Sunteți pe pagina 1din 72

HEALTH

TOMORROW
50 HEALTH PIONEERS 
INNOVATING AROUND THE WORLD

HEALTH

HEALTH TOMORROW
In Cameroon, Arthur Zang is designing the Cardiopad to help screen
for heart disease in villages without a doctor. In the United States,
Ellen Goodman is helping families ensure that the wishes of their
loved ones are fulfilled in end-of-life care. In Egypt, Hisham Khar-
ma has launched a social network for blood donations to address

TOMORROW
blood shortages in hospitals. These pioneers are just a few of the
health innovators redefining and reshaping our health systems,
using holistic approaches that are not limited to hospital walls.  

Health Tomorrow  explores new global health strategies through


a series of 50 portraits and interviews, uncovering brilliant and
unexpected social innovations that leverage concepts like empathy,
well-being and inclusion. This collection of inspiring stories will
introduce you to a network of pioneers who are breathing new life BILL DRAYTON AUMA OBAMA
into healthcare. JORDI MARTI ELLEN GOODMAN
FRANK HOFFMAN KRYSTIAN FIKERT
GENEVIEVE MOREAU MARTIN GUZMAN
PIYUSH TEWARI MICHELLE LEM
ANIL PATIL JOÃO PAULO NOGUEIRA
ALAIN CARPENTIER SAMEER SAWARKAR
ERIC CHEYSSON HISHAM KHARMA
UWE DIEGEL PHILIPPE DE ROUX
BERTIN NAHUM ANDREAS HEINECKE
JUNTO OHKI KATHERINE FREUND
MIGUEL NEIVA HEIDI WANG
MATHIEU LEHANNEUR JOËL DE ROSNAY
JOS DE BLOK FRANCESCA FEDELI
EDITH ELLIOTT ANDREA COLEMAN
AND MANY MORE…
HEALTH
TOMORROW
Under the direction of Côme Bastin and Fleur Weinberg

HEALTH
Based on an original idea by Guillaume Deprey, (founder of Perfethic)
http://www.perfethic.com

Artistic direction and Graphic Design:


Pauline Sautelet 

TOMORROW
Interviews and Portraits:
Côme Bastin, Fleur Weinberg, Perrine Massy, Charlotte Sarrola, Timothée Vinchon, Charles Faugeron, Hélène Martinez 

Contributors:
Yeleka Barrett, Sarah Jefferson, Lee Lashaunte, Jutta Luetzeler, Arnaud Mourot, Manuela Pastore

Cover:
Photo by Arthur Bondar 
Ginevra Sanguigno a clown volunteer from Italy, plays with a Blind girl at an orphanage for blind and deaf children in Sergiyev
Posad, Russia, (2013). Visits to this orphanage are organised each year by Patch Adams (American physician, comedian,
social activist and clown) as part of the Patch Adams Clown Trip. These trips lead volunteers to the world’s most distressed
regions to engage in a unique form of social and medical activism known as Clowning. Adams and his band of merry clowns visit
hospitals and schools around the world, bringing laughter and wellness to people suffering from illness and oppression.

English translation:
Noam Assayag, Daniel Goriounov, Bernard Evans

Copy editor:
Agnès Blondel

In partnership and with the support of Ashoka, the Making More Health initiative and Boehringer Ingelheim
More information : https://www.makingmorehealth.org

Thanks
We wish to thank all the pioneers who have agreed to be present in this book,
Bill Drayton and Auma Obama, who have accepted to be the great opening witnesses.
PREFACE

PREFACE

The New Hippocrates

tution, adopted in 1946 encourages more, economic and social disparities For Health allow medication to be many cases, the democratization of explosion in chronic illness, tomor-
us to distinguish health from medi- can intensify the issues in healthcare transported to those in need by equip- the Internet and of digital tools has row’s healthcare solutions will have
cine: “Health is a state of complete phy- infrastructure and access to treatment. ping and maintaining vehicles in iso- allowed them to considerably amplify to keep people healthy. Cure, because
sical, mental and social well-being and What is the point of developing new lated communities across Africa. Jordi their impact. From India to South this will always be medicine’s funda-
not merely the absence of disease or medicines if they cannot reach those Marti has organized massive screening Africa, to France and many other mental purpose. Improve, as we must
infirmity”. Thus, health is “much more who need them? campaigns throughout South America, countries, these social entrepreneurs optimize the use of existing resources.
than medicine”.1 Medicine itself is The real challenges facing health thanks to low-cost blood and saliva are establishing the “four As to health Build, for all those who are enabling
evolving beyond its original vocation actors and institutions today are food, tests of his own design. Sameer Sawar- access”: affordability, availability (of the environment required for health
– curing the sick – to embrace a more water, energy, pollution, access to care, kar is addressing the lack of health pro- care), awareness (of one’s health) and solutions. And finally Care, because,
hat is innovation in health today?” inclusive definition, both holistic and social inclusion and patient adhesion. fessionals in the Indian countryside by adherence (to treatments). although we can’t always cure, our
Confronted with this question, many preventative. Accordingly, we should remember this developing telemedicine call centers. Today, many institutions and cor- societies must work for the dignity
would respond: new miracle drugs, Health, in the 21st century, is not quote by the founder of the Charité Bruktawit Tigabu is animating series porations find inspiration in these and the autonomy of those in need.
robotic surgery or maybe gene therapy. defined by the struggle against a new hospital in Berlin,4 Rudolph Virchow: and radio shows in Ethiopia, raising pragmatic solutions, which all strive This book does not seek to be exhaus-
There is no denying that nanomedicine, virus but rather by the explosion of “if medicine is really to accomplish its great awareness on food hygiene education for positive social change. Launched tive – the list would be too long – but it
artificial intelligence and progress in chronic illnesses resulting from our task, it must intervene in political and among millions of children. Miguel in 2011, the Making More Health5 ini- will give you a new perspective on the
genetics open perspectives that are both lifestyles. Cancer, diabetes, cardio- social life. Medicine is a social science”. Neiva, in Portugal, has created a sym- tiative identifies, supports and scales groundwork of social entrepreneurs as
dizzying and exalting. The Hippocratic vascular and respiratory diseases now So what do innovations in health bolic language that lets the color-blind innovative entrepreneurial solutions they breathe inspiration into the field
Oath (4th century BC), the discovery of account for 63 % of deaths worldwide.2 look like? This book is built on the “read” the colors they can’t see. to global health challenges. Making of global health care. 
vaccines (1796), the first in-vitro ferti- Many of these non-communicable conviction that the answers to this These innovators and the others More Health (MMH) is a partnership 1. See Detlev Ganten’s interview, p. 84-85.
lization (1978), DNA sequencing (2003) diseases are more easily prevented than question are found scattered around that you will meet in this book have between Ashoka – the world’s leading 2. According to the World Health
– all these are certainly landmark medi- cured, and are linked in part to a global the planet and often go unnoticed by not necessarily attended medical network of social entrepreneurs – Organization.
cal discoveries during the eras in which aging population where life expectancy the medical community. In this book, school. Some of them have left high- and Boehringer Ingelheim – a global www.who.int/topics/chronic_diseases/fr/
they were made. But the history as well has risen from 52 to 72 years3 between you will meet fifty exceptional inno- paying jobs in order to accelerate social healthcare company. This book was 3. According to the World Bank’s online
as the future of health should not be 1960 and 2016. Thinking that this is a vators – social entrepreneurs, doctors, change. However, all are designing produced under the MMH partnership data.
confined to a series of milestones in “first world problem”, however, would be inventors, humanitarians, thinkers answers to their communities’ needs and many of the changemakers you 4. Founded in 1710 as a care home for
the field of medicine but should rather entirely incorrect. In India, the Philip- and everyday global citizens  – who by making prevention and treatment will discover here are supported by patients suffering from the plague, this hos-
encompass something broader and pines and Venezuela, chronic illnesses have developed new solutions to tackle simpler, cheaper and more accessible. this initiative, working at the intersec- pital has become an important teaching and
more systematic than individual events. are now responsible for more than 50 % the health challenges that face them They are extending the roles of health tion of the social and business sectors. research center with a humanistic calling.
Even the preamble of the World of deaths annually. In China and Egypt, and their communities. For example, providers, and bringing more trans- There are five major themes to this 5. See Manifesto, pages 134-138 and
Health Organization (WHO) Consti- this number exceeds 80  %. Further- Andrea Coleman and her NGO Riders parency to the patient’s journey. In book. Prevent, because faced with an makingmorehealth.org

4 HEALTH TOMORROW 5
CONTENTS 3. IMPROVE
070. Rey Faustineo
One Degree, “The Yelp
of Social Services”
078. Ansgar Jonietz
“What’s up, Doc?”

080. Vivek Gilani


084. Detlev Ganten
Much More Than Medicine

086. Uwe Diegel

INTRODUCTION
072. Hisham Kharma One Man’s Crusade Restoring
The Blood Donation Social for Ecology in India the Connection...
Network
082. Krishna
010. Bill Drayton 014. Auma Obama 074. Edith Elliott Udayakumar
The Founder of Social Entrepreneurship Yes, We Can! From Stanford to Indian Necessity is the Mother
Hospitals of Invention

1. PREVENT 4. BUILD
090. Tony Meloto 096. Flaviano Bianchini 102. Nicolas Métro
020. Bruktawit Tigabu 028. Krystian Fikert 036. Piyush Tewari The Plan to End Poverty Data Worth Back to the Trees!
Lifesaving Tales The Virtual Psychiatrist A Licence to Save Lives Its Weight in Gold
092. Andrea Coleman 104. Shona McDonald
022. Jordi Marti 030. Geneviève Moreau 038. Joël de Rosnay Health’s Angels 098. Dara Dotz Heal on Wheels
One Drop, Two Lives Nutrition for Better Health Being Human, Tomorrow Short Circuit
094. Philippe de Roux Emergency Response 106. Chai lo
024. Ellen Goodman 032. Martin Guzman The Shanty Town Water Springs for the People
The Talk Watching Out Dowser 100. Jan In’t Veld
for Venezuela Universal Eyecare 108. Bertin Nahum
026. Frank Hoffman Mister Robot
Cancer in the Dark

5. CARE
2. CURE 112. Andreas Heinecke
Take the Blind Test
118. Junto Ohki
Dialogue of the Deaf
124. Miguel Neiva
The Esperanto of Colors
042. Arthur Zang Volunteer Doctors 062. Kyriakos Souliotis 114. Bolewa Sabourin 120. Katherine Freund 126. Heidi Wang
Healing Africa’s Seek Patient Healthcare in Time The Man Who Makes Senior Transportation Guiding Through
Beating Heart of Crisis People Dance Dementia
054. Alain Carpentier 122. Bernadette
044. Michelle Lem Heart at Work 064. Éric Cheysson 116. Bindeshwar Pathak Rwegara 128. Mathieu Lehanneur
Emergency Veterinarians The Chain of Hope He Frees the Untou- This Is Your House Unidentified
056. Shamona Kandia chables with Toilets Therapeutical Object
048. Anil Patil Next Station: Hope
We Are All “Carers”
058. Sameer Sawarkar
050. Jos De Blok The Country Teledoctor

MANIFESTO
A Nurses Revolution
060. Francesca Fedeli
052. João Paulo Family Therapy
Nogueira Ribeiro
134. The Story of Making More Health 136. Hubertus von Baumbach
“We will continue to work at
the intersection of socially and
business-focused goals”
© CHRIS WILLAN PHOTOGRAPHY

INTRO
DUCTION
INTRODUCTION INTRODUCTION

BILL DRAYTON
The Founder of Social
Entrepreneurship

Bill Drayton has been a Civil Rights advocate, studied turies of immigrants have created a
powerful culture where you believe you
at Harvard, Yale and Oxford, worked for the United can be successful with what you start
States government at the Environmental Protection with. When I was a young student, I
Agency and driven from Germany to India took part in the Civil Rights move-
ment, which was inspired by Gandhi’s
in a minibus. Yet, he is best known for being nonviolent philosophy. It was a his-
the founder of Ashoka. Since the early eighties, toric moment, and that environment
his global organization has been focused on creating explains what I became, much more
than my degrees and everything else.
a movement where everyone can be a changemaker,
working for the social good of all. Ashoka has Can you tell us what you did after
that?
supported nearly 4,000 social entrepreneurs – called B. D.  : I graduated from Harvard, then
Ashoka Fellows – who address global issues in  Oxford, before studying law at Yale. It
health, environment, human rights, education, was a very special school, with a small
number of students and a philosophy of
civic commitment and economic development. understanding what the purpose of the
In this interview, Bill Drayton shares his insights law is, instead of learning whole texts
on the challenges and opportunities of social by heart. I had the opportunity to work “Our first job was
entrepreneurs for this century.
at McKinsey in New York on regulatory
and tax systems. A government expe-
to popularize social

E
rience followed. I worked at the EPA1 entrepreneurship. In order
under President Jimmy Carter where
we designed and implemented several
to do that, we needed
laws regulating toxic substances, hazar- to find the best social
veryone knows you as the founder
of Ashoka, but who is the man
dous waste, air and water pollution. entrepreneurs and let them
behind the movement? What triggered the creation of be role models, so as
B. D. : I
was privileged to grow up with Ashoka? to recruit others in
an immigrant mother from Australia, B. D.  : When Ronald Reagan followed
whose parents originally came from Jimmy Carter as President, I left the their wake.”
Bohemia. My father’s family had been government and received a fellowship
American for a long time. Since elemen- from the MacArthur foundation. The
tary school, I have always been fasci- fellowship allowed me to work full time
nated by the way human society works. on Ashoka. It was the late seventies. The
I loved history and geography, but can’t time had come for the citizen sector to
say as much for math! Growing up in be thoroughly revolutionized like com-
© DR

© DR

Manhattan was another gift. Four cen- merce had been in the 18th century: it

10 HEALTH TOMORROW 11
INTRODUCTION

“The whole model


where the doctor
controls everything
with his pills reminds
me of Henry Ford
on the assembly line.
The power is going
was starting to become conquering and B. D. : The old pattern was giving people population is disadvantaged, you can’t working in health must go through sible change happening right now in
modern. Our first job was to popularize from the doctors a skill which they would repeat for life, help them with their health. They are these kinds of changes if they want to the way we think. When I graduated
social entrepreneurship. In order to do to the patients, sitting in a cubicle. This has become going to be depressed, they are going remain in the game. from Harvard College, there were
that, we needed to find the best social
entrepreneurs and let them be role
their family, friends, fully dysfunctional today, despite
the fact that whole chunks of our
to be angry, some members may even
be affected by substance abuse. Instead, Is this why you launched the
1,200  people in my class, and eleven
thought about going into what we now
models, so as to recruit others in their neighbours…” society keep operating according to if you give them the ability to change Making More Health initiative call the citizen sector. Now, the biggest
wake. That is how our system of iden- this pattern. People must now mas- things, they become real changemakers with Boehringer Ingelheim? student group at Harvard Business
tifying and supporting Fellows2 came to ter different sets of skills, even pro- in the health field. B. D.  : Yes. It is a remarkable family- School goes there. Since 1980, the
be. We believed the time had come to then the next, like Thailand, Venezuela, foundly opposite skills, and organize owned company, upholding solid citizen sector has caught up. It is now
build a world where each of us could be Bangladesh, and so on. in fluid and open teams. The distinc- So we are moving towards more values, that has always cared about growing jobs at two and a half times the
a changemaker. tion between an organization’s staff, horizontal models? research and health. We have learned rate of other OECD sectors. And that
Today, Ashoka is present in almost inside, and the public, on the outside, B. D.  : The whole model where the a lot by working together. Boehringer doesn't even include the growing num-
You are speaking about a hundred countries. What is is nonsensical. Approximately 95% of doctor controls everything with his Ingelheim finds inspiration from social ber of people doing volunteer work.
the historical context in the USA, fundamentally different for social the Fellows who deal with children put pills reminds me of Henry Ford on entrepreneurs to rethink how to inno- Social entrepreneurs have incorpo-
but Ashoka was born in India. entrepreneurship? them in charge. The same revolution is the assembly line. Watson –  IBM’s vate and interact with its partners and rated the best aspects of business and
Why is that? B. D. : In 1980, an idea from Bangladesh going on in the environmental field or software  – is on the path to replacing employees. On our side, a large part of use them to improve the world and not
When I was 18, I purchased a
B. D.  : would not travel to Brazil or France. any other sector. Value creation needs 50 % of doctors. For a hundred dollars, our understanding of how to help com- for profit. In fact, social entrepreneurs
minivan with some of my friends in Now, with the Internet, everyone is to be shared between all actors, and it 23andMe –  a Californian startup  – panies comes from working with them. are in it for the good of all and dedicate
Munich, and we drove to India. This connected to others around the planet. increasingly is. offers to analyze your genome. Apps Together we can invest in the most pro- their lives to it. They have understood
amazing trip changed us. We met The key feature of our time is the expo- let you know what kind of nutrients mising changemakers in health. that if we want our societies to conti-
Bayard Rustin, a key figure in the Civil nential speed of change. The more it Since this is the subject of you need to protect against illnesses nue, we need to invent new ways to
Rights movement who had spent twelve affects the world, the stronger the need this book, what are like cancer. We are all in the process Changemakers are more numerous grow. Ashoka’s methodology helps them
years with Gandhi. He introduced us to for social entrepreneurs. To achieve the specific challenges that social of becoming health changemakers. today, but many people predict the work together to speed up the rate of
some wonderful people. When I foun- their goals and be successful, social entrepreneurs face in the field The power is going from the doctors collapse of our civilization under change in the world and succeed in
ded Ashoka in 1980, I already had this entrepreneurs can no longer apply an of health today? to the patients, their family, friends, the weight of its externalities. their initiatives.
interest for Gandhi’s Land. I did create old recipe. The world is changing at B. D. : Whatever field we are considering, neighbours. B. D.  : The environment is in a terrible By Côme Bastin
it with several Indian friends. Starting an accelerating speed, and they need a profound transformation of how we Research is going in the same direc- state, and I don’t understand the denial 1. United States Environmental Protection
in India increased our means of action to imagine solutions that are adapted think and operate has to happen. Four tion. In the big data era, compartmen- that is taking place, especially among Agency (EPA).
several times. We could support a social to where the world will be at twenty skills need to be taught from childhood talized research and development just politicians. I worry about the efficiency 2. Ashoka "Fellows" are identified through
entrepreneur for 2,500 dollars a year, years from now. Ashoka now has over through practice: cognitive empathy,3 doesn’t work. One of our Fellows based of governments. It is terrifying that we a rigorous selection process. These social
ten times less than in the United States. 3,600 Fellows. This allows us to predict teamwork, collaborative leadership and in Seattle, Stephen Friend, works to haven’t had competent global finan- entrepreneurs are changing systems for
Little by little, Ashoka expanded to the direction in which various domains the ability to be a changemaker. These push towards the sharing of data and cial regulations since the thirties. How the benefit of all and improving the lives of
other nations: Indonesia, Nigeria, Bra- are headed. are the skills of entrepreneurs and open collaboration in the field of health many trillions of dollars did we lose ins- millions of people.
zil… Our strategy was to start with the intrapreneurs, the skills of Changema- research. He succeeded in making seven tead of investing them in education? 3. The ability to understand and feel not
biggest country on each continent and How can someone be a kers. Every health organization has to universities pool their research in order I do think, though, that we are at a only someone else’s feelings, but also
then go to the next-sized countries, and changemaker in this new world? go through these changes. If part of the to generate better articles. Everyone tipping point, with deep and irrever- their thoughts.

12 HEALTH TOMORROW 13
INTRODUCTION

AUMA OBAMA
Yes, We Can!

Auma Obama didn’t wait for her last name zation. An important part of my work
at CARE was the establishment and
to be synonymous with global leadership to start coordination of the network “Sport for
changing the world. After completing her studies Social Change”. This initiative brought
in sociology in Germany, she returned together organizations from different
countries in East Africa, from Egypt
to her homeland, Kenya, where a passion and Bangladesh, all using sport to rein-
for humanitarian work led to the launch of the force positive social behavior among
the youth, girls in particular.
Sauti Kuu foundation. This sports-based, life skills
and career training organization is focused on Why did you leave this position to
education, counseling and the promotion of local create your own foundation?
A. O. : I moved back to Kenya because I
agriculture. The foundation works towards giving knew that I needed to give back to my
children and youth a voice and allowing them community. Before I started my foun-
to be part of the decision-making process to improve dation, I did not feel that the work I
was doing was really effective, because
their lives. Auma Obama is helping to build a new, it was not sustainable. We were donor
“Thanks to self-confident Africa. driven, constantly chasing after funds,

T
the World Wide Web, because if they dried up, the work stop-
ped. We were not driven by the impact
today, on the African we had on our beneficiaries. I wanted
continent, we have access to to develop a model that focused on the
children and youth we worked with; a
as much knowledge ell us about your life before model that worked holistically and for
as the rest of the world. the creation of the Sauti Kuu
foundation?
the long term, enabling children and
young people to take responsibility
This means that A. O. : I was born in Kenya and grew up for their lives, with a focus on moving
opportunities are there. I studied in Germany and com- them away from poverty and helping
pleted my master’s degree at the Hei- them become responsible, financially
unlimited for us.” delberg University and my doctorate at independent and stable young adults. I
the University of Bayreuth. Parallel to am very proud that Sauti Kuu is uphol-
that, I studied at the Berlin Film and ding these values.
Television Academy. I lived and worked
in Germany for several years before What kind of project are you
moving to England, where I worked in putting forward?
the Children’s Services. I then returned A. O.  : Sauti Kuu works to enable disad-
© SAUTI KUU

home to Kenya to work for CARE Inter- vantaged children and young people,
national, an international aid organi- particularly in the rural areas and

14 HEALTH TOMORROW 15
INTRODUCTION INTRODUCTION

“The West must


start speaking to us
as equals. It should
no longer feel
obligated to give us
fish, nor teach us
urban slums in Kenya, to recognize and address real challenges. In close
their potential and the power of using how to fish. and active collaboration with benefi-
their voice (Hence Sauti Kuu, meaning The West must ask ciaries, the program must address the
“Powerful Voices” in Kiswahili). To reco-
gnize the power of one’s own voice also
us whether or not realities they face, and not, in the case
of Africa, a Western pre-conception of
means to become aware of, and appre- we eat fish!” it. Most importantly, the project must
ciate, one’s self. This leads to taking a be holistic and embrace a socio-eco-
stand and actively participating in what nomic approach to the situation. As
happens with one’s life. One is no longer nous crops, vegetables and food, to a result, the beneficiaries will enjoy a
a passive victim waiting for someone improve nutrition and food security. better standard of living in harmony
from outside to save them. with each other, but also in harmony
Currently the foundation is buil- What is your perception of with the environment.
ding a sports, resources and vocational relationships between Western
center that will implement Sauti Kuu’s countries and Africa? What advice would you give
three-key program in Western Kenya: A. O.  : Thanks
to the World Wide Web, to someone willing to get
Personality Development, as well as today, on the African continent, we involved in improving the health
Character Building, Education and Trai- have access to as much knowledge as of tomorrow?
ning and Sustainable Economic Growth. the rest of the world. This means that A. O. : Do not destroy your planet with
There, we will provide children and opportunities are unlimited for us. We chemicals and pesticides. Preserve it
youth with a physical and mental space, just have to grab them. The West must for yourself and future generations.
where they will be able to train, learn, start speaking to us as equals. It should And, where possible, grow your own
fulfill their potential. Within these no longer feel obligated to give us fish, food – organically.
facilities they will be able to develop nor teach us how to fish. The West
their social and technical skills through must ask us whether or not we eat fish! Where did you find the inspiration
sports, vocational training and income This is when real conversation starts to improve the life of others?
generating activities. and domination stops. A. O. : Many different people from very
different walks of life give me inspira-
How do Sauti Kuu’s actions relate In your opinion, what are tion and have played a key part in hel-
to the issue of health? the characteristics of a project ping me realize my vision and do my
A. O.  : The Sauti Kuu foundation works striving for more equality work. They are not necessarily “famous”
to develop an awareness about healthy in this world? or “personalities” in the conventional
living in rural children, young people A. O.  : A project that will enable all to way, but they all are stars! There are
and their families by creating an awar- access healthcare, quality education also, among others, children, including
eness about the value of the land, and and a good standard of living must my own daughter.
© DR

about the cultivation of local indige- ensure that these activities recognize By Fleur Weinberg

16 HEALTH TOMORROW 17
© CHRIS WILLAN PHOTOGRAPHY

CHAPTER 1

PREVENT
1 | PREVENT
“At first it was
just the two of
us in 2005 doing
every single aspect

C
ould you introduce
of the production
yourself? by ourselves.” What are some challenges
My name is
B. T.  : that you are currently facing?
Brukty Tigabu, and I B. T. : We have to educate the public on
am a wife, a mother productions, airing on both networks. the value of educational media such
and the CEO of my In 2010, I won the Rolex Award for this as books, videos and games. We are
own children educational media com- enterprise. constantly searching for ways and
pany. I studied at Kotebe Teacher’s means to get funding to keep our pro-
College and taught school for three Tell us about an episode ductions going and get our much needed
years. During that time as a teacher, I of Tsehai Loves Learning? content out to the millions who need it.
wanted to find a way to reach millions B. T.  : We created an episode about Also, we are committed to improving
of children with quality education and handwashing. Tsehai and her little bro- the marketing and distribution of our
make an impact in their lives. ther, Fikir, finished playing and rush products to move us in the direction
to eat their lunch, cooked by their dad. of becoming financially self-sustaining.
Why did you create Whiz Kids Dad tells them to wash their hands pro- Another challenge is finding quality
Workshop? perly. Tsehai and Fikir rush again and media professionals who share the same
B. T.  : Ethiopian kids face a lot of diffi- don’t use soap. We then introduce the passion that we do for improving the
culties: poverty, disease, poor nutrition, rudimentary concepts of what germs lives of children and youth.
limited access to quality education, har- are, how they make us sick and how
mful traditional beliefs, etc. My hus- handwashing with soap is the solution Do you think it is possible
band and I created Whiz Kids Workshop to stop germs dead in their tracks. to apply your method
together because we saw millions of in other countries?
preschool-age children across Ethio- How did you produce all B. T. : Most African countries face simi-
pia lacking the necessary readiness to these TV series? lar challenges. Culturally appropriate
enter school with the chance of succee- B. T.  : At first, it was just the two of educational programs that are created
ding. We also learned that, in Ethiopia, us in 2005 doing every single aspect on the continent are needed eve-
around 300,000 children under the of the production by ourselves: wri- rywhere. First, we want to continue our
age of 5 annually die from preventable ting the script, composing the music, success by scaling up all our programs
diseases: pneumonia, diarrhea, malaria, making the puppets, filming in our nationwide. In the last few years, we
measles and malnutrition. These child- living-room, editing, etc. Once we began adapting some of our videos and
ren deaths are mostly the result of one started broad­casting on national TV books to specific regions, languages and
thing – health illiteracy. We used exis- and demonstrated the learning outco- cultures. Then we will be able to repli-
ting research on mass-media education mes, we began attracting support from cate our methods across the African
– radio, print and cell phones – to put donors. We are currently supported by continent and ultimately all around the
that belief into practice. USAID Ethiopia, running a five-year world, wherever it is needed.

BRUKTAWIT TIGABU What kind of content do you


broadcast?
project under Tsehai Loves Learning.

What has been the impact


What are your plans
for the future?
Lifesaving Tales B. T. : Whiz Kids Workshop has produced
four television series that engage, ins-
of your work?
We brought this basic health
B. T.  :
B. T.  : One of our latest innovations is
Tibeb Girls, an animation and comic
pire and empower Ethiopian children: information to millions of kids book series featuring three teenage
What better way is there to catch the attention of a child than cartoons? Tibeb Girls, Involve Me, Little Investiga- nationwide. We see that children who girls acting as agents of change. Sadly,
tors, and its flagship series, our first watch our program not only have fun, one fifth of Ethiopian girls still marry
In Ethiopia, Bruktawit Tigabu has used cartoons to raise awareness ever children education show, Tsehai but also gain precious knowledge from before age 15, one third of girls don’t
amongst young viewers on the topics of hygiene, nutrition and education. Loves Learning. Tsehai Loves Learning it that in some cases can actually save go to school, one third of girls can’t
targets children ages 3-8 and currently their lives. A randomized controlled read, and two thirds of girls believe
Today, millions passionately follow the animated series and radio shows produced broadcasts on the Ethiopian television trial of children’s learning from the that wife-beating is justified. Using the
by Whiz Kids Workshop – the social business Bruktawit founded. and the Amhara Mass Media broadcas- Tsehai Loves Learning Healthy Whiz TV series and comic books, Tibeb Girls
ting channel every Saturday, reaching Kids program found that children’s will bravely seek to foster much needed
up to five million viewers, and another health knowledge doubled after expo- conversations about previously uns-
© DR

whizkidsworkshop.com ten million listeners through our radio sure to the television episodes. poken taboos. By Fleur Weinberg

20 HEALTH TOMORROW 21
1 | PREVENT 4. CARE

JORDI MARTI
One Drop, Two Lives
With his organization DBS Screening, Jordi Marti – a Spanish researcher –
is developing revolutionary methods to diagnose diseases like diabetes before it is
too late. Using needleless blood tests, low-cost genetic tests and telediagnostics,
DBS Screening’s business model ensures that for every test carried out in developed
countries, the same life-saving tests are made available in under-resourced regions.

