-to-answer
school knowing English, and not because
have a learning checklists of questions in the domains of
they have a disability.
disability in India. reading, writing, arithmetic, visual-motor
According to Dyslexia Given India’s multilingual context, the main coordination, attention and concentration,
Association of India, 2011 challenge in assessing children for dyslexia is communication and overall classroom
ensuring that language is not a confounding behaviour. The child’s screening profile
factor and that assessment instruments are determines whether in-depth assessment is
in the language in which the child being warranted. The I-LAB contains nine sub-tests
assessed is fluent. Recent research shows each that assess processes necessary for the
that individuals speaking and reading two development of reading skills, such as picture
languages recruit a common neural circuitry naming, phoneme replacement, semantic
(Cherodath & Singh, 2015), emphasizing that and verbal fluency for Grades 1-2, and word
bilingual, bi-literate children be assessed reading, spelling and reading comprehension
for dyslexia on the processes necessary for for Grades 3-5. Finally, a Remediation Manual
building reading skills in both languages. suggests interventions for different language
In the absence of appropriate standardized and reading deficits identified during
screening and assessment tools in Indian assessments. DALI is being expanded to six
languages, the diagnosis of dyslexia in India so languages for K-12 by 2020.
far has been incomplete or even unavailable.
To address this gap, the National Brain
Research Centre (2015), collaborating with
various centres across the country, developed
Source: Maya Kalyanpur, University of San Diego
a set of screening and assessment measures
and Nandini Chatterjee Singh, UNESCO Mahatma
to identify reading-related problems among Gandhi Institute of Education for Peace and
children being taught in English, Hindi, Sustainable Development
82
Summary
The attitude of parents and teachers towards including children with disabilities into mainstream education is
crucial to inclusive education. A combination of socio-cultural and systemic factors underlies negative attitudes
of parents and teachers towards inclusion. However, there is some evidence indicating that relevant measures
with parents and schools can offset attitudinal barriers.
There have been concentrated efforts by the centre and states to ensure physical accessibility, including
accessible toilets. However physical verification during CAG audits has documented variations in the data
provided by nearly all the states on the provisioning of barrier-free access. Gaps in the provisioning, optimal use
and maintenance of aids and appliances are also widespread.
There has been a steady progress on use of ICT and assistive technologies for improving the educational
experiences of children with disabilities. A number of innovative and encouraging tools have been developed
through partnerships between government and technology based scientific bodies and CSOs.
The National Curriculum Framework 2005 attempts to address the barriers that curriculum, pedagogy and
teaching-learning resources can impose on inclusive education. Despite a few examples being tried out,
implementation at scale remains a challenge due to lack of awareness of the diversity in needs, as well as
adequate practice-based evidence from inclusive classrooms.
School-based assessments help diagnose children’s learning needs and enhance their participation in learning.
Policies stipulate exemptions in examinations for children with disabilities, but they are not uniform across the
country. Also there is a lack of awareness of the exemptions and the related rules and regulations both among
schools, as well as parents. Greater flexibility to accommodate specific needs not covered in the exemption
guidelines is also needed.
83
YFOR
yellow
CHAPTER
7
Systemic issues
in implementing
inclusive education
B
y identifying a hearing loss early in a a follow-up ENT consultation if required.
child’s life, families can help ensure Each participant parent was also given a
age-appropriate overall development. brief about looking out for signs of hearing
CASE STUDY 6 It is necessary that all children get identified impairments among children in early
86
Within the Indian context, the lower age limit for identifying possible disabilities among children
a child is specified as six years in both the RTE during their home visits and referring cases
Act and the RPWD Act. Both acts refer to ECCE immediately to the nearest primary health centre
but there is no specific reference to younger (PHC) or DDRC. Although this task is critical for
children with disabilities and their right to early early identification, diagnosis and treatment –
childhood education. besides providing village level data on prevalence
of disability during early childhood – Table
Prevention 15 shows that the overburdened Anganwadi
Anganwadi workers are responsible for workers are unable to conduct these surveys.
TABLE 15
Disability surveys conducted at Anganwadis (2010)
87
State of the Education Report for India 2019: Children with Disabilities
C
attend school on an equal basis with others.
hildren with intellectual impairment
In 2012/13, 132,823 children with disabilities
need training to be able to adequately
– out of a total of 147,999 – were enrolled in
practise basic skills of survival,
schools. 12,216 were covered through SRPCs
CASE STUDY 7 social interaction, cognition and writing.
and the remaining 2,960 were covered under
Preparing Preparation is therefore crucial for their
successful inclusion in mainstream schools.
HBE. Among these, 2,127 children were
for school The same can be provided in pre-schools
mainstreamed through SRPCs and HBE.
Karnataka's school or Anganwadis by teachers and Anganwadi Under Samagra Shiksha Abhiyan, numbers of
readiness programme workers trained to work with children with HBE volunteers have dropped in Karnataka
centres high support needs, and groups of children due to shortage of central funds, leading
with intellectual impairments. to a reduction in SRPCs to one per block
only. Currently, they function twice a
During 2012/2013, the Karnataka government
week with four block inclusive education
established cluster-level school-readiness
resource teachers (BIERTs) per block. This
programme centres (SRPCs) under Sarva
is highly inadequate, and a direct result of
Shiksha Abhiyan. The centres were set up
reduced human resources and funding. In
at government school premises in clusters
contrast, SRPCs in Bengaluru city, run by
where a greater proportion of children were
NGOs in collaboration with the education
undergoing home-based education (HBE).
department, are functioning regularly with
The objective was to transit children with
special teachers and therapist support. The
disabilities from HBE to these centres that
additional resources brought in by the NGOs
would in turn prepare them for inclusion in
have helped improve quality of services
mainstream schools.
offered by the centres.
Run by HBE volunteers, special teachers and
physiotherapists (wherever available), the
SRPCs served as a bridge to mainstream
Source: Based on extracts from Nanjundaiah,
schooling for children with high support M. (2016) with further updates from the author, and
needs, helping them exercise their right to Sarva Shiksha Abhiyan, Government of Karnataka (n.d.)
A study undertaken by the erstwhile Planning Commission on the health records of children enrolled
in Anganwadi Centres (AWC) was conducted in December 2013, and repeated in January 2015. The
findings are presented in Table 16 below.
TABLE 16
Representing the health records of children enrolled in AWCs
88
Systemic issues in implementing inclusive education
The WHO (2011) emphasizes the need to developmental delays in children within the play
pay attention and invest in Early Childhood school or the pre-primary school environment.
Development (ECD). It reiterates the crucial There is an urgent need for authorities to focus
importance of the initial three years of a child’s on early screening and diagnosis so that timely
life in providing the essential building blocks interventions can be made. Case Study 8 provides
for the child’s future growth. In India, the focus an example of how comprehensive intervention
on ECD is restricted to the Anganwadi Centres that reaches the community through a holistic
in rural areas. Urban areas lag in this regard. and integrated system can be the key to success
Private schools are often not trained to identify in early detection and prevention.
S
amarpan is a unique intervention 5 Facilitate acceptance in the family about
developed by the district administration onset of development delay in the infant,
of Hoshangabad, Madhya Pradesh, for so that appropriate interventions may be
CASE STUDY 8
early identification, screening, treatment and sought and/or accepted.
Samarpan - rehabilitation of children with developmental
The specially designed Vatsalya software
A community-based delays or physically disability. Samarpan’s
programme was linked to that of Samarpan,
early intervention early intervention clinic (EIC) epitomizes a
and helped store case specifics such as
showcase convergence model of the departments
parental history, detailed birth history of the
of Public Health & Family Welfare (PHFW),
baby, developmental assessment, assessment
Women and Child Development (WCD), the
of hearing and visual functions, intervention
DDRC, the Department for Social Justice &
strategy and periodic evaluation, in order to
Empowerment, and the revenue department.
aid district-wide identification of children
It examines around 5,000 children below
showing signs of delayed development. It
the age of 5 every year, leveraging and
utilized existing human resources and trained
coordinates the implementation of schemes
Anganwadi workers, accredited social health
such as the NRHM and the Mukhya Mantri
activists (ASHAs) and specialist functionaries
Bal Hriday Upchaar Yojana. This initiative is
like physiotherapists, child psychologists
supported by the United Nations Office for
and special educators, audiologists, speech
Project Services (UNOPS) and Norway India
and language pathologists, nurses, auxiliary
Partnership Initiative (NIPI). In February 2013,
nurses and midwives. The estimated cost for
NHRM launched the Rashtriya Bal Swasthya
upgrading the DDRC to a Samarpan facility
Karyakram (RBSK) that was modelled and
was around Rs 2 million.
scaled up based on Samarpan. Samarpan
brought critical innovation by working on the Over a hundred thousand children were
twin concepts of critical development period screened until 2014 in Hoshangabad, and
and neuroplasticity as part of policy agenda hundreds received medical and educational
for the first time in India. intervention. There was an increase in societal
sensitivity, family acceptance of disability and
The main objectives of this intervention were
treatment-seeking behaviours. However, lack
as follows.
of any policy direction to guide the practical
1 Identify early signs of development delays roll-out of the initiative was a big challenge.
en masse in children under the age of There was no policy in India that took a
5 in Hoshangabad district, by conducting preventive perspective on disability, especially
screening tests based on development in the case of children.
milestones for that age group.
Since 2015, Mini Samarpans, one for
2 Have a comprehensive facility every two blocks, are being set up on an
under one roof for specialized and experimental basis in Hoshangabad. A hostel
multidisciplinary evaluation of children’s is being constructed for severely disabled
social development, visual development, children on the premises of the Samarpan
speech and hearing development, mental facility. Samarpan Plus, providing tertiary
development, and growth. links in cases requiring surgery, is being
3P
rovide comprehensive and specialized implemented in urban Bhopal district.
intervention to remove or reduce
development impediments.
4C
reate awareness about potential
development issues children could face,
in a bid to involve people in society-based Source: Niti Aayog & UNDP (2015). “Social Sector Service
and home-based identification. Delivery: Good Practices Resource Book.” pp. 237-243.
89
State of the Education Report for India 2019: Children with Disabilities
BOX 14
90
•E
ven the limited norms for accessible physical Even where it is available, resources are
infrastructure (ramps and disabled-friendly inadequate to meet the needs of children with
toilets) remain unimplemented in most of the disabilities studying in schools under their
states and 76 per cent schools are without jurisdiction.
ramps47. • Closures and mergers of schools undertaken
• In spite of some progress in pupil-teacher ratio by some state governments51 Resource
(PTR) and student-classroom ratio (SCR), they rationalization exercises by state governments
remain adverse in some states, making it difficult has led to closures and mergers of some schools.
for teachers to pay special attention to children This has had adverse effects on education of
with disabilities.48 children with disabilities, as it has meant a
•D
espite capacity building and in-service training, process of readjustment, facing bullying, and
teachers’ ability to work with diversity remains hostile and impersonal environments in larger
limited, resulting in a lack of confidence in their schools.
own ability to teach children with disabilities in • Despite RTE Rules in some states52 mandating
regular classrooms. membership of a parent of children with
•D
espite the elaborate guidelines on special disabilities in the school management
training programmes for mainstreaming out committee (SMC), the provision has largely
of school children with disabilities49, such remained on paper, unless there is pressure
interventions are lacking in most states50, thereby exerted by CSOs. Trainings conducted for
leaving children outside neighbourhood schools. SMC members have largely remained focused
on monitoring attendance, mid-day meals,
• In spite of efforts made by state academic
cleanliness drives or civil works without much
authorities to make existing textbooks accessible
emphasis on meeting the needs of children with
and disabled-friendly, progress remains uneven
disabilities.
across states.
