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Parañaque National High School-Main

Towards Academic Excellence and Value Formation


Parañaque City

A Phenomenological Study of the Challenges and Coping

Strategies Faced by Parents of Children Aged 5 to15

With Learning Disabilities

A Qualitative Research Paper Presented to

The English Department of

Parañaque National High School-Main , Parañaque City

In Partial Fulfillment of the

Requirements for the Subjects

Practical Research 1 – Qualitative

Submitted By:

Grade 11 – HUMSS-Amorsolo

Valencia, Sophia Venshi S.

March 2020
A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents

of Children Aged 5 to 15With Learning Disabilities

Table of Contents
I. Acknowledgment……………………………………………………………………..i-ii

II. Chapter 1 – The Problem and its Setting…………………………………………….1 - 5

A, Introduction ……………………………………………………………….....1 - 2
B. Statement of the Problem ...…….…………………………………………… 3
C. Significance of the Study ...…….……………………………………………3
D. Conceptual Framework ...…….……………………………….…………...... 4 - 5
E. Definition of Terms ...…….…………………………………………………. 5

III. Chapter 2 – Review of Related Literature ...…….…………………………………6 - 19

A. Relationship of Parents and their Child with Learning Disabilities…………7 - 8

B.Challenges Faced by Parents of Children with Learning Disabilities………. 8 - 13

C. Coping Strategies Used by Parents of Children with Learning Disabilities…14 - 18


D. Synthesis and Justification of the Study…………………………………….. 18 - 19
IV. Chapter 3 – Methodology…………………………………………………………...20 - 25

A. Research Design………………………………………………………………20

B. Respondents and Sampling……………………………………………………20 - 22

C. Data Collection Technique…………………………………………………….22 - 24

D. Data Gathering Procedures…………………………………………………….25

E. Ethical Considerations…………………………………………………………25

V. Bibliography………………………………………………………………………...47 - 49

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents of Children

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Acknowledgement

First of all, we thank God for guiding us in creating our research and keeping us

motivated to finish our study. Surpassing all the challenges and hardships that we encountered,

we are able to accomplish our task with His guidance and presence.

We would also like to thank Paranaque National High School for making our study

possible. Without the Practical Research I subject, we would not be able to conduct a study that

would increase and enhance our knowledge about our topic, children with learning disabilities.

We would like to express our deepest gratitude to our respondents, the parents of children

with learning disabilities, for participating and cooperating throughout our study. Being able to

know their experiences and feelings is a great honor for us. Hearing their thoughts developed and

molded our perspectives, personalities and attitudes to the children with learning disabilities. We

were also able to know and realize the standpoint of parents of children with learning disabilities.

Without these parents, we would not be able to augment our wisdom and understanding about

the sacrifices and serious experiences of these parents.

We are also grateful for our thesis teacher, Mr. Gerfel O. Chan, for sharing his

knowledge in research through teaching. We also appreciate her sincere patience and endurance

as we write and put an end to our study. Giving her full attention and guidance serves as an

instrument for us to have an ingenious research and through her help, we achieved a satisfactory

result.

Our fervent gratitude goes to Mr. Jonel Joshua Rosales and Ms. TriciaLuna for being our

panel who recommended the possible changes that would improve our study. We acquired our

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents of Children

Aged 5 to 15With Learning Disabilities

expected revisions by their reminders and advices which we followed and gave our full trust in

order to have a better output.

Our solemn thanks would also go to Mr. Dean Nelson Mina and Ms. Eliz Nellas for

sacrificing their time to support and assist in our study. We also acknowledge their skills and

talent that helped us to gain more information and learning about research.

Lastly, we would also like to acknowledge ourselves for giving all of our time and effort

and the dedication of each member to complete our study. All the sleepless nights became

worthy and led to a trivial thing for we obtained a successful outcome.

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents

of Children Aged 5 to 15With Learning Disabilities

Chapter 1

The Problem and its Setting

A. Introduction

Parents of a mentally challenged child face a uniquely challenging lifestyle. Each parent

has a great role in the growth of their children. As the children pass through their developmental

stages, they look up to their parents for guidance or support in the things that they pursue. This

results to a very special bond or relationship that can only be found between parents and their

children. There are a number of factors that affect how parent-child relationships develop such as

the characteristics of children, the parenting style, as well as other external factors (Hall &

Tederera, 2017). These factors, when combined together, make up how a child turns out to be as

they mature and grow older.

Parents and children face a lot of challenges and difficulties in their relationship.

