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ADHERENCE COUNSELING
GOAL
The goal of this module is to equip health
care providers with Adherence counseling
skills in HIV care and treatment
OBJECTIVES
At the end of this module, the participants will be able to:
1.
2.
3.
4.
5.
6.
7.
8.
UNIT 1
PSYCHO-SOCIAL ISSUES
EXPERIENCED BY PEOPLE
INFECTED AND AFFECTED BY
HIV
Psycho-social Issues
Loss and grief reactions
Stigma and discrimination
Psychiatric manifestations
Social issues (poverty)
Loss
Loss : can be due to death of a loved one,
separation, divorce, natural disaster,
miscarriage, loss of a job, deprivation.
HIV brings grief around a variety of losses
like Health, relationships, Sex, Future,
Certainty, Life, Jobs, Family, Self image
Independence, etc
GRIEF
Grief is the deepest human emotion
which is manifested in intense sorrow due
to loss causing suffering.
Types of grief: anticipatory, reactionary,
delayed, aborted and morbid grief
Grief-internal questioning. Making sense
of what has happened. It is a normal
human response to loss. It is not a form
of weakness, or lack of faith.
Psychiatric manifestations
Anxiety
Hopelessness
Depression
Denial/guilt
Suicidal ideations
Stress
Self hate
Fear of the future
Social issues
Poverty
Lack of social support
Loss of employment
Isolation
Breakdown of the family system
Disclosure
School dropouts
Increase of street families
UNIT 2
INITIAL ASSESSMENT
UNIT 3
STEP BY STEP PREPARATION
FOR ARVs
Adherence
is a dynamic process
Levels change over time
Influenced by multiple factors, no factor
stands alone
Requires a combination of promotion
strategies
Requires an integrated multidisciplinary
team effort
Follow-up plan
Next two counseling sessions
Physician check up and investigations
Contact information HW and patient
Counseling Session 2
Use an approach of continuing
discussion and not an evaluation
Repeat information where necessary
Re-emphasize important issues
Use dummy pills to repeat instructions
Step 2:
Review and assess patients understanding
and recall of treatment and follow-up plan
Step 5:
Review Barriers and how to address them
Step 6:
Fix a date for the next appointment
Counseling Session 3
Step 1:
UNIT 4
ONGOING ADHERENCE
COUNSELLING
Adherence
Assess Adherence
Adherence from pill counts:
# pills taken
X 100 = % Adherence
Challenges:
Forgot/ Busy
Felt ill
Felt better
Reasons for
missing doses
Fear of side effects
Family said no to
medications
Slept in
Side effects
Pills do not
help
Instructions not
understood
Reasons
for
missing
doses
Barriers
Problem solving
Forgot to
take
pills
BARRIERS
WHAT WE CAN DO
Traveling
Busy
Collect meds in
advance
Carry meds with
them
Use reminder cues
Alcohol / drugs
Depression/
psychiatric illness
Living alone
Treat depression
Enlist family
support
Use PLHA support
groups COPE
Problem solving
Pills do not
help
Felt better so
did not
continue
__________
Did not want
others to see
(contd.)
BARRIERS
Inadequate
knowledge
Enhance counseling
Patient attitudes
_________________
Stigma
Difficulty with
disclosure
Use literacy
materials
Involve family
members
_________________
Counseling
Support disclosure
Keep medications
with friend
No employment
Living alone
AIDS dementia
Literacy levels
Depression/
psychiatric
illness
Alcohol / drugs
Instructions
not
understood
Missed Doses
Do not take a double dose
Within 3 hours of scheduled dose take the
missed dose
If > 3 hours of scheduled dose, miss dose
and go on to the next dose, carry on the
treatment schedule
Advice to patients
Take with food if permitted
Eat more frequent small meals
Avoid greasy, spicy and fatty foods. Take bland
lightly
cooked food rice, soups, bananas,
biscuits
Drink sips of clean boiled water, weak tea, and
lemon water. Maintain hydration
Contact nurse or doctor in case of fever, vomiting
more than three times / day, thirsty but unable to
drink, pain in abdomen, breathlessness, confusion
Advice to patients
Rest in a quiet, dark room
Place cold cloth over eyes and forehead
Avoid strong tea or coffee
If not relieved with 45 doses of Paracetamol, consult
health worker
If frequent and severe headaches or fever, vomiting,
altered consciousness, blurred vision or convulsions
contact a nurse or doctor immediately
severe diarrhea
More than 5 times per day
5 or more consecutive days
Weight loss of more than 2 kg
Advice to patients
Eat small meals more times a day
Eat soft, easy-to-digest food rice,
bananas, biscuits. Avoid greasy, spicy
and fatty foods.
Drink sips of clean boiled water, weak
tea, ORS, lemon water. Avoid orange juice
or very salty soups as they can increase
diarrhea. Maintain hydration.
