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Evaluation Instruments
ALLIES AGAINST ASTHMA
EVALUATION INSTRUMENTS
Introduction
The enclosed instruments and tools were developed or adapted by Allies Against Asthma (Allies)
for the cross-site evaluation. A cover page describes each instrument and provides further
information to assist in the use or adaptation of these instruments by others. Appendix A
describes how Allies used these instruments in its cross-site evaluation.
The Allies Against Asthma program, funded by the Robert Wood Johnson Foundation, supports
seven coalitions which aim to develop and sustain community-wide pediatric asthma control
systems. Direction and technical assistance for Allies is provided by the National Program Office
at the University of Michigan. Allies’ evaluation approach was designed collaboratively by leaders
from all seven community coalitions, the program’s National Advisory Committee members and
the Allies National Program Office staff. Additional information about the program can be found
at www.AlliesAgainstAsthma.net.
Contents
Context Survey (English; 4 pages)
Purpose: to collect quantitative and qualitative information from coalition leaders about
coalition structure and functioning; the focus of coalition efforts; and the social, cultural
and political environment of the community in which the coalition operates
Appendix A: How Allies Used the Cross-site Evaluation Instruments (English; 3 pages)
Purpose: to explain how the instruments included in this toolkit were used in the Allies
cross-site evaluation
Allies Against Asthma is a national project supported by the Robert Wood Johnson Foundation. Direction and technical assistance
is provided by the National Program Office at the University of Michigan Center for Managing Chronic Disease.
ALLIES AGAINST ASTHMA
CONTEXT SURVEY
Description
The Context Survey can be used to conduct a semi-structured interview to collect both
quantitative and qualitative information about coalition structure and functioning and the
focus of coalition efforts. It also gathers information about the social, cultural and political
environment of the community in which the coalition operates. The survey can be
administered to coalition members and staff as a telephone or face-to-face interview.
For use and/or adaptations of this document, please credit Allies Against Asthma.
Contact Information
Allies Against Asthma National Program Office
Center for Managing Chronic Disease
University of Michigan
109 South Observatory Street
Ann Arbor, MI 48109-2029
Phone: 734-615-3312
Fax: 734-763-7379
E-mail: asthma@umich.edu
www.AlliesAgainstAsthma.net
Allies Against Asthma is a national project supported by the Robert Wood Johnson Foundation. Direction and technical assistance
is provided by the National Program Office at the University of Michigan Center for Managing Chronic Disease.
COALITION SELF-ASSESSMENT SURVEY (CSAS) CONTEXT SURVEY
Today’s date:
Coalition:
Names of interviewees:
Interviewer read: The purpose of this survey is to characterize the current environment, context, and
structure of your coalition
3. How many members qualified for the first follow-up administration (attended two or more meetings in
the 12 months prior)?
5. What was the total number of respondents for the 2nd follow-up administration?
8. Please describe any changes to the structure of the coalition (e.g. organization of committees) at the
time of the second follow-up administration of CSAS.
9. During previous context interviews, we asked about a set of items1 related to specific characteristics of
coalition structure. We are interested if there have been any changes related to these characteristics at the
________________________________________________________________________________________________________________
Allies Against Asthma 5 Context Survey 2 of 5
present time. For each item, please indicate whether or not the characteristic was in place (yes), in
process, or not in place (no).
No In Process Yes
COALITION STRUCTURE
1 2 3
a. Bylaws/rules of operation
b. Mission statement in writing
c. Goals and objectives in writing
d. Regularly scheduled meetings
(with agendas)
Probe: who sets the agenda?
e. Effective communication
mechanisms (e.g. newsletters, minutes)
f. Organizational chart
g. Written job descriptions
h. Core planning group (e.g. steering or executive
committee)
i. Subcommittees
1. Butterfoss, F. D., Coalition Effectiveness Inventory (CEI) Self-Assessment Tool . Center for Pediatric Research; Center for Health Promotion,
South Carolina DHEC, 1994. Revised 1998.
10. Since the 2nd follow-up administration of CSAS, please describe any changes to the coalition’s
leadership:
11. We would like to get a sense of the people with decision-making power within their organization
that are involved in or have influence on the coalition. They may or may not be “members” of the
coalition or go to meetings.
________________________________________________________________________________________________________________
Allies Against Asthma 5 Context Survey 3 of 5
Probes: If they do not come to coalition meetings, how do you get access to them?
Through another member, or through some other relationship?
“Some come to meeting and have direct decision making power on behalf of their organization --
Would people who are sitting at coalition meetings have access to their organization’s resources
so that they could come back to the coalition and commit resources on behalf of their
organization?”
Does the coalition have relationships outside of the coalition members that they go to, or do most
of the resources that come through the coalition come through the membership?
12. Please describe any changes over the past year to your coalition’s staffing:
13. Were there any changes to the role of the administrative agency in relationship to the coalition at
the time of the second follow-up administration of CSAS?
Probes:
-Does the administrative agency manage the finances on behalf of the coalition?
-Are they members of the coalition?
-Do they serve as facilitators or conveners of the coalition?
-Both?
Probes:
Do staff identify as:
-Staff of the coalition?
-Staff of the administrative agency?
-Both?
14. Were there any events in the previous that may have had a major impact on coalition dynamics?
Interviewer: Keep focused on big events and only on the year prior to CSAS first follow-up
administration.
Probe: Any disappointing events?
________________________________________________________________________________________________________________
Allies Against Asthma 5 Context Survey 4 of 5
15. Do you have any comments about the social, cultural, political, and/or economic environment
embedded in the community the coalition operates from around the time of the second follow-up
administration of CSAS?
17. How do you think the work of the coalition for childhood asthma is different from stand-
alone programs?
18. Describe any lessons learned in terms of the coalition and its work.
19. Do you have any other comments that might help us understand the environment, structure
or context of your coalition at the time of the second follow-up administration of CSAS?
________________________________________________________________________________________________________________
Allies Against Asthma 5 Context Survey 5 of 5
ALLIES AGAINST ASTHMA
COALITION SELF-ASSESSMENT SURVEY
Description
The Coalition Self-Assessment Survey (CSAS) can be used to capture quantitative information from
coalition members on coalition structure and processes including coalition functioning, leadership,
and effectiveness of effort. This document contains the English version and a Spanish translation.
For use and/or adaptations of this document, please credit Erin Kenney, Ph.D. and Shoshanna
Sofaer, Dr.PH., School of Public Affairs, Baruch College, City University of New York, 2000.
Contact Information
Allies Against Asthma National Program Office
Center for Managing Chronic Disease
University of Michigan
109 South Observatory Street
Ann Arbor, MI 48109-2029
Phone: 734-615-3312
Fax: 734-763-7379
E-mail: asthma@umich.edu
www.AlliesAgainstAsthma.net
Allies Against Asthma is a national project supported by the Robert Wood Johnson Foundation. Direction and technical assistance
is provided by the National Program Office at the University of Michigan Center for Managing Chronic Disease.
COALITION
SELF-ASSESSMENT SURVEY
(Coalition Name)
Administration Method:
(check one)
Language:
(check one)
____ English
____ Spanish
Please answer questions as they pertain to the past year of your involvement or the time period
since joining the coalition within the past year.
Sample Question
S1. Please circle a number for each answer as in the sample answer:
1. no
2. yes
ROLE IN COALITION
Q1. What is your role in the coalition? Circle more than one response, if appropriate.
Q2a. If you are an individual member not representing an organization, please specify your role
(for example, “parent”)
_______________________
Q2b. If an individual member not representing an organization, how long have you been an
individual member of the coalition?
