Eudhs

Database of
Sexuality and Disability Resources
2012
The Connect People Network (CPN) is an independent, voluntary, charity organisation
which is led by people with extra support needs, and which promotes their rights around
friendships, relationships and sexuality. The aims of CPN are to support
• social opportunities,
• choice in relationships,
• access to sex education, and
• access to sexual health services.
The CPN grew out of the Irish Sex Education Network, a charity which was set up in
2002 to act as a forum for professionals who were advocating for better sexuality
education programs and policies in disability services. In 2009, a strong group of self
advocates became involved with the Irish Sex Education Network, and based on the
principle ‘nothing about us without us’, the organisation changed its name and core
activities. CPN is now an advocacy based organisation representing people with extra
support needs, their families and circles of support. We have five project groups, based
on the identified needs and interests of our members. These are:
1. CPN Social Group –a group that supports people with extra support needs to
make friends and relationships and engage in social activities in the community.
2. Accessible Information and Training Group – a group that helps people with extra
support needs to get information about relationships and sexuality, and supports
staff and family training events.
3. Legislation and Rights Group –a group which supports self advocacy by people
with extra support needs around relationships and sexuality.
4. Connecting Rainbows –a LGBTQ group for people with extra support needs.
5. Inside Out –a drama group for people with extra support needs that explores
identity, particularly around relationships and sexuality.
For more information, please look at our website – www.connectpeoplenetwork.com.
The CPN recognises the importance of resources for learning, teaching and research
purposes. We hope that this database will be invaluable to everyone who is committed
to the CPN’s vision and aims.
The CPN would like to thank the Community Foundation for Ireland for their financial
support in helping us create this database. Compiling this database was a mammoth
task, and we thank all the editors for their hard work. In particular, we acknowledge
Grace Kelly, who voluntarily gave so much of her time and expertise to make sure this
database was both up to date and comprehensive.
We welcome your feedback on what resources you find useful. Please let us know when
you come across resources that you think others will find helpful and we will add them to
the database.
Helen Crowley,
CPN Chairperson 2012
(RUA Coordinator, St John of God Services)
1
Introduction
Welcome to the Sexuality and Disability Resource Database of the Connect People
Network (CPN). This database is a revised and updated version of the database
originally created by Gert Job in 2004. The new database allows members to search for
resources under a number of key headings. There is a list of easy-read resources for
people with extra support needs, as well as resources to support parents or carers when
talking about relationships and sexuality with a relative with extra support needs. There
is also a list of sex education and sexual health training manuals and policies for
professionals working in education, health and residential settings.
We hope that the resource database is something that all our members will find useful.
We intend to regularly update the database and as part of this, we welcome any
feedback members can give about resources they would like added to the database and
comments they might wish to make on resources already on the database.
Please note, that because sexual attitudes and mores are continuously changing, with
only a few exceptions we have only listed resources in this database that date from 1990
onwards. Disability terminology has also changed over time and in different countries. In
the CPN, our members prefer the term ‘people with extra support needs’ over the more
widely used terms ‘people with disabilities’ or ‘disabled people’. Unfortunately, some of
the authors listed in this resource database have used terminology which is considered
offensive to our members, please be mindful of this in your reading.
To make any comments please contact us at: 087 185 7578 or cpnireland@gmail.com
Enjoy your reading! ☺
Grace Kelly, Lorraine Hone, Zoe Hughes and Adrianne Pullen

(Editors of the 2012 CPN Resource Database)
Acknowledgements
Images used in this data come, with thanks, from: Photosymbols®

(www.photosymbols.com) and Google images.
2
Table of Contents
Website links ................................................................................................................................4
Irish organisations ......................................................................................................................4
International organisations .........................................................................................................9
Background Reading .................................................................................................................12
Accessible, Easy-Read Sexuality and Relationship Resources ............................................15
Training Resources & Guidelines –For Service Providers, Staff & Family Members ..........24
Relationship and Sexuality Training Manuals and Resources –for Professionals working with
People with Extra Support Needs ............................................................................................24
Relationship and Sexuality Training Resources –Not specifically aimed at supporting
People with Extra Support Needs ........................................................................................34
Policies and Guidelines around Sexuality and People with Extra Support Needs (Including
Consent Issues) .......................................................................................................................38
Resources for Parents/ Relatives of People with Extra Support Needs ...................................43
Resources for Talking with Your Child about Sexuality –Not Specifically for Parents of
People with Extra Support Needs ........................................................................................46
Gender.........................................................................................................................................49
Women with Extra Support Needs: Identity, Health, Menstruation, Menopause & Sexuality...49
Men with Extra Support Needs: Identity, Health & Sexuality....................................................55
Supporting Boys and Young Men with Sexuality –Not Specifically Related to People with
Extra Support Needs ............................................................................................................56
Lesbian Gay Bisexual Transsexual (LGBTQ) People with Extra Support Needs ................58
Contraception .............................................................................................................................61
Sterilisation...............................................................................................................................62
Sexual Health, Sexually Transmitted Infections & Cancer Screening ..................................64
Sexual Health Matters – Not Specifically Related to People with Extra Support Needs ......67
Sexual Expression (and Relationships) ...................................................................................69
Pregnancy & Parenting: Resources for Parents with Extra Support Needs (& For People
Supporting Parents with Extra Support Needs) ......................................................................72
Pregnancy & Parenthood –Not Specifically for People with Extra Support Needs ..............82
Sexual Abuse, Bullying and Inappropriate Sexual Behaviour ...............................................84
Sexual Abuse & People with Extra Support Needs ..................................................................84
Dealing with Sexual Abuse –Not Specifically Related to People with Extra Support Needs92
Bullying and People with Extra Support Needs ........................................................................94
Resources to Deal with Bullying –Not Specifically Related to people with Extra Support
Needs ...................................................................................................................................94
Inappropriate Sexual Behaviour ...............................................................................................95
Relationships & Sexuality Resources -For People with Autistic Spectrum Disorder .........97
Relationships & Sexuality Resources –For People with Physical & Sensory Disabilities ..99
Related Topics –Advocacy and Building Self Esteem .........................................................105
Research on Sexuality and People With Extra Support Needs ...........................................108
Irish Research on Sexuality, Relationships and People with Extra Support Needs ...............108
International Research on Sexuality, Relationships and People with Extra Support Needs 1144
Research with People with Extra Support Needs –Considerations Regarding Inclusive
Methodologies, Ethics and Consent .......................................................................................142
3
Website links
Irish Organisations
CervicalCheck
CervicalCheck - The National Cervical Screening Programme provides free smear tests
to women aged 25 to 60. A smear test is a simple procedure that only takes minutes and
is the most effective way to detect changes in the cells of the cervix.
http://www.cervicalcheck.ie/
Citizens Information Board (CIB) is the national agency responsible for supporting the
provision of information, advice and advocacy on social services.
http://www.citizensinformationboard.ie/
COSC is the National Office for the Prevention of Domestic, Sexual and Gender-based
Violence. Cosc is an Irish word and means ‘to stop’ or ‘to prevent’. Following a
Government Decision, Cosc was established in June 2007 with the key responsibility to
ensure the delivery of a well co-ordinated "whole of Government" response to domestic,
sexual and gender-based violence. The work of Cosc covers issues relating to domestic
and sexual violence against women and men, including older people in the community.
http://www.cosc.ie/
4
The GUIDE Clinic is the largest, free STI, HIV and Infectious Disease service in Ireland.
Our mission is to provide an excellent service to patients with HIV, Sexually Transmitted
Infections (STI) and infectious diseases, including international health. The GUIDE clinic
run a free, walk-in sexual health service offering screening and treatment for STI's/STD's
including, Chlamydia, Gonorrhea, Syphilis, Herpes, Genital Warts, HIV (including PEP)
and many more. This clinic is based in St James’ hospital, Dublin.
http://www.guideclinic.ie/
Inclusion Ireland is a national voluntary organisation working to promote the rights of

people with an intellectual disability in Ireland. Inclusion Ireland provides a central forum
for its members to identify priorities and formulate nationally agreed policies to present
to government, statutory bodies, other relevant groups as well as the general public.
Inclusion Ireland campaigns for changes in services and legislation that will improve the
quality of life and participation of people with an intellectual disability in Irish Society.
Inclusion Ireland promotes advocacy for people with an intellectual disability, particularly
self-advocacy and provides an information and advice service. Inclusion Ireland has
produced a number of factsheets in the area of sexuality, marriage and capacity.
http://www.inclusionireland.ie
The Irish Family Planning Association (IFPA) works with partner organisations and
civil society to raise awareness of the importance of sexual and reproductive health at
home and all over the world. The IFPA’s mission is to enable people to make informed
choices about their sexual and reproductive health and to understand their rights.
The IFPA provides medical services from its clinics in Dublin city centre and Tallaght as
well as crisis pregnancy and counselling services at 11 centres nationwide.
The IFPA provides education and training on reproductive health issues to a variety of
groups including service providers, young people, parents and community groups.
The IFPA provide sexual health education to people with disabilities.
http://www.ifpa.ie/
5
The National Disability Authority (NDA) is an independent statutory agency
established under the aegis of the Department of Justice, Equality and Law Reform. The
National Disability Authority’s mandate is:
• To provide policy advice to Government and public bodies
• To undertake, commission and collaborate in disability research and assist in the
development of statistical information
• To advise on standards and guidelines in services to people with disabilities
• To develop standards, education and promote awareness of Universal Design
The NDA have a library that houses 50,000+ books, journal articles, videos, DVDs, CD-
ROMs and newsletters on disability and related subjects.
http://www.nda.ie/
The National Federation of Voluntary Bodies Providing Services to People with

Intellectual Disability is a national umbrella organisation for voluntary/non-statutory
agencies who provide direct services to people with intellectual disability in Ireland.
http://www.fedvol.ie/
National Institute for Intellectual Disability

The National Institute for Intellectual Disability (NIID) is one of Trinity College
Dublin's most innovative initiatives. Its mission is promoting inclusion for people with
intellectual disability through education, research and advocacy. http://www.tcd.ie/niid/
RUA, within The Callan Institute, as part of St John of God Community Services, Ireland
aims to support staff and carers to enable people with intellectual disability understand
sexuality and develop friendships and relationships in their lives. Their mission is 'To
support individuals with intellectual disability to enjoy friendships and close relationships,
and where appropriate, to support their family and staff teams to be comfortable and
skilled in talking about issues relating to friendships, relationships, sexuality and
intimacy.' RUA offers a number of workshops and training programmes on Friendships,
Relationships and Sexuality in Intellectual Disability. These are designed for
professionals and family members. RUA can also tailor courses for an organisation’s
specific needs and deliver them on-site.
http://www.ruasjog.ie/
6
Sexual Citizens
A resource on disability and sexual expression created by a disabled woman who
happens to also be a wife, mother, academic, and activist. This website aims to
contribute to the sexual emancipation of disabled people regardless of location.
http://www.sexualcitizens.com/
The Sexual Health Centre, Cork is involved in sexual health promotion, peer education,
unplanned pregnancy services and HIV support services. The health promotion team at
the Sexual Health Centre delivers skills based workshops to schools, youth and
community groups, parents and professionals in the Cork and Kerry area. The peer
education team provide training and support to young people in order that they can
acquire knowledge on sexual health and drugs and in turn pass that information on
appropriately to their peers in informal and formal settings. The unplanned pregnancy
counsellors provide a non-judgemental, professional and non-directive service to women
experiencing an unplanned pregnancy. The HIV support service is a service for clients
who are HIV positive and for their significant others. It is also for those who have
concerns or require information about HIV and/or other Sexually Transmitted Infections
(STIs). All Sexual Health Centre services are free.
http://www.sexualhealthcentre.com/
Sexual Health Resource Library, Health Service Executive South.

The sexual health resource library is a collection of sexual health resources sourced by
the Health Promotion Team of the HSE South and part funded by the HSE Crisis
Pregnancy Programme. It is a free loan service and can be accessed by those who have
attended the HSE South Foundation Programme in Sexual Health Promotion or
other appropriate training. The library contains resources for use with the general
population and specific resources for use with people with learning disabilities. It
provides organisations with an opportunity to view and try out resources, or simply to
expand their sexual health programme. The library is available from all 10 Health
Promotion offices across the HSE South. A brochure detailing the content of the library
is available from the sexual health team. For more information, contact:
South East:
Moira Germaine, Senior Health Promotion Officer Tel: 059 914 3630
Cork:
Sharon Parkinson, Senior Health Promotion Officer Tel: 021 492 1641
Martin Grogan, Health Promotion Officer
Catherine Byrne, Health Promotion Officer
Kerry:
Maire O’Leary, Health Promotion Officer Tel: 064 667 0773
7
This site lists doctors who provide a full, private, specialist service for Sexual Health and
the diagnosis and care of Sexually Transmitted Infections (STI's), HIV /AIDS and Genito-
Urinary Medicine.
http://www.stdclinics.ie/
8
International Organisations
The British Institute of Learning Disabilities is a UK charity organisation working to

improve the lives of people in the UK with a learning disability. They publish books,
training materials and journals to improve practice among professionals and to help
adults and children with a learning disability achieve a better quality of life. They also
offer information and resources on all aspects of learning disability policy and practice.
http://www.bild.org.uk/
CHANGE is a leading national human rights organisation led by Disabled People. It has
produced a number of resources in the area of sexuality and parenthood for people with
disabilities. http://www.changepeople.co.uk/
CK Sex Talk aims to provide information about relationships, sex and sexual health
that's suitable for young people with learning difficulties. http://www.cksextalk.org.uk
Disabled Parents Network (DPN) is a British national organisation which aims to

increase society’s acceptance of disability in parenthood and provide support
information and advice to disabled parents and their families. Their vision is of a society
which accepts disability and parenthood and provides the opportunities and support to
enable disabled people to have and to bring up their children on an equal basis with
non-disabled parents. http://www.disabledparentsnetwork.org.uk
Family Planning Association is a sexual health charity which provides straightforward

information, advice and support to all people across the UK on all aspects of sexual
health, sex and relationships. They have a number of accessible resources for people
with intellectual disabilities, as well as for family members and staff working with people
with intellectual disabilities. http://www.fpa.org.uk/
9
In touch is a project run by Leonard Cheshire Disability which aims to improve access
to sexual health education and services. http://www.lcdisability.org/?lid=11901
Norfolk Disabled Parents Alliance is an information network run by disabled parents in

Norfolk. They work for choice, support and equality for all parents.
http://www.norfolkparents.org.uk/
Outsiders is a vibrant social and peer support network of disabled people. They also
run a helpline. http://www.outsiders.org.uk/
Pavilion
Pavilion is a publisher and event organiser for professionals delivering public services.
They have a range of publications relating to sexuality and intellectual disability and also
organise conferences in the UK and Ireland in this area. http://www.pavpub.com/
Rainbow Ripples are a UK based group run BY and FOR lesbian, gay and bisexual
people who have disabilities. They work to the Social Model of Disability which says that
people are disabled by barriers in society, not by medical conditions.
http://www.rainbowripples.org.uk/
Respond provides a range of services to both victims and perpetrators of sexual abuse
who have learning disabilities and those who have been affected by other trauma.
http://www.respond.org.uk/
An online sex ed resource from SIECUS (the Sexuality Information and Education
Council of the United States). Covers such topics as sexual and reproductive health,
puberty, abstinence, relationships, sexual orientation, body image, self-esteem, sexually
transmitted diseases, HIV/AIDS, unintended pregnancy, and more.
http://www.sexedlibrary.org/
10
SexualHealth.com
The Sexual Health Network is dedicated to providing easy access to sexuality
information, education, support, and other resources. It has a section on disability and
illness. http://www.sexualhealth.com/
Stars in the Sky is a dating and friendship service for adults with learning difficulties in
the UK. It is was founded in London (2005) and is run by people with learning difficulties.
Stars in the Sky is a social enterprise that believes in empowering people with learning
difficulties through:
• Choices in leisure activities.
• Giving people the opportunities to develop new relationships.
• Investing any profit in supporting people with learning difficulties to develop their
business ideas.
• Being involved in the decision making of the company.
• Challenging negative views of people with learning difficulties.
http://www.starsinthesky.co.uk/#
Supporting Parents Advocacy Network (SPAN)

http://www.dolsetadvocacy.co.uk/span/span.htm
The site has information about dating and sex for young people with
disabilities.http://www.thesite.org/sexandrelationships/havingsex/sexanddisability
Through the Looking Glass (TLG) is an American centre that has pioneered research,
training, and services for families in which a child, parent or grandparent has a disability
or medical issue. TLG has many useful resources for parents with disabilities and those
hoping to become parents. http://www.lookingglass.org/
Working Together with Parents Network

A UK network which supports professionals working with parents with intellectual
disabilities and their children. They run support groups and have a number of useful
resources to support parents. http://www.bristol.ac.uk/wtwpn/
11
Background Reading
Author: Brown, H.
Title: ‘An Ordinary Sexual Life?’: A Review of the Normalisation Principle as it Applies to
the Sexual Options of People with Learning Disabilities.
Date: 1994
Publisher/journal/link: Disability & Society, 9(2), 123 - 144
Author: Caffrey, S.
Title: Adult Relationships and Sexuality. In Walsh, P.N. & Gash, H., (Eds.), Lives and
Times: Practice, Policy and People with Disabilities.
Date: 2004
Publisher/journal/link: Wicklow, Ireland: Rathdown Press.
Author: Evans, A. & Rodgers, M.E.

Title: Protection for Whom? The Right to a Sexual or Intimate Relationship.
Date: 2000
Publisher/journal/link: Journal of Intellectual Disabilities, 4(3), 237-245.
Author: Hamilton, C.
Title: ‘Now I'd Like to Sleep with Rachel’: Researching sexuality support in a service
agency group home.
Date: 2009
Publisher/journal/link: ‘Disability & Society, 24(3), 303 – 315.
Title: ‘But Rachel was enjoying it too, wasn’t she?’ Cultural norms and alternative
approaches in a learning disability and sexuality case study. In R. Shuttleworth & T.
Sanders (eds), Sex and Disability: Politics, Identity and Access.
Date: 2010
Publisher/journal/link: Leeds: The Disability Press.
Author: Hollomotz, A.
Title: Learning difficulties and Sexual Vulnerability: A social Approach
Date: 2011
Publisher/journal/link: London & Philadelphia: Jessica Kingsley Publishers
Author: Martin, R.
12
Title: Sexuality and People with Disabilities.
Date: 1995
Publisher/journal/link: Dublin: Commission on the Status of People with Disabilities.
Author: McCarthy, M.
Title: Sexuality and Women with Learning Disabilities.
Date: 1999
Publisher/journal/link: London: Jessica Kingsley Publishers Ltd.
Author: McCarthy, M. & Thompson, D. (Eds)

Title: Sexuality and Learning Disabilities: A handbook
Date: 2010
Publisher/journal/link: Brighton: Pavilion Publishing (Brighton) Ltd –part of OLM Group
Author: McRuer, R. & Mollow, A. (eds)

Title: Sex and Disability
Date: 2012
Publisher/journal/link: London: Duke University Press
Author: Richards, D., Miodrag, N., Watson, S.L., Feldman, M., Aunos, M., Cox-
Lindenbaum & Griffiths, D.
Title: Sexuality and human rights of persons with intellectual disabilities. In F. Owen & D.
Griffiths (eds) Challenges to the Human Rights of People with Intellectual Disabilities.
Date: 2009
Publisher/journal/link: London & Philadelphia: Jessica Kingsley Publishers.
Author: Rogers, C.
Title: (S)excerpts from a Life Told: Sex, Gender and Learning Disability.
Date: 2009
Publisher/journal/link: Sexualities, 12(3), 270–288.
Author: Rogers, C.
Title: But it’s not all about the sex: mothering, normalisation and young learning disabled
people.
Date: 2010
Publisher/journal/link: Disability & Society, 25(1), 63-74.
Author: Rohleder, P. & Swartz, L.

Title: Providing sex education to persons with learning disabilities in the era of HIV/AIDS:
Tensions between discourses of human rights and restriction.
Date: 2009
Publisher/journal/link: Journal of Health Psychology, 14(4), 601-610.
Author: Shakespeare, T.
Title: Disabled Sexuality: Towards Rights and Recognition.
Date: 2000
Publisher/Journal/link: Sexuality and Disability, Vol. 18, No. 3.
Title: Power and Prejudice: Issues of Gender, Sexuality and Disability. In L. Barton,
(Ed.), Disability and Society: Emerging Issues & Insights.
13
Date: 1996
Publisher/journal/link: London: Longman
Author: Shakespeare, T., Gillespie-Sells, K. & Davies, D

Title: The Sexual Politics of Disability: Untold Desires.
Date: 1996
Publisher/journal/link: London & New York: Cassell & Co.
Author: Shildrick, M.
Title: Dangerous Discourses: Anxiety, Desire, and Disability.
Date: 2007
Publisher/journal/link: Studies in Gender and Sexuality, 8(3), 221-244
Title: Contested pleasures: The sociopolitical economy of disability and sexuality.
Date: 2007
Publisher/journal/link: Sexuality Research and Social Policy: Journal of NSRC, 4(1), 53-
66
Title: Dangerous Discourses: Subjectivity, Sexuality and Disability
Date: 2009
Publisher/journal/link: UK: Palgrave Macmillan.
Author: Shuttleworth, R.P. & Sanders, T.

Title: Sex and Disability: Politics, Identity and Access
Date: 2010
Publisher/journal/link: Leeds: The Disability Press
Author: Simpson, A., Lafferty, A. & McConkey, R.

Title: Out of the Shadows - "Our voices aren't going to go quietly into the dark anymore":
A Report of the Sexual Health and Wellbeing of People with Learning Disabilities in
Northern Ireland
Date: 2006
Publisher/journal/link: London & Belfast: Family Planning Association.
Author: Walker-Hirsch, L. (ed)

Title: The Facts of Life…and More: Sexuality and Intimacy for People with Intellectual
Disabilities.
Date: 2007
Publisher/journal/link: Maryland, USA: Paul H. Brookes Publishing Co.
Author: Wilson, N.J., Parmenter, T.R, Stancliffe, R.J., & Shuttleworth, R.P.
Title: Conditionally Sexual: Men and Teenage Boys with Moderate to Profound
Intellectual Disability.
Date: 2011
Publisher/journal/link: Sexuality and Disability, 29, 275-289.
14
Accessible, Easy-Read Sexuality and
Relationship Resources
Author: Abbott, D. & Howarth, J.

Title: Jan's Story. A photostory about a lesbian with learning difficulties.
Date: 2005
Publisher/journal/link: http://www.bristol.ac.uk/norahfry/research/completed-
projects/jan.pdf

Title: Phil's Story. A photostory about a gay man with learning difficulties.
Date: 2005
projects/phil.pdf
Author: Abbott, D., Howarth, J. & Gyde, K.

Title: Secret loves, hidden lives? A summary of what people with learning difficulties said
about being gay, lesbian or bisexual. Easy to Read Summary (English).
Date: 2005
projects/secretloveseasyread.pdf
Author: British Institute of Learning Disabilities (BILD )

Title: Pregnancy and childbirth.
Date: 2002
Publisher/journal/link: www.bild.org.uk
Author: British Institute of Learning Disabilities (BILD).

Title: Sex
Date: 1998
Publisher/journal/link: Worcestershire, UK: British Institute of Learning Disabilities
(BILD). www.bild.org.uk
Author: Brown, H. & Stein, J. (Eds.).

Title: But now they've Got a Voice. A Tape about Sexual Abuse for Service Users Made
by Service Users.
15
Date: 1997
Publisher/journal/link: Brighton/Canterbury: Pavilion Publishing, In Association with The
Tizard Centre, University of Kent.
Author: Bull, N.
Title: Everything You Ever Wanted to Know About Safer Sex…But Nobody Bothered to
Tell You!
Date: 1993
Publisher/journal/link: Camden People First.
Author: Change
Title: Depo-Provera (Easy read booklet).
Date:
Publisher/journal/link: Leeds. See: http://www.changepeople.co.uk
Author: Change
Title: Friendships & Relationships (Easy read booklet).
Date:
Author: Change
Title: Lesbian, Gay, Bisexual and Trans (Easy read booklet)
Date:
Publisher/journal/link: See: http://www.changepeople.co.uk
Author: Change
Title: My Pregnancy, My Choice (Easy read booklet & picture bank CD-Rom).
Date:
Author: Change
Title: Planning a Baby (Easy read booklet).
Date:
Author: Change
Title: Safe Sex and Contraception (Easy read booklet)
Date:
Author: Change
Title: Sex and Masturbation (Easy read booklet).
Date:
Author: Change
Title: Sex and Relationship Pack (contains five easy read booklets covering Sex and
Masturbation; Safe Sex and Contraception; Lesbian, Gay, Bisexual and Trans;
Friendships and Relationships and Sexual Abuse).
Date:
Publisher/journal/link: Leeds: See: http://www.changepeople.co.uk
16
Author: Change
Title: Sexual Abuse. (Easy read booklet). Leeds.
Date:
Author: Client's Page.

Title: Married Life.
Date: 1992
Publisher/journal/link: Frontline Magazine, Autumn Edition.
Author: Dodd, K., Turk, V. & Christmas, M.

Title: The journey of life: how people change from babies to older people.
Date: 2005
Publisher/journal/link: UK: BILD. www.bild.org.uk
Author: Elfrida Society via Women’s Health

Title: Cathy has thrush (Easy read booklet).
Date:
Publisher/journal/link: http://www.elfrida.com/publications.html

Title: Getting Rid of Fibroids (Easy read booklet).
Date:

Title: Hysterectomy...having the operation (Easy read booklet).
Date:

Title: Hysterectomy... is it right for you? (Easy read booklet).
Date:

Title: Period Problems - What you can do (Easy read booklet).
Date:

Title: Your Private Parts Pack (Easy read booklet).
Date:
Author: FAIR Multimedia

Title: A Guide to Having a Smear Test. (Booklet)
Date: 2004
Publisher/journal/link: Edinburgh: FAIR Multimedia www.fairadvice.org.uk/fmindex.htm
17
Title: A Multimedia Guide to Examining Your Breasts. (CD-Rom).
Date: 2003

Title: A Guide to Examining Your Breasts. (Booklet)
Date: 2002

Title: A Multimedia Guide to Examining Your Testicles. (CD)
Date: 2003

Title: A Guide to Examining Your Testicles. (Booklet)
Date: 2002

Title: A Guide to Having Your Period. (Booklet)
Date: 2003

Title: A guide to the Menopause. (Booklet)
Date:

Title: Do I need a Smear Test? (Booklet)
Date:

Title: Everything you need to know about HIV (AIDS). (booklet)
Date:

Title: Living with Cancer 5: Breast Cancer (booklet)
Date:

Title: Men’s Guide to keeping clean (Booklet)
Date:
18
Title: Men’s Healthy Life Pack. (7 booklets & 1 CD-ROM & 1 shaving card)
Date:

Title: Shaving Card (A4 laminated step by step guide to shaving for men)
Date:

Title: Thinking about Sex? (booklet)
Date:

Title: Women’s Guide to keeping Clean (Booklet)
Date:

Title: Women’s Healthy Life Pack (8 booklets & 1 CD-ROM)
Date:
Author: Family Planning NSW

Title: About Masturbation for Males/About Masturbation for Females: For people with an
intellectual disability (easy reading illustrated books).
Date: 2007/2011
Publisher/journal/link: See: http://www.fpnsw.org

Title: All About Sex (easy read) (Revised. 3rd Edition).
Date: 2011
Publisher/journal/link:. See: http://www.fpnsw.org.au/

Title: Love & Kisses (the DVD): Relationships and sexuality DVD featuring people with
disabilities.
Date:
Publisher/journal/link: See: http://www.fpnsw.org.au/
Author: Family Planning NSW (FPNSW)

Title: Sexuality & Your Rights: A book about sex and the law for people with an
intellectual disability (illustrated easy read comic style book).
Date:
Publisher/journal/link: See: http://www.fpnsw.org
Author: Hingsburger, D. & Haar, S.

Title: Finger Tips: A guide for teaching about female masturbation (Book and video or
DVD set)
Date:
19
Publisher/journal/link: Diverse City Press Inc. http://www.diverse-city.com/
Author: Hingsburger, D.
Title: Hand Made Love: A Guide For Teaching About Male Masturbation. Book and
video or DVD set.
Date:
Title: No! How!!! (For too long others have determined what people with disabilities need
to know to stop victimization. This video involved people with disabilities in acting,
writing, producing and directing a film aimed at others with disabilities. From discussing
disability to teaching boundaries and body parts, people with disabilities take the lead.)
Date:
Title: Under Cover Dick: A Guide For Teaching About Condom Use Through Video And
Understanding. Book and video or DVD set.
Date:
Author: Hollins, S. & Downer, J.

Title: Keeping Healthy ‘Down Below’.
Date: 2000
Publisher/journal/link: Part of the "Books Beyond Words Series".
www.rcpsych.ac.uk/publications/booksbeyondwords.aspx
Author: Hollins, S. & Perez, W.

Title: Looking after my Breasts.
Date: 2000
Author: Hollins, S. & Roth, T.

Title: Making Friends.
Date: 1995
Author: Hollins, S. & Sinason, V.

Title: Bob Tells All.
Date: 1993

Title: Jenny Speaks Out.
Date: 1992
20
Title: Susan's Growing Up.
Date: 2001
Author: Hollins, S. & Terry, R.