1drop2lives.org

“When you go

Y
to the doctor, or if
ou often speak of
silent assassins,
an intensive care unit in Barcelona. All
the patients repeated: “Had known ear-
loses all its characteristics and it is no
longer possible to analyze it. AIDS, for
a pharmaceutical
what are you lier, I would have changed a lot of things example, dies after one hour. But when company sells
referring to?
J. M. : They are all the
in my life”. In 2008, I read in the news-
paper that 40 % of the people who die of
blood dries on paper, it keeps its pro-
perties. The sample can even be sent
its products
diseases that have cardiovascular disease could have been by mail and then used to detect a great too well, it means
no symptoms until it is too late. When saved if their level of cholesterol had number of diseases. All of this cuts the that the system Therefore the richest finance Is prevention to be
diabetes becomes noticeable with cir- been controlled during childhood. Later cost of a test by ten.
culatory problems, you may already on, when we were vaccinated before of prevention the poorest? further developed
be blind. When kidney disease occurs leaving for South Africa, my 8-year-old That seems easy. Why doesn’t has failed.” J. M.  : Yes. We call this method “one in the 21st century?
with blood in the toilet, you will have son started crying when he saw the everyone use this technique? drop for two lives”. We have thus tested J. M.  : When you go to the doctor, or
to live on dialysis. However, ten years needles. I slowly realized that making With one single drop of blood,
J. M.  : 10,000 students in Madrid, Spain. if a pharmaceutical company sells
earlier, these diseases could be pain- people who believe themselves to be only three or four parameters can be Where has this solution been With the funds received, we bought its products too well, it means that
lessly prevented. It is enough to walk a in perfect health take blood or genetic tested. In developed countries, it is tested so far? backpacks containing solar panels, a the system of prevention has failed.
bit more, drink more water or eat more tests is not that simple. A new method often preferred to take more blood J. M. : We first worked with the Brazilian computer and blood test instruments Sadly, some organizations still prefer
healthy foods to drastically diminish was needed. and keep it refrigerated in a tube. And government two years ago, with 84,000 for the jungles of Guatemala. It is all to sell medicine rather than preven-
the probability of being affected by dia- it is indeed better to detect diseases pregnant women in the favelas of Rio. connected to a doctor capable of doing ting diseases over time. I nonetheless
betes. Each year, according to UNICEF, And so you imagined your from A to Z. But in many Southern We worked with a federal laboratory to a telediagnostic, like a sort of mobile believe that there is a growing awar-
7.1  million people die from hyperten- needleless blood test. countries, adequate equipment for the train the local staff and open laborato- hospital. We now want to do low-cost eness of the fact that prevention,
sion, 4.4 million from high cholesterol, J. M.  : What can a sample be easily cold chain is not available. 90 % of the ries. 4,000 pregnant women tested posi- genetic testing. That has never been as as well as the promotion of healthy
2.6  million from obesity, 1.5  million obtained from? Blood. We have there­ population lives far from a hospital or tive in our tests. It is very important: easy as testing lactose intolerance. On habits, can save a countless number of
from diabetes. Sadly, in developing fore developed, with Dr. Juan Fidel dispensary. Also, getting pricked by a when the mother has AIDS, the child has our platform,2 for 25 euros, you receive lives. We hope to develop partnerships
countries, the authorities concentrate Bencomo, a lancet that can take a drop needle isn’t sexy, so it is rare that the a 98 % chance of escaping it if detected a kit to collect your saliva, you send it with major groups that will finance
on transmissible infectious diseases of blood from the finger in a totally population would decide to do it wit- in time. Thanks to the program Making in, and we run the test. For each test, we our laboratories.
like malaria. painless way. The blood is then preser- hout an apparent reason. We won an More Health, we then made a campaign distribute forty glasses of milk in coun- By Côme Bastin
ved on a piece of paper. Several pro- award from Singularity University,1 to test cholesterol and glucose levels of tries in difficulty like Syria. This solida- 1. A California innovation center seeking
How did you come to be interested blems are thus resolved. No need for a but it isn’t because our solution is the the employees of Boehringer Ingelheim, rity mechanism allows us to incite even “to apply exponential technologies to
in the issue of prevention? punctured vein or specialized person- most elaborate. It is rather because it in Sao Paulo and Manilla. For every test more people to take the plunge. Our address humanity’s grand challenges.”
J. M.  : I have training in chemical nel. No need for a refrigerated environ- is simple and can change the lives of taken, another was given for free in the goal is to distribute 600,000 glasses by 2. Go to http ://dbs-screening.org to take
© DR

engineering and I had been assigned to ment either. When blood coagulates, it millions of people. shanty towns and favelas. Christmas 2017. the test.

22 HEALTH TOMORROW 23
1 | PREVENT

“90% of Americans
agree that it is
important to have a
conversation about
this subject [...].
However, only
30% have had this
conversation.”

T
o talk about the the therapies she wanted to continue How do medical teams react
end of the life of or interrupt. I was convinced that phy- to your approach?
a loved one is also sicians would decide everything. But E. G. : They react very well. They are even
to talk about their to my big surprise, I was the one who the first to support our approach. On the
death. How can had to face this flood of decisions! With one hand, they know that having this
one overcome the my mother, we had always talked about conversation helps to handle the end
reluctance to address this issue? everything, except for this one ques- of the life of a loved one. On the other
E. G.  : There is indeed a taboo about tion. It mesmerized me. I quickly rea- hand, physicians often end up having to
death. But knowing how a loved one lized that I wasn’t the only one going push it upon patients and families at the
wants to live the end of his or her life is through this and I started devising last moment. Incidentally, they tend to
a different thing and I think it is impor- something to change it. make our kits available in their hospital
tant to emphasize that. We have to or practice. Religious communities also
acknowledge what happens in our ever What tools have you created to welcomed our approach very positively
more technological societies. The good help with this conversation? and take part in the dissemination of
news is that we live longer and longer E. G. : The first tool we devised was our our tools, because the end of life is not
and push the boundaries of death. The “Conversation Starter Kit”. Today, this just a medical question. Believers often
bad news is that with the last days also dialogue tool is available in ten lan- turn to faith leaders when their time is
comes a series of hard choices. We did a guages and has been used by close to near. This is why we have set up many
survey that shows that 90 % of Ameri- one million people. It remains relevant discussion groups with priests, imams
cans agree that it is important to have for all those who need a framework to and rabbis.
a conversation about this subject. It initiate the conversation. After this
is a significant number, especially in tool, we developed others with the Do treatments work better thanks

ELLEN GOODMAN the United States, where Americans


never agree on anything, including the
national anthem. However, only 30 %
constant goal of better preparing the
end of one’s life and tackling more spe-
cific situations. In particular, we have
to this conversation?
E. G.  : That is not really the goal. What
matters is that people get what they
The Talk have had this conversation. We quickly
understood that they needed help to
a guide to talk to your doctor, ano-
ther one for families with seriously ill
want, rather than not having a say. It is
mostly the relatives that benefit from
take the first step. This is the goal of kids, or families of people with Alzhei- it. Physicians tell us that much: families
After having stayed by her mother’s side until her last moments, The Conversation Project. mer’s disease. Our latest guide was a are frequently torn apart because of the
huge success. It helps you determine choices they have to make in that critical
the American journalist Ellen Goodman realized to what extent the end You are such a renowned who will be the health care proxy for moment. They wonder if they made the
of life discussion is a taboo subject for her fellow Americans. In 2010, journalist, why did you move from a dying person. You might not realize right decision. When the conversation
journalism to this project? this, but in the United States, half of takes place beforehand, it reduces the
she launched The Conversation Project, a series of guides and tools for talking E. G.  : I went through this situation the hospitalized patients over 65 years risk of depression, guilt and doubt. The
with loved ones about the necessary choices in that painful moment. with my mother. Her health and awar- of age can no longer make their own patient states his or her last wishes and
eness were seriously declining. She was decisions. So it is really important that the loved ones can only respect them. It
not in a capacity to make a conscious everyone chooses somebody they trust makes a lot of things easier.
© DR

theconversationproject.org choice anymore, in particular about before the question comes up. By Perrine Massy

24 HEALTH TOMORROW 25
1 | PREVENT

FRANK HOFFMAN way to grow, this has become a reality.


We have managed to set up our first
franchise in Austria, with Syncon2 and
Cancer in the Dark SINN-STIFTER,3 and we now benefit
from an international reach. We have
already trained the first MTE in Colum-
To detect breast cancer, palpation is often the first step. bia, in cooperation with the CAF (Deve-
lopment Bank of Latin America) and
This German doctor realized that by entrusting this exam to the visually impaired, Mexico will be the next state to support
one can leverage their exceptional sense of touch. More precise and less the initiative. Another pilot project has
expensive, their diagnoses allow early intervention to stop the evolution started in India, financed by the CSR
funds of a major pharmaceutical com-
of this illness, which kills more than 500,000 women each year.1 pany. I am convinced that
Discovering Hands can have
a wider social impact in “For every
discovering-hands.de/en/ developing countries, where
insurance systems are not
examination
always trustworthy and conducted by
access to treatment is some- Discovering Hands,

W
times difficult.
the MTE spends
hat was the
starting
How did Discovering Hands
start?
evolve into a metastasis, thus lesse- What is your financial
strategy?
30 to 50 minutes
ning the patient’s chances of survival.
point of the F. H. : When I had the idea of Discovering Honestly, I believe the usual physical F. H.  : To guide themselves using their highly
Discovering Hands, I started developing a program examination is not viable, because we and to examine the breast developed sense
Hands project? from 2006 to 2008, in cooperation with lack time during the observation. For in its entirety, the MTE
F. H. : I have been the BFW (a vocational training center every examination conducted by Dis- use copyrighted orienta- of touch. It makes
a gynecologist since 1993. In my prac- for the visually impaired) in Düren. covering Hands, the MTE spends thirty tion tapes. Each screening a big difference.”
tice, in Duisberg (Germany), I have After two years of work, we were able to to fifty minutes using their highly brings in additional funds
always focused on early detection offer them quality instruction. Initially, developed sense of touch. It makes a to our company, since the
of breast cancer. I wanted to make it it was just a test to know if they could big difference. tapes are sold by Discovering Hands. It is
more efficient, I was convinced that be taught to become Medical Tactile one of the strengths of our model. Since
the examination I did on my patients Examiners (MTE) in nine months. After How effective is this technique? 2016, we have created our own training
wasn’t optimal. The threat is not the the success of the operation, we opened F. H.  : Essen University completed center, Discovering Hands Academy, in
tumor, but the cells that metastasize other training centers in Germany. At research in 2008. They discovered that Berlin, and we have become a profes-
throughout the body and affect the the end of 2010, we had four centers: our MTE, thanks to the quality of their sional integration company, because
bones, the lungs, the liver or even Halle, Nuremberg, Düren and Mainz ! senses, can find tumors inside the we hire the visually impaired examiners
the brain. Detecting and treating the breast as tiny as six to eight millime- that we train. They can also practice in
tumor before it metastasizes conside- What does this method have ters, versus one to two centimeters for medical offices or clinics. Thanks to this
rably improves the chances of survival. that the traditional examination doctors. It is very important, because academy, we can recruit more and more
doesn’t? a tumor that is a few millimeters in MTE and provide them with a better
How can medical examination for F. H.  : Early detection of breast cancer size hasn’t sent its cells throughout social security. I hope that in ten years,
breast cancer be improved? relies on three steps: physical exa- the body yet. The special skills of the they will be associated with breast can-
F. H. : The best way to improve the tac- mination, echography and radiology visually impaired examiners are a gift cer detection in the same way a midwife
tile examination for breast cancer is to (mammography). Our objective wasn’t for women affected by this pathology. is with birth.
spend more time on it than the usual to replace one of them, but to opti- They save lives. By Charlotte Sarrola
three minutes, and to hire people with mize the physical examination. It is 1. According to the American Cancer Society.
a highly developed sense of touch. the first stone in a string of diagnoses. Have you started to expand your 2. Austrian agency specialized in the deve-
When I came to that conclusion, I If the doctor has no suspicion at this project? lopment of franchises.
figured it would be the ideal work for stage, he won’t take additional action F. H.  : Thanks to the Ashoka Globalizer 3. Group of Austrian philanthropic
© DR

visually impaired individuals. and a neglected tumor might then program, which determines the best foundations.

26 HEALTH TOMORROW
1 | PREVENT

service while remaining defend multiculturalism in Ireland, tion of MyMind quite favorably, and
financially viable? notably because we propose our ser- we have received the support of several
K. F.  : Actually, our project has come vices in ten languages and give support political leaders.
to fill a gap between the public and to ethnic minorities. We do all we can
the private sector. MyMind’s social to offer individuals the means to get What challenges do you face?
enterprise model is innovative and past the difficulties in their path. K. F. : MyMind has a strong potential for
transparent. We apply a price scale to growth and we must respond to ever
our services: people with a full-time How do you collaborate with other more numerous demands. We not only
job pay the highest fees. The income mental health actors? have to enlarge our existing centers,
generated by these sessions allows us K. F.  : Today, we enjoy a commercial but also open others to become profi-
to offer lower fees to the unemployed, footing and a good reputation with table. We intend to expand our Inter-
the retired people and the students. regards to mental health in Ireland. net services and to reinforce our team
As our organization grows and helps It is important to attach ourselves to by hiring psychologists and attracting
more clients, we are getting close to a existing care services. Wherever we volunteers. However, even if online
balance in the budget. may open centers, we have to establish therapies are in full development,
solid relations with the authorities and people remain apprehensive of this
In what way is access to the professionals. Furthermore, the method in Ireland. In the coming years,
psychological and psychiatic care Irish government has taken the crea- we would like for views to change and
unsatisfactory? for more research and financing in this
K. F.  : Mental health problems are sector. We want to prove that MyMind
among the main causes of illness and “Within 72 hours is effective, in terms of social impact

KRYSTIAN FIKERT handicap in the world. According to


the WHO, one in four people will suffer
from them at some point in their life.
and in several
languages, these
as well as value. Our model is quite
flexible and could easily be reproduced
in other countries.
The Virtual Psychiatrist In Ireland, one in five people will suffer
from depression, and still the health consultations By Perrine Massy

system hasn’t changed. The allotted by videoconference


To fight against the poor handling of mental health issues in Ireland, budget is insufficient and reserved for
extreme cases. As a consequence, an
allow us to reach
Krystian Fikert launched the online counselling service MyMind in 2006. individual with slight to moderate psy- a maximum number
Thanks to fees adapted to the patient’s income and a network chiatric troubles has difficulty acces-
sing professional help. It is nonetheless
of beneficiaries.”
of multilingual counselors, his social enterprise makes psychiatric services vital to intervene as early as possible if
widely accessible, with more than 62,000 sessions conducted to date. we want to avoid much more serious In addition to on-site psychiatric
consultations, MyMind offers
pathologies. From an economic pers-
consultations online.
pective, the European Union estimates
mymind.org the cost of untreated mental illness
in its members states o be between 3
and 4 % of GDP. Tackling depression,
anxiety or stress reduces the suicide

H
rate and the number of hospitaliza-
tions. It is a way of saving public money
ow does MyMind all. To achieve this, our organization reach a maximum number of beneficia- and increasing productivity.
work to address bypasses the classical care pathway, ries. Technology is central to our social
mental health reducing waiting lists and bringing enterprise. It is what enables us to eli- How do we fight societies'
issues? down high consultation fees. We have minate obstacles such as time, distance prejudices to mental health
K. F.  : In Ireland, the four clinics in the country. But in addi- and cost. Today, thanks to MyMind, challenges?
handling of people tion to physical appointments, we offer 62,000 sessions have been provided to MyMind normalizes psychiatric care
suffering from mental health issues online appointments. Within 72 hours those in need. and reduces the stigma around it. We
is insufficient. I launched MyMind in and in several languages, these consul- help with the integration of those
© DR

2006 to make psychiatry accessible to tations by videoconference allow us to How can you provide an affordable suffering from mental problems and

28 HEALTH TOMORROW 29
1 | PREVENT 2 | MAKE

GENEVIÈVE MOREAU gent Nutrition, for the professionals


who trained at the Institute.
Among the laureates: the Pasteur
Nutrition for Better Health clinic in Toulouse, which SIIN helped to
gain a “sustainable nutritional health”
certification. The specifications state
As a general practitioner, Geneviève Moreau became increasingly interested in that meals must include foods with
well-known nutritional properties. To
the impact that nutrition had on her patients. In 2009, she launched the Scientific achieve that goal, the establishment
Institute for Intelligent Nutrition (SIIN). Her organisation fights converted some of the nearby fields to
to raise awareness for the link between diet, good health and the environment. organic agriculture. People in rehabili-
tation programs are employed to farm
them. SIIN also works in French terri-
tories overseas, as well as in Belgium,
siin-nutrition.com Switzerland and Portugal. “A pharma-
cist has even taken our movement to the
United States,” rejoices Geneviève.

SUPERMARKETS AND THE

A
FOOD-PROCESSING INDUSTRY
Sadly, the public “has gotten used to
general practi- the University of Burgundy. During also plays an advisory role for the Bel- quickly eating food almost entirely devoid
tioner for years, this time, she met Olivier Coudron, a gium Senate and many political groups. of nutritional properties”. If malnutrition
Geneviève Moreau nutrition health professor. Together For example, the College provided infor- is still rampant in many poor countries,
is now a nutrition they launched the Scientific Institute mation during a vote on legislation on rich countries need to make sure they
specialist. Between for Intelligent Nutrition (SIIN) with one trans fats. Much of the advice provi- don’t fall victim to “proteinic undernu-
these two expe- clear objective: to promote a sustai- ded by the College is aligned with the trition”. “We think our diet is balanced
riences lies the story of a growing awar- nable diet that respects our body, our guidelines and values of SIIN. “In this but we are wrong. Most of the products
eness of the importance of nutrition, health and our planet. “What we eat College, we have a center dedicated to the in supermarkets are not good for health.”
which started with her son’s food aller- affects our well-being and can prevent food-processing industry which recently Hence the importance of training pro-
gies. “When he was 2, I realized that our a lot of illnesses,” explains Geneviève. helped a manufacturer develop a soup,” fessionals to be local ambassadors,
first medicine was what we eat, and I had Without replacing medication, food explains Geneviève Moreau. “This com- through talks in city halls, schools and
studied medicine,” Geneviève admits. “In can indeed facilitate a treatment’s pany wanted their product to have a real sports centers. “Our daily work is B2B
a normal university curriculum, nutrition success. “In the case of a cancer and in nutritional and environmental impact, (business to business), but the end result
is covered over only eight hours, when diet conjunction with anti-cancer drugs, che- so we audited their recipe.” Sometimes, is B2C (business to customer). The public
is at the core of everything else.” In her motherapy or radiotherapy, intelligent the College intervenes in deliberations. need to think: my diet impacts my health
practice, Geneviève gave nutrition an nutrition can help heal and prevent recur- Geneviève shares one case where a and my environment.” Geneviève still
increasingly central place in the treat- rence. The same goes for cardiac illness manufacturer wanted to produce “nutri- needs to work with supermarkets so
ment of common pathologies. “For ins- and diabetes, which can be alleviated by tion health” bread, but opposed SIIN’s that “people don’t need a master’s degree
tance, instead of always prescribing an an appropriate diet.” recommendations. “We called upon to read the labels and tell the good products “What we eat
anti­hypertensive, I looked for the causes of researchers studying cereal grains to give from the bad”. At SIIN, the work is trans- affects our well-being
WHITE PAPER AND
the hypertension and lowered it by adjus-
ting the diet.” Her patients noticed an COLLEGIAL PRACTICE
more weight to our audit.”
SIIN, a fully independent scienti-
versal, from pitchfork to fork, with far-
mers, doctors, pharmacists and other
and can prevent a lot
improvement in their health and qua- To give credibility to their fight, both fic organization, provides training to members of the healthcare community. of illnesses.”
lity of life. However, when they went doctors have written a white paper accelerate the transition to sustainable To go further, the Institute is focusing
shopping or to a restaurant, they risked on “sustainable nutrition health” and nutrition. “We are training people in on the food-processing industry. Gene-
reverting back to their old habits. created the International College for the middle of the chain, those who feed viève considers that “industrial groups
That is why Geneviève decided to Intelligent Nutrition. This allows them us, such as private restaurant owners or now have enough technical knowledge and
get additional training in nutrition. to have their work vetted by resear- dining services: clinics, retirement homes, historical perspective to make the change
Travelling to Dijon (France) Geneviève chers, professors and nutritionists from schools or companies.” The two doctors to more sustainable practices”. 
© DR

earned a degree in Micronutrition at various European countries. The College also created a European label, Intelli- By Fleur Weinberg

30 HEALTH TOMORROW
1 | PREVENT

MARTIN GUZMAN
Watching Out for Venezuela
When they are not identified early, vision problems can have dire medical
and scholastic consequences for children. To avoid this, Martin Guzman
is training teachers in Venezuela to test the vision of their students yearly,
with the help of a vision kit. The objective of his project – Lumen –
is to invite every citizen to become an actor for change.

proyectolumen.org

W
hat is Lumen? zuela. We have gone into 25 schools
Lumen is a
M. G.  :
“Developing people’s and have trained 424 teachers, who
communi­ty social skills and spirit of are now certified Lumen representa-
program whose
objective is to
initiative is tives. We also work with civil organiza-
tions such as Fé y Alegria. This Jesuit
train teachers, in essential if we want network, deeply implanted in Latin
order to make them front line influen-
cers in the fight against visual impair-
to grow socially.” America, oversees 175 establishments
and over 200,000 children.
ment. By nature, teachers are actors
of change, but they don’t necessarily gressive: it is thus imperative to follow How does Lumen fit within
know it and they feel powerless. So we the children throughout their time at the Venezuelan healthcare system?
chose to put them at the heart of our school. The next step – one of the cen- M. G.  : Our healthcare system is very
project, to re-establish the role of pre- tral parts of the project – is the visual dependent on the welfare state and
ceptor that they once had in communi- health roundtable. All the teachers meet puts the emphasis more on disease
ties. By having an impact on teachers, to go over the needs of their students than prevention. It was this situation
we can impact the whole of society. We and then bring the information to the that pushed me to create Lumen. We
also involve universities, medical and local government. We teach them to be offer a different approach: we don’t see
optometry schools to create a network actors in the situation, to go negotiate health as a problem but rather as an
capable of taking care of vision pro- with the authorities and the private sec- equilibrium to maintain.
blems in the long term. tor. Be they public citizens or high offi-
cials, Venezuelans often confuse charity Why did you choose to take
How do you train these teachers and social development, while they are on vision problems as a matter
to detect ophthalmological two very different things. With Lumen of priority?
pathologies in children? we want to address a societal problem. M. G.  : Sight is the principal sense that
M. G. : Eachteacher first receives a kit. It we use in our interactions. Humans can
is made up of an optical chart that we How did you succeed in involving even be defined as visual beings. But
developed and a brochure with all the teachers? visual impairment is just a technical
necessary information. With this kit, it M. G.  : Since we started in November aspect of our project. We have a larger
is possible to renew the detection pro- 2012, we have worked with 15 com- objective: we encourage people to par-
© DR

cess each year. Vision problems are pro- munities, in 7 of the 22 states of Vene- ticipate and organize themselves to put

32 HEALTH TOMORROW 33
1 | PREVENT

“Xoxoxo
xoxoxoxooxo
xoxoxoxo
xoxoxoxo
xoxoxox.”
The kit distributed by Lumen allows teachers
to test the vision of their students.

their problems on the table, analyze chers use the roundtable methodology What future do you see for Lumen, vision of their students throughout
them and find solutions that involve all to resolve other challenges, such as now that Venezuela is in a violent their time at school. I would like our
“My wish is for Lumen the actors of society. I did a doctorate universal water access or the struggle political crisis? method to give birth to other public
to become systematic, that every in Health Management and developed
this concept, which became the basis
against domestic violence. Sometimes
it is enough to identify the difficulty,
M. G. : The situation was already compli-
cated when we were getting started. So
policies, not only to prevent vision pro-
blems, but also to bring up the challen-
teacher would master of Lumen, in my dissertation. Today, it then go speak with the authorities. it is proof that with a little willpower ges with which we are confronted.
the kit and test the vision is more than an idea: it has become a
method.
Developing people’s skills and spi-
rit of initiative is essential if we want
nothing is impossible! Lumen will go on,
because a whole generation has made
Maybe the project will even be deve-
loped in neighbouring countries.
of their students throughout to grow socially. They must be able to it their own. I am 53, and I meet young By Perrine Massy
their time at school.” So it is possible to apply Lumen’s take their problems in hand without people around 20 years old who are
© DIANA VILERA

method to areas other than waiting for someone to come and solve heavily involved. My wish is for Lumen
visual health? them in their place. The solution lies in to become systematic, that every tea-
M. G.  : Of course. We observe that tea- this cultural change. cher would master the kit and test the

34 HEALTH TOMORROW 35
1 | PREVENT 2 | MAKE

PIYUSH TEWARI by a car. He was lying on the ground,


but no help came. At the time, I was
the Indian CEO of an American capi-
Texte courant

A Licence to Save Lives tal investment fund. My career was


quite fulfilling, but I decided to dedi-
cate myself full-time to road safety. I
After his cousin died in a car accident, Piyush Temari decided to leave a high- realized with fright that little had been
done to fight against this public health
level position to launch The SaveLife Foundation. First-aid training, legislative problem which has killed one million
advocacy, licensing reform: Piyush’s foundation works on all fronts to improve road people in India in the last ten years.
safety in India, where two million new vehicles are on the road every year. You are based in New Delhi,
the capital. But what is
it like in other cities and,
savelifefoundation.org more importantly,
in the countryside?
P. T. : We are now present in five states,
and are working on five more for next

W
year. Delhi has the largest number of
deaths on the road compared to other
hy is road it evolve by being an example and by and more attention will be given to Indian cities. In recent years, this figure
safety in India getting the necessary measures started. the most vulnerable populations. The has been reduced by 20 %. We hope
a problem? public administration has also recently that our action will contribute to the
P. T.  : In Delhi, How do the training sessions guaranteed the defense of “good Sama- same results in all megalopolises. In
where I live, unfold and what do you teach ritans”. Concretely, a set of directives the countryside, the problem is that
around 400,000 volunteers? were approved to avoid legal troubles there is no infrastructure for crossing
additional vehicles hit the road every P. T.  : We have two programs. One for people who help the wounded. Both the highways that are near the vil-
year. That number is 2 million on a teaches the basics for saving lives: of these bills were supported in India lages. Many farmers die while trying to
national scale. However, neither road controlling bleeding, CPR or immo- by the SaveLife Foundation. cross them. These individuals are often
infrastructure, nor driver training, bilizing the spinal column. It is disadvantaged, and their death plunges
nor construction standards are suffi- intended for police officers and citizen What can be done to improve their families into utter destitution.
cient to face this growing flow of traf- volunteers. We use mobile technolo- the training of drivers? Improving road safety is thus also figh- “Driving a vehicle
fic. Emergency care is also very poorly gies to connect them with each other P. T. : Mostof them haven’t had classes ting against poverty and inequality.
organised. As a result, India is the and to be able to mobilize them rapidly worthy of the name. Many learn at is like carrying
country with the most car accidents to the scene when a call signals an acci- home and bribe the examiners to get Do you think that the situation
will improve?
a loaded gun.
in the world. In the last ten years, 1.2 dent. We have trained 10,000 people in their license. Our legislative work aims
million people died on the roads and 6 the last three years. The other program at reforming the entire system of trai- P. T.  : Yes, I am confident of it. We are
A vehicle can
million were severely injured and han- targets truck drivers. We teach them to ning and testing so that it is professio- a very young democracy, and orga- kill when not
dicapped. That makes almost 400 a day. drive more defensively and to prevent
tragedies through videos, games and
nal, transparent and corruption-free.
The objective is quite simply that only
nizing the lives of 1.3 billion people
is not an easy thing to do. We have
handled by a
How does the SaveLife case studies. All is free and financed those who really know how to drive brought many problems under control trained person.”
Foundation intend to improve uniquely through donations. would have the right to do so. It is in terms of health care, such as polio
this situation? essential, since driving a vehicle is like or AIDS. Road mortality can also be
P. T.  : First, through fieldwork. 50 % of And at the legislative level? carrying a loaded gun. A vehicle can kill reduced by means of appropriate poli-
the deaths could be avoided if the vic- P. T.  : The Indian Parliament is getting when not handled by a trained person. cies combined with civic engagement.
tims were taken care of quickly. So we ready to adopt an important law in The media and public opinion are now
© SAVELIFE FOUNDATION

organize basic first aid training, open to the domain of road safety. As a result, One of your family members, aware of the size of the problem, while
all. Then, at the legislative level, we fight drivers’ licensing will be more deman- for that matter, was the victim no one was even talking about it when
for the adoption of decisions reinfor- ding, commercial drivers will be better of an accident? we started our fight. In the coming
cing road safety. The idea is not to take trained, there will be new construc- P. T. : That is right. My little cousin died years, the change could be massive.
over the role of the state, but to make tion norms for roads and vehicles, from his wounds after having been hit By Côme Bastin

36 HEALTH TOMORROW
1 | PREVENT

JOËL DE ROSNAY
communicate directly with these digital
devices using their own brain impulses.
Artificial organs, electronic implants,

Being Human, Tomorrow robotic limbs, etc. This path may lead
to the apparition of “supermen” or a
“transhuman”, but it will also create a
dangerous gap between human beings.
Scientist, writer, speaker, as well as the CEO of Biotics International,1 Right now, some limits are already being
Joël de Rosnay is one of the great popularizers of biology, pushed back. Will we be able to “print a
digital technologies and cybernetics. In this column, he imagines heart”? Will a human composed of spare
parts still be human? We must really
the future of mankind, between cyborg and symbiont, the “cybiont”. think about what we do lest we alter
what is most natural within the human
race, what makes its originality and its
carrefour-du-futur.com strength: the capacity of any individual
to resemble his fellow human being
while remaining unique. But a trans-
formed human being with its implants,

W
transformations and explants might
not meet the same criteria. How can we
hat will tary superorganism, this technologi- the Wake Forest Institute has managed channel the advances in this area?
the man cal ecosystem living in symbiosis with to produce cardiac valves that could Several levels of regulation are
of tomor- the brains of men, interconnected as potentially be grafted. The advances of conceivable. The scientific community,
row  be like? neurons are by synapses. The union of nanomedicine will not only expand the which publishes its research according
Scientists biology, nanotechnology and computer field of diagnostic tests, but also that of to certain rules, acts as a preliminary fil-
and sci-fi science has already led to many pro- implants. Devices such as biosensors ter for possible deviance. This first level
writers have imagined the advent of the ducts used in healthcare. will be able to measure specific parame- of vigilance must go hand in hand with
cyborgs, cybernetic men, half-human, ters of cellular metabolism and confirm a threefold reflection on ethics: from
half-robot. Bruce Mazlish predicts the TOWARDS THE CYBIONT the correct assimilation of drugs or, on bioethics (biology) to infoethics (infor-
coming of “combots”, or computer-ro- Amongst the most spectacular ones, the contrary, detect any anomaly. mation) and ecoethics (ecology). This
bots, a new generation of man-made we find diagnostics based on nanotech is necessary to prevent mindless expe-
beings that will live and collaborate and micro-sensors linked to smart- REGULATING TOMORROW rimentations from altering the human
with us and possess the ability to repli- phones, using sample-collecting sys- I have been trying to raise aware- being and to reflect on the kind of
cate on their own. Hans Moravec consi- tems. These are only the beginnings ness since the eighties on what I call world we want to leave to our children.
ders that these future androids will of the promising and already booming “biotic”, or the union of biology and This undertaking must bring together
reach such a high level of intelligence e-health area, relying on numerous computer science. In this area, “brain scientific, moral, religious and political
that they will be able to persuade us to smartphone apps. We have also wit- activated technologies” (BAT) will play authorities. The second level is that of
do otherwise, should we ever want to nessed the development of smart pills a crucial role. A few years ago, Profes- citizen consensus, able to influence sub-
“unplug” them. that travel throughout the body and sor Miguel Nicolelis demonstrated the jects that directly concern individuals in
I would rather consider Man, society communicate in real time with digital possibility of transmitting information society. Thirdly, political regulation, in “I would rather
and the technosphere as a co-evolutio- interfaces. We are already able to grow coming from the brain of a monkey the highest acceptance of the term, is consider Man, society
nary whole. This is why I imagine the stem cells on biodegradable scaffolds to a robotic arm located hundreds of mandatory. Faced with constant debates
men of tomorrow as symbiotic. They imitating the shape of the organ, as is kilometers away. More recently, resear- around societal choices, the budgets and the technosphere
won’t differ much from the 20th-cen- currently done for bladders. We also chers from the University of Washing- they need and the men and women able as a co-evolutionary
tury men physically or mentally, but have produced functioning tiny liver ton have established for the very first to carry them out, those in the political
their biological, psychological or biotic buds, kidneys and brain parts. And time a connection between two human arena make decisions and assessment whole.”
connections with the digital ecosystem let’s not forget the revolution of 3D brains. These technologies will have a that weigh heavily on our future.
will give them extraordinary means of bio-printing for regenerative medicine. fundamental role in the years to come. By Joël de Rosnay
knowledge and action. With the term Organovo’s device can project stem cells They will empower disabled people as 1. Biotics specialize in new technology
cybiont (from cyb-, cybernetics, and on a nutritive surface and build organic well as enable scientists and engineers consulting and trend forecasting in digital
© DR

bios-, biology), I refer to this plane- tissues. Professor Anthony Atala from or smartphone and computer users to education and biotechnologies.