Q4. If a representative of an organization, how long has your organization been represented in
the coalition?
Q6. In your opinion, does your coalition have sufficient representation from groups,
organizations, and/or schools in your community to accomplish the objectives of the
coalition?
1. No
2. Yes
3. Don’t Know
Q6b. If you have circled one or more groups above as being not well represented, please select
the SINGLE group you think is most important to add to the coalition at this time.
Write the number of the group in this box:
Q8. In your opinion, do new members receive adequate orientation to be effective members of
the coalition?
1. No
2. Yes
3. Don’t know
Q9. Of those that represent organizations, please circle the number which best represents your
opinion about the number of members who participate in your coalition who have
enough authority to make commitments of resources or other support for the coalition.
Q10. Please circle the number below that shows how much influence you think the person or
group has in deciding on the actions and policies for your coalition.
a) Coalition Chair 1 2 3 4
c) Lead Staff 1 2 3 4
d) Coalition Members 1 2 3 4
Q11. Please circle a number to show how much influence you personally have in making
coalition decisions.
1 2 3
Q12. How are decisions usually made regarding coalition priorities, policies and actions?
Circle the number of the main way(s) you think decisions are usually made.
(CIRCLE NO MORE THAN TWO):
Q13. Please circle a number to show how comfortable you are overall with the coalition
decision-making process.
1 2 3
Q14a. Circle the number that represents the amount of conflict in your coalition.
Q15. Please circle the main strategy your coalition has used to address conflicts that occur.
(CIRLCE NO MORE THAN TWO):
Q16. Who do you think is most significant in providing leadership for your coalition?
(CIRCLE ONLY ONE NUMBER):
1. Coalition Chair
2. Coalition Officers or Committee Chairs
3. Lead Staff
4. Coalition Members
5. Other
6. Don’t Know
e) Controls decisions 1 2 3 4 5
l) Controls discussions 1 2 3 4 5
o) Is ethical 1 2 3 4 5
1. Coalition Chair
2. Coalition Officers or Committee Chairs
3. Lead Staff
4. Coalition Members
5. Don’t know
Q19. Please circle a number to show how much you agree or disagree with each statement.
Q21. Please circle a number to show how much you agree or disagree with the following
statements.
1. References:
Israel B.A., Schurman S.J., House J.S. Action research on occupational stress: involving workers as researchers.
International Journal of Health Services 19(1): 135-155, 1989.
Israel B.A., Lantz P.M., McGranaghan, R.J., Kerr, D.L., Guzman, J.R. Documentation and evaluation of CBPR
partnerships: In-depth interviews and closed-ended questionnaires. In Methods in Community-Based Participatory
Research for Health Israel, B.A., Eng E., Schulz, A.J., Parker, E.A., eds. John Wiley & Sons, San Francisco, CA,
225-283, 2005.
Israel B.A., Lantz P.M., McGranaghan, R.J., Kerr, D.L., Guzman, J.R. Detroit Community-Academic Urban
Research Center. Closed-ended survey questionnaire for board evaluation, 1997-2002. In Methods in Community-
Based Participatory Research for Health Israel, B.A., Eng E., Schulz, A.J., Parker, E.A., eds. John Wiley & Sons,
San Francisco, CA, 430-433, 2005.
Q22. Please circle a number to show how much you agree or disagree with the following
statements.
Q23. Please circle a number to show how much you agree or disagree with the following
statements.
Q24. Over the past year, how involved have you been in coalition activities?
Q25. Please circle a number to show how many times over the last year you personally have
done the following for the coalition:
b) Served as a spokesperson 1 2 3 4 5
Q26. Please circle a number to show how much you agree or disagree with the following
statements:
Q28. Please circle a number to show to what extent each of the following has been a benefit to
your participation or your organization’s participation on the coalition.
Q30. From your organization’s perspective (if applicable), do the benefits of participation in
the coalition appear to outweigh the costs at this point?
1. No
2. Yes
3. I do not represent an organization on the coalition
Q31. From your own professional and/or personal perspective, do the benefits of participation in
the coalition appear to outweigh the costs at this point?
1. No
2. Yes
3. Don’t know
Q32. Please circle a number to show how much you agree or disagree with the following
statements.
ASTHMA KNOWLEDGE
Q33. Do you feel you have adequate knowledge about childhood asthma to function effectively
in the coalition?
1. No
2. Yes
Q34. Has the coalition helped you learn more about childhood asthma?
1. No
2. Yes
Q35. Has your coalition been responsible for activities or programs that
otherwise would not have occurred?
1. No
2. Yes
3. Don’t know
1. No
2. Yes
3. Don’t know
Q37. Please circle a number to show how much you agree or disagree with the following
statements.
Q38. Please circle a number to show how much you agree or disagree with the following
statements.
Q40. What issues should the coalition leadership and staff be paying more attention to?
Q41. Are there any critical events over the past year that have had an impact on the coalition?
Please describe.
1. Female
2. Male
1. African American/Black
2. White
3. Asian American
4. Native Hawaiian or other Pacific Islander
5. Native American
6. Latino or Hispanic
If Latino or Hispanic, do you consider yourself:
6.1. Puerto Rican/ “Newyorrican”
6.2. Mexican/Mexican American/Chicano
6.3. Cuban/Cuban American
6.4. Dominican
6.5. Other Spanish-Caribbean
6.6. Central American
6.7. South American
6.8. Other Latino/Hispanic (please specify): _____________
7. Other Race or Ethnicity (please specify): _____________
_____ YEARS
1. Grade 6 or less
2. Grade 7 or 8
3. Some high school
4. Graduated from high school
5. Graduated from technical or vocational school
6. Some college
7. Graduated from college
8. Some graduate school
9. Completed graduate school
D5. Did you complete this survey when it was administered a year ago?
1. No
2. Yes
3. Don’t Know
Por favor conteste las preguntas que corresponden al último año de su participación, o al período
dentro de ese año que Ud. se hizo miembro de la coalición.
Ejemplo de preguntas
S1. Por favor circule el número para cada respuesta basándose en este ejemplo:
1. No
2. Sí
ROL EN LA COALICION
Q2. ¿Es Ud. parte de la coalición como miembro individual o como representante de una
organización? Por favor circule el 1, el 2 ó ambos, si aplica.
Q2a. Si es usted miembro individual, que no representa una organización, por favor especifique
su rol. (por ejemplo, padre/madre/encargado) __________________________________
Q2b. Si es un miembro individual, que no representa una organización, ¿hace cuánto tiempo ha
sido miembro individual de la coalición?
_____ AÑOS _____ MESES _____ NO SE/NO SABE _____ NO APLICA
Q4. Si Ud. representa una organización, ¿hace cuánto tiempo que su organización está
representada en la coalición?
1. No
2. Sí
3. No sabe/No sé
Q6b. Si Ud. ha circulado uno o más de los grupos mencionados arriba como uno que no
está bien representado, por favor seleccione SOLO UN grupo que usted piensa
sea el más importante para ser incluido en la coalición en este momento.
Escriba el número del grupo en este encasillado:
Q6c. ¿Por qué piensa Ud. que el grupo identificado como el más importante para incluir
en la coalición no está bien representado en este momento? (Circule todos los que
apliquen):
1. No
2. Sí
3. No sabe/No sé
Q8. En su opinión, ¿reciben los miembros nuevos una orientación adecuada para ser miembros
efectivos de la coalición?