Title: Hug Me, Touch Me.
Date: 1994
Author: Hollins, S. et al.

Title: Falling in Love.
Date: 1999

Title: Going to the Doctor.
Date: 1996

Title: I Can Get Through It.
Date: 1998

Title: Supporting Victims
Date: 2007
Author: Hollins, S. & Wilson, W.

Title: Looking after my balls
Date: 2004
Author: Hollomotz, A. & The Speakup Committee (2008)

Title: ‘May we please have sex tonight’ – people with learning difficulties pursuing
privacy in residential group settings.
Date: 2008
Publisher/journal/link: British Journal of Learning Disabilities, 37(2), 91-97.
Author: Inclusion Ireland.

Title: Marriage: Information Leaflet.
21
Date: 2007
Publisher/Journal/link: Ireland. http://www.inclusionireland.ie/publications.asp

Title: Sexual relationships: Information Leaflet.
Date: 2007
Publisher/Journal/link: Ireland. http://www.inclusionireland.ie/publications.asp
Author: Jackson, E. & Jackson, N.

Title: Helping People with a Learning Disability Explore Relationships
Date: 1999
Publisher/Journal/link: London: Jessica Kingsley Publishers Ltd.
Author: Life Support Productions.

Title: Jason's Private World. (DVD)
Date: 2000
Publisher/journal/link: Life Support Productions. www.lifesuportproductions.co.uk.

Title: Kylie's Private World. (DVD)
Date: 2000
Publisher/journal/link: Life Support Productions. www.lifesuportproductions.co.uk

Title: The New Guide to Relationships and Sex. (DVD).
Date: 2008
Publisher/journal/link: Life Support Productions. www.lifesuportproductions.co.uk

Title: You, Your Body and Sex. (DVD)
Date: 2000
Publisher/journal/link: Life Support Productions. www.lifesuportproductions.co.uk.
Author: Marsden, L.
Title: Let's Talk about Puberty: A Booklet about Growing Up for Young People who have
A Learning Disability.
Date: 2004
Publisher/journal/link: Down Syndrome Scotland.
Author: McCarthy,M & Cambridge,P.

Title: Your Rights about Sex: A Booklet for People with Learning Disabilities.
Date: 1996
Publisher/journal/link: Plymouth, UK: British Institute of Learning Disabilities (BILD)
Publications.
Author: NHS Cancer Screening Programmes

Title: An Easy Guide to Breast Screening: A leaflet by and for women with learning
disabilities.
Date: 2006
22
Publisher/journal/link:
http://www.cancerscreening.nhs.uk/breastscreen/publications/easy-guide-breast-
screening.pdf
Author: NHS Cancer Screening Programmes (2006).

Title: An Easy Guide to Cervical Screening: A leaflet by and for women with learning
disabilities.
Date: 2006
Publisher/journal/link: http://www.cancerscreening.nhs.uk/cervical/publications/easy-
guide-cervical-screening.pdf
Author: NSW Council for Intellectual Disability

Title: Talk About It: A video about sexual assault for people with an intellectual disability.
Date: 1997
Author: NSW Department of Health

Title: Being a Healthy Woman Factsheets: An educational resource for women with
intellectual disability, their families, health care providers, carers and support workers.
Date: 2010
Publisher/journal/link: Available to download from: See: http://www.fpnsw.org
Author: Shepherd School

Title: Feeling Grown Up. (Series of A5 easy read booklets on different topics).
Date: 1999
Publisher/journal/link: Nottingham: Shepherd School. shepherd_school@hotmail.com
Author: Social Biology Resource Centre

Title: Janet's Got Her Period.
Date: 1990
Publisher/journal/link: Carlton, Australia. Available though Boulton Hawker Films:
www.boultonhawker.co.uk
Author: Strike, R. & McConnell, D.

Title: Look at me, Listen to me, I have Something Important to Say!
Date: 2002
Publisher/journal/link: Sexuality and Disability, Vol. 20, No. 1.
Author: Supporting Parents Advocacy Network (SPAN)

Title: Understanding the Family Court System (easy read booklet)
Date:
Publisher/journal/link: UK: Dorset Advocacy. Available from:
http://www.dorsetadvocacy.co.uk/span/ufcs.htm
23
Training Resources and Guidelines –For
Service Providers, Staff and Family
Members
Relationship and Sexuality Training Manuals and Resources –for

Professionals working with People with Extra Support Needs
Author: Aziz, R.
Title: Reach Out Training Pack: Personal Relationships, Sexuality and Needs of African
and Asian Descent Learning Disabled People
Date: 2000
Publisher/journal/link: London: Family Planning Association (FPA).
Author: Briggs, F.
Title: Developing Personal Safety Skills in Children with Disabilities.
Date: 1995
Publisher/Journal/link: London: J. Kingsley.
Author: Brook (2010).

Title: Living your life: The Sex education and personal development resource for people
with learning difficulties and disabilities. (3rd edition)
Date: 2010
Publisher/Journal/link: See: http://www.brook.org.uk
Author: Brown, H. & Craft, A.

Title: Working with the 'Unthinkable'. Trainers Manual on the sexual abuse of Adults with
learning disabilities
Date: 1992
Publisher/journal/link Author: London: Family Planning Association (FPA).

Title: A Nightmare That I Thought Would Never End: Understanding The Sexual Abuse
of People with Learning Disabilities. (A Tape about Sexual Abuse for Staff made by
Service Users).
24
Date: 1996/1997
Publisher/journal/link: Brighton/Canterbury: Pavilion Publishing, in Association with The
Author: Bustard, S.
Title: Living your Life: Teaching Pack. (See: Craft, A. et al., (1991), Living Your Life).
Date: 2003
Publisher/journal/link: Coventry; Brook Publications.
Author: Campbell, M.et.al.

Title: Approaches to Sexual Abuse of Adults with Learning Disabilities. (Staff Training
Course).
Date: 1997
Publisher/journal/link: University of St. Andrews
Author: Cambridge, P.
Title: The Sexuality and Sexual Rights of People with Learning Disabilities:
Considerations for Staff and Carers.
Date: 1996
Publisher/journal/link: Plymouth, UK: British Institute of Learning Disabilities (BILD)
Publications.
Author: Cambridge, P. & Carnaby, S.

Title: Making it Personal: Providing Intimate and Personal Care for People with Learning
Disabilities.
Date: 2000
Publisher/journal/link: Brighton: Pavilion Publishing.
Author: Carnaby, S
Title: Intimate and Personal Care with People with Learning Disabilities
Date: 2006
Publisher/journal/link: London: Jessica Kingsley Publishers
Author: Champagne, M.P., Stanfield J. & Walker-Hirsch, L.

Title: Circles, Level I: Intimacy and Relationships. Part I: Relationships. (1 Book & 3
DVDs).
Date: 1993
Publisher/journal/link: Santa Barbara, CA: James Stanfield Publishing Company.
Author: Champagne, M.P., Stanfield J. & Walker-Hirsch, L.

Title: Circles, Level I: Intimacy and Relationships. Part II: Relationship
Building/Transitions. (1 Book & 3 DVDs).
Date: 1993
Author: Champagne, M.P. & Walker-Hirsch, L.

Title: Circles, Level III: AIDS, Safer Ways. (1 Book, 1 Leaflet & 6 Videos).
Date: 1988
Publisher/Journal/link: Santa Barbara, CA: James Stanfield Publishing Company.
Author: Chivers, J. & Mathieson, S.
25
Title: Training in Sexuality and Relationships: An Australian Model.
Date: 2000
Author: Cooper, E. & Walsh, R.

Title: Making the Change: A Teaching Pack on the Menopause for Women with Learning
Disabilities.
Date: 1999
Publisher/journal/link: Brighton: Pavilion Publishing
Author: Craft, A. & Stewart, D

Title: What About Us? Sex Education for Children with Disabilities.
Date: 1993
Publisher/journal/link: Sheffield, UK: Home and School Council.
Author: Dodd, K., Jones, K., Stroud, J. & Liddiard, H.

Title: Exploring sexual and social understanding: an illustrated pack designed for
working with people with learning disabilities. (CD Rom & Folder. The pack includes a
capacity assessment form).
Date: 2007
Publisher/journal/link: UK: British Institute of Learning Disabilities (BILD).
www.bild.org.uk
Author: Downs, C. & Craft, A.

Title: Sex in Context, Part I: A Personal and Social Development Programme for
Children and Adults with Profound and Multiple Impairments.
Date: 1998
Publisher/journal/link: Brighton: Pavilion Publishing Ltd.

Title: Sex in Context, Part II: Setting Up A Personal and Social Development Programme
for Children and Adults with Profound and Multiple Impairments.
Date: 1998
Publisher/journal/link: Joseph Rowntree Foundation, Brighton: Pavilion Publishing Ltd.

Title: Sex in Context: Safeguards in Systems - A Handbook.
Date: 1998
Publisher/journal/link: Joseph Rowntree Foundation, Brighton: Pavilion Publishing Ltd
Author: Duignan, S., Kerr-Edwards, L. & Image in Action (2010)

Title: The Confidence Factor: A practical resource for use with pupils with special
educational needs including autism spectrum disorder aged 11–16.
Date: 2010
Publisher/journal/link: UK: Image in Action. See: http://www.imageinaction.org/res1.htm
Author: Egan, R. & O’Dea, E.

Title: Freedom. Relationship & Sexuality Education: A Resource Book for Teachers &
Facilitators of Students with a Mild Learning Disability.
Date: 2002
Publisher/journal/link: Bawnmore, Limerick: Brothers of Charity Services.
26
Author: Ellis, R. & Kitson, D. (Ed.).
Title: Training to Protect: Training Materials to Protect People with Learning Disabilities
from Abuse. For Trainers Training Professionals Working with Adults or Children with
Learning Disabilities.
Date: 2000
Publisher/journal/link: Nottingham, UK: Ann Craft Trust.

Title: Down There: A DVD about women’s bodies, contraception and reproduction (2nd
edition) (DVD & booklet)
Date: 2008

Title: Feeling Sexy Feeling Safe with a disability: A training package for teaching
sexuality education to people with intellectual disabilities (DVD and workbook).
Date: 2002
Author: Family Planning Queensland (FPQ)

Title: Every body needs to know: A sexuality and relationships education resource for
teaching people with a disability.
Date: 2010
http://www.fpq.com.au/publications/teachingAids/everybody_know.php

Title: Everybody needs to know workbooks (free workbooks to download for parents,
carers and professionals). Includes: Introduction to workbooks, Talking about bodies,
Being private, Puberty, Decisions about sexual relationships
Date: 2010
Publisher/journal/link: http://www.fpq.com.au/education/disability/resources.php

Title: Puberty Healthy/Unhealthy – activity cards.
Date:
http://www.fpq.com.au/publications/teachingAids/ActivityCards.php

Title: Responding positively to sexual behaviours: The Traffic Lights model (DVD &
factsheet).
Date:
http://www.fpq.com.au/publications/teachingAids/Traffic_lights_DVD.php

Title: Sexual Relationships – activity cards.
Date:
27
http://www.fpq.com.au/publications/teachingAids/ActivityCards.php
Author: Fanstone, C. & Andrews, S.

Title: Learning Disabilities, Sex and the Law: a Practical Guide 2nd revised edition
Date: 2009
Publisher/journal/link: UK: FPA email: fpadirect@fpa.org.uk
Author: Fanstone, C. & Katrak, Z.

Title: Sexuality & Learning Disability: A Resource for Staff.
Date: 2003
Author: Firth, H., Fraser, J., Nelson, F. & Maynor, J.

Title: Building Friendships: A Resource Pack to Help Young People Make Friendships
and Develop Relationships.
Date: 1994
Publisher/journal/link: Coventry: Brook Publications.
Author: Fitzwater, S. & Noonan, J.

Title: Sex education with individuals and in groups. In M. McCarthy & D. Thompson
(eds), Sexuality and Learning Disabilities: A handbook
Date: 2010
Author: FPA (UK)

Title: All about Us (CD-ROM) A CD-ROM for people with learning disabilities on growing
up and personal and sexual relationships
Date: 2010
Publisher/journal/link: FPA email: fpadirect@fpa.org.uk
Author: Frawley, P., Johnson, K., Hillier, L. & Harrison, L.

Title: Living Safer Sexual Lives: A Training and Resource Pack for People with Learning
Disabilities and Those Who Support Them.
Date: 2003
Author: Gill, K.M. & Hough, S.

Title: Sexuality Training, Education and Therapy in the HealthCare Environment: Taboo,
Avoidance, Discomfort or Ignorance?
Date: 2007
Author: Grieve, A., McLaren, S. & Lindsay, W.R.

Title: An evaluation of research and training resources for the sex education of people
with moderate to severe learning disabilities
Date: 2007
Publisher/journal/link: British Journal of Learning Disabilities, 35(1), 30–37.
28
Title: "Now I'd Like To Sleep with Rachel": Researching Sexuality Support in a Service
Agency Group Home.
Date: 2009
Publisher/journal/link: Disability & Society Vol 24 No. 3 Page 303-315
Author: Hart, P. & Douglas-Scott, S.

Title: Batteries Not Included: A Sexuality Resource Pack for Working with People with
Complex Communication Support Needs.
Date: 2005
Publisher/journal/link: Glasgow: Common Knowledge.
Author: Headon Ltd.

Title: Body Board. For use with: 1. Emotions Pack; 2. Sex Education Pack; 3.
Contraception and Making Love; 4. Conception and Pregnancy; 5. Making Choices
about Health; 6. Personal Hygiene; 7. Organs of The Body; 8. A Visit to The Dentist.
Date: 1998
Publisher/journal/link: Manchester, UK: Headon Ltd.
Author: Headon Productions Ltd.

Title: Body Board, Plus Various Packs. (Interactive playboard with Specific Image
Packs).
Date: 1999
Publisher/journal/link: Headon Productions Ltd. (t.marshall7@ntlworld.com).
Author: Health Scotland

Title: Sexual Health and Relationships: A Review of Resources for people with learning
disabilities (Revised edition).
Date: 2008
Publisher/journal/link: http://www.healthscotland.com/uploads/documents/7819-
AReviewOfResourcesforPeopleWithLearningDisabilities.pdf
Author: Heighway, S. & Webster, S.

Title: S.T.A.R.S.: Skills Training for Assertiveness, Relationship-Building, and Sexual
Awareness
Date:
Publisher/journal/link: Texas: Future Horizons
Author: Image in Action

Title: Going Further: Getting Started. Sex and Relationships Education Course For
learners with additional needs at Colleges of Further Education.
Date: 2010
Publisher/journal/link: http://www.imageinaction.org/pdf/GF_GS-2.12.10-1.pdf
Author: Image in Action

Title: Going Further: Sex and Relationships Education Course For learners with
additional needs at Colleges of Further Education.
Date: 2010
Publisher/journal/link: http://www.imageinaction.org/pdf/GF_SREcourse-6.12.10-1.pdf
Author: Job, G.
29
Title: The Role of the Professional Sex Educator (for Young Adults with Learning
Difficulties).
Date: 1996
Publisher/journal/link: Buckinghamshire: Frontline Magazine, Issue 28.
Author: Kempton, W.
Title: Sex Education for Persons with Disabilities that Hinder Learning: A Teacher's
Guide. (Book and Video). (Revised ed.).
Date: 1991
Author: Kempton, W. & Stiggall, L.

Title: Sex Education for Persons who are Mentally Handicapped
Date: 2001
Publisher/journal/link: Theory into Practice, Vol. xxvii, No. 3.
Author: Kempton, W. et al
Title: Socialisation and Sexuality: A Comprehensive Training Guide for Professionals
Helping People with Disabilities that Hinder Learning.
Date: 1993
Publisher/journal/link: Santa Barbara, CA: James Stanfield Co. Inc.
Author: Kerr-Edwards, L. & Scott, L.

Title: Talking Together…about Sex and Relationships: A Practical Resource for Schools
and Parents working with Young People with Learning Disabilities. Revised edition
Date: 2010
Publisher/journal/link: London: Family Planning Association (FPA)

Title: The New Guide to Relationships and Sex. (DVD).
Date: 2008
Publisher/Journal/link: London: Life Support Productions.
www.lifesupportproductions.co.uk
Author: Ludwig, S.
Title: Feeling Grown Up/Now They're Growing Up/What About Us?
Date: 1999
Publisher/journal/link: The Canadian Journal of Human Sexuality, Vol 8,No.2
Author: Mallett, A. & Stewart, D.

Title: Sexuality support for people with profound and multiple disabilities. In M. McCarthy
& D. Thompson (eds), Sexuality and Learning Disabilities: A handbook.
Date: 2010
Author: McCarthy, A.
Title: RESPECT: Relationships, Person-centred, Education, Consent, Training. Article
about the RESPECT Symposium, Killarney, 5th - 6th November 2003.
Date: 2004
Publisher/journal/link: Frontline 57, Spring 2004.
30
Author: McCarthy, M. & Thompson, D.
Title: Sex and the 3R's'. Rights, Responsibilities and Risks. A Sex Education Package
for Working with People with Learning Disabilities. (2nd ed.).
Date: 1998

Title: Sex and Staff Training.
Date: 1994
Author: McConkey, R. & Ryan D.

Title: Experiences of Staff in Dealing with Client Sexuality in Services for Teenagers and
Adults with Intellectual Disability.
Date: 2001
Publisher/journal/link: Journal of Intellectual Disability Research, Vol. 45, No. 1.
Author: McConkey, R. et al.

Title: An Introduction to Relationships and Sexuality in Learning Disability Services: A
Second Level Module for Front-line Staff in Services. (E-Learning).
Date: 2002
Publisher/journal/link: Newtownabbey, N.I.: University of Ulster.
Author: McGrath, M
Title: Staff views regarding an educational & training programme on sexuality &
relationships when working with people with intellectual disabilities
Date: 2009
Publisher/journal/link: Ireland
www.tcd.ie/psychology/other/mscap_dissertations/pdp/mariemcgrath.pdf
Author: Mucciglosso, L
Title: Sexual abuse prevention strategies & programmes for persons with developmental
disabilities
Date: 1991
Publisher/journal/link: Sexuality & Disability, Vol 9 No. 3 pages 261-271
Author: National Council for Curriculum and Assessment (NCCA)

Title: Guidelines for Teaching of students with General Learning Disabilities
Date:2007
http://www.ncca.ie/en/Curriculum_and_Assessment/Inclusion/Special_Educational_Nee
ds/Students_with_General_Learning_Disabilities/
Author: NHS Leeds (2009).

Title: Puberty & Sexuality for Children and Young People with a Learning Disability (A
supporting document for National Curriculum objectives).
Date: 2009
http://www.sexualhealthsheffield.nhs.uk/resources/pubertyandsexualitypack.pdf
Author: NSW Council for Intellectual Disability
31
Date: 1997
See: http://www.fpnsw.org.au/
Author: O'Grady, K.
Title: Training in Sexual Expression: Article about The RESPECT Symposium, Killarney,
5th - 6th November 2003.
Date: 2004
Publisher/journal/link: Frontline 57, Spring 2004
Author: Parello, N.
Title: In their own words: Couples tell their stories. In L. Walker-Hirsch, (ed). The Facts
of Life…and More: Sexuality and Intimacy for People with Intellectual Disabilities.
Date: 2007
Author: Rose, J. & Holmes, S

Title: Changing Staff Attitudes to the Sexuality of People with Mental Handicaps: An
Evaluative Comparison of 1 and 3 Day Workshops.
Date: 1991
Publisher/journal/link: Mental Handicap Research, Vol. 4.
Author: Scott, L. & Duignan, S.

Title: Let's Plan It: A Guide to Sex and Relationship Education for Young People and
Adults with Learning Disabilities.
Date: 2005
Publisher/journal/link: Buckinghamshire: Image In Action.
Author: Scott, L. & Image In Action Team

Title: On the Agenda: Sex Education for Young People with Learning Difficulties. A
Practical Guide to Policy Making, Planning and Working with Young People in Schools
and Colleges using Drama and Active Learning Methods.
Date: 1994
Publisher/journal/link: London: Image In Action.
Author: Scott, L. & Kerr-Edwards, L.

Title: Talking together….about Growing Up: A Workbook for Parents of Children with
Date: 2004
Author: Scott, L. & Kerr-Edwards, L.

Title: Talking together….about Contraception: A Practical Resource for Staff and
Parents working with Young People with Learning Disabilities: Book 1: For Carers &
Professionals working with People with ID; Book 2: Suitable for some Young people to
use on their own ( 2 volumes) ( revised edition )
Date: 2010
Author: Shevlin, M. & McCormick, G.
32
Title: Exploring Sexuality and Disability: "Walk Your Talk".
Date: 1997
Author: Smith, K., Wheeler, B.,Pilecki, P. & Parker, T.

Title: The Role of the Pediatric Nurse Practitioner in Educating Teens with Mental
Retardation about Sex
Date: 1995
Publisher/journal/link: Journal of Pediatric Health Care, Vol.9.
Author: Stanfield, J.
Title: Be Cool: Conflict Managing Programme. (Video Pack).
Date: 1997
www.stanfield.com
Title: Becoming Datesmart: 1 - Abstinence and the Art of Saying "No". (DVD)
Date: 1998
www.stanfield.com
Title: Becoming Datesmart: 2 - Avoiding Trouble and Listening for "No". ( DVD)
Date: 1998
www.stanfield.com
Author: South East London Health Promotion Services (1992)

Title: My Choice, My Own Choice. A Sex Education Video for People with Learning
Disabilities.
Date: 1992
Author: West Midlands Learning Disabilities Forum/British Institute of Learning

Disabilities (BILD).
Title: Social and Personal Relationships: Policy and Good Practice Guidelines for Staff
Working with Adults with Learning Disabilities.
Date: 2000
Publisher/journal/link: Kidderminster, UK: British Institute of Learning Disabilities (BILD)
Publications. In Association with West Midlands Learning Disability Forum.
Author: Widgit (2007).

Title: Signalong Sexual Awareness Resource Pack (Signalong signs, symbols and
conversation cards to assist in the delivery of sex education).
Date: 2007
Publisher/journal/link: http://www.widgit.com/products/signalong/sexual_awareness.htm
Author: Windfall Films (Production Company).

Title: Richard Is my Boyfriend.
Date: 2007
33
Publisher/journal/link: UK: Windfall Films.
http://www.windfallfilms.com/show.aspx?program=1097
Author: Wolfe, P.S. & Blanchett, W.J.

Title: Sex Education for Students with Disabilities: An Evaluation Guide.
Date: 2003
Publisher/journal/link: Teaching Exceptional Children, Vol. 36, No. 1, (Sep/Oct).
Author: YAI: National Institute for People with Disabilities Network.

Title: Education and Training Resource Catalog: For Staff and for Individuals with
Developmental and Learning Disabilities.
Date: 2007/2008
Publisher/journal/link: YAI: National Institute for People with Disabilities Network.
Relationship and Sexuality Training Resources –Not specifically aimed at

supporting People with Extra Support Needs
Author: Cullen, R., Lawlor, M. & MacIntyre, D.

Title: The Stay Safe Programme
Date: 1998
Publisher/journal/link: Dublin : C.A.P.P. www.staysafe.ie
Author: Department of Education

Title: Relationships, Sexuality Education: Policy Guidelines
Date: 1997
Publisher/journal/link: Ireland: www.education.ie/servlet/blobservlet/rse-policy-
guidelines.pdf
Author: Drumcondra Education Centre

Title: RSE Relationships & Sexuality Education Training Support Service for Schools
Date:
Publisher/journal/link: Ireland:
www.ecdrumcondra.com/index.php?option.com_content&view=article&id=91&itemid=79
Author: Epstein, D. & Johnson, R.

Title: Schooling Sexualities.
Date: 1998
Publisher/journal/link: Buckingham: Open University Press.
Author: Family Planning Association (FPA).

Title: Contraceptive Display Kit.
Date: 2004
Publisher/journal/link: London: Family Planning Association (FPA) Direct.
Author: Green, J.
Title: The Big Book of Bodily Functions: 1,500 Words for Bodily Functions and Body
Parts
Date: 2001
Publisher/journal/link: London: Cassell & Co.
34
Author: Health Promotion Department.
Title: Busy Bodies: Adolescent Development Video. (DVD 20 mins. & Booklet).
Date: 2004
Publisher/journal/link: Cork: Health Service Executive South.
Author: Herron, A.
Title: Sex Lines
Date: 1995
Publisher/journal/link: Dublin: Poolbeg Press
Author: Irish Family Planning Association ( IFPA)

Title: The Black & White Guide to Contraception. (Booklet).
Date: 2001
Publisher/journal/link: Dublin, Ireland: Jointly Published by: IFPA, the Well Woman
Centre & The Irish College of General Practitioners.
Author: Irish Family Planning Association (IFPA)

Title: 4Boys: A Below-the-Belt guide to the Male Body (For young men 13 -16 years
using simple text and humorous illustrations to provide information on testicular self-
examination, contraception, STIs and safer sex)
Date:
Publisher/journal/link: See: http://www.ifpa.ie

Title: 4 Girls: A Below-the-Bra guide to the Female Body (Booklet for young women 12-
16 years giving them the facts they want to know about physical changes and sexual
development).
Date:

Title: Contraception and Safer Sex Factsheets (21 factsheets covering different types of
contraceptive methods and sexually transmitted infections).
Date:

Title: Is Everybody Doing It? : Your Guide to Contraception (Booklet dealing with peer
pressure, issues involved in starting a sexual relationship, going to a contraception or
sexual health clinic, different contraceptive methods and sexually transmitted infections).
Date:

Title: Love S.T.I.NGS: A beginners guide to sexually transmitted infections (Comic strip
style booklet raises and answers questions young people have about STIs). For 14-18
year olds.
Date:
35
Title: Periods: What you need to know (Booklet for girls 9 - 12 years explaining
menstruation, what happens and how to deal with it).
Date:

Title: Pregnancy: A young person's guide (For 12 - 16 year olds. Covers reproduction,
preparing for pregnancy, development of the foetus and birth. It aims to give young
people a realistic view of what pregnancy entails).
Date:

Title: The Black & White Guide to Sexually Transmitted Infections.
Date: 2007
Publisher/journal/link: http://www.ifpa.ie/Media/Files/STI-English
Author: Irish National Teachers Organisation (INTO)

Title: Meeting the Needs of Children with Social and Emotional Problems.
Date: 1996
Publisher/journal/link: Dublin:
www.into.ie/roi/publicationspre2000/meetingtheneeds1995.pdf
Author: Kiely, E.
Title: Where is the Discourse of Desire? Deconstructing the Irish Relationships and
Sexuality Education (RSE) Resource Materials.
Date: 2005
Publisher/journal/link: Irish Educational Studies, Vol. 24, No. 2-3, (September).
Author: Massey, D.
Title: School and Sex Education
Date: 1991
Author: Mayock, P., Kitching, K. & Morgan, M.

Title: Relationships and Sexuality Education (RSE) in the Context of Social, Personal
and Health Education (SPHE): An Assessment of the Challenges to Full Implementation
of the Programme in Post-primary Schools.
Date: 2007
Publisher/journal/link: Ireland: Crisis Pregnancy Agency/Department of Education and
Science. www.crisispregnancy.ie/pub/rsesummaryeng.pdf
Author: McKay Armstrong, E. & Gordon P.

Title: Guidelines for Teaching about Sexuality
Date: 1994
Publisher/journal/link: Nurse Education Today, Vol 17, No.1
Author: National Society for the Prevention of Cruelty to Children (NSPCC).

Title: How it is: An Image Vocabulary for Children about Feelings, Rights and Safety,
Personal Care and Sexuality.
36
Date: 2002
Publisher/Journal/link: London: National Society for the Prevention of Cruelty to Children
(NSPCC). www.nspcc.org.uk/inform/applications/howitis
Author: Quinn, M. & T.

Title: Couple Alive: The Six-session Programme that Offers Effective Support for
Couples of All Ages, Including Practical Skills to Make Their Love Last - or Renew It.
(Video Pack).
Date: 1998
Publisher/journal/link: Newry, N.I. Family Caring Trust
Author: Quinn, M. & T.

Title: Growing in Love: Teaching Pack
Date: 1989
Publisher/journal/link: Newry, N.I. Family Caring Trust
Author: Ryan, G. & Blum, J.

Title: Understanding and Responding to the Sexual Behaviour of Children: Training
Manual.
Date: 1988/1993
Publisher/journal/link: University of Colorado, Denver: Kempe National Centre.
Author: Sexual Health Centre

Title: Sexual Times: Your Guide to Sexual Health
Date:
Publisher/journal/link: Cork: Sexual Health Centre & Health Service Executive South.
http://www.sexualhealthcentre.com/publications/
Author: SPHE Support Service

Title: Social, Personal and Health Education: Resources
Date: 1998
Publisher/journal/link: Ireland www.sphe.ie/resources.aspx
Author: Thomson, R.
Title: Religion, Ethnicity & Sex Education: Exploring the Issues. A Resource for
Teachers and Others Working with Young People. (Compiled and Edited on behalf of
the Sex Education Forum)
Date: 1993
Publisher/journal/link: London: National Children's Bureau.
37
Policies and Guidelines around Sexuality and People with Extra
Support Needs (Including Consent Issues)
Author: Age Action Ireland, The Alzheimer Society of Ireland, Amnesty International,
Centre for Disability Law and Policy at NUI Galway, Disability Federation of Ireland,
Inclusion Ireland, Irish Advocacy Network, Irish Mental Health Lawyers Association,
Mental Health Ireland, Mental Health Reform, National Advocacy Service for People with
Disabilities (Citizens Information), National Federation of Voluntary Bodies, Neurological
Alliance of Ireland, Shine and St Patrick’s University Hospital
Title: Essential Principles: Irish Legal Capacity Law
Date: 2012
Publisher/journal/link: Dublin: Amnesty International Ireland. Available from
http://www.amnesty.ie/sites/default/files/report/2012/04/PRINCIPLES_WEB.pdf
Author: Ames, T.R.

