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Advocating for Patients:

Honoring Professional Trust


LEE GALUSKA, PhD, RN, NE-BC

ABSTRACT
Perioperative nurse leaders create conditions for nurses in all health care settings that allow them to
advocate for patients when they are unable to advocate for themselves; these conditions also enable
nurses to enter into therapeutic relationships with patients and their families and establish trust. The
nursing leadership practices that facilitate this advocacy include promoting continuity of care and
patient relationships; helping to ensure practice environments support teamwork and collaboration;
providing behavioral expectations for communication and conflict management; and supporting
practices that promote self-care and ongoing professional development, flexibility, creativity, and
innovation to meet patient care needs. A comprehensive professional practice model provides a
framework for nurses to practice more fully and to skillfully care and successfully advocate for patients.
AORN J 104 (November 2016) 410-416. ª AORN, Inc, 2016. http://dx.doi.org/10.1016/j.aorn.2016.09.001
Key words: patient advocacy, nurse-patient relationship, patient-centered, professional practice,
leadership.

T he connection between a perioperative nurse and


a patient often begins with a smile, touch, or
reassuring word. Deepening this connection
enables the nurse to form a therapeutic relationship and deliver
relationship-based care.1,2 Patients and their families trust that
FOUNDATIONS FOR ADVOCACY
Nursing, by definition, includes an expectation for advocacy.
According to the American Nurses Association (ANA),
Nursing is the protection, promotion, and optimization of
health and abilities, prevention of illness and injury, allevia-
the relationship with a nurse, who is not only caring but also
knowledgeable and skilled, will help them safely navigate the tion of suffering through the diagnosis and treatment of human
perioperative experience and the health care system to achieve response, and advocacy in the care of individuals, families,
better outcomes.2 One exemplary nursing team at a Magnet- communities, and populations.3
designated academic medical center in southern California Advocacy is similarly described in the ANA’s Nursing: Scope
was recently acknowledged for excellent nursing care during and Standards of Practice4 and the Code of Ethics for Nurses.5
a hospital recognition event. This team was recognized for Leah Curtin’s seminal work established advocacy as the
their advocacy for Kalynn, a young woman who required a “philosophical foundation and ideal of nursing.”6(p2) She
second lung transplant and eventually succumbed to her stated that nurses share a common humanity with patients and
illness. The nurses’ story inspired the author to explore how families that allows them to see patients as unique individuals
relationships, trust, and advocacy intersect in nursing settings with rights and needs that are magnified after they become ill
in complex health care systems. Kalynn’s story illustrates how and vulnerable. Nurses are ideally positioned in the health care
nurses in the critical care and perioperative settings uniquely system and possess the scientific knowledge to provide care,
exercised their advocacy roles to deliver relationship-based care share information, and advocate for patients. Nurses also are
for this patient and her family. positioned to advocate for a system that is respectful of patient
http://dx.doi.org/10.1016/j.aorn.2016.09.001
ª AORN, Inc, 2016
410 j AORN Journal www.aornjournal.org
November 2016, Vol. 104, No. 5 Honoring Professional Trust

rights and needs and that supports their autonomy and or safeguarding patients’ rights, best interests and values in the
decision-making abilities. Advocacy is not only a professional health care system.”11(p104) They offered three core attributes
expectation but a moral and ethical obligation. of patient advocacy:

For perioperative nurses, ANA’s Code of Ethics for Nurses5 and  safeguarding patient autonomy,
the AORN “Explications for perioperative nursing”7 provide a  acting on behalf of patients, and
framework for ethical decision making and advocacy in this  championing social justice in the provision of health care.11
unique environment. Examples of perioperative nurse advo-
Safeguarding patient autonomy includes actions to support the
cacy align with universal moral principles and include respect
right to self-determination when patients are able and willing
for human dignity, support for patient rights and safety, and
to participate in their own care and related decisions. When
accountability. Perioperative nurses use this ethical foundation
patients are unable to actively participate, perioperative nurses
as they advocate for vulnerable patients who are sedated or
take action to best represent and defend their patients’ values
anesthetized and need nurses to take action on their behalf.2
and desires based on individual patient needs and circum-
In her work on existential advocacy, Sally Gadow8 focused on stances. The idea of championing social justice via the provi-
the unique nature of the nurse-patient caring relationship in sion of health care is based on a model of social advocacy that
supporting the patient’s fundamental right to self-determination. calls upon nurses to work toward system changes to address
Developing this therapeutic relationship and knowledge of larger issues pertaining to health and well-being. For nurses in
the patient as a person enables the nurse to assist patients the perioperative arena, this advocacy involves risk taking,
with clearly expressing their individual values and desires and professional confidence, and empowering each other to address
making care and treatment decisions. Gadow emphasized conditions in the system that may compromise patient safety.2,12
the importance of nurse engagement and “participation of
the entire self”8(p46) to fully understand patients’ perspectives. BENEFITS AND CHALLENGES OF
ADVOCACY
In a recent systematic review, Munday et al2 described how When nurses fulfill the role of advocate at the individual,
the foundational work of Curtin, Gadow, and others provides clinical, system, and societal levels, there are many benefits. At
the underpinnings for advocacy in the perioperative environ- the individual level, as the nurse-patient relationship develops,
ment. Although perioperative nurses have a limited time with trust is established. With trust comes the patient’s expectation
patients, they can establish a connection and understanding, of competence, belief in the nurse’s goodwill, and an accep-
effectively advocate, and provide a voice for “silent tance of vulnerability along with some element of risk.13 The
patients”9(p535) (ie, patients unable to speak for themselves). patient trusts that the nurse is knowledgeable and skilled, but
The researchers recognized that ethical principles, patient also that any actions taken by the nurse on behalf of the
rights, vulnerability, relationships, and trust drive the advocacy patient will reflect the nurse’s understanding of the patient and
activities of all nurses. However, the unique conditions in the an earnest commitment to help.
perioperative environment require greater emphasis on the
nurse’s role in advocating on behalf of patients for safety and At the clinical level, perioperative nurse advocacy results in
communication. Munday et al2 based the categories of their recognition and improvement of structures and processes that
findings on nurses’ experiences speaking up for patients; affect patient rights and safety. Examples include processes for
providing reassurance to and connecting and communicating maintaining asepsis, ensuring patient identity and informed
with patients and their families; and providing comfort while consent, instrument counts, and procedural technique.2 At the
maintaining safety, dignity, and an evidence-based care plan. system level, perioperative nurses “see the big picture beyond
The researchers viewed all of these interventions as everyday the doors of the OR.”2(p18) Nurses consider the continuum of
evidence of nurse advocacy. Walker et al described nurse care for patients and their families, including processes for
perceptions of “everyday advocacy”10(p67) as actively taking patient and family education, management of materials and
part in practice, leadership, education, and professional orga- equipment, and relationships with colleagues and departments
nizations. Nurses embrace advocacy as a core value of the that affect the care of surgical patients.
profession and an essential element of their practice.
At the societal level, nursing has held a long-standing position
Bu and Jezewski developed a midrange theory for patient as the profession most trusted by the public.14 This trusted
advocacy that they defined as “a process or strategy consisting status comes from the belief in nurses’ ability to connect with
of a series of specific actions for preserving, representing and/ patients in meaningful ways, help them achieve better health

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Galuska November 2016, Vol. 104, No. 5