1. No
2. Sí
3. No sabe/No sé
Q9. De aquellos que representan organizaciones, por favor circule el número que representa
mejor su opinión acerca del número de miembros que participan en su coalición y que
tienen suficiente autoridad para comprometer recursos u otro apoyo para la coalición:
1. Menos de una cuarta parte de los miembros
2. Menos de la mitad de los miembros
3. Más de la mitad de los miembros
4. Casi todos los miembros
5. No aplica/No sabe/No sé
Q10. Por favor circule abajo el número que indique cuánta influencia usted cree tiene la
persona o grupo en tomar decisiones sobre acciones y políticas para su coalición.
Ninguna Alguna Mucha No Aplica
Influencia Influencia Influencia
a) Presidente/Director de la coalición 1 2 3 4
b) Oficiales de la coalición o 1 2 3 4
presidentes/directores de los comités
c) Personal directivo 1 2 3 4
d) Miembros de la coalición 1 2 3 4
Q11. Por favor circule el número que indique cuanta influencia Ud. tiene personalmente en la
toma de decisiones de la coalición:
Ninguna Influencia Alguna Influencia Mucha Influencia
1 2 3
Q13. Por favor circule el número que indique cuan cómodo Ud. está generalmente con el
proceso de toma de decisiones de la coalición:
Nada cómodo Algo cómodo Muy cómodo
1 2 3
Q14. Por favor circule el número que indique cuanto Ud. está de acuerdo o en desacuerdo con
lo siguiente:
m) Choque de personalidades 1 2 3 4
Q15. Por favor circule la estrategia principal que su coalición ha utilizado para manejar
conflictos que suceden.
(NO CIRCULE MÁS DE DOS):
1. Debate abierto sobre puntos de vista opuestos
2. Posponiendo o evitando discusiones sobre asuntos controversiales
3. Teniendo una tercera persona para actuar como mediador entre aquellos con puntos de
vista opuestos
4. Haciendo que las partes en conflicto lleguen a negociar directamente una con la otra
5. Una de las partes en conflicto cede
6. No sabe/No sé
Q16. ¿Quién cree Ud. es la persona más significativa en ejercer liderato para su coalición?
(CIRCULE SOLO UN NÚMERO):
1. Presidente/Director de la coalición
2. Oficiales de la coalición o los presidentes/directores de los comités
3. Personal directivo
4. Miembros de la coalición
5. Otro(s)
6. No sabe/No sé
s) Es respetado/a en la coalición 3 4 5
1 2
dd) Es ético/a 3 4 5
1 2
1. Presidente/Director de la coalición
2. Oficiales de la coalición o los presidentes/directores de los comités
3. Personal directivo
4. Miembros de la coalición
5. No sabe/No sé
Q19. Por favor circule el número que indique cuanto está de acuerdo o en desacuerdo con lo
siguiente:
Q21. Por favor circule el número que indique cuanto Ud está de acuerdo o en desacuerdo con lo
siguiente:
1. References:
Israel B.A., Schurman S.J., House J.S. Action research on occupational stress: involving workers as researchers.
International Journal of Health Services 19(1): 135-155, 1989.
Israel B.A., Lantz P.M., McGranaghan, R.J., Kerr, D.L., Guzman, J.R. Documentation and evaluation of CBPR
partnerships: In-depth interviews and closed-ended questionnaires. In Methods in Community-Based Participatory
Research for Health Israel, B.A., Eng E., Schulz, A.J., Parker, E.A., eds. John Wiley & Sons, San Francisco, CA,
225-283, 2005.
Israel B.A., Lantz P.M., McGranaghan, R.J., Kerr, D.L., Guzman, J.R. Detroit Community-Academic Urban
Research Center. Closed-ended survey questionnaire for board evaluation, 1997-2002. In Methods in Community-
Based Participatory Research for Health Israel, B.A., Eng E., Schulz, A.J., Parker, E.A., eds. John Wiley & Sons,
San Francisco, CA, 430-433, 2005.
Q22. Por favor circule el número que indique cuanto está de acuerdo o en desacuerdo con lo
siguiente:
Firmemente En De Firmemente No sabe/
en desacuerdo acuerdo de acuerdo No sé
desacuerdo
Q23. Por favor circule el número que indique cuanto está de acuerdo o en desacuerdo con lo
siguiente:
Firmemente En De Firme- No sabe/
en desacuerdo acuerdo mente de No sé
desacuerdo acuerdo
Q24. Durante el último año, ¿cuán involucrado ha estado Ud. en las actividades de la coalición?
Q26. Por favor circule el número que indique cuanto Ud está de acuerdo o en desacuerdo con lo
siguiente:
Firmemente En De Firme- No sabe/
en desacuerdo acuerdo mente de No sé
desacuerdo acuerdo
Q30. Desde el punto de vista de su organización (si aplica), ¿los beneficios de participar en la
coalición en este momento sobrepasan los costos (por ejemplo, esfuerzo y tiempo
invertido)?
1. No
2. Sí
3. No represento ninguna organización en la coalición
Q31. Desde el punto de vista personal y/o profesional, ¿los beneficios de participar en la
coalición en este momento sobrepasan los costos (por ejemplo, esfuerzo y tiempo
invertido)?
1. No
2. Sí
3. No sabe/No sé
Q33. ¿Cree Ud. que tiene un conocimiento adecuado sobre el asma pediátrica para funcionar
efectivamente en la coalición?
1. No
2. Sí
1. No
2. Sí
Q35. ¿Ha sido su coalición responsable de actividades o programas que de otra forma no
hubieran ocurrido?
1. No
2. Sí
3. No sabe/No sé
1. No
2. Sí
3. No sabe/No sé
Q37. Por favor circule el número que indique cuanto Ud. está de acuerdo o en desacuerdo con
lo siguiente:
Q38. Por favor circule el número que indique cuanto Ud. está de acuerdo o en desacuerdo con
lo siguiente:
Q40. ¿A qué asuntos le deberían prestar mayor atención los directores/líderes de la coalición y
su personal?
Q41. ¿Ha habido algún evento crítico en el año pasado que haya tenido algún impacto en la
coalición? Por favor descríbalo.
D1. Sexo:
1. Mujer
2. Hombre
1. Africano Americano/Negro
2. Blanco
3. Asiático Americano
4. Nativo de Hawaii u otras Islas del Pacífico
5. Indio Americano
6. Latino o Hispano
Si su respuesta es Latino o Hispano, usted se considera:
6a. Puertorriqueño/“Newyorrican”
6b. Mejicano/Mejicanoamericano/Chicano/a
6c. Cubano/Cubanoamericano/a
6d. Dominicano/a
6e. Otro/a caribeño/a hispano/a
6f. Sur americano/a
6g. Otro latino/Hispano/a
7. Otra raza o etnicidad (por favor especifique):_______________________
______ Años
D4. Su educación:
D5. ¿Completó usted este cuestionario cuando fue administrado el año pasado?
1. No
2. Sí
3. No sabe
Contact Information
Allies Against Asthma National Program Office Phone: 734-615-3312
Center for Managing Chronic Disease Fax: 734-763-7379
University of Michigan E-mail: asthma@umich.edu
109 South Observatory Street www.AlliesAgainstAsthma.net
Ann Arbor, MI 48109-2029
This is a product of Allies Against Asthma, a national project supported by The Robert Wood Johnson Foundation. Direction and
technical assistance is provided by the National Program Office at the University of Michigan Center for Managing Chronic Disease.
Allies Against Asthma Key Informant Interview Guide
Baseline for Coalition Leaders or Staff
A. BACKGROUND
First I’d like to learn about your role in local AAA name and how you became involved.
1. When did you first get involved with local AAA name? ________ mo/yr
How did you find out about the coalition?