• The preparation of participative, decentralized
• Most of the state-level academic resource
and need-based school development plans by
structures, namely BRCs and cluster resource
SMCs is found inadequate in several states53
centres (CRCs) are not equipped with the
and do not reflect the needs of children with
appropriate TLM to support inclusive pedagogies.
disabilities.
47 A s per U-DISE data, cited in CAG report MHRD, Union Government (Civil), Pradesh has a ten month residential special training programme for
(2017). Para 3.18.4. children with visual and hearing impairments, non-residential camps
48 According to U-DISE Flash Statistics 2016-17, about 70 per cent schools for other children with disabilities, and Bachhpan Care Centres for
mainstreaming children with disabilities. However, in comparison to the
had a PTR of 30 or below at the primary level, and about 77 per cent had need, the coverage of these programmes is limited.
a PTR of 35 or below at the upper primary level, as per RTE norms. About
74 per cent of schools in Bihar and Delhi had PTR above RTE prescribed 51 T
he state governments of Rajasthan and Madhya Pradesh have initiated
norms (NIEPA, 2018). the process. In Karnataka, a similar proposal met with intense civil society
49 Circulated by MHRD to Education Secretaries of all States/UTs on October advocacy and media pressure. For details on the impact of school closure
on children with disabilities, see Alkazi et. al, 2015 and ASTHA, 2017.
8, 2013. The suggested approach and interventional strategy for Special
Training was developed by the Task Force on Special Training with 52 The state rules of Andhra Pradesh, Arunachal Pradesh, Assam, Dadra &
NUEPA and UNICEF. See, Ministry of Human Resources Development, Nagar Haveli, Haryana and Kerala provide for representation of parent or
Government of India (2013). guardian of children with disabilities in the SMC.
50 Maharashtra has Multi-Purpose Resource and Training Centres (MPRTCs). 53 See CAG Report MHRD, Union Government (Civil), (2017). Para 4.4.3.
Karnataka has School Readiness Programme Centres (SRPCs). Uttar
91
School level
• Although government schools cannot deny
admission to any child, there is evidence of
school principals and teachers suggesting that
children enrol in special schools or avail home
based education or attend school only on days
when the resource teacher is available in the
school.
• Children with disabilities continue to face
difficulties in seeking admission in private
schools, even under the 25 per cent reservation
scheme (see Box 15).
• Classroom infrastructure, toilet facilities,
drinking water and learning materials are not
designed to meet the needs of children with
disabilities.
• A study conducted in Rajasthan found low
awareness levels about RTE and RPWD among
members of SMCs, no awareness of disability
and inclusion. These are among the main
obstacles to making SMCs and schools inclusive
(Ratan & Soji, 2018).
• School activities like physical education, midday
meals, sports, cultural programmes are often
not inclusive, leading to children experiencing
segregation.
• Parents are unaware about their own rights
and therefore do not demand and advocate
their entitlements. However, there are exemplar
cases like Mohammed Asim from Kerala who
fought and won a high court directive to
upgrade his village school (see Case Study 9).
• Teachers who successfully create inclusive
BOX 15
Delhi High Court on Section 12 (1)(c) of the RTE Act and rights of children with disabilities
92
Systemic issues in implementing inclusive education
M
ohammed Asim, student of disabilities until they attain the age of 18 years,
CASE STUDY 9 Government Mappila Upper Primary and promote their integration in the regular
School, Velimanna, Kozhikode, Kerala, schools.
A was born without arms and has 90 per cent
heartening disability. After completing Grade 7, he would
On 11 June 2018, considering the nature of
disabilities, the Kerala High Court directed
judgement have had to shift to the nearest high school
5 kms away to continue his education. Asim
the State and educational authorities to
Kerala High Court ensure that Asim is permitted to pursue
petitioned the Kerala High Court (Writ Petition,
directs school Grade 8 at Government Mappila U.P. School,
Civil, No. 10663 of 2018) to upgrade his school
upgrade Velimanna itself by sanctioning Grade 8 as a
to a high school and challenged the state
special case, considering the peculiar facts
government order that Velimanna did not
and circumstances of that case and the
figure as an area having any educational need.
provisions under the Kerala Rules. However, a
The Kerala High Court cited Kerala Rules that group of other 134 similar petitions for school
explicitly indicate that the government or upgradations were dismissed by the High
local authority must make appropriate and Court. However, news reports indicate that
safe transportation arrangements to enable although Asim has mobilised support from key
children with severe disabilities attend school political leaders, and social media, the High
and complete elementary education. Sub-rule Court directions have remained on paper and
(8) of Rule 6 provides that additional assistance his school is yet to be upgraded to Grade 8.
in the form of home-based teaching must
also also be arranged for children with severe
disabilities by the government and the local
authority. Clause (a) of sub-rule (3) of Rule 7
Source: The Manager, Ithihadul Islam Aided Lower
states that the government should also ensure Primary School vs The State of Kerala and Ors Decided
access to free education for children with on June 11, 2018. MANU/KE/1308/2018 and media reports
schools remain exceptions and have not inclusion after enrolling their child in mainstream
become the norm. Lack of adequate teacher schools (Sawhney, 2019). These parents reported
preparation on inclusive pedagogies, lack being left with no alternative but to withdraw
of resource material, demands on teachers their child within the first six months of
to demonstrate learning outcomes, and a enrolment. Further, lack of teacher training and
plethora of non-teaching duties impose limits preparation for carrying out inclusive education
on the extent to which teachers are able to has also hindered the successful implementation
meaningfully engage children with disabilities of the Act (AARTH-ASTHA, 2013; Sawhney, 2019).
in their classes. However, as Case Study 10 shows, support and
some handholding can make inclusion a reality
With the RTE Act implemented, children with
for children with disabilities.
disabilities should be enrolled in neighbourhood
schools. However, as both the previous section
and other research in the area of inclusion of
children with disabilities show (see Anthony,
2013; Sawhney, 2015), implementation of the
act is highly problematic. Despite the Supreme
Court upholding the constitutionality of the
RTE Act and directing private schools (other
than the minority unaided schools) to adhere
to its provisions, the implementation of Section
12(1)(c) ifalls short of the legal requirement.
In instances where children with disabilities
are enrolled in mainstream private schools,
their retention has been found to be minimal
(Sawhney, 2011; Deliberations during the
Workshop on Perspectives on Disability and
Inclusion in Educational Settings, 2014; 2015; 2016;
2017). In annual workshops organized at TISS
Hyderabad between 2014 and 2019, deliberations
with parents of children with disabilities brought
to the fore parents’ experiences of issues such as
lack of inclusive practices, infrastructure as well
as other cultural and social stigmas that hinder
93
“
My disabled child’s life has changed. Imagine he goes to school daily and is happy. The
children in the school no longer make fun of him, in fact a few help him to do work and are
CASE STUDY 10 ready to sit with him. His behaviour has improved and he wants to go to school, while at
Dreams
„
the beginning we had to force him.
can come
true These are the words of the father of a child handle such children, it would be better not
with cerebral palsy residing in Pachkhora to enrol him in the school.’ The child was
village, Asoha cluster, Chitrakoot district. finally enrolled in January 2017.
The child’s family comprises a farmer father, a
In the beginning, many of his classmates
housewife mother, four sisters and a deceased
were unwilling to sit next to him due to
brother. The father is the sole breadwinner
his severe drooling problem. The teacher
with an annual income of Rs 24,000.
reported, ‘At first he was disruptive, extremely
The CBM-Prajayatna team came to know naughty and showed no interest in doing
about the child through 2016 survey anything or listening to anyone. He only
they conducted to identify children with enjoyed physical activity.’ The teacher worked
disabilities using the SCERT checklist. Three with the parents to together identify ways
54 Bihar, Chandigarh, children with disabilities were identified in of dealing with the situation. It was jointly
Madhya Pradesh, Pachkhora out of whom two were going to decided that he required certification, and a
Manipur, Meghalaya, school and the third, the child in question, tricycle for him to commute to school. It was
Odisha, Tamil Nadu,
Telangana, Uttar Pradesh was out of school. The parents were quite decided that the teacher would try to involve
and West Bengal are the surprised when the CBM-Prajayatna facilitator the child in activities, communicating to him
states that have notified made a number of home visits to meet through actions, and that one of the parents
state rules.
them. At first, the parents were reluctant would come to drop and pick him up. The
55 A ssam, Goa, Himachal
to send the child to school. In the mother’s latter would also help teacher confer with the
Pradesh, Kerala, Madhya
words, “Something is wrong with our son parents whenever needed, on a regular basis.
Pradesh, Manipur,
Meghalaya, Nagaland, from birth itself, he cannot speak at all,
According to the parents, ‘There are so many
Odisha, Punjab, Tamil drools continuously and has a problem in
things that helped my son and us too. What
Nadu and Uttarakhand walking and in the past one year things
are the states that have can I say-the repeated visits by [the CBM-
has been suffering from fits too.” However,
constituted SABs. Prajayatna facilitator] that played a crucial
after a number of visits and discussions, the
56 Chandigarh, Madhya role in our finally agreeing to enrol him, our
facilitator convinced them. ‘[the facilitator]
Pradesh, Meghalaya and attending the certification and medical
Odisha are the states tried to understand our child’s needs and
camps, being given the tricycle to bring
that have constituted problems and we tried to find a solution to
district committees.
him to school, and support of the teacher in
his drooling,’ said the father.
57 A ssam, Bihar,
helping us jointly decide what to do for him.
Chandigarh, Delhi,
The facilitator also interacted with teachers Now even the attitude of the other children
Haryana, Madhya at the government lower primary school to has changed towards him. He has made
Pradesh, Manipur, convince them to let the child attend. The friends in school and some children help him
Odisha, Puducherry,
teachers were initially of the opinion that in doing things in class.’
Punjab, Tamil Nadu,
Telangana, Tripura, he will not be able to learn anything in the
Uttar Pradesh and school and will only be a nuisance. They
West Bengal have also felt that since they ‘were not trained to Source: CBM-Prajayatna, Uttar Pradesh
not yet appointed
commissioners.
94
Systemic issues in implementing inclusive education
BOX 16
Justice Sunanda Bhandare Foundation vs • The matter is still before the Supreme Court
Union of India (UOI) and Ors., I.A. No. 10 of and all state governments have not filed
2015 in Writ Petition (Civil) No. 116 of 1998 their compliance reports.
COURT
ORDERS (Under Article 32 of the Constitution of India).
Rajive Raturi vs Union of India (UOI) and Ors.
Decided On: 25.04.2017. MANU/SC/0510/2017:
Writ Petition (Civil) Nos. 243 of 2005 and 228
(2018)1SCC(LS)130.
of 2006 (Under Article 32 of the Constitution
The Supreme Court held the following. of India). Decided On: 15.12.2017. MANU/
• The 2016 Act is noticeably a sea change SC/1618/2017: (2018)2SCC413.
in the perception and requires a march The Supreme Court held the following.
forward look with regard to the persons
• There is a statutory obligation on the part of
with disabilities and the role of the states,
the central government as well as the state
local authorities, educational institutions
governments to provide proper access to
and the companies (para 23).
public facilities to the persons with visually
• State governments shall take immediate disability.
steps to comply with the requirements
• The central government had taken various
of the 2016 Act and file the compliance
measures, but many state governments
report so that this Court can appreciate the
have not responded at all.
progress made (para 24).