38 HEALTH TOMORROW
CHAPTER 2

CURE
2 | CURE

H
ow much of a company, Himore Medical, received a
threat to public Rolex Award for this invention.
health are
cardiovascular Who is this tablet meant for?
diseases? Right now, 64 tablets are in use in
A. Z. : According to Cameroon and around the world. We
the WHO, 17.5 million people die from are in touch with about twenty car-
cardiovascular diseases each year. In diologists that interpret the results
Africa it is the second cause of death and have already diagnosed seve-
after malaria. In Cameroon, one out ral hundred patients. In Cameroon,
of every three women is affected by our first clients are arrondissements2
it, and 4,000 newborns die each year and village hospitals which have no
because of a congenital heart defect. cardiology department. So we have
Several factors explain this. The first is partnered with the State to equip these
poverty. The recommendation is to do hospital centers with CardioPads. It is a
an exam every two years, but it costs public-private alliance, without which
a minimum of 15,000 CFA francs.1 The we would not be able to move forward.
second factor is the small number of We are also working with NGOs in
cardiologists: sixty for 23 million inha- Gabon, Nepal, Malaysia, the Comoros A box containing the CardioPad
bitants, and they are mainly in the big and Kenya. and its sensors.
cities. The extreme lack of specialists
condemns rural areas and their popu-
What would you say to a young
lations. Finally, health coverage is res-
tricted in Cameroon. Someone affected
“You have to be person who wants to innovate in
by heart disease requires a lifelong enthusiastic about the health sector?
medical monitoring. As a result, insu-
rance companies see them as a series of
what you do. A. Z. : You have to be enthusiastic about
what you do. That was the spirit in which
checkups and medication – thus a lot of That was the spirit I started the CardioPad. It then became
money to lose – and exclude them from
the reimbursement system.
in which I started a citizen’s duty towards the abandoned
patients in my country. However, it is
the CardioPad. challenging to be an entrepreneur. To
How did you innovate to come up
with a solution?
It then became keep an unwavering motivation, you
need much more than the lure of profit.
A. Z. : I was in the process of writing
a citizen’s duty.” The biomedical sector is also particu-
the dissertation for my computer larly technical. You cannot innovate in

ARTHUR ZANG engineer studies. Then, in 2009, I did


an internship at the Yaoundé general
hospital, where I met a cardiologist
Are you working on other projects
at the moment?
it without doing research: you have to
roll up your sleeves to find funding and
partners. Health problems are legion
Healing Africa’s Beating Heart who trained me in the digital proces-
sing of the heart rate’s signal. I started
A. Z. : Our CardioPad order book is well
filled up. In order to make the device
in Africa. There is extensive negligence
and lack of commitment on the part of
by writing software that would digitize available to hospitals and patients with governments towards their healthcare
For 23 million Cameroonians, there are only sixty cardiologists, the parameters of a cardiac exam to limited resources, we launched the systems. Most government officials
send them wirelessly. But it is hard to Africa Cardiac Care program. For only stay in the big cities and have no awar-
mainly located in the big cities. When he was still a computer science student, transport a computer from one village fifty dollars a year, it lets you do an eness of the hardships in the villages.
Arthur Zang imagined a tablet that would let you do a heart exam to the next. So I designed a tablet that unlimited number of heart, glycaemia It is up to the private sector to try pro-
© M. LATZEL / ROLEX AWARDS

connects to sensors. This lets you per- or blood pressure exams. We are also posing solutions and to make a move
and transfer the results wirelessly to a specialist. A promising invention form an exam and send the data to a working on other medical and techni- towards the State to influence public
to support health systems struggling to keep up with need and demand. doctor for diagnosis. The CardioPad was cal projects. For instance, individual policies positively.
born. The full kit, which includes the portable devices that patients could By Timothée Vinchon
tablet and all the necessary equipment, use at home to control and keep track 1. Approximately 27 dollars.
himore-medical.com costs 2,800 dollars today. In 2014, my of several heart values. 2. A territorial division of Cameroon.

42 HEALTH TOMORROW 43
2 | CURE 2 | CURE

MICHELLE LEM
Emergency Veterinarians
Community Veterinary Outreach’s mission is to care for the pets
of the marginalized and homeless people and facilitate better healthcare
for their owners in the process. Founded in 2003 in Canada by Michelle Lem,
this network of mobile veterinary clinics relies on the deep bond between people
and their faithful companions to keep them both healthy.

vetoutreach.org

H
ow did you come Inside the clinics, how does the can pick up products that were donated
up with the transition between the animal and such as leashes, collars, toys or pet food.
idea to create the person take place?
Community M. L. : The beneficiaries are sent by social Where are your clinics located and
Veterinary services and health professionals. who works there?
Outreach? When they show up at one of our M. L. : In fact, we don’t seek to establish
It all started in 2003, when I
M. L.  : clinics, they sit down in the waiting ourselves anywhere in particular, we
offered my veterinary services at a room, and we take this opportunity to support activists who want to set up a
homeless shelter in Ottawa, in the talk to them, establish a connection and “clinic”. Our dispensaries are therefore
Southeast of Canada. During my years try to understand their situation. Then, set up temporarily, in partnership with
of volunteering, I saw that homeless during the veterinary consultation local associations and social organiza-
people care more for the health of tions. In each city, several “clinics” are
their animal companion than their set up every year. A team of volunteer
own. But since pets are banned from “When someone veterinarians get involved in each of
most institutions, shelters or hos- says to me: ‘Don’t these communities. Community Vete-
pitals, these services remain out of rinary Outreach is currently predomi-
reach for many homeless people. you think homeless nantly located in major Ontario cities.
Moreover, this population has often people shouldn’t New “clinics” have popped up this year
given up on social and health services. in Vancouver, Winnipeg and Halifax.
However, once you have taken care of have pets?”
their companion, they are more likely And yet, some people might think
to accept being taken care of themsel- animals are examined, vaccinated, that taking care of animals is not a
ves. Community Veterinary Outreach microchipped and de-wormed. Surgery priority?
was launched in 2009 to use veteri- can also be planned if needed. Then, M. L.  : I remember that at first many
nary clinics as a point of contact with in a second stage, we provide care to people didn’t understand why I
marginalized people. In 2012, we were the human. Depending on the clinic: started this project. Many believe that
granted the charitable organization dental care, smoking cessation help or those with no financial means should
© G2 BARANIAK

status. The pets we attend to reveal distribution of overdose prevention not own pets. But when someone
the invisible forms of exclusion their kits. After this step, masters and pets says to me: “Don’t you think homeless
owners suffer from. take a walk in what I call the “shop”. They people shouldn’t have pets?” I always

44 HEALTH TOMORROW 45
2 | CURE 2 | MAKE
Community Veterinary
Outreach helps both
marginalized people
and their pets.

say, “don’t you think there should be no


homeless people?”
In Canada, 63 % of the homeless
youth have experienced childhood mal-
treatment or trauma. 28 % come from
the foster care system and did not grow
up with a family. For them, owning a cat
or dog is the first opportunity to expe-
rience unconditional love and be accep-
ted. Their companions show empathy
for them while they often have a very
low self-esteem of their own. They
might learn to take care of themselves
primarily because they feel obligated
to take care of their companion. Some
even reduce their alcohol or drug use to
this end. Similarly, in some cases indi-
viduals start looking for a place to live
in, so as to protect their animals. Pets
undeniably have a positive impact.

Since clinic attendants don’t


have the means to pay, how does
Community Veterinary Outreach
function economically?
M. L. : The most difficult thing for us is
to find long-term financing. We raise
funds for one-off projects, so we have to
start again every year. If we are able to
continue, it is mainly because all veteri-
nary clinics are run by volunteers. And
we are lucky to be helped by companies
that supply most of the medical equip-
ment we need.

What are your plans


for the future?
M. L.  : I would like to duplicate our
model of care. Right now we are wor-
king with homeless people in cities, but
I would like to do the same thing in rural
areas with isolated farmers and try it
in developing countries. In summary, I
would say that wherever humans have
relationships with animals, not only as
pet but also farm animals, it is possible
to improve the health of humans by
caring for their animals.
By Perrine Massy
© DR

© DR
© DR

46 HEALTH TOMORROW
2 | CURE 2 | CURE

ANIL PATIL
We Are All “Carers”
They are essential to the healing process, but often go unnoticed
and underappreciated. “They” are carers: the parents, children and devoted
friends of a sick or disabled person. Anil Patil has decided to make
their voices heard with his NGO, Carers Worldwide, which, in three years,
has supported more than 5,000 carers in India, Bangladesh and Nepal.

carersworldwide.org

“Whether we are A group of carers in Nepal.

S
rich or poor, a king
o, who are these
carers that your
learn by sharing their experiences. Fur-
thermore, 85 % of the carers face phy-
to work or school. We also do lobbying,
by launching carers’ associations. In
or an untouchable, In the long run, what would be
NGO supports? sical or mental problems due to their Nepal, we have created two coopera- on this planet, the solution to better recognize
A. P. : They are all those status, which is often precarious. To tives with over 600 members that save we will all one day the roles these individuals play?
who, without being remedy this, we collaborate with diffe- money by helping each other. There A. P. : These aids represent a veritable
paid for it, take care rent health centres and have trained and in India, we also initiated the first be the carers or volunteer army. For doctors, and for
of a loved one: a parent suffering from seventy doctors to better respond to Carers Day two years ago. Discussions the cared for.” pharmaceutical companies, they are
a chronic pathology, a child suffering their needs. We also provide them with are taking place with the UN to extend the ones that allow for a treatment to
from a mental disorder or a disabled information on how to deal with family it throughout the world. be successful. For patients, they are
friend. The majority of healthcare and relationship problems. We started Recently, the state of Jharkhand, one the brothers and the friends who are
organizations focus uniquely on the three years ago with 150 carers; we are Do you work with or in of the poorest in India, asked us for indispensable for living from one day
sick person. However, he or she that now at 5,500. This betters the lives of the place of government and help to get closer to 20,000 carers in to the next. There are also human and
makes the difference is often the carer. 27,000 individuals. the healthcare system? the territory. This proves to what point economic stakes: 90 % of carers can
85 % of support work is done by the A. P. : In the place of, sadly. In a country our model has a positive influence on no longer work, which deprives the
relatives, but doctors often pepper Beyond this psychological support, of 1.3 billion people like India, there the quality of care and the quality of life. nation of their productivity. We must
them with information for a half-hour. what can be done to improve their are statistics on everything – mental therefore collaborate with the deciders
With my NGO, Carers Worldwide, we material situation ? illness, AIDS, handicap – but abso- What pushed you and actors in healthcare to take care
give a voice to this population that Because their role as caregivers
A. P. : lutely none on carers. These people to get involved? not only of the sick, but also of the
doesn’t get any recognition. The pro- is extremely time-consuming, 90  % are often women who don’t have the A. P. : I had long worked in the domain care­givers. And not only in India and
blem is even more urgent, since the of the carers lose their income, their choice. Already vulnerable, they must of mental health in India and observed Nepal: a study by the World Health
family unit is exploding in developing lated and invisible, as if they were shut job, not to mention that the sick per- also keep house and spend their nights how carers were isolated. Then, when Organization estimates that with the
countries. People used to live together away in their own world. son can no longer work either. Some- asking themselves what would happen our second daughter was born, we dis- increase in life expectancy, many more
and help each other. Today, agricul- times, when children have to take care to the loved one if they died. However, covered that she suffered from a form carers will be needed in developed
ture is no longer a profitable trade and How do you help them of relatives, they can no longer go to as they seem in good health, doctors of Down’s syndrome. Despite all our countries. Whether we are rich or poor,
the children move from city to city to break this isolation? school. We have therefore developed continue to think that it is useless to be knowledge, we really needed the sup- a king or an untouchable, on this pla-
to study or find work. The extended A. P. : We have created nearly 300 psy- an alternative system with the creation concerned with their fate. We sensitize port of our friends and family. Without net, we will all one day be the carers or
family1 hardly exists anymore, except chological support groups in different of community care centers in which and train medical personnel to take the them, I don’t think we would be where the cared for.
in villages. When a member of the regions of India and Nepal, to give two paid carers take care of several family of the sick person into account. we are today. This is what made me By Côme Bastin
household falls ill, those who have to them the opportunity to meet other sick people. This way, 255 children and We dialog with public and university reflect on the situation of carers in less 1. Traditionally, several generations
© DR

take care of them find themselves iso- people in the same situation and to 2,460 adults have been able to return administrations to act on a large scale. developed countries. of a family lived under one roof.

48 HEALTH TOMORROW 49
2 | CURE

JOS DE BLOK “A group of at most


twelve nurses is
Texte courant

A Nurses Revolution assigned to each


neighbourhood
Frustrated by the increasing commercialization where Buurtzorg
of home care, Jos de Blok founded Buurtzorg in 2007, is implanted.”
which supports small associations of self-organized nurses. In ten years,
Buurtzorg1 has brought together more than 14,000 nurses and
is now the leading service for home care in the Netherlands.

buurtzorg.com Can your model inspire


other businesses beyond
the social sector?
J. D. B.  : Yes! Our model has already

W
spread to over eighty countries.2 It was
conceived with healthcare in mind,
hy did you get nurses is assigned to each neighbou- Many think that a hierarchical but it can be applied to many diffe-
involved in rhood where Buurtzorg is implanted. organization and a sense of rent sectors, since the questions are
home care? They decide everything: care, planning, competitiveness are the key always the same: which values should
J. D. B.  : In the recruiting, financial management. It to efficient work. You seem to be upheld by our management sys-
Netherlands, home is an entirely horizontal organization demonstrate the contrary. tem? How do we deal with complexity?
care was being without a managerial structure: the J. D. B.  : Market logic is precisely what How can we improve the quality of
ruled by the laws of the market and only role of our headquarters is to pro- has led to the rising cost and the decline our work and our relationship with
obsessed with productivity. Having vide the necessary expertise. in quality of home care in the Nether- our customers? Most organizations
worked as a nurse for several years, lands. We want to fix the damage done are divided between those who make
I had witnessed first-hand the slow How do you explain and return to a public service philo- the decisions and those who are sup-
deterioration of our working condi- its rapid success? sophy. We are a private company, but posed to mindlessly execute them. I
tions. All the services were organized J. D. B.  : When our first group of we think like a public one. Many com- tend to think that organizations could
around huge call centers. With each nurses was formed back in 2007, I panies have followed in our footsteps. be structured in a more horizontal way
call, a different nurse was assigned to a wasn’t expecting this. Ten years later, Buurtzorg is now considered the stan- in order to come up with more sustai-
patient. I told myself that home care’s we have 14,000 nurses in 950 teams dard for home care in the Netherlands. nable answers to existing challenges.
first priority should not be profitabi- throughout the Netherlands! Several To come back to healthcare, what will
lity. Better to deliver quality care and studies have shown that the care provi- Despite the success we do in the future should we lack
to focus on prevention, so that even- ded by Buurtzorg is of better quality and of Buurtzorg, do you meet qualified workers because they don’t
tually people wouldn’t need this sort of less costly than that of its competitors. any difficulties? want to work like this any more? A
help. I opted for an entirely horizontal During the same period, the number Of course, sometimes nurses will quit lot of people are used to hierarchical
organization, which is more beneficial of hours spent with the patients has Buurtzorg because our method doesn’t decision-making, with big strategies
to the employees. Buurtzorg is the fruit decreased. They appreciate being able to suit them. But most of the time they coming from above. I think that on
of this reflection. talk directly to a person instead of going integrate our working environment the contrary we should focus on our
through a call center. By emphasizing quite easily. Teams meet frequently, everyday practice. And we will conti-
How does Buurtzorg work? professional ethics, we have been able and employees have a say in the deci- nue to spread our ideas and tp support
J. D. B.  : Our not-for-profit company to attract the best talents. Doctors and sion-making process. Their input has those who are inspired by our action.
delivers self-management based health hospitals recommend us. The nurses a direct impact on their daily work. It By Perrine Massy
services in many neighbourhoods of themselves are more satisfied, as they doesn’t always go entirely smoothly, 1. “Neighbourhood care” in Dutch.
the Netherlands, as well as in other can do their work in peace while buil- but the essential point is that everyone 2. Buurtzorg is considered as a good exam­
© DR

countries. A group of at most twelve ding a relationship with their patients. feels involved. ple for new organizational work models.

50 HEALTH TOMORROW
4. CARE 2 | CURE

(like medicine or glasses). In the begin- geriatrics, I decided to create an


ning, a model of one consultation per “Many doctors at interface to make appointments
person in difficulty was attributed. But Horas da Vida give online named ConsultaClick. It tar-
in Brazil, 150 million people are living geted all those able to pay and was
without private insurance, so it is dif- free conferences and implemented in Brazil, Portugal,
ficult to determine who is truly poor. we share scientific Spain and Romania. At the end of
So we decided to propose free consul-
tations to the beneficiaries of the pro-
publications on 2012, I said to myself that it was
possible to use this tool for people
grams of other NGOs. We started with our website or who don’t have the means to pay for
one important São Paulo organiza-
tion, and now fifteen NGOs work with
on social networks.” a consultation. Like other doctors, I
performed them pro bono, but in a
us. Thanks to this network, 45,000 disorganized way. With my interface,
patients benefit from care provided by other zones, and I would be quite happy I already had the technology to sim-
1,800 volunteers in 35 specialties. about that, but for the moment it is plify the relationship between doctor
still a dream. One of the main challen- and patient, so I submitted the idea
How do you get these volunteer ges is to reach an equilibrium, all while to some colleagues. We then decided
doctors to work with you? maintaining free consultations. For to take the plunge. To my great sur-
J. P. N. R.  : Simplifying and organizing that, we have developed a platform to prise, it rapidly took off. We started
their tasks has been one of the great sell different services relating to health without any real procedures: we used
successes of Horas da Vida. I often hear care systems. Furthermore, several a fax machine to send documents, a
doctors say, “I would like to volunteer, funds and companies finance the pro- lot of things were on paper. It seems
but I don’t know how”. When I arrived ject, notably Brazilian corporations to incredible, looking back!
in São Paulo, I presented a platform whom we propose our methodology for

JOÃO PAULO NOGUEIRA RIBEIRO in two of the most recognized medi- improving the health care process. What are tomorrow’s challenges
cal schools in the city, and I was thus in access to health care?
able to build a substantial network. Where did you get the idea to J. P. N. R. : The best way to avoid the col-

Volunteer Doctors Seek Patient I always considered that important


people must be made aware of the idea
facilitate the connection between
patients in need and doctors?
lapse of the system is to improve care
and people’s quality of life. But one of
in order to better propagate it. Journa- J. P. N. R.  : After my specialization in the main challenges in my eyes is to
lists, medical big shots and influential first understand who needs what. In
In Brazil, public hospitals are so overwhelmed that those who can’t afford a private politicians support me. Several have Brazil, many resources exist in terms
establishment may decide to not seek treatment at all. Realizing that many doctors proposed their help to negotiate deci- of tests, hospitals and products, but
were ready to give free consultations, João Paulo Nogueira Ribeiro launched Horas sive support. For example, with uni- they are not used correctly. Educating
versities or laboratories that can offer the population in prevention is essen-
da Vida to connect available doctors with individuals in need of health services. blood workups, MRIs or even more tial. Many doctors at Horas da Vida give
Since 2012, 45,000 patients have benefitted from Horas da Vida. complex tests. free conferences and we share scienti-
fic publications on our website or on
What are your ambitions on the social networks. Cooperation between
horasdavida.org.br national and international levels? the public and the private sectors
J. P. N. R.  : For the moment, we are must also be encouraged. As an NGO,
concentrated on the optimization of we are there to inspire people and to

T
our procedures. We want to be present propose models that can be adopted
in the principal cities of Brazil, which on a larger scale. And even more so in
he Brazilian health indeed exist, but the demand is so da Vida is to provide basic care to this is a gigantic country. We have already public health systems, within which it
system (SUS)1 great that the waiting time for consul- population. been able to extend the activity of is difficult to innovate and to change
theoretically tations and exams is very long. For exa- Horas da Vida to the city of Curitiba, entrenched habits.
guarantees mple, in 2014, in São Paulo, 600,000 What solution have you and we have made targeted interven- By Timothée Vinchon
universal coverage. patients were on waiting lists. Fur- developed? tions in the cities of Rio de Janeiro, 1. The Unified Health System (SUS) was
So why are so many thermore, only a quarter of Brazilians J. P. N. R.  : We let numerous health Porto Alegre and Florianopolis – the established in 1988 as an administrative
people without access to care? benefit from the insurance needed to care professionals offer hours of free great Brazilian metropolises. I believe body responsible for the stewardship of both
© DR

J. P. N. R.  : This public system does access private clinics. The goal of Horas consultations, exams and products that the model could be replicated in the public and the private health systems.

52 HEALTH TOMORROW 53
2. CURE
“As far as I know,
no dogma forbids
helping others
or caring for your
neighbor. It is
ALAIN CARPENTIER even a duty.”
Heart at Work For the French Agency for the Safety
of Health Products (ANSM), this phase
would determine if the treatment could
Professor Alain Carpentier has transformed the dream of an entirely artificial move beyond the experimental phase.
The condition was that at least half of
heart into a reality. To achieve this feat, it took him a lifetime of research the patients survive one month after
on materials, miniature computing and portable batteries. It also took the transplant or more. The contract
was respected, and the ANSM ended
convincing investors, as well as the medical authorities. Today, his invention up approving this first step. A second
is on the verge of revolutionizing medicine throughout the world. phase, which began in July 2016, fore-
sees operating on around twenty indi-
viduals in France. If successful, the
carmatsa.com artificial heart will be declared to meet
European standards and will spread
beyond the borders of France. This will
lead to the publication of important

W
scientific literature and the beginning
of a process of industrialization of the
hat pushed Jean-Luc Lagardère, then head of the eight hours can be perfectly integrated,” prosthesis followed by its commerciali-
me to throw group Matra (the future EADS), would notes the professor, “but it wasn’t the zation. The selling price is estimated at
myself into be decisive. From this encounter, an case twenty years ago.” A monitoring 160,000 euros. Expensive? “Much less
this crazy Economic Interest Grouping (GIE) was device at the waist directly links the than a transplant, which requires expen-
endeavour born. It was dubbed Carmat, a fusion of subject to a hospital that remotely sive immunosuppression treatments, and
forty years Carpentier’s name and that of Matra. ensures the proper functioning of the well below the cost of the hospitalization
ago was nothing else than my vocation as device and reacts in case of emergency. and monitoring of a patient suffering
a doctor: the overwhelming need to save A PROTOTYPE The design of the prosthesis has from chronic heart failure,” underlines
people on the edge of death,” confides CEASELESSLY IMPROVED been the object of special attention. the professor.
Alain Carpentier. At 84 years old, this Together, they succeeded in further Developed by computer, its form clo- With the announcement, Carmat
surgeon is known for being the crea- miniaturizing the onboard computer sely imitates that of the human heart. stock, on the market since 2010, will
tor of the first French artificial heart. of the prosthesis which, on arrival, The stakes are high, since it must shoot up, after having fluctuated for
Carmat’s artificial heart.
Twenty million individuals in Europe now weighs no more than 900 grams find its place within an organism in years due to uncertainties concerning
and the United States suffer from ter- – versus around 300 for the human which it must remain for at least five the results of the experiment. For
minal heart failure. They could conti- heart. The integrated microprocessor years. Its architecture, texture and the their part, the Public Investment Bank
nue to live for a long time if they could detects changes in blood pressure at materials from which it is made led to (BPI) would regain its confidence in
get a transplant. “Sadly, we would need the ventricles – blood’s entrance to numerous patents between 1999 and the project, granting it new subsidies.
3,000 transplantable donor hearts per the organ – and accordingly modulates 2004. Carmat’s teams of engineers “The corporation would then reach eco-
year in France, but we only get around the pumps that impulse the cardiac are now reflecting on how to further nomic equilibrium by finally selling the
350. Only an artificial heart can make up rhythm. The pumps are powered by a miniaturize the device, which is cur- product of its research,” predicts Alain
for this lack,” says Alain Carpentier. battery carried around the patient’s rently adapted to the chest cavities of Carpentier. Today, the artificial heart
“Bitten by the research and innovation waist. In the current version, there are only 70 % of men and 25 % of women. exists. A scientific feat that takes on a
bug,” he became famous at the end of the two batteries, each with a life of four “Today’s model won’t be that of the © MARC LATZEL / ROLEX AWARDS nearly mystical dimension due to the
sixties for the fabrication of prosthetic hours. Professor Carpentier says that future,” assures Alain Carpentier. symbolism surrounding the organ. “Is
heart valves from animal tissue. A suc- Carmat is doing everything they can to it a progress? Are we entering forbidden
cess that prefigured a much larger pro- replace them with fuel cells that would THE DAWN OF A NEW ERA territory?” the professor wonders. “As
ject: a 100 % artificial heart. He got to last at least twelve hours. The device The prosthesis has already been far as I know, no dogma forbids helping
© CARMAT, DR

work in the eighties with the help of the sends a signal to avoid the risk of run- implanted in four patients between others or caring for your neighbor. It is
Technical Center for Mechanical Indus- ning down the battery. “Today, with September 2013 and January 2016, even a duty.” 
try (CETIM). In 1993, his meeting with mobile phones, having to plug in every during an initial “feasibility” phase. By Charles Faugeron

54 HEALTH TOMORROW 55
2 | CURE
“We would like
to stop the train.
But that would mean
that South Africa’s

W
hat motivated
health system is able give them a ticket to ensure they will be
Transnet to provide care seen to during the day. We have a team
to get the
Phelophepa
to everyone dedicated to the populations living wit-
hin a thirty to fifty kilometers radius
rolling? in the country.” of the station. These mobile units visit
S. K.  : It all began schools, nursing homes, prisons, etc.
in 1994. At the time, South Africa’s Since we started our operation, we have
inequalities were glaring, especially lophepa’s movements are organized in taken care of over 611,000 people.
concerning health care access. One of between its regular commercial and
the country’s universities turned to passenger traffic. Are you able to meet everyone’s
Transnet to make ophthalmological expectations?
care and optometry services accessible What is the cost for the patients? S. K.  : It is a never-ending challenge.
to the low-income populations living S. K.  :It all depends: the infirmary We are often unable to attend to every
in the rural areas. Since we had the and the psychological clinic are free of single person who turns up. Yet, even if
railway network at our disposal, they charge. If you use our dental car for a we cannot provide care for everyone, the
suggested using some of our trains to tooth extraction, it will cost you ten medical services delivered by Phelophepa
reach those remote populations and rands.1 If you have eyesight issues, the are meant to supplement those of the
provide on-board care. And so a first eye exam is free, but a pair of glasses state. The use of a train enables us to
locomotive with three cars set off down will cost you thirty rands. A prescrip- reach areas where the traditional health
the tracks. tion for several boxes of medicine will care system is not working at its best.
cost you five rands. In order to lower the
How did the project grow? prices, the universities that have joined How do you finance the operation?
S. K. : The following year, we decided to this effort send us interns (nurses, S. K.  : Last year, each patient that we
provide an even larger array of medical dentists, optometrists, psychologists, treated cost about eighteen rands (1.3
services to meet the specific needs of pharmacists) to give us a hand. dollars). Maintaining a train in wor-
the underprivileged populations. They king order costs us around fifty million
were especially suffering from a lack of How do you reach populations rands a year. We benefit from a lot of
dentists and a shortage of basic medi- living far from the railway? support from the private sector, such
cal supplies and drugs, overstretching S. K.  : When the train makes a stop as the pharmaceutical lab Roche and
the South African healthcare system. somewhere, people get in line and we Colgate Palmolive South Africa. Still,
Today, we have two trains with nineteen the largest share of the funding, at 9 %,
The Phelophepa train brings health
to South African villages cars each! Along with the ophthalmo- comes from Transnet. I am very proud
logy and optometry car, you will find of this project.
a full-service dental care center, an
infirmary, a psychological center and a What do you see for the future

SHAMONA KANDIA pharmacy. We also organize screening


campaigns to detect diabetes as well as
cervical, breast and prostate cancers. It
of the Phelophepa?
S. K.  : We would like to stop the train.
But that would mean that South Afri-
Next Station: Hope is a real hospital on rails. ca’s health system is able to provide
care to everyone in the country. In the
How do you handle such logistics? meantime, the train of hope will never
S. K.  : We are entirely autonomous: we stop improving itself in order to attend
For 23 years, the Phelophepa has been criss-crossing South Africa to bring
have on-board kitchens where we cook to the needs of the most vulnerable
medical care to populations living in remote rural areas. Designed as a true mobile up to 450 meals a day. We have our and marginalized populations of this
hospital, this “train of hope” is backed up by Transnet, the country’s public railway own laundry and accommodations for country. Our goal is for everyone to be
22 crew members. We also generate able to access medical care, regardless
company. Health Director of the Transnet Foundation, Shamona Kandia our own electricity. The only external of their social level or their place
explains how this medical express train got rolling and where it is headed. resource we depend on –  wherever of residence.
we go  – is water. Fortunately, Trans- By Perrine Massy
net owns the majority of the railway 1. South Africa’s official currency. One dol-
© DR

trainofhope.org network in South Africa. The Phe- lar is worth approximately forteen rands.