Title: Perspectives: Inclusionary Standard for Determining Sexual Consent for
Individuals with Developmental Disabilities
Date: 1995
Publisher/journal/link: Mental Retardation, (Aug).
Author: Bach, M.
Title: Supported Decision Making under Article 12 of the UN Convention on the Rights of
Persons with Disabilities. Notes for Presentation to Conference on Legal Capacity and
Supported Decision Making Parents' Committee of Inclusion Ireland.
Date: 2007
Publisher/journal/link: www.inclusionireland.ie/
Author: British Institute of Learning Disabilities

Title: Social and personal relationships: policy and good practice guidelines for staff
working with adults with learning disabilities –New edition in preparation.
Date:
Publisher/journal/link: See: http://www.bild.org.uk/
Author: Brothers of Charity Services (South Eastern Region).

Title: Personal Development, Relationships and Sexuality: Good Practice Guidelines for
Staff.
38
Date: 2005
Publisher/journal/link: Ireland: Brothers of Charity Services (South Eastern Region).
Author: Brown, H. & Croft-White, C., with Wilson, C. & Stein, J.

Title: Taking the Initiative: Supporting the Sexual Rights of Disabled People.
Date: 2000
Publisher/journal/link: England: Pavilion Publishing/Joseph Rowntree Foundation
Title: The Sexuality and Sexual Rights of People with Learning Disabilities:
Considerations for staff & carers
Date: 2003
Publisher/journal/link Plymouth, UK: British Institute of Learning Disabilities (BILD)
Publications.
Author: Cambridge, P. & McCarthy, M.

Title: Developing and Implementing Sexual Policy for a Learning Disability Provider
Service.
Date: 1996
Publisher/journal/link: Health and Social Care in the Community, Vol. 5, No. 4.
Author: Commission on the Status of People with Disabilities

Title: A Strategy for Equality.
Date: 1996
Publisher/journal/link: Dublin
Author: Commission on the Status of People with Disabilities

Title: Towards Equal Citizenship: Progress Report.
Date: 1999
Publisher/journal/link: Ireland: Irish Government Paper.
Author: Dodd, K., Jones, K., Stroud, J. & Liddiard, H.

Title: Exploring sexual and social understanding: an illustrated pack designed for
working with people with learning disabilities. (CD Rom & Folder. The pack includes a
capacity assessment form).
Date: 2007
Publisher/journal/link: UK: British Institute of Learning Disabilities (BILD).
www.bild.org.uk
Author: Dukes E. & McGuire B. E.

Title: Enhancing capacity to make sexuality-related decisions in people with an
intellectual disability.
Date: 2009
Publisher/journal/link: Journal of Intellectual Disability Research 53, 727–34.
Author: Evans, A. & Rodgers, M.E.

Title: Protection for Whom? The Right to a Sexual or Intimate Relationship.
Date: 2000
Publisher/journal/link: Journal of Intellectual Disabilities, 4(3), 237-245.
Author: Everett, B.
39
Title: Ethically Managing Sexual Activity in Long-term Care.
Date: 2007
Publisher/journal/link: Sex Disability, Vol. 25.
Author: Fanstone, C. & Thompson, D.

Title: People with learning disabilities, sex and the law. In M. McCarthy & D. Thompson
(eds), Sexuality and Learning Disabilities: A handbook
Date: 2010
Publisher/journal/link: Brighton: Pavilion Publishing (Brighton) Ltd –part of OLM Group.
Author: Fraser, S. & Sim, J .

Title: The Sexual Health Needs of Young People with Learning Disabilities: Briefing
paper.
Date: 2007
Publisher/journal/link: Health Scotland:
http://www.healthscotland.com/uploads/documents/6140-RegainingTheFocusLD.pdf
Author: Griffiths, D.M., Richards, D. & Fedoroff P.

Title: Ethical Dilemmas: Sexuality and Developmental Disability
Date: 2002
Publisher/journal/link: New York: NADD Press (National Association for the Dually
Diagnosed).
Author: Harber, M. & Hingsburger, D.

Title: Ethics of Touch: Establishing and Maintaining Appropriate Boundaries in Service to
People with Developmental Disabilities.
Date: 1998
Publisher/journal/link: Canada: Diverse City Press Inc.
Author: Health Scotland

Title: Relationships & Sexual Wellbeing: A Policy and Practice Guidelines for those who
work with People with Learning Disabilities.
Date: 2005
http://www.healthscotland.com/uploads/documents/Relationships%20booklet.pdf
Author: Kanguade, G.
Title: Advancing sexual health of persons with disabilities through sexual rights: the
challenge. In R. Shuttleworth & T. Sanders (eds), Sex and Disability: Politics, Identity
and Access.
Date: 2010
Author: Kennedy, C.H.

Title: Legal and Psychological Implications in the Assessment of Sexual Consent in the
Cognitively Impaired Population.
Date: 2003
Publisher/journal/link: Assessment, Vol. 10, No. 4, (Dec).
Author: Lesseliers, J., Van Hove, G. & van Hoey, T.
40
Title: Supporting relationships –lessons from what people with learning disabilities have
to say. In M. McCarthy & D. Thompson (eds), Sexuality and Learning Disabilities: A
handbook.
Date: 2010
Author: Lyden, M.
Title: Assessment of Sexual Consent Capacity.
Date: 2007
Publisher/journal/link: Sexuality & Disability, 25(1), 3-20.
Author: McCartney, M.
Title: Legal Capacity, Supported Decision-making, Substitute Decision-making and
Guardianship.
Date: 2007
Publisher/journal/link: www.inclusionireland.ie/
Author: National Disability Authority

Title: NDA submission on capacity and sexual relations in the context of the mental
capacity scheme of bill (internet).
Date: 2009
Publisher/journal/link: Dublin: National Disability Authority. Available from:
http://www.nda.ie/website/nda/cntmgmtnew.nsf/0/66292BBCC27B2914802575B7003D5
E83?OpenDocument
Author: NHS Lothian

Title: Making choices Keeping safe: Policy and Practice Guidelines on relationships and
sexual wellbeing when working with people with learning disabilities.
Date: 2004
Publisher/journal/link: Available to download: http://www.mcks.scot.nhs.uk/
Author: Skinner, R., Joiner, C., Chesters, L., Bates, L. & Scrivener, L.
Title: Demystifying the process? A multi disciplinary approach to assessing capacity for
adults with a learning disability.
Date: 2010
Publisher/journal/link: British Journal of Learning Disabilities, 39, 92–97.
Author: Stewart, D. & Ray, C.

Title: Ensuring Entitlement: Sex and Relationships Education for Disabled Children.
(Forum Factsheet).
Date: 2001
Publisher/journal/link: Sex Education Matters (SEM) No. 26, London: Sex Education
Forum, Council for Disabled Children, National Children's Bureau Enterprises Ltd.
Available from www.swish.org.uk/files/sexed.ff.26.pdf
Author: Thompson, D.
Title: Sexual interests, opportunities and choices. In M. McCarthy & D. Thompson (eds),
Sexuality and Learning Disabilities: A handbook.
Date: 2010
41
Author: Travis, D.
Title: Personal Development and Sexuality
Date: 2000
Publisher/journal/link: Frontline 41, January 2000.
Author: UFC Handicap: National Information and Research Centre for Persons with
Disabilities & Henningsen, U.R.
Title: A Guide to Sexuality: Regardless of Disabilities.
Date: 2004
Publisher/journal/link: Denmark: The Ministry of Social Affairs, 7th Section.
http://www.ufch.dk .
Author: WHO & UNFPA

Title: Promoting sexual and reproductive health for persons with disabilities:
WHO/UNFPA guidance note.
Date: 2009
Publisher/journal/link: World Health Organization:
http://www.who.int/reproductivehealth/publications/general/9789241598682
Author: YAI: National Institute for People with Disabilities Network

Title: General Evaluation Procedures for Determining Verbal Consent.
Date:
Author: YAI: National Institute for People with Disabilities Network

Title: Verbal Informed Consent Tool Summary Sheet.
Date:
42
Resources for Parents/ Relatives of People with Extra Support Needs
Author: Alberta Health Services –Sexual and Reproductive Health Education and Health
Promotion
Title: Sexuality and Developmental Disability: A Guide for Parents.
Date: 2009
http://www.teachingsexualhealth.ca/media/pdf/Sexuality_Developmental_Disability.pdf
Author: Ballan, M.
Title: Parents as Sexuality Educators for their Children with Developmental Disabilities
Date: 2001
Publisher/Journal/link: SIECUS Reoprt, Vol.29, No.3, (Feb/Mar)
Author: Booth, W. & Booth, T.

Title: A Family at Risk: Multiple Perspectives on Parenting and Child Protection
Date: 2004
Publisher/Journal/link: British Journal of Learning Disabilities, Vol. 32.
Author: Caffrey, S.
Title: Your Queries on Sexuality, Masturbation and Sex-Education.
Date: 1990
Publisher/journal/link: Frontline Magazine, Winter Edition
Author: Calgary Health Region

Title: Sexuality and Developmental Disability: A Guide for Parents
Date: 2005
Publisher/journal/link: Canada: www.teachingsexualhealth.ca/media/pdf/sexuality-
developmental-disability.pdf
Author: Craft, A. & Cromby, J.

Title: Parental Involvement in The Sex Education of Students with Severe Learning
Difficulties.
Date: 1991
Publisher/Journal/link: Nottingham, UK: Nottingham University, Dept. of Mental
Handicap.
43
Author: D'aegher, L., Robinson, P. & Jones, S.
Title: Talk to Me: A Personal Development Manual for Women and Girls with Down
Syndrome, and their Parents.
Date: 1999
Publisher/Journal/link: NSW, Australia: Down Syndrome Association of NSW Inc.
available at www.dsansw.org.au/index.php?pg=261
Author: Finlay, F.
Title: Mother Ostrich.
Date: 1992
Publisher/Journal/link: Frontline Magazine, Autumn Edition.
Author: Fitzmaurice, S.
Title: Adventures in Child-rearing: The Sexual Life of a Child Growing Up with Down
Syndrome.
Date: 2002
Publisher/Journal/link: Disability Studies Quarterly, (Fall), Vol. 22, No. 4.
Title: IOpeners: Parents Ask Questions about Sexuality and Children with
Developmental Disabilities.
Date: 1993
Publisher/journal/link: Family Support Institute Press.
http://www.cdss.ca/shop/itm00077.htm
Author: Job, G.
Title: Parents - Key Partners in Sex Education.
Date: 1997
Publisher/Journal/link: Frontline Magazine, Issue 31.
Author: Kerr-Edwards, & Scott, L.

Title: Talking Together about Sex and Relationships: A Practical Resource for Schools
and Parents working with Young People with Learning Disabilities.
Date: 2003
Publisher/journal/link: London Family Planning Association (FPA)
Author: Kingsley, E.P. & Walker-Hirsch, L.

Title: A parent’s perspective: Supporting challenges and strategies. In L. Walker-Hirsch,
(ed). The Facts of Life…and More: Sexuality and Intimacy for People with Intellectual
Disabilities.
Date: 2007
Author: Melberg Schwier, K. & Hingsburger, D.

Title: Sexuality: Your Sons and Daughters with Intellectual Disabilities.
Date: 2000
Author: Redmond, B.
44
Title: Listening to Parents: The Aspirations, Expectations and Anxieties of Parents about
their Teenager with Learning Disability.
Date: 1995
Publisher/journal/link: Dublin: Family Studies Centre, University College Dublin.
Author: Rogers, C.
Date: 2009
Author: Rogers, C.
people.
Date: 2010
Author: Rose, J.
Title: Accepting and Developing the Sexuality of People with Mental Handicaps: Working
with Parents.
Date: 1990
Publisher/journal/link: Mental Handicap, Vol. 18, (March).
Author: Rose, J. & Jones, C.

Title: Working with Parents. In Craft, A.,( Ed.), Practice Issues in Sexuality and Learning
Disabilities.
Date: 1994
Publisher/journal/link: London: Routledge.
Author: Scott,L. & Kerr-Edwards,L.

Title: Talking together…. about Growing Up: A Workbook for Parents of Children with
Date: 2004
Author: Scott,L. & Kerr-Edwards,L.

Title: Talking together….about Contraception: A Practical Resource for Staff and
Parents working with Young People with Learning Disabilities: Book 1: For Carers &
Professionals working with People with ID; Book 2: Suitable for some Young people to
use on their own ( 2 volumes) ( revised edition )
Date: 2010
Author: Shepherd School

Title: Protecting Your Child, Now They are Growing Up. (Series of easy read A5
booklets on different topics).
Date: 1993
Publisher/journal/link: Nottingham, Shepherd School.
Author: Shine SA (Sexual Health Information Networking and Education South Australia)
(2009).
Title: Friendships and Dating: Information about relationships for parents, carers and
young people with a disability (booklet and DVD).
45
Date: 2009
Publisher/Journal/link: Booklet available as PDF document and DVD can be ordered
from: http://www.shinesa.org.au/ or
http://www.publications.health.sa.gov.au/cgi/viewcontent.cgi?article=1000&context=disa
b
Title: Puberty information for parents of boys with a disability (factsheet).
Date: 2010
Publisher/journal/link: Available as PDF document from: http://www.shinesa.org.au
Title: Puberty information for parents of girls with a disability (factsheet).
Date: 2010
Publisher/journal/link: Available as PDF document from: http://www.shinesa.org.au
Author: Sinason, V. (Tavistock Clinic).

Title: Understanding Your Handicapped Child.
Date: 1993
Publisher/journal/link: London: Rosendale Press.
Resources for Talking with Your Child about Sexuality –Not Specifically for
Parents of Children with Extra Support Needs
Author: Child Abuse Prevention Programme.

Title: Personal Safety Skills for Children with Learning Difficulties: A Parent's Guide.
Date: 2000
Publisher/journal/link: Child Abuse Prevention Programme. Dublin: C.A.P.P.
Author: Child Abuse Prevention Programme.

Title: Stay Safe: A Parents Guide
Date: 1994
Publisher/journal/link: Child Abuse Prevention Programme. Dublin: C.A.P.P.
Author: Cole, B.
Title: Mummy Laid an Egg.
Date:
Publisher/journal/link: London: Jonathan Cape Ltd.
Author: Cole, B.
Title: Hair in Funny Places
Date: 2001
Publisher/journal/link: UK: Red Fox
Author: Coleman, J.
Title: Sex and your Teenager: A Parent's Guide.
Date: 2001
Publisher/journal/link: Chichester: John Wiley & Sons Ltd.
Author: Coleman, J. et al.

46
Title: Teenagers and Sexuality. (Audio Tape & Booklet).
Date: 1989
Publisher/journal/link: Brighton: Tapewise.
Author: Cool School Team.

Title: Bullying in Secondary Schools: What Parents Need to Know.
Date: 2004
Publisher/journal/link: Ireland: NEHB/Cool School Programme.
www.hse.ie/eng/services/publications/services/children/coolschoolbullyfreeprojectbookle
ts.html
Author: Crisis Pregnancy Agency.

Title: You Can Talk to Me: Communicating with Your Child. (DVD & Trainer Notes).
Date: 2005
Publisher/journal/link: Dublin, Ireland: Crisis Pregnancy Agency.
Author: Cullen, R, Lawlor, M. & MacIntyre,D.

Title: The Stay Safe Programme
Date: 1998
Publisher/journal/link: Dublin: C.A.P.P
Author: Delvin, D. & Webber, C.

Title: Talking to your Kids about Sex. (Video).
Date: 2000
Author: Dept of Education, Ireland.

Title: Going Forward Together: an Introduction to Relationships and Sexuality Education
for Parents.
Date: 1997
Publisher/journal/link: Dublin: Government Publications.
Author: FPA (UK)

Title: The Parent’s Pack (booklets for talking with your child about a range of sexuality &
relationships issues)
Date:
Publisher/journal/link: UK: FPA email: fpadirect@fpa.org.uk
Author: Goldmann, R. & Goldmann, J.

Title: Show me Yours: What Children Think about Sex.
Date: 1988
Publisher/journal/link: London: Penguin.
Author: Herron, A. (Ed.).

Title: Girlfacts, Boyfacts
Date: 2002
Publisher/journal/link: Dublin: Poolbeg Press
Author: Murray, M. & Keane, C.

Title: The Teenage Years
Date: 1997
47
Publisher/journal/link: Dublin: Mercier Press in association with RTE.
Author: Redlich, P.
Title: Sex and Love – Talking with the children A Guide for Parents. (Book and Video).
Date: 1995
Publisher/journal/link: Dublin: Quest Communication.
Author: Stoppard, M
Title: Questions Children Ask & How to Answer them
Date: 1997
Publisher/journal/link: London: Dorling Kindersley.
Author: Wilson, L. et al.

Title: Sex, Storks & Gooseberry Bushes: Talking to Children About Sex. (Video and
Manual).
Date: 2000
Author: Wynne, C.
Title: Sex & Young People: The Knowledge to Guide the Teenager in your Life.
Date: 2001
Publisher/journal/link: Dublin: Mercier Press.
48
Gender
Women with Extra Support Needs: Identity, Health, Menstruation,

Menopause & Sexuality
Author: Archibald, J., Gillespie, S., Maloney, A., Moore, B., O'Hara, C., Scanlon, C. et al.
Title: The Management of Menopause for Women with Intellectual Disabilities.
Date: 2007
Publisher/Journal/link: Frontline, Spring, No. 69.
Author: Atkinson, D. et al. (Eds.).

Title: Good Times, Bad Times: Women with Learning Difficulties Telling their Stories.
(Includes Easy to Read Version).
Date: 2000
Publisher/Journal/link: Kidderminster, UK: British Institute of Learning Disabilities (BILD).
Author: Block, P.
Title: Sexuality, Fertility, and Danger: Twentieth-Century Images of Women with
Cognitive Disabilities.
Date: 2000
Author: Boylan, E.
Title: Women and Disability.
Date: 1991
Publisher/Journal/link: Zed Books.
Author: Brown, H
Title: Ordinary Women: Issues for Women with Learning Disabilities.
Date: 1996
Author: Clements, J., Clare, I. & Ezelle, L.A.
49
Title: Real Men, Real Women, Real Lives –Gender Issues in Learning Disabilities and
Challenging Behaviour.
Date: 1995
Publisher/Journal/link: Disability and Society, Vol. 10, No. 4.
Author: Cooper, E.
Title: Becoming a Woman: A Teaching Pack on Menstruation for People with Learning
Disabilities.
Date: 1999
Publisher/journal/link: Brighton: Pavillion publishing
Author: Cooper, E. & Walsh, R.

Title: Making the Change: A Teaching Pack on the Menopause for Women with Learning
Disabilities.
Date: 2001
Publisher/Journal/link: Brighton: Pavilion Publishing
Author: D'aegher, L., Robinson, P. & Jones, S.

Title: Talk to Me: A Personal Development Manual for Women and Girls with Down
Syndrome, and their Parents.
Date: 1999
Publisher/Journal/link: NSW, Australia: Down Syndrome Association of NSW Inc.
available at www.dsansw.org.au/index.php?pg=261
Author: Dorney, M.
Title: Group Work with Women with Learning Disabilities.
Date: 1999
Author: Dotson, L.A. Stinson, J. & Christian, L.

Title: ‘People Tell me I Can't Have Sex’: Women with Disabilities Share their Personal
Perspectives on Health Care, Sexuality and Reproductive Rights.
Date: 2003
Publisher/Journal/link: Women & Therapy, Vol. 26, No. 3-4.

Title: Period Problems - What you can do (Easy read booklet).
Date:
Publisher/Journal/link: http://www.elfrida.com/publications.html

Title: About Periods – For girls/women with learning difficulty or disability.
Date: 2007
Publisher/Journal/link: http://www.fpq.com.au/pdf/Br_About_Periods.pdf

Title: About Periods –for parents and carers of girls and women with a learning difficulty
or disability (Factsheet).
Date: 2008
Publisher/Journal/link: http://www.fpq.com.au/pdf/Fs_About_Periods.pdf
50
Author: Fitzgerald, C. & Withers, P.
Title: ‘I don’t know what a proper woman means’: what women with intellectual
disabilities think about sex, sexuality and themselves.
Date: 2011
Publisher/journal/link: British Journal of Learning Disabilities, Early View (Online Version
of Record published before inclusion in an issue).
Author: Gillespie-Sells, K., Hill, M. & Robbins, B.

Title: She Dances to Different Drums: Research into Disabled Women's Sexuality.
Date: 1998
Publisher/journal/link: London: King's Fund Publishing.
Author: Hans, A. & Patri, A.

Title: Women, Disability and Identity.
Date: 2003
Publisher/Journal/link: London-California: Sage Publications.
Author: Irish Family Planning Association (IFPA).

Title: The Black & White Guide to the Menopause. (Booklet). (Not ID Specific)
Date: 1998
Publisher/Journal/link: Dublin, Ireland: Published by: IFPA, Well Woman Group of
Centres & The Irish College of General Practitioners.
Author: Isako Wong, S.

Title: At Home with Down Syndrome and Gender.
Date: 2002
Publisher/Journal/link: Hypatia Bloomington, Vol. 17, No. 3, (Summer).
Author: Maher, C.
Title: Sex Education and Health Matters for Girls. (Not Disability Specific)
Date: 1990
Publisher/Journal/link: Dublin: Attic Press.
Author: Mason, L. & Cunningham, C.

Title: An Exploration of Issues around Menstruation for Women with Down Syndrome
and their Carers.
Date: 2008
Publisher/Journal/link: Journal of Applied Research in Intellectual Disabilities, Vol. 21.
Title: Gender Matters.
Date: 1999
Publisher/Journal/link: BILD Bulletin, Vol. 112, (March).
Title: Menstruation and menopause. In M. McCarthy & D. Thompson (eds), Sexuality
and Learning Disabilities: A handbook.
Date: 2010
51
Title: Responses to Women with Learning Disabilities as they go through the
Menopause.
Date: 2002
Publisher/journal/link: Tizard Learning Disability Review, Vol. 7, No. 1, (January).
Title: Sexual Experiences of Women with Learning Difficulties in Long-stay Hospitals.
Date: 1993
Date: 1999
Title: Whose Body Is It Anyway? Pressures and Control for Women with Learning
Disabilities.
Date: 1998
Publisher/journal/link: Disability & Society, Vol. 13, No. 4.
Author: McCarthy, M. & Millard, L.

Title: Supporting Women with Learning Disabilities through the Menopause: A resource
pack (provides materials that can be given directly to service users, as well as carers).
Date: 2003
Publisher/journal/link: Pavilion Publishing (Brighton) Ltd.
Author: Mintz, S.B.

Title: Unruly bodies: Life writing by women with disabilities
Date: 2007
Publisher/Journal/link: USA: The University of North Carolina Press

Title: Exploring the Research and Policy Gaps: A Review of Literature on Women and
Disability. (Executive Summary)
Date: 2007
Publisher/Journal/link: Ireland: National Disability Authority (NDA).
Author: Noonan Walsh, P. & Heller, T.

Title: Health of Women with Intellectual Disabilities.
Date: 2002
Publisher/Journal/link: Oxford: Blackwell Publishers
Author: Noonan Walsh, P. & LeRoy, B

Title: Women with Disabilities Aging Well: a Global View.
Date: 2004
Publisher/Journal/link: Baltimore: Paul H. Brookes Publishing.
Author: Rodgers, J.
Title: Pain, Shame, Blood, and Doctors: How Women with Learning Difficulties
Experience Menstruation.
52
Date: 2001
Publisher/journal/link: Women’s Studies International Forum, Vol. 24, No. 5.
Author: Russo, H.
Title: Girls and Women with Disabilities.
Date: 2000
Publisher/Journal/link: Oakland, CA: World Institute on Disability/ NY: Rehabilitation
International.
Author: Rutter, S. & Sawtell, M.

Title: Preparation for Menstruation (Reprint).
Date: 1996
Publisher/Journal/link: Down Syndrome Association Ireland Magazine.
Author: Saltonstall, B.
Title: Mothers Raising Daughters with Cognitive Delay: Reflections on Menarche &
Menstruation
Date: 2007
Publisher/Journal/link: Women's Health and Urban Life, 6 (1), 41-59.
Author: Sheldon, A.
Title: Women and Disability. In J. Swain, S. French, C. Barnes, & C. Thomas, (Eds.),
Disabling Barriers – Enabling Environments (2nd ed.).
Date: 2004
Publisher/Journal/link: London: Sage Publications.
Author: Smith, B.G. & Hutchison, B. (Eds.).

Title: Gendering Disability.
Date: 2004
Publisher/Journal/link: New Brunswick & New Jersey, USA & London, England: Rutgers
University Press.
Author: Social Biology Resource Centre.

Title: Janet's Got Her Period.(DVD)
Date: 1990
Publisher/Journal/link: Carlton, Australia.
Author: Stinson, J., Christian, L. & Dotson, L.A.

Title: Overcoming Barriers to the Sexual Expression of Women with Developmental
Disabilities.
Date: 2002
Publisher/Journal/link: Research & Practice for Persons with Severe Disabilities, Vol. 27,
No. 1.
Author: Stoppard, M.
Title: Menopause. (Not ID Specific)
Date: 1994
Publisher/Journal/link: London: Dorling Kindersley.
Author: Thomas, C.
Title: Female Forms: Experiencing and Understanding Disability
53
Date: 1999
Publisher/journal/link: Buckingham, UK: Open University Press. Lecky LEN 362.4 N91;3.
Author: Traustadóttir, R. & Johnson, K. (Eds.).

Title: Women with Intellectual Disabilities: Finding a Place in the World.
Date: 2000
Author: Williams, L. & Nind, M.

Title: Insiders or Outsiders: Normalisation and Women with Learning Difficulties.
Date: 1999
Publisher/journal/link: Disability & Society, Vol. 14, No, 5.
54
Men with Extra Support Needs: Identity, Health & Sexuality
Author: Cambridge, P. & Mellan, B.

Title: Reconstructing the Sexuality of Men with Learning Disabilities: Empirical Evidence
and Theoretical Interpretations of Need.
Date: 2000
Publisher/Journal/link: Disability & Society, Vol. 15, No. 2.
Author: Clements, J., Clare, I. & Ezelle, L.A.

Title: Real Men, Real Women, Real Lives –Gender Issues in Learning Disabilities and
Challenging Behaviour.
Date: 1995
Publisher/Journal/link: Disability and Society, Vol. 10, No. 4.

Date: 2002
Publisher/Journal/link: Hypatia Bloomington, Vol. 17, No. 3, (Summer).
Title: Gender Matters.
Date: 1999
Publisher/Journal/link: BILD Bulletin, Vol. 112, (March).
Author: Phillips, S.
Title: Disability, masculinity, and sexuality in Post-Soviet Ukraine. In R. Shuttleworth & T.
Date: 2010
Author: Robertson, S.
Title: Men and Disability. In J. Swain, S. French, C. Barnes, & C. Thomas, (Eds.),
Disabling Barriers–Enabling Environments (2nd Ed.).
Date: 2004
Publisher/Journal/link: London: Sage Publications.
Author: Smith, B.G. & Hutchison, B. (Eds.).

Title: Gendering Disability.
55
Date: 2004
Publisher/Journal/link: New Brunswick & New Jersey, USA & London, England: Rutgers
University Press.
Author: Wilson, N.J., Cumella, S., Parmenter, T.R., Stancliffe, R.J., Shuttleworth, R.P.
Title: Penile hygiene: puberty, paraphimosis and personal care for men and boys with an
Date: 2009
Publisher/journal/link: Journal of Intellectual Disability Research, 53(2), 106–114.
Date: 2011
Supporting Boys and Young Men with Sexuality –Not Specifically Related to
People with Extra Support Needs
Author: Blake, S. & Laxton, J.

Title: Strides: A Practical Guide to Sex and Relationships Education with Young Men.
Date: 1998
Publisher/Journal/link: London: Family Planning Association (FPA).
Author: Davidson, N.
Title: Boys Will be...?: Sex Education and Young Men (2nd edition).
Date: 1997
Publisher/Journal/link: London: Working With Men. http://www.workingwithmen.org.
Author: Davidson, N.
Title: "Oh boys! Sex education and young men".
Date: 1996
Publisher/Journal/link: Health Education, Vol. 96 Issue: 3, pp.20 – 23.
Author: Department of Education and Science.

Title: Exploring Masculinities: A Programme in Personal and Social Development for
Transition Year and Senior Cycle Boys and Young Men. (Manual and Video).
Date: 2000
Available from the Central Policy Unit of the Dept of Education & Skills
Author: Fisher, N.
Title: Living with a Willy: The Inside Story.(2nd edition)
Date: 2010
Publisher/Journal/link: London: Macmillan Children's Books.
Author: Lloyd, T. & Davidson, N.