outcomes, and influence quality in the health care system.15 The transplant. She had cystic fibrosis, but according to the nurses
public holds nurses in high esteem for their trustworthiness on Team Kalynn, she refused to let her disease define her. She
and advocacy. was independent, intelligent, and able to articulate her
preferences and needs most of the time. She also required
Advocacy in the nurse-patient relationship is influenced by the complex, intensive medical support and highly skilled nursing
nurse’s character traits, including the nurse’s moral compass, care. She had a supportive and involved family. Team Kalynn
protectiveness over patients, and security as a professional established a deep and caring relationship with both Kalynn
nurse.16 Other advocacy facilitators are the nurse’s knowledge and her family.
of the patient; ability to empathize with the patient; and
organizational conditions such as leadership support, healthy To create the case study, I began by interviewing members
interprofessional relationships, cultural norms, and evidence- of the ICU team who cared for Kalynn to gain an under-
based communication practices. standing of their experiences and how they aligned with de-
scriptions in the literature. The nurses’ relationship with
Nurses’ relationships with members of the health care team
Kalynn was a special one because of her lengthy hospitalization
and organization have a powerful influence on their advocacy
and the similarity in age and interests she shared with many
practice. According to Bergum,17 relationships and relational
of her nurses. Their relationship evolved to the point where
competencies are as critical to the effectiveness of nurses as
they were very close to her family, including Kalynn’s twin and
clinical competencies and scientific knowledge. In the
older sister.
perioperative setting, Hudek describes finding voice with
colleagues as a key competency that requires “a combination of Nurses on the ICU team tailored Kalynn’s plan of care and
moral courage, empowerment, and mutual respect accompa- their interventions using their knowledge of her unique indi-
nied by communication skills.”12(p649) vidual needs. Nurses described meaningful interventions such
as giving Kalynn greater control over her diet and providing
Recommended strategies for ensuring the efficacy of nurse
favorite foods from home or local restaurants. They under-
advocacy include recognition and management of institutional
stood the importance of nutrition in ensuring readiness for
and interdisciplinary constraints, focused education and
transplant surgery, and they knew that their care plan would
competency development, and empowerment and intentional
be more successful if they understood Kalynn’s preferences.
support from formal leaders.2,10,12,16,18 One strategy for
Their focus on listening and understanding enabled them to
supporting nurses and recognizing their advocacy efforts is to
provide relationship-based care. The nurses’ description of this
celebrate their efforts10 through awards ceremonies, such as
experience is reflective of “knowing the patient,”16(p679) a key
the one that recognized “Team Kalynn,” and to disseminate
influencer of advocacy practice.
their exemplary work through professional publications.
Along with the development of this meaningful relationship,
The following case exemplar describes the experiences of
the nurses established trust with Kalynn and her family
nurses in both the critical care and perioperative settings as
members, which in turn allowed them to trust in the com-
they cared for Kalynn, a patient undergoing transplant surgery.
petency of the nurses and other team members. Consistent
Kalynn’s story illustrates the similarities and differences
with the findings of Bell and Duffy,13 the trust of Kalynn and
between the advocacy practices of perioperative versus critical
her family members was characterized by an expectation of
care nurses. How nurses approach their ethical obligations to
competence, a reliance on the goodwill and relationship with
patients like Kalynn are different based on their practice
the members of the ICU Team Kalynn, an acceptance of their
setting. The therapeutic relationship established with patients
own vulnerability, and a willingness to accept the risk as they
in both settings provides a foundation of trust enabling nurses
entrusted themselves to this team.
to advocate effectively for vulnerable patients and their fam-
ilies. Greater understanding of how to best implement the Kalynn and her family also trusted that this nursing team
nursing role in different practice settings may foster collegial knew how the system worked and could navigate through
relationships, collaboration, and teamwork in organizations it on their behalf based on the nurses’ established re-
that will benefit all patients and their families. lationships with other members of the health care team.
Kalynn’s family trusted that the nurses would not only care
ADVOCATING FOR KALYNN for her like a family member but also help ensure that
Kalynn was 27 years old when she was hospitalized in the enough oxygen, supplies, and other resources were available;
intensive care unit (ICU) while awaiting her second lung be prepared to respond in an emergency; and advocate

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November 2016, Vol. 104, No. 5 Honoring Professional Trust