56 HEALTH TOMORROW 57
2 | CURE

SAMEER SAWARKAR add that we do not receive any subven-


tion for our activities.
Asian and three African countries, and
we hope to expand very soon into eight
new countries. Each nation has its own
acknowledging the necessity for a public
health system. Interesting partnerships
between public and private institutions
The Country Teledoctor What are you most proud of?
S. S. : Many of our visitors are women or
requirements and health standards
and we try to get past these discrepan-
have sprung up. In the field, things are
evolving rapidly. Infrastructures are
old people that had never seen a doctor cies by establishing local partnerships being modernized, access to the power
By leveraging long-distance diagnostic devices, videoconferencing, in their entire lives! Some of them have and reinforcing the international certi- grid and Internet coverage are more
shown up with a fracture of the leg and fications of our products. We also wish widespread. The cost of consultations
and digital medical files, Neurosynaptic enables Indians from rural areas our doctors were able to direct them to continue expanding our action in and treatments is going down, while
to access quality healthcare through telemedicine. towards the nearest hospital in order countries where we are already active. salaries are increasing. In the last five
to receive a plaster cast. Thanks to our In India, we estimate that 20,000 new years, health insurance coverage has
Thanks to founder Sameer Sawarkar, the Neurosynaptic model and equipment, some patients have discove- ReMeDi access centers will appear in been on the rise in India: 30 % of the
technology is being adopted by countries across Asia and Africa. red that they had a serious heart condi- the next two years. population has a health insurance
tion. Others have learned that they policy. But this coverage has still to
suffered from diabetes or hypertension. Do you think India will be able extend to the poor, and the medical
neurosynaptic.com to generalize access to primary standards can still progress. Telemedi-
Do you have an healthcare in the near future? cine alone cannot solve everything.
international strategy? S. S.  : Yes, there are some very encou- By Côme Bastin
S. S. : Neurosynaptic is present in seven raging early signs. The government is 1. Remote Medical Diagnostics.

W
hat is the can provide electrocardiograms, mea- ported the creation of 2,300 “village
problem that sure a patient’s body temperature or centers”, within which doctors can “More than
your company blood-pressure and can act as stethos- use videoconferencing to perform a a million patients
is responding
to?
copes. We have also created videoconfe-
rence software that functions even with
diagnosis on their patient, with the
help of the local medical personnel.
have used our
S. S.  : In India, a quite limited bandwidth. Finally, we Since then, several telemedicine cli- facilities and
there is a tragic problem of access to
healthcare in rural areas, where three
centralized the medical files from every
single patient in our digital archiving
nics have appeared within cities and
slums. Our digital mainframe allows
fifty million people
quarters of the population live. 60 % system. Thanks to these three prin- us to assess in real-time each loca- live within
of the hospitals and medical offices
are concentrated in cities, as well as
ciples we have succeeded in connecting
villagers with qualified doctors who
tion’s stock of drugs, and to locate
the nearest available supply in case
four kilometers of
80 % of all doctors, since they would can in turn examine them and pres- of shortage. More than a million one of our centers.”
rather practice in an urban area. India’s cribe treatments from a distance. We patients have used our facilities and
government does run 140,000 medical have recently launched ReMeDi-Nova, fifty million people live within four
centers in villages, but this only covers a kit containing a set of instruments kilometers of one of our centers.
20 % of the population’s total need. At for general medical care which fits in a
the end of the day, 700 million Indians backpack and relies on Bluetooth tech- What is your business model?
do not have access to basic medical care nology. All of it is connected to our web S. S. : At first, we wanted to set up the
worthy of the name. They have to rely platform and can easily be carried whe- centers in the villages by ourselves,
on poorly trained practitioners and rever it is needed. but we lacked the skills. So we found
sometimes buy their medicine on the partners with real experience in the
black market. Is this technology alone enough field, such as hospitals or NGOs, and we
to resolve the problem? continue to work closely with them to
What solutions did you S. S. : No. We realized as early as 2008 this day. They are in charge of opening
come up with? that we needed to build an entire the health centers while we provide the
S. S. : To bring quality healthcare to the ecosystem. If there is no available technology. When a patient pays for a
poorest areas in India, our ReMeDi1 medication, if there is no lab to per- medical test or a consultation, we take
technology rests on three pillars. First, form tests, a consultation is useless! a commission. The hosting of all these
we have developed reliable long-dis- We had to conceive the supply-chain transactions is cloud-based, making
© DR

tance diagnostic devices. These devices down to the last mile. We have sup- our system very easy to adopt. I might

58 HEALTH TOMORROW 59
2 | CURE 4. CURE

FRANCESCA FEDELI
Family Therapy
When they were told that their baby had suffered from a stroke in utero,
Francesca Fedeli and Roberto d’Angelo felt abandoned
by the Italian medical community. Determined not to give up,
they founded Fight The Stroke in 2013, to raise awareness among families
and spread information about rehabilitation through telemedicine.

fightthestroke.org
“Our first challenge
was to get accepted
by the medical

I
Francesca Fedeli, Roberto
d’Angelo and their child,

t was in the wake of a tragic a stroke. After the trials of this compli- literature. After two years of oscilla-
who suffered a prenatal stroke. community.
event that Francesca Fedeli cated pregnancy, the parents felt dis- ting between distress and anger, they But we were only
and Roberto d’Angelo foun-
ded Fight The Stroke. In 2011,
couraged. “We weren’t ready. We asked
ourselves: ‘Why is this happening to us?
eventually decided to take things into
their own hands. Thus, the association renowned scientists who agreed to help us on the activation of mirror neurons,
two parents and we
Francesca had a difficult pre- What have we done wrong?’” Fight the Stroke was created to help all face this challenge. Thanks to a number of this therapy was validated by scientists. could feel a certain
gnancy and stayed bedridden When the couple tried to find out the little Marios of the world. In 2016, grants, we were able to travel a lot, only “Each day, for four weeks, the kids settle degree of scepticism
for seven months. The delivery went more about the diagnosis or possible it became a social company. to discover there was a global lack of infor- down in front of the screen and watch a
seemingly well yet, unfortunately, ten treatments, they discovered how Around 3.5 million children in the mation and solutions on the subject.” magician showing them magic tricks,” on their end.”
days after Mario’s birth, the parents hard it was to find suitable answers, world have suffered from a stroke. The With Fight The Stroke, Francesca and describes Francesca. “As they observe
were told that their baby had suffered whether from doctors or the scientific consequences vary depending on the her husband are raising awareness of his gestures and try to repeat them, they children during the learning period.
cerebral area damaged by the stroke. perinatal and pediatric strokes. “We re-educate their paralyzed hand and learn The results will be published at the end
The most frequent and most visible are working in particular on early dia- some movements.” of the year. “I cannot reveal the details at
is physical disability. “For Mario, for gnosis methods. We opened the first cen- this stage, but I can already tell you they
example, the right brain was affected,” ter dedicated to this problem in Italy, in MIRROR NEURONS are very promising,” assures Francesca.
explains Francesca. “As a result, he can- the country’s largest hospital.” The two The digital interface evaluates their For the two parents, the main objec-
not move his left side, whether the arm parents also work towards improving performance, congratulates them or tive is to make this program accessible
or the leg.” the long-term care that stroke victims encourages them to start over. The to the largest number of families as
require, since children who survived a children also have the option to inte- soon as possible. To this end, they are
A COMMUNITY stroke need rehabilitation throughout ract with a peer. “They connect to ano- studying the idea of selling their solu-
OF FAMILIES their life. This is what led to the crea- ther child’s home through the platform, tion to other kinds of patients wanting
“Our first challenge was to get accep- tion of the Mirrorable program, to and repeat the magic tricks through the to improve their motor skills. “This
ted by the medical community,” relates offer to others the treatment that screen,” explains Francesca. “It enables money would enable us to ensure that the
the mother. “We had an excellent rela- Mario receives. them not only to activate their mirror neu- children’s program remains free for pedia-
© ANDREA RUGGERI, RYAN LASH

tionship with public research institutions Mirrorable is an interactive plat- rons, but also to identify with the other tric stroke families.” When they reached
and the main Italian hospitals. But we form accessible through a kit including kid.” Launched in 2016, this pilot pro- the point where they ceased to consider
were only two parents and we could feel a a computer, a motion detector and a gram already received applications from their son’s condition as a problem, they
The parents created a small certain degree of scepticism on their end.” magic tricks box set. Delivered at the fifty families. The program rests on learned a valuable life lesson, and they
company to share their testimony
and raise awareness on the subject
Little by little, the couple succeeded parents’ request, this kit enables child- three evaluation criteria: improvement wish to share it with as many parents
of pediatric strokes. in building a cohesive community of ren who survived a stroke to follow an of motor skills, participation and degree as they can. 
pediatric stroke families. “We contacted Action Observation Treatment. Based of connection between the “pairs” of By Perrine Massy

60 HEALTH TOMORROW 61
2 | CURE

KYRIAKOS SOULIOTIS K. S. : Our research measures, reports


and underlines obstacles met by
patients when accessing healthcare
Healthcare in Time of Crisis as well as the impact of the econo-
mic crisis on their
living conditions.
With public budgets cut by 50 %, austerity policies deeply affected Our “HOPE” stu- “In a country with
the Greek healthcare system. A doctor of Health Economics and Public Policies,1
dies have looked
into the challenges
over one million
Kyriakos Souliotis was on the front lines to study the effects of the crisis. faced by patients unemployed, it is
For this researcher, community initiatives aren’t enough to overcome the crisis. with rheumatoid
arthritis, multiple
paradoxical to link
Instead, the funding and structure of care must be reinvented. sclerosis, cancer healthcare access to
or Hepatitis C. We
also submitted a
job status and
uop-gr.academia.edu/KyriakosSouliotis proposal to reform expect universal
the health system coverage.”
and published a
book on an alter-

T
native, one that would better respond
to the obvious lack of patient parti-
he Greek healthcare Public pharmaceutical expenditures How can Greece build cipation in health decisions over the
system was rocked have decreased from 5.3 billion euros a fairer future? past decades. A pan-European study
by the economic in 2008 to 2 billion euros in 2015 K. S. : It is critical that we start with that we have just completed confirms
crisis. What is the – raising questions about what and funding. Most health inequalities stem the improved health outcomes due to
situation for Greeks who can be covered. Patients suffe- from income inequality. In a country patient group involvement.
and for health ring from life-threatening conditions with over one million unemployed, it
professionals today? increasingly face access hurdles.3 It is paradoxical to link healthcare access Is the reconstruction of the
K. S. :Our new reality is defined by a has also impacted healthcare profes- to job status and expect universal health system a priority
loss of almost 100 billion dollars in sionals, because of the “no new hires” coverage. Therefore, it is essential to for the new government?
GDP over four years (2009–2013), policy and of challenges with sup- address the needs of the uninsured, K. S. : Despite the bad practices and bud-
the biggest loss amongst OECD coun- plies. The extensive reduction in the who are in excess of two million get cuts that resulted from the Memo-
tries. This led to an unemployment number of doctors in 2014 made the people. Greece is the only country randums, the healthcare sys­ tem has
rate of well over 20 %, and even higher much-needed reform of the system with a health system funded equally been modernized over the past five years
amongst the young. Under these cir- virtually impossible. by taxes and social contributions. Shif- through the introduction of e-prescri-
cumstances, public health policy is ting healthcare funding to a purely tax- bing, e-diagnosis, treatment protocols
mostly limited to the application of Are mutual support initiatives the based system would cut employment and patient registries. New discussions
the Memorandum of Understanding2 best way to face the health crisis? costs, reduce the unemployment rate are foreseen on pharmaceutical reim-
provisions to control expenditure. Per K. S. : Self-managed community health and raise the income of the employed. bursement. The current government
capita public health expenditure has clinics and pharmacies, initiatives led Equally critical to restoring equality cannot merely look for ways to reduce
decreased by 25 % (2010–2013) and by universities, municipalities or by is the integration of primary care ser- spending, but needs to prioritize the
public health funding by over five bil- the Church, are the best possible civil vices, a need persisting within the NHS needs of vulnerable patients.
lion euros (2009–2013). It is now one society responses to the crisis. Simi- for over thirty years. It is urgent that By Hélène Martinez
of the lowest amongst EU members in lar initiatives were also deployed wit- we assign a single attending physician 1. University of the Peloponnese, Tripoli,
relation to the country’s GDP. hin the NHS,4 such as the community as an initial contact to each citizen in Greece.
practice within the SOTIRIA Hospital order to better respond to the needs 2. A number of reforms that Greece is
How does this situation impact the Cancer Unit, which provides care to of those who do not have the means to committed to implement in exchange of a
access to healthcare services? the uninsured. However, this citizen cover their healthcare costs. support from the European Union.
K. S. : The Greeks are reporting in commitment cannot replace the State, 3. To know more, see the series of “HOPE”
increasing numbers an inability to and volunteers have begun to show What role do you play in this studies, University of Peloponnese.
© DR

pay, even for a mere doctor visit. signs of exhaustion. ongoing reflection? 4. National Health System.

62 HEALTH TOMORROW 63
2 | CURE

ÉRIC CHEYSSON
The Chain of Hope
As a young intern in vascular surgery, Éric Cheysson met Bernard Kouchner
and embarked on a cargo ship on its way to rescue migrants in
the South China Sea. Out of this mission, a humanitarian calling was born,
soon to be followed by an organization: La Chaîne de l’Espoir.1 Since then,
his NGO has built hospitals and trained doctors in the poorest countries of the world,
making it possible for 6,000 children each year to access surgical care.

chainedelespoir.org

J
une 2017. In Mossul, the world’s attention to the ongoing this observation, the organization La
the Iraqi Army and human rights violations in the area. Chaîne de l’Espoir was born, launched
their allies have freed “That first mission was a staggering with Professor Alain Deloche in 1988.
the city from the Isla- experience. I was so young. The monsoon, Its mission: to heal the poorest of
mic State’s control. the Khmer Rouge and, in the middle of children. Today, 100,000 children are
Amongst those who are the South China Sea, all those migrants examined each year and 6,000 are ope-
getting ready to rebuild the battered to save. We went up the Mekong until we rated on, thanks to the organization.
city, Professor Éric Cheysson. At 66, he reached Phnom Penh.” “Initially, we would bring children
is the Head of Vascular Surgery at the all the way to France to treat them,”
Pontoise hospital, and he has dedicated FROM VIETNAM Éric tells us. “We would cover the cost
his life to humanitarian medicine. TO AFGHANISTAN of the operation and volunteer families
It all started when he was a young Following his expedition, Cheys- would host them post-operation.” But
intern. Éric met Bernard Kouch- son co-founded Médecins du Monde in accordance with its goals the NGO
ner, co-founder of Médecins Sans in 1980 with Bernard Kouchner and now favors local action and is buil-
Frontières2 and already famous as others. Éric became one of the first ding hospitals in Asia, Africa and the
the “French Doctor” who started humanitarian doctors to treat both Middle East.
the operation A Ship for Vietnam. civilians and Mujahideen groups in For instance, in Kabul, La Chaîne de
It was 1979 and intellectuals such Afghanistan, which was at the time l’Espoir is rebuilding the only hospital
as Simone Signoret, Yves Montand, suffering from the invasion by the Red respecting Western norms and is trai-
Jean-Paul Sartre or Raymond Aron Army. He then operated in Cambodia, ning its staff. “Imagine this: open heart
had called on the President of France, Chad and Kosovo. surgery can be performed despite the
Valéry Giscard d’Estaing, to save the Over the course of his missions, situation Afghanistan has come to,” the
Sino-Vietnamese who were fleeing the Éric realized that in order to fix bodies, professor shares. “This means access to
communist regime. Médecins Sans you have to rebuild hospitals and train water and electricity in order to power
Frontières was authorized to charter a doctors. “When you have a pathology operating theaters and an intensive care
boat: L’Île de Lumiere.3 Éric embarked but no surgery can be performed because unit.” Thanks to their efforts, a new
with doctors and journalists. Their you have no operating theater, no resus- generation of Afghan surgeons is now
goal was not only to save the migrants citation and no anesthetist, it is the operating in Kabul. The main mission
© DR

© DR

fleeing by boat;4 they wanted to draw ultimate congenital inequality.” Out of of La Chaîne de l’Espoir is to support

64 HEALTH TOMORROW 65
2 | CURE

lights on, it is complicated to turn them


“When you have off. You need to think about opera- The professor is very active
a pathology ting costs. Without a proper budget, a in Southeast Asia.
hospital doesn’t cure, it kills.” To gua-
but no surgery can rantee this balance, Éric supports a
be performed “Robin Hood policy” – in other words,
because you have no making the rich pay. “We have a well-
tried concept: to set up right next to the
operating theater, hospital a ward welcoming the poorest
no resuscitation of the poor, at no cost to them.” Fun-
draising and financial partnerships
and no anesthetist, finance these operations. But these
it is the ultimate sources have been weakened by the
worldwide decline of public fundings.
congenital To add insult to injury, “Donald Trump
inequality.” has decided to diminish the budget going
to the big agencies.”

and train local surgeons throughout WHITE ELEPHANT


their career, to guarantee the quality Access to surgical care remains
of healthcare. “The French school of however a key marker for the health of
medicine is held in such high regard that millions of people in the 21st century.
it makes all these adventures possible,” Éric saw it coming when he launched
according to Éric. “It is a kind of magic La Chaîne de l’Espoir.
touch, the envy of the whole word.” But “We used to focus on pandemics like
to guarantee its presence in 35 coun- malaria or AIDS. Fortunately, foun-
tries, the NGO has to call upon doc- dations like the Bill & Melinda Gates
tors from all of Europe. “By finding Foundation have hugely improved the
candidates willing to join us abroad, we situation.” However, very few organiza-
can alleviate our failing medical demo- tions or social entrepreneurs have the
graphy. We are lacking anesthetists, necessary experience to build, equip
pediatricians, obstetricians, at a time and run a hospital. The market belongs
when we are about to open a maternal de facto to profitable private compa-
care unit in Abidjan.” nies. “China delivers turnkey hospitals,
which end up closing fifteen days after
ROBIN HOOD their opening due to lack of staff.”
For the most high-risk areas, La “If you don’t have the adequate human
Chaîne de l’Espoir develops specific resources, a hospital is a white elephant.”
programs. “Our doctors might be taken Thus, the colossal work initiated by
hostage. When we can’t guarantee their La Chaîne de l’Espoir remains crucial.
security, we use remote digital solutions “We started as caregivers, but we became
to train local doctors.” It is especially builders and trainers. And now, we also
the case in Africa. “The French Foreign employ architects, administrators and
Office, sometimes strongly, advises engineers.” In an age of upheaval, every
JEAN-FRANÇOIS MOUSSEAU / CDE

against travelling to 80 % of African single link of the chain matters.


countries. Five years ago, there was no By Fleur Weinberg
warning against many of them.” 1. “The Chain of Hope” in French.
Beyond the security risks, very few 2. “Doctors Without Borders.”
NGOs dare to get involved in running 3. “The Island of Light.”
a hospital, which is excessively costly. 4. After the capture of Saïgon by the
© DR

© DR

“From the second you turn a hospital’s People’s Army of Vietnam.

66 HEALTH TOMORROW 67
CHAPTER 3

IMPROVE
3 | IMPROVE

REY FAUSTINEO have to work three jobs and are at the


mercy of the first economic shock. The
results are pockets of silent misery and
One Degree, a great many homeless people living
side by side with opulence. We plan on

“The Yelp of Social Services” expanding to other cities soon, chiefly


Los Angeles.

What are the upcoming challenges


A child of immigrants, Rey Faustino had an extremely difficult time when his family for One Degree?
started applying for social assistance in the United States. To prevent this R. F.  : We want to continue facilita-

from happening to anyone else, he launched a digital platform in the heart of Silicon ting access to social organizations and
understand why people use them or not.
Valley, providing disadvantaged people – new immigrants, the homeless, One of our biggest projects is to create a
single mothers – with easy access to services that could improve their situation. single form for applying to several entit-
lements. For now, poor families looking
for housing must fill out forty requests
1degree.org for forty different apartments. Another
challenge: make our economic model
sustainable. In the beginning, we raised
funds by calling on philanthropy. But

Y
we recently launched One Degree Plus, a
paid offer that allows NGOs and social
ou introduce housing, as well as help fighting against could be useful to others, in particular services to have access to statistics and
yourself as “the domestic abuse, assistance to LGBT social workers and health professio- to measure their impact, because the
Yelp of social or suicide prevention hotlines. Users nals. We work with hundreds of NGOs. data we collect is valuable.
services”. Can you can choose to provide their location We train them to use our platform as
enlighten us about and more information: their income, a search tool for digital resources. We Does the election of Donald
this concept? the size of the household, languages also launched One Degree Referrals, Trump, who has promised serious
R. F. : We wanted to use an analogy with spoken. Depending on these parame- which allows them to send referrals cuts in assistance and health
the well-known application that allows ters, we point them towards the appro- to the people they assist, directly by programs, affect your work?
people to look for restaurants or bars priate structure, specify its address, its email, text message or post. They can R. F.  : It is simple: we have four times
nearby and leave a review. One Degree, hours of operation and, above all, help then see if their audience follows up or more requests linked to legal immigra-
based on the same model, gives access them to apply. It is important because not. Eventually, the digitization helps tion and 40 % more users in Spanish. It
to relevant NGOs and social services, each organization in the USA has its social workers do their job better. is also one of the strengths of this plat-
depending on your situation. In the own procedure to follow. One may ask form to be able to obtain information
San Francisco Bay, where we are based, to fill three pages of forms, another to Why develop this app in a very about our community and know their
there are over 1,500 of them. Despite spend some time talking around a desk, prosperous area like California? needs. To be honest, we are prepared
that, we realized that there is no cen- and yet another one to book an appoint- R. F.  : It is the wealthiest area in the for anything with this government.
tralized directory to help underprivile-
ged people find organizations and thus
ment way ahead of time. With One
Degree, this information is super easy to
USA, and maybe in the world, and this
is the way it is perceived from the out-
But many social services in the USA do
not depend on federal financing. What
“We want to allow
get the resources that will truly change find and share. side. But it is exactly the reason why Trump will destroy will be made up for users to report on
their life. We also want to allow users
to report on the quality of the social Is One Degree only for people
One Degree is legitimate there: this
wealth is concentrated in the hands of a
by philanthropy and local policies. I was
a Filipino immigrant myself, arriving in
the quality of the social
sector, in the same way we leave online living in poverty? tiny portion of the population and ine- the United States at 8 years old, in 1990. sector, in the same
restaurant reviews. R. F.  : As a technological organization, qualities are extremely high. 1.3 mil- My parents worked several jobs to put way we leave online
we had to focus our energy on a specific lion people here live under the poverty food on the table. Our family has strug-
How does the platform work? population to build a reliable product. line and cannot even meet basic needs gled a lot to navigate the many social restaurant reviews.”
R. F. : We facilitate access to a full range of So we started with single underprivile- such as healthcare. Rent has become benefits. I would have liked to have had
social or non-profit services: healthcare, ged mothers as well as isolated indivi- outrageous, and we have lost count One Degree back then!
© DR

food, banking, affordable or temporary duals. Then, we realized that One Degree of the number of single mothers who By Côme Bastin

70 HEALTH TOMORROW
4. CARE 3 | IMPROVE

“Law 3andak Dam


has two meanings.

W
In the Egyptian
hy did you calculate with precision the impact of dialect, the literal
create Law
3andak Dam?
Law 3andak Dam, but we estimate that
a request could reach a million poten-
translation is ‘if you
H. K.  : In Egypt, tial donors. have some blood’.
there is a signifi-
So the power of social networks is
But it is also
cant blood shor-
tage because of the corruption at work at the heart of your model. an expression that
in blood banks and some hospitals, H. K.  : Exactly. During the 2011 revo- means ‘if you have
especially the private ones. When a lution, I noticed how much Egyptians
Texte courant person is in vital need, his or her loved were using the Internet, Facebook a conscience’”.
ones are often asked to pay for or and Twitter. Even my grandmother
even to provide bags of hemoglobin. was connected! The number of Inter-
I endured this myself eight years ago net users in Egypt tripled during this H. K. : At first, I was worried about their
when one of my cousins was hospita- period. I am not a doctor. I have a reaction because, like many Egyptians,
lized. As a consequence, many Egyp- degree in computing, and I work as a I believed them to be corrupt. But I
tians no longer trust blood banks and musician and director. So I told myself realized that the corruption was lar-
have become reluctant to give their that it was the right moment to set up gely the work of a few individuals in
blood. So most of the time friends or Law 3andak Dam. I launched the pro- private establishments. The National
family find themselves having to send ject on social networks, and it worked Blood Bank has in fact proved itself to
an emergency SMS to their entourage right from the start. Proof that it res- be a very good support. When its direc-
to ask them to give blood. This hap- ponds to an important need. tor called to meet me, I immediately
pens in a disorganized manner and explained that the people didn’t trust
limited scope. The objective of the Law Through the name of the project them. I told him that if they wanted to
3andak Dam platform is to eliminate as well as the graphics of the site, help us, it must be done discreetly, wit-
the middleman – whom Egyptians you have chosen a rather light hout using the logo, for example.
don’t trust anyway – in order to effec- tone of communication which
tively connect donors and patients. contrasts with the gravity How do you reach people who don’t
And it is all free. of the subject. Why? have Internet access?
H. K.  : Law 3andak Dam has a double H. K.  : We run awareness campaigns
How does this platform work? meaning. In the Egyptian dialect, the about blood donations in the field, in

HISHAM KHARMA H. K.  : On the one hand, our portal


includes a register on which people can
literal translation is “if you have some
blood”. But it is also an expression that
partnership with public authorities. We
also speak in certain businesses that

The Blood Donation Social Network


sign up as donors. On the other hand, means “if you have a conscience”. So it wish to organize a campaign for their
it is possible to send us a request for is a willingly provocative name. Clearly, employees. Today, we are in discus-
blood which we then distribute widely. the message is: “If you have blood, give sion with telephone operators to inte-
Many partners, such as celebrities or it.” What’s more, Egyptians, especially grate them into Law 3andak Dam and
Faced with corruption and the shortage of blood supply institutions, share these requests on in times of crisis, love humor. I thought send requests for blood by SMS. After
social networks, thus reaching a great that it was a good way to attract atten- having brought donors and demanders
in Egyptian hospitals, Hisham Kharma launched Law 3andak Dam in 2011, number of potential donors who can tion and make the project go viral. And together, we would like to put the ins-
a website that matches patients to donors. By eliminating the middleman, then contact the patient or their family it worked: people and the media were titutions in relation with each other.
this system lets those in urgent need of blood connect with hundreds directly. Our system is quick and easy curious to know what was behind the Another of our projects is about the
to use. There is no need to download name and graphics. creation of a blood bank network. Its
of thousands of potential donors through the power of social networks. an application or to fill out registration goal: to invite people to give blood in
forms: we cannot allow ourselves to How did the National Blood Bank rural areas where the Internet is little
impose all these procedures when it is react when you launched the developed and where blood is needed.
© DR

law3andakdam.com a matter of life or death. It is hard to project? By Perrine Massy

72 HEALTH TOMORROW 73
3 | IMPROVE 3 | IMPROVE

EDITH ELLIOTT
From Stanford to Indian Hospitals
When she was studying design at Stanford University, Edith Elliott received
an invitation from Professor Devi Shetty to go to India. He suggested that she apply
design thinking to improve the operation of Narayana Health, the chain
of low-cost hospitals he founded. As a result, Noora Health was born: an NGO
that trains Indian families to provide care to hospitalized family members.

noorahealth.org
The NGO teaches the patient’s
relatives health gestures
and reflexes.
“We are working

H
with twenty-five
ow did an
American end up
Shetty’s. We then realized that in all
of them – this applies to the United
hospitals and should in post-surgical complications. We also
train them to check vitals such as tem-
launching an NGO States as well – the patient and his or soon intervene in perature or blood pressure. We focus as
in India?
E. E. : I met the people
her family don’t really know what they
are supposed to be doing once they get
twelve more, thanks well on administering medication. They
are simple things, but knowing them
I founded Noora back home. In India, families travel far to a partnership improves the care that patients receive
Health with five years ago, when we
were students at Stanford University.
to get to a hospital and they live there
for five to ten days while their relative
with the States at home and their healing process.