Title: The Extra Large Guide to Sex and Relationships for Young Men.
Date: 2008
Publisher/Journal/link: London: Working With Men. http://www.workingwithmen.org.
56
Author: Mac an Ghaill, M. Hanafin J. & Conway P.
Title: Gender Politics and Exploring Masculinities in Irish Education, Teachers, Materials
and the Media.
Date: 2004
Publisher/Journal/link: Dublin: National Council for Curriculum Assessment see
www.ncca.ie
Author: Price, M. et al.

Title: Man's World: A Game for Young Men.
Date: 1992
Publisher/Journal/link: London: B-Team. Working with men. See
www.workingwithmen.org
57
Lesbian Gay Bisexual Transsexual (LGBTQ)
People with Extra Support Needs
Author: Abbott, D. & Burns, J.

Title: What’s love got to do with it? The experiences of lesbian, gay and bisexual people
with intellectual disabilities and the views of the staff that support them.
Date: 2007
Publisher/Journal/link: Sexuality Research and Social Policy, University of California
Press, 4 (1), 27-39.

Title: Jan's Story. A photostory about a lesbian with learning difficulties.
Date: 2005
Publisher/Journal/link: http://www.bristol.ac.uk/norahfry/research/completed-
projects/jan.pdf

Title: Phil's Story. A photostory about a gay man with learning difficulties.
Date: 2005
projects/phil.pdf

Title: Secret loves, hidden lives? A summary of what people with learning difficulties said
about being gay, lesbian or bisexual. Easy to Read Summary (English).
Date: 2005
projects/secretloveseasyread.pdf

Title: A booklet about challenging homophobia and heterosexism for people with
learning difficulties and the staff that support them.
Date: 2005
projects/challenging.pdf
Author: Blyth, C.
58
Title: Members only: the use of gay space(s) by gay disabled men. In R. Shuttleworth &
T. Sanders (eds), Sex and Disability: Politics, Identity and Access.
Date: 2010
Title: HIV, Sex and Disability: A Staff Training and Sex Education Resource for Working
on HIV and Men with Learning Disabilities who Have Sex with Men.
Date: 1997
Publisher/Journal/link: Pavilion Publishing, Brighton.
Title: How Far to Gay? The Politics of HIV in Learning Disability.
Date: 1997
Publisher/Journal/link: Disability and Society, Vol. 12.
Author: Change
Title: Lesbian, Gay, Bisexual and Trans (Easy read booklet)
Date:
Author: Davidson-Paine, C. & Corbett, J.

Title: A Double Coming Out: Gay Men with Learning Disabilities.
Date: 1995
Author: Edmonds, C. & Collins, A.

Title: Using Social and Educational Approaches to Enable a Man with Learning
Disabilities to Develop his Sexual Identity and Orientation.
Date: 1999
Author: Fraley, S.S., Mona, L.R. & Theodore, P.S.

Title: The sexual lives of lesbian, gay, and bisexual people with disabilities:
psychological perspectives.
Date: 2007
Publisher/journal/link: Sexuality Research & Social Policy, Journal of NSRC, 4(1), 15-26.
Author: Lofgren-Martenson, L. (2009)

Title: The Invisibility of Young Homosexual Women and Men with Intellectual Disabilities.
Date: 2009
Publisher/Journal/link: Sexuality and Disability, 27, 21–26.
Author: National Disability Authority.

Title: Disability and Sexual Orientation: A Discussion Paper.
Date: 2005
Publisher/Journal/link: Dublin: NDA.

Author: O'Carroll, I. & Szalacha, L.
Title: A Queer Quandary: The Challenges of Including Sexual Difference within The
Relationships and Sexuality Education Programme (Not ID Specific)
59
Date: 2000
Publisher/Journal/link: Dublin: LOT/LEA.
Author: Rainbow Ripples & Butler, R.

Title: The Rainbow Ripples Report: Lesbian, Gay and Bisexual Disabled People's
Experiences of Service Provision in Leeds.
Date: 2006
Publisher/Journal/link: Leeds, UK: Rainbow Ripples see www.rainbowripples.org.uk
Title: Sexual Experience and Sexual Identity for Men with Learning Disabilities who have
Sex with Men.
Date: 1994
Publisher/Journal/link: Changes, Vol. 12, No. 4.
Author: Withers, P., Ensum, I., Howarth, Krall, P., Thomas, D., Weekes, D., Winter, C.,
Mulholland, A., Dindjer, T., Mulholland, A., Dindjer, T. & Hall, J.
Title: A Psychoeducational Group for Men with Intellectual Disabilities Who Have Sex
with Men.
Date: 2001
Publisher/journal/link: Journal of Applied Research in Intellectual Disabilities, Vol. 14.
60
Contraception
Author: Baum, S. & Alexander, N.

Title: Pregnancy, contraception and women choosing to have a child. In M. McCarthy &
D. Thompson (eds), Sexuality and Learning Disabilities: A handbook.
Date: 2010
Author: Campion M.J

Title: Reproductive and Contraceptive Considerations for Women with Physical
Disabilities: The Baby Challenge.
Date: 1990
Publisher/Journal/link: London, Routledge.
Author: Change
Title: Safe Sex and Contraception (Easy read booklet)
Date:
Publisher/Journal/link: See: http://www.changepeople.co.uk
Author: Change
Title: Depo-Provera (Easy read booklet).
Date:
Publisher/Journal/link: Leeds. See: http://www.changepeople.co.uk
Author: Family Planning Association (FPA).

Title: Contraceptive Display Kit.
Date: 2004
Publisher/journal/link: London: Family Planning Association (FPA) Direct.

Title: Contraceptive Choices Flip Chart (28 page A4 size laminated flip chart).
Date: 2008
http://www.fpq.com.au/publications/teachingAids/contra_choices_flipchart.php
Title: Under Cover Dick: A Guide For Teaching About Condom Use Through Video And
Understanding. Book and video or DVD set.
Date:
61
Title: The Black & White Guide to Contraception. (Booklet). (Not ID Specific)
Date: 2001
Publisher/Journal/link: Dublin, Ireland: Jointly Published by: IFPA, the Well Woman
Author: Kaplan, C.
Title: Special Issues in Contraception: Caring for Women with Disabilities.
Date: 2006
Publisher/Journal/link: Journal of Midwifery & Women's Health, Vol. 51, Issue 6.
Author: Kerr-Edwards, L. & Scott, L.

Title: Talking Together... about Contraception – a practical resource for staff and parents
working with young people with learning disabilities
Date: 2005
Publisher/Journal/link: London: Family Planning Association (FPA). See www.fpa.org.uk
Author: Servais, L., Jacques, D., Leach, R., Conod, L., Hoyois, P., Dan, B. & Roussaux,
J.P.
Title: Contraception of Women with Intellectual Disability: Prevalence and Determinants
Date: 2002
Publisher/journal/link: Journal of Intellectual Disability Research, Vol. 46, Part 2.
Sterilisation
Author: Aunos, M. & Feldman, A.A.

Title: Attitudes towards Sexuality, Sterilization and Parenting Rights of Persons with
Intellectual Disabilities.
Date: 2002
Publisher/Journal/link: Journal of Applied Research in Intellectual Disabilities, Vol. 15,
No. 4, (Dec).
Author: Carlson, G., Taylor, M. & Wilson, J.

Title: Sterilisation, Drugs which Suppress Sexual Drive, and Young Men who have
Date: 2000
Publisher/Journal/link: Journal of Intellectual & Developmental Disability, Vol. 25, No. 2
Author: Cooney, T.
Title: Sterilisation and the Mentally Handicapped.
Date: 1989
Publisher/Journal/link: Dublin University Law Journal, Vol. 2.
Author: Desjardins, M
Title: The Sexualized Body of the Child: Parents and the Politics of "Voluntary"
Sterilization of People Labeled Intellectually Disabled, in R. McRuer & A. Mollow (eds)
Sex and Disability, p. 69-85.
62
Date: 2012
Author: Dyer, O.
Title: Canadian Women Compensated for Sterilisation.
Date: 1996
Publisher/Journal/link: British Medical Journal, Vol. 312.

Title: Hysterectomy... is it right for you? (Easy read booklet)
Date:

Title: Hysterectomy...having the operation (Easy read booklet).
Date:
Author: Gardella, J.
Title: Eugenic Sterilisation in America and North Carolina.
Date: 1995
Publisher/Journal/link: North Carolina Medical Journal, Vol. 56, No. 2.
Author: Gerodetti, N.
Title: "Disabling" Femininities and Eugenics: Sexuality, Disability and Citizenship in
Modern Switzerland.
Date: 2003
Publisher/Journal/link: Disability Studies conference archive Lancaster University
Author: Mattinson, A. & Mansour, D.

Title: Female Sterilisation: Is it what women really want?
Date: 2003
Publisher/journal/link: Journal of Family Planning and Reproductive Health Care, Vol.
29. No.3.
Author: Servais, L., Leach, R., Jacques, D. & Roussaux, J.P.

Title: Sterilisation of Intellectually Disabled Women.
Date 2004
Publisher/journal/link: European Psychiatry, Vol. 19.
63
Sexual Health, Sexually Transmitted
Infections & Cancer Screening
Author: Anderson, P. & Kitchin, R.

Title: Disability, Space and Sexuality: Access to Family Planning Services.
Date: 2000
Publisher/Journal/link: Social Science & Medicine, Vol. 51, No. 8.
Author: Bambara, L.M. & Brantlinger, E.

Title: Toward a Healthy Sexual Life: An Introduction to the Special Series on Issues of
Sexuality for People with Developmental Disabilities.
Date: 2002
No. 1.
Author: Basson, R.
Title: Sexual Health of Women with Disabilities.
Date: 1998
Publisher/Journal/link: Canadian Medical Association Journal, Vol. 159, No. 4.
Author: Bull, N.
Title: Everything You Ever Wanted to Know About Safer Sex…But Nobody Bothered to
Tell You!
Date: 1993
Publisher/journal/link: Camden People First.
Title: At whose Risk: Priorities and Conflicts for Policy Development in HIV and
Date: 1997
Publisher/Journal/link: Journal of Applied Research in Intellectual Disabilities, vol 10
Title: Considerations for Informing Safer Sex Education Work with Men with Learning
Disabilities.
64
Date: 1999
Title: HIV Risk and Men with Learning Disabilities.
Date: 1995
Publisher/Journal/link: Nursing Times, Vol. 91, No. 11.
Title: HIV, Sex and Disability: A Staff Training and Sex Education Resource for Working
on HIV and Men with Learning Disabilities who Have Sex with Men.
Date: 1997
Publisher/Journal/link: Pavilion Publishing, Brighton.
Title: How Far to Gay? The Politics of HIV in Learning Disability.
Date: 1997
Publisher/Journal/link: Disability and Society, Vol. 12.
Author: Champagne, M.P. & Walker-Hirsch, L.

Title: Circles, Level III: AIDS, Safer Ways. (1 Book, 1 Leaflet & 6 Videos).
Date: 1988
Publisher/Journal/link: Santa Barbara, CA: James Stanfield Publishing Company.
Author: Cooper, E.
Title: Editorial: Disability, Sexuality and Access to Services.
Date: 2003
29. No.3.
Author: Elfrida Society via Women’s Health (2001)

Title: Cathy has thrush (Easy read booklet).
Date: 2001

Title: Getting Rid of Fibroids (Easy read booklet).
Date:
Author: Groce, N.
Title: Preliminary Report: Global Survey on HIV/AIDS and Disability.
Date: 2003
Publisher/Journal/link: New Haven: Yale School of Public Health.
Author: Heath, H. & White, I. (Eds.).

Title: The Challenge of Sexuality in Health Care.
Date: 2002
Publisher/Journal/link: UK: Blackwell Science Ltd.
Author: Johnson, K., Hillier, L., Harrison, L. & Frawley, P.
65
Title: Living Safer Sexual Lives: Final Report.
Date: 2001
Publisher/journal/link: Australia: Australian Research Centre in Sex, Health and Society,
La Trobe University.
Author: Johnson, K., Strong, R., Hillier, L. & Pitts, M.

Title: Screened Out: Women with Disabilities and Preventive Health.
Date: 2006
Publisher/journal/link: Scandinavian Journal of Disability Research, Vol. 8, No. 2-3.
Author: Murphy, N. & Young, P.C.

Title: Sexuality in Children and Adolescents with Disabilities.
Date: 2005
Publisher/Journal/link: Developmental Medicine & Child Neurology, Vol. 47.

Title: Equal access to breast and cervical screening for disabled women. Cancer
Screening Series No 2.
Date: 2006
Publisher/journal/link: http://www.cancerscreening.nhs.uk/publications/cs2.pdf

Title: An Easy Guide to Cervical Screening: A leaflet by and for women with learning
disabilities.
Date: 2006
Publisher/journal/link: http://www.cancerscreening.nhs.uk/cervical/publications/easy-
guide-cervical-screening.pdf
Author: NHS Westminster

Title: Health Promotion Videos and Teaching Packs for People with a Learning Disability
(includes overview of resources in areas of: Personal hygiene, Cancer screening, Sex
education, Relationships & Sexual Health).
Date: 2007
Publisher/Journal/link: http://archive.westminster.nhs.uk/pdfs/learningdiffscat_07.pdf
Author: NSW Department of Health

Title: Being a Healthy Woman Factsheets: An educational resource for women with
intellectual disability, their families, health care providers, carers and support workers.
Date: 2010
Publisher/Journal/link: Available to download from: See: http://www.fpnsw.org
Author: Poynor, L. et al.

Title: Cervical Screening: A Teaching Pack for Women with Learning Disabilities and
Those Who Work with Them.
Date: 2004
Publisher/Journal/link: Surrey Oaklands NHS Trust

Author: Senker J.
Title: Gender, Race, and Sexual Behaviour: Issues in Service Responses to HIV/AIDS.
Date: 1997
Publisher/journal/link: British Journal of Learning Disabilities, Vol. 25.
66
Author: Servais, L.
Title: Sexual Health Care in Persons with Intellectual Disabilities.
Date: 2006
Publisher/journal/link: Mental Retardation and Developmental Disabilities (MRDD)
Research Reviews, Vol. 12.
Title: First Impressions: Male and Female Hygiene. (Video Pack).
Date: 1996
Publisher/Journal/link: Santa Barbara, CA: James Stanfield Co. Inc.
Author: World Bank Organisation.

Title: Disability and HIV/AIDS: At a Glance.
Date: 2004
Publisher/Journal/link:
www.sitesresources.worldbank.org/DISABILITY/Resources/Health-and-
Wellness/HIVAIDS.pdf.
Author: World Bank/Yale University.

Title: HIV/AIDS & Disability: Capturing Hidden Voices. Global Survey on HIV/AIDS &
Disability.
Date: 2004
Publisher/Journal/link: http://cira.med.yale.edu/globalSurvey.
Sexual Health Matters – Non Specifically Related to People with Extra Support
Needs
Author: Adler, Michael W.

Title: ABC of Sexually Transmitted Infections (5th ed.).
Date: 2004
Publisher/Journal/link: London: BMJ Books.
Author: Collins, P., Geller, P., Miller, S., Toro, P., Susser, E.
Title: Ourselves, our Bodies, our Realities: An HIV Prevention Intervention for Women
with Severe Mental Illness.
Date: 2001
Publisher/Journal/link: Journal of Urban Health, Vol. 78, No. 1.
Author: Department of Health (UK).

Title: Effective Sexual Health Promotion: A Toolkit for Primary Care Trusts and Others
Working in the Field of Promoting Good Sexual Health and HIV Prevention. (Not ID
Specific)
Date: 2003
Publisher/Journal/link: England: Department of Health, UK.
Author: Fullerton, D.
67
Title: Promoting Positive Adolescent Sexual Health and Preventing Teenage Pregnancy
– A Review of Recent Effectiveness Research. Crisis Pregnancy Agency Report No. 2.
(Not ID Specific)
Date: 2004
Publisher/Journal/link: Dublin: Crisis Pregnancy Agency

Title: The Black & White Guide to Sexually Transmitted Infections. (Booklet).
Date: 2001
Publisher/Journal/link: Dublin, Ireland: Jointly Published by: IFPA, the Well Woman
Author: Quinlan, M. & Wyse, D.

Title: Men in Prostitution (Not ID Specific).
Date: 1997
Publisher/Journal/link: Dublin: Gay Men's Health Project (Eastern Health Board).
Author: Scottish Executive Health Department.

Title: Respect and Responsibility: Strategy and Action Plan for Improving Sexual Health
(Not ID Specific).
Date: 2005
Publisher/Journal/link: Edinburgh, Scotland: Scottish Executive.
68
Sexual Expression (and Relationships)
(Second image from the ‘It’s my right campaign’ by FPA UK and Stars in the Sky. See:
http://www.fpa.org.uk/campaignsandadvocacy/sexualhealthweek/itsmyright)
Author: Bell, D.M., Toplis, L. & Espie, C.A.

Title: Sex Therapy in a Couple with Learning Disabilities.
Date: 1999
Publisher/Journal/link: British Journal of Learning Disability, Vol. 27.
Author: Bonnie, S.
Title: Facilitated Sexual Expression in the Independent Living Movement in Ireland.
Date: 2002
Publisher/Journal/link: http://www.independentLiving.org/docs6/bonnie200208.html.
Author: Brown, R.I.

Title: Partnership & Marriage in Down Syndrome.
Date: 1996
Publisher/Journal/link: Down Syndrome Research & Practice 1996 Vol.4,Issue 3 pg 96-
99
Title: Masturbation. In M. McCarthy & D. Thompson (eds), Sexuality and Learning
Disabilities: A handbook.
Date: 2010
Author: Dodson, B.
Title: Sex for One, The Joy of Self-loving. (Discusses masturbation for women) (Not ID
Specific)
Date: 2002
Publisher/Journal/link: BCA, By Arrangement with Three Rivers Press. Member of The
Crown Publishing Group/Random Hse. Inc.
69
Author: Downs, C. & Farrell, S
Title: A Practical Response to Masturbation: Working with People with Profound and
Multiple Disabilities.
Date: 1996
Publisher/Journal/link: Tizards Learning Disability Review, Vol. 1, Issue 4.
Author: Family Planning NSW (2007/2011).

Title: About Masturbation for Males/About Masturbation for Females: For people with an
intellectual disability (easy reading illustrated books).
Date: 2007/2011
Publisher/Journal/link: See: http://www.fpnsw.org
Author: Griffiths, M.
Title: Sex: Should we all be at it? - A Study into the Struggles of Disabled People's Fight
for Sexual Expression, and the Implications of Using Prostitutes and Surrogates to
Facilitate this Sexual Expression.
Date: 2006
Publisher/journal/link: www.leeds.ac.uk/Disability-
studies/archiveuk/griffiths/dissertation.pdf.
Author: Hingsburger, D. & Haar, S.

Title: Finger Tips: A guide for teaching about female masturbation (Book and video or
DVD set).
Date:
Title: Hand Made Love: A Guide For Teaching About Male Masturbation. Book and
video or DVD set.
Date:

Title: Marriage: Information Leaflet.
Date: 2007
Publisher/Journal/link: Ireland.
Author: Kaeser, F.
Title: Developing a Philosophy of Masturbation Training for Persons with Severe or
Profound Mental Retardation.
Date: 1996
Author: O'Conor, M.
Title: Sexual Healing: A Resource Book for a Healthy and Happy Sex Life. (Not ID
Specific)
Date: 2002
Publisher/Journal/link: Dublin: TownHouse and CountryHouse Ltd.
Author: Sanders, T.
70
Title: Sexual citizenship, sexual facilitation and the right to pleasure. In R. Shuttleworth &
Date: 2010
71
Pregnancy & Parenting: Resources for
Parents with Extra Support Needs (& For
People Supporting Parents with Extra
Support Needs)
Author: Baum, S. & Alexander, N.

Title: Pregnancy, contraception and women choosing to have a child. In M. McCarthy &
D. Thompson (eds), Sexuality and Learning Disabilities: A handbook.
Date: 2010
Author: Begley, C., Higgins, A., Lalor, J., Alexander, J., Nicholl, H., Lawler, D., Keenan,
P., Tuohy, T. & Kavanagh, R.
Title: Women with Disabilities: Policies Governing Procedure and Practice in Service
Provision in Ireland during Pregnancy, Childbirth and Early Motherhood.
Date: 2009
Publisher/Journal/link: Dublin: School of Nursing and Midwifery, Trinity College Dublin &
National Disability Authority. See: http://www.nda.ie/
Author: Begley, C., Higgins, A., Lalor, J., Sheerin, F., Alexander, J., Nicholl, H., Lawler,
D., Keenan, P., Tuohy, T. & Kavanagh, R.
Title: Women with Disabilities: Barriers and Facilitators to Accessing Services during
Pregnancy, Childbirth and Early Motherhood.
Date: 2009
Title: The Strengths and Weaknesses of Publicly-funded Irish Health Services Provided
to Women with Disabilities in Relation to Pregnancy, Childbirth and Early Motherhood.
Date: 2010
72
Author: Block, P.
Title: Introduction to the Special Issue: Parents with Disabilities.
Date: 2002
Publisher/Journal/link: Sexuality & Disability, Vol. 20, No. 1, (Spring).
Author: Booth, T.
Title: Parents with Intellectual Disabilities.
Date: 2002
Publisher/Journal/link: http://www.intellectualdisability.info/lifestages/ds_parent.htm
Author: Booth, T. & Booth, W.

Title: Against the Odds: Growing up with Parents who have Learning Difficulties.
Date: 2000
Publisher/Journal/link: Mental Retardation, Vol. 38, No. 1, (Feb).

Title: Growing Up with Parents who have Learning Difficulties.
Date: 1998
Publisher/Journal/link: London: Routledge.

Title: Making Connections: A Narrative Study of Adult Children of Parents with Learning
Difficulties. In C. Barnes & G. Merck, (Eds.), The Disability Studies Reader.
Date: 1997
Publisher/Journal/link: Leeds: The Disability Press.

Title: Parenting Under Pressure: Mothers and Fathers with Learning Difficulties.
Date: 1994
Publisher/Journal/link: Buckingham: Open University Press.

Title: Parents Together: Action Research and Advocacy Support for Parents with
Learning Difficulties.
Date: 1999
Publisher/Journal/link: Health & Social Care in the Community, Vol. 7, No. 6.

Title: An Extensive List of Books, Articles and Resources Regarding Facts and Myths
about Parents with Learning Disabilities and the Supports they Need.
Date:
Publisher/Journal/link: www.supported-Parenting.com.
Author: Booth, W. & Booth, T

Title: Advocacy for Parents with Learning Difficulties. (Developing Advocacy Support).
Date: 1998
Publisher/Journal/link: Brighton/York: Pavilion Publishing in association with The Joseph
Rowntree Foundation .
Author: Boxall, K., Jones, M. & Smith, S.
73
Title: Advocacy and Parents with Learning Difficulties: Even when you've Got an
Advocate Social Services still Always Do what's Easiest for them. In Race, D.G.. (Ed.),
Learning Disability - A Social Approach
Date: 2002
Author: British Institute of Learning Disabilities (BILD )

Title: Pregnancy and childbirth.
Date: 2002
Publisher/Journal/link: www.bild.org.uk
Author: British Institute of Learning Disabilities (BILD).

Title: Your good Health - Pregnancy and Childbirth.
Date: 2001
Publisher/Journal/link: Worcestershire, UK: British Institute of Learning Disabilities
(BILD).
Author: Callow, E.
Title: The Family Court Experience: A Guide for Parents with Disabilities and their
Advocates.
Date: 2005
Publisher/Journal/link: USA: Through the Looking Glass, http://www.lookingglass.org
Author: Callow, E., Taube, D. & Baer, R.

Title: Summaries of Legal Precedents and Law Review Articles Concerning Parents with
Disabilities.
Date: 2005
Author: Campion M.J

Date: 1990
Author: Change
Title: My Pregnancy, My Choice (Easy read booklet)
Date:
Author: Change
Title: Planning a Baby (Easy read booklet).
Date:
Author: Change
Title: You and Your Baby 0-1 years (Easy read booklet & CD Rom Picture bank).
Date:
Author: Change
74
Title: You and Your Little Child 1-4 years (Easy read booklet & CD Rom Picture bank).
Date:
Author: Corbus, K. & Hansen, S.

Title: Training Module: Designing Support Groups for Parents with Intellectual
Disabilities (DVD and Publication).
Date: 2005
Author: Corbus, K., Hansen, S., et al

Title: Strategies and Adaptations in Working with Parents with Intellectual Disabilities.
Date: 2006
Publisher/Journal/link:USA: Through the Looking Glass, http://www.lookingglass.org
Author: Dept. of Health UK

Title: Supporting Parents with Learning Disabilities Good Practice Guidance (Easy read).
Date: 2007
Publisher/Journal/link: http://www.norfolkparents.org.uk/research-and-development-
important-work-about-disabled-parenting.htm
Author: Dept. Of Health, UK Social Services Inspectorate

Title: A Jigsaw of Services: Inspection of Services to support disabled adults in their
parenting role.
Date: 2000
Publisher/Journal/link:http://www.norfolkparents.org.uk/img/files/jigsaw.pdf
Author: Dowdney, L. & Skuse, D.

Title: Parenting Provided by Adults with Mental-Retardation.
Date: 1993
Publisher/journal/link: Journal of Child Psychology and Psychiatry and Allied Disciplines,
Vol. 34, No. 1.
Author: Ehlers-Flint, M.L.

Title: Parenting Perceptions and Social Supports of Mothers with Cognitive Disabilities.
Date: 2002
Publisher/Journal/link: Sexuality & Disability, Vol. 20, No. 1, (Spring).
Author: Espesherwindt, M. & Crable, S.

Title: Parents with Mental Retardation - Moving Beyond the Myths.
Date: 1993
Publisher/Journal/link: Topics In Early Childhood Special Education, Vol. 13, No. 2.
Author: Feldman, M.A.

Title: Parenting Education for Parents with Intellectual Disabilities - A Review of
Outcome Studies.
Date: 1994
Publisher/Journal/link: Research in Developmental Disabilities, Vol. 15, No. 4.
Author: Finger, A.
75
Title: Disabled Lives: Forbidden Fruit - Why shouldn't Disabled People have Sex or
become Parents?
Date: 1992
Publisher/Journal/link: New Internationalist, Issue 233, (July).
Author: Hayman, R.L.

Title: Presumptions of Justice: Law, Politics and the Mentally Retarded Parent.
Date: 1990
Publisher/Journal/link: Harvard Law Review, Vol. 103.
Author: Heighway, S.
Title: Helping Parents Parent: A Practice Guide for Supporting Families headed by
Parents with Cognitive Limitations. Supported Parenting Project.
Date: 1992
Publisher/Journal/link: Madison: Wisconsin Council of Developmental Disabilities.
Author: Heinz, L.C. & Grant, P.R.

Title: A Process Evaluation of a Parenting Group for Parents with Intellectual Disabilities.
Date: 2003
Publisher/Journal/link: Evaluation and Program Planning, Vol. 26, No. 3, (Aug).
Author: Holburn, S., Perkins, T. & Vietze, P.

Title: The Parent with Mental Retardation.
Date: 2001
Publisher/Journal/link: International Review of Research in Mental Retardation, Vol. 24.
Author: IASSID Special Interest Research Group on Parents and Parenting with
Intellectual Disabilities
Title: Parents labelled with Intellectual Disability: Position of the IASSID SIRG on
Parents and Parenting with Intellectual Disabilities.
Date: 2008
Publisher/Journal/link: Journal of Applied Research in Intellectual Disabilities, 21, 296–
307.
Author: Ingram, D.
Title: Parents who Have Mental Retardation.
Date: 1990
Publisher/Journal/link: USA: The Arc. http://www.thearc.org/faqs/parmr.html.
Author: Kallianes, V. & Rubenfeld, P.

Title: Disabled Women and Reproductive Rights.
Date: 1997
Publisher/Journal/link: Disability & Society, Vol. 12, No. 2.
Author: Kirshbaum, M.
Title: Babycare Assistive Technology for Parents with Physical Disabilities: Relational,
Systems & Cultural Perspectives.
Date: 1997
Publisher/Journal/link: AFTA Newsletter, 1997. Available from: Through the Looking
Glass, http://www.lookingglass.org
76
Author: Kirshbaum, M & Olkin, R.
Title: Parents with Physical, Systemic, or Visual Disabilies
Date: 2002
Publisher/Journal/link: Sexuality and Disability, Vol 20, No. 1
Author: Kirshbaum, M., Taube, D.O. & Lasian Baer, R.

Title: Parents with Disabilities: Problems in Family Court Practice
Date: 2003
Publisher/Journal/link: Journal of The Centre for Families, Children & The Courts.
Author: Langley, H. & Holman, A.

Title: Mother Knows Best: Parents with Learning Difficulties and their Children.
Date: 2001
Publisher/Journal/link: London: Values Into Action.
Author: Llewellyn, G. & McConnell, D.

Title: Mothers with Learning Difficulties and their Support Networks.
Date: 2002
Publisher/Journal/link: Journal Of Intellectual Disability Research, Vol. 46, Part 1, (Jan).
Author: Llewellyn, G., McConnell, D. & Bye, R.

Title: Perception of Service Needs by Parents with Intellectual Disability, their Significant
Others and their Service Workers.
Date: 1998
Author: Llewellyn, G., McConnell, D., Honey, A., Mayes, R. & Russo, D.
Title: Promoting Health and Home Safety for Children of Parents with Intellectual
Disability: a Randomised Controlled Trial.
Date: 2003
Publisher/Journal/link: Research in Developmental Disabilities, Vol. 24, No. 6, (Nov-
Dec).
Author: May, D. & Simpson, M.K.