However, when the child requires special needs, more time and effort must be exerted. Children

who require special needs are those who struggle with comprehension to a greater extent than the

average child (Abosi, 2008). According to Hall and Tederera (2017), "Parenting children with

learning disabilities requires a high level of knowledge and access to resources, information and

services." When parents first find out about the condition of their child, there starts their journey

full of challenges, strong emotions, hard decisions, and constant trips to specialists.

There are several learning disabilities which lead to a variety of learning problems.

Simply put, children and adults with learning disabilities see, hear, and understand things

differently. This can lead to trouble with learning new information and skills, and putting them to

use (Kemp, Smith, & Segal, 2017). As stated by Kemp, Smith, and Segal (2017), learning

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents of Children

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disabilities can pertain to a number of different disorders and these are: dyslexia, dyscalculia,

dysgraphia, dyspraxia, dysphasia/aphasia, auditory processing disorder, and visual processing

disorder. Though not entirely learning disabilities, ADHD and autism spectrum disorders have

the ability to disrupt a child's learning potential.Similarly, developmental delays, specifically

global developmental delays, also impede the potential of a child to learn (Morin, 2016). Some

children are diagnosed with more than one learning disability thus requiring more needs because

of these disabilities.

It is important to remember that children with learning disabilitieshave a long-term

impact on their parents. Even parents,who appear to be strong and competent, experience a wide

range of emotions that maybe hard to understand unless a person has had similar experiences.

The data that have been gathered are from the parents' unique knowledge of their child and how

they value their experiences of managing their child's condition. These parents experience

challenges day by day. In this study, the researchers would explore the difficulties these parents

face and the coping strategies they used to overcome these difficulties.

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents of Children

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B. Statement of the Problem

In this research, the researchers aim to explore the challenges faced by parents of children

with learning disabilities and the coping strategies they used for them to overcome these

challenges.

In relation to this, this study aims to shed light to the following research questions:

1. What are the challenges faced by parents of childrenwith learning disabilities?

2. How do the parents of children with learning disabilitiescope with the challenges

that they face?

3. How do the parents of children with learning disabilitiesdescribe their overall

experience in taking care of their children?

C. Significance of the Study

To the parents of children with learning disabilities this study helps them to discover and

know other possible coping strategies for the different challenges that they encounter.

To the teachers who supervise children with learning disabilitieshis study helps them learn

and know how to handle these children as they interact with then in the school setting.

To STEM students, especially to those who are interested in choosing a career related to

Medicine, this study can be a guide on how they can handle children with learning disabilities.

To the future researchers, this study may serve as a motivation for future researchers to spread

awareness on the importance of this issue and to further conduct studies that dive deeper on this

specific topic.

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D. Conceptual Framework

In the study of the researchers, certain variables are required in order to be able to gather

the results or data needed by the study. In between these, the processes are done as the method of

analyzing the data collected. Figure 1 shows how the researchers are able to gather the needed

data.

Figure 1 – Paradigm of the Study

g Outputs
Inputs Processes

1. Profile of children 1. Description of the 1. Better


with learning profile of children understanding about
with learning
disabilities the challenges and
disabilities
coping strategies faced
1. Profile of parents 2. Description of
by parents who have
that have children with parents’ profile that
have childrenwith children with learning
learning disabilities
learning disabilities disabilities
2. Challenges of 3. Analysis of the
Parents experiences,
challenges and coping
strategies of parents
that have children with
learning disabilities.

In doing a research, variables are required. The inputs or independent variables of the

study are the profile of the parents and their children as well as their challenges. After using the

inputs to gather the needed data, processes are applied. Both profiles are described by the

researchers to be able to get a better understanding and the data collected are analyzed and

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interpreted. After the processes, the researchers are able to identify the results of their study

which are the outputs or dependent variables. A better understanding of the challenges and

coping strategies by parents of children with learning disabilities is essential to shed light to the

research questions of the study.

E. Definition of Terms

 Difficult – an objective point of view of the situations that cause hardships and problems

to the parents of children with learning disabilities; what’s difficult for one parent is

difficult for all of the parents.

 Challenging – a subjective point of view of the situations that cause hardships and

problems to the parents of children with learning disabilities; what’s challenging for one

parent may not be challenging to another parent.

 Coping Strategies – difficulties that have been surpassed by parents with children with

learning disabilities

 Learning Disability – a condition of a child that causes difficulties in acquiring

knowledge and skills.