(probe for past involvement with asthma issues)
2. How would you describe your involvement in the coalition? Probe for specific
committees and intervention activities.
Probes: Why did you choose to get involved with the coalition? How has your
role changed over the life of the coalition? What changes do you
anticipate in the future? What motivates you personally to participate?
If person is a coalition staff member, What was your previous job?
If person represents an organization, What is your position? How did the
organization become involved? What was the organization’s
involvement in asthma prior to joining the coalition?
3. What previous activities in this community, if any, did local AAA name build on?
(probe for earlier coalitions and activities either directly or indirectly related to
asthma)
B. PLANNING PROCESS
Next, I’d like to discuss the process that local AAA name used to develop its goals and
interventions.
1. What strategies did the coalition use to bring relevant players to the table?
3. What have been the major challenges faced by the coalition so far? How did you
overcome them?
4. What have been the major strengths of the coalition to date? How does the coalition
build on these?
Now I’d like to talk about the goals that local AAA name set through the planning
process and the interventions that you are beginning to implement.
2. How satisfied are you overall with the interventions the coalition has planned?
Do they target what is important? Do they reflect the needs of the community?
(probe for creativity and out-of-the-box thinking)
3. Thinking about the specific interventions, which ones could have been conceived
and implemented by one of the member organizations acting alone?
Probes: Which interventions could only have been generated through collective
thinking and action? (ask for specific examples using matrix if needed)
To what extent do they require multiple organizations and/or groups to
work together to be successful?
Did these groups work together before this coalition was formed?
In what ways has the coalition supported and encouraged these partners to
work together? (probe for issues of trust, conflict, leadership)
D. IMPACTS
Next, I’d like to talk about what impacts the coalition is having on you personally, the
organizations you are associated with, and the community at large.
1. How has being involved with this coalition been of benefit to you? Has
participation changed the way you personally think about or approach asthma? Have
these changes in your thinking translated into specific actions already? (If yes, probe
for examples). How might they in the future?
Probes: Has the presence of the coalition in the community had any effect on
a) the level of exchange of resources and information among
organizations? (probe for formal agreements/structures)
b) the ability of member organizations to secure additional resources
for asthma control? (probe for new funding, in-kind services)
c) the ability of member organizations to pursue related goals, such as
other pediatric health issues, or asthma control among other
populations? (probe for examples of applying new knowledge, skills,
connections)
4. How visible is the coalition in this community? (probe for media coverage,
visibility within top levels of key organizations, public awareness)
5. Has the coalition had an effect on support for pediatric asthma prevention and
control programs in this community? (probe for legislative/governmental
involvement, increase in community involvement, nonmembers expressing interest
in the coalition activities/results, dissemination of results within community, new
policies, changes in clinical care systems, new systems introduced into the
community)
6. Are there any other benefits or impacts of the coalition that you have observed at this
point in time? (probe for application of knowledge/skills beyond those directly
funded)
7. Thinking about all of the impacts we just discussed, which of these do you think
might have happened even without the coalition?
Next, I’d like to talk a little bit about what lies ahead for the coalition.
1. What are the main interventions that will be going on in the next two years?
Probes: What organizations are involved? What will your role be?
What results do you expect from those interventions?
2. What, if any, major challenges do you anticipate in the future as the coalition
implements this plan?
3. What would you like to see occur for you to feel that local AAA name has been a
success?
F. NPO
Last, I’d like to ask you a couple of questions about the National Program Office of
Allies Against Asthma.
1. Are you familiar with the NPO? (If not, explain that the Univ. of Michigan
serves as a coordinating center for the 7 community coalitions funded under AAA)
A. BACKGROUND
First I’d like to learn about your role in local AAA name and how you became involved.
1. When did you first get involved with local AAA name? ________ mo/yr
How did you find out about the coalition?
(probe for past involvement with asthma issues)
Probe: Why did you choose to get involved with the coalition? How has your
role changed over the life of the coalition? What changes do you
anticipate in the future? What motivates you personally to participate?
If person represents an organization, What is your position? How did the
organization become involved? What was the organization’s
involvement in asthma prior to joining the coalition?
3. What previous activities in this community, if any, did local AAA name build on?
(probe for earlier coalitions and activities either directly or indirectly related to
asthma)
B. PLANNING PROCESS
Next, I’d like to discuss the process that local AAA name used to develop its goals and
interventions.
1. What strategies did the coalition use to bring relevant players to the table?
2. During the planning phase, how responsive do you feel that the coalition has been to
your needs? To the needs of the other participants?
4. What have been the major strengths of the coalition to date? How does the coalition
build on these?
Now I’d like to talk about the goals that local AAA name set through the planning
process and the interventions that you are beginning to implement.
2. How satisfied are you overall with the interventions the coalition has planned?
Do they target what is important? Do they reflect the needs of the community?
(probe for creativity and out-of-the-box thinking)
3. Thinking about the specific interventions, which ones could have been conceived
and implemented by one of the member organizations acting alone?
Probes: Which could only have been generated through collective thinking and
action? (ask for specific examples using matrix if needed)
To what extent do they require multiple organizations and/or groups to
work together to be successful?
Did these groups work together before this coalition was formed?
In what ways has the coalition supported and encouraged these partners to
work together? (probe for issues of trust, conflict, leadership)
D. IMPACTS
Next, I’d like to talk about what impacts the coalition is having on you personally, the
organizations you are associated with, and the community at large.
1. How has being involved with this coalition been of benefit to you? Has
participation changed the way you personally think about or approach asthma? Have
these changes in your thinking translated into specific actions already? (If yes, probe
for examples). How might they in the future?
Probes: Has the presence of the coalition in the community had any effect on
a) the level of exchange of resources and information among
organizations? (probe for formal agreements/structures)
b) the ability of member organizations to secure additional resources
for asthma control? (probe for new funding, lobbying, in-kind services)
c) the ability of member organizations to pursue related goals, such as
other pediatric health issues, or asthma control among other
populations? (probe for examples of applying new knowledge, skills,
connections)
4. How visible is the coalition in this community? (probe for media coverage,
visibility within top levels of key organizations, public awareness)
5. Has the coalition had an effect on support for pediatric asthma prevention and
control programs in this community? (probe for legislative/governmental
involvement, increase in community involvement, nonmembers expressing interest
in the coalition activities/results, dissemination of results within community, new
policies, changes in clinical care systems, new systems introduced into the
community)
6. Are there any other benefits or impacts of the coalition that you have observed at this
point in time? (probe for application of knowledge/skills beyond those directly
funded)
7. Thinking about all of the impacts we just discussed, which of these do you think
might have happened even without the coalition?
Next, I’d like to talk a little bit about what lies ahead for the coalition.
1. What are the main interventions that will be going on in the next two years?
Probes: What organizations are involved? What will your role be?
What results do you expect from those interventions?
2. What, if any, major challenges do you anticipate in the future as the coalition
implements this plan?
3. What would you like to see occur for you to feel that local AAA name has been a
success?
F. NPO
Last, I’d like to ask you a couple of questions about the National Program Office of
Allies Against Asthma.
1. Are you familiar with the NPO? (If not, explain that the Univ. of Michigan
serves as a coordinating center for the 7 community coalitions funded under AAA)
A. BACKGROUND
I’d like to begin by having you tell me a little bit about yourself and what you do that
brings you in contact with asthma control issues in your community.
1. What are your major job-related activities and responsibilities? (probe for how
these relate to asthma control issues)
2. How did you first learn about local AAA name? When was this?
3. What specific activities, if any, bring you in contact with local AAA name?
4. Do you or your organization currently provide any support to the coalition? Why or
why not?