Title: The Parent Trap: Marriage, Parenthood and Adulthood for People with Intellectual
Disabilities.
Date: 2003
Publisher/Journal/link: Critical Social Policy, Vol. 23, No. 1.
Author: McConnell, D., Matthews, J., Llewellyn, G., Mildon, R. & Hindmarsh, G. (2008).
Title: "Healthy Start." A National Strategy for Parents With Intellectual Disabilities and
Their Children.
Date: 2008
Publisher/Journal/link: Journal of Policy and Practice in Intellectual Disabilities, 5(3),
194-202.
Author: McGaw, S.
Title: I Want To Be A Good Parent: Book 1 - What's It Like To Be A Parent?
Date: 1994/1998
Publisher/Journal/link: Kidderminster, UK: British Institute of Learning Disabilities (BILD)
Publications.
77
Author: McGaw, S., Ball, K. & Clark, A.
Title: The Effect of Group Intervention on the Relationships of Parents with Intellectual
Disabilities.
Date: 2002
No. 4.
Author: Morgan, P. & Goff, A.

Title: Learning Curves. The Assessment of Parents with a Learning Disability: A manual
for practitioners.
Date: 2004
Publisher/Journal/link: Norfolk Area Child Protection Committee. Available at:
http://www.nscb.norfolk.gov.uk/documents/learningCurves.pdf
Author: Morris, J.
Title: Disabled Parents and schools: barriers to parental involvement in children's
education.
Date: 2004
Publisher/Journal/link: Joseph Rowntree Foundation. See:
http://inclusivechoice.com/files/disabled_parents_and_schools_-
_barriers_to_parenta.pdf
Author: Morris, J.
Title: The Right Support: Report of the Task Force on Supporting Disabled Adults in their
Parenting Role.
Date: 2003
Publisher/Journal/link: UK: Joseph Rowntree Foundation. Santry: PX-193-10.
Author: National Disability Authority & HSE Crisis Pregnancy Programme

Title: Crisis Pregnancy and People with Intellectual Disability: Easy to Read Guide to a
Literature Review on Provision of Appropriate and Accessible Support to People with an
Intellectual Disability who are Experiencing Crisis Pregnancy.
Date: 2010
Publisher/Journal/link: See: http://www.nda.ie/
Author: Norah Fry Research Centre

Title: The right support for parents with learning difficulties.
Date: 2004
Publisher/Journal/link: Plain Facts magazine, issue 38. Available at:
http://www.bristol.ac.uk/wtwpn/information-for-pwlds/

Title: Being good parents.
Date: 2006

Title: Helping parents with learning difficulties to speak up.
Date: 2006
78

Title: Parents with Learning Disabilities: Resources, further reading and useful
organisations.
Date: 2007
Publisher/Journal/link: Norah Fry Research Centre, Bristol University. Available at:
http://www.bristol.ac.uk/wtwpn/resources/
Author: Norfolk Social Services (2006).

Title: Enabling parents with a disability or long term: illness: Joint policy and protocol.
Date: 2006
Publisher/Journal/link: http://www.norfolkparents.org.uk/img/files/jointprotocol.pdf
Author: O’Connor, J.
Title: Literature Review on Provision of Appropriate and Accessible Support to People
with an Intellectual Disability who are Experiencing Crisis Pregnancy.
Date: 2010
Publisher/Journal/link: Dublin: National Disability Authority & HSE Crisis Pregnancy
Programme. See: http://www.nda.ie/
Author: O'Hara, J. & Martin, H.

Title: Parents with Learning Disabilities: A Study of Gender and Cultural Perspectives in
East London.
Date: 2003
Publisher/Journal/link: British Journal of Learning Disabilities, Vol. 31, No. 1.
Author: Olkin, R. & Abrams, K.

Title: Parents with Disabilities and their Teens.
Date: 2004
Publisher/Journal/link: USA: Through the Looking Glass. See:
http://www.lookingglass.org
Author: Olsen, R. & Wates, M.

Title: Disabled Parents: Examining Research Assumptions. Research in Practice -
Publications; Research Reviews.
Date: 2003
Publisher/Journal/link: United Kingdom: Research in Practice.
Author: O'Toole, C.J.

Title: Sex, Disability and Motherhood: Access to Sexuality for Disabled Mothers.
Date: 2002
Publisher/Journal/link: Disability Studies Quarterly, (Fall), Vol. 22, No. 4.
Author: Painz, F.
Title: Parents with a Learning Disability: Social Work Monographs.
Date: 1993/1994/1995/1997
Publisher/Journal/link: Norwich, UK: University of East Anglia.
Author: Pixa-Kettner, U.
79
Title: Parents with Intellectual Disability in Germany: Results of a Nation-wide Study.
Date: 1998
Publisher/journal/link: Journal of Applied Research in Intellectual Disabilities, Vol. 11,
No. 4.
Title: Follow Up Study on Parenting with Intellectual Disability in Germany.
Date: 1999
Publisher/journal/link: Journal of Intellectual & Developmental Disability, Vol. 24, No. 1.
Author: Ray, N.K., Rubenstein, H. & Russo, N.J.

Title: Understanding the Parents who are Mentally-Retarded - Guidelines for Family
Preservation Programs.
Date: 1994
Publisher/Journal/link: Child Welfare, Vol. 73, No. 6.
Author: Reinders, H.S. (2008).

Title: Persons with Disabilities as Parents: What is the Problem?
Date: 2008
Publisher/Journal/link: Journal of Applied Research in Intellectual Disabilities, 21, 308–
314.
Author: Robinson, S., Hickson, F. & Strike, R.

Title: More Than Getting Through The Gate: The Involvement of Parents with a Disability
in their Children's School Education in NSW.
Date: 2001
Publisher/Journal/link: NSW, Australia: Disability Council of NSW.
Author: Rogers, J. (2005).

Title: The Disabled Woman's Guide to Pregnancy and Birth.
Date: 2005
Author: Royal College of Nursing

Title: Pregnancy and Disability: Guidance for midwives and nurses.
Date: 2007
http://www.rcn.org.uk/__data/assets/pdf_file/0010/78733/003113.pdf
Author: Sheerin, F.
Title: Parents with Learning Disabilities: a Review of the Literature.
Date: 1998
Publisher/Journal/link: Journal of Advanced Nursing, Vol. 28, No. 1.
Author: Singleton, J.L. & Tittle, M.D.

Title: Deaf Parents and Their Hearing Children.
Date: 2000
80
Author: Skov, A. & Henningsen, U.
Title: Parents with learning disabilities - a survey of 28 local authorities.
Date: 2002?
www.servicestyrelsen.dk/filer/udgivelser/handicap/english.../5000.pdf
Author: Snell J.
Title: Set up to fail as parents?
Date: 2006
Publisher/Journal/link: http://www.communitycare.co.uk
Author: Supporting Parents Advocacy Network (SPAN)

Title: Understanding the Family Court System (easy read booklet).
Date:
Publisher/journal/link: UK: Dorset Advocacy. Available from:
http://www.dorsetadvocacy.co.uk/span/ufcs.htm
Author: Tarleton, B.
Title: Specialist Advocacy Services for Parents with Learning Disabilities Involved in
Child Protection Proceedings.
Date: 2007
Author: Tarleton, B. & Marriott, A.

Title: Finding the Right Help.
Date: 2008
Publisher/journal/link: Norah Fry Research Centre, Bristol University. Available at:
Author: Tarleton, B., Ward, L. & Howarth, J.

Title: Finding the Right Support? A Review of Issues and Positive Practice in Supporting
Parents with Learning Difficulties and their Children.
Date: 2006
Publisher/Journal/link: UK: The Baring Foundation.
Author: Toms Barker, L. & Maralani, V.

Title: Final Report: Challenges and Strategies of Disabled Parents: Findings from a
National Survey of Parents with Disabilities.
Date: 1997
Author: Vensand, K., Rogers, J., Tuleja, C. & DeMoss, A.

Title: Adaptive Baby Care Equipment Video and Book (demonstrates how adaptive
babycare equipment and techniques have been successfully used by parents with
physical disabilities).
Date: 2001
Author: Wade, C. M., Mildon, R.L. & Matthews, J.M.
81
Title: Service Delivery to Parents with an Intellectual Disability: Family-centred or
Professionally Centred?
Date: 2007
Author: Wates, M.
Title: Righting the Picture: Disability and Family Life. In J. Swain, S. French, C. Barnes,
& C. Thomas, (Eds.), Disabling Barriers – Enabling Environments (2nd ed.).
Date: 2004
Publisher/journal/link: London: Sage Publications Ltd.
Author: Wates, M.
Title: Disabled Parents Network: Make it Mainstream.
Date: 2003
Publisher/journal/link: http://www.communitycare.co.uk/Articles/2003/09/25/42220/make-
it-mainstream.html
Author: Willems, D.L., de Vries, J.-N., Isarin, J. & Reinders, J.S.

Title: Parenting by Persons with Intellectual Disability: An Explorative Study in the
Netherlands.
Date: 2007
Author: Working Together with Parents Network

Title: Facts and figures about parents with learning disabilities in England.
Date: 2008
Author: Working Together with Parents Network

Title: An introduction to parents with learning difficulties.
Date: 2010?
Author: Young, S., Young, B. & Ford, D.

Title: Parents with a Learning Disability: Research Issues and Informed Practice.
Date: 1997
Author: Young, S. with Strouthos, M.

Title: First Steps to Parenthood: Training Manual. ("Primarily Developed for People who
have Learning Disabilities").
Date: 1997/1999
Pregnancy & Parenthood –Not Specifically for People with Extra Support Needs
Author: The Miscarriage Association
Title: Pregnancy loss: how you might feel (booklet).
82
Date: 2007
Publisher/Journal/link: http://www.miscarriageassociation.org.uk/
Author: The Miscarriage Association & CHILD

Title: Pregnancy loss and infertility (booklet).
Date: 2003
Author: The Miscarriage Association (2007)

Title: Men and Miscarriage (booklet).
Date: 2007
Author: The Miscarriage Association (2004).

Title: Talking to children about miscarriage (booklet).
Date: 2004
83
Sexual Abuse, Bullying and Inappropriate
Sexual Behaviour
Sexual Abuse & People with Extra Support Needs
Author: Balogh, R., Bretherton, K., Whibley, S., Berney, T., Graham, S., Richold, P. et al.
Title: Sexual Abuse in Children and Adolescents with Intellectual Disability.
Date: 2001
Author: Briggs, F.
Title: Developing Personal Safety Skills in Children with Disabilities.
Date: 1995
Publisher/Journal/link: London: J. Kingsley.
Author: Brown, H.
Title: Safeguarding Adults and Children with Disabilities Against Abuse. Report Drawn
up By Professor Hilary Brown, in Co-operation with the Working Group on Violence
against, and Ill-treatment as well as Abuse of People with Disabilities.
Date: 2002
Publisher/Journal/link: Strasbourg: Council of Europe.
Author: Brown, H. & Craft, A.

Title: Working with the ‘Unthinkable’: Trainers Manual on the sexual abuse of Adults with
Learning Disability
Date: 1992
Publisher/journal/link: London: Family Planning Association ( FPA)

Title: A Nightmare That I Thought Would Never End: Understanding The Sexual Abuse
of People with Learning Disabilities. (A Tape About Sexual Abuse for Staff Made By
Service Users).
Date: 1996/1997
84
Title: But now they've Got a Voice. A Tape about Sexual Abuse for Service Users Made
by Service Users.
Date: 1997
Author: Brown, H. & Turk, V.

Title: Defining Sexual Abuse as it Affects Adults with Learning Disabilities.
Date: 1995
Publisher/journal/link: Mental Handicap, Vol. 8, No. 1.
Author: Brown, H., Hunt , N. & Stein J.

Title: "Alarming But Very Necessary": Working with Staff Groups around the Sexual
Abuse of Adults with Learning Disabilities.
Date: 1995
Publisher/journal/link: Journal of Intellectual Disability Research, Vol. 38.
Author: Brown, H., Stein, J. & Turk, V.

Title: The Sexual Abuse of Adults with Learning Disabilities: Report of a Second Two-
year Incidence Survey.
Date: 1995
Publisher/journal/link: Mental Handicap Research, Vol. 8, No. 1.
Author: Caffrey, S.
Title: Sexual Abusers.
Date: 1993
Publisher/journal/link: Frontline Magazine, July-September.
Author: Caffrey, S.
Title: The Ideal Victims.
Date: 1991
Publisher/journal/link: Frontline Magazine, Spring Edition.
Author: Campbell, M. et al.

Title: Approaches to Sexual Abuse of Adults with Learning Disabilities. (Staff Training
Course).
Date: 1997
Publisher/journal/link: University of St. Andrews.
Author: Change
Title: Sexual Abuse. (Easy read booklet).
Date:
Author: Chenoweth, L.
Title: Violence and Women with Disabilities: Silence and Paradox.
Date: 1996
Publisher/journal/link: Violence against Women, 2(4), 391-411. Griffith University.
Author: Chenoweth, L.
Title: Invisible Acts: Violence against Women with Disabilities.
85
Date: 1992
Publisher/journal/link: Australian Disability Review, Vol. 2.
Author: Churchill, J. et al.

Title: There Are No Easy Answers: The Provision of Continuing Care and Treatment to
Adults with Learning Disabilities who Sexually Abuse Others.
Date: 1997
Publisher/journal/link: Chesterfield/Nottingham: ARC/NAPSAC.
Author: Churchill, J., Craft, A., Holding, A. & Horrocks, C.

Title: It Could Never Happen Here: The Prevention and Treatment of Sexual Abuse of
Adults with Learning Disabilities in Residential Settings.
Date: 1993/Revised ed. 1996
Publisher/journal/link: Chesterfield, England: ARC & NAPSAC.
Author: Collier, B., McGhie-Richmond, D. & Odette, F.

Title: Reducing the risk of sexual abuse for people who use Augmentative
communication: A community response. The speak up project: Safeguarding people
who use augmentative communication from sexual abuse/victimization.
Date: 2004
Publisher/journal/link: www.aacsafeguarding.ca
Author: Cooke, P. & Craft, A.

Title: Caught in the Middle: Management's Response to The Sexual Abuse of Adults
with Learning Disabilities.
Date: 1994
Publisher/journal/link: Nottingham, UK: NAPSAC and ARC.
Author: Crossmaker, M.
Title: Behind Closed Doors: Institutional Sexual Abuse.
Date: 1991
Author: Dunne, T.P. & Power, A.

Title: Sexual Abuse and Mental Handicap: Preliminary Findings of a Community
based Study.
Date: 1990
Author: Ellis, R. & Kitson, D. (Ed.)

Title: Training to Protect: Training Materials to Protect People with Learning Disabilities
from Abuse. For Trainers Training Professionals working with adults or Children with
learning Disabilities
Date: 2000
Publisher/journal/link: Nottingham, UK: Ann Craft Trust
Author: Embregts, P., van den Bogaard, K., Hendriks, L., Heestermans, M.,
Schuitemaker, M., van Wouwe, H.
Title: Sexual risk assessment for people with intellectual disabilities.
Date: 2010
Publisher/journal/link: Research in Developmental Disabilities, 31(3), 760-767.
86
Author: Faccini, L. & Alezey Saide, M.
Title: Psychologists’ experience with interviewing and analyzing abuse allegations of
adults with intellectual disabilities.
Date: 2011
Publisher/journal/link: Sexuality & Disability 29, 291–296.

Title: Feel Safe - Promoting Self Protection (Fact sheet & CD).
Date: 2005
Publisher/Journal/link: http://www.fpq.com.au/pdf/Fs_Feel_Safe.pdf

Title: I Have The Right To Be Safe Flip Chart.
Date: 2006
http://www.fpq.com.au/publications/teachingAids/right_to_be_safe.php

Title: I Have The Right To Be Safe (Booklet).
Date: 2006
Publisher/Journal/link: http://www.fpq.com.au/pdf/Br_IHavetheRightToBeSafe.pdf
Author: Frans, E., Reniers, M. & Visser, T. (Consultants).

Title: Approaching and Preventing Sexually Abusive Behaviour in Residential Institutions
for Young People. (Training & Resource Package).
Date: 2001
Publisher/journal/link: Brussels: International Planned Parenthood Federation (IPPF)
European Network.
Author: Frontline.
Title: Reviews: Stay Safe Programme for Children with Special Needs.
Date: 1997
Publisher/journal/link: Frontline, Summer 1997
Author: Fyson, R. & Kitson, D.

Title: Independence or Protection - Does it have to be a Choice? Reflections on the
Abuse of People with Learning Disabilities in Cornwall.
Date: 2007
Publisher/journal/link: Critical Social Policy, Vol. 27, No. 3.
Author: Fyson, R. & Kitson, D. (2007).

Date: 2007
Publisher/journal/link: Critical Social Policy, 27(3), 426-436.
Title: Black Ink: Practical Advice & Clear Guidelines for Dealing with Reports of Sexual
Abuse from People with Intellectual Disabilities.
Date: 2006
87
Title: Upping the Anti - Stop Abuse: Anti Abuse Policies: Handling Allegations of Sexual
Abuse within Organizations that Serve People with Intellectual Disabilities.
Date: 2006
Title: Just Say Know! Understanding and Reducing the Risk of Sexual Victimisation of
People with Developmental Disabilities.
Date: 1995
Title: No! How!!! (For too long others have determined what people with disabilities need
to know to stop victimization. This video involved people with disabilities in acting,
writing, producing and directing a film aimed at others with disabilities. From discussing
disability to teaching boundaries and body parts, people with disabilities take the lead.)
Date:
Author: Hingsburger, D. & Jobes, J.

Title: The Whole Truth: An Abuse Prevention Programme for People with Intellectual
Disabilities (2 disc and book set).
Date:
Author: Home Farm Trust.

Title: Keeping Safe: A Modular Teaching Pack for Use with People with Learning
Disabilities. (Facilitator's Guide Book, Participant's Handbook, Line Drawings).
Date: 2002
Publisher/journal/link: Bristol, UK.
Author: Keilty, J. & Connelly, G.

Title: Making a Statement: An Exploratory Study of Barriers Facing Women with an
Intellectual Disability when Making a Statement about Sexual Assault to Police.
Date: 2001
Author: Kelly, J. (in association with SAVI Team Members).

Title: The Sexual Abuse of People with Learning Disabilities. In McGee, H. et al., (2002),
The SAVI Report - Sexual Abuse and Violence in Ireland: A National Study of Irish
Experiences, Beliefs and Attitudes Concerning Sexual Violence).
Date: 2002
Publisher/journal/link: Dublin: The Liffey Press (In Association with Dublin Rape Crisis
Centre).
Author: Kitson, D.
Title: Concerns about people with learning disabilities being sexually abused. In M.
McCarthy & D. Thompson (eds), Sexuality and Learning Disabilities: A handbook.
88
Date: 2010
Author: Lawlor, M. & MacIntyre, D. (Adapted by Cullen, R.).

Title: Personal Safety Skills for Children with Learning Difficulties.
Date: 1996
Publisher/journal/link: Dublin: Child Abuse Prevention Programme (CAPP)
Author: Lindsay, W.R. & Smith, A.H.W.

Title: Responses to Treatment for Sex Offenders with Intellectual Disability: A
Comparison of Men with 1- and 2-year Probation Sentences.
Date: 1998
Publisher/journal/link: Journal of Intellectual Disability Research, Vol.42, No. 5
Author: Matthews, H.
Title: What Staff Need To Know. It Did Happen Here: Sexual Abuse and Learning
Disability Conference Proceedings.
Date: 1994
Publisher/journal/link: London: St. George’s Mental Health Library Conference Series.
Author: McCabe, M.P., Cummins, R.A. & Reid, S.B.

Title: An Empirical-study of the Sexual Abuse of People with Intellectual Disability.
Date: 1994
Title: Sexual Violence against Women with Learning Disabilities.
Date: 1998
Publisher/journal/link: Feminism & Psychology, Vol. 8, No. 4.

Title: Sexual Abuse by Design: An Examination of the Issues in Learning Disability
Services.
Date: 1996
Author: McCormack, B., Kavanagh, D., Caffrey, S. & Power, A.

Title: Investigating Sexual Abuse: Findings of a 15-Year Longitudinal Study.
Date: 2005
Author: McLaughlin, A.
Title: Self Protection Skills: Evaluation of a Group Programme for Adults with Learning
Difficulties. Unpublished thesis submitted in part requirement of the Degree of M. Psych.
Sc.
Date: 1996
Publisher/journal/link: Dublin: Dept. of Psychology, Faculty of Science, University
College Dublin.
Author: Mencap, Respond & Voice, UK
89
Title: Behind Closed Doors: Preventing Sexual Abuse against Adults with a Learning
Disability.
Date: 2001
Publisher/journal/link: London: Mencap.
Author: Mental Health Foundation (MHF).

Title: Working with Men with Learning Disabilities who Sexually Abuse Others: Basic
Structures Not in Place.(Briefing 12).
Date: 1997
Publisher/journal/link: London: The Mental Health Foundation.
Author: Mucciglosso, L
Title: Sexual abuse prevention strategies & programmes for persons with
developmental disabilities
Date: 1991
Publisher/journal/link: Sexuality & Disability, Vol 9 No. 3 pages 261-271
Author: NAPSAC.
Title: Annotated Bibliography, Supplement One: The Sexual Abuse of Adults and
Children with Learning Disabilities.
Date: 1995
Publisher/journal/link: Nottingham, UK.
Author: NAPSAC.
Title: Annotated Bibliography, Supplement Two: The Sexual Abuse of Adults and
Children with Learning Disabilities.
Date: 1997
Publisher/journal/link: Nottingham, UK.
Author: National Clearinghouse on Family Violence

Title: Violence against Women with Disabilities.
Date: 2004
Publisher/journal/link: Canada: National Clearinghouse on Family Violence
Author: National Disability Authority (2010).

Title: Abuse of People with Disabilities: Briefing Paper.
Date: 2010
Publisher/journal/link: See: http://www.nda.ie/
Author: NSW Council for Intellectual Disability (1997).

Date: 1997
Publisher/Journal/link: See: http://www.fpnsw.org.au/
Author: O'Callaghan, A.C. & Murphy, G. & Clare, I.C.H.

Title: The Impact of Abuse on Men and Women with Severe Learning Disabilities and
their Families.
Date: 2003
Publisher/journal/link: British Journal of Learning Disability, Vol. 31.
Author: O'Neill, A.
90
Title: Adapting the STAY SAFE Programme for Special Education.
Date: 1993
Publisher/journal/link: Reach Journal, Vol. 6, No. 2.
Author: Pountney, J.
Title: Protecting people who have a learning disability from abuse.
Date: 2007
Publisher/journal/link: UK: BILD. www.bild.org.uk
Author: Shepherd School, Nottingham

Title: The Protection Pack.
Date: 1994
Publisher/journal/link: Wisbech, LDA.
Author: Shiel, M. & Kelly, J.

Title: Protecting Children with Special Needs: Adapting the STAY SAFE Programme.
Date: 1996
Publisher/journal/link: Reach Journal, Vol. 9, No. 2.
Author: Simpson, D.
Title: Sexual Abuse and People with Learning Difficulties: Developing Access to
Community Services.
Date: 1994
Author: Sobsey, D.
Title: Violence and Abuse in the Lives of People with Disabilities: The End of Silent
Acceptance?
Date: 1994
Publisher/journal/link: Baltimore: Paul H. Brookes Publishing.
Author: Sobsey, D. et al.

Title: Disability, Sexuality, and Abuse: An Annotated Bibliography.
Date: 1991
Publisher/journal/link: Baltimore: Paul H. Brookes Publishing
Author: Sobsey, D., Montgomery, C., Wilkins, D. & Hingsburger, D.

Title: Four Sight.
Date:
Author: Stein, J. & Brown, H.

Title: Sexual Abuse of Adults with L D: The Quiz Pack.
Date: 1996
Author: Talbot, T.J. & Langdon, P.E.

Title: A Revised Sexual Knowledge Assessment Tool for People with Intellectual
Disabilities: Is Sexual Knowledge Related to Sexual Offending Behaviour?
Date: 2006
Publisher/journal/link: Journal of Intellectual Disability Research, 50(7), 523 – 531.
91
Author: Tang, C.S.K. & Lee, Y.K.S.
Title: Knowledge on Sexual Abuse and Self-protection Skills: A Study on Female
Chinese Adolescents with Mild Mental Retardation.
Date: 1999
Publisher/journal/link: Child Abuse & Neglect, Vol. 23, No. 3.
Title: Profiling the Sexually Abusive Behaviour of Men with Learning Disabilities.
Date: 1997
Publisher/journal/link: Journal of Applied Research in Intellectual Disability, Vol. 10, No.
2.
Author: Thompson, D. & Brown, H.

Title: Response-Ability: Working with Men with Learning Disabilities who have Difficult or
Abusive Sexual Behaviours: A manual for staff & Managers
Date: 1998
Author: Thompson, D. & Brown, H.

Title: Men with Learning Disabilities who Sexually Abuse: Working together to Develop
Response-ability.
Date: 2006
Author: UFC Handicap.

Title: Violence against Women with Disabilities.
Date:
Publisher/journal/link: Denmark: Danish National Research and Information Centre for
People with Disabilities.
Author: White, C., Holland, E., Marsland, D. & Oakes, P.

Title: The Identification of Environments and Cultures that Promote the Abuse of People
with Intellectual Disabilities: A Review of the Literature.
Date: 2003
No. 1, (Mar).
Dealing with Sexual Abuse –Not Specifically Related to People with Extra Support
Needs
Author: Department of Education.

Title: Report on the Survey of the Child Abuse Prevention Programme (Stay Safe).
Date: 1995
Publisher/journal/link: Government Publications, Dublin.
Author: Department of Health, Ireland.

Title: Putting Children First.
Date: 1996
92
Publisher/journal/link: Government Publications, Dublin.
Author: Elliot, M.
Title: Teenscape: A personal safety programme for teenagers
Date: 1990
Publisher/journal/link: London: Health Education Authority.
Author: Elliot, M.
Title: The Willow Street Kids: be smart stay safe
Date: 1997
Publisher/journal/link: London: Piccolo Pan MacMillan Children's Books.
Author: Goode, H. et al.

Title: Time to Listen: Confronting Child Sexual Abuse by Catholic Irish Clergy in Ireland.
Date: 2003
Publisher/journal/link: Dublin: Liffey Press.
Author: Government of Ireland.

Title: Protection for Persons Reporting Child Abuse Act.
Date: 1998
Publisher/journal/link: Stationery Office, Dublin.
Author: McGee, H. et al.

Title: The SAVI Report - Sexual Abuse and Violence in Ireland: A National Study of Irish
Experiences, Beliefs and Attitudes Concerning Sexual Violence.
Date: 2002
Publisher/journal/link: Dublin: The Liffey Press (In Association with Dublin Rape Crisis
Centre).
Author: National Conference of Priests of Ireland.

Title: Child Sexual Abuse: The Irish Experience So Far and The Way Forward. NCPI.
Date: 1999
Publisher/journal/link: All Hallows College, Dublin.

Date: 2002
93
Bullying and People with Extra Support Needs
Title: The R Word: Helping People with Intellectual Disabilities to Deal with Bullying and
Teasing.
Date: 2006
Resources to Deal with Bullying –Not Specifically Related to people with Extra
Support Needs
Author: Cool School Team.

Title: Bullying in Secondary Schools: What Parents Need to Know.
Date: 2004
Publisher/journal/link: Navan, Ireland: NEHB/Cool School Programme.
www.hse.ie/eng/services/publications/services/children/coolschoolbullyfreeprojectbookle
ts.html
Author: Courtney, P.
Title: An Evaluation of an Anti-bullying Curriculum.
Date: 2003
Publisher/journal/link: Kildare, Ireland: National University of Ireland (NUI) Maynooth.
Author: Elliott, M. (Ed.).

Title: Bullying: A Practical guide to coping for schools
Date: 1992
Publisher/journal/link: London: Pitman/KIDSCAPE.

Date: 2002
94
Inappropriate Sexual Behaviour
(From http://www.bbc.co.uk/learningzone/clips/inappropriate-touch-friends/10838.html)
Author: Blasingame, G.D.

Title: Developmentally Disabled Persons with Sexual Behaviour Problems: Treatment,
Management, Supervision (Book). Developmentally Disabled Sexual Offender
Rehabilitative Treatment (Programme Manual & Form).
Date: 2001
Publisher/journal/link: Oklahoma City, USA: Wood 'N' Barnes Publishing.
Author: Cambridge, P., Carnaby, S., & McCarthy, M. (2003).

Title: Responding to masturbation in supporting sexuality and challenging behaviour in
services for people with learning disabilities: a practice and research overview.
Date: 2003
Publisher/journal/link: Journal of Learning Disabilities, 7(3), 251 -266.
Author: Downs, C. & Farrell, S

Title: A Practical Response to Masturbation: Working with People with Profound and
Multiple Disabilities.
Date: 1996
Publisher/Journal/link: Tizards Learning Disability Review, Vol. 1, Issue 4.
Author: Goodman, W., Leggett, J., Weston, C., Phillips, S. & Steward, J.
Title: Group treatment for men with learning disabilities who are at risk of sexually
offending: themes arising from the four-stage model to offending.
Date: 2008
Title: Who Do We Serve (This lecture deals with supporting people with intellectual
disabilities who have committed sexual crimes. Who do we serve first in a community
setting? Do we serve the individual first or do we serve the community?)
Date:
Author: Job, G.
Title: Appropriate and Inappropriate Behaviour in the Area of Sexuality and
Relationships: Slides/Photos. (Unpublished Teaching Resource).
Date: 1990
Publisher/journal/link: St. Michael's House, Dublin.
95
Date: 1998
Author: Lockhart, K., Guerin, S., Shanahan, S. & Coyle, K.