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Chapter 2

Review of Related Literature

A learning disability is a neurological disorder. In simple terms, a learning disability

results from a difference in the way a person's brain is "wired." Children with learning

disabilities are smarter than their peers. But they may have difficulty reading, writing, spelling,

and reasoning, recalling and/or organizing information if left to figure things out by them or if

taught in conventional ways (Rosales, 2011).

A learning disability can't be cured or fixed; it is a lifelong issue. With the right support

and intervention, however, children with learning disabilities can succeed in school and go on to

successful, often distinguished careers later in life.

Parents can help children with learning disabilities achieve such success by encouraging

their strengths, knowing their weaknesses, understanding the educational system, working with

professionals and learning about strategies for dealing with specific difficulties. (Samson, 2008)

The learning disabilities have different effects to children. Attention-deficit/hyperactivity

disorder (ADHD) is a brain disorder marked by an ongoing pattern of inattention and/or

hyperactivity-impulsivity that interferes with functioning or development (“Attention Deficit

Hyperactivity Disorder,” 2016). As stated by Morin (2016), “A global developmental delay is

when kids have delays in at least two areas.Kids develop skills in five main areas of development

which are cognitive (or thinking) skills, social and emotional skills, speech and language skills,

fine and gross motor skills, and activities of daily living.” Autism spectrum disorder (ASD) is a

neurological and developmental disorder that begins early in childhood and lasts throughout a

person's life. It affects how a person acts and interacts with others, communicates, and learns. It

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includes what used to be known as Asperger syndrome and pervasive developmental

disorders(“Autism Spectrum Disorder,” 2017). These learning disabilities may be diagnosed in

one child. When such a situation happens, the effects are significantly worse than those with a

single learning disability. A child diagnosed with both autism and global developmental delay

experiences lag in areas of development as well as a different sense of interaction with others.

According to Martin and Colbert (2009), and Turnbull and Blacher-Dixon (2010), shock,

denial, anddisbelief are common reactions to the sudden or unexpected discovery that a child has

a disability. This painful process of loss often results in an emotional roller coaster where

feelings of anger, depression, denial, grief, guilt, physical distress, resentment, and sadness are

not uncommon (Gabel et al., 2008; Martin & Colbert, 2009; McCubbin et al., 2011).

Relationship of Parents and their Child with Learning Disabilities

Having a child with disability is a major event that negatively affects families, and force

families to re-evaluate its plans, goals, and relationships in light of restrictions and limitations

associated with the child’s disability, and the results are stress in parents, and their efficiency in

coping with these challenges. When parents learn that their child needs special needs, ‘they begin

a journey that takes them into a life that is often filled with strong emotions and difficult choices.

Flack (2009) mentions inherent difficulties in defining learning disabilities, but presents ‘learners

with special educational needs’ and what she describes as ‘the more in vogue, learners with

barriers to learning’ as possible definitions and a child who experience learning challenges

without presenting with obvious physical disabilities and who struggle with comprehension to a

greater extent than the average child (Abosi, 2008).

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Parents of children with special needs tend to be faced with a continuous barrage of

challenges from societal isolation, financial strain, difficulty finding resources to outright

exhaustion or feelings of confusion or burn out. Over time, if these circumstances are not

addressed and relief is not found a cognitive, sometimes, biological change may start to take

place. Having a special needs child brings with it many of the typical joys of parenting, but let’s

not trick ourselves into believing that there aren’t major drawbacks for the parents.

According to Skotko, Levine and Goldstein (2011), the majority of parents with children

diagnosed with Down Syndrome report that they are happy with their decision to indicate that

their son and daughters are great sources of love and pride. Those parents who did express regret

were more likely to have children with greater perceived health problemsand learning

difficulties. Nickels (2010), on the other hand, stated that special children are innocent, kind

persons, couldn’t be mean and it just make the parents hopeful.

Challenges Faced by Parents of Children with Learning Disabilities

To begin, there is no strict or clear definition of what it means for a child to have “special

needs.” Many people think of special needs as necessarily involving a serious or chronic medical

condition. When it comes to these parents, it is clear that the additional demands on parents of

chronically ill children cause stress that affects the whole family (Cousino et al., 2013).

However, chronic illnesses are not the only type of special needs that children have. According

to Gallagher and Whiteley (2012), levels of stress in parents of children with disabilities are

determined by: 1. Characteristics of the child with disability which include type and/or severe of

disability, child’s independency, age, and visibility of disability. 2. Parents and family

characteristics such as social-economical level, personality traits, past experiences, age,

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education, career, income level, perceptions about disability, and beliefs about ability to affect

the development of child. 3. Family structure such as demographic characteristics such as rank of

the child with disability, siblings, and the presence of other disabilities in family. 4. Social

factors such as attitudes in society toward disability, and availability of services to individuals

with disability.