Each of us came from different disci- is being treated. They wait for hours, of Karnataka What is Noora Health’s
plines. I was studying global health and praying and eating in hallways. So we and Punjab.” impact today?
foreign policies, Shahed Alam and Jessie asked ourselves how to mobilize these E. E. : We are working with twenty-five
Liu were to become doctors, and Katy relatives that want to be helpful, but hospitals and should soon intervene in
Ashe was completing a master’s degree do not know how. This idea gave birth to include the right content. Today, we twelve more, thanks to a partnership
in Engineering. We were however fol- to Noora Health. After getting started have set up many training courses for with the States of Karnataka and Pun-
lowing a common course that we were in the Y Combinator2, we moved to different types of diseases. Our core jab. In total, we have trained 90,000
passionate about: “design for extreme Bangalore, India. work remains the same: we go to hos- relatives of patients. It is a lot, but it
affordability”. We then met Professor pitals, train nurses, with the help of remains a drop in the ocean of India’s
Devi Shetty, the founder of Narayana How did design videos for instance, then they in turn 1.3 billion inhabitants. We want to
Health1, a chain of low-cost hospitals thinking help you? train patients and their families for develop our model and our programs so
in India. He invited us to his country E. E. : Once the problem was identified, the purpose of caring for the patients that other organizations and govern-
and suggested we use design thinking we swiftly went on to experimenting. at home. ments can adopt them. We also hope to
to solve some of the problems he was We started working with a nurse who be part of several pilot programs out-
facing. He was our first contact with has since become head of training Can you give us a few examples of side of India.
India and its healthcare system. After programs at Noora Health. Together, what you teach families?
that, everything happened quite fast. we developed educational materials E. E.  : Noora Health covers cardiology, In India, languages vary from
that healthcare workers could use to oncology, neonatal care, maternal one state to the other. How do you
What problems did you identify at teach family members some health health and diabetes. For instance, after successfully communicate
that point? gestures. These tools were designed a heart surgery, we train families to with all families?
E. E. : First, we visited many public and with and for relatives. We also liste- recognize the warning signs of a heart E. E. : We work on all educational mate-
© DR

private hospitals, starting with Dr ned to doctors, of course, to be certain attack. This leads to a 70 % reduction rial with our teams of experienced

74 HEALTH TOMORROW 75
3 | IMPROVE

A man takes the pulse of his father under


the supervision of an instructor.

designers. Whether we develop videos treated fast enough, the child became How do you finance your system, we will be able to work more
“When given or printed documents, we favor a blind. It was only afterwards that he programs? closely with the government. We are
the right information visual communication that doesn’t was diagnosed with jaundice. “If only I E. E. : At the moment, we mostly rely on involved in a highly technical environ-
require literacy. With regard to more had been informed, I would have known philanthropy, but we hope to develop ment that we are trying to make more
in the right way complex information, videos can easily how to react,” the father regretted. our own economic model. We already simple. The challenge is to avoid getting
and at the right be dubbed. Every day, we see how much impact have a team of paid instructors for sucked in by bureaucracy, and to remain
moment, the family How do families react
our programs have. When given the
right information in the right way and
some private hospitals that we partner
with. Our objective is now to collect
flexible in order to accompany the deve-
lopment of healthcare in India.
becomes to your work? at the right moment, the family beco- data to quantify the impact of our inter- By Côme Bastin
an extension of Last weekend, for instance, we
E. E.  :
faced a tough story. A woman had
mes an extension of the health system.
Inversely, failing to instil them with a
ventions. We have to show that Noora
Health diminishes the risks of complica-
1. Read Krishna Udayakumar, p. 82-83.
2. This Californian start-up incubator is
the health system.” given birth to a sick baby and did not few basic health reflexes can cause a tions and readmission. When we prove considered one of the most demanding and
© DR

know how to react. Because he wasn’t lot of damage. that we reduce the cost of the health prestigious in the world.

76 HEALTH TOMORROW 77
2 | MAKE 3 | IMPROVE

SURTITRE

Y
« TITRE » ou have placed the
patient-doctor “Patients forget
healthcare system billions of euros per
year. The same amount of money could
relationship at
the center of your
up to 80 % of the be saved with better communication.
Chapeau information given
project, why? What is the project’s impact?
It has changed
A. J.  : at the doctor’s A. J. : Two indicators are essential for us.
a lot in recent years. Patients want First, on the level of the patients: 3,000
to participate more in the decisions office because the have received an understandable expla-
that concern them. They need intel- medical language is nation of their medical reports thanks
ligible information to do so. Sadly,
doctors use very technical termino-
incomprehensible.” to our platform since its launch in 2011.
Second, on the level of the professionals:
Texte courant logy in their reports, often with Gre- more than 600 students in Germany
co-Latin roots. It is a jargon that the terms and by the time they get home, and Switzerland have been trained in
patients are unable to understand. patients forget up to 80 % of the infor- smooth communication. We have also
A word like “gastritis” doesn’t exist mation given to them at the doctor’s succeeded in building a good network
in modern German: we would say office because the medical language is within the German healthcare system
“Magenschleimhautentzündung”. incomprehensible. by cooperating with health insurance
So we put into place a simple solu- Many universities are starting to companies and the Ministry of Health.
tion to this problem: we translate measure the importance of this pro-
medical documents into clear terms. blem and are trying to respond to it How can the platform be
The person anonymously uploads his with new approaches. Was hab’ ich developed to reach more people?
or her medical file to the Was hab’ ich offers one of them. Medical language A. J.  : Of course, we are trying to
platform or submits it by fax. It is then must be taught, of course, but you enlarge our field of action. Doing more
translated by a medical student or a should also learn to express yourself translations means collaborating with
doctor from one of our teams, spread in a way that is smooth and accessible more doctors and students and devo-
throughout Germany. These volunteers for the patients. The road is long, but ting a lot of effort to their training. This
have received a complete training we are optimistic: our classes get really will not only allow us to integrate them
from our employees to learn to sim- good feedback from students. into our platform, but also to improve
plify reports. Since 2014, we also give their future relationships with their
classes on the subject in the universi- On the medical level, what patients. To take it even further, we are
ties of Hamburg, Marburg and Dres- are the advantages of a better working on a new project. In Germany,

ANSGAR JONIETZ den, where we have our head office.

Are you saying that before


understanding by the patient?
A. J. : A better understanding of the dia-
when you leave a hospital, you receive a
medical discharge report, which is also

“WHAT’S UP, DOC?”


gnosis enables them to ask pertinent difficult to decipher.
Was hab’ ich, no universities questions. For example, patients can We have therefore developed sof-
were teaching doctors how to make informed decisions when a surgi- tware, that care centers are charged
communicate with patients? cal procedure is being considered. In the for, which makes the speedy transla-
Who hasn’t been confused by a complicated prescription? A. J. : It was taught, but not sufficiently. long run, participating in discussions tion of these documents possible. The
The problem isn’t that professors dis- has a positive impact on their health first results of this pilot program show
In 2011, Ansgar Jonietz thought up Was hab’ ich, a platform that helps regard the question or that they lack itinerary, on their morale and on their that patients are more satisfied with
patients “translate” medical jargon into accessible terms. As a result, 32,000 empathy. In reality, it is the doctor-pa- overall well-being. On the other hand, their treatment and give hospitals a
simplified diagnoses have been written by the organization, which also trains tient relationship that is in question. patients who don’t understand their more positive evaluation. We have high
In Germany, general practitioners only medical reports are often uneasy with hopes for this project, as its impact
German doctors to have a smoother relationship with their patients. have seven minutes per person in their their therapy. As a result, treatments could be very important. In Germany,
office, on average. When they are at a are followed haphazardly or recommen- there are 2,000 structures treating
consultation, patients are often afraid dations are read approximately. This can over nine million people each year that
washabich.de to ask questions or simply don’t know have a negative impact on the well-being are likely to benefit from it. 
© DR

© DR

what to ask. Add to this some abstruse of the patient. It also costs the German By Timothée Vinchon

78 HEALTH TOMORROW 79
2 | MAKE 3 | IMPROVE

I
ndian TV has described V. G.  :Every product likely to contain releasing a small amount of CO2
you as a “green crusader”. chemical components, like paint, proportionally to its population.
Do you see yourself as a kitchen utensils, cosmetics or textiles, V. G.  : This is a widespread but falla-
crusader? is analyzed to detect toxins and endo- cious argument that consists in hiding
V. G.  : I do not subscribe to crine disruptors. So far, we have awar- behind the poor. But it simply ignores
a warlike vision of ecology, ded this label to one hotel, one school India’s global responsibility, which is
yet it is true that I feel vested with a and one online store. A company pro- now the world’s third most polluting
mission. Cbalance, which I founded, ducing compost and another one spe- country, after the US and China and
helps companies to put a real inter- cialized in an ecological additive for in front of Europe. This is not going
nally sustainable development policy fuel should receive it soon as well. It is to improve with the combination of
into place. To do so, we thought up an our desire to be able to grant the label population increase and the multiplica-
ecological calculator that measures not to plants and factories. Green Signal tion of cars and air conditioners. It also
only carbon emissions, but also the is still very recent, but it is definitely fails to see that India is one of the most
resources used by an organization. At going to grow in the years to come. vulnerable countries to climate change
the moment, the majority of Indian and the rise in sea-level.
companies outsource the management Are Indian consumers really Even more to the point, this ecolo-
“Developing of these tasks to a third-party, which responsive to these gical turning-point is a golden oppor-
renewable energies explains why environmental concerns
are always perceived in terms of cost
environmental indicators?
V. G.  : We are witnessing a shift in
tunity for India. Developing renewable
energies will allow us to rely much less
will allow us to rely and constraints. However, their eco- public awareness. The megalopolises on external sources of energy, like oil,
much less on external logical footprint should be considered have entered the age of mass consump- and to diminish the number of pre-
a non-negotiable imperative, in the tion: today, individuals define themsel- mature deaths linked to the levels of
sources of energy same way we make sure that a building ves through what they buy. In India, pollution.
and to diminish conforms to safety standards. Ano- we already have a star-rating system
ther project of ours, Green Signal, is a indicating how much energy a product With that goal in mind, how
the number of label that helps ecologically committed consumes. As the population sees its do you reconcile India’s
premature deaths.” consumers to spot the products and purchasing power increase, it becomes future growth with the
services that respect the environment. gradually more aware of the environ- environmental imperative?
ment. These labels are crucial in order As the saying goes: “a negawatt2
V. G.  :
How do you evaluate the impact to avoid “greenwashing”. will always be cheaper than a megawatt”.
that these companies and products The first thing to do is to curb the
have on the environment? Do you practice carbon footprint demand for energy, which will rise dra-
V. G.  :We apply the GHG protocol,1 reduction in your everyday life? matically as our GDP increases. People
developed by the World Resources Ins- V. G. : Yes I do, because I believe that a often think in terms of individual

VIVEK GILANI titute. First, we calculate all the green-


house gas emissions coming directly
from a company’s activities, which we
more responsible individual accounta-
bility is the key to improving things on
the global scale. Unfortunately, many
emissions or of the ecological cost of an
activity, but it is important to unders-
tand that our ultimate goal is to lower
One Man’s Crusade call the attributable carbon footprint.
The same goes for an individual: if you
self-styled environmental advocates
don’t follow a very eco-responsible
our total greenhouse gas emissions.
Next, we have to ensure that the lar-

for Ecology in India drive your own car, you are personally
responsible for the vehicle’s CO2 emis-
lifestyle. At our Bombay premises, we
practice what we preach. We turn our
gest possible proportion of the energy
consumed comes from renewable and
sions. But we also focus on the emis- left-overs into compost, we favor day- non-polluting sources. And last but
sions that are partially or indirectly light as much as possible and we turn not least, the benefits of the econo-
With eco-labels and an ecological footprint calculator, this enthusiastic activist caused by the company. For example, on LED lamps when it gets too dark. mic growth must be distributed equi-
develops tools to help Indian companies and citizens to move toward a less when electricity is used, a coal plant Even when we travel, we opt for trains tably among the population, for social
carbon-hungry growth. The objective: to fight against climate change and diminish somewhere might have produced it. instead of planes. It is slower but much inequalities foster inequalities in the
So we evaluate the suppliers, who also more relaxing . access to energy which in turn contri-
pollution-related mortality, in a time of rapid economic growth for India. have an environmental impact. bute to environmental problems.
We often hear that India should By Côme Bastin
Tell us more about this eco-label: not feel so concerned about 1. Greenhouse Gas Protocol.
© DR

cbalance.in how is health taken into account? climate change since it is only 2. A unit of saved energy.

80 HEALTH TOMORROW 81
3 | IMPROVE

KRISHNA UDAYAKUMAR “There is a huge


opportunity of
Necessity is the Mother of Invention inverse innovation:
understanding the
With the NGO Innovations in Healthcare, Krishna Udayakumar solutions imagined
studies and supports promising innovations in the domain of healthcare access in developing
– mainly in emerging nations. The objective: use these innovative models countries and
as an inspiration and duplicate them in developed countries. adapting them to
reform our own
Innovationsinhealthcare.org healthcare system.”

I
ntroduce us to your work? also play a key role in supporting the Can these models be useful outside addressing and to build the model
I am in charge of global
K. U.  : most isolated populations. There is of the context where they were based on their needs. Next, you have
innovation at the Global Health a huge opportunity of inverse inno- originally imagined? to use technology in a disruptive way,
Institute, which is attached vation: understanding the solutions K. U.  : Absolutely! The North Star including mobile. Mobile phones have
to Duke University. Six years imagined in developing countries and Alliance model is now being copied in spread across the planet and have
ago, with Mackenzie and the adapting them to reform our own Africa. As for Narayana Health, they become the main tool to reach every
World Economic Forum, we launched healthcare system. Within our NGO, a are opening a hospital with a cardiology community. Finally, you have to avoid
the NGO Innovation in Healthcare. Our group of thirty members, composed of and pediatrics services in the Cayman activities that are too costly. Bring
objective is to study the best advances hospital practitioners, scholars or even Islands, and they are partnering with care from hospital to clinic, from cli-
in healthcare across the planet, to backers, analyzes these new models. Ascension Health, the biggest Health nic to community, from community
figure out what works, what doesn’t, NGO in the USA. There is also the NGO A low-cost clinic, to home. Give power to patients and
and to help scale them up. To this end, Can you give us a few examples of Basic Needs, which operates in seve- part of the Narayana Health their families so that they are able to
we seek the most talented inventors the solutions you study? ral Asian and African countries. This chain, in India. act and take control of their health.
and give them tools: funding, skill K. U. : We work with 74 organizations organization relies on local and com-
development, networking, etc. Concur- in 70 different countries. A good exa- munity development to care for mental And the obstacles?
rently, we work with many multinatio- mple is Narayana Health, in Banga- illness victims. We have worked with K. U.  : Access to funding is always a
nals or foundations, with the aim of lore, India. Thanks to telemedicine, them on an adjustment plan that will major challenge. In low or middle
transforming how they operate based economies of scale, and an innovative allow them to set themselves up in the income countries, there is a lack of
on the model of social enterprises. internal structure, this hospital has USA, which we are really proud of. year-round business, of investment
We also try to push public policies and developed procedures for low cost and funds, of public markets. It makes
healthcare systems towards providing high quality surgery. Thus, an open With everything you survey, have matching supply and demand com-
a better access to care. heart operation costs them 2,000 dol- you found the recipe plicated. A second challenge: unders-
lars instead of the usual 100,000. Ano- for innovation? tanding your ecosystem. Sometimes,
Why do you show a specific ther example: the North Star Alliance, K. U.  : This is what we are trying to social entrepreneurs have good inten-
interest in developing countries? in South Africa. This chain of clinics determine: what are the criteria to tions but lack real knowledge of all the
K. U. : The most significant innovations has set up its dispensaries in shipping innovate succesfully in healthcare, inner workings of healthcare systems.
© ADAM PLOWRIGHT / DR

often emerge from an environment containers to provide basic health and and what are the common obstacles? They require help to operate in what
where resources are limited or reser- well-being services to workers such as There is no miracle recipe, but recur- is a very regulated environment, with
ved for the rich. When people have low truck drivers. In the end, the innova- ring ingredients. First, you need many actors. It is not always easy to
income, technology must be deployed tion is not so much in the technology to be centered on the consumer, to find your way and kick into high gear.
© DR

sparingly. Community social workers as in the way needs are met. truly understand the people you are By Côme Bastin

82 HEALTH TOMORROW 83
3 | IMPROVE
“We have never
known as much
about health and
disease as we do
today. But this
bility. We have never known as much pay more attention to keeping people
about health and disease as we do scientific progress healthy. This, in turn, calls for better
today. But this scientific progress doesn’t even reach education and changes in our lifestyles:
doesn’t even reach half of the people access to clean water and sanitation,
in the world. We cannot accept this half of the people healthier diets, more physical activity,
situation, and therefore I organized in the world. ” greener cities, etc. We need a change of
the World Health Summit on the occa- perspective from disease and medicine
sion of the 300-year anniversary of the to health and well-being.
Charité to raise awareness and to forge of communicable diseases pretty well
alliances across political and sectoral – at least in theory. Pandemic prepare- Where does health innovation
borders. Since 2009, it has gathered dness and antimicrobial resistance are come from today? Do you believe
more than 1,600 leaders from aca- still urgent problems. Bacteria that in the potential of
demia, politics, civil society, and the acquired an antibiotic resistance have social entrepreneurs
private sector, under the patronage of the potential to catapult us back to the to bring new solutions?
Germany, France and the European pre-penicillin era. Much remains to be D. G.  : Innovation begins with every
Union. The World Health Summit’s aca- done to improve vaccination for many single person. They might be working in
demic think tank is provided by the diseases. We still suffer from an insuf- a lab between Petri dishes and micros-
“M8 Alliance”, a unique collaborative ficient access to healthcare in many copes or in a health startup. They might
network of leading international medi- areas of the world and urgently need be a parent, a teacher, a sports trainer,
cal universities and the InterAcademy to find answers to the infrastructural a cook, a sociologist, a politician or the
Partnership (IAP) for Health. issues. To add to that, noncommuni- CEO of a company. One innovation
cable diseases (NCDs) have become an may become the next breakthrough in

DETLEV GANTEN
How is civil society being equally important burden in both rich therapy, another may help children get
included and how are you and poor countries. NCDs like heart a healthy diet. We all have our areas of
making sure that a gathering diseases, stroke, cancers, diabetes, influence in which we can bring inno-

Much More Than Medicine like this doesn’t seem out of touch
with societal concerns?
D. G.  : We enjoy a very lively coopera-
chronic kidney disease, and Alzhei-
mer’s disease kill 38 million people
each year.
vation and initiate change. This is why
we want everyone to attend the World
Health Summit: health is one of the
tion with major organizations in civil most complex issues of our time –  if
Since 2009, this German researcher has chaired the World Health Summit, society, like Médecins sans Frontières, How does climate change not the most complex. We need a holis-
which brings together 1,600 leaders from all horizons to tackle the great health Gavi, The Wellcome Trust, The Glo- affect health challenges tic concept of Health. Policy, ideas and
bal Fund, CEPI, Save the Children, on a planetary scale? creativity from all sectors and areas of
challenges of the 21st century. For Professor Ganten, it is time to move to a more UNICEF, Transparency International, D. G. : Global warming affects health in the world must unite to achieve better
holistic approach to health including environment, education and well-being. WWF, and many more. It is our mission many ways: in the future we will expe- health for all.
to bring in their perspectives at the rience more disasters like floods and
World Health Summit and discuss them. storms. Vectors like mosquitoes will What figures have inspired you?
worldhealthsummit.org You will never find a keynote session or transport diseases in areas they did not D. G.  : Many influential thinkers and
a workshop that does not feature spea- occur in before. People will leave their wonderful people have inspired me:
kers from these different sectors. The countries when safe drinking water, Rudolf Virchow, Professor at the Cha-
World Health Summit is an open and clean air or sufficient food supplies rité, who created the concept of public

T
democratic event that welcomes every- cannot be guaranteed anymore. We health in the 19th century, or the
body. We could not endeavour to try to have to do everything in our power to 20th-century philosopher Karl Popper,
ell us about your on hypertension. One of my central I became Chief Executive Officer at the find answers to global challenges if we slow down climate change and to mini- who argued that the source of our opti-
© WORLD HEALTH SUMMIT / S.KUGLER

career prior to topics of interest in recent years has Charité – Universitätsmedizin Berlin didn’t acknowledge the expertise from mize its effects. mism is our vision for a better world.
becoming the been Evolutionary Medicine and Glo- and merged the Medical Faculties of every health-related sector. My personal inspiration also comes
president of the bal Health. I was born in Lüneburg, the Humboldt University in East Berlin For you, what is the difference from my grandson Jasper, 12 years
World Health Germany. I earned my PhD at McGill and the Free University in West Berlin. From your point of view, between health and medicine? of age, who participated in the World
Summit? University, Canada. In 1991, I became what are the great changes D. G. : Health is much more than medi- Health Summit and told his friends that
D. G. : I
worked for many years in phar- the Founding Director and President of Why did you launch the World and challenges in health since cine. It is above all a matter of educa- his grandfather was doing something
macology and molecular medicine and the Max Delbrück Center for Molecular Health Summit in 2009? the end of the 20th century? tion. We must not focus exclusively important.
contributed to the global research Medicine (MDC) Berlin-Buch. In 2004, D. G.  : Academia has to take responsi- D. G.  : We have tackled the challenges on fighting diseases, we should also By Côme Bastin

84 HEALTH TOMORROW 85
3 | IMPROVE

2 | MAKE

UWE DIEGEL
Restoring the Connection...
Uwe Diegel settled in Paris a few years ago and has contributed
to the rise of connected health by developing iHealth Lab Europe.
At 50, he is turning the page and launching a new entrepreneurial adventure,
more connected than ever. His mission remains however unchanged –
lower the cost of managing chronic pathologies.

lifeina.com

I
felt that I had become a plas- this linguistic misadventure, though,” remain protected. Having a micro
tic salesman,” confesses Uwe teases Uwe. fridge dedicated to medication also
Diegel while explaining why protects children. “When a child ingests
he left iHealth Lab Europe, TRAVEL FRIDGE a pill by accident, nine times out of ten,
the connected health giant Uwe then had the idea to draw up it happens because it was stored in the
that he had launched. He also the plans of a travel mini-fridge, the fridge. For instance, chemotherapy pills
blames his midlife crisis, that turned size of a smartphone, to store medi- can be mistaken for candy.” Enthusias- “Nothing in
towards altruism: “When you have a
company, you are not just trying to make
cation. With a recovered battery, he
even built a prototype. “Every person I
tic about the project, Uwe says he has
already won prizes and got an encou-
his life suggested
money. You also have a social responsibi- talked to about it told me: ‘It’s amazing.’ raging reception from patients for this that Uwe would
lity as a business manager”. After clim- But at the time, I had other things in the invention, whose release is imminent. reshape connected
bing Kilimanjaro, Uwe took on a new pipeline, mainly the launch of iHealth.” he first met with success in 2014, the go to see the doctor three times as much
challenge: LifeinaBox. “The company Today, this project is out in the open. A CONNECTED PIANIST health. Born in year when connected objects started as on the other side of the Atlantic.”
started somewhat by accident,” begins LifeinaBox is now a real life USB rechar- Nothing in his life suggested that New Zealand in 1965, to become more widespread. “In one Convinced that the trend is changing,
Uwe. A few years ago, his brother from geable pocket refrigerator, connected Uwe would reshape connected health. or two years, you won’t be able to buy a Uwe adds that “connected health encou-
New Zealand decided to visit France. to a mobile app that controls the tem- Born in New Zealand in 1965, he he was a concert device that isn’t connected. Everything rages the user to become a public health
“My brother is kind of a special traveller, perature and sends you notifications was a concert pianist until the age of pianist until that can be connected will be.” actor”. Connected health gives practi-
because he is diabetic. But he loves to
travel around, so he always carries insu-
when you need to take your medica-
tion. For the entrepreneur, “chronic
26. But an accident partially limited
movement in his right arm. He then
the age of 26.” TOWARDS PREVENTIVE
tioners time for prevention. The goal:
teaching patients to manage themsel-
lin.” One night, in a little hotel in the illness defines your lifestyle. Might as well became a caterer, the manager of a HEALTHCARE ves. “Diabetes, cardiovascular diseases,
Loire Valley, the owner had trouble lighten the load”. Diabetes, multiple jazz club and an entrepreneur in South chronic diseases and designing dia- “Connected and assisted health is not cancer, obesity and asthma: the majority
understanding English, so when Uwe’s sclerosis, cancer: his invention might African dairy production. In 1992 he gnostic devices. In 2009, when smart- the future, it is the present,” analyzes of these pathologies are caused by our
brother asked him to keep his insulin be a relief for the 3.5 million people started a career in medical measuring phones and 3G rose to prominence, he Uwe, who thinks health systems must lifestyle. Technology offers an entertai-
in the fridge, he put it… in the freezer. in France who are “prisoners” of their devices. His areas of focus: blood pres- naturally moved towards connected embrace what is already available. ning way to visualize and keep an eye on
At 11 PM, Uwe’s brother daily injec- medication. Looking beyond his misad- sure, body temperature, asthma and health and created the iHealth Lab in And that is “a sum of technologies that data like blood pressure or body fat.” The
tion time, he got back frozen and use- venture, Uwe also considered all those diabetes. Uwe launched Microlife in the United States. “I went to see Apple can manage the patient, not just their “Steve Jobs of connected health” then
less doses. “Luckily, we were in France: who commute to work on a daily basis. 1994, developing new technologies to offer them to connect my tensiometer illnesses”. He criticizes Europe’s social concludes: “I am not here to save the
police opened the on-duty pharmacy and Thus, an employee won’t have to put and taking an interest in industrial to the iPhone. Apple gave me the authori- system, which is too slow at moving world, but I would like to be proud to have
supplied him with his insulin in twenty their medication in the shared fridge design. He slowly became a market zation to register the iHealth trademark,” towards preventive medicine. “In done something to make it better.”
© DR

minutes. My brother is still annoyed by at work, and their confidentiality will leader and a world expert on managing reminisces Uwe. Ahead of his time, France, medicine is mostly curative. We By Fleur Weinberg

86 HEALTH TOMORROW 87
CHAPTER 4

BUILD
4 | BUILD 2 | MAKE

TONY MELOTO rials to make hand-sewn stuffed toys


for children inspired by farm life. 24
new enchanted farms are in develop-
The Plan to End Poverty pement “to help communities emanci-
pate themselves, in collaboration with
engineers and marketing people”. The
Through the construction of villages, NGO Gawad Kalinga wants to give goal: to foster an ever-growing number
of social businesses.
the poorest populations the keys to food sufficiency as well as economic and
intellectual self-reliance. The next stage will be to foster a whole generation A WIN-WIN SITUATION
of social entrepreneurs ready to face the challenges of today’s inequalities. The strength of Gawad Kalinga lies
in the way it characteristically brings
several actors to work together. The
inhabitants take part in the building
gk-europe.org and the maintenance of their own
infrastructure. Volunteers from all
around the world (many of whom
are students) come to contribute to

S
the life of communities. Businesses
also take part in construction or give
ome midlife crises are Tony Meloto has always felt that help not 1 but 24 million people escape financial support to the NGO. Moreo-
insignificant; others “you cannot solve the problem of poverty poverty by 2024,” foresees Tony ver, the Filipino state praises this
can change a person. without a global approach: health, safety, Meloto. In order to reach this number, approach on its end as complementary
Tony Meloto has faced food and education.” This explains why he wants to shift from a philanthropic to public policies.
such a turning point. Gawad Kalinga isn’t solely concerned mission to a cost-effective business Through this reasoning, Tony
In 1985, he had no with providing homes. It also creates a model. Aside from the construction Meloto wants to refute the idea of
idea of what was to come as he laid whole eco-system for community deve- of villages, the NGO has begun to globalization being the mother of
the foundation for a house destined lopment. Each community includes train social entrepreneurs among the all inequalities. “We develop social
to a poor family from a neighboring a farm, health facilities, schools and locals, in order to create profitable businesses which could one day become
Filipino slum. “I wasn’t happy to just cultural centers. People inhabiting economic prospects for the inhabi- multinationals. We collaborate with big
be making money in the business world,” informal settlements face the daily tants. Spearheading this program are companies to support our programs.
remembers the former senior manager dangers from unhealthy living envi- “enchanted farms”, which function And when we help people come out of
at Procter & Gamble. “So I got in touch ronments; for example, the proximity as both agricultural production cen- poverty, we also open new markets. It is
with a Christian humanitarian organiza- of dumping sites and contact with ters and business incubators. Why a win-win situation when the poor and
tion.” Thirty years later, Tony Meloto tainted water. are these two activities combined the wealthy work together!”
has quit his job and now heads one of together ? Because Gawad Kalinga Communities following this model
the most famous movements against A HOLISTIC APPROACH believes that the development of the have been built in Cambodia and
poverty, Gawad Kalinga. By providing communities with countryside is the first requirement Papua New Guinea. But for the NGO,
The goals of Gawad Kalinga (“taking shelter, toilets, clean drinking water for the development of the Philip- Indonesia seems to be the most pro-
care” in Tagalog, one of the Filipino and an energy source, by teaching pines, which is why the organization mising ground. Jakarta’s governor
dialects) can be summed up in three children the basic rules of food safety targets entrepreneurial business has signed a partnership with Gawad
phrases: “providing land for the lan- and hygiene, Gawad Kalinga conside- using agricultral raw materials. Kalinga in order to help 3,000 fami- “When we help people
dless, home for the homeless and food for rably improves the health and well- Extending over 86 acres, the first lies access social housing. In Australia, come out of poverty,
the hungry”. Tony Meloto’s solution?
To build ecological and self-sufficient
being of populations. “By transforming
the physical environment, you transform
enchanted farm to see the light of day
was born North of Manilla, in Bulacan.
the suburbs of Melbourne will soon
witness the construction of a village
we also open new
communities to take in the poorest of the behaviors and the habits of the inha- Several social businesses have already intended to improve the living condi- markets. It is a win-win
Filipinos. Some 3,000 such communi-
ties have been created since the first
bitants. You create people that take care
of themselves and others.”
been founded there. Bayani Brew sells
an ice-tea brand using the crops from
tions of the Aboriginal population.
This goes to show that Gawad Kalinga’s
situation!”
one was born in 1999, enabling more The considerable amount of work local farmers. Gourmet Keso’s cheese model can spread far beyond the bor-
than a million people to step out of initiated by Gawad Kalinga is just is renowned all across the Philippines. ders of the Philippines.
© DR

extreme poverty. a starting point. “Our objective is to Plush & Play uses ecological mate- By Côme Bastin

90 HEALTH TOMORROW
4 | BUILD

“We have reached


24 million people

Y
ou often speak of
who otherwise Transport logistics are expensive.
the importance of would not How do you find the needed
the “last mile” in
healthcare access.
have been able funding ?
A. C. : Most of our revenue comes from
What do you mean to receive care.” collecting funds during the MotoGP
by that? races. We organize events around the
A. C. :On one side, there are the inha- courses and auction off memorabilia
bitants of certain isolated zones. Most A. C. : At the moment, we have a fleet of donated by the riders. The Health Minis-
of the time, they have to travel over 2,500 vehicles present in seven African tries also contribute. We charge them a
thirty  kilometers to get care for their countries: Lesotho, Zimbabwe, Malawi, per kilometer fee that includes fuel, spare
children. So they do without care, which Kenya, Liberia, Nigeria and Gambia. parts and the training of personnel. We
puts them in danger. On the other side, We have reached 24 million people who chose this strategy from the beginning:
public health organizations do not have otherwise would not have been able we are an NGO and cannot pay for all the
the means to come to them. Twenty-eight to receive care. But training people in vehicles across Africa. However, it is not-
years ago, we decided to create Riders for mechanical maintenance and delivery for-profit, the funds for the race events
Health,1 an NGO entirely dedicated to also creates economic opportunities! and our internal functioning are covered
transport. It wasn’t the most passionate Individuals who were unemployed by other revenue sources.
part of development aid, nor the most before are now earning money. They are
selling. But it is absolutely essential, wit- proud to be part of an innovative pro- Are the authorities conscious
hout transport, nothing is possible! ject and to contribute to the improve- of the impact of your work?
ment of the healthcare system. Finally, A. C. : It depends on the value they
How can these problems ensuring a predictable and trustworthy attach to their “distant” communities.
of conveyance be resolved service means showing that, for the The healthcare budgets are often feeble,
in the field? first time, the state is doing something and it is easier to reach people in urban
A. C. : The objective is to use existing for them. zones than in far-off regions. Happily,
vehicles in an optimal way and to ensure other organizations use our services.
their maintenance. This means managing for example, the Centers for Disease
A rider stops by a village.
everything: lubricants, fuel or even repla- Control and Prevention (CDC). We were
cement parts. So we train in mechanics able to put this collaboration to the test

ANDREA COLEMAN
and spare parts management to optimize during the Ebola epidemic in Liberia.
transport and maintenance. We also Usually, we are faced with rather slow
train riders, thanks to celebrities from pandemics such as AIDS or tuberculosis.

