Documente Academic
Documente Profesional
Documente Cultură
Research Article
Blackwell
Oxford,
Australian
AOT
2005
0045-0766
unknown
52 Blackwell
UK
Publishing,
2005
Occupational
Publishing
Ltd.Therapy
Asia PtyJournal
Ltd Literature
Lloyd etReview
PERCEPTIONS
C. al. OF SOCIAL STIGMA
Background: People with psychotic disorders experience (Gilbert, Miller, Berk, Ho & Castle, 2003). People with
high levels of disability and impairment as a result of their more severe symptoms, and symptoms such as dis-
illness. Difficulty in the area of social relationships poses organised behaviour and flat affect, and poorer social
a substantial problem with the majority of people with skills are more likely to engender more negative
psychosis being socially isolated. Many of them experience responses from others (Dickerson, Parente & Rignel,
an unmet need for services. 2000; Ertugrul & Ulug, 2004). In response to such situ-
Methods: A focus group was conducted with the aim of ations, people internalise the devaluing by others and
investigating the perceived experience of six young men develop strategies such as social withdrawal to avoid
who had a psychotic disorder to gain an understanding of the rejection they anticipate (Ertugrul & Ulug). This in
the impact this had on interpersonal relationships. turn reduces the stigmatised person’s range of social
Results: The major themes identified were: (i) a signifi- contacts, thereby handicapping social adaptation and
cant decrease in the internal and external control of one’s delaying recovery (Ertugrul & Ulug). In the Australian
life at the onset of illness; (ii) the effects of labelling and context, there is a significant gap in terms of service
stigma on interpersonal relationships; and (iii) the change delivery addressing psychosocial disability, with the
in self perception that these effects bring. majority of service users not receiving rehabilitation
Conclusion: The implications of the findings for rehabilita- (Gilbert et al.). Listening to identified needs of individ-
tion interventions are presented, specifically psychosocial group uals involved in mental health services is considered
interventions addressing interpersonal relationships. important in the subsequent development of services
(Barnes & Wistow, 1994). This includes making them
KEY WORDS interpersonal relationships, psychotic dis-
more responsive to the needs and preferences of
orders, social skills, stigma.
those who use them. Additionally, service users may
be empowered in decision-making about the design,
Introduction implementation, and review of these services (Barnes
& Wistow). This has direct implications for designing
Psychotic disorders are complex illnesses often char-
services that address unmet needs and the quality of
acterised by episodes of relapse and often only a partial
these services.
return to full functioning (Angell & Test, 2002; Penn,
This article describes a qualitative research project
Kolmaier & Corrigan, 2000). Psychosocial disability is
that was carried out to explore the difficulties of
prevalent among people with psychotic disorders
living with a mental illness and its effects on inter-
personal relationships.
and social pursuits (McGorry & Edwards, 1997). There These consequences may increase stress levels in the
is a high probability of further episodes occurring, lives of persons with a psychotic disorder, which could
where function and personality may be damaged, which lead to an increased potential for relapse and rehospi-
may worsen over time (Dickerson et al., 2000). Jablensky talisation. Stigma therefore has important implications
et al. (1999) found that people with psychotic illnesses for the person with a psychotic disorder and their
were seriously impaired in their ability to function in integration into the community (Penn et al., 2000).
everyday social and occupational domains. The results It has been found that interpersonal factors, such as
of a study conducted by Ertugral and Ulug (2004) overall social skill, negative symptoms and perceived
found that people who reported more perceived strangeness, may contribute to stigma (Penn et al., 2000).
stigmatisation had more severe symptoms than the Ertugrul and Ulug (2004) found that individuals who
people who did not perceive stigmatisation. They also reported perceived stigmatisation had more severe
found that people reporting stigmatisation were symptoms than individuals who did not perceive
significantly more disabled than the group negative stigmatisation. People with schizophrenia have sig-
for perceived stigmatisation. nificant deficits in social skills, which may produce
uncomfortable and or aversive interactions with others
Medication and psychosocial (Ertugrul & Ulug). By interrupting this cycle, the
interventions adaptive abilities increase and the disability of these
Angell and Test (2002) stated that despite the evidence individuals decrease; this was found in the study by
that people with severe mental illness experience Ertugrul and Ulug. Social skills training may, in addi-
impairments in social relationships, there is little con- tion to improving social behaviour, have the potential to
sensus about what may be done about it in the clinical indirectly impact on psychiatric stigma (Penn et al., 2000).