Despite the fact that both parents showed high levels of stress, Wang, Michaels, and Day

(2011) indicated in their study that mothers of children with disabilities showed higher levels of

stress when compared to fathers, as mothers are primary care giver of the child. Parents, in

return, might provide care and their efforts act as supportive role to their children. These findings

emerged in results of a particular study which showed that mental health and life well-being in

fathers of autistic children are not negatively affected to the same degree as mothers (Jones, et

al., 2013).In Benson and Karlof’s study (2009), the results showed that mothers of children with

autism showed higher levels of depression and mood disorders than fathers.Lastly, Sen and

Yurtsever (2013) stated that the findings indicated similar results for mothers and fathers of

children with disabilities in general.

A study by Lim (2013) stated that all parents worry about their children’s development;

however, for special needs parents, this worry is far greater than the parents of children who do

not have special needs. A study of Wang, Michaels, & Day (2011), indicated that negative

attitudes of society members toward individuals with disabilities increases levels of stress in

those individuals and their parents. Dempsey, et al. (2008) and Gallagher, et al., (2008) also

proposed that parents’ perception about their capacity raising their child with disability act as a

crucial role in levels of stress. (Woodman, & Hauser, 2013) also indicated that levels of stress in

parents tend to increase alongside with child growing, as the gap between disabled and non-

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disabled children become more obvious. (Glidden, 2012, pp 311) indicated that lack of

specialized professional support, negative stigma, and fear from future of the child are major

determinants of stress in parents.

Parents are defined as persons who are in custody of and take a series of actions to

promote the development of a child (Musweu 2009). Parenting is therefore the process of

promoting and supporting the physical, emotional, social, spiritual and intellectual development

of a child from infancy to adulthood (Mumbuna 2010). Parenting is hard for anyone. For special

needs parents, however, it can be even harder. Autism, down syndrome, sensory processing

disorder, muscular dystrophy; those are just a handful of the special needs that children can face.

While parents of special needs children love their little ones just as much as those who are

parents to typically developing children, the struggles they face are exponentially more

challenging than the average parent (Galbreath, 2014). Harper et al. (2013) point out that there

are wide-ranging challenges that are integral to parenting a child with learning disability.

Children with learning disabilities generally require more attention because they may have

additional needs when compared to nondisabled children (VanPelt 2013).

Grobler (2012) mentions that parents of children with learning disability may experience

constant subjection to a guilty feeling that they may be directly responsible for the disability

through genetics, stressful moments while pregnant or abuse of alcohol. A study conducted in the

USA by Resch et al. (2010) revealed that because of increased parental responsibilities, parents

of children with learning disability can be at a high risk of experiencing depression, physical

health problems and decreased quality of life. Understanding the beliefs and myths about

parenting further helps to explain why parents of children with disabilities are engulfed with

emotional stress.

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Mueller, et al. (2014) stated, “ADHD/I has been frequently linked to symptoms such as,

daydreaming, staring, mental fogginess, confusion, hypoactivity, sluggish or slow movement,

lethargy, apathy and sleepiness. It is striking that the mentioned symptoms are very similar to

items currently used in the measurement of SCT. In line with this, 30 to 50% of the children

diagnosed with ADHD/I have been shown to present with increased levels of symptoms that

emerged under the label SCT. Based on the observation that approximately twice as many

school-aged children are nowadays diagnosed with ADHD/I in contrast to ADHD/HI and

ADHD/I’s strong association with SCT, there is a need for a thorough definition of SCT’s

cascading effects on individuals’ functioning.”

The longer we’re exposed to stress or negative emotions and thinking, the less able we

become at coping with those feelings. What may have started out as merely occasional, typical

reactions to overwhelming circumstances becomes a day to day struggle to function and handle

life as it comes. Symptoms of depression may not necessarily signify a diagnosis of depression,

but it definitely should be a red flag. The most challenging step of helping parents of children

with special needs deal with depression is first helping them recognize the signs of depression

and identify their own symptoms. The second most challenging step is helping parents begin to

change their behaviors and thought processes that are perpetuating the symptoms and may lead

to actual depression (“Depression in Parents of Children with Special Needs: How to Recognize

the Symptoms and Signs,”n.d.).