Health’s Angels
the motorcycling world. These “ambas- With Ebola, we had to detect the virus in
sadors” participate in our program by a hurry. So we set up a dedicated sample
contributing to qualification. But the transport program. By using relays and
people we train are more than just mecha- motorcycle delivery, we were able to run
In numerous African countries, rural inhabitants find themselves isolated nics and riders: they are full-fledged tech- our diagnostics in far-off communities
from health services due to battered roads and a lack of vehicle access. nicians who work with the care provider and send them to laboratories. Reaching
on arrival. We also try to promote parity, these zones permitted a complete and
To repair these issues, Andrea Coleman founded Riders for Health in 1989. by working with both men and women. effective action. In the end, the CDC
The organization equips rural communities with cars and motorcycles and Thanks to all this, medical centers come was quite clear: without our work, they
ensures their maintenance so they can gain access to health services. Twenty-eight to isolated populations and not the other wouldn’t have been able to bring the cri-
© RIDERS FOR HEALTH

way around. sis under control like they did.


years later, it counts 2,500 vehicles and 24 million people served. By Timothée Vinchon
Beyond healthcare access, 1. The organization is today separated in two
what impact does your action entities: Riders for Health (operational) and
ridersintl.org have on distant communities? Two Wheels for life (fundraising).

92 HEALTH TOMORROW 93
4 | BUILD

PHILIPPE DE ROUX
The Shanty Town Water Dowser
In 2008, he co-founded Water and Life, an NGO that today has developed
social enterprises enabling access to clean drinking water and garbage collection
in shanty towns in the Philippines, Bangladesh and Ivory Coast.
This effective social business model is now being tested in Northern countries,
also confronted with issues of urban inclusion.

Eauetvie.fr

Water and Life brings drinking


water to shanty towns.

T
he poorer one is, operator that provides each home water is of poor quality, which results It seems that water having
the dearer one pays, with running water, organizes garbage in significant health care expenses. “People are a price is important to you.
is it this “double collection, cleans the streets, forms a The water that we distribute is a little ready to pay to have Don't you think water should be
penalty” that your volunteer fire brigade and installs clean more expensive, but clean! When spea- free?
NGO, Water and public toilets. In exchange for these king about impact, everything must water in their homes, P. D.  R. : I am a member of the Water
Life, is tackling? services, the populations make regular be taken into account: the diminution provided that there Coalition, which fights against cutting
P. D.  R. : Exactly. Having worked seve-
ral years in microcredit, I noticed that
per household payments of mutualized
bills. The social enterprise is situated
of healthcare costs, the gain of time,
the decrease in school absenteism…
is a real service, off of water. But it is necessary to be
aware that all that is free is not sustai-
the most underprivileged dealt with in the shanty town and 80 % of its Near slums districts, water losses due and that we trust nable, it is as simple as that. A contri-
loan sharks when they needed to bor-
row money. It is also true for water in
employees are also recruited on site. In
case of non-payment, a secure indivi-
to pirating and leaks make up nearly
80%. With Water and Life, we are at
them and adapt bution by the people is essential to
control consumption and put an eco-
shanty towns, where inhabitants go dualized account system allows them around 6 %. When your networks are to their situation.” nomic model into place. At the same
and buy it from illegal resellers that to control, or eventually cut, the flow under your control, you control the time, the costs must of course be par-
pirate the network, corrupting com- to those who refuse to play the game. It quality. That is what we often say to order, colossal debt of the condomi- tially subsidized, as “water doesn’t pay
pany agents and expensively reselling is this alliance between the proximity city mayors: rich and poor share the nium syndicate… all while the costs for water”. In Europe, the installation
water stocked in dirty cans. In 2008, of the service and professional mana- same germs. are higher than in Paris. Just as we of the network was paid with taxes. The
I began our water action with Valé- gement that explains the success of did in shanty towns, we will create a rich zones paid for the poor ones, as
rie Dumans, co-founder of Water and our solution. Do you only work in social enterprise, charged with acting has been done with education, and that
Life. The option taken by the majority developing countries? as a multi-service operator, with 850 is great. Did you know that during fifty
of NGOs is to create hydrants where service, and that we would trust them To what extent does this P. D. R. : Historically, we are established people to start with. The inhabitants years Paris consecrated 40 % of its bud-
women and children can supply them- and adapt to their situation. management by a social in the Philippines, in Bangladesh and of the area will be recruited and trained get to clean up its water supply? Mont-
selves. But this solution is unsatisfac- enterprise impact the price in Ivory Coast. But we are also invol- to insure the proper functioning of the martre and Butte aux Cailles used to be
tory: we observe conflicts of interest How does your solution work? of water? ved in a process of “reverse innova- services, to collect bills and to conduct shanty towns in 1860. Thanks to public
between communities, non-payment P. D. R. : In each country, Water and Life P. D. R. : Our prices are five times lower tion”, seeking to apply what we have awareness campaigns. The common policy, they are now ranked amongst
of providers and, in the end, domina- relies on two structures. On the one than those of canned water on average learned in developing countries in water units will be renovated, the cur- the most prized neighborhoods of
tion by the most powerful. In reality, hand, there is an NGO that deals with and currently benefit 22,000 people. In Europe. In this way, we work in France, rent services individualized and billed Paris. In a world that tends to put up
managing water is a skilled trade. We advocacy, community mobilization and the Philippines, water represents 25 % in La Grande Borne in Grigny, the lar- according to use: water, electricity, gas. walls with massive urbanization, the
said to ourselves that people were raising awareness of hygiene or fire pre- of a family’s budget, but only 6 % with gest housing project in Europe. In this We have also been asked by Veolia to city must be treated as a whole. Urban
ready to pay to have water in their vention. On the other, there is a local our system. In Bangladesh, it is diffe- urban enclave, the problems pile up: support a large Romani camp in Sofia, inclusiveness is the key.
© DR

homes, provided that there is a real social enterprise, a true multi-service rent: the prices are subsidized, but the building degradation, elevators out of Bulgaria. By Côme Bastin

94 HEALTH TOMORROW 95
4 | BUILD 4. BUILD

FLAVIANO BIANCHINI employees. The difference in price


comes from the mining technique,
which respects neither human rights
Texte courant

Data Worth Its Weight in Gold nor the environment. You still have
to dig a huge hole in the ground to
extract something, and it inevitably
Too often, communities fail in their legal battles against polluting companies impacts the ecosystem. It is costlier,
but we can implement standards to
because of a lack of scientific evidence. In 2005, Italian researcher limit the damage and enforce a few
Flaviano Bianchini created Source International which helps community basic principles.
members assert their social and environmental rights by providing science Is it easy to deal with
experts to collect and interpret data. the authorities?
F. B. : Our actions regularly go against
the State. In theory, it has the duty to
source-international.org protect its citizens, but in reality, it is
often the accomplice of the polluting
company because of lobbying or cor-
ruption. The first step is always to go

W
see the company and tell them: “we have
scientific proof, now you have two choices:
hat impact How can a community go up or dangerous. You must provide tan- either we talk, or we end up in court and
do mining against these giants? gible proof of what you are arguing. we organize international support cam-
activities F. B. : We provide NGOs and advocacy Our data helps citizen groups to stren- paigns.” It usually works because they
have on groups with the scientific proof they gthen their arguments in order to get have a reputation to protect.
health and the need for their fights. When a com- compensation. If an NGO proves that
environment? munity considers itself the victim of a river is polluted, the company, faced How do you see the future?
F. B. :Extracting activities are amongst a mine’s pollution and wants to halt with irrefutable scientific statements, F. B. : With population growth, the
the most polluting in the world. For its activities or at least seek financial will no longer be able to deny its impact. demand for materials from the mining
instance, in the United States, the EPA1 compensation, it needs to prove the For instance, in Mexico, the Carriza- industry will rise and lead to more pol-
considers mining waste as their leading loss it is suffering. That is what our lillo community received an important lution. One of the main challenges is
environmental problem, even before team of scientists do. We go on site, compensation from a gold-mining thus to tackle this public health issue
nuclear waste or chemical products. collect data and establish reports that company – around fifty million dollars by learning from previous cases. In El
And this, despite the fact that it is one of are then used to make social and envi- over five years. We have also induced a Salvador, after sixty years of mining,
the countries with the strictest norms ronmental progress. A lot of citizens change of the mining law in Honduras, there is a city that is considered dead
and for which we have the most data. contact us. We choose those we work where the Supreme Court declared it because of the pollution. After too
It is already alarming, but the situation with in accordance with our resources unconstitutional, following the publi- many ravages, the same country
in other countries is much worse. In and with our team. The length of cation of one of our studies, because it became the first to ban metal mines on
some remote areas of South America those missions varies a great deal. violated human and sanitary rights. its territory. It is our duty to prevent “Imagine you must
or Africa, there is neither control nor
data, although we witness a child mor-
Sometimes we stay a few weeks, we
train them and come back. Sometimes Is it possible to transform mining
the same situation from happening to
others in sixty years.
take legal action
tality up to twelve times higher than we spend up to two or three consecu- extraction into a responsible By Timothée Vinchon or start a lobbying
activity?
the country’s average. For instance, in
the city of Cerro De Pasco,2 100 % of
tive months there. Right now, we are
working in sixteen countries, most of F. B. : More or less. Producing an ounce
1. The United States’ Environmental
Protection Agency (US EPA) is an agency
campaign against
the inhabitants should be rushed to the the time on mining problems. of gold in Canada, a country where independent from the US government, an activity you deem
polluting or dangerous.
© SOURCE INTERNATIONAL

hospital. Their blood tests show a level standards are observed, costs about created in 1970 with the task to study
of heavy metals that is way too high! How does the data you collect help 600 dollars. In Honduras, it costs and protect nature and the United States’
Beyond the sanitary risks, the issue is communities? 200 dollars. You often hear that it is citizens’ health. You must provide
also political. Mining companies often
abuse their influence over local popula-
F. B. : Imagine you must take legal
action or start a lobbying campaign
because salaries are lower, but that is
false. They are even higher in Hondu-
2. This Peruvian mining city is located at an
altitude of 4,300 meters and has high levels
tangible proof of what
tions and governments. against an activity you deem polluting ras, because you have to pay expatriate of lead and arsenic pollution. you are arguing.”

96 HEALTH TOMORROW 97
4 | BUILD 4 | BUILD
“In each case,
the objective is
to invent solutions
that we can then

H
ow did you get the
share with the rest
the spot as long as necessary to involve
idea to mix techno- of the world. the survivors and ensure that they can
logy with humani- Everything keep up the work afterwards. We orga-
tarian aid? nize many classes and workshops to
D. D.  : I graduated
we design is train them in the techniques we use.
from an industrial open source.” In Nepal, over 400 inhabitants have
design school. Two years after the ear- thus been trained in 3D printing since
thquake in Haiti,1 I went there to take our arrival.
part in the rebuilding. I noticed supply Do you work in war zones as well?
problems everywhere. Machines were D. D.  : Thanks to a grant from the You are a young NGO. What do you
in ruins because of something as simple FabFoundation, Field Ready is now want to work on in the future?
as a missing bolt, and water treatment present in Syria. We create search and D. D. : I am really proud to see how far
facilities would break down because rescue equipment, which is otherwise we have gone in such a short time! We
nobody knew how to maintain them. prohibitively expensive and hard to get will set up in ten new disaster areas
In Port-au-Prince, I met a nurse in the field. We have notably designed shortly. In each case, the objective is to
that had performed five deliveries in a a lifting airbag to rescue people from invent solutions that we can then share
single night! She had just used her last collapsed buildings by lifting debris with the rest of the world. Everything
latex glove to cut an umbilical cord. weighing several tons. We have found we design is open source.3
Left without sterile tools, she was at a way to make them on site with locally We are also looking for innova-
risk of contracting diseases like AIDS. available materials, such as tires. This tive technologies that would allow us
This truly shocked me. I wondered if I airbag costs around fifty dollars – one to manufacture more items. We are
could use 3D printing to make certain tenth of the regular cost – while mee- especially enthusiastic about 3D metal
items like the gloves directly in the field. ting international standards. This pro- printing. It is still expensive, but the
Indeed, importing supplies can be long, duct has already saved two people in costs should come down in the years to
costly and uncertain. I had a 3D printer Syria, but this innovation could also be come. We would then be able to make
shipped by boat from New York and used in the rest of the world. equipment and medical devices direc-
that is how I started mixing technology tly in the field.
with humanitarian aid. You are often associated with 3D
When I came back to California, printing. Is it the only technology How big is your team at Field
I met Eric James. He had worked in you are using? Ready and how do you fund your
the field for years. He was the ideal D. D. : 3D printing is fashionable at the work?
partner! We launched Field Ready – our moment, and it is true that it helped D. D. : We have 25 full-time workers but
NGO – in 2014. make us known. So much the better, when a natural disaster occurs, we are
but it is just one of many tools. When joined by a great number of volunteers.
Since then, where have been your we get to a new place, we start by liste- We are also in touch with the maker

DARA DOTZ “fields” of operation?


D. D. : We have intervened in places like
ning to the locals’ needs instead of for-
cing predetermined answers on them.
community4 involved in humanitarian
work. We have been funded by innova-

Short Circuit Emergency Response


Kenya and South Sudan. We are now In the case of Syria, it was almost tion grants, partnerships and private
focusing on an R&D program based impossible to cross the border, which donations. Field Ready is a not-for-pro-
in Kathmandu (Nepal) in partnership put us in danger. We had to impro- fit humanitarian NGO, so everything
with the NGO World Vision. On site, vize and use local resources: so long, we make is free.
In a disaster area, importing supplies can be long, costly and uncertain. our designer, Ram Changra Thapa, 3D printing! After the earthquake in By Côme Bastin
works with Abi Bush, a 3D printing Nepal, we used laser cutting to build 1. The earthquake struck on January 12,
Dara Dotz, cofounder of Field Ready uses new technologies like engineer. Together, they started by model houses to show people how to 2010, and killed 300,000 people, injured
3D printing to assemble and repair tools directly in the field. Since 2014, making spare parts for equipment that rebuild their homes. another 300,000 and left 1.2 million people
this innovative NGO has intervened throughout the world, had been damaged in the earthquake, homeless.
before devizing tools for doctors in How are you ensuring that local 2. A type of stethoscope used to listen to the
most notably in Sudan, Nepal and Syria. isolated communities. They then 3D populations use these technologies fetus’ heart rate.
printed otoscopes, fetoscopes2 or after your departure? 3. The data and the blueprints can be down-
tweezers. Ram also designed pieces D. D. : It is a key point. When we develop loaded and used for free.
© DR

fieldready.org that improve incubators. humanitarian solutions, we remain on 4. DIY and digital making enthusiasts.

98 HEALTH TOMORROW 99
4 | BUILD

JAN IN’T VELD associations in Africa. But our main


means of distribution remains our own
missions. Focus On Vision is a founda-
Universal Eyecare tion and collects donations as such to
intervene in Panama, Tanzania, Kenya,
Ghana or even Nepal.
Exhuming a forgotten invention, the “adjustable glasses”,
Where does your funding
Jan In’t Veld designed a polyvalent glasses frame. Costing less than ten dollars, come from?
these glasses can correct up to 93 % of vision problems. J. I. V.  : It is actually quite hard for us

Working in Africa, Asia and South America, his foundation, to find funding. Wearing glasses has
become so commonplace for Western
Focus on Vision, has already equipped 350,000 people. people that they have a hard time
imagining the difficulty of obtaining
them in other parts of the world. In
focusonvision.net thirteen years, our foundation has
collected two million euros in dona-
tions. Two million euros for 350,000
beneficiaries is only around six euros

Y
per person. It is a really small sum!
We wouldn’t need much to resolve the
ou made a career table glasses”. It attracted our atten- lenses. As for me, I am more skilled in problem once and for all. To be honest,
in steel, what tion. We made some further research the commercial aspect, so I developed I think that some groups are lobbying
brought you to the and discovered that a certain Luis the mass production of these glasses. against us, trying to slow down our
question of vision Alvarez, who won the Nobel Prize in development. Some ophthalmologists
conditions? Physics in 1968, had invented them. How do these glasses work? and opticians see my activity as com-
Fifteen years
J. I. V.  : At the time, the technologies used to J. I. V.  : Once you are wearing the petition. But that is ridiculous, since
ago, my son-in-law visited Dar es-Sa- make optical lenses were limited. The glasses, you can adjust them by moving Focus on Vision operates precisely
laam, the capital of Tanzania. He is material available was so heavy and the little wheels on each side of the lens. We where they don’t.
myopic and wears glasses, but he resulting glasses so thick that it would have developed a model designed to fix
noticed that none of the students at the have been impossible to actually wear myopia, correcting vision ranging from What is your strategy
university wore them. In comparison, -1 to -5, and a model for hypermetro- for the coming years?
30 % of all students attending univer- pia (or long-sightedness), ranging from J. I. V.  : Until now, our glasses have
sity in the Netherlands wear glasses. “I am not so young +0.5 to +4.5. These two models cover been distributed in 45 countries. To
When he came back, we studied the anymore, I have 93 % of vision conditions. I regret the be more efficient, we have decided to
numbers from the World Health Orga- fact that we cannot cover all of them, concentrate our efforts on three of
nization (WHO) and its “Vision 2020” grey hair, but before but this allows us to fix most cases of these countries: Ghana, Kenya and
program, whose goal is to get rid of the I pass away I would poor eyesight. We are also set on lowe- Tanzania. For example, in Ghana,
main avoidable causes of blindness. We
learned that one billion people in the
like my glasses ring production costs to a minimum:
under ten dollars.
we focus on cacao farmers. Ghana’s
median annual income is 1,768  dol-
world need glasses. Unfortunately, they to benefit at least lars. But for those farmers, it is only
Who benefits from
either don’t have the means to obtain
them, or they re simply not available
one million people.” your adjustable glasses?
325 dollars. This amounts to less than
one dollar a day. In my own life, I am
where they live. In the Netherlands, J. I. V. : More than 350,000 people! We not lacking anything; there is always
you can find an optician anywhere. But them. So Luis Alvarez patented the use several channels of distribution. For food on the table. I created Focus on
in some parts of Africa, Asia or South technology, which has since entered example, ophthalmologists who work Vision with these people in need in
America, there are very few opticians. the public domain. My son-in-law, Fre- with NGOs and perform free cataract mind. I am not so young anymore, I
derik van Asbeck, having the technical surgery in developing countries carry have grey hair, but before I pass away
How did Focus on Vision start? knowledge at his disposal, decided to these adjustable glasses with them to I would like my glasses to benefit at
J. I. V.  : In “Vision 2020”, we also unearth this invention and went on to distribute them to their patients. We least one million people. 
© DR

stumbled on the expression “adjus- design adjustable glasses using plastic also collaborate with a number of small By Perrine Massy

100 HEALTH TOMORROW


4 | BUILD

D
eforestation happen and provide revenue as well as stable him: nature, the forest and, above all,
at a rate of one foot- jobs. Not to mention that they regu- the human being.
ball field every three late climate. One of Kinomé’s current develop-
seconds,” explains In addition to its agroforestry ope- ment goals is the cultivation of Moringa
Nicolas Métro. “And rations, Kinomé leads several applied leaves. They are known for their medi-
yet trees are essen- research programs, notably with the cinal virtues, notably antibacterial,
tial to life, and there is an undeniable link “but they also offer hyper-nutritive pro-
between forests and our health. 40 % of perties that are under­ utilized today,”
our food is pollinated by insects that live “Kinomé uses adds Nicolas. “After one year of growth,
almost exclusively in forests. And half of
all anticancer drugs come from there!”.
forests as without the need for fertilizers or pesti-
cides, the tree produces its first shoots.
To make up for this ecocide, “all a powerful lever for They represent a quickly available source
each of us would have to do is plant two
trees”. Simple on paper, not so easy in
human and of food and income for households.”

real life. “Most reforestation projects fail economic THE MORINGA LEAF
because locals don’t see trees as valuable development.” In West Africa, many children suffer
enough.” And forbidding their destruc- from malnutrition, and thirty  grams
tion “only works if you give people a good of Moringa powder a day are enough
reason not to do it”. In 2005, Nicolas French National Institute for Agricultu- to eliminate stunted growth. “Right
founded Kinomé – the eye of the tree in ral Research and the CEA.1 Among the now, the World Food Program favors local
Japanese – based on this premise. subjects they are working on: soil micro- agriculture over import. We work with the
biology, the link between trees and cli- Togolese government to distribute this
A LEVER FOR DEVELOPMENT mate or the social and environmental powder at schools and directly to fami-
The social enterprise rejects “band- impact of reforestation. “Kinomé is lies.” The NGO has also established a
aid solutions”. To put a stop to the trying to have a better understanding of partnership with the Red Cross in Togo
destruction of ecosystems, it uses the everything forests can bring, including to generate jobs for women, who sell a
idea of forests as a powerful lever for regarding health,” Métro explains. “We portion of their crop.
human and economic development. involve local institutions, NGOs, agencies Ensuring the smooth operation of
Kinomé’s core business isn’t limited to such as the AFD2 and large corporations in the network remains a daily challenge.
planting trees; rather, it is to give birth our programs.” “In the case of Moringa, we came to rea-
to sustainable industries. Large corpo- lize that drying the leaves could lead to
rations, NGOs and institutions call on PROFESSIONAL bacterial contamination,” admits Nico-
its expertise with three main goals: to TURNAROUND las Métro. “So we had to rework the way
encourage local employment and agro- After graduating from a top we ground, treated and stored them.”

NICOLAS MÉTRO forestry, to conserve cultivated forests


and to produce first-rate raw materials.
business school, Nicolas worked for
twenty years as a senior manager at
Indeed, Moringa has now begun to be
exported to Northern countries for

Back to the Trees!


Since its beginnings, the social LVMH, M6 and Ubisoft. But then plant-based protein, sports drinks or
enterprise has planted 4.5 million trees something clicked as he was marketing anti-diabetic foods.
in Africa, Latin America, Asia but also and strategy director at the French What is Nicolas most proud of?
France and Romania. In 2010, they video games developer. “Improving the lives of populations in the
How do we reverse the deforestation that is tearing the planet apart? launched Forest and Life, a campaign to “Human resources suggested that I long-term by providing them with jobs
involve the public in its actions. On its work on life skills as work skills. One and food.” Between Asia and Africa,
Nicolas Métro is adamant that planting trees isn’t enough: “We need to rekindle website, anybody can donate to send thing led to the next, and I ended up trai- he hasn’t forgotten the forests of
the primal link between humans and their forests.” His social enterprise – plants to villages or support a family. ning in ethical leadership, which gave his native France. He regularly visits
Kinomé – organizes sustainable agroforestry networks that protect The goal is not to beautify the me an understanding of fundamental schools to plant trees with the child-
landscape, but rather to better the life human needs, which are universal and ren. Maybe one day they will care for
the environment while providing economic opportunities to local populations. of millions of people. Trees maintain timeless.” He gave himself six months the Earth as adults too.
MALARD

groundwater, which in turn fills wells to change his life and came up with By Fleur Weinberg
and rivers. This allows children to go Kinomé. Today, with a third of his for- 1. The French Alternative Energies and
© FABRICE

kinome.fr to school instead of fetching water mer salary, Nicolas says he is happy to Atomic Energy Commission.
DR

from far away. The trees feed families reconnect with what truly matters to 2. French Agency for Development.

102 HEALTH BOOK 103


2 | MAKE 4 | BUILD

SURTITRE Like Steve Jobs,


Shona McDonald’s
« TITRE » tion. However, she refused to accept
story begins in a the disabled are not devils, but individuals
defeat and decided instead to prove garage with two who need support,” explains Shona. We
Chapeau the medical field wrong by using her
knowledge of sculpture to assemble an
associates. She had regularly organize talking circles with
leaders from rural communities to discuss
adjustable wheelchair that was tailored successfully raised the rights of handicapped people.”
to suit her daughter’s everyday life. By a little money Through these meetings, Shonaquip
making her posture more ergonomic, is also able to identify the families who
Shona’s daughter was now able to use when the first might need their wheelchairs. Moreo-
her hands more efficiently, “and above wheelchair orders ver, it brings them closer to public ser-

Texte courant
all to communicate and play”.
Working with a picture of a Swedish
began to come in. vices: learning and medical centers or
social services. “At the other end of the
wheelchair as the basis, Shona solicited chain, we must do our best to ensure that
the help of the division of Biomedical nal therapists work together to design doctors are sufficiently informed when a
Engineering from the University of wheelchairs and buggies suited to the parent comes to see them,” concludes the
Cape Town. Her perseverance even- specific needs of each child. More than business woman.
Shonaquip makes tailored tually paid off when –  for Shelly’s 70,000 children have already been
wheelchairs for every type second birthday  – Shona was able to issued a wheelchair. AWAY WITH CHARITY
of handicap. give her a small, tailor-made, moto- Shona is striving to ensure that
rized buggy. TALKING IN CIRCLES disability ceases to solely inspire pity

SHONA MCDONALD MUTUAL SUPPORT AND


RESOURCEFULNESS
“Creating wheelchairs is but the intro-
duction to a much larger mission,” adds
this self-taught engineer. Energized by
and charity. She aspires to make it an
area for social and medical innova-
tion. Her determination has already
Heal on Wheels The story could have ended there.
But Shona was deeply involved in
the Uhambo Foundation, which backs
her company, Shona’s teams mobi-
allowed her to strike a deal for a
public-private partnership that keeps
mutual support groups for parents of lize to fight prejudice against disabled the company’s order books full. This
In 1992, Shona McDonald decided to assemble a wheelchair adapted to her children with disabilities and she qui- people. “You have to make it clear that in turn encourages the government to
ckly understood that others could use take the needs of children with disabi-
daughter’s disability. Twenty-five years later, she is the founder and CEO of this kind of tailored equipment. This is lities into account in its policies and to
Shonaquip, a social business of sixty employees that has produced more than 70,000 how Shonaquip was born, in 1992 – the make them a reality.
fusion of Shona and equipment. Asked about her view of the future,
ergonomic wheelchairs in South Africa. In addition, this self-taught wheelchair Like Steve Jobs, Shona McDonald’s Shona won’t mention the imminent
engineer created a foundation dedicated to changing mindsets and public policies. story began in a garage with two asso- launch of a new innovation. She sim-
ciates. She had successfully raised a ply states that her main goal is to “keep
little money when the first wheelchair doing what [she is] doing”. The same goes
shonaquip.co.za orders began to come in. for a potential international expan-
Twenty-five years later, Shonaquip sion. Shonaquip is already present in
has more than sixty employees (one seven African countries,1 but it favors

W
fourth of whom have a disability), a sustainable development rather than
with branches in four South African spreading its business at any cost. “We
hen she year was 1982 and South Africa was correctly. We might as well have tried to provinces. must get involved at the governmental
discovered under an embargo, which made it put her on a bike,” states Shona. Doc- The company hasn’t lost an iota level for any of these solutions to be fully
that her impossible for her to import a wheel- tors advised her to lock her daughter at of its original philosophy: a mix of effective, this represents a huge challenge.”
newborn chair adjusted to her child’s disability. home, and to have another baby soon mutual support and resourcefulness. Hopefully, as the proverb goes: great
b a b y The only option given to her at the “to get over it”. “The making of these wheelchairs is not an oaks from little acorns grow.
–  Shelly  – time was to accept a standard hospital Confronted by a society that wilfully individual work. It is community-based,” By Timothée Vinchon
suffered from paralysis, Shona McDo- wheelchair. “It was impossible to make overlooked her daughter’s condition, explains Shona. Engineers and desi- 1. Zimbabwe, Botswana, Namibia, Mozam-
© DR

nald found herself in a dire strait. The her sit in it, or even to position her arms Shona experienced anger and frustra- gners, as well as doctors and occupatio- bique, Uganda, Lesotho and Swaziland.