1. How do you see the role of local AAA name in the community?
2. Do you think local AAA name meets an important need? Please explain (probe
for their perspective on what the needs are and which of these the coalition could
or could not appropriately address)
D. IMPACTS
Next, I’d like to talk about what impacts the coalition is having on you personally, the
organizations you are associated with, and the community at large.
1. What benefits, if any, have you or your organization experienced from the presence
of local AAA name in the community?
2. How visible is local AAA name in this community? (probe for media coverage,
visibility within top levels of key organizations, public awareness)
4. What, if any, other benefits or impacts of local AAA name have you observed at this
point in time?
E. FUTURE IMPACTS
Last, I’d like to talk a little bit about what lies ahead.
1. What interaction do you or your organization expect to have with local AAA
name over the next two years? (probe for support they might provide)
2. What would you like to see occur for you to feel that local AAA name has been a
success in this community?
A. BACKGROUND
First I’d like to learn about how your role in local AAA name may have changed since we
last spoke.
1. What have been your primary responsibilities or activities in the past year? How
does this differ from your earlier role?
Next, I’d like to discuss how the membership of local AAA name may have changed in
the past year and any significant changes you perceive in how the coalition operates.
1. How, if at all, has the membership in the coalition changed in the past year?
Probes: Who (sectors) is active that wasn’t before? Are they new to asthma
control?
Have any members dropped out? Why do you think they have left?
Are all important sectors currently represented?
2. What changes have there been in work group structure, decision-making procedures,
meeting schedules, or other operations of the coalition?
Probes: Why have these changes occurred? What effect do you think these
changes have had on the activities or effectiveness of the coalition?
[If staff or PI, probe for changes in staffing or lead agency]
3. What have been the major challenges faced by the coalition in the past year? How
does the coalition overcome them?
4. What have been the major strengths of the coalition in the past year? How does the
coalition build on these?
Before we move on to talking about the impacts of the coalition, I’d like to ask about
the status of goals or interventions that you had established when we last spoke over a
year ago.
2. Are there any interventions that have become inactive in the past year? Please
describe them and explain what motivated these developments.
3. Has the coalition established any new goals or developed new interventions in the
past year? Please describe them and explain what you think motivated these
developments. What funding/resources/infrastructure do you have to begin and
maintain these interventions?
4. At this point in time, how satisfied are you overall with the interventions the
coalition is implementing? Do they target what is important? Do they reflect the
needs of the community? (probe for creativity and out-of-the-box thinking)
D. IMPACTS
Next, I’d like to talk about what impacts the coalition is having on you personally, the
organizations you are associated with, and the community at large. We asked you about
impacts last time we spoke. This time, I would like you to focus your answers on what has
occurred since we last spoke.
1. Since we last spoke, have you experienced any additional personal benefits of
participation in the coalition? How has being involved with this coalition been of
benefit to you? Has participation changed the way you personally think about or
approach asthma or your work in general? Have these changes in your thinking
translated into specific actions already? (If yes, probe for examples). How might
they in the future?
2a. How has this coalition changed the activities and/or approaches of other
organizations or the way they interact with each other?
4. How visible is the coalition in this community currently? (probe for media
coverage, visibility within top levels of key organizations, public awareness,
dissemination of results)
8. Has the coalition had an effect on pediatric asthma prevention and control in this
community? We define community broadly to include homes, clinics, schools,
public policies, and interactions among these and other sectors (probe for
environmental changes in homes, changes in community settings that improve
patient self-management and family capacity building, provider training, changes
in supportive policies, legislative/governmental involvement, changes in clinical
care systems, new systems introduced into the community)
9. Are there any other benefits or impacts of the coalition that you have observed at this
point in time? (probe for application of knowledge/skills beyond those directly
funded)
10. Thinking about all of the impacts we just discussed, which of these do you think
might have happened even without the coalition?
E. FUTURE IMPACTS
Last, I’d like to talk a little bit about what lies ahead for the coalition.
1. What do you hope to achieve during this remaining period of Allies funding?
2. Do you feel that local AAA name has been a success? In what way?
4. After RWJF funding ends, what does the future look like for the coalition itself?
For the primary interventions? Will they continue and if so, how? (probe for
institutionalization through the coalition, member organization, or individual
member involvement) Why were these choices made?
5. Are there any additional comments you would like to share about being part of
this coalition?
A. BACKGROUND
I’d like to begin by learning how your role in asthma control issues in your community
may have changed since we last spoke.
1. What are your current activities and responsibilities as they relate to asthma control?
2. What contact, if any, have you had with local AAA name since we last spoke? Do
you provide any support to the coalition?
1. How do you see the role of local AAA name in the community?
2. Do you think local AAA name meets an important need? Please explain (probe
for their perspective on what the needs are and which of these the coalition could
or could not appropriately address)
D. IMPACTS
Next, I’d like to talk about what impacts the coalition is having on you personally, the
organizations you are associated with, and the community at large.
1. What benefits, if any, have you or your organization experienced from the presence
of local AAA name in the community?
2. How visible is local AAA name in this community? (probe for media coverage,
visibility within top levels of key organizations, public awareness)
3. How, if at all, has local AAA name affected support for pediatric asthma
prevention and control programs in this community?
E. FUTURE IMPACTS
Last, I’d like to talk a little bit about what lies ahead.
1. What interaction do you or your organization expect to have with local AAA
name in the next year or beyond? (probe for support they might provide during
current funding period and beyond)
2. What would you like to see occur for you to feel that local AAA name has been a
success in this community? Have you witnessed any progress towards this
definition of success since we last spoke?
Description
Included in this document is a selection of forms that can be used to track coalition
activities. The forms were developed by Allies Against Asthma for Program Reach, a web-
based database used to capture data on the extent of coalition activities. Program Reach is a
password-protected, site-specific tracking system used by coalition staff to enter data that
describes the coalition activities conducted including the number and type of program
participants, topics addressed and settings in which activities were conducted.
Contact Information
Allies Against Asthma National Program Office Phone: 734-615-3312
Center for Managing Chronic Disease Fax: 734-763-7379
University of Michigan E-mail: asthma@umich.edu
109 South Observatory Street www.AlliesAgainstAsthma.net
Ann Arbor, MI 48109-2029
Allies Against Asthma is a national project supported by the Robert Wood Johnson Foundation. Direction and technical assistance
is provided by the National Program Office at the University of Michigan Center for Managing Chronic Disease.
I. Training Individuals who Work with Children with Asthma
Curriculum/Description: (specify) Setting where Participants Work:
(check all that apply)
Clinic
Head Start
Emergency Department
Participants:(enter number of Elementary School
participants) Hospital (Non-Emergency Department)
Medical Providers Middle/Junior High
Physicians Private Medical Practice
Nurses High School
Other Allied Health Day Care
Professionals After-School/Parks & Rec.