According to Smith (2009), children and adults with learning disabilities often have

clusters of difficulties that lead to academic failure or low achievement. These disabilities

emanate from a neurophysiological base. It is as though the switchboard of the brain short

circuits some of the information coming in, scrambles it, and then loose wires interfere with the

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ability to get that information out. This neurological dysfunction contributes to disorder,

disorganization, and problems with communication. Parents can be reassured that these problems

are organic and are not caused by external factors.

As stated by Sigelman (2008), children of permissive parents were often impulsive and

aggressive, especially if they were boys. They tended to be bossy and self centred, rebellious,

lacking in self control, rather aimless and quite low in independence and

achievement. Subsequent research has shown that the worst developmental outcomes were

associated with a neglectful, uninvolved style of parenting. Children of neglectful parents are

notable for behavioural problems such as aggression and frequent temper tantrums as early as

age three. They have a tendency to become hostile and antisocial in adolescents. Berk (2008)

added, children of permissive parents were very immature. They had difficulty controlling their

impulses and were disobedient and rebellious when asked to do something that conflicted with

their momentary desires. They were also overly demanding and dependent on adults, and they

showed less persistence on tasks at preschool than children whose parents exerted more control.

The link between permissive parenting and dependent, non-achieving behaviour was especially

strong for boys.

By school age, children with less severe Autism Sprectum Disorder tend to show their

feelings in a similar way to typically developing children, but can find it hard to describe their

feelings. They might say that they don’t feel a particular emotion. At the same age, many

children with more severe Autism Sprectum Disorder seem to have less emotional expression

than typically developing children.It might look like children with Autism Sprectum

Disorderdon’t respond emotionally, or their emotional responses might sometimes seem over the

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top – for example, they might get very angry very quickly (“Emotional Development in Children

with Autism Spectrum Disorder”, 2017).

Bollard (2017) stated that there is a lot of research which says that between 60 and 80%

of all communication is nonverbal, and I suspect that if we confined that research to only the

communication of empathy and emotion, that figure would be much higher. It’s clear then that

the problems of interpretation play a very important factor in the emotional bond between

parents and children on the spectrum.

Morin (2016) mentioned that, “In 2010, one study asked people what they think about

LD. More than half said they believe Learning Disability is the result of laziness. Tai and Hui

(2016), on the other hand, reported that, “Much social stigma still blights people with hidden

disabilities such as autism, where a child's behaviour may be mistaken for naughtiness, as one

MP found out. Insight reports.” Ms Chia also gave this moving first-person account of what life

is like for a person with a less visible disability: "We hope for you to be accommodating when

we make strange, loud noises. We can't control our muscles... Be kind to my parents when I

throw tantrums. It is not because they did not teach me well. I simply cannot comprehend my

external environment."

Coping Strategies Used by Parents of Children with Learning Disabilities

According to Picci, et al.(2015), parents of children with disabilities tend to use various

strategies to cope stress such as, looking for support, avoidance strategies, self-blame, drug

abuse, making jokes, reconstruction of stressful situation in positive manner, or denial. Taanila,

et al.(2012) referred to avoidance strategies and self-blame as coping strategies, while other

parents tend to search for positive issues in caring the child with disability such as religious

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attitudes, which are considered as an important coping strategy. Variation in the use of coping

strategies is correlated to many factors (Woodman& Hauser, 2013). Wang, Michaels,

&Day(2011) indicated that parents tend to use emotional-focused and avoidance strategies in

early stages of diagnosing disability, and as the child grows, parents tend to use problem-focused

strategies.

This variation in coping strategies was found also between fathers and mothers, the

results of various studies indicated that mothers of children with disabilities were looking for

social support and concerned more about emotions, while fathers, in return, tend to use

avoidance and problem-focused strategies(Seymour, et al., 2013; Hartley, et al., 2012; Glidden,

&Natcher, 2009). Understanding strategies used by parents to cope with stress of caring child

with disability is considered as a major component of psycho-social support programs, especially

if the researchers knew that the parents depend on negative strategies to cope with stress, levels

of stress might be increased, in other words, different levels of stress in parents of children with

disabilities means different strategies of coping they use (Singer, et al., 2013).

Keller and Honig (2004) found that for fathers, acceptance of the child with the disability

and family harmony reduced stress. While mothers were also affected by family harmony, lower

socioeconomic status and greater care demands predicted stress. According to Smith (n.d.),

whenever your feelings are painful, you must reach out and contact someone. Call or write or get

into your car and contact a real person who will talk with you and share that pain. Pain divided is

not nearly so hard to bear as is pain in isolation. Sometimes professional counseling is warranted;

if you feel that this might help you, do not be reluctant to seek this avenue of assistance. In times

of stress, each person reacts in his or her own way. A few universal recommendations may help:

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Get sufficient rest; eat as well as you can; take time for yourself; reach out to others for

emotional support.