58 Only 3 States – Assam,
Goa and Himachal
Pradesh – have
constituted Advisory
• Most states have not notified state rules under • Only half states have started issuing disability
Committees, comprising
of experts, to assist the RPWD Act, despite the mandatory requirement certificates pertaining to the new disabilities
State Commissioner. to do so within six months. 54 added in the Act61 .
59 States that have The RTE Act and the RPWD Act have established
• State advisory boards (SABs) that are meant to
instituted the State Funds the foundation for a rights-based framework to
advise state governments, develop state policy,
are Himachal Pradesh,
Madhya Pradesh, coordinate activities, monitor and evaluate state ensure education of children with disabilities.
Odisha, Tamil Nadu and level implementation have been constituted in This means parents, DPOs and the children
Uttarakhand. Odisha only half the states. 55 themselves can hold governments accountable
has allocated Rs 2 crore,
for meeting their mandatory commitments,
Himachal Pradesh Rs 5 • Majority of the states and union territories
crore, Tamil Nadu Rs 10 and seek administrative and judicial recourse
have not constituted district committees to
crore and no amount in case of failure or non-compliance. Yet, this
has been fixed in for the coordinate decentralized implementation. 56
can become truly empowering only when
Uttarakhand fund (it is
• 15 States have not appointed Commissioners these rights are enforced. At present, obstacles
stated that the penalties
and fines levied by for Persons with Disabilities 57 for independently to the rights-based framework include lack of
the Special Court and monitoring and hearing complaints on awareness about legal rights and entitlements
Magistrate will constitute non-compliance. Even in states where of children with disabilities, lack of accessibility
the Fund).
there are commissioners, the progress of grievance redress mechanisms, and lack of a
60 States that have
has not been substantial due to part-time coordinated enforcement mechanism. Hence,
appointed District Nodal
Officers for education are:
appointments. approaching the judiciary has been the only
Delhi, Madhya Pradesh, • Most of the state governments have not remedy available to those working for the rights
Meghalaya (8 out of 11 of children with disabilities. Even though children
districts) and Odisha
constituted expert advisory committees to
assist state commissioners58 and persons with disabilities are eligible for free
61 S
tates issuing Disability legal aid under the Legal Services Authorities
Certificates to the newly • Only 5 states have constituted a state fund
Act, 1987, accessing legal aid itself is a challenge.
added categories are for implementing the Act 59 .
Chandigarh, Delhi, It is in this context that the pro bono legal work
Madhya Pradesh, Manipur, •O
nly 4 States have appointed a nodal officer undertaken by non-governmental organizations,
Meghalaya, Odisha,
in the District Education Office to deal with all DPOs and legal clinics at law schools has
Puducherry, Punjab, Tamil
Nadu, Telangana, Uttar matters relating to admission of children with contributed to the expanding jurisprudence on
Pradesh and West Bengal. disabilities 60 . right to education of children with disabilities.
95
Human resources:
provisions, practices and problems
Current policies and programmes in India support for teachers was established only in
have taken appropriate measures to empower 1987, through the centrally sponsored Scheme
teachers and educational functionaries of Restructuring and Re-organization of Teacher
including school leaders to meet the needs of Education, upon the specific recommendation
every child in terms of quality education. This of the second NEP (MHRD, 1986/92). The scheme
has been briefly described in Chapter 5. The is currently subsumed under Samagra Shiksha
HR previous chapter enumerated how attitudes Abhiyan. More recently, the National Mission on
Audit
of teachers and other stakeholders including Teachers and Teaching has been launched in 2014
parents and community can act as barriers to to meet the demand for teachers at every level
inclusive education. This section briefly analyses and ensure continuing professional development
the challenges in ensuring adequately trained opportunities for practising teachers.
human resources for inclusive education.
India has also invested in the provisioning of
special educators or resources teachers for the
education of children with disabilities. Their
Teachers and Teacher Education role is to primarily support diagnosis, undertake
functional assessment, and teach children with
One of the targets of SDG 4 is to substantially
disabilities in special schools, home-based or
increase the supply of qualified teachers (Target
inclusive settings. They are also expected to help
4.c). Currently India has 9 million teachers
regular teachers by suggesting modifications to
employed in classes 1 to 12 across government and
curriculum and adaptations to pedagogy. SSA
private schools. The national average for pupil-
and RMSA have provisions for appointing them
teacher ratio at the elementary level is 30, which
at the block level, and Samagra Shiksha Abhiyan
meets the RTE mandated norm (MHRD, 2016).
plans to support additional appointments. There
However there are large variations across regions
are 18,174 special educators appointed under SSA
and types of schools (NIEPA, 2014). The problem
and 3,245 under RMSA (MHRD, 2015).
is especially acute in some states where there is a
huge backlog of unqualified teachers. Alongside Current schemes and legislations in India,
ensuring adequately qualified teaching workforce, including Samagra Shiksha Abhiyan, RTE Act,
it is widely recognized that their competence, RPWD Act, and curricular reforms in teacher
motivation and performance are crucial factors education as recommended in the National
for fostering quality education (MHRD, 2018). Curriculum Framework for Teacher Education
This has long been acknowledged with the first (NCFTE) (NCTE, 2009) have mandated
National Education Policy (NEP) of independent expectations from teachers and recommended
India (MHRD, 1968) highlighting the crucial role structures and programmes to support them.
of teachers in nation building. However systemic These are summarized in the facing page.
96
Systemic issues in implementing inclusive education
TABLE 17
Summary of teacher and teacher education related expectations and recommendations
The crucial link between vision and implementation enumerated by these policies and programmes is
teachers’ professional development.
97
State of the Education Report for India 2019: Children with Disabilities
Special Needs for ‘all teacher education programmes...to Based on a systemic understanding of quality
develop pedagogical skills required in inclusive classrooms’ education, the National Education Policy (1986)
recommended the system to proactively support
(NCERT, 2006:23).
schools and teachers. This resulted in the setting
up of cluster and BRCs under SSA.
98
T
he Government Lower Primary School in children with disabilities, especially those with
Soppugudde, Thirthahalli in Karnataka’s neurodevelopmental conditions and high
CASE STUDY 11
Shimoga district is a unique example support needs. In the absence of therapeutic
Leading of a school fulfilling education aspirations facilities in this remote area, these services
99
State of the Education Report for India 2019: Children with Disabilities
Community, parents and civil classroom management are visible with greater
SMC involvement (Jha, et al. 2013). Section 47
society organizations of the RPWD ACT 2016 also has a number of
Community mobilization and parental training provisions for building human resource support
have received significant focus under SSA. for children with disabilities through parents and
The RTE Act 2009 privides for community community participation.
involvement through mandatory setting up of
an SMC. The latter’s duties, stipulated by the Act Recent research evidence suggests growing
include ensuring special provisions for children awareness among parents, even among
admitted under the RTE Act and children with low income families, to educate their child
disabilities (Refer Table in Chapter 2). Although with disabilities (World Bank, 2018). Parents
SMCs require external support and handholding are making important decisions, even when
until they are able to independently fulfil their faced with limited choices in quality of school
role, notable improvements in facility use and provisions (Singal & Muthukrishna, 2014).
T
he following is a study of a community- disabilities, to learn and grow together. The
based inclusive development project project helped children with disabilities move
in Chamarajnagar Karnataka jointly from the margins of effective classroom
implemented by the Education Department, engagement to take more active and
CASE STUDY 12
CBM, The Teacher Foundation, and Mobility participatory roles in classroom activities.
Communities India. The project set up community
Due to poor infrastructure in rural
at work education centres (CECs) or after-school
communities, it becomes necessary to help
clubs within government schools to support
children with disabilities reach schools. This
children with disabilities and others who
is often provided by the peer group or a CEC
needed help. These were run for two hours a
volunteer, continuing into higher education.
day, six days a week, by trained community
It was found that support from the CECs has
coordinators, and monitored by a disabled
indeed helped children with disabilities in
people’s organization (DPO). A core task of
school attendance and is being replicated
the CECs was to help children experience fun
in other villages by community members
and joy in learning. The coordinators gave
utilizing their own resources and
children regular encouragement in everyday
on their own initiative. (Soji., F., 2017); Similar
learning challenges.
success stories were found in Anekal,
During evaluation, it was found that the CECs Karnataka. It was encouraging to find that
increased the demand for quality education. the local panchayat took responsibility and
They benefitted children from families who ownership of improving education of children
have no literate members to help them in with disabilities within their villages by paying
learning. They created an environment of a monthly honorarium to the coordinators
inclusion by giving more time, space and a (Soji, F., J. Kumar and S. Varughese. 2016).
platform for children, both with and without
100
Systemic issues in implementing inclusive education
T
here are two government schools for 1U
pgrading of the Government Ideal Blind
children with disabilities in Manipur. School and Government Deaf and Mute
One for those with blindness, and School, Takyel, to higher secondary level,
CASE STUDY 13 another for those with deafness. Over the and provision of a state government
101
T
he belief that every child has a right to government officials, corporate employees,
love, inclusion, education, nutrition and other organizations, teachers, and students
healthcare, regardless of ability, class, in both private and government schools,
CASE STUDY 14
caste or religion, led to a comprehensive through their outreach, awareness and
An model that offers an ecosystem of services to training programmes. Their resource centre
ecosystem address the needs of children with disabilities
and their families.
serves the entire state, providing information,
awareness, outreach, advocacy and support
of support Gubbara, Latika Roy Foundation’s first public-
to people with disability, organizations,
activists, students and citizens. Their follow-
private partnership with the Government
up programme routinely works through the
of Uttarakhand, was for assessment of
PHC and community health centres to cover
developmental risks and disabilities of
neighbouring peri-urban and rural blocks
new-borns at the neonatal intensive care
of surrounding districts of Dehradun, taking
unit (NICU) of the government-run Doon
assessment and intervention to families who
Hospital. Gubbara provides developmental
find accessibility and distance a challenge.
assessments, counselling, therapy, home
management plans, training and information Disabled children run a more than threefold
to parents. The Foundation was subsequently risk of physical and/or sexual abuse than their
appointed lead agency to train medical and non-disabled peers because they may lack
educational personnel and help establish the physical or cognitive ability to disclose the
District Early Intervention Centres (DEICs) abuse. The foundation conducts workshops
across the state’s 13 districts. The foundation on sexuality and disability, provides
trained the staff of four DEICs in Uttarakhand. counselling, and forms support groups
This improved the government’s capacity, where parents, grandparents and siblings
and marked an important step towards early can interact with others who share similar
identification and accessibility for families concerns. Emphasis is given on providing
with special children living in rural districts parents with information about their child’s
across the state. disability and encouraging them to take the
lead in promoting their child’s development.
The foundation constantly innovated ways
These efforts prepare parents to recognize
to reach families, be it at the centres, in the
both the external signs of child abuse as well
community, or in their own homes. A team of
as indirect signals such as age-inappropriate
psychologists, therapists, educators and child
sexual language or behaviour, and to take
development aides provide counselling and
appropriate action.
support groups for families, train them on
early intervention strategies, and empower
them to manage and support their children
in a planned and systematic way.