services context. From their study, they suggested This issue can best be addressed by designs, which
that psychopharmacological and psychosocial inter- assess perceived stigma prior to, and following, social
ventions aimed at the mitigation of symptoms facili- skills training (Penn et al.).
tate the development of reciprocal relationships and
contribute to decreased levels of loneliness. Falloon, Social skills
Held, Roncone, Coverdale and Laidlaw (1998) in their In a previous study by Roder et al. (2002), social skills
study concluded that treatment for psychotic disorders training was shown to be an effective intervention for
is best provided by integrating specific psychosocial individuals experiencing disability associated with
intervention strategies in addition to the optimal use mental illness. Skills building involves learning and
of medication. The introduction of newer antipsychotic practising activities that enable individuals to acquire
drugs may improve the effectiveness of psychosocial the skills that are required to meet the interpersonal
treatments (Marder, 2000). Compared to traditional and coping demands of community living. Ihnen, Penn,
medications, the atypical antipsychotic medications have Corrigan and Martin (1998), in their study, investi-
superior efficacy with respect to positive symptoms, gated the relationship of social perception to social
some benefit on cognitive performance, and fewer side- skills in those with schizophrenia. Correlational anal-
effects (Marder). yses revealed that the self-ratings of social skills had
the most consistent relationship with social skills
Stigma and self-concept among the social perception measures, even after
According to Caltraux (2003), stigma is socially con- controlling for symptomatology and subject demo-
structed and is often formed subtly, as stereotyping and graphics. They suggested that the ability of indivi-
prejudices gradually become an accepted part of a duals to perceive his or her own social behaviours
cultural or social belief system. The stigma surround- have important functional consequences in account-
ing mental illness has marked effects on the psycho- ing for social dysfunction (Ihnen et al., 1998). In their
logical well-being and life satisfaction of people with a study, Roder et al. found an improvement in social
mental illness (Caltraux). This is manifested in a number functioning following participation in a training
of ways, ranging from limited social and vocational program. They also found that participants showed a
opportunities to its negative effect on the self-concept significant reduction of both negative and positive
(Angell & Test, 2002). An increase in positive func- symptoms. Roder et al. recommended that social skills
tioning was associated with a downturn in subjectively training be conducted over extended periods of time.
assessed social functioning, that is, satisfaction with Falloon et al. (1998) recommended that skills training
social relationships and loneliness over the 6-month strategies include role rehearsal, constructive coach-
period (Angell & Test). Some people internalise the ing and real-life practise. They suggested that the best
stigma whereby he or she accepts diminished expec- results occur when skills training is targeted to each
tations both for and by him or herself (Caltraux). person’s chosen goals.
PERCEPTIONS OF SOCIAL STIGMA 245
a need to provide specific psychosocial interventions as barriers to maintaining relationships. The use of a
in addition to the optimal use of medication (Falloon group intervention to support young men in this has
et al., 1998), as was the case in this example. Many the potential to not only allow young men to lead
people with psychotic disorders in Australia receive more fulfilling lives, but also reduce the financial
psychotropic medication but are often denied the burden to society by building resilience, promoting
opportunity to receive psychosocial interventions community participation, and therefore reducing
(Gilbert et al., 2003), which is unlike what has been re-admission rates.