Taunt and Hastings (2012) found that parents with positive attitudes envisioned positive

outcomes for their child. Parents reported the more positive they were, the more sensitive and

caring the entire family was towards the child with the disability. Family members sought out

more opportunities to learn about the condition affecting their child/sibling along with the impact

of their perspective on life.

Dun, Burbine, Bowers and Tantleff- Dun (2011) conducted a study that examined stress

level and coping styles of parents who had children with autism. Dun et al (2011)., defined

escape avoidance behavior coping strategies as actions that parents take to avoid any support

system and using escape as a way of dealing with stress. Positive reappraisal coping strategies

where defined as a parents seeking new faith, growth, or self-discovery. Reappraisal coping

strategies include: hoping for miracles, having fantasies etc.

Kenny and McGilloway (2008) conducted a study on parents of children with learning

disabilities. Kenny and McGilloway found that 2/3 of the participants used professional support

to help cope with the stress of raising a child with a disability and that most of the participants

reported that receiving information at the time of the initial diagnosis of their child would have

helped them cope more effectively. The participants also reported that receiving support from the

school their attended helped them cope more effective. Clearly, external sources of support are

critical to parental coping when raising a child with a disability.

Churchill, Villareale, Monaghan, Sharp and Kieckhefer (2010) conducted a study to

examine how they coped with having a child with a learning disability. Depressive symptoms,

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coping skills, and the child’s medical condition were assessed. Reframing was operationalized as

looking at problems parents face from the viewpoint of being positive and accepting. Passive

appraisal referred to not taking immediate action on any certain problem the parents may have

been dealing with. Findings showed that the better coping skills like social support, reframing,

spiritual support, accepting help and passive appraisal meant fewer depressive symptoms for the

participants.

The benefits of discipline are the same whether kids have special needs or not. In fact,

kids who have trouble learning respond very well to discipline and structure. But for this to

work, parents have to make discipline a priority and be consistent (Hirsch, 2015).Although

autism can be exhausting physically, mentally and emotionally because of the many layers and

complexity of the condition, it is important that parents find ways to connect with their child in a

meaningful way. Love and patience is needed. Fortunately, there are many ways to show these

attributes through words and actions (“Importance of Love and Patience,” 2011).According to

Kemp, Smith, and Segal(2017), “Perseverance is the drive to keep going despite challenges and

failures, and the flexibility to change plans if things aren’t working. Children (or adults) with

learning disabilities may need to work harder and longer because of their disability.”

In order to problem solve effectively, family members must regulate hostility, disclose

openly, support and validate each other, and generate new ideas and solutions to family problems

(Alexander, Waldron, Robbins, & Neeb, 2013).The findings suggested that these families

experience unique challenges, but generally adapt to their circumstances without resorting to

negative or ineffective styles of relating.

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According to Livingston (2010), many students affected by AD/HD find the chance to

build something appealing. Students who may have trouble with abstract concepts can grasp,

literally, new ideas and fine motor skills when they work with their hands. They have the

opportunity to be loud and pound, drill or mold with clay in a supervised setting. Many kids on

the autism spectrum like to build and put things together. Clubs require teamwork to solve

problems.Many students affected by AD/HD find the chance to build something appealing.

Students who may have trouble with abstract concepts can grasp, literally, new ideas and fine

motor skills when they work with their hands. Many young people enjoy video games that offer

high stimulation. In a club setting, students can work cooperatively and have the chance to share

information on various games. Many young people affected by AD/HD have found a good mix

of excitement and action in various school sports. They meet new friends and work within a

structured system with personal opportunities to succeed and the common goal of winning.”

According to the article “Physical activities for children with disabilities” (n.d.), the

number one factor in choosing appropriate activities for children with disabilities should be fun.

Any activity chosen for your child, either by you, your child, or as a group, should offer varying

degrees of fun. The primary reason that children participate in sports is fun, and the key reason

they quit is a lack of fun. Community-based programs that offer activities for children with

disabilities can provide suggestions to help both you and your child select the most appropriate

activities for your child’s interests and goals. NCPAD offers a programs database that lists

physical activity-related programs throughout the nation that offer opportunities for people with

disabilities.