Title: Defining “sexualized challenging behaviour” in adults with intellectual disabilities.
Date: 2009
Publisher/journal/link: Journal of Policy and Practice in Intellectual Disabilities; 6(4):
293 – 301.
Author: Lockhart,K., Guerin, S., Shanahan, S. & Coyle, K.

Title: Expanding the test of counterfeit deviance: Are sexual knowledge, experience and
needs a factor in the sexualised challenging behaviour of adults with intellectual
disability?
Date: 2010
Publisher/journal/link: Research in Developmental Disabilities, 31(1), 117–130.
Title: Unacceptable sexual behaviour. In M. McCarthy & D. Thompson (eds), Sexuality
and Learning Disabilities: A handbook.
Date: 2010
Author: Walsh, A.
Title: IMPROVE and CARE: Responding to Inappropriate Masturbation in People with
Severe Intellectual Disabilities.
Date: 2000
Publisher/journal/link: Sexuality and Disability Vol.18.No. 1.
Author: Ward, K.M., Trigler, J.S. & Pfeiffer, K.T.

Title: Community Services, Issues, and Service Gaps for Individuals with Developmental
Disabilities who Exhibit Inappropriate Sexual Behaviours.
Date: 2000
Publisher/journal/link: Mental Retardation, Vol. 39, No. 1.
96
Relationships & Sexuality Resources -For
People with Autistic Spectrum Disorder
(Taken from the film ‘Adam’)
Author: Attwood, S. & Powell, J.

Title: Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for
People with Asperger's Syndrome.
Date: 2008
Publisher/journal/link: London: Jessica Kingsley Publishers.
Author: Duignan, S., Kerr-Edwards, L. & Image in Action

Title: The Confidence Factor: A practical resource for use with pupils with special
educational needs including autism spectrum disorder aged 11–16.
Date: 2010
Publisher/journal/link: UK: Image in Action. See: http://www.imageinaction.org/res1.htm

Title: Sexuality Education and Aspergers Syndrome - Information for parents and carers
(Factsheet)
Date: 2007
Publisher/journal/link:. http://www.fpq.com.au/pdf/Fs_Aspergers.pdf
Author: Groner, R.
Title: Sex as "Spock": Autism, Sexuality, and Autobiographical Narrative, in R. McRuer &
A. Mollow (eds) Sex and Disability, p. 263-281.
Date: 2012
Author: Haracopos, D. & Pedersen, L. (1992).

Title: Sexuality and Autism: Danish Report
Date: 1992
Publisher/journal/link:. http://www.autismuk.com
Author: Harpur, J. et. al.

Title: Succeeding in College with Asperger Syndrome ( has chapters on relationships &
sexuality)
Date: 2004
Publisher/journal/link: London: Athenaeum Press
97
Author: Henault, I.
Title: Asperger's Syndrome and Sexuality: From Adolescence through Adulthood.
Date: 2005
Author: Hendrickx, S.
Title: Love, Sex and Long-Term Relationships: What People with Asperger Syndrome
Really Really Want.
Date: 2008
Author: Lawson, W.
Title: Sex, Sexuality and the Autism Spectrum.
Date: 2005
Publisher/journal/link: London: Jessica Kingsley Publishers
Author: Newport, J. & Newport, M.

Title: Autism - Asperger's and Sexuality: Puberty and Beyond.
Date: 2002
Publisher/journal/link: Texas: Future Horizons.
Author: Speirs, F.
Title: A PHSE Programme for Learners with Autistic Spectrum Disorders.
Date: 2010?
Publisher/journal/link: http://www.fionaspeirs.co.uk/resources
Author: Speirs, F.
Title: Sex and Relationships Education Programme for Learners with Autistic Spectrum
Disorder
Date: 2002
Publisher/journal/link: Nottingham UK: The Shepherd School
98
Relationships & Sexuality Resources –For
People with Physical & Sensory Disabilities
(From the ‘Intimate Encounters’ exhibition, http://www.belindamason.com/)
Author: Alexander, C. & Sipski, M. (Producers).

Title: Sexuality Reborn: Video for Spinal Cord Injured and Other Physically Disabled
Individuals.
Date: 1993
Publisher/journal/link: West Orange, N.J., USA: Kessler Medical Rehabilitation Research
and Education Corp.
Author: Baker, S.
Title: Sex and relationship education for young people with physical disabilities: a
booklet for teachers.
Date: 2005
Publisher/journal/link: London: Contact a Family
Author: Blackburn, M.
Title: Sexuality & Disability.
Date: 2002
Publisher/journal/link: Oxford, England: Butterworth Heinemann.
Author: Bonnie, S.
Title: Facilitated Sexual Expression in The Independent Living Movement in Ireland.
Date: 2002
Publisher/journal/link: University of Leeds. Can be viewed or downloaded from the
internet: www.independentLiving.org/docs6/bonnie200208.html.
Author: Brothers, M.
Title: It’s not just about Ramps and Braille: Disability and Sexual Orientation. In K.
Zappone (Ed.), Rethinking Identity: The Challenge of Diversity.
Date: 2003
Publisher/journal/link: The Joint Equality and Human Rights Forum. Available from :
www.equality.ie/index.asp?docid=75
Author: Browne, J. & Russell, S.

99
Title: My Home, Your Workplace: People with Physical Disability Negotiate their Sexual
Health without Crossing Professional Boundaries.
Date: 2005
Author: Campion M.J

Date: 1990
Author: Diabetes Federation of Ireland.

Title: A Good Sex Life.
Date: 2003
Publisher/journal/link: Diabetes Ireland, Vol. 1, Issue 3, (Sept).
Author: Ducharme, S.H. & Brooks, P.H.

Title: Sexuality after Spinal Cord Injury: Answers to your questions.
Date: 1997
Publisher/journal/link: Brookes Publishing Company.
Author: Earle, S.
Title: Disability, facilitated sex and the role of the nurse.
Date: 2001
Publisher/journal/link: Journal of Advanced Nursing, 36(3), pp. 433–440.
Author: Earle, S.
Title: Facilitated Sex and the Concept of Sexual Need: Disabled Students and their
Personal Assistants.
Date: 1999
Author: Finger, A.
Title: Disabled Lives: Forbidden Fruit - Why shouldn't Disabled People have Sex or
become Parents?
Date: 1992
Publisher/journal/link: New Internationalist, Issue 233, (July).
Author: Finger, A.
Title: Past Due: A Story of Disability, Pregnancy and Birth.
Date: 1991
Publisher/journal/link: USA: Women's Press
Author: Frye, L.
Title: Fingered, in R. McRuer & A. Mollow (eds) Sex and Disability, p. 256-262.
Date: 2012
Author: Gerschick, T.J.

Title: The Body, Disability, and Sexuality. In Seidman, S., Fischer, N. & Meeks, C.,
(Eds.), Introducing the New Sexuality Studies: Original Essays and Interviews.
Date: 2006
100
Publisher/journal/link: London & New York: Routledge.
Author: Harmon, K.
Title: Hearing Aid Lovers, Pretenders, and Deaf Wannabes: The Fetishizing of Hearing,
in R. McRuer & A. Mollow (eds) Sex and Disability, p. 355-372.
Date: 2012
Author: Harris, R.H. & Emberley, M.

Title: Let's talk about sex; growing up, changing bodies, sex and sexual health (2
volumes in Braille).
Date: 1995
Publisher/journal/link: Walker. See: http://www.rnib.org.uk/Shop
Author: Hart, P. & Douglas-Scott, S.

Title: Batteries Not Included: A Sexuality Resource Pack for Working with People with
Complex Communication Support Needs.
Date: 2005
Publisher/journal/link: Glasgow: Common Knowledge. www.ckglasgow.org.uk
Author: Kafer, A.
Title: Desire and Disgust: My Ambivalent Adventures in Devoteeism, in R. McRuer & A.
Mollow (eds) Sex and Disability, p. 331-354
Date: 2012
Author: Kaplan, C.
Date: 2006
Publisher/Journal/link: Journal of Midwifery & Women's Health, Vol. 51, Issue 6.
Author: Kelly, G.
Title: Physical Disability and Romantic Relations – An Examination of the Effects of
Physical Disability on Dating and Romance. (Unpublished). Dept. of Psychology
Moderatorship Project.
Date: 2001
Publisher/journal/link: Dublin: Dept. of Psychology, Trinity College Dublin.
Author: Kirshbaum, M. (1997).

Title: Babycare assistive technology for parents with physical disabilities: relational,
systems & cultural perspectives.
Date: 1997
Publisher/journal/link: AFTA Newsletter, 1997. Available from: Through the Looking
Glass, http://www.lookingglass.org
Author: Kirshbaum, M & Olkin, R.

Title: Parents with Physical, Systemic, or Visual Disabilities
Date: 2002
Publisher/journal/link: Sexuality and Disability, Vol 20, No. 1
Author: Lehrer, R.
101
Title: Golem Girl Gets Lucky, in R. McRuer & A. Mollow (eds) Sex and Disability, p.231-
255.
Date: 2012
Author: Limaye, S.
Title: Sexuality and Women with Sensory Disabilities. In A. Hans & A. Patri, A., (Eds.),
Women, Disability and Identity.
Date: 2003
Publisher/journal/link: London-California: Sage Publications.
Author: Martin, R.
Title: Sexuality and People with Disabilities.
Date: 1995
Publisher/journal/link: Dublin: Commission on the Status of People with Disabilities.
Author: Mona, L.R.

Title: Sexual Options for People with Disabilities: Using Personal Assistance Services for
Sexual Expression.
Date: 2003
Publisher/journal/link: Women & Therapy, Vol. 26, No. 3-4.
Author: Newman, B., Stewart, B. & SPOD

Title: Sex for young people with spina bifida or cerebral palsy: an outline of sex and
sexual relationships for young people and for their parents (2nd ed) (in Braille)
Date: 1983
Publisher/journal/link: Association for the Spina Bifida and Hydrocephalus. See:
http://www.rnib.org.uk/Shop
Author: Nosek, M.A.

Title: National Study of Women with Physical Disabilities - Final Report.
Date:
Publisher/journal/link: Texas, USA: Baylor College of Medicine/CROWD.
Author: Phillips, S.
Title: Disability, masculinity, and sexuality in Post-Soviet Ukraine. In R. Shuttleworth & T.
Date: 2010
Author: Rogers, J.
Title: The Disabled Woman's Guide to Pregnancy and Birth.
Date: 2005
Publisher/journal/link: USA: Through the Looking Glass. See:
Author: Royal National Institute for the Blind (RNIB).

Title: Sex Education for Visually Impaired Children with Additional Disabilities:
Developing School Policies and Programmes. (braille)
Date: 1996
Publisher/journal/link: London www.rnib.org.uk/shop
102
Author: Royal National Institute for the Blind (RNIB).
Title: Sexual Health Resources for Young People who are Blind or Partially Sighted.
Date: 2000
Publisher/journal/link: London: Royal National Institute of the Blind (RNIB).
Title: "I haven’t Seen that in the Kama Sutra": The Sexual Stories of Disabled People. In
Weeks, J., Holland, J. and Waites, M., (Eds.), Sexuality and Society: A Reader
Date: 2003

Date: 1996
Author: Shuttleworth, R.P.

Title: The Pursuit of Sexual Intimacy for Men with Cerebral Palsy.
Date: 2000
Publisher/journal/link: University of California, San Francisco and Berkeley: Unpublished
dissertation, medical anthropology.

Title: The Search for Sexual Intimacy for Men with Cerebral Palsy
Date: 2000
Author: Simpson, G.
Title: You and me: A guide to sex and sexuality after traumatic brain injury.
Date: 1999
Publisher/journal/link: Sydney: NSW Brain Injury Rehabilitation Unit.
Author: Sipski Alexander, M. & Alexander, C.J.

Title: Recommendations for discussing sexuality after spinal cord injury/dysfunction in
children, adolescents, and adults.
Date: 2007
Publisher/journal/link: Journal of Spinal Cord Medicine, 30(1), 65–70.
Author: Sipski, M.L. & Alexander, C.J.

Title: Sexual function in people with disability and chronic illness: a health professional’s
guide.
Date: 1997
Publisher/journal/link: Aspen Publishers Inc.
Author: Taleporos, G. & McCabe, M.P.

Title: Physical Disability and Sexual Esteem.
Date: 2001
Publisher/journal/link: Sexuality and Disability Vol. 19, No. 2, (Summer).
Author: Tepper, M.S.
103
Title: Becoming Sexually Able: Education to help Youth with Disabilities.
Date: 2001
Publisher/journal/link: SIECUS Report, Vol. 29, No. 3, (Feb/Mar). www.siecus.org
Author: Trefethen, T.
Title: Pity Dates and the Paralyzed Playa: The Dating Scene after Spinal Cord Injury. In
Herdt, G. & Howe, C., (Eds.), 21st Century Sexualities: Contemporary Issues in Health,
Education and Rights.
Date: 2007
Author: Vensand, K., Rogers, J., Tuleja, C. & DeMoss, A.

Title: Adaptive baby care equipment video and book (demonstrates how adaptive
babycare equipment and techniques have been successfully used by parents with
physical disabilities).
Date: 2001
Publisher/journal/link: USA: Through the Looking Glass, http://www.lookingglass.org
Author: Visman, J.
Title: Sex education (a novel in Braille).
Date: 2002
Publisher/journal/link: Publisher: Bloomsbury. See: http://www.rnib.org.uk/Shop
Author: Widgit (2007).

Title: Signalong Sexual Awareness Resource Pack (Signalong signs, symbols and
conversation cards to assist in the delivery of sex education).
Date: 2007
Publisher/journal/link: http://www.widgit.com/products/signalong/sexual_awareness.htm
104
Related Topics –Advocacy and Building Self
Esteem
Author: Bell, D.
Title: Thumbs Up: A Training Pack on Assertion Skills for People with Learning
Disabilities.
Date: 1999/2000
Author: Cameron, L. & Murphy, J.

Title: Enabling Young People with a Learning Disability to Make Choices at a Time of
Transition.
Date: 2002
Author: Citizens Information Board

Title: Entitlements for People with Disabilities
Date: 2010
Publisher/Journal/link: Dublin: Citizens Information Board.
www.citizensinformationboard.ie/publications/list

Title: Evaluation of the Programme of Advocacy Services for people with disabilities in
the community & voluntary sector
Date: 2010

Title: Advocacy Project Resource pack. Supporting Advocacy services to people with
disabilities by community and voluntary organisations
Date: 2008

105
Title: Advocacy Guidelines
Date: 2007
Title: Tall Tales: Self esteem and people with developmental disabilities. (Set of 2
audiocassettes).
Date:
Author: Hollo, W. & the Self Advocates.

Title: The Rights Stuff: Self Advocates Learning and Using Their Rights (book & DVD)
Date: 2003
Publisher/Journal/link: Canada: Diverse City Press Inc. www.Diverse-city.com
Author: Inclusion Europe

Title: Your Rights as Citizens: Access to Rights and Justice for people with intellectual
disabilities (Easy Read)
Date: 2005
Publisher/Journal/link: Inclusion Europe. www.inclusion-europe.org/documents/2101.pdf

Title: Your Rights as Citizens: Being a person before the law (Easy Read)
Date: 2005
Publisher/Journal/link: Inclusion Europe. www.inclusion-europe.org/documents/2108.pdf

Title: Rules for meetings & conferences (Easy Read)
Date:
Publisher/Journal/link: Inclusion Europe. www.inclusion-europe.org
Author: Inclusion Ireland

Title: My Voice My Choice (Pack consisting of booklets & CD-ROM on bullying,
advocacy, rights, self-advocacy and money). (Easy Read)
Date:
Publisher/Journal/link: www.inclusionireland.ie/easytoread/myvoice/index
Author: Irish National Teachers Organisation (INTO).

Title: Enhancing Self-Esteem.
Date: 1995
Publisher/Journal/link: Dublin. www.into.ie/roi/publications/publicationlist/

Title: Helping People with a Learning Disability Explore Choice.
Date: 1999

Title: Helping People with a Learning Disability Explore Relationships
Date: 1999
106
Author: Kelly, A.
Title: Talkabout Relationships: Building Self-esteem and Relationship Skills.
Date: 2004
Publisher/Journal/link: Oxon: Speechmark Publications.
Author: MacNamara, M.
Title: Lifeskills: A Positive Approach.
Date: 1995
Publisher/Journal/link: London: Souvenir Press
Author: Mosley, J.
Title: You Choose: Handbook for Staff Working with People Who Have Learning
Disabilities to Promote Self-esteem and Self-advocacy.
Date: 1997
Publisher/Journal/link: UK: Pavilion Publishing
Author: Soucie, M., Milberg, A. & Hingsburger, D.

Title: In:Difference: A Little Book about Diversity.
Date: 2001
Publisher/journal/link: Canada: Diverse City Press Inc. www.diverse-city.com
Author: Strike, R. & McConnell, D.

Title: Look at me, Listen to me, I have Something Important to Say!
Date: 2002
Author: The European Platform for Self-Advocates

Title: Rules for good support. (Easy Read)
Date:
Publisher/Journal/link: Brussels: Inclusion Europe. www.inclusion-europe.org
Author: The European Platform for Self-Advocates

Title: People with intellectual disabilities can decide more by themselves: How family
members and professionals can promote self-advocacy
Date: 2006
Publisher/Journal/link: Brussels: Inclusion Europe. www.inclusion-
europe.org/documents/2201.pdf
Author: Thurman, S.
Title: BILD Guide: Making complaints work for people with learning disabilities.
Date: 2009
Publisher/Journal/link: UK: BILD. www.bild.org.uk
107
Research on Sexuality and People with Extra
Support Needs
Irish Research on Sexuality, Relationships and People with Extra

Support Needs
Author: Allen, M. & Seery, D.

Title: The Current Status of Relationships and Sexuality Education Practice for People
with an intellectual Disability in Ireland
Date: 2007
Publisher/journal/link: Dublin and Cork: Irish Sex Education Network and Sexual Health
Centre, available from:
http://www.sexualhealthcentre.com/PUBLICATIONS/SHC%20Disability%20Report2.pdf
Author: Bane, G., Dooher, M., Flaherty, J., Mahon, A., McDonagh, P., Wolfe, M., Deely,
M., Hopkins, R., Minogue, G., Curry, M., Donohoe, B., Tierney, E., Garcia Iriarte, E,
O’Doherty, S. & Shannon, S.
Title: Relationships of People with Learning Disabilities in Ireland
Date: 2012
Publisher/journal/link: British Journal of Learning Disabilities, 40(2): 109-22.
Author: Begley, C., Higgins, A., Lalor, J., Alexander, J., Nicholl, H., Lawler, D., Keenan,
P., Tuohy, T. & Kavanagh, R.
Title: Women with Disabilities: Policies Governing Procedure and Practice in Service
Provision in Ireland during Pregnancy, Childbirth and Early Motherhood.
Date: 2009
108
Title: Women with Disabilities: Barriers and Facilitators to Accessing Services during
Pregnancy, Childbirth and Early Motherhood.
Date: 2009
Title: The Strengths and Weaknesses of Publicly-funded Irish Health Services Provided
to Women with Disabilities in Relation to Pregnancy, Childbirth and Early Motherhood.
Date: 2010
Author: Bonnie, S.
Title: Facilitated Sexual Expression in the Independent Living Movement in Ireland.
Date: 2002
Publisher/journal/link: http://www.independentLiving.org/docs6/bonnie200208.html.
Author: Caffrey, S.
Title: S. A. M. & S. U. E. Sexual Attitudes Measured & Sexual Understanding Explored.
Submitted in fulfilment of the requirements for the degree of Doctor of Philosophy
(Ph.D).
Date: 1992
Publisher/journal/link: Dept of Psychology, Trinity College Dublin: Unpublished Ph.D.
thesis.
Author: Clonliffe, C.
Title: Parental Experiences and Hopes. In R. McConkey. and C. Clonliffe, (Eds.), The
Person with Mental Handicap: Preparation for an Adult Life in the Community.
Date: 1989
Publisher/journal/link: Dublin: St. Michael’s House.
Author: Crouch, L.
Title: Sexual Rights for Adults with Learning Difficulties. Unpublished dissertation
submitted in part requirement for the Northern Ireland Diploma in Social Work (E.P.B.).
Date: 2002
Publisher/journal/link: Northern Ireland: Belfast Institute of Further and Higher Education.
Author: Drummond, E.
Title: Attitudes towards sexuality: A pilot study in Ireland.
Date: 2006
Publisher/journal/link: Learning Disability Practice, 9(4), 28-34.
Author: Drummond, E.
Title: Supporting Sexuality - Acknowledging Rights: Practice and Professional Issues for
Working with People with Intellectual Disability.
Date: 2006
Publisher/journal/link: Frontline, 67 (Autumn), 12-13.
Author: Dukes E. & McGuire B. E.
109
Title: Enhancing capacity to make sexuality-related decisions in people with an
Date: 2009
Publisher/journal/link: Journal of Intellectual Disability Research 53, 727–34.
Author: Evans, D.S., McGuire, B.E., Healy, E. & Carley, S.N.

Title: Sexuality and personal relationships for people with an intellectual disability. Part
II: staff and family carer perspectives.
Date: 2009
Author: Evans, D.S.

Title: The Development of Personal Relationships and Sexuality Guidelines for People
with Learning Disabilities: Final Report Prepared on Behalf of The Galway Association
by The Department of Public Health
Date: 2002
Publisher/journal/link: Western Health Board.
Author: Foley S. & Kelly, G.

Title: Friendships and taboos: Research on sexual health promotion for people with mild
to moderate intellectual disabilities in the 18-25 age range: Results of a consultation
process and literature review.
Date: 2009
Publisher/journal/link: Cork, Health Promotion Department, Health Service Executive
South. Available from: http://www.lenus.ie/hse/handle/10147/108638
Author: Gilmartin, S.P.

Title: The "Stay Safe Programme": Barriers to Acceptance.
Date: 1995
Publisher/journal/link: Masters Thesis, University of Ulster.
Author: Healy, E. McGuire, B.E., Evans, D.S. & Carley, S.N. (2009).
Title: Sexuality and personal relationships for people with an intellectual disability. Part I:
service-user perspectives.
Date: 2009
Publisher/journal/link: Journal of Intellectual Disability Research 53(11), 905–912.
Author: Holland, N.
Title: A Study of Service Users’ Knowledge of, and Attitudes to, Aspects of their
Sexuality.
Date: 2004
Publisher/journal/link: Unpublished thesis. Submitted in Partial Fulfilment of the
Requirements of the Psychological Society of Ireland’s Diploma in Professional
Psychology (Clinical).
Author: Inclusive research network

Title: Relationships and Supports Study: People with Intellectual Disabilities in Ireland.
Date: 2010
Publisher/journal/link: National Federation of Voluntary Bodies & National Institute for
Intellectual Disability. Available from:
http://www.fedvol.ie/_fileupload/Inclusive%20Research%20Network/FINAL%20-
%20Relationships%20and%20Supports%20Report%202010.pdf
110
Author: Kelly, G., Crowley, H. & Hamilton, C.
Title: Rights, Sexuality and Relationships in Ireland: “It’d be nice to be kind of trusted”.
Date: 2009
Author: Kelly, G.
Title: Rights, Sexuality and Relationships: an exploration of people with learning
disabilities’ views and experiences.
Date: 2009
Publisher/journal/link: Frontline Magazine, issue 74, March 2009.
Author: Kelly, G.
Title: Physical Disability and Romantic Relations – An Examination of the Effects of
Physical Disability on Dating and Romance. (Unpublished). Dept. of Psychology
Moderatorship Project.
Date: 2001
Publisher/journal/link: Dublin: Dept. Psychology, Trinity College Dublin.
Author: McConkey, R.
Title: Our Young Lives: School Leavers’ Impressions and those of their Parents to Life at
Home and their Hopes for the Future. In R. McConkey. and C. Clonliffe, (Eds.), The
Person with Mental Handicap: Preparation for an Adult Life in the Community.
Date: 1989
Publisher/journal/link: Dublin: St. Michael’s House.
Author: McConkey, R. & Ryan D.

Title: Experiences of Staff in Dealing with Client Sexuality in Services for Teenagers and
Adults with Intellectual Disability.
Date: 2001
Author: McCormack, B., Kavanagh, D., Caffrey, S. & Power, A.

Title: Investigating Sexual Abuse: Findings of a 15-Year Longitudinal Study.
Date: 2005
Title: Adult Status of Mildly Retarded Past-pupils from Special Education.
Author: McGrath, M
Title: Staff views regarding an educational & training programme on sexuality &
relationships when working with people with intellectual disabilities
Date: 2009
Publisher/journal/link: Ireland
www.tcd.ie/psychology/other/mscap_dissertations/pdp/mariemcgrath.pdf
Author: McLaughlin, A.
Title: Self Protection Skills: Evaluation of a Group Programme for Adults with Learning
Difficulties. Unpublished thesis submitted in part requirement of the Degree of M. Psych.
Sc.
Date: 1996
111
Publisher/journal/link: Dublin: Dept. of Psychology, Faculty of Science, University
College Dublin.
Author: Muldoon, N.
Title: Relationship Enrichment and Sexual Education Programme for the Learning
Disabled: A Study in Action Research. Unpublished dissertation submitted in part
requirement of the Degree of Masters in Counselling Psychology.
Date: 1998
Publisher/journal/link: Dublin: Dept. of Psychology, Trinity College Dublin.

Title: Public Attitudes to Disability in the Republic of Ireland.
Date: 2002
Publisher/journal/link: Dublin: National Disability Authority Press.
Author: O’Callaghan, R.J. & Toomey, J.F.

Title: Part II: Social adaption
Date: 1983
Publisher/journal/link: International Journal of Rehabilitation Research, Vol. 6 (3), P 301
-312
Author: O’Doherty, S.
Title: Attitudes of care staff towards client sexuality.
Date: 2011
Publisher/journal/link: Frontline, 82, 18-19.
Author: Redmond, B.
Title: Listening to Parents: The Aspirations, Expectations and Anxieties of Parents about
their Teenager with Learning Disability.
Date: 1995
Publisher/journal/link: Dublin: Family Studies Centre, University College Dublin.
Author: Scally, B.G.

Title: Marriage and Mental Handicap: Some Observations in Northern Ireland. In F.F. de
la Cruz & G.D. La Veck, (Eds.), Human Sexuality and the Mentally Retarded.
Date: 1973
Publisher/journal/link: London: Butterworth.

Northern Ireland
Date: 2006
Author: Toomey, J.F.

Title: Bawnmore Personal Development Programme: Research Report.
Date: 1992
Publisher/journal/link: Limerick, Ireland: Brothers of Charity Services
Author: Toomey, J.F.
112
Title: Final Report of the Bawnmore Personal Development Programme: Staff Attitudes
and Sexuality Programme Development in an Irish Service Organisation for People with
Mental Handicap.
Date: 1993
Publisher/journal/link: Research in Developmental Disabilities, Vol. 14.
113
International Research on Sexuality, Relationships and People with
Extra Support Needs
Author: Abbott, D. & Burns, J.

Title: What’s love got to do with it? The experiences of lesbian, gay and bisexual people
with intellectual disabilities and the views of the staff that support them.
Date: 2007
Publisher/journal/link: Sexuality Research and Social Policy, University of California
Press, 4 (1), 27-39.
Author: Alcorn, D.A.

Title: Parental Views on the Sexual Development and Education of the Trainable
Mentally Retarded.
Date: 1974
Publisher/journal/link: Journal of Special Education, Vol. 8, No. 2.
Author: Ames, T.R.

Title: Perspectives: Inclusionary Standard for Determining Sexual Consent for
Individuals with Developmental Disabilities
Date: 1995
Publisher/journal/link: Mental Retardation, (Aug).
Author: Andron, L. & Sturm, M.L.

Title: Is "I do" in the Repertoire of the Retarded?
Date: 1973
Publisher/journal/link: Mental Retardation, Vol. 11.
Author: Aunos, M. & Feldman, A.A.

Title: Attitudes towards Sexuality, Sterilization and Parenting Rights of Persons with
Date: 2002
Publisher/journal/link: Journal of Applied Research in Intellectual Disabilities, Vol 15, No.
4. (Dec)
Author: Bass, M. S.
114
Title: Attitudes of Parents of Retarded Children toward Voluntary Sterilization.
Date: 1967
Publisher/journal/link: Eugenics Quarterly, Vol. 14. Pg 45-53
Author: Bazzo, G., Nota, L., Soresi, S, Ferrari, L. & Minnes, P.

Title: Attitudes of Social Service Providers toward the Sexuality of Individuals with
Date: 2007
Author: Bell, C.
Title: I'm Not the Man I Used to Be: Sex, HIV, and Cultural "Responsibility", in R.
McRuer & A. Mollow (eds) Sex and Disability, p. 208-228.
Date: 2012
Author: Bell, D.M. & Cameron, L.

