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"I'm not a normal 13-year-old," "I'm a deep thinker. I've had to be, with my illness. It's hard at 13, to know I'm going to die, but I also know what's best for me."
Leukemia
As more and more space is occupied by these abnormal blood cells, there is less and less space for the normal cells and the sufferer becomes ill. Quite simply, the bad cells crowd out the good cells in the blood. Hannahs heart was about 10 per cent of its normal capacity. If she didnt receive treatment it could lead to complete heart failure.
I've been in hospital too much. I've had too much trauma associated with hospital"
Family
Father Andrew: We were as low as it's possible to get, but I just didn't feel able to influence her. My wife and I agreed that whatever Hannah wanted, we would support her. She's a clever girl - but she was just fed up with operations and spending most of her life in hospitals."
Grandfather also understood and was not surprised of her maturity.
In July of 2008, doctors gave Hannah 6 months to live and warned that she needed the heart transplant in order to live more, but even with this action she could only last ten years at most.
Hannah is clearly attached to her family and wishes to be cared for at home..
She wanted to spend the rest of her short life at home in the company of her mother and father, brother Oliver and sisters Lucy and Phoebe
She appears to understand the serious nature of her condition. She demonstrated awareness that she could die. She was able to express her views and she did not wish to go back into hospital for cardiac treatment.
At this time Hannah was able to continue attending school depending on her health and when she was unable to attend to class, she was tutored from home.
Hannah did change her mind and asked to be placed on the transplant list
Late July of 2009: she was for an operation at The Great Ormand Street Hospital for Children. It is believed that the organ can add 25 years to her life.
''Hannah's change of mind came because she has enjoyed her life so much over the last year that she wanted more of it" said her father.
Right to life
Right to die
RIGHT TO DIE asociated with the idea of ones body and ones life are ones own
But Do we own our own bodies or does the State?
If we do
If States do
Then, we have the right to choose our own time and manner of death
Should a person with a terminal illness or a life-prolonging treatment have the Right to die?
When is a child old enough to understand and give consent to complex medical treatment? What happens if medical opinion goes against a young patient's decision?
For it
Priscilla Alderson, professor of childhood studies at the Institute of Education.
Treatment or even about whether to live or die, cannot be based on age.
Against it
Fiona Stewart, a pediatrician at Belfast City hospital.
Often children who have lived with illness do have quite an evidence-based view. Defend sometimes doctors should end up taking the court option.
IN THE UK
Gillick Competence Mental Capacity Act 2005 Mature Minor Doctrine UN Convention: Rights of the Child.
+ 16 are qualified to give consent. Problem: -16!
GILLICK COMPETENCE
Medical law to decide if a child with 16 years or less is enought mature to decide his/her own medical treaties, without the need for parental persission or knowledge.
England, Wales, Australia, Canada and New Zealand. A health departmental circular explaining that contraceptives could be prescibed to under sixteens years girls without parental consent by doctors.
VICTORIA GILLICK Started a campaign against the policy. But she lost it.
The parental rights just texist if it is to safeguard the best interest of a minor.
The House of Lords: an underage person who understand the consequences of his/her actions could be considered legally competent.
VICTORIA GILLICK
HANNAH JONES
Case of contraception.
SIMILARITIES:
The most important thing is the interest and the welfare of the minor
Re M Case
Parental decision
Her daughter had to undergo the heart transplant operation
Childs decision
Refusal of consent for the operation
Marions case
( Secretary of the Department of Health and Community Services vs. JWB and SMB) Parental decision Operations with future implication for the best interest of Marion High Court decision No authorization for such major operation
Andrea Oa Liss Hidalgo Noemi Vanunu Silvana Zarzar Paula Lorrio Yvette Mbaya