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents of Children

Aged 5 to 15With Learning Disabilities

C. Synthesis and Justification of the Study

This review of related literature has revealed that there are challenges that a parent faces

when his or her child has Learning Disabilities. According to Bawalsah (2016), these challenges

are the financial strain. Life well-being of parents of children with disability would be negatively

affected, as they realize by time the everlasting dependency of the child, and feelings of isolation

and rejection from society (Hauser, et al., 2009). Glidden (2012) indicated that lack of

specialized professional support, negative stigma, and fear from future of the child are major

determinants of stress in parents. The family structure as well as the parents and family

characteristics such as social-economical level, personality traits, past experiences, education,

career, income level, and beliefs about the ability to affect the development of child, type and

severity of disability, child’s independency, age, andchild’s perceptions about his/her disability,

characteristics of the child with disability, physical health problems, demographic characteristics,

rank of the child with disability, siblings, and the presence of other disabilities in the family are

also part of these challenges (Gallagher & Whiteley, 2012). The negative psychological effects

of having a child with disability emerged in the results of many studies (Picci, et al., 2015;

Woodman, & Hauser, 2013; Wang, Michaels, & Day, 2011, Dukmak, 2009) which all indicated

low self-esteem, and high levels of emotional stress and depression in families of children with

disability, especially when compared to families of non-disabled children.

These factors play a vital and crucial role in a parent. According to (Picci, et al., 2015),

parents of children with disabilities tend to use various strategies to cope stress such as, looking

for support, avoidance strategies, self-blame, drug abuse, making jokes, reconstruction of

stressful situation in positive manner, or denial. Avoidance strategies and self-blame are coping

strategies of other parents, while other parents tend to search for positive issues in caring the

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents of Children

Aged 5 to 15With Learning Disabilities

child with disability such as religious attitudes, which are considered as an important coping

strategy in Jordan(Taanila, et al., 2012). Parents tend to use emotional-focused and avoidance

strategies in early stages of diagnosing disability, and as the child grows, parents tend to use

problem-focused strategies(Woodman, & Hauser, 2013; Wang, Michaels, & Day, 2011).

The researchers’literature reviewhas given them a lot of information and ideas about the

challenges and coping strategies of parents with children with learning disabilities. Through

this,the researchers learned that it is really hard as a parent when your child has disability.

The literature review that the researchers have is an integral part of their thesis. The basis

for everything: their data, what they expected to get, their interview, etc. is within the literature

review. The literature review basically gave them an idea of what they could get as a conclusion

and as a result in their thesis. It helped them foresee the results in their study because it gave

them thorough explanations of what the challenges and coping strategies are of a parent with

children with learning disabilities. Through literature review, they were able to narrow down the

possible challenges and coping strategies. The literature review made their research easier and

faster since without these studies, these past literatures, they would have had a hard time creating

their thesis without basis.

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Chapter 3

Methodology

A.Research Design

The researchers used phenomenology as the qualitative approach for the study. As stated

by Van Manen (2013), "A phenomenological research study is a study that attempts to

understand people's perceptions, perspectives and understandings of a particular situation (or

phenomenon)."

The researchers chose this particular qualitative approach because it is the most

appropriate to use for the topic of the study. The topic is mainly about the experiences of the

parents with children with learning disabilities. In utilizing this specific qualitative approach, the

researchers would be able to explore the parents' insights, perceptions, and understanding of this

particular experience. The process of gathering data through phenomenology is through

interviews. The best way to allow the parents to be able to freely describe their experiences,

challenges and their coping strategies is through conducting interviews.

B. Respondents and Sampling

The participants of the study were the parents of male and female children with learning

disabilities aging from 5 to 15 years old. Only a specific parent or both parents of a single child

were taken as respondents. Additionally, the respondents currently live in Doña Manuela

Subdivision, Pamplona 3, fLas Piñas City, Metro Manila.

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Aged 5 to 15With Learning Disabilities

Table 1: Profile of the Participants

PARTICIPANT PSEUDONYM CHILD


1 Mother A Daughter A
2 Mother B Son A
3 Mother C Daughter B
4 Mother D Son B
5 Father A Son A

“A purposive sample is a non-probability sample that is selected based on characteristics

of a population and the objective of the study. Purposive sampling is also known as judgmental,

selective, or subjective sampling" (Villarez, 2010).

The researchers used purposive sampling because they believed that using this sampling

technique would gather needed information that would fulfill the necessary data in the study.

Since the participants are the parents who have children with learning disabilities, only they can

answer the questions related to the particular experiences.