Title: The Assessment of the Sexual Knowledge of a Person with a Severe Learning
Disability and a Severe Communication Disorder.
Date: 2003
Publisher/journal/link: British Journal of Learning Disabilities, Vol. 31, No. 3.
Author: Blackburn, M.
Title: Sexuality & Disability.
Date: 2002
Publisher/journal/link: Oxford, England: Butterworth Heinemann.
Author: Block, P.
Title: Sexuality, Fertility, and Danger: Twentieth-Century Images of Women with
Cognitive Disabilities.
Date: 2000
Author: Block, P.
Title: Sexuality, Parenthood & Cognitive Disability in Brazil.
Date: 2002
Author: Booth,T. & Booth, W.

Title: Men in the Lives of Mothers with Intellectual Disabilities.
Date: 2002
No. 3.
Author: Booth,T. & Booth, W.

Title: Parents Together: Action Research and Advocacy Support for Parents with
Learning Difficulties.
Date: 1999
Publisher/journal/link: Health & Social Care in the Community, Vol.7,No. 6
Author: Brantlinger,F.A.
115
Title: Measuring Variation and Change in Attitudes of Residential Care Staff towards the
Sexuality of Mentally Retarded Persons.
Date: 1983
Publisher/journal/link: Mental Retardation,Vol.21.
Author: Brown, H.
Title: ‘An Ordinary Sexual Life?’: A Review of the Normalisation Principle as it Applies to
the Sexual Options of People with Learning Disabilities.
Date: 1994
Publisher/journal/link: Disability & Society, 9(2), 123 - 144
Author: Brown, H. & Thompson, D.

Title: The Ethics of Research with Men who have Learning Disabilities and Abusive
Sexual Behaviour: A Minefield in a Vacuum.
Date: 1997
Author: Brown, H., Egan Sage, E., Barry, G. & McKay, C.

Title: Towards Better Interviewing. A Handbook for Police Officers and Social Workers
on the Sexuality of Adults with Learning Disabilities (NAPSAC Need to Know Series).
Date: 1996
Author: Brown, R.D. & Pirtle, T.

Title: Beliefs of professional and family caregivers about the sexuality of individuals with
intellectual disabilities: examining beliefs using a Q-methodology approach.
Date: 2008
Publisher/journal/link: Sex education, 8(1), 59-75.
Author: Cambridge, P., Carnaby, S., & McCarthy, M.

Title: Responding to masturbation in supporting sexuality and challenging behaviour in
services for people with learning disabilities: a practice and research overview.
Date: 2003
Publisher/journal/link: Journal of Learning Disabilities, 7(3), 251 -266.
Author: Carlson, G., Taylor, M. & Wilson, J.

Title: Sterilisation, Drugs which Suppress Sexual Drive, and Young Men who have
Date: 2000
Publisher/Journal/link: Journal of Intellectual & Developmental Disability, Vol. 25, No. 2
Author: Chamberlain, A., Rauh, J., Passer, A., McGrath, M. & Burket, R.
Title: Issues in Fertility Control for Mentally Retarded Female Adolescents: I. Sexual
Activity, Sexual Abuse and Contraception.
Date: 1984
Publisher/Journal/link: Paediatrics, Vol. 73, No. 4.
Author: Chapman, J.W. & Pitceathly, A.S.

Title: Sexuality and Mentally Handicapped People: Issues of Sex Education, Marriage,
Parenthood and Care Staff Attitudes.
Date: 1985
116
Publisher/journal/link: Australia and New Zealand Journal of Developmental Disabilities,
Vol. 11.
Author: Christian, L., Stinson, J. & Dotson, L.A.

Title: Staff Values regarding the Sexual Expression of Women with Developmental
Disabilities.
Date: 2001
Author: Coleman E. & Murphy, W.D.

Title: A Survey of Sexual Attitudes and Sex Education Programs among Facilities for the
Mentally Retarded.
Date: 1980
Publisher/journal/link: Applied Research in Mental Retardation, Vol. 1.
Author: Collins, P., Geller, P., Miller, S., Toro, P., Susser, E.
Title: Ourselves, our Bodies, our Realities: An HIV Prevention Intervention for Women
with Severe Mental Illness.
Date: 2001
Publisher/Journal/link: Journal of Urban Health, Vol. 78, No. 1.
Author: Conder, J., Mirfin-Veitch, B., Sanders, J. & Munford, R.

Title: Planned pregnancy, planned parenting: enabling choice for adults with a learning
disability.
Date: 2010
Author: Cuskelly, M & Bryde, R.

Title: Attitudes towards the Sexuality of Adults with an Intellectual Disability: Parents,
Support Staff and a Community Sample.
Date: 2004
Publisher/journal/link: Journal of Intellectual & Developmental Disability, Vol. 29, No. 3,
pp 255-264.
Author: Cuskelly, M. & Gilmore, L.

Title: Attitudes to Sexuality Questionnaire (Individuals with an Intellectual Disability):
Scale development and community norms.
Date: 2007
Publisher/journal/link: Journal of Intellectual & Developmental Disability, 32(3), 214–221.
Author: Davy, Z.
Title: A psychosocial exploration of (trans)gender, sexual citizenship and disability: a
case study. In R. Shuttleworth & T. Sanders (eds), Sex and Disability: Politics, Identity
and Access.
Date: 2010
Author: Davidson, M.
Title: Pregnant Men: Modernism, Disability, and Biofuturity, in R. McRuer & A. Mollow
(eds) Sex and Disability, p.123-144.
Date: 2012
117
Author: Davidson-Paine, C. & Corbett, J.

Title: A Double Coming Out: Gay Men with Learning Disabilities.
Date: 1995
Author: Davis, Rev. H.

Title: State Sterilization of the Mental Defective.
Date: 1931
Publisher/Journal/link: Clergy Review, Vol. 1, No. 5.
Author: Davis, L.J.

Title: An Excess of Sex: Sex Addiction as Disability, in R. McRuer & A. Mollow (eds) Sex
and Disability, p.
Date: 2012
Author: Deepak, S.
Title: Male, Female or Disabled: Barriers to Expression of Sexuality. Submitted for the
Degree of Masters of Arts in Disability Studies, The Department of Sociology & Social
Policy, The University of Leeds.
Date: 2002
http://www.aifo.it/english/resources/online/books/cbr/Dissertation%20Dis%20%20sexuali
ty%20final.pdf
Author: Desjardins, M
Title: The Sexualized Body of the Child: Parents and the Politics of "Voluntary"
Sterilization of People Labeled Intellectually Disabled, in R. McRuer & A. Mollow (eds)
Sex and Disability, p. 69-85.
Date: 2012
Author: Dotson, L.A. Stinson, J. & Christian, L.

Title: "People Tell me I Can't Have Sex": Women with Disabilities Share their Personal
Perspectives on Health Care, Sexuality and Reproductive Rights.
Date: 2003
Publisher/Journal/link: Women & Therapy, Vol. 26, No. 3-4.
Author: Dowdney, L. & Skuse, D.

Title: Parenting Provided by Adults with Mental-Retardation.
Date: 1993
Publisher/journal/link: Journal of Child Psychology and Psychiatry and Allied Disciplines,
Vol. 34, No. 1.
Author: Esterle, M., Munoz Sastre, M.T. & Mullet, E.
Title: Judging the Acceptability of Sexual Intercourse Among People with Learning
Disabilities: French Laypeople’s Viewpoint.
Date: 2008
Publisher/journal/link: Sexuality and Disability, 26,219-227.
118
Author: Dune, T.M. & Shuttleworth, R.P.
Title: ‘It’s just supposed to happen’: the myth of sexual spontaneity and the sexually
marginalized.
Date: 2009
Publisher/journal/link: Sexuality & Disability, 27, 97–108.
Author: Edmonson, B. & Wish, J.

Title: Sex Knowledge and Attitudes of Moderately Retarded Males.
Date: 1975
Publisher/journal/link: American Journal of Mental Deficiency, Vol. 80, No. 2.
Author: Esterle, M., Munoz Sastre, M.T. & Mullet, E.

Title: Judging the acceptability of sexual intercourse among people with learning
disabilities: French laypeople’s viewpoint.
Date: 2008
Author: Faccini, L. & Alezey Saide, M.

Title: Psychologists’ experience with interviewing and analyzing abuse allegations of
adults with intellectual disabilities.
Date: 2011
Publisher/journal/link: Sexuality & Disability 29, 291–296.
Author: Fitzgerald, C. & Withers, P.

Title: ‘I don’t know what a proper woman means’: what women with intellectual
disabilities think about sex, sexuality and themselves.
Date: 2011
Author: Fraley, S.S., Mona, L.R. & Theodore, P.S.

Title: The sexual lives of lesbian, gay, and bisexual people with disabilities:
psychological perspectives.
Date: 2007
Publisher/journal/link: Sexuality Research & Social Policy, Journal of NSRC, 4(1), 15-26.
Author: Fraser, J. & Hope, R.

Title: Questionnaire on Social and Sexual Knowledge - Not a Child Anymore.
Date: 1987
Publisher/journal/link: London: Brook Advisory Centre.
Author: Frye, L.
Title: Fingered, in R. McRuer & A. Mollow (eds) Sex and Disability, p. 256-262.
Date: 2012
Author: Fyson, R. & Kitson, D.

Date: 2007
Publisher/journal/link: Critical Social Policy, 27(3), 426-436.
119
Author: Galea, J., Butler, J., Iacono, T. & Leighton, D.
Title: The Assessment of Sexual Knowledge in People with Intellectual Disability.
Date: 2004
Author: Garbutt, R.
Title: Exploring barriers to sex and relationships for people with learning difficulties. In R.
Shuttleworth & T. Sanders (eds), Sex and Disability: Politics, Identity and Access.
Date: 2010
Author: Garwood, M. & McCabe, M.P.

Title: Impact of Sex Education Programs on Sexual Knowledge and Feelings of Men
with a Mild Intellectual Disability.
Date: 2000
Publisher/journal/link: Education and Training in Mental Retardation and Developmental
Disabilities, Vol. 35, No. 3, (Sept.).
Author: Gillespie-Sells, K. et al.

Title: She Dances to Different Drums: Research into Disabled Women's Sexuality.
Date: 1998
Publisher/journal/link: London: King's Fund Publishing.
Author: Gilmore, L. & Chambers, B.

Title: Intellectual disability and sexuality: attitudes of disability support staff and leisure
industry employees.
Date: 2010
Publisher/journal/link: Journal of Intellectual and Developmental Disability, 35(1). pp. 1-
22.
Author: Goodman, W., Leggett, J., Weston, C., Phillips, S. & Steward, J.
Title: Group treatment for men with learning disabilities who are at risk of sexually
offending: themes arising from the four-stage model to offending.
Date: 2008
Author: Goodley, D. & Lawthom, R.

Title: Disability, Deleuze and Sex, in F. Beckman (ed) Deleuze and Sex
Date: 2011
Publisher/journal/link: Edinburgh: Edinburgh University Press
Author: Grieve, A., McLaren, S. & Lindsay, W.R.

Title: An evaluation of research and training resources for the sex education of people
with moderate to severe learning disabilities.
Date: 2007
Author: Grieve, A., McLaren, S., Lindsay, W.R. & and Ewan Culling
Title: Staff attitudes towards the sexuality of people with learning disabilities: a
comparison of different professional groups and residential facilities.
120
Date: 2009
Publisher/journal/link: British Journal of Learning Disabilities, 37, 76–84
Author: Griffiths, D.M., & Lunsky, J.

Title: Socio-sexual Knowledge and Attitudes Assessment Tool – Revised (SSKAATR).
Manual.
Date: 2003
Publisher/journal/link: Wooddale, Illinois: Stoelting Company.
Author: Griffiths, D.M., Watson, S.L., Lewis, T. & Stoner, K.

Title: Sexuality Research and Persons with Intellectual Disabilities. In Emerson E.,
Hatton, C., Thompson, T. & Parmenter, T.R. The International Handbook of Applied
Research in Intellectual Disabilities.
Date: 2004
Publisher/journal/link: USA: John Wiley & Sons Inc.
Author: Griffiths, M.
Title: Sex: Should we all Be at it? - A Study into the Struggles of Disabled People's Fight
for Sexual Expression, and the Implications of Using Prostitutes and Surrogates to
Facilitate this Sexual Expression.
Date: 2006
Publisher/journal/link: www.leeds.ac.uk/Disability-
studies/archiveuk/griffiths/dissertation.pdf.
Author: Groner, R.
Title: Sex as "Spock": Autism, Sexuality, and Autobiographical Narrative, in R. McRuer &
Date: 2012
Title: ‘Now I'd Like to Sleep with Rachel’: Researching sexuality support in a service
agency group home.
Date: 2009
Publisher/journal/link: ‘Disability & Society, 24(3), 303 – 315.
Title: ‘But Rachel was enjoying it too, wasn’t she?’ Cultural norms and alternative
approaches in a learning disability and sexuality case study. In R. Shuttleworth & T.
Date: 2010
Title: Community members’ responses to the elective hysterectomy of an intellectually
disabled girl.
Date: 2011
Publisher/journal/link: Journal of Social Inclusion, 2(1), 23-38.
Author: Hammar, S.L., Wright, L.S. & Jenson, D.L.
121
Title: Sex Education for the Retarded Adolescent: A Survey of Parental Attitudes &
Methods of Management in 50 Retarded Adolescents.
Date: 1967
Publisher/journal/link: Clinical Paediatrics, Vol. 6.
Author: Hamre-Nietupski, S. & Ford, A.

Title: Sex Education and Related Skills. A Series of Programs Implemented with
Severely Handicapped Students.
Date: 1981
Publisher/journal/link: Sexuality and Disability, Vol. 4.
Author: Haracopos, D. & Pedersen, L.

Title: Sexuality and Autism: Danish Report.
Date: 1992
Publisher/journal/link: http://www.autismuk.com
Author: Harmon, K.
Title: Hearing Aid Lovers, Pretenders, and Deaf Wannabes: The Fetishizing of Hearing,
in R. McRuer & A. Mollow (eds) Sex and Disability, p. 355-372.
Date: 2012
Author: Hayes, S.
Title: The relationship between childhood abuse, psychological symptoms and
subsequent sex offending.
Date: 2009
Publisher/journal/link: Journal of Applied Research in Intellectual Disabilities, 22, 96–
101.
Author: Heinz, L.C. & Grant, P.R.

Title: A Process Evaluation of a Parenting Group for Parents with Intellectual Disabilities.
Date: 2003
Author: Hellemans, H., Roeyers, H., Leplae, W., Dewaele, T. & Deboutte, D.
Title: Sexual behavior in male adolescents and young adults with autism spectrum
disorder and borderline/mild mental retardation.
Date: 2010
Author: Hogg, J., Campbell, M., Cullen, C.& Hudson, W.

Title: Evaluation of the Effect of an Open Learning Course on Staff Knowledge and
Attitudes towards the Sexual Abuse of Adults with Learning Disabilities.
Date: 2001
No. 1.
Title: Learning difficulties and Sexual Vulnerability: A social Approach
Date: 2011
Publisher/journal/link: London & Philadelphia: Jessica Kingsley Publishers
122
Title: Sexual ‘vulnerability’ of people with learning difficulties: a self fulfilling prophecy. In
R. Shuttleworth & T. Sanders (eds), Sex and Disability: Politics, Identity and Access.
Date: 2010
Author: Hollomotz, A. & The Speakup Committee

Title: ‘May we please have sex tonight’ – people with learning difficulties pursuing
privacy in residential group settings.
Date: 2008
Publisher/Journal/link: British Journal of Learning Disabilities, 37(2), 91-97.
Author: Holmes, S.
Title: Evaluation of Staff Attitudes towards Sexual Activity of People with Learning
Disabilities.
Date: 1998
Publisher/Journal/link: British Journal of Occupational Psychology, Vol. 61.
Author: Howard-Barr, E.M., Rienzo, B.A., Pigg, M. & James, D.

Title: Teacher Beliefs, Professional Preparation, and Practices Regarding Exceptional
Students and Sexuality Education.
Date: 2005
Publisher/Journal/link: Journal of School Health, Vol. 75, No. 3.

Date: 2002
Publisher/journal/link: Hypatia Bloomington, Vol. 17, No. 3, (Summer).
Author: Isler, A., Beytut, D., Tas, F. & Conk, Z.

Title: A study on sexuality with the parents of adolescents with intellectual disability.
Date: 2009
Author: Isler, A., Tas, F., Beytut, D. & Conk, Z.

Title: Sexuality in Adolescents with Intellectual Disabilities.
Date: 2009
Publisher/journal/link: Sexuality and Disability, 27(1), 27-34.
Author: Jarman, M
Title: Dismembering the Lynch Mob: Intersecting Narratives of Disability, Race, and
Sexual Menace, in R. McRuer & A. Mollow (eds) Sex and Disability, p. 89-107.
Date: 2012
Author: Jobling, A., Moni, K, & Nolan, A.

Title: Understanding Friendship: Young Adults with Down Syndrome Explore
Relationships
Date: 2000
Publisher/journal/link: Journal of Intellectual & Developmental Disability, Vol. 25.
123
Title: Deinstitutionalising Women: An Ethnographic Study of Institutional Closure.
Date: 1998
Publisher/journal/link: Cambridge, United Kingdom: Cambridge University Press.

Title: Living Safer Sexual Lives: Final Report.
Date: 2001
Publisher/journal/link: Australia: Australian Research Centre in Sex, Health and Society,
La Trobe University.
Author: Johnson, K., Strong, R., Hillier, L. & Pitts, M.

Title: Screened Out: Women with Disabilities and Preventive Health.
Date: 2006
Publisher/journal/link: Scandinavian Journal of Disability Research, Vol. 8, No. 2-3.
Author: Johnson, P.
Title: Sex and the Developmentally Disabled Adult: A Comparison of Teaching Methods.
Date: 1981
Publisher/journal/link: British Journal of Mental Subnormality, Vol. 52.
Author: Kaeser, F.
Title: A Survey of the Perceptions of Twenty-three Service Providing Agencies on the
Sexual Behaviours of Persons with Severe or Profound Mental Retardation.
Date: 1996
Author: Kafer, A.
Title: Desire and Disgust: My Ambivalent Adventures in Devoteeism, in R. McRuer & A.
Mollow (eds) Sex and Disability, p. 331-354
Date: 2012
Author: Kaplan, C.
Date: 2006
Publisher/journal/link: Journal of Midwifery & Women's Health, 51(6), 450-456/
Author: Karellou, J.
Title: Development of the Greek Sexuality Attitudes Questionnaire–Learning Disabilities
(GSAQ-LD)
Date: 2003
Author: Karellou J.
Title: Laypeople’s attitudes towards the sexuality of people with learning disabilities in
Greece
Date: 2003
Publisher/journal/link: Sexuality and Disability 21(1), 65–84.
124
Author: Kato, M.
Title: Quality of offspring? Socio-cultural factors, pre-natal testing and reproductive
decision-making in Japan.
Date: 2010
Publisher/journal/link: Culture, Health & Sexuality, 12(2), 177–189.
Author: Katz, S., Shemesh, T. & Bizman, A.

Title: Attitudes of university students towards the sexuality of persons with mental
retardation and persons with paraplegia.
Date: 2000
Publisher/journal/link: The British Journal of Developmental Disabilities, 46(2), No. 91,
109-117.
Author: Keilty, J. & Connelly, G.

Title: Making a Statement: An Exploratory Study of Barriers Facing Women with an
Intellectual Disability when Making a Statement about Sexual Assault to Police.
Date: 2001
Author: Kennedy, C.H.

Title: Legal and Psychological Implications in the Assessment of Sexual Consent in the
Cognitively Impaired Population.
Date: 2003
Publisher/journal/link: Assessment, Vol. 10, No. 4, (Dec).
Author: Koller, H., Richardson, S.A. & Katz, M.

Title: Marriage in a Young Adult Mentally Retarded Population.
Date: 1988
Publisher/Journal/link: Journal of Mental Deficiency Research, Vol. 32.
Author: Large, J. & Thomas, C.

Title: Redesigning and evaluating an adapted sex offender treatment programme for
offenders with an intellectual disability in a secure setting: preliminary findings.
Date: 2011
Publisher/journal/link: Journal of Learning Disabilities and Offending Behaviour, 2(2), 72-
83.
Author: Lehrer, R.
Title: Golem Girl Gets Lucky, in R. McRuer & A. Mollow (eds) Sex and Disability, p.231-
255.
Date: 2012
Author: LeRoy, B.W., Walsh, P.N., Kulik, N. & Rooney, M.

Title: Retreat and Resilience: Life Experiences of older Women with Intellectual
Disabilities.
Date: 2004
Publisher/Journal/link: American Journal on Mental Retardation, Vol. 109, No. 5.
Author: Lesseliers, J.
Title: "A Right to Sexuality?"
125
Date: 1999
Author: Lesseliers, J. & Van Hove, G.

Title: Barriers to the Development of Intimate Relationships and the Expression of
Sexuality among People with Developmental Disabilities: Their Perceptions.
Date: 2002
No. 1.
Author: Leutar, Z. & Mihoković, M. (2007).

Title: Level of Knowledge about Sexuality of People with Mental Disabilities.
Date: 2007
Publisher/Journal/link: Sexuality & Disability, 25(3), 93-109.
Author: Lewis, A., Parsons, S. & Robertson, C.

Title: My School, My Family, My Life: Telling it Like it is. A Study Detailing the
Experiences of Disabled Children, Young People and their Families in Great Britain in
2006 - Executive Summary.
Date: 2007
Publisher/Journal/link: Great Britain: Disability Rights Commission (DRC).

Date: 1998
Publisher/journal/link: Journal of Intellectual Disability Research, Vol.42, No. 5
Author: Llewellyn, G., McConnell, D. & Bye, R.

Title: Perception of Service Needs by Parents with Intellectual Disability, their Significant
Others and their Service Workers.
Date: 1998
Author: Llewellyn, G., McConnell, D., Honey, A., Mayes, R. & Russo, D.
Title: Promoting Health and Home Safety for Children of Parents with Intellectual
Disability: a Randomised Controlled Trial.
Date: 2003
Publisher/Journal/link: Research in Developmental Disabilities, Vol. 24, No. 6, (Nov-
Dec).
Author: Lofgren-Martenson, L.
Title: The Invisibility of Young Homosexual Women and Men with Intellectual Disabilities.
Date: 2009
Publisher/Journal/link: Sexuality and Disability, 27, 21–26.
Author: Lyden, M.
Title: Assessment of Sexual Consent Capacity.
Date: 2007
Publisher/Journal/link: Sexuality & Disability, 25(1), 3-20.
126
Author: MacKinlay, L. & Langdon, P. E.
Title: Staff attributions towards men with intellectual disability who have a history of
sexual offending and challenging behaviour.
Date: 2009
Author: Markotic, R. & McRuer, N.

Title: Leading with Your Head: On the Borders of Disability, Sexuality, and the Nation, in
R. McRuer & A. Mollow (eds) Sex and Disability, p. 165-182.
Date: 2012
Author: Mason, L. & Cunningham, C.

Title: An exploration of issues around menstruation for women with Down Syndrome and
their carers.
Date: 2008
Publisher/journal/link: Journal of Applied Research in Intellectual Disabilities, 21, 257-
267.
Author: Marler, R. & Carroll-Williams, B.

Title: Groupwork on "Life Events and Sexuality": with Adults Living in a Mental Handicap
Hospital.
Date: 1989
Publisher/journal/link: Mental Handicap, Vol. 17, (September).
Author: Mattinson, A. & Mansour, D.

Title: Female Sterilisation: Is it what Women really Want?
Date: 2003
29. No.3.
Author: May, D.C. & Kundert, D.K.

Title: Are Special Educators Prepared to Meet the Sex Education Needs of their
Students? A Progress Report.
Date: 1996
Publisher/journal/link: Journal of Special Education, Vol. 29, No. 4.
Author: May, D. & Simpson, M.K.

Title: The Parent Trap: Marriage, Parenthood and Adulthood for People with Intellectual
Disabilities.
Date: 2003
Publisher/Journal/link: Critical Social Policy, Vol. 23, No. 1.
Author: McCabe, M.P., Cummins, R.A. & Deeks, A.A.

Title: Construction and Psychometric Properties of Sexuality Scales: Sex Knowledge,
Experience, and Needs Scales for People with Intellectual Disabilities (SexKen-ID),
People with Physical Disabilities (SexKen-PD), and the General Population (SexKen-
GP).
Date: 1999
Publisher/journal/link: Research In Developmental Disabilities, Vol. 20, No. 4, (Jul-Aug).
127
Title: Responses to Women with Learning Disabilities as they Go through the
Menopause.
Date: 2002
Publisher/journal/link: Tizard Learning Disability Review, Vol. 7, No. 1, (January).
Date: 1999
Title: Whose Body Is It Anyway? Pressures and Control for Women with Learning
Disabilities.
Date: 1998
Title: The Sexual Support Needs of People with Learning Disabilities: A Profile of Those
Referred for Sex Education.
Date: 1996
Title: Sexual Experiences of Women with Learning Difficulties in Long-stay Hospitals.
Date: 1993
Author: McCarthy, M. & Thompson, D

Title: A Prevalence Study of Sexual Abuse of Adults with Intellectual Disabilities referred
for Sex Education.
Date: 1997
Publisher/journal/link: Journal of Applied Research in Intellectual Disability, Vol. 10, No.
2.
Author: McConnell, D., Llewellyn, G., Mayes, R., Russo, D. & Honey, A.
Title: Developmental Profiles of Children Born to Mothers with Intellectual Disability.
Date: 2003
Publisher/journal/link: Journal of Intellectual & Developmental Disability, Vol. 28, No. 2,
(Jun).
Author: McDermott, S., Martin, M., Weinrich, M. & Kelly, M.

Title: Program Evaluation of a Sex Education Curriculum for Women with Mental
Retardation.
Date: 1999
Publisher/journal/link: Research in Developmental Disabilities, Vol. 20, No. 2.
Author: McDonagh, P.
Title: Diminished men and dangerous women: representations of gender and learning
disability in early- and mid-nineteenth-century Britain.
Date: 2000
128
Publisher/journal/link: British Journal of Learning Disabilities, 28, 49-53.
Author: McGaw, S., Ball, K. & Clark, A.

Title: The Effect of Group Intervention on the Relationships of Parents with Intellectual
Disabilities.
Date: 2002
No. 4.
Author: McGillivray, J.A.

Title: Level of Knowledge and Risk of Contracting HIV/AIDS amongst Young Adults with
Mild/Moderate Intellectual Disability.
Date: 1999
No. 2.
Author: McLaughlin, Dr. J.

Title: Screening Networks: Shared Agendas in Feminist and Disability Movement -
Challenges to Antenatal Screening and Abortion.
Date:
Publisher/Journal/link: Newcastle upon Tyne, UK: University of Newcastle.
Author: McRuer, R. & Mollow, A. (eds)

Title: Sex and Disability
Date: 2012
Author: Melberg Schwier, K.

Title: Couples with intellectual disabilities talk about living and loving.
Date: 1994
Publisher/journal/link: Rockville: Woodbine House.
Author: Milligan, M.S. & Neufeldt, A.H.

Title: The Myth of Asexuality: A Survey of Social and Empirical Evidence.
Date: 2001
Author: Mitchell, L., Doctor, R. & Butler, D.

Title: Attitudes of Caretakers toward the Sexual Behaviour of Mentally Retarded
Persons.
Date: 1978
Publisher/journal/link: American Journal of Mental Deficiency, Vol. 83.
Author: Mollow, A.
Title: Is Sex Disability? Queer Theory and the Disability Drive, in R. McRuer & A. Mollow
(eds) Sex and Disability, p. 285-312
Date: 2012
Author: Morales Morales, G.E., Lopez Ramirez, E.O., Esterle, M., Munoz Sastre, M.T. &
Mullet, E.
129
Title: Judging the acceptability of sexual intercourse among people with learning
disabilities: a Mexico-France comparison.
Date: 2010
Publisher/journal/link: Sexuality and Disability 28, 81–91.
Author: Morales, G.E., Lopez, E.O. & Mullet, E.

Title: Acceptability of sexual relationships among people with learning disabilities: family
and professional caregivers’ views in Mexico.
Date: 2011
Publisher/journal/link: Sexuality and Disability 29, 165-174.
Author: Morris, J. (2004).

Title: Disabled Parents and schools: barriers to parental involvement in children's
education
Date: 2004
Publisher/journal/link: Joseph Rowntree Foundation See:
http://inclusivechoice.com/files/disabled_parents_and_schools_-
_barriers_to_parenta.pdf
Author: Neville-Jan, A.
Title: Selling Your Soul to the Devil: An Autoethnography of Pain, Pleasure and the
Quest for a Child.
Date: 2004
Author: Nosek, M.A.

Title: National Study of Women with Physical Disabilities - Final Report.
Date:
Publisher/journal/link: Texas, USA: Baylor College of Medicine/CROWD.
Author: O’Connell, R
Title: "That Cruel Spectacle": The Extraordinary Body Eroticized in Lucas Malet's The
History of Sir Richard Calmady, in R. McRuer & A. Mollow (eds) Sex and Disability, p.
108-122.
Date: 2012
Author: O'Hara, J. & Martin, H.