Medical Office Staff Preschool
Other (specify): Health Education Center
Community Based Organization
Other (specify):
School-Based/Day Care/HeadStart
Personnel
Topics Addressed: (check all that apply)
Administrators
Asthma Basics
Engineers/Custodians
Recognition of Asthma Emergency
Physical Education
Case Finding
Staff/Coaches
Self Management Skills
School Nurses
Medical Therapies
Teachers
Communication Skills
Day Care/HeadStart Workers
Improving Environmental Conditions
Other (specify):
Tobacco Cessation
Policies and Procedures
Interviewing Skills
Other (specify):
Others Who Work with Children with
Asthma
Community Health Workers
Health Educators Curriculum/Program Period
Social Workers Term of Activity (check one)
Community Agency Staff ° Time Limited Activity On-Going Activity
Community Volunteer
WIC Staff Reporting Period/Date of Activity
After-School/Parks and Start Date
Recreation Staff (mm/dd/yyyy): ______________
Other (specify): End Date
(mm/dd/yyyy): ______________
Number of Comments:
training sessions:
Number of total
educational hours:
_____________________________________________________________________________________________________________________
Allies Against Asthma 5 Program Reach Forms 2 of 8
II. Care Coordination
Reporting Period:
Start Date (mm/dd/yyyy) _______
End Date (mm/dd/yyyy) _______
_____________________________________________________________________________________________________________________
Allies Against Asthma 5 Program Reach Forms 3 of 8
III. Home Visiting
Visits Conducted By: (Check all that apply) Age of Target Population:
Community Health Worker/Outreach (Check all that apply)
Worker 0 - 5 year olds
Nurse Public Health Nurse Elementary School
Social Worker Middle/Junior High
Health Educator High School
Other (specify): Above High School
Visits Conducted:
Number of Homes Visited _______
Number of Children Visited _______
Number of Total Visits _______
Number of First Visits _______
Zip Codes of Homes Visited:
Program Focus: (Check all that apply)
Education
For Example:
Asthma Basics
Self-management Skills Reporting Period:
Environmental Triggers Start Date (mm/dd/yyyy)
Advocacy Skills End Date (mm/dd/yyyy)
Environmental Action
For Example:
Environmental Assessment
Comments:
Smoking Cessation
Distribution of Trigger Reduction
Materials
Case Management
For Example:
Referrals
Other Social Issues
Other (specify):
_____________________________________________________________________________________________________________________
Allies Against Asthma 5 Program Reach Forms 4 of 8
IV. Educating Children with Asthma and/or Their
Parents/Caregivers Outside of Their Home
Curriculum: Participants:
Title or Description: (specify) Group or Individual:
° Group °Individual
Number of Sessions
Children with Asthma
Topics Addressed: (Check all that
Number of Children ________
apply)
Number of New Children ________
Asthma Basics
Number of Total Educational Hours_______
Self Management Skills
Parents/Caregivers
Medications and Equipment
Number of Parents/Caregivers ________
Environmental Triggers
Number of New Parents/Caregivers _______
Advocacy Skills
Number of Total Educational Hours_______
Peer Support
Other (specify):
Period and Location of Activity:
Term of Activity: (check one)
° Time Limited Activity °On-Going Activity
Setting: (check all that apply) Reporting Period:
Day Care Start Date (mm/dd/yyyy) __________
Pre School End Date (mm/dd/yyyy) __________
Head Start/Early Head Start Zip Codes:
Elementary School
Middle/Junior High
High School
After-school/Parks and Recreation
Clinic Comments:
Emergency Department
Hospital (Non-ED)
Asthma Camp
Community
Other (specify):
_____________________________________________________________________________________________________________________
Allies Against Asthma 5 Program Reach Forms 5 of 8
V. Actions to Improve Physical Environmental Conditions within
Institutions
° Elementary School
° Middle/Junior High
° High School Comments:
Mold/Spore Reduction
Pest Management
Other (specify):
_____________________________________________________________________________________________________________________
Allies Against Asthma 5 Program Reach Forms 6 of 8
VI. Quality Improvement
Systems Involved (provide numbers)
____ In-Patient Hospital Breadth of Activity (optional)
____ Number of Charts Audited/Abstracted
____ Emergency Department ____ Number of Incentives Provided
____ Number of Participants Provided Feedback on
____ Primary Care Physicians Performance
____ Other (specify):
____ Specialists
____ Clinic
____ Daycare/Preschool/Headstart
Describe/Comments:
____ Home Visiting Program
Target Population/Participants:
(provide numbers for all that apply)
____ Physicians
____ Nurses
____ Educators
____ Clerks/Administrative
Personnel
_____________________________________________________________________________________________________________________
Allies Against Asthma 5 Program Reach Forms 7 of 8
VII. General Community Awareness Activities
_____________________________________________________________________________________________________________________
Allies Against Asthma 5 Program Reach Forms 8 of 8
ALLIES AGAINST ASTHMA
ASTHMA CORE CAREGIVER SURVEY
Instrument Description
The Asthma Core Caregiver Survey can be used to assess individual-level asthma-
related outcomes. This instrument is a compilation of previously existing surveys
designed to collect self-report data about asthma management, exposures to
community events and programs, and outcomes. It was designed to measure
individual outcomes between baseline and follow-up periods within an intervention
and control/comparison group. It measures the following:
• Quality of Life: The Paediatric Asthma Quality of Life Questionnaire was used to
measure quality of life. (To obtain this questionnaire and additional information
about its use, please go to http://www.qoltech.co.uk/PaedAsthma.htm )
• Asthma Symptoms
• Exposure to Asthma-Related Community Events and Programs
• Parent Asthma Management Strategies
• Hospitalizations and Emergency Department visits (self-report)
The English version and a Spanish translation are included in this document.
For use and/or adaptations of this document, please credit Allies Against Asthma
and the applicable references below.
REFERENCES
Quality of Life
Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend,
M. (1996). Measuring quality of life in the parents of children with asthma. Quality of
Life Research, 5, 27-34.
Asthma Symptoms
Evans, R. 3rd., Gergen, P.J., Mitchell, H., Kattan, M., Kercsmar, C., Crain, E.,
Anderson, J., Eggleston, P., Malveaux, F.J., Wedner H.J., (1999). A randomized
Allies Against Asthma is a national project supported by the Robert Wood Johnson Foundation. Direction and technical assistance
is provided by the National Program Office at the University of Michigan Center for Managing Chronic Disease.
clinical trial to reduce asthma morbidity among inner-city children: Results of the
National Cooperative Inner-City Asthma Study. Journal of Pediatrics, 135(3):332-8
Contact Information
Allies Against Asthma National Program Office
Center for Managing Chronic Disease
University of Michigan
109 South Observatory Street
Ann Arbor, MI 48109-2029
Phone: 734-615-3312
Fax: 734-763-7379
E-mail: asthma@umich.edu
www.AlliesAgainstAsthma.net
Allies Against Asthma is a national project supported by the Robert Wood Johnson Foundation. Direction and technical assistance
is provided by the National Program Office at the University of Michigan Center for Managing Chronic Disease.
ALLIES AGAINST ASTHMA
ASTHMA CORE CAREGIVER SURVEY
Administration Method:
(check one)
____ Self-administered
____ Interviewer-administered
If interviewer-administered:
Interviewer ID: _______
How interviewed? _____phone ______face-to-face
Language:
____ English
____ Spanish
____ Other _____________________
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 3 of 22
English version
Paediatric Asthma Caregiver’s Quality of Life Questionnaire
This section, two pages long, is not included in this document due to
copyright restrictions; to obtain this questionnaire and additional
information about its use, please go to
http://www.qoltech.co.uk/PaedAsthma.htm
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 4 of 22
English version
Asthma Symptoms
These next four questions ask about how asthma affects you and [CHILD] each
day. The questions ask about asthma symptoms during two different time periods:
in the last 14 days, and over the last 12 months.
S1. During the daytime in the last 14 days, how many days did [CHILD] have
asthma symptoms such as wheezing, shortness of breath, tightness in the chest, or
cough? ____Days
If respondent says it varies during the year ask “at the worst time how
many days a month? For how many months? And the rest of the year,
how many days a month?
If respondent says most of the time, or all of the time etc. restate the
response “do you mean a few days a week? How many?” “Do you mean
every day of the year?”