104 HEALTH TOMORROW 105


4 | BUILD

CHAI LO trade. The platforms are managed by


local NGOs that partner with 1001
Fontaines: O-we in Cambodia, Ranont-
Springs for the People sika in Madagascar and Sulabh Inter-
national in India.2
Each month, a member of the orga-
In each village, a water purification station, and behind every station, nization visits the facility. The operator
shares their concerns and the challen-
an entrepreneur. It is with this business model that the NGO ges they face. Using this essential fee-
1001 Fontaines hopes to bring drinkable water to over one million people dback, the NGO regularly improves
before 2020, especially in the rural areas of developing countries. the stations’ set-up. For instance, since
August 2013, it has launched a mobile
app for the entrepreneurs. It helps
them register their clients and mea-
1001fontaines.com sure the quantities of water that are
treated and distributed. This app was-
designed with one of 1001 Fontaines’
many partners: a consulting firm called

W
Accenture.

e want to give absenteeism by four among school portation, delivery and logistics. They A HYBRID BUSINESS MODEL
local entrepre-
neurs the means
children ages 6 to 12.
The set-up looks relatively simple.
fill up the containers and begin their
tour of the local shops, inhabitants
“With our system, One of the specificities of 1001
Fontaines is its business model, which
to improve the The station must be located near a and collectivities – starting with the clean water isn’t Chai Lo eagerly defines as “hybrid”.
general health of
the population
water source: a pond, a stream or a
well. An electric generator activates
schools. On the way back, they retrieve
the empty containers before washing
expensive to produce. Though each water purification center
is conceived to work as an autonomous
by providing it daily with clean water,” the pump, and the unclean water accu- and disinfecting them, to reuse them We can fix the price unit, they could not exist without the
declares Chai Lo, who co-founded 1001 mulates in a tank, keeping the largest the next day. at a cent per liter, financial backing of donors. Among
Fontaines in 2005 with the help of Fran- particles in suspension. The water then “With our system, clean water isn’t these donors are many individuals,
çois Jaquenoud and Virginie Legrand. passes through progressively finer fil- expensive to produce. We can make it which makes it but also large industrial groups acting
He started in Cambodia, then quickly ters, until the final step: disinfection accessible to all, by setting the price accessible to all.” through their respective foundations.
set up in Madagascar and then in India through ultraviolet rays, thanks to a around one cent for one liter.” Even at The NGO also owes a great deal to
by 2014. The NGO intervenes in rural solar-powered lamp. Once the water this rate, the station operator’s work international organizations, notably
areas of developing countries. “These is free from discoloration, odor and, is cost-effective. The profit from the the World Bank and Unicef. Not to
regions are excluded from the water sup- most importantly, bacteria, the now sale of water makes their whole ope- forget the public sector, the Ministry
ply network, which is destined for cities as drinkable water is ready to be bottled. ration profitable, increasing its long- of Rural Development in Cambo-
a matter of priority,” explains Chai Lo. “Our system guarantees that this water is term durability. “Our aim is to make dia, Madagascar’s Ministry of Water
“Access to clean water is still very far clean and ready for consumption, in accor- each water station independent. A pro- Resources, and their counterparts in
from being universal,” he adds. Thus, dance with WHO standards,” proudly cess that rests on a successful transfer of India. “We are very proud that our work
800 million people in the world still concludes Chai Lo. skills toward a member of the community, has been recognized as useful to the public
suffer from drinking stagnant or pol- in each village. We accompany them for good.” confides Chai Lo. Indeed, new
luted water. In the villages where the A NETWORK OF MICRO- a whole year, in order to teach them how countries are expressing their interest
© FONDATION CHAMPITTET , ARNAUD TINEL

organization’s water purification sta- ENTREPRENEURS to purify water, but also how to do the for the project, following in Burma
tions have been installed, the inha- “It is very important that we act accounting of the operation.” and Bangladesh’s footsteps, which now
bitants can benefit daily from almost locally, by inspiring someone from the At the end of the training period, look favorably on the private initiative.
1.5 liters1 of water per person. The community to become an entrepreneur,” the operator is almost independent. To this day, 1001 Fontaines has 350,000
health benefits are quickly visible: an resumes the founder. “It reduces the cost They are still attached to the regional beneficiaries and hopes to reach the
independent study showed that in of delivery for example.” Each station platform, ideally located within less million before 2020. 
these communities, drinking clean can be managed by a single operator, than a day’s journey. Every month, By Charles Faugeron
water reduces the risks of diarrhea who takes care of every step of the pro- they pay a royalty to eventually 1. 0.4 gallons.
Access to clean water reduces school absenteeism.
for babies and divides the rate of cess: pumping, filtration but also trans- become the owner of the tools of their 2. See pages 116-117.

106 HEALTH TOMORROW 107


4 | BUILD

E
ven though Medtech
was thriving, you
“To prepare for turized robots that will further reduce
the invasive character of operations.
left it for Quantum the surgical act, Some nanobots could even be program-
Surgical. Why?
B. N.  : For over twelve
some foresee med to navigate inside our organism, to
deliver medicine exactly where the doc-
years, Medtech has the coming of 3D tors wish or to confirm a diagnosis.
designed robots for assisting in mini- virtual clones There are teams working on creating
mally invasive surgery on the central enhanced reality glasses to better assist
nervous system, on the brain and of the patient.” the surgeon. Finally, to prepare for the
spinal column. The corporation has surgical act, some foresee the coming
earned twenty million euros, joined the number of patients has risen due to of 3D virtual clones of the patient.
the Stock Market and gained a world- the lengthening of life expectancy. In Intelligent tools are starting to become
wide reputation. Despite this success, addition, patients have become actors indispensable in hospital blocs. With
we sold Medtech to the Zimmer Bio- in their care pathway and now demand Quantum Surgical, we are fully involved
met group last year to develop Quan- excellent, trustworthy solutions. in this tendency to respond to the great
tum Surgical. We want to explore the It is within this framework that challenges of medicine.
potential of minimally invasive surgi- robotic assistants often find their use-
cal assistance in parts of the body that fulness and their meaning: they allow What advice would you give
remain inaccessible. Personally, it is us to adapt to the growth and democra- someone who wanted to invest
the desire to endeavor, to create and to tization of minimally invasive surgery themselves in the healthcare
take up challenges that made me want that we have seen over the last twenty of tomorrow?
to embark on this adventure. years. These tools can also compen- B. N. : I would advise them above all to
sate for the lack of medical personnel. keep the patient in mind. By taking
Robotized assistance presents However, large opportunities remain an interest in people, in their needs
numerous advantages over to be taken advantage of. The current and hopes, you can create solutions
classical surgical techniques. challenge is to make these technologies to improve lives. I also think that it
What are they? accessible in all countries and to make is essential to “get your hands dirty”
B. N.  : Robotics occupies an increasingly them a common good. at some point during your career. My
important place in modern medicine. experiences in the operating room have
It can be applied to most surgical acts, How exactly can we build been decisive for me, which is why I
on almost all the zones of the body. For a more egalitarian planet, always made sure that my collabora-
practitioners, this technology makes notably in access to care? tors, from software developer to assis-
operations more precise, shorter and less B. N. : Innovation must not be reserved tant, get to observe an operation.
risky. From the patient’s side, these ope- for the privileged, but, on the contrary,

BERTIN NAHUM rations are less painful, as the incisions


are quite small. Thus, brain surgery can
should be a solution to better distri-
bute care. For cutting-edge techno-
Who are the people who have
inspired you?

Mister Robot
be done through a tiny hole in the skull logies and for healthcare in general, B. N. : In my life, I was forged by Denise
thanks to robotic assistance. In terms of these challenges call for strong politi- Avédiguian, an important figure in
post-operative recovery, it changes eve- cal action. By developing telemedicine the world of savate.1 She instilled me
rything! The risk of infection is limited, and outpatient surgery, by opening with essential and imperishable values
With his famous robots, Rosa and Brigit, Bertin Nahum has made his mark pain is reduced, as well as the length of up medicine, we can contribute to the that accompany me in daily life. On
hospitalization. Lastly, for health sys- creation of a more egalitarian world. a less personal level, I am inspired by
on the surgical robotics sector. Avid to further explore the medicine of tems, it is time and money saved. Although it is imperative to continue the strength and vision of Elon Musk,
the future, this Franco-Beninese genius has now left his corporation, to invent. I think that is essential to whose endeavors and inventions I fol-
Medtech, to launch Quantum Surgical. Here is an interview and an exercise in What place do robots currently reach as many people as possible. low very closely. More largely, I am sin-
occupy in medicine? cerely and profoundly moved by each
looking forward with France’s “Mister Robot.” Can they really benefit everyone? How do you imagine the evolution patient that we have been able to help
B. N. : These
tools are already present in of surgery? get better. They are encounters that you
many hospitals and clinics throughout B. N.  : The influence of computing and never forget and that transform you.
fr.wikipedia.org/wiki/Bertin_Nahum the world. In many countries, particu- artificial intelligence will grow. Projects By Fleur Weinberg
© DR

© DR

larly in so-called developed countries, are already underway to develop minia- 1. French boxing.

108 HEALTH BOOK 109


CHAPTER 5

CARE
5. CARE 5 | CARE

H
ow are blind won’t make it to the end. It is brutal, but tion and have learned to see in the dark,
people taken it is crucial for experiencing the world of with the help of thousands of visually
care of in the the visually impared. Guides assist you impaired guides.
world today? along your journey. As they are visually
A. H. : There are over impaired, they share their experience as How do you reinvent
285 million visual- well as their skills with you. the exhibition’s experiences
ly-impaired people in the world. Among Little by little – and this is where it it after 27 years?
them, 39 million are permanently gets incredible – engaging in a dialogue A. H. : They are in constant develop-
blind. In developing countries, two with the blind guides helps you adapt ment, because each experience is
thirds of those cases could be avoided and move around despite the darkness. unique. Every time, we have to adapt to
or cured through surgery or education. It is through this exchange of roles that the context and conditions of our local
In developed countries, where most you can really acknowledge the excep- partners. You don’t organize a Dialogue
people affected with blindness are over tional nature of the skills they have in the Dark the same way for a multi-
65, the situation is different. There have developed because of their condition. national worth billions or for a Kenyan
been considerable medical and techno- NGO struggling to pay its bills. It is a
logical advances in recent years. Nowa- The concept has become famous, totally different story. The experience
days, GPS technology helps visually have you ever doubted its success? has to have a balanced and positive
impaired people move more easily. A A. H. : Many people thought I was crazy, outcome for each partner.
charter from the United Nations and whatever did I want to put people in Our approach has been introduced
anti-discrimination legislation are also dark rooms for ? People also questioned in business schools and in many
facilitating the inclusion of blind people. the ability of the blind helpers to carry companies. We propose several for-
Nevertheless, a majority of the mats of events, supervized by visually
population is still reluctant to interact impaired people: personal development
with anyone who is visually-impaired. “Little by little – workshops, leadership training, com-
But there is no better way to fight this munication or debates on diversity.
prejudice than to meet someone who and this is where Within our own structure, we try to
developed special skills because of it gets incredible – strengthen the self-esteem and skills
their blindness. This is exactly what of visually impaired people. We have
we are doing. Our goal is that a blind engaging in a also adapted our methodology in order
man or woman might be considered as dialogue to work with profoundly deaf people
someone with different abilities rather
than as a disabled person to be pitied.
with the blind guides and seniors.

helps you adapt How did the idea for this project
Dialogue in the Dark turns the come to you?
tables. How does that switch
and move around.” A. H. : I was finishing my PhD and wor-
between roles happen? king in a radio station. One day, my

ANDREAS HEINECKE
A. H. : First you buy your ticket. The out their task, as well as their safety. Yet boss asked me to train a young journa-
experience takes place with groups of these reactions are better understood as list who had recently lost his sight in a
eight sighted people, each getting a signs of interest towards the project. car accident. At the time, I had no idea

Take the Blind Test white walking stick of the kind used by
blind people. After a short introduction,
you walk through a series of pitch-black
Aside from public opinion, on a per-
sonal level, it took me ten years to deve-
lop this project, especially to ensure its
what a blind person was capable of.
During the two-year training period I
spent with him, I was impressed by his
rooms. Each of these rooms was speci- profitability despite my total lack of abilities. It helped me become aware
With Dialogue in the Dark, professor Andreas Heinecke puts sighted people in fically designed: scents, sounds, wind, business skills. I didn’t have a penny to of the tragic misunderstandings sur-
the shoes of the visually impaired and blind, by immersing them in the dark during temperature and texture recreate speci- my name, but deep down I knew that it rounding visually impaired people in
temporary exhibitions. It is an extraordinary experience which reveals the everyday fic environments of everyday life, like a mattered to make this experience pos- German society. I decided to leave the
park, a city, a market, or a boat cruise. sible. Today, Dialogue in the Dark has station and join an organization wor-
challenges and the exceptional abilities of visually impaired people. In the beginning, you are scared, diso- toured in over 44 countries throughout king with blind people. This is how
© G2 BARANIAK

riented, because of course this is new to Europe, North America, Africa and Dialogue in the Dark began. I became an
you. You can no longer make out the Asia. More than nine million visitors entrepreneur by accident.
Dialogue-in-the-dark.com people around you and worry that you have been guided through the exhibi- By Timothée Vinchon

112 HEALTH TOMORROW 113


5 | CARE

“Dance has always


been my guiding light
and has permitted
BOLEWA SABOURIN battery. “To chase inhabitants away from
coltan quarries, militias rape and muti-
late very young girls,” explains Bolewa.
me to exteriorize
what I feel.”
The Man Who Makes People Dance According to a study by the American
Journal of Public Health, an estimated
1,152 Congolese women are victims of
At 32 years of age, Bolewa is using dance to help Congolese women sexual violence every day. Traumatized,
families flee and abandon their lands.
reconstruct their lives after rape. This renowned artist has created “Involving myself in the question of these
the association Loba around the marriage of art and activism, which crystallised Congolese women brings it all together:
my origins, dance and the way women are
as the result of an encounter with Doctor Denis Mukwege. treated.” After his encounter with Denis
Mukwege, Bolewa decided to leave his
job, fine-tune his project, and brought
facebook.com/recreationloba aboard two friends, a journalist and a
photographer. They then headed for
Congo. They arrived at the Panzi Foun-
dation, founded by Doctor  Mukwege

T
in Bukavu. It is a place where women
come to rebuild their lives, to take per-
he son of a Congolese tives to train young people from Pari- After having discovered a film by maculture and computing classes and,
dance instructor sian working-class neighborhoods in Doctor Denis Mukwege, The Man Who above all, to learn to read and write.
and of a mother who citizenship. “The way you are seen as a Mends Women, Bolewa attended one of
was a student of his young person from the hood gives you the his conferences in Paris, on March 8th, ART THERAPY
father's, Bolewa was impression that you are living in a parallel 2016.1 “It was a revelation.” The doctor Dr Mukwege treats the bodies woun-
born in Paris. He world where some have the right to pass spoke of his work for the psychological ded by these atrocities but too often the
spent a few months there before his unperceived while others would always reconstruction of Congolese women psychological wounds remain. To treat
father took him from his mother to be seen as dangerous,” analyzes Bolewa, who were victims of rape and mutila- these wounds, Bolewa is convinced that
“perfect his education in Congo”. Soon who fights against this servitude with tion. He noted that the Western aid dance is a solution. He thus developed
after his return to his hometown at the his association Loba. He refuses the intended for them did not free their a six-month dance program, in parallel
age of 6, he left to spend several years notion that these young people should voices in the same way as in better-off with a course of therapy, allowing
in Martinique. It was a childhood in grow up thinking that they are a threat countries. “Dancing and singing have women to work on their self-esteem.
motion, sometimes even of wandering. and helps them to expel this mindset always been the means for women to libe- Bolewa relied on crowdfunding from
He says he turned it into a strength: “I through dance. rate themselves, it is universal. I decided France – over 15,000 euros for this pro-
love to move; being in constant motion Charged with a youth mission for that this is what I would do with this ject, baptized Re-Creation by Loba.
has become a drug for me.” the city of Paris, he left everything man,” confides Bolewa, who reached “In the beginning, the women who
Bolewa has another drug: dance. in 2012 to better discover Congo and out to the doctor during the confe- followed the course of treatment were
Dancing allows him to express what he Africa. He wanted to see Africa again, rence. “I told him that I couldn’t intervene impressed that a young Black person
feels and make up for his lack of sta- this place that people did not stop talk- in the political field, that I wasn’t a doctor, came to dance with them and was inte-
bility. Dancing has also allowed him to ing to him about but of which he had but that I wanted to help with something rested in their fate.” But this curiosity
find love. “Although the color of my skin very few memories. The road-trip was new.” Mukwege did not react immedia- soon transformed into success. “Some
has sometimes scared people, I became challenging, physically and psychologi- tely. However, after the conference, women volunteers, once they were surer
a sex-symbol as soon as I danced,” jokes cally. “I found myself alone with my pro- the doctor sought Bolewa out directly, of themselves, created a dance company
Bolewa. “Through dance, I shined eve- blems, reflecting.” questioned him on his art therapy pro- to pass it on to other women and to call
rywhere, which built me up.” “I came back to Paris metamorphosed, ject and asked for a detailed proposal. out to all the populations of the world
reconciled with all that I was.” Bolewa 80 % of the world’s coltan reserves concerning their condition,” explains
ACTIVISM continued dancing and working for are found in the East of Congo. It is an Bolewa, thinking back to the clamour
The dancer has always tried to raise three years in social integration. He indispensable resource for digital tech- of 200 women who, on a dance set, let
awareness. When he first sought to also returned to school, to validate nology which allows the fabrication out an immense cry of deliverance.
change his surroundings, he turned his experience, and obtain a master’s of the chip that safeguards our infor- By Fleur Weinberg
© DR

to politics, setting up several collec- degree in political science. mation when a telephone runs out of 1. International Women’s Day.

114 HEALTH TOMORROW 115


5 | CARE 4. CARE

BINDESHWAR PATHAK therefore a profitable investment, and


some turn to microfinance to equip them-
selves with it. We haven’t received any
He Frees the Untouchables subvention or donation.”

with Toilets FROM TOILETS


TO EDUCATION
But the devil is in the details, since
installing clean toilets can sadly
Born into the high caste of Brahmins, Bindeshwar Pathak deprive the untouchables of a source
has dedicated his life to the emancipation of the untouchables in India. of revenue, acknowledges the doctor.
His weapon: low-cost and ecological toilets that free them from degrading “This is why it is important to let them
practice another trade. We have opened
cleaning tasks. Today, 1.3 million of these toilets have already been installed. an education center where we teach them
to read and write English for free. We also
train them, in sewing or rug weaving,
sulabhinternational.org for example. We organize meetings and
exchanges with members of other castes.”
Of course, it is a question of providing
them with a livelihood, but also with

W
autonomy and self-confidence. “It is
only in this way that we will succeed in
hen he was three months, I lived with the untou- But how do Bindeshwar Pathak’s emancipating the untouchables.”
a child, a chables in the region of Bettiah. My father, famous toilets work? “My toilets are Enormous problems of discrimi-
w o m a n who is like me a member of the high caste composed of two tanks that are used in nation subsist, and not only against
from the of Brahmins, was furious, but I continued, rotation. When one is full, generally at Dalits. Bindeshwar Pathak therefore
Dalit caste, and it was in 1969 that I developed a sys- the end of three years, we let it rest and wants to work to improve the fate
also known tem of low-cost toilets that allowed the use the other. The accumulated excrement of widows. “Some are stigmatized,
as the untouchables, often came to drop problem to be tackled.” A year later, he in the first tank then decomposes little by they do not have the right to work or
off bamboo utensils near Bindeshwar launched his NGO Sulabh International little into an odourless and safe mud that to participate in religious festivities.
Pathak’s home. Every time, his grand- to spread this technology. can be used as a fertilizer for agriculture.” They aren’t untouchables, but it is as if
mother sprinkled the house with holy The tank also produces biogas, which they were.” Sulabh International gives
water and reminded him never to DOUBLE TANK TOILETS can be used for cooking or lighting. them food and healthcare, and offers
touch her, for he would be sullied. “I Doctor Bindeshwar Pathak tackled As a bonus, only 1.5 liters of water are them an education. The NGO has also
was curious,” recounts Pathak. “One an old problem. Since the Vedic needed for rinsing each time someone gotten the law changed so that they
day, I ventured to touch her. Obviously, I period, 3,000 years ago, Indians were uses the toilet. “It is therefore a solution could participate in Holi, the Indian
didn’t fall ill. Nevertheless, my grandmo- taught not to defecate near human both economical and ecological,” deems festival of colors. At the ripe old age
ther wanted to punish me. On the advice dwellings. “This cultural heritage is still Bindeshwar Pathak. of 74, the man is confident for the
of the Pandit,1 she made me swallow cow present, and the practice of defecating The proof is that around 1.3 mil- future of his country. “Untouchables
urine and dung. That was when my revolt in the open is very widespread in rural lion of these toilets now equip homes have entered Parliament, they occupy
was born.” India, where 65 % of the population is in India. “The government has financed skilled professions and today they eat a toilet museum
After studies in sociology in the lacking basic sanitation,” he explains. the construction of 54 million toilets, ins- with Brahmins.” Just as these lines in new delhi
state of Bihar, Bindeshwar Pathak The result: major water pollution pro- pired by our model,” adds Bindeshwar are written, Indian members of Par- Time magazine has ranked The International
initially had a string of odd jobs. In blems that foster the development of Pathak. China, Bangladesh, Vietnam liament are getting ready to decide Museum of Toilets among the ten strangest
1968, he joined the committee for the numerous illnesses such as cholera, and many other countries also adop- between two candidates for the pre- museums in the world. Launched by Sulabh
International, it brings together historical pieces,
celebration of Gandhi’s centenary. To diarrhea, dysentery or typhoid. It can ted this technology. “In the beginning, sidency of India. Whatever the out-
documents and anecdotes concerning sanitation
perpetuate the Mahatma’s struggle, also undermine the security of women, it was unusual for Indians to pay for come of the vote is, it will be a victory
from 2 500 B.C. to today. There, one can discover
they asked him to work to improve the who must leave the village alone and toilets. But the biogas and fertilizer pro- for the doctor’s cause: both men are Louis XIV’s “toilet-throne” or learn that the most
conditions of the untouchables, who expose themselves to insect attacks or duced by our technology make it possible untouchables. expensive toilet in the world was bought for
often earn a living by cleaning up the rape. Some children give up on going to to fully reimburse the cost of emptying By Côme Bastin 19 million dollars by an extravagant billionaire.
© DR

trash and excrement of others. “For school because there are no toilets. the tank and even to turn a profit. It is 1. A Pandit is a Brahmin scholar or teacher.

116 HEALTH TOMORROW


5 | CARE

SURTITRE How do you help the deaf


communicate with others?
J. O.  : Imagine that you are deaf, and
“In the same way
that radio and
salute, while Americans “blow” a kiss.
All in all, 45 million people use a sign
language. If they were brought together
« TITRE » you want to buy clothing in a store.
You want to know if a size or color is in
TV have contributed into a single nation, they would be the
28th most populous in the world! The
stock, but you can’t ask the salesperson. to unifying problem is that there is no common
Chapeau Thanks to the Internet and a touchpad,
you can connect with our sign language
oral languages, sign language to allow them to unders-
tand each other from one country to
interpreters visually. Then they “trans- the Internet will another. This impedes working, or even
late” your request orally for the sales-
person. In the same way, if you need to
contribute to the travelling, internationally.

call the police or emergency services, unification of sign Can the Internet change things
you can contact our call center to have languages.” for deaf people?
J. O.  : The history of spoken language
them transmit your request orally. Our
Texte courant technology can also be used at work or is very different. To write a word,
in a public service. there is less vocabulary than in spoken we have long had letters. However,
language. until the arrival of video, the deaf
What is your business were unable to “write” their signs.
economic model? So the users can add new signs The media is also different. We have
Today, ShuR Group is based in
J. O.  : to the platform. a newspaper and a radio station to
Tokyo with thirty employees, two of J. O. : Yes, but they aren’t satisfied just spread our vocabulary and our ideas.

JUNTO OHKI whom have impaired hearing. Our


particularity is to be a business and a
non-profit organization at the same
adding current signs. They create new
ones for words that exist in oral lan-
guage but not in sign language. For
In Japan, there is a daily program for
the deaf, but it is only fifteen minutes
per day. With the Internet, all that has
Dialogue of the Deaf time. We work with structures that pay
a fee for our service.
example, Sony hasn’t imagined a sign
for the PlayStation. The same goes
completely changed. It is now pos-
sible to easily exchange videos dubbed
Many businesses want to recruit for the iPad, Microsoft or Ashoka. So in sign language. In the same way that
Although able to talk amongst themselves through sign language, it is often deaf people but they need quality trans- who should invent them? Who has the radio and TV have contributed to the
lation at an affordable price, in particu- legitimacy to decide for the deaf as a unification and spreading of oral lan-
impossible for the deaf to communicate with others. In Japan, Junto Ohki lar for the signature of a contract. Thus whole? On our platform, the users can guages, the Internet will contribute
has set up a platform to allow them to make themselves understood at work or JNTO, the principal Japanese rail com- propose a sign by recording it by web- to the unification of the languages of
to call for help by telephone. In parallel, his business ShuR Group pany, calls on us, but so does Adidas as cam. Others can then react to the video the deaf.
well as banks and department stores. It and add suggestions. The objective is to
has initiated a participative dictionary that could soon benefit the hearing... is fundamental for deaf persons to be think up a democratic process to enrich How does your platform
integrated. We also work with govern- the language. Last year, we won the accelerate the process?
mental offices, which use our services Rolex Award for our work. J. O.  : In this interview, we are using
shur.jp/en to be able to communicate with all of Skype to speak in English, although
their citizens. There are over a hundred you are French and I am Japanese. We
different sign languages want to develop our platform in order
You speak of an online dictionary. in the world. How come? to make the same thing possible for the

Y
J. O.  : It is a video database that lists J. O.  : For the same reason that there deaf. If tomorrow we have Japanese,
the different signs used by the deaf to are numerous spoken languages. Two American, French and Indian versions,
ou aren’t deaf. interpreted songs into sign language In 2008, I launched Shuwa1 Net. express words in Japanese. We have or three centuries ago, the deaf started our dictionary will allow the exchange
How did you for a musical competition. Thanks to a group of volunteer trans- identified over 3,000 words, which to come together in different schools, from one language to another. And
become interested As I progressed, I became aware of lators, this platform let the deaf com- makes it the biggest in the world. It country by country. Sometimes, there then, who knows? Maybe someone will
in sign language? the numerous problems that the deaf municate with hearing interlocutors resembles a dictionary, but it is more were several schools –  and therefore find a way to use artificial intelligence
J. O.  : I was 20 years community faces in daily life. For exa- and vice versa. Then, I realized that than that, as we use crowdsourcing. several sign dialects  – within a single or virtual reality to go even further.
old and a student at mple, to make a telephone call, they volunteer work wasn’t enough if we In practical terms, all the users can nation. In fact, the deaf use a voca- The time has come for sign language to
© G2 BARANIAK

Keiō University. I started to learn sign could use video to talk with another really wanted to change the daily lives participate in the improvement of the bulary deeply anchored in the culture be broadcasted!
language out of curiosity, but little by deaf person, but they could not call the of these people. I decided to make a database, somewhat like Wikipedia. It they were born into. To say thank you, By Côme Bastin
little it became a passion. Notably, I police or an ambulance. business out of it, ShuR Group. is important because, in sign language, the Japanese were inspired by a sumo 1. The Japanese word for “sign language”.