to ensure that Kalynn’s voice was heard as decisions nurses to help meet the patient’s needs by skillfully and
were made. effectively advocating for Kalynn with other members of the
health care team. Their actions as conscious leaders were
To respect her autonomy and right to self-determination, the intentional, evidence based, and supportive.
nurses on ICU Team Kalynn helped ensure that she had an
opportunity to speak and advocate for herself in interdisci- Leaders also made sure that Team Kalynn members’ needs for
plinary rounds. They did not attempt to speak for her except rest and self-care were met. The formation of a care team
during times when she could not. She was the expert on enabled nurses to take breaks as needed from the intensity of
herself and her needs and was knowledgeable about her disease this patient’s care demands. This approach also allowed the
and treatment. Making space for the patient’s voice to be nurses to maintain skills and competencies with patients
heard is consistent with Gadow’s theory of existential advo- needing other types of care. Nurse leaders supported nurse
cacy8 and a position of authentic knowing and valuing of the creativity and innovation in meeting the unique care needs
patient’s perspective and rights. presented by patients and their families. They created an
environment of flexibility and support for nurses to flourish in
The nurses from ICU Team Kalynn navigated a fine line be- their professional roles. With the skilled support and role
tween advocacy and paternalism19 by advocating during times modeling of their nurse leaders, the nurses on Team Kalynn
when Kalynn was unable to do so for herself. One nurse spoke were also able to lead and fully engage as advocates.
of a time when she advocated for Kalynn with a medical resi-
dent who “was going to put his foot down and discontinue
lorazepam at bedtime.” The nurse knew that although the dose
Perioperative Nurse Advocacy
was small, it was of significant value to Kalynn in helping her When it was time for Team Kalynn ICU members to hand
to fall asleep at night in the ICU setting. Understanding the over Kalynn’s care to their colleagues in the perioperative
importance of sleep to Kalynn as she maintained her readiness setting, they had to trust in their colleagues in the same
for transplant surgery, the nurse successfully advocated for her manner as Kalynn and her family did. They described an
and avoided a change in the medication order. expectation of collegial competence and goodwill but also a
feeling of vulnerability as they handed over Kalynn’s care.
The nurses identified leadership and collegial support as two Kalynn’s ICU nurse accompanied her and provided a detailed
elements that allowed them to advocate effectively. Leaders hand over so that her perioperative nurses could effectively
were advocates in that they created the conditions that sup- care and advocate for Kalynn during her surgery. Their
ported the nurses and patient. By respecting patient and family colleagues in the perioperative environment became the peri-
preferences and understanding the benefits of continuity of operative extension of Team Kalynn.
care, leaders formed an intentional plan. Along with the patient
and family, they created a team of nurses to care for Kalynn After interviewing the ICU team, I asked the perioperative
and helped ensure that the team had the resources it required nurses how they fulfill their ethical obligation to preserve the
to meet Kalynn’s needs. Leadership and collegial practices dignity of individuals like Kalynn, establish trusting relation-
supported nurse autonomy and allowed nurses the ability to ships, and advocate for patients’ unique needs and safety.
speak up as needed to meet patient and family needs. Perioperative nurses only have a brief opportunity to establish
a connection with patients and family members. Nurses in
The actions of leaders in this organization reflected best perioperative settings and across health care systems encounter
practices for conscious leadership in advocacy for nurses and challenges and barriers in their roles as leaders and advocates.
nursing.10,12,20 They demonstrated a commitment to excel- Hanks22 described the conflict of interest nurses may experi-
lence and to “a sense of shared purpose enabling people to ence as they consider their responsibility to the patient and
derive meaning from their work.”21(p184) They provided their obligations to their institution. Nurses may perceive a
opportunities for growth, supported the development of lack of support, power, time, or educational preparation for
others, and were willing to make difficult decisions based on their advocacy role. Personal, institutional, and cultural
their moral compass. These nurse leaders advocated for the barriers can have a significant effect on the ability of nurses
appropriate resources to help prevent staffing inadequacies and and nurse leaders to advocate for patients and patient
ensured that scheduling aligned with the goals for continuity care.2,10,12,16,18 Perioperative nurses must help the patients
of care. They also supported advocacy by fostering a healthy and family members trust that they will safeguard their
work environment characterized by open communication, interests and skillfully advocate on their behalf throughout the
collaboration, and conflict management. Leaders supported surgical experience. Perioperative nurses do not have the