Source: Secondary review of documents and literature
As part of the ecosystem, they have on activities of Latika Roy Foundation (https://latikaroy.
engaged village health workers, doctors, org/)
102
Systemic issues in implementing inclusive education
103
State of the Education Report for India 2019: Children with Disabilities
I
n India, resource support systems the space vacated despite repeated pleas.
have been identified as an important
CASE STUDY 15 Constant follow-ups, negotiations with
component in developing and
Getting implementing inclusive education
concerned officials, and finally a diktat
from the office of the Deputy Director
things to programmes at the block level. BRCs are
of Public Instruction were required to
work established with the aim of supporting
practising teachers and special educators in
make the resource centre operational.
The centre is now functional for special
A success story implementing inclusive education, besides
educators to utilize for therapy, and to teach
from Karnataka providing therapeutic support to children
children with disabilities. It holds monthly
with disabilities.
cluster level meetings where teachers are
In 2015/16, SCERT Karnataka planned sensitized towards developing inclusive
to augment an existing BRC in South classrooms. Short-duration workshops led
Bengaluru into an inclusive education to the creation of a few exemplary learning
resource centre (IERC) with funding from resources adaptable for individual needs of
UNICEF and academic support from a children, in all school subjects across classes
teacher-education institute and an NGO. 1 to 8. These resources were retained in the
The IERC was meant to support teachers centre for use by special educators and other
of neighbouring schools develop inclusive teachers who attend training sessions at the
classroom practices through periodic BRC. Special educators of the block helped
interactions and a range of field-tested write instruction booklets to enable others
resources and periodic interactions. The recreate the resources for classroom use.
physical space for the resource centre was
constructed the previous year with a grant of
Rs 5 lakh from SSA. The room was however
utilized to store sanitary pads from the
health department, while the equipment
meant to provide therapy to children with
disabilities lay in disuse. The special educator Source: Ruma Banerjee & Manjula Nanjundaiah, Seva
at the centre expressed her inability to get in Action
• Top-down approach and inconsistencies in • Lack of involvement of larger society and the
policies and programmes (Singal, 2005) points highly competitive nature of the education
out the current inclusive agenda in developing system - Based on a decade-long research
countries is top-down, largely driven by policy programme, Ainscow (2005) argues that many
makers rather than educators and schools. of the barriers experienced by learners arise
This has led to challenges in implementing from existing ways of thinking. An important
the larger vision of inclusive education challenge that is barely recognized in policy
espoused in legislations and policies without discourses is the highly competitive education
a more nuanced understanding of ground system in the country. This competitive ethos
realities. The twin approaches of inclusion is counter-productive for inclusion and has
and segregation of children with disabilities so far resisted reform efforts (NCERT, 2005).
in special schools legislated by the RTE Act is Larger support of the community and parents
problematic as research indicates it spreads is crucial in addressing this.
scarce resources thin across parallel settings
Adequate systemic provisioning in terms
(Jha, 2004).
of structures and programmes, and a legal
• Labelling - Another issue is the reliance mandate for inclusive education is in place in
on impairment-led labelling, arising from India. But ensuring skilled human resources
a medical model, to identify benefactors to meet the needs of children with disabilities
of inclusion, which is a social justice-based in regular or special schools, home-based
approach (Kalyanpur, 2008). A more nuanced education or in community-based settings
approach of identification is required to counter continues to be a challenge. Human resource
labelling (see the section on data systems for development and training is an ongoing
more details on measures of disability), strategy requiring continual investment and
• Inadequate research - Research documenting flexible planning to address emerging issues.
what works in an inclusive setup is sparse, While curriculum, pedagogy, teaching-learning
and there is little evidence from the field to materials and human resources are crucial
highlight the effectiveness of resource teachers requirements for inclusive education, data
(Singal, 2009). systems play an important role as well.
104
Systemic issues in implementing inclusive education
BOX 17
The National Policy for Persons with The 2030 agenda for Sustainable
Disabilities (2006) Development (2015)
There is a need for regular collection, Data, monitoring and accountability:
compilation and analysis of data relating to By 2020, enhance capacity-building
socioeconomic conditions of persons with support to developing countries to increase
disabilities (para 38). significantly the availability of high-quality,
timely and reliable data disaggregated
Incheon Strategy to ‘Make the Right Real’
by income, gender, age, race, ethnicity,
for Persons with Disabilities in Asia and the
migratory status, disability, geographic
Pacific (2013–2022)
location and other characteristics relevant in
Goal 8: Improve the reliability and
national contexts (para 17, 18)
comparability of disability data
According to Niti Aayog (2017), a major obstacle namely disability in seeing, hearing, speech,
to designing effective policy interventions for movement, mental retardation, mental illness,
children is the unavailability of credible data any other and multiple disability. Due to gaps
(para 22, 17, p. 154). Government of India’s Strategy and changes in the categories of disabilities
for New India@75 recognizes that accurate covered, it is difficult to compare data over time.
identification of the disabled population in India
has been a major problem (Niti Aayog, 2018b). NSS: Surveys are conducted by the National
Sample Survey Office (NSSO) and use a nationally
Most education programmes in low- and middle- representative stratified sample approach. In
income countries do not have systems that can the 58th Round conducted in 2002, the sample
identify and count children with disabilities, size was 70,302 households. Unlike the census,
thereby leaving them out of education the definition of disabilities has not changed
programmes and services (Hayes & Bulat, 2017).
much from the previous rounds, making it
However, India has established systems for
available for a comparative analysis over the
gathering data that use diverse sources, different
years. In earlier NSS rounds (36th and 47th), the
definitions and a mix of disability measures.
62 From 1941-1971, the
definition covered those with one or more of the
question on disability
three physical disabilities–visual, communication
was not included in (i.e. hearing and/or speech) and locomotor
the Censuses. In 1981,
information on three Sources and definitions disabilities. During the 58th Round, the definition
was extended to also include mental disability.
types of disability was Data on disability is collected through Census
collected, in 1991, the No survey has been conducted after 2002.
question related to
of India, National Sample Survey (NSS) and the
disability was dropped. U-DISE. They are explained below. chool-based Data: There are two main sources
S
In 2001, the question
Census of India: The decennial population of school-based data. The U-DISE is a school-level
was included and
information on five types Census of India has not consistently covered database collected annually with information
of disability, namely the question of disability over the years (Office about children studying in mainstream schools.
disability in seeing, in It captures data from every school. After the
of Registrar General & Census Commissioner,
hearing, in speech, in
movement and mental 2016).62 In 2011, information on eight types of adoption of the RPWD Act, U-DISE covers 21
disability, was collected. disability was collected through self-reports, categories of disabilities based on school records.
105
State of the Education Report for India 2019: Children with Disabilities
Inadequacy of data
1D
ropout rates maintained by SSA and UDISE
are not disaggregated by disability
2T
he NSSO does not include disability as a
social group when conducting socioeconomic
surveys including education (NDN & NCRPD,
2019, Para 19).
3 There is very little gender disaggregated data
outlining present state of access to education
for disabled children (Women with Disabilities
India Network, 2019, para 24).
4 The Management Information Systems of the
Ministry of Women and Child Development
that is responsible for early childhood
care and development, does not capture
information on children with disabilities.
5 Most ministries do not collect data about
disabled populations served or data on
their beneficiaries segregated by disability
and gender.
106
Measures of disability: that the entire age spectrum and additional
relevant domains are captured. It covers children
medical versus activity-based between 2 and 17 years of age, and assesses
approaches speech and language, hearing, vision, learning
There are three primary approaches for (cognition and intellectual development),
generating disability data, and currently the mobility and motor skills, emotions and
census and the NSS use a mix of the following behaviours. This screening instrument was
definitions based on activity limitations, included as part of the Multiple Indicator Cluster
functional limitations and impairments (Hayes & Surveys (MICS) in order to create a low-cost and
There are issues Bulat, 2017; Mitra & Sambamoorthi, 2006). rapid method for identifying children who have
congenital and developmental disabilities in
of comparability • Impairment measures based on a medical
populations where professional resources are
of data which model where the respondent self-identifies as
extremely scarce. Two separate questionnaires
having a disability (e.g. ‘Do you have a disability
requires the and, if so, what disability?’)
are utilized–one for children aged between
harmonization of • Functional limitations measures based on a
2 and 4 years, and another for children aged
between 5 and 17 years. In order to better reflect
definitions and medical model where the respondent selects the degree of disability, each area is assessed
consistency in from a list of disability categories (e.g. ‘From this against a rating scale that is in line with the
the categories list of disabilities, select those that apply.’) WHO International Classification of Functioning,
covered. Data on • Activity-based limitations measures based on Disability and Health – Children and Youth
a social model where the respondents answer version (ICF-CY), and the UN Convention on
key educational
questions about their level of functionality, or the Rights of Persons with Disabilities
indicators is not what activities they need help for (e.g. ‘Do you (Avetisyan, 2016).
disaggregated need help feeding yourself?’)
Although India has participated in the
by disability, The UN Disability Data Experts Group discussions of the Washington Group of Disability,
and disability recommends the use of the Washington Group it does not use Washington Group questions in its
data is not Short Set of questions for disaggregating data census or the NSS. A few organizations have tried
disaggregated by by disability for SDGs. The new Washington to test the tool in India. Able Disabled All People
Group / UNICEF module aims to assess a child’s Together (ADAPT) participated in the cognitive
gender.
functioning in terms of barriers and supports to tests of the tool. International Centre for Evidence
daily living and social participation, and to ensure in Disability, CBM, and the Indian Institute
107
E
FOR
ELEPHANT
of Public Health used the tool in Telangana international estimates of 15 percent (WHO,
and found that self-reported tools measuring 2011).
activity limitation are the most appropriate and 2 When functionality questions are used, the
resource-efficient way to measure disability in a incidence of disabilities reported increases to
population or within a programme or project. approximately between 10 and 20 per cent of
The approach used by the Census of India is the population (Mont, 2007).
impairment based, and follows a categorical 3 There is a need to take on board the cultural
model. In 2011, it had a direct question on contexts of administering questions on
disability status (yes / no) which is found disability, and minimize confusions created by
to produce under-reporting, and hence the simultaneous use of multiple approaches.
underestimation, of the prevalence of disability.
4H
armonization of definitions and selection
In India, very few (0.6 per cent) self-identify
of an appropriate approach on disability
as ‘disabled’ under the census question
measures would help improve comparability
(Sightsavers, 2016). Women are more likely to
of data and leverage international best
report functional limitations than self-identify
practices.
themselves as ‘disabled’ (as per the census
question), compared to their male counterparts To sum up, of the three sources of data, the
(Sightsavers, 2016, p. 4-5). population census and the NSS do not include
all 21 categories of disabilities provided under
In a CBM-facilitated Indian study using the Rapid
the RPWD. There are issues of comparability
Assessment of Disability (RAD) tool, the overall
of data which requires the harmonization of
prevalence of disability in the population aged 18
definitions and consistency in the categories
years and above was found to be 10.4 per cent in
covered. Data on key educational indicators is
Andhra Pradesh and 6.8 per cent in Uttrakhand.
not disaggregated by disability, and disability
(Ramachandra S.S., et al., 2016 and Grills N. et al.,
data not disaggregated by gender. There is a
2017)
need to address underestimation by adopting
Some of the issues with regards to the disability tools that are aligned with the WHO International
measures used are as follows. Classification of Functioning, Disability and
1 Evidence shows that self-reports result in Health, and the UNCRPD. The systemic
underestimation of disability prevalence. As interventions discussed in this chapter towards
stated earlier in the report, the prevalence the realization of inclusive education for children
of disability as per the 2011 census that with disabilities as per UNCRPD and SDG goals,
uses self-reports and direct questions, is 2.1 hinge on robust governance and financing
percent, which is considerably lower than the provisions.