If fever, mucus or blood in stools,
diarrhea more than 45 times a day for 5
Advice to patients
Keep skin clean and dry
Use mild soaps( soaps that do not have strong
fragrance and non medicated)
Drink plenty of water to keep skin hydrated
Antihistamines to relieve itching and rash
Use Calamine lotion
If peeling of skin, blistering, or ulceration contact
nurse or doctor immediately
Advice to patients
Usually temporary and will resolve in few weeks
Take EFV at bedtime
Avoid heavy meals before sleeping
Avoid alcohol, drugs
Talk about your feelings with your friends or
family
If feeling very sad, have thoughts of killing
yourself, contact a nurse or doctor immediately
Advice to patients
Avoid alcohol, tobacco, Miraa and other
recreational drugs
Light physical exercise may help
Balanced diet with fruits and vegetables
Consult relevant Health care Provider if you
feel depressed
Regular and restful routine helps to reduce
fatigue
Advice to patients
Protect your feet
Wear loose fitting shoes and socks
Keep feet uncovered in bed
Soak feet in warm water, massage feet
Dont walk too much at a time
Inform health worker
Vitamin supplements and antidepressants may relieve
symptoms
Advice to patient
Aerobics
Exercises
Substitute the offensive drug
Client to check regularly on themselves
Supplement therapy
Ongoing counseling
Step 2:
Discuss the follow up plan
Review upcoming travel plans, contact
information
Review patients goals. Set new goals
Step 3:
Set up appointment for next visit
UNIT 5
ADHERENCE AND MEDICATION
USE COUNSELLING (MUC)
74
interactions
10. Give information on the side effects of
the medicines:
Informed on common side effects
That if side effects cant be tolerated,
he/she should come back to clinic
Timing of dosing
Aid from the domestic help
Stigma
UNIT 6
DISCLOSURE
Definition of disclosure
It is the process of revealing HIV status to
another
The process in pediatrics is different from
that in adults
Disclosure in children involves informing
the child about their status
Disclosure in adults involves revealing
own status to significant others
In either of them there are challenges
Disclosure in children
It is making known to the child their
status and may also involve sharing
the status of the caregiver/other
family member
An optimal process involves a
supportive role by the HCW to enable
the caregiver/parent
Initiate disclosure to the child
75% parents are more likely to
disclose to children, (40%) and to
daughters more than sons.
Disclosure in children
Ownership: caregivers/parent are the ideal
individual to inform the child about HIV status and
enables one to take charge over their health care
Time: appropriateness is to the discretion of the
informer and it may take some time following
several sessions
Support: continuous from HCW using a family
centered approach to form a strong treatment
alliance
Support groups: to reduce stigma, discrimination
and improve psychological well being
Disclosure Triangle
PARENT/GUARDIAN
(CARE GIVER)
89
Paediatric Health
Care
Worker
CHILD
Barriers to disclosure
Child:
Too ill, self blame, developmental stage
Caregiver/parent:
Fear, too ill
Social-cultural issues:
Taboos, traditions, religion, stigma
Disclosure in adults
Who and how to tell about HIV status can
be very complex
It is a personal decision yet considered
paramount in enhancing adherence
who to disclose to
Not every one needs to be informed
Contact persons need to know in
order to be tested and receive care
Employer???
When to disclose to prospective
relationship partnersconsidering
the legal requirements that one must
disclose status to sex partners
Importance of Disclosure
Effective disclosure should result in
emotional and practical support e.g.
post test clubs
Many who disclose to the public in
order to help others e.g. in education,
encourage, etc
Support groups for both the infected
and affected will be useful in dealing
with resultant psychological reactions
Importance of Disclosure
Educate child on: positive living e.g. personal
hygiene, sexuality, self awareness and stress
management to help child lead a healthy lifestyle
Encourage child to always ask questions and
discuss his/her concerns/fears
Explore the childs hopes, ambitions and plans
for the future using questions addressing wishes
108
Effects of disclosure
Disclosure can be very stressful
Some may accept the individual while others
will discriminate, stigmatize, segregate etc
Misconceptions and preconceived notions
about HIV will greatly affect the receivers
response
Failure to disclose has been associated with
anxieties, fears etc that compound the
emotional state of dealing with the HIV test
results
Note:
REMOVING THE SILENCE AND STIGMA
AROUND HIV STATUS MAKES US ALL
HEALTHIER
HIV testing and pre-and post-counseling is
an important element can be helpful in
the decision to disclose sero-status.
Exercises
(Allow participants 15 minutes)
UNIT 7
PREVENTIONS WITH POSITIVES
(PWP)
Background
Most prevention efforts focus on helping people avoid
acquisition of HIV
Traditionally target HIV negative persons or ignore
HIV status
Basic infectious disease epidemiology suggests we limit
spread of HIV from its source
To significantly slow the spread of the epidemic,
prevention efforts must also be directed toward HIV
infected persons who can transmit the virus.
UNIT 8
ADHERENCE COUNSELLING IN
SPECIAL GROUPS
Special groups
This group includes
THANK YOU