discussed here. This is for the most part due to these The young men in the present study had a number
services simply not being available (Jablensky et al., of ideas about what they believed would be helpful in
1999), unlike in the present study. assisting them to deal with the issues they were experi-
The attitude of the consumers to medication was encing. They thought that group interventions should
disturbing. This is an important area to address. First, incorporate such aspects as role-plays, excursions into
attending a medication group, which emphasises the the local community, hearing from girls about their
biology of mental illness and the necessity of taking expectations of relationships, and importantly, to hear
medication despite uncomfortable side-effects, might talks from people with mental illness who were success-
be useful. In addition, teaching consumers to discuss ful in achieving their life goals. Subsequently, the
their side-effects with the prescriber is most important. group program was structured to cover the following
As practitioners, we need to be able to explain the aspects: opportunities to share their experiences and
importance of mediation adherence and strategies for network with other group members, role playing social
managing their illness, but our consumers need to learn interactions, practise situations in the local community
to be assertive about speaking about the side-effects. and home-work assignments, hear invited women
Participants identified that being diagnosed with a speakers discuss girls’ expectations and appropriate
psychotic disorder ‘closed doors’ for them. This, they behaviour when meeting girls and planning a date,
said, was a result of how others viewed them as well and hear invited male speakers share with the group
as their own changed self-perception and expectation. how they managed their disability and achieved their
Other authors have observed similar changes (Ertugrul goals. The focus was on assisting the young men to
& Ulug, 2004; Penn et al., 2000). Once the young males feel more in control, develop self-confidence, and pro-
had been diagnosed and were receiving treatment, mote self-esteem through participation in activities
they felt the effects of unclear expectations. This related that were meaningful to them.
to what others expected of them and what they The implications for service provision are substan-
expected of themselves. They considered that they tial. There needs to be a change in the way care of
had lost confidence because of the stigma of having a young men (and possibly others) is planned and
mental illness. Stigma influenced their relationships delivered in order to address the disability associated
with their friends and they began to feel that other with psychotic disorders. First, a multidisciplinary
people were better than they were because they did approach needs to be taken in order to plan effective
not have a mental illness. Stigma has important impli- interventions to address identified needs. It is reason-
cations for the social inclusion of people with psychotic able to suggest that members of the multidisciplinary
disorders into the community (Ertugrul & Ulug). team should collaborate when planning treatment
The issue of girls emerged strongly, with the young interventions. This approach brings a greater depth to
males feeling that many of the girls they would be the proposed intervention than those carried out
interested in would not be able to deal with the fact solely by one discipline, as they each bring their special-
that they had a mental illness. In addition, their rela- ised skills to the design and implementation of re-
tionships changed with their family, with the family habilitation programs. In addition, there needs to be
increasingly wanting to have more input into their recognition by health-service managers that it is not
lives. In many ways, they saw that the relationships enough to facilitate recovery simply by providing
they had with others around them had become medication and access to some form of case manage-
increasingly superficial. The existence of meaningful ment. Sane Australia (2002) concluded that many
relationships has long been recognised as a protective people with psychotic disorders are living on the edge
factor against psychiatric relapse (Commonwealth of effective treatments and were suffering profound and
Department of Health and Age Care, 2000). However, as costly disability, which could be reduced if effective
shown, many issues associated with having a psychotic treatments were developed and introduced more
illness negatively impact on an individual’s ability systematically at onset and during the initial course
to maintain relationships. Participants in this group of the illness. If spending on rehabilitation programs is
identified their negative symptoms, medication, and a addressed in a significant way, there are a number of
lack of opportunity to learn appropriate social skills indirect cost savings from psychosocial rehabilitation.
PERCEPTIONS OF SOCIAL STIGMA 249
This flows from better health outcomes that diminish methods would be useful in determining the most
the demand for clinical services and increases the like- effective strategies to address deficits in social
lihood of gaining employment and being fully partici- functioning.
patory community members (Sane Australia). What
can be unequivocally argued is that the human cost is Acknowledgements
much greater in the absence of interventions such as
those described above. This program received a Certificate of Recognition
and a developmental grant from Eli Lilly Australia
Limitations of the study Pty. Ltd. We are grateful to the group members who
Although focus groups have strength in the produc- willingly participated in this study. At the time this
tion of data through interaction, there are a number of research was conducted, the authors worked for
limitations associated with the present study, which Rehabilitation Services, Integrated Mental Health Service,
need to be considered when reviewing the findings. and Gold Coast Health District. This article is based
These include the sampling procedures, where the on a presentation at the OT Australia Queensland
researchers were known to the participants and State Conference, Sunshine Coast, September 2004.
were the group leaders of the program that they were
attending, which could possibly contribute to bias.
However, the use of a focus group was found to be a
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