S2. During the nighttime in the last 14 nights, how many nights did [CHILD]
wake up because of asthma symptoms such as wheezing, shortness of breath,
tightness in the chest, or cough?
____Nights
These next two questions ask about hospitalizations and emergency visits over the
past 12 months.
S3. During the past 12 months (that is since _______), did [child] have to stay
overnight in the hospital because of asthma?
S4. Not counting hospitalizations, during the past 12 months, (that is, since
_______), did [child] go to an emergency room because of asthma?
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 5 of 22
English version
Items on Exposure to Community Events and Programs Related to
Asthma
Next are some questions about your community.
E1. Have you heard of (insert coalition name, program or other organization as appropriate)?
YES
NO
DON’T KNOW
If NO or DON’T KNOW: Go to #3
If YES, ask:
E2. How many times have you participated in activities or received help from (insert coalition
name, program or other organization as appropriate)?
E3. How often do you hear someone in your neighborhood talking about asthma?
VERY OFTEN
SOMETIMES
SELDOM
NEVER
DON'T KNOW
E4. Have you or your child talked with a doctor or nurse about your child’s asthma in the
last 6 months?
YES
NO
DON’T KNOW
E5. Has anyone visited your home to talk with you about your child’s asthma in the last
6 months?
YES
NO
DON’T KNOW
E6. Has anyone called you on the phone to talk with you about your child’s asthma in the
last 6 months?
YES
NO
DON’T KNOW
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 6 of 22
English version
E7. Have you or your child attended a class on asthma in your child's school in the last
6 months?
YES
NO
DON'T KNOW
E8. Have you or your child attended a class on asthma at any other place,
like a health clinic, neighborhood center, or church in the last 6 months?
YES
NO
DON'T KNOW
E9. Have you or your child participated in some other activity for people with
asthma such as a health fair, asthma camp, or neighborhood event in the last 6
months?
YES
NO
DON'T KNOW
E10. Have you heard a presentation on asthma in a church or some other community
organization in the last 6 months?
YES
NO
DON'T KNOW
E11. Have you received hand-outs or fliers or manuals on asthma in the last 6 months?
YES
NO
DON'T KNOW
E12. Have you noticed posters or billboards or other announcements in your neighborhood
about asthma in the last 6 months?
YES
NO
DON'T KNOW
E13. (Optional) Have you been to an asthma support group in the last 6 months?
YES
NO
DON’T KNOW
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 7 of 22
English version
Parent Asthma Management Strategies (long version)
Now I am going to ask some questions about things YOU may have done to manage [child’s] asthma at
home during the past 12 months. Some parents find some of these things helpful and others feel that they
are not helpful. For the past 12 months, please tell me whether you did these things to manage [child’s]
asthma
All the time, Fairly often, Not too often or Never......
c. Did you have [child] rest or play quietly [4] [3] [2] [1]
d. Did you take [child] away from what caused symptoms when [4] [3] [2] [1]
possible
e. Did you observe [child] to see if symptoms got better or worse [4] [3] [2] [1]
f. Did you ask someone for advice or help [4] [3] [2] [1]
g. Did you use a peak flow meter to try to predict [child’s] asthma [4] [3] [2] [1]
attacks
h. Did you watch [child] closely when symptoms began, in order to [4] [3] [2] [1]
determine how serious they were
i. Did you watch closely after giving [child] medicine to see if it [4] [3] [2] [1]
was working to reduce or stop symptoms
j. Did you try to identify things that might be triggering [child’s] [4] [3] [2] [1]
symptoms
k. Did you look for early warning signs of an asthma attack [4] [3] [2] [1]
l. Did you decide on your own whether or not the medicine was [4] [3] [2] [1]
working or needed to be changed
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 8 of 22
English version
m. Did you use some system or method for deciding when to change [4] [3] [2] [1]
the type or dose of medicine according to the changes in [child’s]
asthma symptoms
n. Did you determine if the changes you made in [child’s] [4] [3] [2] [1]
environment, for example, bedroom furnishings, household pets,
or air quality had any effect on [child’s] symptoms
o. Did you give [child] asthma medicines before s/he came in [4] [3] [2] [1]
contact with something that might cause asthma symptoms to
begin
For each item, please tell me how often you did these things: all the time, fairly often, not too
often, never.
All Fairly Not Never
How often did you: the Often too
time often
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 9 of 22
English version
6. Give (child’s name) asthma medicines before 4 3 2 1
he/she had contact with something that might cause
wheezing or coughing, for example, before entering a
smoky restaurant or before he/she played sports.
* Clark, N.M., Gong, M, Kaciroti, N. A model of self-regulation for control of chronic disease. Health
Education & Behavior 28(6):769-782, 2000.
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 10 of 22
English version
Demographics
Child
___ White
___ Black or African American
___ American Indian or Alaskan Native
___ Asian Indian
___ Chinese
___ Filipino
___ Japanese
___ Korean
___ Vietnamese
___ Other Asian (print race below)
___ Native Hawaiian
___ Guamanian or Chamorro
___ Samoan
___ Other Pacific Islander (print race below)
___ Other race (print race below)
(print race) ___________________________
D5. Is your child currently covered by health insurance? ___ Yes ___ No
If yes, what insurance? _________________
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 11 of 22
English version
Is that through Medicaid or CHIP (or whatever name appropriate for site)?_____
Primary Caregiver
___ White
___ Black or African American
___ American Indian or Alaskan Native
___ Asian Indian
___ Chinese
___ Filipino
___ Japanese
___ Korean
___ Vietnamese
___ Other Asian (print race below)
___ Native Hawaiian
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 12 of 22
English version
___ Guamanian or Chamorro
___ Samoan
___ Other Pacific Islander (print race below)
___ Other race (print race below)
(print race) ___________________________
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 13 of 22
English version
D13. What was your total family income before taxes last year? (Optional)
____________________
Or
D14. Which category best describes your total family income before taxes last year? (For
interviewer-administered: “Please stop me when I get to the category that best describes
your total income.”)
___________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 14 of 22
English version
ALIANZA CONTRA EL ASMA
ENCUESTA PARA EL ENCARGADO O
GUARDIÁN PRINCIPAL DE ASMA
Método de administración:
(marque uno)
____ Auto-administrado
____ Administrado por el entrevistador
Si fue administrado por el entrevistador:
ID. del entrevistador: _______
¿Cómo entrevistó? _______ Teléfono ______Cara a cara
Idioma:
____ Inglés
____ Español
____ Otro_____________________
_________________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 15 of 22
Spanish version
Cuestionario de la Calidad de Vida de la Persona Encargada
del Cuidado del Niño con Asma
This section, two pages long, is not included in this document due to copyright
restrictions; to obtain this questionnaire and additional information about its use,
please go to http://www.qoltech.co.uk/PaedAsthma.htm
_________________________________________________________________________________________
Allies Against Asthma 5 Asthma Core Caregiver Survey 16 of 22
Spanish version
Síntomas de asma
Las siguientes cuatro preguntas son acerca de cómo es que el asma los afecta a usted y a [nombre
del niño/a] cada día. Las preguntas se refieren a los síntomas del asma durante dos períodos de
tiempo distintos: durante los últimos 14 días y durante los últimos 12 meses.
S1. Durante el día en los últimos 14 días, ¿cuántos días tuvo [nombre del niño/a] silbidos (pitos)
al respirar, falta de aire, opresión en el pecho o tos?
Si el entrevistado responde que varía durante el año pregunte, “durante la peor época
¿cuántos días al mes? ¿Cuántos meses? Y durante el resto del año ¿cuántos días al
mes?”