108
Systemic issues in implementing inclusive education
109
State of the Education Report for India 2019: Children with Disabilities
BOX 18
Excerpts from Three-Year Action Agenda of the Niti Aayog (2017/18 to 2019/20)
Proposals for institutional reforms are able to perform their functions more
• It is important to strengthen the institutional effectively.
framework at all levels to have a stronger
• The Unique Disability Identity Card (UDID)
and more direct role for persons with
Project should be rolled out in 14 states and
disabilities.
union territories over the next three years.
• The responsibility for specific initiatives for Specifically, with regards to education
persons with disabilities should be brought
under the purview of the relevant line • Over the three-year period, around 480,000
ministries. For instance, all education related scholarships and fellowships (fresh and
matters should be with the Ministry of renewals) should be awarded to students
Human Resources Development. with disability.
• The number of schemes administered • Four regional centres of the RCI should
by the DEPWD should be rationalized. It be established. Independent functioning
would be prudent to have a limited number of the National Board of Examination in
of schemes with adequate budgetary Rehabilitation under the RCI should be
allocation that are implemented and ensured.
monitored well. • The Indian Sign Language, Research &
• The financial and human resource capacity Training Centre should be set up and 500
of the central and state commissioners’ additional sign language interpreters should
offices need to be strengthened so that they be trained.
BOX 19
110
Systemic issues in implementing inclusive education
E
ducation Training and Service Centre
for Persons with Disabilities (ETC)
CASE STUDY 16 is a service centre for persons with
disabilities, managed and funded (through
Local 3 per cent reservation for people with
heroes disabilities in local government budgets)
Responsible governance by the Navi Mumbai Municipal Corporation
by an urban local body (NMMC). NMMC is the first municipal
corporation to have a separate department
for disability (Department for Disability
Affairs and Rights). A survey by NMMC for
SSA brought into focus the financial burden
of families with children with disabilities and
a lack of awareness about disabilities. This
prompted the corporation to start a special
school. It began with a special school for
children with hearing impairments in 2007,
and which expanded in 2008 to schooling
for children with other disabilities. From a
special school, it has now transformed into
a centre that caters to lifelong needs of
PWDs. The centre is involved in guidance and
rehabilitation services, and works on making child with disability by offering an amount
Navi Mumbai more accessible to persons of Rs 100 per day to a parent participating
with disabilities. In terms of educational at the centre, to compensate for loss of the
activities, CWDs are enrolled into regular day’s income. Parents are paid Rs 5000 to
schools – both private-run and NMMC schools attend trainings. A child in the home-based
– with the centre providing support services, learning programme receives a financial
remedial education, occupational therapy, aid of Rs 1500 per month. Aid for a cochlear
physiotherapy, speech therapy etc. Special implant amounts to Rs 100,000. There is a
66 The 73rd and
educators from ETC provide support to both monthly train and bus allowance of Rs 550.
74th Constitution
(Amendment) Acts of
children and the regular teachers in schools. Full financial support is offered for aids and
1992 devolved powers In addition to educational and therapeutic appliances, and so on. ETC works closely with
to panchayati raj services, it also offers various schemes to
institutions in rural areas, NGOs and national institutes for disabilities.
provide financial support to families, and for
and the urban local
bodies. The Eleventh aids and appliances. One of the centre’s most
and Twelfth Schedule effective schemes ensures involvement of Source credit: Visit to ETC and interview of Dr. Varsha
included education as parents in the care and development of their Bhagat, CEO, ETC, by Bhagyalaxmi Velugu
one of the matters to be
devolved.
111
Regulation and monitoring
In addition to the coordination of multiple state
and non-state actors that play a role in education
of children with disabilities, regulation and
monitoring of the quality of services offered is an
important governance function.
112
Systemic issues in implementing inclusive education
an online monitoring module which measures with disability, innovative pedagogies used,
state-level performance and progress against reasonable accommodation measures and
key educational indicators and allows real-time learning outcomes for students with disabilities
assessments, Shaala Siddhi, a school standards in the education system, operationalization of
and evaluation framework developed by the such tracking would be of interest to the sector.
NIEPA that enables schools to self-evaluate
based on seven key domains, and the MHRD’s
performance grading index (PGI) that uses a 70
indicator matrix to grade the states and union Financing of education of
territories. The School Education Quality Index children with disabilities
proposed by Niti Aayog in 2018 to measure
Literature shows that those who experience
‘effectiveness and efficiency of the school
intersecting discrimination tend to be
education sector’ and positioned as a ‘means
particularly marginalized, and are likely to be at a
to an end, so as to focus on improving teaching
disadvantage in budget processes (Cote & Meeks,
and learning in schools’ has no indicators for the
2017). Literature shows that inclusive education
education of children with disabilities. The Index
is cost-effective (see Box 21), and child-friendly
for Developing Inclusive Schools developed by
inclusive education (especially when started
NCERT serves as a useful reference for indicators
from early years onwards) leads to better social,
and scoring of schools on inclusion (Julka,
academic, health and economic outcomes
n.d.). School teachers’ performance is assessed
for all learners, and at less cost than special or
using the NCERT developed framework for
segregated education. (IDDC and Light of the
Performance Indicators for Elementary School
World, 2016). Yet, budgetary efforts in education
Teachers (PINDICS). With regards to student
are directed towards special schools rather than
performance, there is a prescription of learning
outcomes for each grade and each subject. The adequately resourcing inclusive education (Cote
National Achievement Survey is conducted to & Meeks, 2017).
test student learning outcomes. The overall trends in financial provisioning show
The Strategy for New India@75 includes a that allocation and utilization of finances are key
proposal to establish an electronic national issues in ensuring education of children with
educational registry for tracking each child’s disabilities.
learning outcomes through a unique ID, based
on continuous comprehensive evaluation
(CCE) and final exams, with greater attention
paid to needs of children with physical and
Issues in allocation
intellectual disabilities (Niti Aayog, 2018). The 1A
llocation to education has not reached
strategy document also recommends developing 6 per cent of GDP. This target was
indicators for rating schools on inclusivity (see recommended by the Kothari Commission
Box 20). Given that currently there is no measure (1964–1966),68 and reiterated in every NPE
to track the practice of inclusion of students since 1968. Education 2030 also sets forth
BOX 20
• Include courses in disability etiquette and • Foster partnerships between the MHRD and
success stories of persons with disabilities MSJE to promote synergies among inclusive
in the mainstream curriculum to change and special schools in both government and
attitudes towards persons with disabilities. private sectors.
• Provide special education training in teacher • Develop indicators for rating schools on
training courses. inclusivity.
• Enhance scholarships and fellowships to • Include disabled-friendly sports, cultural
students with disabilities. and technical programmes in schools and
• Make schools more inclusive by addressing colleges
barriers related to the physical environment • Increase government spending on education
(e.g. accessible toilets), admission as a whole (not just school education) to at
procedures as well as curriculum design. least 6 per cent of GDP by 2022.
• Ensure that schools have at least one
68 Also known as the
section of every class accessible under Source: Niti Aayog, Government of India (2018).
Education Commission,
Ministry of Education, Universal Design Guidelines. Strategy for New India@75. Pp. 158-159.
Government of India
(1966).
113
State of the Education Report for India 2019: Children with Disabilities
BOX 21
• In low-income contexts, inclusive education • The cost of exclusion of children with
is more cost-efficient than special or disabilities has an impact on national
segregated education (UNESCO Bangkok, economic growth and is not economically
2009; Peters, 2003) viable (Morgon Banks & Polack, 2014).
• Countries are recognising the inefficiency of • Inclusive education has a mediating effect
multiple systems of education (UNICEF, 2012) on poverty and can be a powerful way of
• Evidence from Bangladesh, Cambodia, India, ensuring that children and young people are
Nepal and Philippines shows that the returns protected against extreme poverty as adults
on investing in education for people with (Filmer, 2008).
disabilities are two to three times higher • The earlier in the child’s life that the
than returns on investing in persons without investment is made, the greater the return
disabilities (Lamichhane, 2014) on investment (Heckman &Masterov, 2007)
this target. Yet, the overall government to the provisions of the RTE and RPWD acts.
spending on education (both centre and state See Figure 18.
governments together) has remained below 4
4 During the Fourteenth Finance Commission
per cent, ranging from 3.2 per cent in 2006/07
period (2015/16 to 2019/20), the central share
to 3.7 per cent in 2013/14 (Budget Estimate –
in education has reduced and state share
BE) (CBGA, 2017).
in education has increased. The central
2 Of the total education budget, school government’s expenditure on education as
education, comprising elementary (Grades 1 percentage of central budget decreased from
to 8) and secondary (Grades 9 to 12), gets the 4.6 per cent in 2014/15 (BE) to 3.5 per cent in
highest allocation. In 2013/14 (BE), the centre 2019/20 (BE). The devolution of central taxes to
and the state together allocated 2.85 per cent states has increased from 32 per cent to 42 per
of GDP to school education. Although the cent, and states have received more untied
overall quantum of budgetary spending may resources. An analysis of state budgets for the
have gone up, its proportion to national GDP first three years of 14th Finance Commission
has declined (CBGA, 2017). See Figure 17. (2015/16 [A] and 2017/18[BE]) shows a three
percentage point increase in states’ share of
3T
he allocation of Rs 363,220 million for
expenditure for education (CBGA, 2019).
Samagra Shiksha Abhiyan is higher than
the allocations made in previous years for 5 There are inter-state variations with regards
the flagship programmes it now subsumes. to allocations made for education. The
However, it might not be adequate to correct allocation and expenditure of select states for
the accumulated deficits, particularly with all educational interventions for children with
respect to making schools inclusive according disabilities by different state departments
Figure 17
Public expenditure on school education as percentage of GDP
2.87 2.85
2.62 2.7 2.59 2.68
2.5 2.53
2.46
2.22 2.19 2.11 2.24
2.07
2004- 2005- 2006- 2007- 2008- 2009- 2010- 2011- 2012- 2013- 2012- 2013- 2014- 2015-
Source: CBGA (2017) 05 06 07 08 09 10 11 12 13 14 13 14 15 16
(RE) (BE) Actual Actual (RE) (BE)
114
Systemic issues in implementing inclusive education
Figure 18
Allocations by MHRD to select education schemes
400000
350000
Samagra Shiksha
Abhiyan 300000
50000
2014-15 (A) 2015-16 (A) 2016-17 (A) 2017-18 (A) 2018-19 (RE) 2019-20 (BE)
shows wide variations. Tamil Nadu has a to IEDSS, while Maharashtra, which has lower
relatively higher allocation due to a separate outlays approved for RMSA, has almost a
department for persons with disabilities since quarter of its outlays allocated for IEDSS.