118 HEALTH TOMORROW 119


5 | CARE 4. CARE

KATHERINE FREUND Texte courant

Senior Transportation
In the United States, a lack of public transport services forces the elderly
to continue driving, putting themselves and the lives of others at risk.
Katherine Freund launched ITNAmerica, a community-based transportation
network for seniors. Present in 27 cities, this “Uber-like” service has totalled
four million kilometers on board its vehicles.

itnamerica.org
“In 2030, one out
of five Americans
will be over the

F
age of 65. Yet, in
or Katherine Freund, to analyze the cause of this tragic for buses and subways, they are rare crossroads of technology, information work on a program to help seniors bring
this project was born event: the glaring lack of public trans- and concentrated in heavily populated and social capital.” the land of the their pets to the vet.”
from an accident. In portation in a nation with an aging areas. As a result, “people are forced Launched in Portland, ITNAmerica automobile, cities But for ITNAmerica, the big challenge
1988, her three-year- population. to drive, even when they shouldn’t, in is now present in 27 cities throughout is to cover the rural areas, where there is
old son was seriously In 2030, one out of five Americans order to remain independent,” explains the United States, and has logged are built around road a lack of both public transportation and
injured by a visually will be over 65 years old. Yet, in the Katherine Freund. “After losing their over four million kilometers1 driven networks that are drivers likely to help seniors. “Population
impaired senior driver who mistook
him for a stray dog. Instead of let-
land of the automobile, cities are built
around road networks that are ill-
driver’s license, they are left with an ave-
rage life expectancy of only ten years.”
on board its vehicles. It has even been
nicknamed “Uber for grannies,” which
ill-suited to the needs is sparse, trips are longer, and thus less
profitable,” explains Katherine Freund.
ting hatred overcome her, she decided suited to the needs of older people. As How can we avoid choosing between Katherine Freund is not really fond of. of older people.” In 2010, she launched ITNCountry to
road safety and the mobility of seniors? “We provide seniors with the ability to remedy this.
After studying Public Policy at the move around safely for half the cost of a Built on ITNAmerica’s software
The community-based mobility Edmund S. Muskie School, Katherine taxi, using private cars, but that is not all communities of drivers, connec- suite, it offers a customizable ver-
network enables people too old Freund came up with an alternative: we do.” ted through the ITNRides software. sion. Local communities can buy it at
to drive to move around.
ITNAmerica. This community-based ITNAmerica is a non-profit commu- It links them to a central network reduced costs to set up their own ser-
independent transportation network nity whose members pay dues accor- that manages transport logistics, vice of car pooling, shared cars and
boasts over 4,000 active members who ding to their means. To finance their volunteers and planning rides. volunteer driving. Here, every trip and
drive elderly people and adults with daily trips, passengers can, among In addition to seeking new drivers, every car seat also helps getting aging
visual impairment living in remote others, prepay online or trade the rides ITNAmerica works with partner orga- populations out of their rural isolation.
areas of the United States. they no longer use for credits. “Some nizations. “In the last two years, we have “We need to become to mobility what
cities can subsidize our local activity,” added twenty-one transportation compa- eBay is to sales,” the founder sums up.
PRESENT IN 27 CITIES details the founder. “Stores and health nies as our trusted partners and we will More than a transport network for
Isolated seniors can reach “Rides centers can help pay for rides to get to add more. They complete our fifteen exis- seniors, ITNAmerica is now a societal
in Sight”’s call center 7 days a week, them using our network.” If you are a ting affiliated communities.” expertise tool. Length of trips, desti-
24 hours a day. The drivers, often volunteer driver, you get credits that nations, types of vehicles used: its sof-
volunteers, help them visit friends, can be stored for later use, given to FREE HEALTH SERVICES tware stores all the details in a secure
shop or see their doctor. A pioneer in relatives, or gifted to the Road Scho- The social enterprise also develops data center. Once anonymized, this
the sharing economy and a spokes- larship program, which helps low-in- partnerships to ease seniors’ access to data is being used in studies to better
person for inclusive mobility, Kathe- come seniors pay for their rides. health services. “We get funding to pro- understand seniors’ needs.
rine Freund is convinced that “the The movement that Katherine vide them with free medical care, notably By Charlotte Sarrola
© DR

hope for low-density areas lies at the Freund launched encompasses various ophthalmological treatment. And we 1. Over 2.3 million miles.

120 HEALTH TOMORROW 121


5 | CARE “The irrational fear 5 | CARE
of HIV is still quite
strong, and many
of the women that

W
we take in feel
hat led you ashamed. There is a space of listening and support. This
to launch
Ikambere?
still a lot of work allows them to speak of their anxieties
and to better live with their disease.
B. R. : When I was a to do, but we are here Those who are hospitalized also receive
child in Butare, in
Rwanda, I wanted
to change things!” visits from the health mediators, who
can bring them a much-needed meal.
to become a doctor to save lives. But in Sometimes, they even ask doctors to
our country, we don’t choose our stu- our action. Ikambere allows women clear up certain situations.
dies, instead the government decides. I to have a job, social aid and housing
arrived in France in 1989 to take classes to manage their sickness in peace. Is there a story you are
in anthropology. Within the framework We have developed several projects particularly proud of? 
of my master’s thesis, I met numerous to guide them toward autonomy: job B. R.  : In 2004, a woman who didn’t
women with AIDS in Paris. placement, halfway houses, preven- know how to read or write showed up
I was thus confronted with people tion, education, and more. Ikambere in Ikambere. She had lost her husband
in distress, vulnerable to the worst offers global care to these vulnerable and her two children. It was difficult
infections on the planet. Being black- women. The objective is to lead them at first because the organization had
skinned like them, I succeeded, little to a realistic professional project, so housed her in a hospital. Her obstacle
by little, in gaining their trust. I helped that they can have a roof over their race started with learning to read and
them within the framework of the orga- heads and pay for their own needs. speak French. She progressed very qui-
nization Sol en Si.1 In 1997, I decided Since 1997, Ikambere has helped over ckly and then began the training pro-
to launch Ikambere –  “The Welcoming 2,500 of them. grams. At the end of two years, she had
House” in Rwandese  – to break their her papers in order and passed a job
isolation. Back then, we only had a tiny What happens in the activities interview to work at Carrefour super-
apartment of 74 square meters, not far that you share with them? market. Today, she is a cashier and
from the “cité des Cosmonautes” in St. B. R.  : Every day, several workshops earns a living. She perfectly masters
Denis. We just wanted these women allow women to form a community and computing, she writes about exotic
to be able to sit somewhere, take their to build a social network. We propose products, and she wants to evolve pro-
medicine, and see that others shared activities such as fitness, sewing, hair fessionally. Recently, she even obtained
their fears, such as infecting the child styling, cooking, esthetics, reading or professional certification to work in
they were carrying. computing. This gives them the much early childhood care. It is this kind of
needed self-confidence to begin rebuil- story that gives us the strength to keep
Tell us more about the situation ding their lives. fighting to develop the organization.
of the women you help. Lunch is a high point of the day
B. R.  : For them, being far from their when the women come together. It is a How has the way people look at

BERNADETTE RWEGARA country adds to the spiral of lies told


to their families. In addition to being
moment of conviviality, meant for sha-
ring experiences, but also for raising
AIDS changed since you began
your action?

This Is Your House


HIV-positive, they are often migrants, awareness. Prevention is indeed ano- B. R.  : The preventive actions led in
illiterate and quite precarious. Some of ther pillar of Ikambere, not only for the recent years have alerted the general
them have left their native land, des- women we take in, but also for several public to the dangers of the disease
pite having a comfortable situation, to hospitals and migrant shelters. and the risks of infection. But sadly,
In 1989, Bernadette Rwegara arrived in France for her studies in anthropology. be treated in France. Once here, they I don’t get the feeling that the way
find themselves without resources. How do you work with public HIV-positive people are seen has
During her research, she was outraged by the fate reserved to African women They fight, for better or for worse, to authorities and the hospital changed much in twenty years. The
suffering from AIDS. To help them rebuild their lives, she opened a small home, make a place for themselves in a society system? irrational fear of HIV is still quite
Ikambere, “The Welcoming House” in Rwandese. The organization, based in where women have a hard time getting B. R. : We work with thirteen hospitals strong, and many of the women that
recognition and where those carrying in the Paris region, above all during we bring in feel ashamed. There is still
Seine-Saint-Denis, has helped 2,500 HIV-positive women since...
© HERBERT EJZENBERG

the AIDS virus are excluded. office hours, when we introduce our a lot of work to do, but we are here to
mediators. We meet the sick people change things.
What are Ikambere’s fields coming in for a consultation who By Côme Bastin
ikambere.com of action? wouldn’t dare turn to an association 1. Created in 1990, this french association
B. R. : Solidarity is the very essence of and break their isolation. We offer them helps children with AIDS and their families.

122 HEALTH BOOK 123


5 | CARE

MIGUEL NEIVA
The Esperanto of Colors
Although 350 million people in the world suffer from color blindness,
science remains powerless in the face of this handicap. To address this challenge,
Portuguese designer Miguel Neiva has developed a language that turns colors
into symbols. From the Porto metro to colored pencils, this code, already used in
250 media outlets, simplifies the daily lives of color-blind people.

coloradd.net
The NGO ColorADD
often performs free
interventions in schools.

W
hy is color for the color-blind. visual symbol to each primary color. Do you collaborate What is the impact of
blindness such How does it work? Shapes can be mixed in the same way with public authorities? “While the color- the project so far?
a complex M. N. : I simply went back to the things colors are. With the help of these M. N.  : Of course. We are already col- blind cannot M. N. : It remains difficult to precisely
condition? we all learn in nursery school: the three symbols, it is possible to indi- laborating with municipalities to calculate the number of beneficiaries,
M. N.  : Because combination of primary colors, black, cate any possible color. The thickness schedule awareness programs in correctly identify because the code is not only spread
there are many and white is enough to obtain every of the frame helps to point out diffe- schools through our NGO, ColorADD. some colors, they to the color-blind, but to everyone.
types of color blindness. Some people
cannot tell two colors from one ano-
imaginable colour. While the color-
blind cannot correctly identify some
rent shades. Of course, it is still hard
to identify the specific shade of red of
To work closely with the authorities
is essential in order to help our pro-
have no trouble at But we started four years ago with
colored pencils; and today we have
ther, while others only perceive black colors, they have no trouble at all a Ferrari, but at least we can know its ject grow. We also cooperate with the all identifying established more than 250 different
and white. 350 million people in the
world are color-blind, and only 20 %
identifying shapes. So I associated a general color. Ministry of Education, Health, Sports
and Youth, as well as directly with the
shapes. So I partnerships, in order to maximize
the chances of reaching every color-
of them realize it before the end of What makes Presidency of the Republic. It is fun- associated a visual blind person.
their twenties. Neither medicine nor
technology has succeeded in addres-
this method universal?
M. N.  : If our sole purpose was to ima-
damental for such public entities that
everyone is able to understand them.
symbol to each Can design solve a public
sing this question. I told myself that I gine a code limited to Portugal, we They have a duty of exemplarity in primary color.” health issue?
had to look at the problem differently. might just as well have written out terms of inclusiveness and anti-discri- M. N.  : I have always thought that
Rather than trying to treat the condi- the names of the colors on the objects mination policies. designing should not be reduced to
tion, why not try to improve the way themselves. But we wanted to create helps us attract other public trans- making beautiful objects. I see it as
society integrates color-blind people? a system that evryone in the world How can you ensure portation systems in the world: at a tool for building a better world. In
I began my research by interviewing could understand, through the use of the widest adoption the moment, we are working on the my case, colors were my raw mate-
150 color-blind people from all over universal symbols. However, this lan- of the system? implementation of ColorADD in the rials, and I decided that I had to do
the world in order to understand their guage will only become prescriptive if M. N.  : We try to progress cluster by underground railway systems of Lon- something with them. A few months
needs. I asked them about the everyday society adopts it, if it gets integrated cluster, to show that this new idea is don and Madrid. As of today, we are ago, one of the greatest ophthalmolo-
life-hacks they used to succesfully iden- into locations and situations where already brilliantly put to use by other approaching five or six large interna- gists in the world declared that Colo-
tify a color they didn’t perceive, while colors matter. To pursue this goal, structures. For example, the subway tional groups working in transport, rADD was the very first remedy ever
picking up clothes, spotting a specific we have trained a team and set up a system of Porto has integrated our school materials, textiles, healthcare conceived by a designer. And he added
medication or reading a traffic sign. business model. In order to be able to code into its boards and signs. Every and games. These have come up as the that it was a non-toxic, democratic,
© COLORADD

display ColorADD on their products, single metro line has a different color key sectors to reach in order to ensure a inclusive and free piece of medication.
This is how you came up companies pay us a royalty, according code and those symbols are very use- massive adoption of the code by a large I was quite touched.
with the ColorADD language to their size. ful, even to foreigners. Porto’s success section of the color-blind public. By Timothée Vinchon

124 HEALTH TOMORROW 125


2. MAKE 5 | CARE

W
hat exactly is What method does Noen use ging health benefits to patients, their
dementia? in its work? close relatives and the guides.
H. W.  : Dementia H. W.  : Our model and method use a
is a degenerative documented individual activity-based What kind of reception do
brain disease treatment approach for persons with the families give to the work
that makes it dementia and their closest relatives. of the “guides”?
impossible for the patient to manage The solutions we have come up with H. W. : Patients and their families have
his daily life on his own. Recent dis- are called the Noen model and the given an unmitigatedly positive res-
coveries concerning dementia have KuPA method. They were developed ponse to the service. Our approach
attracted more scientific attention in partnership with SINTEF, one of consists in giving back dignity and
than ever before. But when it comes to Europe’s largest independent research power to patients and their families.
the experience of living with demen- organizations, and funded by the However, customer surveys have told
tia, our knowledge is still embryonic. Research Council of Norway. us that this service was neither well-
No one survives dementia to tell us The Noen model coordinates the known nor easily available when they
about it. efforts of all the most critical people first could have used it. The surveys also
Furthermore, loved ones are often involved in the patient’s care to ensure underline that the service is too expen-
so overwhelmed by symptoms such the most effective and efficient treat- sive, as families pay all the subscription
as passivity or incontinence that they ment possible. The KuPA method costs themselves. To cut costs, we deve-
might suffer from mental illness them- ensures that the patient is treated with loped a unique approach in partnership
selves. This is due to the complexity with municipalities, combining tax
of the patient being unable to request deductions with traditional “salaries”
adequate support, while relatives often “The Noen model paid to family members that together
fail to understand or answer their thus has a triple reduce the yearly out-of-pocket cost of
needs. There are roughly 80,000 people
suffering from dementia in a small
upside, empowering home care to one thousand dollars.

country like Norway. and bringing What is next for Noen?

What got you interested health benefits H. W.  : The biggest challenge is the
relatives’ lack of knowledge. If they
in this field? to patients, their knew about the benefits of empowe-
H. W. : I used to work for an innovation
center helping entrepreneurs to scale
close relatives ring people with dementia, they would
request it. We must communicate bet-
up their technology. Then, one day, my and the guides.” ter and find partnerships to reach out
father was diagnosed with dementia. to families with proven information
I founded Noen to hire people to help dignity and from a salutogenic1 pers- and customer testimonials. We also

HEIDI WANG me support my father so that he could


carry on his daily life with dignity, as
pective, through person-centered care
and an empowering health-promoting
want to certify KuPA guides all over
Norway (1,200 persons) to spread the

Guiding Through Dementia


public social security and healthcare environment. use of our service. Norwegian health-
did not offer such a service. The three care system must ensure that the
people who became my employees are How would you describe the path Noen treatment model and the KuPA
the true entrepreneurs of Noen: their of a typical “guide”? method are available as soon as demen-
When an elderly person suffers from dementia, their family often doesn’t know efforts made me believe in and conti- H. W. : Noen recruits and certifies indi- tia is detected. In the future, Noen’s
nue this unconventional form of care viduals as “guides” qualified to use the method could be applied everywhere.
how to react. In Norway, Heidi Wang has developed a method for persons with dementia. My father KuPA method. They are then hired by The model is modular, digitized and
of home care to help victims of neurodegenerative diseases. Having successfully never became the child we were told families with all sorts of neurological adaptable to different organizational
attracted the attention of the government, her company, Noen, has already he would, he did not have anxiety nor diseases leading to cognitive failure. and financial conditions.
depression, he never became violent – Our most successful guides are often By Fleur Weinberg
trained numerous “guides” who help patients and their loved ones in daily life. contrary to what the nurse had told us people who have been out of full-time 1. From salus- (“health” in Greek) and
to expect. After he died, people asked work, some of them for health reasons, -genic (“able to create”). The term “salu-
me to continue Noen to provide a simi- but who recovered the ability to work togenesis” was coined by Prof. Aaron
noen-as.no lar service to other families coping part-time. The Noen model thus has a Antonovsky and focuses on the factors that
© DR

with dementia. triple upside: empowering and brin- support human health and well-being.

126 HEALTH BOOK 127


5 | CARE

MATHIEU LEHANNEUR
Unidentified Therapeutical Object
Whether they simulate the sky in a palliative care unit, produce pure oxygen
in a living space or stimulate the immune system, Mathieu Lehanneur’s creations are
designed to do you good. At the crossroads of science, art and technology,
this “therapist designer” wants to renew the ties between medicine and its users.

mathieulehanneur.fr

W
hy did you the ergonomics of medication. force behind these creations?
become a Why did you choose this subject? M. L. : The starting and end point is the
designer? M. L. :I was looking for a territory not human being. No matter what marke-
What would yet explored by design, which tends ting services say, it is not a stable and
you have done, to focus on furniture. Strangely, the coherent entity that could be catego-
had you not medical and pharmaceutical sectors rized. It is a complex ensemble that is
chosen this path? have hardly changed, or else in the sensitive to its environment and that
M. L.  : I like that this profession has wrong direction. The more complex, breathes, interacts and thinks. This
both generalist and specialist sides to efficient and precise they have become, diversity feeds my inspiration. Pro-
it. We work in various sectors and at the more they have pulled away from jects like Tomorrow Is Another Day,
the same time we have to give detailed the human being. So I looked into a The Island or Local River imitate life
expertise. I like this constant back and way to rethink therapeutical objects, and play a reactive game. These objects
forth. I am concerned with the human medication for instance. My approach are not just made to be contemplated,
being, whether he is called a patient was not to focus on the molecule, but they evolve when faced with exter-
or a consumer, to understand who on the entirety of the product we have nal constraints or with what I eat, for
he really is. Maybe, had I not been a to ingest, drink or inject ourselves instance.
designer, I would have been a doctor, with. I started with an observation
although I am not sure what I would that is well-known in the pharmaceu- You have now been cooperating
have specialized in. tical world: today, one drug out of two for several years with the
biomedical engineering

© STUDIO MATHIEU LEHANNEUR / JUSTIN CREEDY SMITH


is not taken correctly. The reason lies
How would you define not with the object itself, but with researcher David Edwards.
your approach? compliance, the capacity of the indivi- M. L.  : We are both convinced that
M. L.  :I don’t try to draw objects or dual to take responsibility and invest scientists and creators share a reflec-
facilities according to my vision. I try himself in the treatment. I wondered tive mode that is guided by intuition,
to imagine them from the user’s brain. whether design could repair this rela- demonstration and imagination. We
It is not about leaving my mark or my tionship between the human, the body, met at the launch of the Laboratory1
style, it is about adapting to very diffe- the illness and the cure. in Paris, in 2007. We wanted to work
rent contexts. together on projects2 by bringing in
Since then, health and well-being our respective skills. This collaboration
Your diploma project, have remained at the center of allowed me to draw Café ArtScience. It
© DR

Therapeutical Objects, dealt with your concerns. What is the driving opened in Boston in 2014 and is simul-

128 HEALTH TOMORROW 129


5 | CARE

Local River is a small fresh With Tomorrow is Another Day, Mathieu


water fish storage combined Lehanneur has imagined in each room a
with a home garden window open on tomorrow’s sky.

taneously an art and science gallery, an


auditorium, a concept store and a res-
health, at the level of medication, a
hospital room, or home care. In this
to elements that capture our physical
effort or cardiac rhythm. We carry with
“The medical and
taurant. We are thinking about desi- case, its role is to improve understan- us small digital doctors. My position of pharmaceutical
gning more. ding. The most advanced scientists see
science as being more than just scien-
creative director allows me to give the
impulsions, the innovations needed for
sectors have hardly
Are science and design two tific. If it doesn’t inspire each of us, it a group the size of Huawei. changed, or else in
inseparable allies for tomorrow’s
health?
hasn’t reached its goal. By Hélène Martinez the wrong direction.
1. Center for artistic and design
M. L. : They are not yet. Design doesn’t How does this research around experimentation Paris and Cambridge, The more complex,
require science to make a coffee table well-being influence your role USA, founded in 2007. It invites visitors efficient and precise
or a bedside lamp. However, if I plan as the lead designer for Huawei to discover cultural creation at the frontiers
on drawing objects that have a real in Paris? of science. they have become,
impact on the rest of the world, I will M. L.  : In this case, it is not about 2. Mathieu Lehanneur and David Edwards the more they have
need to summon scientific knowledge.
It goes at such a speed today – in par-
science but technology. These two
worlds intersect, because health is
collaborated in 2008 to create Andrea,
a living filter that sucks ambient air in and
pulled away from
ticular neuroscience – that I would be more and more present in technology, absorbs harmful components. In 2011 the the human being.”
remiss not to use it. For science, design whether it is connected on my wrist or created the CellBag, a backpack destined to
© DR

has become essential in all aspects of through my phone. We are now close transport water for humanitarian purposes.

130 HEALTH TOMORROW 131


© CHRIS WILLAN PHOTOGRAPHY
MANI
FESTO
MANIFESTO MANIFESTO

The Story of Making More Health


Making More Health (MMH) was born out of a shared vision to combine Boehringer
Ingelheim’s “Value Through Innovation” with Ashoka’s over thirty years of
experience in social entrepreneurship. It was created upon the recognition that
social entrepreneurs are a powerful source of innovation and insight into the future
of health; these individuals leverage cutting-edge trends to implement new solutions
in their communities. The Making More Health partnership works across three
distinct but integrated pillars: Social Innovation, Changemaker Talent and Social &
Business Co-Creation. Together, these pillars lay the foundation for how Ashoka and
Boehringer Ingelheim aim to improve healthcare access throughout the world.

SOCIAL AND (MMH Fellows), connect them to WHAT THEY LEARN


BUSINESS CO-CREATION an international network of peers, Engaging with a critical mass of
Healthcare challenges are growing and provide their organizations with social innovation gives Boehringer
in complexity and size, and no single financial and professional support to Ingelheim and Ashoka a unique lens
entity is equipped to solve them scale and grow. into healthcare trends. Common
single-handedly. Instead, solving them Since 2010, Boehringer Ingelheim ways of tackling health challenges are
requires a diversity of perspectives, and Ashoka have been supporting beginning to emerge.
approach and capability through 87 social entrepreneurs in 37 coun- Social entrepreneurs are improving
non-traditional partnerships. MMH tries around the world. healthcare by:
is exploring win-win collaborative,
cross-sector models that address CHANGEMAKER TALENT Broadening the role
health challenges for vulnerable In order to navigate through a of the “healthcare provider”:
populations and increase the impact of world of rapid change, today’s leaders Anil Patil, Carers Worldwide (page 48)
social entrepreneurs. need to master skills such as learning Michelle Lem, Community Veterinary
agility, complex problem-solving, Outreach (page 44)
SOCIAL INNOVATION managing diverse teams, and change-
A network of social innovators is making (empathy, new leadership and Making detection
a powerful source for understanding teamwork). Ashoka and Boehringer simpler and cheaper: © DR, PREVIOUS PAGES: UN PHOTO / TOBIN JONES
the major trends transforming the Ingelheim spread a culture of Jordi Marti, DBS Screening (page 22)
future of healthcare. Boehringer intra/entrepreneurship by cross- Frank Hoffman, Discovering Hands
Ingelheim and Ashoka use two pollinating talent and diverse (page 26)
strategies to identify and support a perspectives between the corporate
critical mass of social entrepreneurs. and social sectors. Activities include: Increasing transparency
First, they use an open source global Skills Based Volunteering, the Exe- for the patient:
platform to invite the general public cutive in Residence program, Social Francesca Fedeli, Fight The Stroke
to share innovative health ideas Intrapreneurship Courses and the (page 60)
through online competitions. Second, Youth Venture program. Geneviève Moreau, SiiN (page 30)
they identify top social entrepreneurs

134 HEALTH TOMORROW 135


MANIFESTO MANIFESTO

HUBERTUS VON BAUMBACH “Through Making


More Health, we are
“We will continue to work at learning from leading
social entrepreneurs
the intersection of socially and and health
business-focused goals” innovators around
the world how to
address changing
needs and create
One of them is among the most prestigious companies reach patients, particularly duals, many of whom were impacted more health for norms. Large institutions working in
pharmaceutical companies in the world. The other is
those in lower income populations, at a very personal level, are touching individuals, families the field of health are ideal partners
will be different than it has been until millions of beneficiaries and transfor- for social entrepreneurs because they
the most comprehensive worldwide network of social now. Boehringer Ingelheim must ming healthcare at a systemic level. and communities.” allow them to break out of small, incre-
entrepreneurs. How and why did they decide to team continue to innovate in regards to its For example, take Riders for Health, mental impact and attempt to improve
products but also needs to bring solu- founded by Andrea Coleman, which the system.
up? Hubertus von Baumbach, Boehringer Ingelheim’s tions for health to patients in all geo- manages trained fleets of motorcycles Boehringer Ingelheim will continue
CEO, brings us back to the origin and the objectives of graphic regions and at all economic and 4x4 vehicles to travel out to the the long-term commitment of our Do you think we are really
levels. Through Making More Health, most remote rural areas to bring “last- shareholders to bring “more health undergoing a revolution in
the company’s partnership with Ashoka. we are learning from leading social mile” health supplies and services to to mankind” and to feel socially res- people’s attitudes?
entrepreneurs and health innovators communities. Through partnerships ponsible (Leitbild). We will continue Is civil society in the

W
around the world how to address chan- with large health organizations and to invest in social entrepreneurs and process of taking “care”
ging needs and create more health for Ministries of Health, Riders for Health support young changemakers, which into its own hands?
individuals, families and communities. has scaled its solution in up to eight we see as critical agents of social H. V. B. : The healthcare sector is under-
helping companies like Boehringer We seek out new win-win partnership African countries and is allowing change. We believe that this effective going many changes related to cost,
Ingelheim to prepare for the future. As approaches with the social sector. health workers to see six times more combination of “socially-focused” and personalized medicine, the surge in
such, Boehringer Ingelheim has embar- This requires much more than inves- people, as they can travel four times “business-focused” goals makes this non-communicable disease, a growing
ked on a journey, under the umbrella ting money; it requires committing further than anyone can by foot or initiative unique. We will continue to aging population. All of these shifts
of Making More Health, to explore and human resources, industry expertise, bicycle. I am particularly inspired by work at this intersection, which we and others will force the health care
support the field-based activities of and operations to scale. It involves social entrepreneurs that are using the feel holds the greatest opportunity for industry as well as the governments
people around the world, known as moving beyond the traditional “fun- power of crowdsourcing to increase “shared value” impact. to change the traditional approaches
social entrepreneurs. In partnership der/service provider” approach to true access to health and well-being. For to care. This will partially include figu-
with Ashoka, the world’s largest co-creation across unlikely sectors example Junto Ohki. He is a young Should global, international ring out how to decentralize “care” in
hy did Boehringer Ingelheim network of social entrepreneurs, we and industries. And it is our contri- Japanese social entrepreneur in his organizations like the WHO its broadest sense from hospitals and
choose to establish the Making seek to source and scale these social bution to improving health beyond early twenties who, after forming support these types of initiatives? doctors into the hands of communities
More Health initiative? innovations, while building bridges to researching, developing, producing a sign language club on his college H. V. B.  : Social entrepreneurs are and individuals. At some level, we all
More Health is built on
H. V. B. : Making Boehringer Ingelheim’s business and and distributing innovative medicine campus, is now developing an online unique in their understanding of the need to be empowered to play a role in
the belief that the most pressing and engaging the intrapreneurial spirit of for humans and animals. database, or “dictionary”, for all sign patient, or end “consumer”; they have our health and well-being. In the inte-
complex problems in health require a our employees. languages used around the world deep insights into their needs and rest of sustainability of the system, the
new collaborative approach between What is your opinion of the where users can upload, edit and share the reality they live in and thus the healthcare industry – which has tradi-
market-based companies, NGOs, This is an important investment initiatives supported by Making sign language videos as well as search relevance of any solution that might tionally focused on treating people
public administrations and other in terms of time and commitment; More Health? Which impressed for a word or an expression. be implemented. Furthermore, they being sick – will need to increasingly
stakeholders. It requires business how will MMH influence the you the most? have gained the trust of communities. focus on prevention and keeping
partnering with the social sector to market and the development of H. V. B. : All the 87 and counting social How can you improve and However, social entrepreneurs often people well. Civil society, government
co-create scalable and sustainable solu- the business? entrepreneurs that we support, expand Making More Health lack the means to scale their proven and business will all play an important
tions that improve health care access H. V. B.  : This is a transformative time called Making More Health Fellows, at a global level? solutions and gain the necessary sup- role in this shift. 
© DR

for underserved communities while for the health sector. The way health are truly inspirational. These indivi- H. V. B.  : Through Making More Health, port to influence policy and industry Interview by Côme Bastin

136 HEALTH TOMORROW 137


Photo credits

P8-9
Photo by Lynn Johnson, NG Creative
Lancaster, Pennsylvania. A woman floats in a swimming hole, hoping that a stress-free pregnancy will help her child's brain
development in utero.

P 18 - 19
Photo by Diana Vilera Diaz
Girl at school, Proyecto LUMEN, Martin Guzman, South America

P 40-41
Photo by Albert Gonzalez Farran / UNAMID
6 December 2010. Nyala: A doctor examines a family in Kalma camp for displaced people, South Darfur, Sudan, before
returning to their original village in West Darfur. Hundreds of displaced people returned to Tandusa, Andi, Gido, Sullu and
Urum villages after years of displacement due to the violence and insecurity.

P 68 - 69
Photo by Maciej Dakowicz
Maasai men help carrying medical equipment to Cessna airplane operated by Flying Medical Service NGO in Tanzania

P 88 - 89
Photo by James Howlett, 3DFund.org
Senior midwife attends to her malaria and primary health patients by motorbike. This is often the only mode of transport for
the uneven roads she has to use to reach her remote communities in the Thanintharyi region, Southern Myanmar. 2011.

P 110 - 111
Photo by Lynn Johnson, NG Creative
Fayetteville, Arkansas. A woman comforts her adopted 6-year-old daughter, who has behavioral and cognitive deficits, partly
from neglect in a Ukrainian orphanage.

P 132 - 133
Photo by Tobine Jones/AU UN IST Photo
Mogadishu, Somalia. A girl takes a shot during a basketball training session in Mogadishu, Somalia, on June 6. Banned under
the extremist group, Al Shabaab, basketball is once again making a resurgence in Mogadishu. Today at least a dozen teams in
the city play in a league and both men and women are coming out to play the sport.

138 HEALTH TOMORROW 139


140 HEALTH TOMORROW

S-ar putea să vă placă și