Si el entrevistado responde la mayor parte del tiempo o todo el tiempo, etc. repita la
respuesta diciendo “¿Usted quiere decir unos pocos días a la semana? ¿Cuántos
días?” “¿Quiere decir todos los días del año?”
S2. Durante la noche en las últimas 14 noches, ¿cuántas noches se despertó [nombre del niño/a]
por el asma, con silbidos (pitos) al respirar, falta de aire, opresión en el pecho o tos?
Use las mismas preguntas que arriba, sustituyendo “días” con “noches.”
Las próximas dos preguntas son acerca de hospitalizaciones y idas a la sala de emergencia
durante los últimos 12 meses.
S3. Durante los últimos 12 meses (eso es desde ________), ¿[nombre del niño/a] tuvo que pasar
la noche en el hospital por el asma?
Sin contar las hospitalizaciones durante los últimos 12 meses, (eso es desde ________),
¿[nombre del niño/a] ha tenido que ir a la sala de emergencia por el asma?
_________________________________________________________________________________________
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Preguntas sobre la exposición a eventos y programas
de la comunidad relacionados con el asma
E1) ¿Ha oído acerca de (diga el nombre de la coalición, programa u otra organización que
corresponda)?
SÍ
NO
NO SABE
E2) ¿Cuántas veces ha participado en las actividades o recibido ayuda de (diga el nombre de la
coalición, programa u otra organización que corresponda)?
**Insista en aclarar si es a la semana, al mes, al año**
1 - ___ ___ / a la semana
2 - ___ ___ / al mes
3 - ___ ___ / al año
NUNCA
NO SABE
E3) ¿Con qué frecuencia escucha a alguien en su comunidad hablar acerca del asma?
E4) Durante los últimos seis meses, ¿usted o su niño con asma han hablado con un doctor o una
enfermera acerca del asma de su niño?
SÍ
NO
NO SABE
E5) Durante los últimos seis meses, ¿los ha visitado alguien en su casa para hablar acerca del
asma de su niño?
SÍ
NO
NO SABE
_________________________________________________________________________________________
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E6) Durante los últimos seis meses, ¿los ha llamado alguien por teléfono para hablar acerca del asma de
su niño?
SÍ
NO
NO SABE
E7) Durante los últimos seis meses, ¿usted o su hijo han asistido a una clase acerca del asma en la
escuela de su hijo?
SÍ
NO
NO SABE
E8) Durante los últimos seis meses, ¿usted o su hijo han asistido a una clase acerca del asma en algún
otro lugar como una clínica, el centro de su comunidad o iglesia?
SÍ
NO
NO SABE
E9) Durante los últimos seis meses, ¿usted o su hijo han participado en alguna otra actividad para
personas con asma tal como una feria de salud, un campamento para niños con asma o un evento en
su comunidad?
SÍ
NO
NO SABE
E10) Durante los últimos seis meses, ha asistido a una presentación acerca del asma en una iglesia u otra
organización en su comunidad?
SÍ
NO
NO SABE
E11) Durante los últimos seis meses, ¿ha recibido impresos, folletos informativos o manuales acerca del
asma?
SÍ
NO
NO SABE
E12) Durante los últimos seis meses, ¿ha visto carteles, letreros o anuncios acerca del asma en su
comunidad?
SÍ
NO
NO SABE
E13) (Opcional) Durante los últimos seis meses, ¿ha asistido a un grupo de apoyo de asma?
SÍ
NO
NO SABE
_________________________________________________________________________________________
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Demografía
Niño/a
___ Blanca
___ Negra, africana americana
___ India americana o nativa de Alaska
___ India asiática
___ China
___ Filipina
___ Japonesa
___ Coreana
___ Vietnamita
___ Otra asiática (Escriba abajo la raza en letra de molde)
___ Hawaiano nativo
___ Guam o Chamorro
___ Samoano
___ Otra de las islas del Pacifico (Escriba abajo la raza en letra de molde)
___ Alguna otra raza (Escriba abajo la raza en letra de molde)
___________________________
_________________________________________________________________________________________
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¿El seguro es por medio de Medicaid o CHIP (o cualquier nombre apropiado al lugar)?
__________________________
D9. ¿Cuál es su relación con [niño/a]? ___Madre ___Padre ___Abuela ___Abuelo ___ Tío/a
____Otro: (especifique) __________________
_________________________________________________________________________________________
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D12. ¿Cuál es el nivel más alto de educación que Ud. ha terminado?
Ponga UNA SOLA “X”.
Si Ud. está estudiando, por favor marque el nivel anterior al actual o el nivel más alto que haya
completado.
Entrevistador: No lea las respuestas. Marque la caja apropiada y tantee si es necesario.
D13. Antes de pagar impuestos ¿cuál fue el ingreso de su familia el año pasado?
(Opcional) _________________________
O
D14. ¿Qué categoría describe mejor el ingreso total de su familia, el año pasado, antes de pagar
impuestos? (Entrevistador: “Por favor párame cuando llegue a la categoría que describe
mejor sus ingresos totales.”)
___ Menos de $5,000
___ $5,001-$10,000
___ $10,000-$15,000
___ $15,001-$20,000
___ $20,001-$30,000
___ $30,001-$40,000
___ $40,001-$50,000
___ $50,001-$60,000
___ $60,001-$70,000
___ $70,001-$80,000
____$80,000 o más
_________________________________________________________________________________________
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APPENDIX A:
HOW ALLIES AGAINST ASTHMA USED
THESE CROSS-SITE EVALUATION
INSTRUMENTS
Context Survey
The Context Survey provided both quantitative and qualitative information about
coalition structure and functioning, the focus of coalition efforts and information
about the social, cultural and political environment of the community in which the
coalition operates. The survey is a semi-structured telephone interview that was
conducted by the National Program Office staff with 1-3 coalition members and
staff from each of the seven sites. Context surveys were conducted at baseline with a
second administration two years later to coincide with the Coalition Self-Assessment
Survey (CSAS) administration. Analyses include content analysis of coalition
structure, community readiness, and lessons learned by the coalitions. Data from the
context interviews will also be used to help interpret responses related to coalition
processes from the CSAS.
CSAS responses from all sites were combined and analyzed descriptively, and
bivariate relationships were explored, stratified by role in coalition, site, and other
demographic variables. These results were reported to the Allies sites from the
National Program Office annually as site-specific information along with ranges of
responses from all sites combined. Reliability analysis of questions from CSAS using
categories based on previous factor analyses by Kenney and Sofaer were used to
formulate indices for further descriptive analysis, bivariate analysis, and regression
model building.
The electronic records of interview data were sorted by codes based on study
questions and themes in order to analyze each specific topic qualitatively. Coded data
for each site were analyzed independently. A summary report for each site was
prepared by the contractor for both baseline and follow-up based on the interview
data and any documents collected and reviewed. The site-specific reports were
reviewed by each site prior to completion.
Program Reach
Program Reach data for all sites were compiled by the National Program Office staff
and will be examined to identify depth and breadth of program activities. Program
The National Program Office will conduct baseline to follow-up analyses for
intervention and comparison groups collectively and for each coalition site. The
analyses will pool data across the coalition sites, taking into account any differences
between intervention and comparison groups at each site. Analyses of pooled data
will include both stratification and control for coalition site. Bivariate relationships
will be explored, and in particular, relationships between factors related to
symptoms, health care utilization and quality of life outcomes will be investigated.
Multi-level models will be constructed adjusting for site differences in treatments,
individuals participating in the study and study site characteristics.