1993 (CBGA & CRY, 2018). The data also shows
7 The Strategy for New India @75 document
that from 2014/15 (A) to 2017/18 (BE), there has
suggests a 5 per cent allocation of resources
been an increase in allocations in the states
across social sectors to be earmarked for
except in Uttar Pradesh.
persons with disabilities. However, there has
6 Allocations made for education of children been no guideline or circular to this effect
with disabilities constitute a very small so far (CBGA, 2019). The central government
percentage of outlays under SSA and RMSA allocation towards expenses for persons with
and large variations exist across states. An disabilities has remained 0.02 per cent since
examination of the allocations made under 2016. The proportion of state contribution is
SSA and RMSA (see Tables 18 & 19) shows that over three times that of the Centre. (National
under SSA, the approved outlays for children CRPD Coalition-India, 2019).
with disabilities was less than 1 per cent in the
8 Allocations to the DEPWD have increased
case of Bihar, Chhattisgarh and Uttar Pradesh
over the years. Yet, funds have remained
from 2016/17 to 2017/18, in spite of adopting
unspent every year. See Figure 20.
the RPWD Act and SDG 4. Even in the case
of Maharashtra, and Tamil Nadu, there were 9 No financial commitment has been made
declines in the percentage of approved outlay towards implementing the RPWD Act across
set aside for children with disabilities. In the states. The fund allocated for SIPDA has
case of RMSA, the state-level variations are been primarily used for implementing the
enormous with Bihar and Chhattisgarh having Accessible India campaign, skill development
less than 1 per cent of their outlays allocated programme and awareness building.
Figure 19
Budgetary interventions for school education for children with disabilities -
select states (Rs Millions)
686
682
663
2014-15 (A)
589
2015-16 (A)
530
2016-17 (BE)
2016-17 (RE)
325
306
302
295
2017-18 (BE)
243
211
176
151
49
44
42
42
36
36
41
36
35
28
27
115
table 18
Interventions for children with disabilities in SSA – select states (Rs Millions)
2016-17 2017-18
table 19
Interventions for children with disabilities in RMSA 2017/18 – select states (Rs Millions)
Figure 20
Allocations to the DEPWD
BE 9550 9225
8550
RE 7836 7835 7726
6329 6368 6109
Actuals 5549
4411 4033
116
Systemic issues in implementing inclusive education
table 20
Trend in allocation for SIPDA (Rs in millions)
Year BE RE Autuals
117
Utilization of funds for implementing
the RTE Act
The CAG report (2017) on implementation of the RTE
Act found the following.
•G
overnment of India has not provided any separate
budget for implementation of the RTE Act.
•S
tate governments were constantly unable to
utilize between 21% and 41% of funds during
the first five years of the RTE Act, from 2010/11 to
2015/16.
•U
nutilized grants at the close of each year ranged
from between Rs 12,259.46 crore to Rs 17,281.66
crore across 35 states and union territories.
•T
here was short utilization (between 9 and 65
per cent) of research, evaluation, monitoring and
supervision (REMS) funds by nine states.
•T
here are delays in release of funds from state
nodal departments to districts, especially in the
NE states.
•A
udit observations with regards to education of
children with disabilities by the CAG report showed
issues in disbursing entitlements, and shortfalls in
verification of disability certificates (See Box 22).
BOX 22
Financial management under RTE Act of education of children with disabilities - select states
Assam Out of 607,182 children with identified disabilities, 516,169 (85 per cent) were
enrolled in schools and the balance (15 per cent) were provided home-based
education. The shortfall in providing transport allowance (TA) to enrolled children
with disabilities ranged from 66.27 per cent to 96.65 per cent from 2010 to 2015.
STATE No TA was provided during 2015/16 due to non-receipt of funds from the Indian
Audit
Government.
Gujarat Braille books were not provided to 9,189 children between 2010 and 2016. SPD
stated (in September 2016) that Braille books were not provided during the
preceding two years as approved cost of Braille books was very low in comparison
to actual cost, and there was no participation in online tender for Braille books
between 2014 and 2016. The department was silent on why corrective measures
were not taken.
Tamil Nadu Between 22,310 and 25,468 children with disabilities identified between 2010 and
2014 were not provided transportation as funds were not allotted by SSA, though
funds were allotted under Inclusive Education for Disabled (IED). As of March 2016,
20,588 children with disabilities were not provided with transport.
Also, a grant of Rs 357.5 million was received under IED for provision of equipment
such as callipers, hearing aids, wheelchair and transport arrangements in five test-
checked districts. Out of this, only Rs.327.2 million was utilized. Despite having a
closing balance of Rs 30.3 million, 798 out of 7,049 children with disabilities were
not provided the equipment they were entitled to.
Uttar Pradesh As per the Manual for Planning and Implementation of Inclusive Education,
children with mild disabilities (less than 40 per cent) were not eligible for benefits
provided to children with disabilities. Out of 1,876,000 children enrolled as children
with disabilities from 2010 to 2016, only 209,000 children had disability certificates.
However, 1,667,000 children who were not issued disability certificates were also
considered eligible, leading to irregular expenditure of Rs 2564.9 million.
118
Summary
Early detection of developmental delays and timely interventions are not yet widespread. In India, the focus on
early childhood development has been through the Anganwadi centres. A survey by NITI Aayog indicated more
than 40 per cent of these centres did not have adequate infrastructure and facilities.
Barriers to using the substantial provisioning ensured by the RPWD and RTE Acts include lack of awareness
about legal rights and entitlements of CWDs, lack of accessibility of grievance redressal mechanisms, and lack
of a coordinated enforcement mechanism for implementation.
The professional development of teachers is the crucial link in implementing the vision and action plan for
inclusive education. The National Council of Teacher Education and the Rehabilitation Council of India (the
two statutory bodies that regulate professional development of general teachers and special educators
respectively) are taking measures to prepare teachers for inclusive education. But meeting the diverse needs
of all children, especially those with disabilities, in regular or special schools, home-based education or in
community-based settings remains a substantive challenge. Human resource development and training is an
ongoing strategy requiring continual investment and flexible planning to address emerging issues.
There is an increasing awareness of the importance of education among parents of children with disabilities.
However parents from low income families face challenges such as absence of adequate transport and very
little transport allowance, forcing them to physically drop and pick up the child themselves. A UNESCO
commissioned study in select stated indicate parents feel insecure about the safety of their child in the school.
According to Niti Aayog, a major obstacle to designing effective policy interventions for children is the
unavailability of credible data. Data systems specifically focused on information related to children with
disabilities require streamlining in order to improve the availability, validity and reliability of data.
There are governance related issues such as poor provisioning for education of CWDs in all kinds of educational
settings, the problem of reach and disparities in access, and effective coordination between different
stakeholders. Financing of education for CWDs suffers from inadequate and reducing allocations, delays in
releasing funds and underutilization of allocations. Budgeting exercises undertaken by central and state
governments are restricted since they focus only on children within the system rather than those who are
currently outside but need to be brought in.
119
CFOR
CLAP
CHAPTER
8
Recommendations
Recommendation 1
Amend the RTE Act to better align with the
RPWD Act by including specific concerns of
education of children with disabilities.
National level • Making appropriate authorities responsible
There is a need for additional amendments to for filling up vacancies of special teachers
the RTE Act –the primary legislation on right to along with vacancies of general teachers as
education – that specifically include rights of prescribed under Section 26.
children with disabilities. These could comprise • Mandating the Academic Authorities to
the following. incorporate inclusive pedagogies in curriculum
• Prescribing norms and standards to be followed and evaluation procedures under Section 29(2).
by special schools and minimum standards for
State level
provision of home-based education.
The state governments need to amend their
• Revising the existing Schedule of the RTE Act
respective state rules following the RTE
to include physical infrastructure norms to
(Amendment) Act, 2012, and also harmonize
make all schools accessible, such as disabled-
them with the RPWD Act and the RPWD State
friendly toilets, accessible entrances, signages,
Rules. Specifically, they can include provisions
accessible drinking water facilities, emergency
related to reasonable accommodation, assistive
evacuation facilities and provision of assistive
technologies and the role of SMCs in facilitating
technologies in the library.
and supporting inclusive schools.
Recommendation 2
Establish a coordinating mechanism under
MHRD for effective convergence of all education
programmes of children with disabilities.
National level State level
Education of CWDs requires a cross- State governments too need to operationalize
cutting approach. Hence there is a need and build convergence across departments
to operationalize how convergence can be that play a role in education of children with
actualized, and how it would work at different disabilities. Preparing concrete roadmaps
levels for different activities, between different and articulating specific district-wise targets,
departments, ministries, and schemes. strategies, timelines and key stakeholder roles
Planning for convergence could take into shall help in better convergence of central and
account specific areas where there are multiple state schemes at district level. These policies
agencies and interventions involved, to leverage and roadmaps should be made available in the
existing resources and remove inconsistencies. public domain and tracked annually during
Appointing nodal officers within concerned budgeting and annual reporting.
departments and ministries will help ensure
mainstreaming of rights of children with
disabilities within each department or ministry..
122
Recommendation 3
Ensure specific and adequate financial allocation
in education budgets to meet the learning needs
of children with disabilities.
National level State level
In keeping with national commitments and There is a need to improve utilization of
international norms, 6 per cent of GDP and 20 funds allocated to education of children with
per cent of the budget need to be allocated to disabilities. Absorptive capacities can be built by
education. Alongside, financial management encouraging innovation, experimentation and
systems and processes need to be streamlined to learning from other stakeholders. Establishing
minimize delays in release of funds to states. Like appropriate accountability and transparency
gender budgeting, disability budgeting could processes at a decentralized level can help
be used to track resource allocation for various improve financial management of resources.
interventions to enable review and action in case
budgets are found to be lacking in their focus on
children with disabilities.
Recommendation 4
Strengthen data systems to make them robust,
reliable and useful for planning, implementation
and monitoring.
National level schools, home-based education and children
Data forms the backbone of effective planning with disabilities who are out of school should also
be included in the EMIS-school based census
and progress monitoring. There is hence a need
and surveys.
to streamline the different data systems by
including all 21 disabilities covered under the State level
RPWD Act, bringing uniformity in definitions, and
The mandatory annual school-mapping exercise
providing disaggregation of data on disability undertaken as per the RTE Act should include
and gender. In order to improve accuracy and the disabilities listed under the RPWD Act to help
comparative value of data, the next rounds of generate an annually updated local database.
Census and NSSO should consider internationally There is a need to create a culture of data-driven
used disability measures such as the new decision-making at state and district levels. This
Washington Group Questions or contextually in turn requires building capacity and training
appropriate UNICEF tools. Data about special officials and SMC members in data use.
123
State of the Education Report for India 2019: Children with Disabilities
Recommendation 5
Enrich school ecosystems and involve all
stakeholders in support of children with
disabilities.
National level links between schools and communities, and
A learner-friendly school environment demands networking across contexts to support teachers
coordinated understanding and effort from towards inclusion. Systematic collection, use and
all concerned stakeholders. This will entail dissemination of evidence on what works and
rethinking capacity building. Curriculum under what conditions is essential.
frameworks for teachers’ professional
State level
development need to look beyond deficit
models and build on the inherent cultural Communities of practice will help create a
strengths of Indian society, such as acceptance common sense of purpose around inclusive
of diversity to tackle negative attitudes and education through a shared, contextual
promote inclusion. Resources and efforts towards understanding. Higher education institutions
teacher preparation need to be streamlined with experience in the sector can be identified
under one regulatory authority. In the long term, to design need based, contextually relevant
general teachers must be trained to address programmes engaging teachers over an
needs of children with disabilities, reducing extended period of time. Periodic follow up and
dependence on special educators. A large array feedback is essential for programmes to translate
of short term courses can be offered for teachers into changes in classroom practices. This will be
to choose from, should they wish to specialize resource intensive and a long term plan needs
further. Educational administrators and school to be charted out to ensure flow of funds, with
leaders should take the lead in reaching out to support from the central government.
parents of children with disabilities, forging closer
124
Recommendations
Recommendation 6
Massively expand the use of information
technology for the education of children with
disabilities.