The coverage of the study focuses on the difficulties and coping strategies of parents who

have children that require special needs. The study limits the respondents to one parent or both

parents of a child with a learning disability. The parents compose of four mothers and one father

of children with learning disabilities. The individual father and one of the mothers are married

and are both parents of a single child. The children compose of two males and two females

ranging from the age of 5 to 15 years old for them to be compatible with the study. The

researchers’respondents live in Doña Manuela Subdivision, Pamplona 3, Las Piñas City, Metro

Manila. The researchers believe that the said respondents would be able to provide the necessary

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A Phenomenological Study of the Challenges and CopingStrategies Faced by Parents of Children

Aged 5 to 15With Learning Disabilities

information for the study. The data has been gathered through conducting an interview with

either or both of the parents of the child.

The study that was conducted provided benefits to the researchers in various ways.

Firstly, this study is capable of further expanding the knowledge the researchers have about this

particular topic. It is also beneficial to those who are interested in pursuing a medical career as

the information gathered from this study will prove useful later on. Lastly,the researchers were

able to address the gained data from this study to other people who can utilize this information.

Through this, not only would the researchers be able to benefit from this study but also a number

of people and organization that was described under significance of the study. The researchers,

which are STEM (Science, Technology, Engineering and Mathematics) students, chose this

study because some members of the research group aspire to pursue a career in the medical field.

The study falls under Science which is one of the significant components of the STEM strand.

C. Data Collection Technique

The data collection technique that the researchers used was interview. The type of

interview the researchers used was formal or structured and semi-structured interview. The

researchers interviewed the parents about their experiences in handling their children withspecial

needs, the challenges they encountered with them, as well as the coping strategies they used to

overcome these difficulties.

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Aged 5 to 15With Learning Disabilities

Interview Questions

These were the questions that were prepared by the researchers to the respondents which

were the parents of children with learning disabilities. In these interview questions, the

researchers would be able to gather the data needed for the study.

1. What is your name and age?

2. Are you married?

3. What is your profession?

4. What is the name of your child with learning disability?

5. How old is your child?

6. Are you the one who is taking care of your child?

7. Where does your child study and what grade level does she/he belong to?

8. How do you guide or help your child in his/her studies?

9. How did you discover that your child has learning disability?

10. Have you consulted a specialist about this?

11. What was the diagnosis of the doctor?

12. What did you feel when your child was diagnosedwith learning disability?

13. What problems do you face in taking care of your child?

14. As a parent, how do you cope with the challenges you have encountered in having a

child with learning disabilities?

15. What are the most challenging experiences that you have encountered with your

child?

16. What do you do to keep your child busy for you to continue doing your other

plans/chores?

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Aged 5 to 15With Learning Disabilities

17. What do you feel when your child shows love and affection to you?

18. What activities do you do to bond with your child?

19. What can you say about your overall experience in taking care of your child with

learning disability?

20. What tips and recommendation can you give to the parents who are facing the same

situation as yours?

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Aged 5 to 15With Learning Disabilities

D. Data Gathering Procedures

1. The researchers formulated 20 interview questions and asked their thesis teacher for consent.A

consent form was signed by the teacher and principal and given to the participants.

2. After gaining consent from their thesis teacher, the researchers notified the respondents on the

time and place the interview would be conducted.

3. The researchers met the interviewees and conducted the interview questions.

4. The researchers used a camera, mobile phones for them to record, and created a

documentation of the entire interview. The interview took 30 minutes to 1 hour.

5. The researchers gathered the data needed for the study, analyzed them, and encoded them into

their study.

E. Ethical Considerations

Ethics is extremely needed in research so the researchers made sure that their study

would not violate any research ethics. The researchers are honest in how they reported the data,

results, methods, and procedures. The researchers did not fabricate any data. They showed their

integrity by keeping their agreements between the respondents. The researchers respected their

respondents by protecting confidential communications and personal records through the use of

pseudonyms. Their study was critically examined. They made sure that there were no

grammatical errors and misspelled words. Every data collected from the work of others was

properly cited. There was no act of plagiarism in this study and they ensured that they obeyed the

laws, institutional, and governmental policies.

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Aged 5 to 15With Learning Disabilities

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Autism Spectrum Disorder. (2017, December 11). Retrieved from

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Bawalsah, J. A. (2016, February). Stress and Coping Strategies in Parents of Children with
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Galbreath, B. (2017, July 1). 12 Heartbreaking Struggles Of Being A Special Needs Parent.
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Aged 5 to 15With Learning Disabilities

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