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benefit of a long hospitalization and consistent assignments to The perioperative nurses shared how seriously they take their
get to know the patient and his or her family members as advocacy role in the OR setting. They perform the patient
unique individuals. They rely on the record, an effective hand- assessment and relay important information to the surgical
over report, and a brief interpersonal encounter with the team, taking into consideration the patient’s history and risk
patient and his or her family members. factors. In the OR, they safely position, pad, and prepare the
patient for surgery. They safeguard the patient from harm
Members of the perioperative unit council at this academic related to infection, pressure ulcers, falls, and medication
medical center and the nurse who cared for Kalynn during errors by monitoring the sterile field, checking patient position
her surgery participated in interviews where they shared their and padding, and using patient safety guidelines. In Kalynn’s
perspectives on advocacy and the unique responsibilities and case, her perioperative nurses anticipated and planned for what
challenges in this care environment. They reflected on the they would need to address her condition. They made sure
need to quickly establish a connection with the patient and that all equipment and supplies were ready for the procedure,
family preoperatively. Introductions, determining the patient’s planned for maintaining her temperature and skin integrity,
preferred name, assurances, and providing information are all and ensured that all appropriate consents were complete.
part of that brief initial encounter.
Kalynn’s perioperative nurse described the patient education
Perioperative nurses recognize the vulnerability of the patient and support she provided while they waited for the procedure
and his or her family when undergoing a surgical procedure and to begin. She created a calm and peaceful environment for
strive to provide reassurances that they will care for the patient Kalynn to decrease her anxiety while they waited for the
as if he or she were their family member. Often during these surgeon to verify and visually inspect the donor organ. She
moments, patients and family members share information that explained all of the steps in the perioperative process and
they may not have told anyone else, such as small details or assured Kalynn that she would remain with her and
preferences. They trust the nurse to relay the information to the communicate with the team and her family.
surgeon and other members of the surgical team. One peri-
operative nurse spoke of being the last person the family sees as As sentries throughout the procedure, perioperative nurses
their loved one is taken to surgery and the powerful sense of described ensuring that sterile technique and standards of
responsibility this engenders. Although the preoperative con- practice are maintained. They are constantly watching,
tact is shorter than that of unit nurses, the timing, significance, assessing, communicating, and advocating. As conscious
and intensity of the encounter creates a bond between peri- leaders, perioperative nurses have the courage to speak up at
operative nurses and their patients. This bond endures, and the any time in the care process to say “I have a concern.” Nurses
perioperative nurses interviewed spoke of patients and family described intervening when needed with concerns for patient
members returning to visit, thank the nurse, and celebrate the consent, technique, infection prevention, instruments, and
success of the surgery. They also described mourning with personnel. Kalynn’s nurse described being vigilant about organ
families after they lose a loved one and remembered these pa- labeling and identity verification, sterility, and blood admin-
tients as unique and special individuals. istration. She and her colleagues closely monitored their
practice to ensure that evidence-based standards were upheld.
The brief preoperative time with the patient and his or her
family is also an opportunity for the nurse to provide impor- These nurses regularly use their voices to advocate for patients
tant information and to teach. The nurses described being when they are unable to advocate for themselves. Perioperative
purposeful about the education they provide during this time. nurses consciously advocate, even during times when inter-
Kalynn’s perioperative nurse described the need to provide professional or institutional challenges may arise. In the short
education about what to anticipate with a second trans- time Kalynn’s nurse had to establish a relationship with her,
plantation. Perioperative nurses become the communication the nurse acquired a sense of ownership and accountability to
lifeline for family members, keeping them informed about ensure that the team provided excellent care and that the
what is happening with their loved one, and they discussed patient’s voice was heard. The experiences of these perioper-
how they communicated with Kalynn’s family during the ative nurses were consistent with the synthesized findings
course of the surgery. It was important to Kalynn’s family that reported by Munday et al.2 The nurses described their advo-
they received regular communication about her status cacy in terms of
throughout her lengthy and complicated surgery. The family
developed trust in the perioperative nurse to keep them  safeguarding the patient,
updated as well as to keep Kalynn safe.  communicating for or giving voice,

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November 2016, Vol. 104, No. 5 Honoring Professional Trust

 establishing trust, and were protected and her voice was heard. As scientists, the
 providing reassurance, comfort, and care for patients. professional nurses who cared for Kalynn had the opportunity
and fulfilled the obligation to apply current, relevant evidence
These perioperative nurses view advocacy as inherent in their in the delivery of care. As conscious leaders, nurses at all levels
everyday practice. They respect and cherish the solemn trust and in all settings advocate and will continue to innovate and
placed in them and know that patients like Kalynn and their lead improvement efforts to produce better outcomes for
families are counting on them. their patients, organizations, and the nursing profession as a
Although the opportunities for critical care and perioperative whole. Through reflection on their experience with Kalynn,
nurses to establish relationships and trust and advocate for the nurses’ commitment to honoring the professional


patients are very different from facility to facility, nurses in trust placed in them by patients, families, and society has
both specialties fully embrace their professional obligations. In been reaffirmed.
the Magnet-designated hospital where Kalynn received care, Editor’s notes: Patient information published with permission
nurses at all levels and settings serve as conscious leaders who from the family. ANCC Magnet Recognition is a registered
advocate for patients, families, resources, and healthy envi- trademark of the American Nurses Credentialing Center, Silver
ronments for nursing practice excellence and optimal patient Spring, MD.
outcomes. In the event of an unexpected or adverse outcome,
such as the loss of a patient like Kalynn, strong relationships
and trust create opportunities for healthy dialogue, support,
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