National level State level
There is a need to develop more assistive The SCERTs should consider incorporating the
technologies and encourage multi-disciplinary Universal Design for Learning (UDL) framework
research and development in this area in keeping within the state curriculum. This will help make
with the emphasis on technology-enabled learning accessible with the use of proactive
learning within the Samagra Shiksha Abhiyan designs of accessible and usable standards,
programme. This would include supporting the inclusive curricula, instructional methods and
development of no-cost or low-cost accessible materials, and assessments. It would also
solutions for various learning needs of children require training general teachers on use of
with disabilities, and making these available in UDL principles and techniques as part of their
open source formats. Diksha, the national digital orientation in inclusive practices.
portal for teachers, could provide a platform
for sharing and creating assistive technologies
that can be used by both general teachers and
special educators.
Recommendation 7
Give a chance to every child and leave no child
with disability behind.
National level Mainstream schools should play a pivotal role
Given that inclusion is a critical parameter of in fostering inclusion by developing strong
quality, the School Education Quality Index and organic linkages with special schools
should include specific indicators about and home-based education. This would allow
education of children with disabilities, and use optimization of existing resources and offer
them track if schools are inclusive. The role of unified educational interventions for children
school leadership in building quality, inclusive with disabilities. In the long term, all mainstream
learning environments should be recognized schools would have to be transformed to
at the national level by initiatives such as the become fully inclusive. Incentives should be
National Centre for School Leadership (NCSL), provided to school leaders of mainstream
NIEPA by including ‘Leading Inclusive Schools’ schools, SMCs and district authorities who help
as one of their focus areas. build inclusive learning environments across the
school clusters.
State level
State governments should consider building
school clusters that include all educational
settings catering to children with disabilities.
125
PHONE
P
FOR
Recommendation 8
Transform teaching practices to aid the inclusion
of diverse learners.
National level Indian languages should be developed for
Strengthening pedagogy, teaching-learning efficient identification of hidden disabilities.
material and assessment cannot be achieved
State level
without appropriate teacher education. Part-time
or online courses on inclusive education leading Since in-service training programmes are
to certification should be institutionalized as in- planned at the state level and conducted at local
service opportunities for teachers. Such courses levels, there is a need to design these not as a
can be created as a collaboration between one-time events, but as extensive, periodical,
NGOs, universities and national institutes. continuing practice-based education with inbuilt
Teachers, both special and mainstream, working mechanisms for transfer of knowledge into
in inclusive settings can be brought onboard to classrooms. Special educators in special schools
provide field data and feedback to inform the and those providing support in mainstream
course design. Creating open access repositories schools should be provided in-service training
of teaching-learning materials and best practices in inclusive education. In addition, state
on inclusive pedagogies will lead to better governments can consider issuing detailed
knowledge sharing. Contextual, standardized guidelines towards bringing in flexibility in
assessment and diagnostic tools in different the schooling processes, keeping in mind the
specific needs of children with disabilities.
126
Recommendations
Recommendation 9
Overcome stereotypes and build positive
dispositions towards children with disabilities,
both in the classroom and beyond.
Since attitudinal barriers play a significant role in of all key stakeholders in respecting, protecting
determining inclusive education, there is a need and fulfilling these rights. Exemplars and best
to launch concerted campaigns and awareness practices of inclusion and what works should
drives at all levels. The key messages must be shared at the national, state and local levels,
emphasize rights of children with disabilities to particularly in local languages.
participate in inclusive schools and the duties
Recommendation 10
Foster effective partnerships involving
government, civil society, the private sector and
local communities for the benefit of children with
disabilities.
The efforts of multiple stakeholders working and schemes. Additional resources and visibility
on the issue can be strengthened by building brought by the corporate sector can be utilized
partnerships and fostering collaborations. The to address unmet needs. Above all, the thought
knowledge base of the NGO sector, which is leadership of DPOs would need to be proactively
highly active and effective in creating innovative used at every stage of planning, development
and inclusive practices, should be tapped into. and evaluation. These partnerships are critical to
Research and development contributions of achieve desired results and for reaching the goals
national institutes and academic institutions can of building inclusive societies through inclusive
be utilized and scaled up through programmes schools.
Annexures
Annexure 1
Select provisions from international treaties, declarations
and political commitments
128
Article 24 •R
easonable accommodation of the
1 States Parties recognize the right of persons individual’s requirements is provided.
with disabilities to education. With a view •P
ersons with disabilities receive the support
to realizing this right without discrimination required, within the general education
and on the basis of equal opportunity, States system, to facilitate their effective education.
Parties shall ensure an inclusive education •E
ffective individualized support measures
system at all levels and lifelong learning are provided in environments that maximize
directed to: academic and social development,
• The full development of human potential consistent with the goal of full inclusion.
and sense of dignity and self-worth, and the 3 States Parties shall enable persons
strengthening of respect for human rights, with disabilities to learn life and social
fundamental freedoms and human diversity. development skills to facilitate their full
and equal participation in education and
• The development by persons with disabilities
as members of the community. To this end,
of their personality, talents and creativity, as
States Parties shall take appropriate measures,
well as their mental and physical abilities, to
including:
their fullest potential.
•F
acilitating the learning of Braille, alternative
• Enabling persons with disabilities to
script, augmentative and alternative modes,
participate effectively in a free society.
means and formats of communication
2 In realizing this right, States Parties shall and orientation and mobility skills, and
ensure that: facilitating peer support and mentoring.
• Persons with disabilities are not excluded •F
acilitating the learning of sign language and
from the general education system on the the promotion of the linguistic identity of the
basis of disability, and that children with deaf community.
disabilities are not excluded from free •E
nsuring that the education of persons,
and compulsory primary education, or and in particular children, who are blind,
from secondary education, on the basis of deaf or deaf blind, is delivered in the most
disability. appropriate languages and modes and
• Persons with disabilities can access an means of communication for the individual,
inclusive, quality and free primary education and in environments which maximize
and secondary education on an equal basis academic and social development.
with others in the communities in which 4 In order to help ensure the realization of this
they live. right, States Parties shall take appropriate
129
State of the Education Report for India 2019: Children with Disabilities
6 To accommodate educational provisions for • Ensure that, in the context of a systemic
persons with disabilities in the mainstream, change, both preservice and inservice teacher
States should: education programmes address the provision
• Have a clearly stated policy, understood of special needs education in inclusive schools.
and accepted at the school level and by the
wider community.
• Allow for curriculum flexibility, addition and Biwako Millennium Framework
adaptation.
for Action towards an Inclusive,
• Provide for quality materials, ongoing teacher
training and support teachers.
Barrier-free and Rights-based
Society for Persons with
Disabilities in Asia and the
Pacific, 2002
The Salamanca Statement
1E
nact and/or enforce legislation and policies
and Framework for Action on related to equal opportunities and treatment
Special Needs Education, 1994 of persons with disabilities and their rights to
equity in education, health, information and
Article 2
communications, training and employment,
We believe and proclaim that: every child has social services and other areas.
a fundamental right to education, and must be
2E
nsure that disabled persons be an integral
given the opportunity to achieve and maintain
part of efforts to achieve the millennium
an acceptable level of learning.
development goals, particularly in the areas of
• Every child has unique characteristics, interests, poverty alleviation, primary education, gender
abilities and learning needs. and youth employment.
• Education systems should be designed and 3 Strengthen national capacity in data
educational programmes implemented to collection and analysis concerning disability
take into account the wide diversity of these statistics to support policy formulation and
characteristics and needs. programme implementation.
• Those with special educational needs must 4 Adopt a policy of early intervention in all
have access to regular schools which should multisectoral areas, including education,
accommodate them within a child centred health and rehabilitation, and social services
pedagogy capable of meeting these needs. for children with disabilities from birth to four
• Regular schools with this inclusive orientation years.
are the most effective means of combating
discriminatory attitudes and building inclusive
society a; moreover, they provide an effective
education to the majority of children and Beijing Declaration
improve the efficiency and cost- effectiveness of on Disability-inclusive
the entire education system. Development, 2012
Article 3 Governments are urged to:
131
State of the Education Report for India 2019: Children with Disabilities
Sustainable Development
Goals, 2015 2030 Agenda for Sustainable
SDG 4 Development, 2016
"Ensure inclusive and quality education for all nP
eople who are vulnerable must be
and promote lifelong learning." Two of the targets empowered. Those whose needs are reflected
for this goal mention disability: in the Agenda include all children, youth,
persons with disabilities (of whom more than
• By 2030, eliminate gender disparities in
80 per cent live in poverty)...We resolve to take
education and ensure equal access to all levels
further effective measures and actions, in
of education and vocational training for the
conformity with international law, to remove
vulnerable, including persons with disabilities,
obstacles and constraints, strengthen support
indigenous peoples and children in vulnerable
and meet the special needs of people living
situations
in areas affected by complex humanitarian
• Build and upgrade education facilities that emergencies and in areas affected by
are child, disability and gender sensitive and terrorism.
provide safe, nonviolent, inclusive and effective
p We commit to providing inclusive and
learning environments for all.
equitable quality education at all levels –
SDG 11 early childhood, primary, secondary, tertiary,
technical and vocational training. All people,
"Make cities and human settlements inclusive,
irrespective of sex, age, race or ethnicity, and
safe, resilient and sustainable." Two of the targets
persons with disabilities, migrants, indigenous
for this goal mention disability:
peoples, children and youth, especially
• By 2030, provide access to safe, affordable, those in vulnerable situations, should have
accessible and sustainable transport systems access to life-long learning opportunities
for all, improving road safety, notably by that help them to acquire the knowledge
expanding public transport, with special and skills needed to exploit opportunities
attention to the needs of those in vulnerable and to participate fully in society. We will
situations, women, children, persons with strive to provide children and youth with a
disabilities and older persons. nurturing environment for the full realization
• By 2030, provide universal access to safe, of their rights and capabilities, helping our
inclusive and accessible, green and public countries to reap the demographic dividend,
spaces, in particular for women and children, including through safe schools and cohesive
older persons and persons with disabilities. communities and families.
132
Annexures
Annexure 2A
Schemes under DEPWD, MSJE
Department of Empowerment of Persons with Disabilities (Divyangjan) 70 (DEPWD)
Ministry of Social Justice and Empowerment
5. Scheme of financial • Provide financial assistance for skill training for persons with
assistance for skill disabilities.
training of persons with • Operate through training institutes recognized by DEPWD.
disabilities75 • Cover all disabilities, including the ones under the National Trust.
• For age 15 years and above.