Title: Parents with Learning Disabilities: A Study of Gender and Cultural Perspectives in
East London.
Date: 2003
Publisher/Journal/link: British Journal of Learning Disabilities, Vol. 31, No. 1.
Author: Oliver, M.N., Anthony, A., Leimkuhl, T.T. & Skillman, G.D.
Title: Attitudes toward acceptable socio-sexual behaviours for persons with mental
retardation: Implications for normalization and community integration.
Date: 2002
Publisher/journal/link: Education and Training in Mental Retardation and Developmental
Disabilities, 37(2), 193-201.
Author: Olsen, R. & Wates, M.
130
Title: Disabled Parents: Examining Research Assumptions. Research in Practice -
Publications; Research Reviews.
Date: 2003
Publisher/Journal/link: United Kingdom: Research in Practice.
Author: O'Toole, C.J.

Title: Sex, Disability and Motherhood: Access to Sexuality for Disabled Mothers.
Date: 2002
Publisher/Journal/link: Disability
Author: Paransky, O.J. & Zurawin, R.K.

Title: Surgical Challenges - Management of Menstrual Problems and Contraception in
Adolescents with Mental Retardation: A Medical, Legal, and Ethical Review of New
Suggested Guidelines.
Date: 2003
Publisher/Journal/link: Journal of Paediatric Adolescent Gynaecology, Vol. 16.
Author: Parello, N.
Title: In their own words: Couples tell their stories. In L. Walker-Hirsch, (ed). The Facts
of Life…and More: Sexuality and Intimacy for People with Intellectual Disabilities.
Date: 2007
Author: Parley, F.F.

Title: What does vulnerability mean?
Date: 2010
Publisher/journal/link: British Journal of Learning Disabilities, 39, 266-276.
Author: Passer, A., Rauh, J., Chamberlain, A., McGrath, M. & Burket, R.
Title: Issues in Fertility Control for Mentally Retarded Female Adolescents: II. Parental
Attitudes toward Sterilization.
Date: 1984
Publisher/journal/link: Paediatrics, Vol. 73.
Author: Patterson-Keels, L., Quint, E., Brown, D., Larson, D. & Elkins, T. E.
Title: Family Views on Sterilization for their Mentally Retarded Children.
Date: 1999
Publisher/journal/link: Journal of Reproductive Medicine, Vol. 39
Title: Parenting with Intellectual Disability in Germany: Results of a New Nationwide
Study.
Date: 2008
319.
Title: Parents with Intellectual Disability in Germany: Results of a Nation-wide Study.
Date: 1998
No. 4.
131
Title: Follow Up Study on Parenting with Intellectual Disability in Germany.
Date: 1999
Author: Pueschel, S.M. & Scola, P.S.

Title: Parents’ Perceptions of Social and Sexual Functions in Adolescents with Down
Syndrome.
Date: 1988
Publisher/journal/link: Journal of Mental Deficiency Research, Vol. 32.
Author: Rauh J. L., Dine M. S., Biro F. M. & Rauh T. D.

Title: Sterilization for the Mentally Retarded Adolescent.
Date: 1989
Publisher/journal/link: Journal of Adolescent Health Care, Vol. 10.
Author: Rodgers, J.
Title: Pain, Shame, Blood, and Doctors: How Women with Learning Difficulties
Experience Menstruation.
Date: 2001
Publisher/journal/link: Women’s Studies International Forum, Vol. 24, No. 5.
Author: Rogers, C.
Date: 2009
Author: Rogers, C.
people.
Date: 2010
Author: Rohleder, P. & Swartz, L. (2009).

Title: Providing sex education to persons with learning disabilities in the era of HIV/AIDS:
Tensions between discourses of human rights and restriction.
Date: 2009
Publisher/journal/link: Journal of Health Psychology, 14(4), 601-610.
Author: Rose, J. & Holmes, S

Title: Changing Staff Attitudes to the Sexuality of People with Mental Handicaps: An
Evaluative Comparison of 1 and 3 Day Workshops.
Date: 1991
Author: Rousso, A.
Title: Sterilization of the Mentally Retarded.
Date: 1984
Publisher/journal/link: Medical Law, Vol. 3.
132
Author: Sabaugh, G. & Edgerton, R. B.
Title: Sterilized Mental Defectives Look at Eugenic Sterilization.
Date: 1962
Publisher/journal/link: Eugenics Quarterly, Vol. 9.
Author: Salerno, L.J., Park, J.K., Giannini, H.J.

Title: Reproductive Capacity of the Mentally Retarded.
Date: 1975
Publisher/journal/link: Journal of Reproductive Medicine, Vol. 14, No. 3.
Author: Sajith, S.G., Morgan, C. & Clarke, D.

Title: Pharmacological management of inappropriate sexual behaviours: a review of its
evidence, rationale and scope in relation to men with intellectual disabilities.
Date: 2008
Author: Saltonstall, B.
Title: Mothers raising daughters with cognitive delay: reflections on menarche and
menstruation.
Date: 2007
Publisher/journal/link: Women's Health and Urban Life, 6(1), 41-59.
Author: Sanders, T.
Title: Sexual citizenship, sexual facilitation and the right to pleasure. In R. Shuttleworth &
Date: 2010
Author: Sanders, T.
Title: The Politics of Sexual Citizenship: Commercial Sex and Disability.
Date: 2007
Publisher/journal/link: Disability & Society, 22(5), 439 – 455.
Author: Scior, K.
Title: Using Discourse Analysis to Study the Experiences of Women with Learning
Disabilities.
Date: 2003
Author: Scotti, J.R., Slack, B.S., Bowman, R.A. & Morris, T.L.
Title: College student attitudes concerning the sexuality of persons with mental
retardation: development of the perceptions of sexuality scale.
Date: 1996
Publisher/journal/link: Sexuality and Disability, 14(4), 249-263.
Author: Senker J.
Title: Gender, Race, and Sexual Behaviour: Issues in Service Responses to HIV/AIDS.
Date: 1997
133
Author: Serlin, D.
Title: Touching Histories: Personality, Disability, and Sex in the 1930s, in R. McRuer &
Date: 2012
Author: Servais, L.
Title: Sexual Health Care in Persons with Intellectual Disabilities.
Date: 2006
Publisher/journal/link: Mental Retardation and Developmental Disabilities (MRDD)
Research Reviews, Vol. 12.
Author: Servais, L., Jacques, D., Leach, R., Conod, L., Hoyois, P., Dan, B. & Roussaux,
J.P.
Title: Contraception of Women with Intellectual Disability: Prevalence and Determinants
Date: 2002
Publisher/journal/link: Journal of Intellectual Disability Research, Vol. 46, Part 2, (Feb).
Author: Servais, L., Leach, R., Jacques, D. & Roussaux, J.P.

Title: Sterilisation of Intellectually Disabled Women.
Date: 2004
Publisher/journal/link: European Psychiatry, Vol. 19.
Title: "I haven’t Seen that in the Kama Sutra": The Sexual Stories of Disabled People. In
Weeks, J., Holland, J. and Waites, M., (Eds.), Sexuality and Society: A Reader
Date: 2003
Title: Disabled Sexuality: Towards Rights and Recognition.
Date: 2000

Date: 1996
Author: Sheldon, A.
Title: Personal and Perplexing: Feminist Disability Politics Evaluated.
Date: 1999
Author: Sherry, M.
Title: Overlaps and Contradictions between Queer Theory and Disability Studies.
Date: 2004
Author: Shet, S. & Malpani, A.
134
Title: Vaginal Hysterectomy for the Management of the Menstruation in Mentally
Retarded Women.
Date: 1991
Publisher/journal/link: International Journal of Gynecological Obstetrics, Vol. 35.
Title: Dangerous Discourses: Anxiety, Desire, and Disability.
Date: 2007
Publisher/journal/link: Studies in Gender and Sexuality, 8(3), 221-244
Title: Contested pleasures: The sociopolitical economy of disability and sexuality.
Date: 2007
Publisher/journal/link: Sexuality Research and Social Policy: Journal of NSRC, 4(1), 53-
66
Title: Dangerous Discourses: Subjectivity, Sexuality and Disability
Date: 2009
Publisher/journal/link: UK: Palgrave Macmillan.

Title: The Search for Sexual Intimacy for Men with Cerebral Palsy
Date: 2000

Title: The Pursuit of Sexual Intimacy for Men with Cerebral Palsy.
Date: 2000
Publisher/journal/link: University of California, San Francisco and Berkeley: Unpublished
dissertation, medical anthropology.

Title: The Case for a Focus on Sexual Access in a Critical Approach to Disability and
Sexuality Research.
Date: 2003
Publisher/journal/link: Paper Presented at the 1st Annual Disability Studies Association
Conference, Lancaster, England.

Title: Disability and Sexuality: From Medical Model to Sexual Rights. In Herdt, G. &
Howe, C., (Eds.), 21st Century Sexualities: Contemporary Issues in Health, Education
and Rights.
Date: 2007

Title: Disability and Sexuality: Toward a Constructionist Focus on Access and the
Inclusion of Disabled People in the Sexual Rights Movement. In Teunis N. & Herdt, G.,
(Eds.), Sexual Inequalities and Social Justice.
Date: 2007
135
Publisher/journal/link: Berkeley & L.A., USA: University of California Press.
Author: Shuttleworth, R.
Title: Towards an inclusive sexuality and disability research agenda. In R. Shuttleworth
& T. Sanders (eds), Sex and Disability: Politics, Identity and Access.
Date: 2010
Author: Shuttleworth, R.
Title: Bridging Theory and Experience: A Critical-Interpretive Ethnography of Sexuality
and Disability, in R. McRuer & A. Mollow (eds) Sex and Disability, p. 54-68.
Date: 2012
Author: Shuttleworth, R. & Sanders, T.

Title: Sex and Disability: Politics, Identity and Access.
Date: 2010
Author: Siebelink, E.M., de Jong, M.D.T. & Roelvink, L.

Title: Sexuality and People with Intellectual Disabilities: Assessment of Knowledge,
Attitudes, Experiences, and Needs.
Date: 2006
Publisher/journal/link: Mental Retardation, Vol. 44, No. 4.
Author: Siebers, T.
Title: A Sexual Culture for Disabled People, in R. McRuer & A. Mollow (eds) Sex and
Disability, p 37-53.
Date: 2012

Northern Ireland
Date: 2006
Author: Skinner, R., Joiner, C., Chesters, L., Bates, L., Scrivener, L.
Title: Demystifying the process? A multi disciplinary approach to assessing capacity for
adults with a learning disability.
Date: 2010
Author: Skov, A. & Henningsen, U.

Title: Parents with learning disabilities - a survey of 28 local authorities.
Date: 2002?
www.servicestyrelsen.dk/filer/udgivelser/handicap/english.../5000.pdf
136
Author: Squire, J.
Title: Sex Education for Pupils with Severe Learning Difficulties: A Survey of Parent and
Staff Attitudes.
Date: 1989
Publisher/journal/link: Mental Handicap, Vol. 17.
Author: Stansfield, J.
Title: Parents with learning disabilities and speech and language therapy. A service
evaluation of referrals and episodes of care.
Date: 2011
Author: Stansfield, A.J., Holland, A.J. & Clare, I.C.H.

Title: The sterilisation of people with intellectual disabilities in England and Wales during
the period 1988 to 1999.
Date: 2007
Publisher/journal/link: Journal of Intellectual Disability Research, 51(8), 569-579.
Author: Starke, M.
Title: Supporting families with parents with intellectual disability: views and experiences
of professionals in the field.
Date: 2011
Publisher/journal/link: Journal of Policy and Practice in Intellectual Disabilities, 8(3),
163–171.
Author: Stevens, B.
Title: Crip sexuality: sk(r)ewed media representation. In R. Shuttleworth & T. Sanders
(eds), Sex and Disability: Politics, Identity and Access.
Date: 2010
Author: Sumarah, J., Maksym, D. & Goudge, J.

Title: The Effects of Staff Training Program on Attitudes and Knowledge of Staff toward
the Sexuality of Persons with Intellectual Handicaps.
Date: 1988
Publisher/journal/link: Canadian Journal of Rehabilitation, Vol. 1, No. 3.
Author: Swango-Wilson, A.
Title: Caregiver Perception of Sexual Behaviours of Individuals with Intellectual
Disabilities.
Date: 2008
Publisher/journal/link: Sexuality and Disability, 26, 75–81.
Title: Caregiver Perceptions and Implications for Sex Education for Individuals with
Intellectual and Developmental Disabilities.
Date: 2008
Publisher/journal/link: Sexuality and Disability, 26,167–174.
137
Title: Meaningful Sex Education Programs for Individuals with Intellectual/Developmental
Disabilities.
Date: 2011
Publisher/journal/link: Sexuality and Disability, 29, 113–118.
Title: Perception of sex education for individuals with Developmental and cognitive
disability: a four cohort study.
Date: 2009
Publisher/journal/link: Sexuality & Disability, 27, 223-228.
Author: Talbot, T.J. & Langdon, P.E.

Title: A Revised Sexual Knowledge Assessment Tool for People with Intellectual
Disabilities: Is Sexual Knowledge Related to Sexual Offending Behaviour?
Date: 2006
Publisher/journal/link: Journal of Intellectual Disability Research.
Author: Tang, C.S.K. & Lee, Y.K.S.

Title: Knowledge on Sexual Abuse and Self-protection Skills: A Study on Female
Chinese Adolescents with Mild Mental Retardation.
Date: 1999
Publisher/journal/link: Child Abuse & Neglect, Vol. 23, No. 3.
Author: Thomas, G. & Sternfert Kroese, B.

Title: An Investigation of Students’ with Mild Learning Disabilities Reactions to
Participating in Sexuality Research
Date: 2005
Author: Tymchuk, A., Andron, L. & Unger, O.

Title: Parents with Mental Handicaps and Adequate Childcare - A Review.
Date: 1987
Publisher/Journal/link: Mental Handicap, Vol. 15.
Author: Van Der Merwe, J.V. & Roux, J. P.

Title: Sterilization of Mentally Retarded Persons.
Date: 1987
Publisher/journal/link: Obstetrics and Gynaecological Survey, Vol. 42.
Author: van Schrojenstein Lantman-de Valk, H.M.J., Rook, F. & Maaskant, M.A.
Title: The use of contraception by women with intellectual disabilities.
Date: 2011
Author: Wade, C. M., Mildon, R.L. & Matthews, J.M.

Title Service Delivery to Parents with an Intellectual Disability: Family-centred or
Professionally Centred?
Date: 2007
138
Author: Wade, H.A.

Title: Discrimination, Sexuality and People with Significant Disabilities: Issues of
Access and the Right to Sexual Expression in the United States.
Date: 2002
Publisher/journal/link: Disability Studies Quarterly, Vol. 22, No. 4.
Author: Walmsley, J.
Title: Women and the Mental Deficiency Act of 1913: Citizenship, Sexuality and
Regulation.
Date: 2000
Author: Weiber, I. Berglund, J., Tengland, P.-A. & Eklund, M.

Title: Children born to women with intellectual disabilities –5-year incidence in a Swedish
county.
Date: 2011
Publisher/journal/link: Journal of Intellectual Disability Research. Early view?
Author: Wheeless, C. R.
Title: Abdominal Hysterectomy for Surgical Sterilization in the Mentally Retarded: a
Review of Parental Opinion.
Date: 1975
Publisher/journal/link: American Journal of Obstetrics and Gynaecology, Vol. 122.
Author: Whitcraft ,C. J. & Jones, J. P. A.

Title: Survey of Attitudes about Sterilization of the Retarded.
Date: 1974
Author: Wiener, D., Ribeiro, R. & Warner, K.

Title: Mentalism, disability rights and modern eugenics in a ‘brave new world’.
Date: 2009
Publisher/journal/link: Disability & Society, 24(5), 599–610.
Author: Wilkenfeld, B.F. & Ballan, M.S.

Title: Educators’ Attitudes and Beliefs Towards the Sexuality of Individuals with
Developmental Disabilities.
Date: 2011
Publisher/journal/link: Sexuality & Disability: Early view?
Author: Wilkerson, A.L.

Title: Normate Sex and Its Discontents, in R. McRuer & A. Mollow (eds) Sex and
Disability, p. 183-207.
Date: 2012
Author: Willems, D.L., de Vries, J.-N., Isarin, J. & Reinders, J.S.

Title: Parenting by Persons with Intellectual Disability: An Explorative Study in the
Netherlands.
139
Date: 2007
Author: Willis, D.S., Kennedy, C.M. & Kilbride, L.

Title: Breast cancer screening in women with learning disabilities: current knowledge
and considerations.
Date: 2008
Author: Willner, P. & Smith, M.

Title: Can attribution theory explain carers’ propensity to help men with intellectual
disabilities who display inappropriate sexual behaviour?
Date: 2008
Author: Willner, P., Jenkins, R., Rees, P., Griffiths, V.J. & John, E.
Title: Knowledge of mental capacity issues in community teams for adults with learning
disabilities.
Date: 2011
171.
Author: Wilson, N.J., Cumella, S., Parmenter, T.R., Stancliffe, R.J., Shuttleworth, R.P.
Title: Penile hygiene: puberty, paraphimosis and personal care for men and boys with an
Date: 2009
Date: 2011
Author: Withers, P., Ensum, I., Howarth, Krall, P., Thomas, D., Weekes, D., Winter, C.,
Mulholland, A., Dindjer, T., Mulholland, A., Dindjer, T. & Hall, J.
Title: A Psychoeducational Group for Men with Intellectual Disabilities Who Have Sex
with Men.
Date: 2001
Author: Wood, R. & Douglas, M.

Title: Cervical Screening for Women with Learning Disability: Current Practice and
Attitudes within Primary Care in Edinburgh.
Date: 2007
Publisher/journal/link: British Journal of Learning Disability, Vol. 35.
Author: Wotten, R. & Isbister, S.

Title: A sex worker perspective on working with clients with a disability and the
development of Touching Base Inc. In R. Shuttleworth & T. Sanders (eds), Sex and
Disability: Politics, Identity and Access.
140
Date: 2010
Author: Wylie, S. D. & Pranger, C.

Title: A Psychopharmacological Treatment Regimen for Hypersexual Behavior: A Case
Study of Kluver-Bucy Type Symptomatology
Date: 2004
Publisher/journal/link: Mental Health Aspects of Developmental Disabilities, 7(1), 1-9.
Author: Yacoub, E. & Hall, I. (2008).

Title: The sexual lives of men with a mild learning disability: a qualitative study.
Date: 2008
Publisher/journal/link: British Journal Learning Disability, 37, 5-11.
Author: Young, S., Young, B. & Ford, D.

Title: Parents with a Learning Disability: Research Issues and Informed Practice.
Date: 1997
Author: Yool, L., Langdon, P.E. & Garner, K.

Title: The Attitudes of Medium-secure Unit Staff Toward the Sexuality of Adults with
Date: 2003
Publisher/journal/link: Sexuality and Disability, Vol. 21, No. 2 (Summer).
141
Research with People with Extra Support Needs –Considerations
Regarding Inclusive Methodologies, Ethics and Consent
Author: Antaki, C., Young, N., & Finlay, M.

Title: Shaping Client's Answers: Departures from Neutrality in Care-staff Interviews with
People with Learning Disability.
Date: 2002
Publisher/journal/link: Disability & Society, Vol. 17.
Author: Arscott K., Dagnan D. & Stenfert Kroese B.

Title: Consent to Psychological Research by People with Intellectual Disability.
Date: 1998
Author: Atkinson, D.
Title: Research and Empowerment: Involving People with Learning Difficulties in Oral
and Life History Research.
Date: 2004
Publisher/journal/link: Disability and Society, Vol. 19, No. 7.
Author: Atkinson, D. & Walmsley, J.

Title: Using Autobiographical Approaches with People with Learning Difficulties.
Date: 1999
Author: Barr, O., McConkey, R. & McConaghie, J.

Title: Views of People with Learning Difficulties about Current and Future
Accommodation: The Use of Focus Groups to Promote Discussion
Date: 2003
Author: Bell, D.M. & Cameron, L.

Title: From Dare I Say…? To I dare say: A Case Example Illustrating the Extension of
the Use of Talking Mats to People with Learning Disabilities who are Able to Speak well
but Unwilling to Do so.
Date: 2007
142
Author: Booth, T.
Title: Sounds of Still Voices: Issues in the Use of Narrative Methods with People who
have Learning Difficulties. In L. Barton, (Ed.), Disability and Society: Emerging Issues
and Insights.
Date: 1996
Publisher/journal/link: London & New York: Longman.

Title: Sounds of Silence: Narrative Research with Inarticulate Subjects.
Date: 1996
Author: Bowler, I.
Title: Problems with Interviewing: Experiences with Service Providers and Children. In
G. Miller and R. Dingwell, (Eds.), Context and Method in Qualitative Research (pp. 66-
76).
Date: 1997
Publisher/journal/link: Thousand Oaks, CA: Sage Publications.
Author: Cambridge, P. & McCarthy, M.

Title: User Focus Groups and Best Value in Services for People with Learning
Disabilities.
Date: 2001
Publisher/journal/link: Health and Social Care in the Community, Vol. 9
Author: Cameron L., Watson J. & Murphy, J.

Title: Talking Mats: A Focus Group Tool for People with Learning Disability.
Date: 2004
Publisher/journal/link: Communication Matters, Vol. 18, No. 1.
Author: Cameron, L. & Murphy, J.

Title: Obtaining Consent to Participate in Research: The Issues Involved in Including
People with a Range of Learning and Communication Disabilities.
Date: 2006
Author: Clements, J., Rapley, M., & Cummins, R.

Title: On, to, for, with Vulnerable People and the Practices of the Research Community.
Date: 1999
Publisher/journal/link: Behaviour and Cognitive Psychotherapy, Vol. 27.
Author: Dalton, A.J. & McVilly, K.R.

Title: Ethics Guidelines for International, Multicenter Research involving People with
Date: 2004
Publisher/journal/link: Journal of Policy and Practice in Intellectual Disabilities, Vol. 1,
No. 2.
Author: Dattilo, J., Hoge, G., & Malley, S.
143
Title: Interviewing People with Mental Retardation: Validity and Reliability Strategies.
Date: 1996
Publisher/journal/link: Therapeutic Recreation Journal, Vol. 30.
Author: Dye, L., Hare, J. & Hendy, S.

Title: Capacity of People with Intellectual Disabilities to Consent to Take Part in a
Research Study.
Date: 2007
Author: Elderidge, P.
Title: Ethics and Research involving People with Learning Disabilities. In A. Markwick &
A. Parrish’s, (Eds.), Learning Disabilities: Themes and Perspectives.
Date: 2003
Publisher/journal/link: UK: Butterworth-Heinemann. Lecky: LEN 362.3 P3;1.
Author: Emerson, E., Hatton, C., Thompson, T. & Parmenter, T.R.

Title: The International Handbook of Applied Research in Intellectual Disabilities.
Date: 2004
Publisher/journal/link: USA: John Wiley & Sons Inc.
Author: Finlay, W., & Lyons, E.

Title: Acquiescence in Interviews with People who have Mental Retardation.
Date: 2002
Author: Finlay, W.M.L. & Lyons, E.

Title: Methodological Issues in Interviewing and Using Self-Report Questionnaires with
People with Mental Retardation.
Date: 2001
Publisher/journal/link: Psychological Assessment, Vol. 13, No. 3.
Author: Fraser, M. & Fraser, A.

Title: Are People with Learning Disabilities Able to Contribute to Focus Groups on Health
Promotion?
Date: 2001
Publisher/journal/link: Journal of Advanced Nursing, Vol. 33, No. 2.
Author: Gilbert, T.
Title: Involving People with Learning Disabilities in Research: Issues and Possibilities.
Date: 2004
Publisher/journal/link: Health & Social Care in the Community, Vol. 12, No. 4.
Author: Goodley, D., Lawthom, R., Clough P. & Moore, M.

Title: Researching Life Stories: Method, Theory and Analyses in a Biographical Age.
Date: 2004
Publisher/journal/link: London: Routledge Falmer.
Author: Heal, L. & Sigelman, C.

Title: Response Biases in Interviews of Individuals with Limited Mental Ability.
Date: 1995
144
Publisher/journal/link: Journal of Intellectual Disability Research, Vol. 39.
Author: Iacono, T. & Murray, V.

Title: Issues of Informed Consent in Conducting Medical Research Involving People with
Date: 2003
Author: Information for All.

Title: Plain Facts: Our Lives, Our Research.
Date: 2004
Publisher/journal/link: Birthday Issue, (41 & 42), December.
Author: Knox, M., Mok, M. & Parmenter, T.R.

Title: Working with the Experts: Collaborative Research with People with an Intellectual
Disability.
Date: 2000
Title: Interviewing People with Learning Disabilities about Sensitive Topics: A Discussion
of Ethical Issues.
Date: 1998
Author: McVilly, K.
Title: Interviewing People with a Learning Disability about their Residential Service.
Date: 1995
Author: Mercer, G.
Title: From Critique to Practice: Emancipatory Disability Research. In Barnes, C. &
Mercer, G. (Eds.), Implementing the Social Model of Disability: Theory and Research.
Date: 2004
Author: Moore, M. & Armstrong, F. (Eds.).

Title: Action Research for Inclusive Education: Changing Places, Changing Practices,
Changing Minds.
Date: 2004
Publisher/journal/link: London: Routledge Falmer.
Author: Murphy, J. & Cameron, L.

Title: Talking Mats and Learning Disability.
Date: 2001
Publisher/journal/link: University of Stirling, A.A.C. Research Unit.
Author: Perry, J.
Title: Interviewing People with Intellectual Disabilities. In Emerson, E., Hatton, C.,
Thompson, T. & Parmenter, T.R. (Eds.). The International Handbook of Applied
Research in Intellectual Disabilities.
145
Date: 2004
Publisher/journal/link: USA: John Wiley & Sons Inc. Folder: Research Methodology.
Author: Rapley, M., & Antaki, C.

Title: A Conversation Analysis of the 'Acquiescence' of People with Learning Disabilities.
Date: 1996
Publisher/journal/link: Journal of Community and Applied Psychology, Vol. 6.
Author: Scior, K.
Title: Using Discourse Analysis to Study the Experiences of Women with Learning
Disabilities.
Date: 2003
Author: Sigelman, C., Spanhel, C., & Schoenrock, C.

Title: When In Doubt, Say 'Yes': Acquiescence in Interviews with Mentally Retarded
Persons.
Date: 1981
Author: Walmsley, J. & Johnson, K.

Title: Inclusive Research with People with Learning Disabilities: Past, Present and
Futures.
Date: 2003
Publisher/journal/link: London & Philadelphia: Jessica Kingsley Publishers.
Author: Whyte, J.
Title: Research with Children with Disabilities: A Review of Practical and Ethical Issues.
Presented at an NDA Seminar: Developing Guidelines for Best Practice in Research
with Disabled Children.
Date: 2003
Publisher/journal/link: NDA, Dublin. September, 2003.
Author: Wyngaarden, M.
Title: Interviewing Mentally Retarded Persons: Issues and Strategies. In R. Bruininks, C.
Meyer, B. Sigford and K. Lakin (Eds.), (No Suggestions) and Community Adjustment of
Mentally Retarded People (AAMD Monograph No. 4).
Date: 1981
Publisher/journal/link: New York: AAMD.
146
This resource was written by the Connect People Network,
with funding from the Community Foundation for Ireland.
© Connect People Network
147

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For more information, please look at our website – www.connectpeoplenetwork.com.

Enjoy your reading! ☺

Grace Kelly, Lorraine Hone, Zoe Hughes and Adrianne Pullen

Images used in this data come, with thanks, from: Photosymbols®

Inclusion Ireland is a national voluntary organisation working to promote the rights of

The National Federation of Voluntary Bodies Providing Services to People with

National Institute for Intellectual Disability

Sexual Health Resource Library, Health Service Executive South.

The British Institute of Learning Disabilities is a UK charity organisation working to

Disabled Parents Network (DPN) is a British national organisation which aims to

Family Planning Association is a sexual health charity which provides straightforward

Norfolk Disabled Parents Alliance is an information network run by disabled parents in

Supporting Parents Advocacy Network (SPAN)

Working Together with Parents Network

Author: Evans, A. & Rodgers, M.E.

Author: McCarthy, M. & Thompson, D. (Eds)

Author: McRuer, R. & Mollow, A. (eds)

Author: Rohleder, P. & Swartz, L.

Author: Shakespeare, T., Gillespie-Sells, K. & Davies, D

Author: Shuttleworth, R.P. & Sanders, T.

Author: Simpson, A., Lafferty, A. & McConkey, R.

Author: Walker-Hirsch, L. (ed)

Author: Abbott, D. & Howarth, J.

Author: Abbott, D. & Howarth, J.

Author: Abbott, D., Howarth, J. & Gyde, K.

Author: British Institute of Learning Disabilities (BILD )

Author: British Institute of Learning Disabilities (BILD).

Author: Brown, H. & Stein, J. (Eds.).

Author: Client's Page.

Author: Dodd, K., Turk, V. & Christmas, M.

Author: Elfrida Society via Women’s Health

Author: Elfrida Society via Women’s Health

Author: Elfrida Society via Women’s Health

Author: Elfrida Society via Women’s Health

Author: Elfrida Society via Women’s Health

Author: Elfrida Society via Women’s Health

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: FAIR Multimedia

Author: Family Planning NSW

Author: Family Planning NSW

Author: Family Planning NSW

Author: Family Planning NSW (FPNSW)

Author: Hingsburger, D. & Haar, S.

Author: Hollins, S. & Downer, J.

Author: Hollins, S. & Perez, W.

Author: Hollins, S. & Roth, T.

Author: Hollins, S. & Sinason, V.

Author: Hollins, S. & Sinason, V.

Author: Hollins, S. & Terry, R.