6. Indian Sign Language • Development of manpower for using, teaching and conducting
Research and Training research in Indian Sign Language
Centre (ISLRTC) • Promoting use of Sign Language in education
70 Department for Empowerment of Persons with 73 Department for Empowerment of Persons with
Disabilities. Retrieved on 12 March 2019 from: http:// Disabilities. Retrieved on 12 March 2019 from: http://
disabilityaffairs.gov.in/upload/uploadfiles/files/ disabilityaffairs.gov.in/content/page/sipda.php
Compendium%20of%20Schemes-2018%20(Eng).pdf 74 Department for Empowerment of Persons with
71 Department for Empowerment of Persons with Disabilities. Retrieved on 12 March 2019 from: http://
Disabilities. Retrieved on 12 March 2019 from: http:// disabilityaffairs.gov.in/content/page/ddrc-scheme.php
disabilityaffairs.gov.in/upload/uploadfiles/files/ddrs(1).pdf 75 Department for Empowerment of Persons with
72 Department for Empowerment of Persons with Disabilities. Retrieved on 12 March 2019 from: http://
Disabilities. Retrieved on 12 March 2019 from: http:// disabilityaffairs.gov.in/content/page/scheme-of-financial-
disabilityaffairs.gov.in/content/page/adip-scheme.php assistance-for-skill-training-of-pwds.php
133
State of the Education Report for India 2019: Children with Disabilities
Annexure 2b
Schemes under National Trust, DEPWD, MSJE
The National Trust for the Welfare of Persons with Autism, Cerebral Palsy, Mental Retardation
and Multiple Disabilities76
Department of Empowerment of Persons with Disabilities (Divyangjan)
Ministry of Social Justice and Empowerment
4. Badhte Kadam •F
or community awareness, sensitization, social integration and
– awareness and mainstreaming.
community interaction •C
ollaboration with campaigns and disseminate information on
programmes by other ministries, government departments and
organizations at national, state, district, block or panchayat level.
•C
ollaboration with corporates and voluntary organizations.
•S
ocial media campaign, initiatives through ICT, workshops, fairs,
roadshows. exhibitions.
Annexure 3
Schemes under DSEL, MHRD
Department of School Education and Literacy (DSEL)
Ministry of Human Resource Development
Annexure 4
Scheme for early childhood care and education (ECCE)
76 The National Trust
for the Welfare of Ministry of Women and Child Development (MWCD)
Persons with Autism,
Cerebral Palsy, Mental Sr. No. Schemes Details
Retardation and Mental
Disabilities. Retrieved on
1. Umbrella Integrated • Schemes offered: Anganwadi Services Scheme, two nutrition
on 12 March 2019, from:
http://thenationaltrust.
Child Development programmes for expectant mothers, children and adolescent girls,
gov.in/content/ Services77 National Creche Scheme and integrated child protection scheme
innerpage/schemes.php • Anganwadis offer six services: Supplementary nutrition; pre-school
77 Ministry of Women and non-formal education; nutrition & health education; immunization;
Child Development
health check-up; and referral services (Last three services provided
(n.d.). Retrieved on 13 through the Ministry/Department of Health and Family Welfare
March 2019 from: https:// through National Rural Health Mission and Health System)
icds-wcd.nic.in/icds.aspx
134
Annexure 5
Scheme for early identification and intervention
National Health Mission (NHM)
Ministry of Health and Family Welfare (MHFW)
Annexure 6
78 Ministry of Health
Schemes for skill development and employment
and Family Welfare.
Retrieved on 13 March
Ministry of Labour and Employment (MoLE)
2019 from: http://nhm.
gov.in/images/pdf/ Sr. No. Schemes Details
programmes/RBSK/For_
more_information.pdf 1. Vocational • VRCs for children with disabilities, starting age 15.
79 Ministry of Labour and Rehabilitation Centres • Training and support for both job placement and self employment.
(VRC) 79
Employment. Retrieved
on 13 March 2019 from: Skill Council for Persons with Disabilities (SCPWD) 80
https://labour.gov.in/vrc
National Skill Development Corporation (NSDC), Ministry of Finance (MoF)
80 Ministry of Skill
Ministry of Skill Development and Entrepreneurship (MoSDE)
Development and
Entrepreneurship. 1. Deen Dayal Upadhyaya • Skilling and placement initiative for rural youth by the Ministry of
Retrieved on 14 March Grameen Kaushalya Rural Development (MoRD).
2019 from: http://www.
Yojana (DDU-GKY) 81 • Children of age 15 and older are eligible to apply
scpwd.in/
81 Ministry of Skill 2. Scheme for • A centrally sponsored scheme by DEPWD-MSJE to implement
Development and Implementation of RPWD Act 2016. Implemented in collaboration with NSDC.
Entrepreneurship. Rights of Persons with
Retrieved on 14 March Disabilities Act, 2016
2019 from: http://www. (SIPDA)
scpwd.in/ddugky
135
Annexure 7
Schemes, others
Ministry of Youth Affairs and Sports (MYAS)
1. Scheme of Sports • The scheme was implemented in special schools and inclusive
& Games for the schools.
Disabled82
2. Scheme of Assistance • Paralympic Committee of India, Special Olympics Bharat and the All
to National Sports India Sports Council for the Deaf are also provided assistance under
Federations this scheme.
3. Khelo India • One of the objectives is promotion of sports and physical fitness of
children in schools.
Ministry of Finance
1. Tax relief To family • Provides for a deduction from the gross annual income when any
members of persons expenditure on treatment, rehabilitation, training etc is incurred for
with disabilities83 a dependent child/ person, under Section 80DD of the Income Tax
Act.
Annexure 8
Status of DDRC across states
Name of state/ DDRCs
Location of DDRCs (district)
UT set up
Andhra Pradesh 11 East Godavari; Kurnool; Chittor; Nellore; Vizianagram; Prakasam; Cudappah;
Guntur; Vishakapatnam; Anantpur; & Srikakulam
136
Annexures
Goa 1 Panaji
Jammu and 8 Jammu; Udhampur; Leh; Anantnag; Doda; Barmulla; Poonch; Kupwara
Kashmir
Lakshadweep 0 NA
Madhya Pradesh 24 Jabalpur; Balaghat; Rewa; Sagar; Indore; Jhabua; Gwalior; Rajgarh; Ujjain;
Satna; Khargaon; Khandwa; Agar; Alote-Ratlam; Jawad; Dewas; Mandsaur;
Damoh; Shivpuri; Chhindawara; Guna; Vidisha; Sehore; Shajapur
Meghalaya 5 Shillong; East Garo Hills; Jantia Hills West Khasi Hills & West Garo Hills
Nagaland 1 Dimapur
Rajasthan 11 Ajmer; Jodhpur; Tonk; Bikaner; Jaiselmer; Jalore; Pali; Udaipur; Alwar;
Bharatpur; Bhilwara)
Sikkim 1 Gangtok
137
State of the Education Report for India 2019: Children with Disabilities
Annexure 9
State-specific policy frameworks
State Key provisions
84
Chhattisgarh • Emphasis on equal access to education and the development of a single
education system catering to all learners within an inclusive environment.
• The state shall meet all the requirements of educational needs of all categories
of persons with disabilities in a targeted timeframe by method of inclusion and
or through special schools.
• Curriculum development in regular schools to ensure flexibility, addition and
adaptation.
• Standardization of salaries of all special educators with mainstream school
teachers in accordance with central govternment payscale.
• Appropriate technology development in education and training.
• Links between education and the world of work need to be strengthened.
• Transport systems to ensure that children with disabilities reach educational
institutions.
• Appropriate methods to assess and identify children with disabilities.
85
Himachal Pradesh • Provision of free education to disabled children having 40 per cent or more
disability from Grade 1 to university education (including technical and
professional courses) in all government institutions.
• Provision of free textbooks, transport, aids and appliances, learning tools, mobility
assistance, conducive learning environment, support services, therapies for
physical rehabilitation, counselling, modified educative material according to the
needs/disabilities like Braille library, dictaphone, speech therapy, special desks for
children with muscular dystrophy.
• Needs of children with severe disabilities to be addressed through expansion
of special schools in areas not covered, with assistance of NGOs. Special schools to
be located in vicinity of other schools to move towards full inclusion, norms and
minimum standards for setting up special schools will be prescribed.
• Provision of need-based vocational training to upgrade skill levels in order
to increase self-employment and reduce dependence.
84 Government of
• Training of teachers to equip them to identify children and meet their needs.
Chhattisgarh and
Shodhana Consultancy • Tracking enrolled children to check the drop-out rate.
(n.d.) Comprehensive 86
Disability policy Karnataka • Promotion of education as well as enrolment of children with disabilities
framework for in mainstream schools
Chhattisgarh. Retrieved
on 26 April 2019 from:
http://www.shodhana.
org/shodhana/ppd/
Chhattisgarh%20
State%20Disability%20
Policy.pdf
85 Government of
Himachal Pradesh
(n.d.) State policy for
persons with disabilities
Himachal Pradesh.
Retrieved on 26 April
2019 from: https://
cis-india.org/tmp/
State%20Policy%20
for%20Persons%20
with%20Disabilities%20
Himachal%20Pradesh.
pdf
86 Government of
Karnataka (n.d.).
Karnataka State
Policy on Disability.
Retrieved on 26 April
2019 from: https://
www.karnataka.gov.
in/welfareofdisabled/
Pages/Karnataka-State-
Policy.aspx
138
Annexures
Annexure 10
State-wise details of camps conducted, funds utilized and
number of beneficiaries covered over 2016/17 and 2017/18
(as on 31 December 2017) by various Implementing agencies under ADIP Scheme (Rs millions)
Annexure 11
List of Figures and Tables
Figures
Figure 1 23 Figure 16 109 Table 11 67
International treaties related to Components of governance Access audit for select schools –
right to education of CWDs gender perspective
Figure 17 114
Figure 2 23 Public expenditure on school Table 12 68
Degree of harmonization with education as percentage of GDP Percentage of schools with
UNCRPD disabled-friendly toilets
Figure 18 115
Figure 3 25 Allocations by MHRD to select Table 13 70
Key international declarations education schemes Gender disparity in ALIMCO/ADIP
and political commitments beneficiaries (2014/15)
Figure 19 115
Figure 4 31 Budgetary interventions for school Table 14 79
Main outcomes of Samagra education for children with Comparison between CBSE, NIOS
Shiksha Abhiyan disabilities - select states and Haryana School Education
Department guidelines on
Figure 20 116
Figure 5 38 exemptions in examinations
Allocations to the DEPWD
Options for educating for CWDs
children with disabilities
Table 15 87
Figure 6 42 Disability surveys conducted
MSJE organization structure
Tables at Anganwadis (2010)
Table 1 27
Figure 7 43 Table 16 88
Specific provisions for children
Ministerial and departmental linkages to Representing the health records
with disabilities in state RTE rules
schemes and services aimed at CWDs of children enrolled in AWCs
Table 2 36
Figure 8 52 Table 17 97
Evolution of models of disability
All India percentage of CWDs by Summary of teacher and teacher
age group Table 3 48 education related expectations
Vocational training intake in and recommendations
Figure 9 52 VRCs since inception until 2006
All India percentage of CWDs Table 18 116
(0–14 years) by location Table 4 54 Interventions for children with
Statewise population of CWDs disabilities in SSA – select states
Figure 10 53 (5-19 years)
Table 19 116
Number of CWDs by age group
Table 5 55 Interventions for children with
and location
Educational status of 5 year olds disabilities in RMSA 2017/18 –
Figure 11 53 select states
Table 6 55
CWDs (0–14 years) by disability
Educational status of CWDs Table 20 117
type
(5-19 years) Trend in allocation for SIPDA
Figure 12 56
Table 7 56
Percentage of children between
Enrolment in NIOS from
5 and 19 by education status and
2009 to 2015 by disability type
disability type
Table 8 58
Figure 13 57 Percentage of children with
Total enrolment of children with disabilities (5-19 years) by education
disabilities across levels of schooling status and states
Figure 14 68 Table 9 59
Percentage of schools with toilets Enrolment at secondary and
for CWDs at the secondary level – higher secondary levels by gender
select states
Table 10 60
Figure 15 70 Total number of children with
Assistive technology pathways disabilities (0-14 years) by
to create inclusive education work status
140
MFOR
MUSIC
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